Thank you for posting your journey, including your EDS struggles. Hopefully you getting these things "out in the open" helps you. We like knowing we aren't all alone with EDS. My whole family has mild EDS, except my eldest, she's got progressively, worsening issues with it. She's 24 & tall, slender & beautiful, like you. AND she too has jaw issues _but_ thank heavens no migraines... just regular headaches, a few times a week. Well, so far. Have your doctors mentioned regular heart valve checks to you? AND your optic nerves getting regular checks too? Love your channel.😘💕💕 Thanks again for your honesty & _mega_ charm. ps. LOVE your style so very much! Hoping you'll consider showing off, by gracing us with a full season fashion show, someday?🤞 You know, spring summer 2022 & later fall winter 2022. (Only _if_ you think you'd have fun doing it though!) 💕💕 Lots of love from this Canadian gal, to you.
I grew up with a parent that can’t drive (she has a fear of driving and never went faster than 5k when she was learning). And as kids we never felt like we missed out on anything. We had a big backyard and she’d always have fun crafts and activities to do. So even on holidays when dad was at work and we stayed home most of the time. We found it fun and enjoyable. It was only when we got older when my mum said she felt bad for limiting what we could do as kids as she couldn’t take us out we realised that it was related to her not driving. Neither of us ever felt like we were ‘stuck’ at home or couldn’t go out. We enjoyed being at home with mum because she always made it fun. I think it’s great that you’re wanting to learn to drive, but as a kid who spent a lot of time at home I never felt like I was missing out on anything. Don’t feel like you have to force yourself to do something because you’re afraid of Rupert ‘missing out’. Because home days were mum days, where we got to spend time with her and going out days were family days with the whole family. They were both special for different reasons.
I too have a parent who hardly drives, after she crashed the car with me as a small child (nothing serious, neighter we, the car nor the tree got injured, but it scared her). It was never really a problem, even when dad went on longer business trips. We used bikes and the bus to get places, which made me good at getting around, despite my lack of orientation ability. This allowed me to be independent once I was a teen, unlike those of my friends who were used to being driven places. She also coordinated with other parents, on those times when driving was needed. Like when our football team had games in another town on a weekend. If dad was home, he would drive other kids too, and when he was gone, we would go with someone else. Mom would sometimes go, if there was room in the car and she was wanted. It was actually nice to not be the kid whose parent was always cheering on the sideline, once we got to the age where parents are not cool.
My mum doesn't drive either (not a fear or condition, she just was never interested) and growing up we would do activities that were either walking distance away or public transport could take us to! Now I'm far more independent that most of my friends because I basically grew up prawling the streets!
My mother in in a wheel chair, she physically could not drive without a special car, which we have never had. So I also grew up the same. I did spend a lot of Time at home and that was fine, but we also walked a lot of places, when I was really little I road on her lap, and later I stood on a platform on the back of her wheel chair like some of those double strollers have. (Obviously she had a electric wheel chair) we also took alot of public transportation, she knew all the bus drivers by name. It was pretty great, I was able to ride the bus alone when I needed too at 14.
Neither of my parents ever had a license and I grew up just fine as well. We just took public transport or walked places or us kids would take our bikes. Driving is definitely not necessary for a good childhood or life.
My Mom gets Botox for migraines and she gets none in her jaw. She gets hers in the high forehead and back of the neck, into the very top of the shoulders. It took a few tries to get the exact locations right for her, but it has made a huge difference for her. She was having 15+ migraine days per month, and now she gets few to none per month!
That's so awesome 🙏🙌 I'm so happy for your mum, she must feel she has a life back 🥰 Sadly my mum is similarly afflicted and the Botox did nothing for her 😭
I've had a similar story with my chronic neck pain/migraines. Botox is VERY helpful. I do also feel a bit sick/more painful the day or two after getting it, but it's easily worth that for the relief it gives.
I was kinda shocked when I found out how much they use for medical necessity like migraines. I work in a workers comp law firm, and saw that they’re issued around 300 units! For cosmetic, it’s around 45. Nuts, but I’m so glad that it helps people. The more you know!
I completely understand the sentiment of "Oh no, what if I CAN do that?" I still want people to know that I can't exist in the same way as a lot of other people do. I'm afraid that if they see me doing one thing, they'll tack on more expectations of things I can't do. So I often don't even try to do new things.
Realizing why I don't DIY - I don't have the right outfit! As soon as I get my party dress and pearl choker, I'll be ready to hit IKEA. 😉 Well done Jessica. I'm impressed by your multi-tasking! Rupert is a lucky boy.
I spent three years under a maxillofacial surgeon in London who at no point asked if the rest of my joints were wonky 🙄. I explained that my jaw comes partially out of the socket most times I open my mouth and was told 'no that can't happen'. Uh yeah, it can, and also you can feel it by putting your hand on my jaw and letting me open it. Eventually got discharged because 'we can't do anything else'. Two years later with hypermobility pain (waiting on an hEDS diagnosis) discovered that my jaw problems are likely related to that! This is your reminder that if you think something is wrong and the doctor is ignoring you, then get another opinion! Tell them you want it looked into. You know your body.
Something to think about/look into. I’m in the USA and I used to take care of a dentist’s granddaughter. He gives Botox injections for TMJ all the time and actual teaches classes on how to do various injectables online. If Claudia’s license allows it, and there’s a pharmacy/company in your area that will dispense it to her, she could give your Botox injections at home. I don’t know how dental licenses in the UK differ from the US.
Migraines present as stomachaches in kids?! Oh my god, I never knew that! I had stomachaches as a kid all the time, and now I spend every day trying to manage headaches and prevent them from turning into migraines! Literally gasped out loud when you said that! ✨
I got diagnosed with stomach migraines as a kid. It mostly meant that if I was to throw up, I wouldn't stop. I could hold anything down for 12+ hours. I once got hospitalised for a week because of food poisoning. Thankfully I very rarely get headache type migraines as an adult but I still have the stomach thing if I throw up. My head migraines are rare, weak and pretty low on the pain scale. I just know they're not a regular headache because of the colourful squiggles in my vision.
I have also had migraines since childhood I didn't really have the stomach ones, although often I would throw up from the pain when I was little. I think I was first diagnosed in 2nd or 3rd grade so not that little I guess.
Yep my son had abdominal migraines as a kid, hes 20 now and hasnt happened in probably 5-6 yrs so hoping he outgrew it. But hed randomly out of nowhere get bad stomach pains and then vomiting and/or diarrhea that went away in a few hours on its own usually. I get regular migraines, dr said it might be genetic and he may have regular migraines as an adult but so far he hasnt had that luckily
I have EDS too and decided to get Botox in my jaw after your first video. It was honestly pretty miraculous. The morning after I got it, not only had my jaw realigned, but also my chronically dislocated left shoulder. It's almost a year later and I just got Botox again since the pain was starting to come back. I'm so thankful for you sharing your experiences and helping me to make one of the best treatment decisions of my life. ❤️
How did they fix your shoulder? My shoulder is messed up. I had an untreated subluxation 10+ year ago and it has never been right since and dog walking has made it progressively worse.
I wanted to ask the same thing, how did it help your shoulder? I also have a dislocated shoulder and the pain was absolutely excruciating for years. I had a procedure on my tongue which helped realign my jaw and the pain has decreased considerably in my shoulder but I live with the terror of it 'coming back' even now, even though the pain went off a few years ago. There are certain movements I still am terrified to do in case it returns with a vengance!
I think what happened was, when my jaw muscle was forced to let go of all that tension, it had a cascade effect down my neck and across to my shoulder. We often forget how interconnected everything is. This was a good reminder for me that all that muscle and fascia is linked really closely.
A few months ago my husband and I put together a platform bed with storage drawers. It came with approximately 1 million little pieces. But I had the same expression as Jessica when it was done...I made this. Well, we did. But the satisfaction of doing something you usually don't do is a real confidence boost. Good job, Jessica!
The bit about being scared to try things in case you fail, with the additional worry that if you discover you can do it, you could end up losing help you're currently entitled to, really hit home. I'm fighting exactly that battle with myself at the moment. You have to savour the small victories - yesterday I finished crocheting a baby quilt for a friend who's expecting. It took me months, but I'm so proud of it - I saw a similar expression on your face when you finished making the trolley for Rupert. Thank you for making me feel that there's someone else going through similar struggles - it makes me feel a lot less alone.
@@howiefuzz6894 From what I've gathered by Googling, it seems to be from a 1953 film called "Molly Grows Up". It was about menstruation, so the 'curse' is referring to her period.
Also, my mother never drove either and that was fine. She taught us how to take public transit, taxis, etc. That was just as valuable a skill as anything else we learned
I've been struggling with my mobility since the pandemic started, but I got my first walker 6 months ago and it has done so much for my independence. Even on days when I'm feeling good and that I could not use it, I can do even more with it. I'm getting stronger and may soon be able to keep it in the garage for emergencies.
As a child, I had frequent headaches, especially at night. Doctors thought I was having migraines. Turned out the headaches were side effects of the numerous absence seizures I was having per day. When on medication for the seizure disorder, seizures lessen and the headaches stopped. I still get headaches, but more like sinus headaches and tension headaches, not the headaches that were like thunderclaps that would wake me from a sound sleep.
Hi Jessica, I have EDS as well and also have a wonky face 😕 I got Botox and it really helped my Migraines and my Neralgia I was excited. Then my insurance decided that it was not necessary and I can no longer get it. It’s very frustrating.
Jessica, I know what you mean about being scared to do things incase it triggers a migraine, it's a horrible feeling. Good luck learning to drive, we will all keep our fingers crossed 🤞
My lovely older sister gave me a positive a few years back. When I said I was TRYING to do something, she reminded me that I WAS "DOING", not trying. It was helpful to know that. You were DOING the building; you were past trying and should take credit for doing something from the start. Nothing wrong with trying, but don't give yourself less of a compliment. I'm glad you accepted that you are a DIY 👑👑👑 Queen !!! YAY I'm a bit envious as I start to sweat when an allen wrench is needed to finish a task. The cart came out beautifully ! Rupert will be off and running with it soon. yikes !!!
You have wonderful posture for someone who has a body that has trouble keeping itself together! You truly carry yourself like a princess 👑 Lovely to hear about your journey and I have nothing but love and best wishes for you and your family!
Just got botox in my forehead, neck, shoulders, and jaw. Been wanting that for years- finally my Doctors and insurance gave it to me. Feeling so much better. My Jaw used to dislocate as well, and I was getting so many forehead creases from constantly making pained expressions. It's such a relief to finally feel like myself again- not having to fret over how I was holding my face all the time.
As someone who's partner also has a messed up dislocating jaw, migraines and bottom and top teeth that don't actually meet symmetrically... I have witnessed your pain and am sending much love ❤️❤️
I've been wondering since I started watching your channel a few years ago if I might have EDS, though it presents mostly in my back and feet for me, and I just had an appointment where my doctor told me I probably did have it, and that was really validating. But now I'm going through another period of deciding how to make accommodations for myself and it's really emotional having to reconcile my want for independence and the satisfaction of accomplishments with what hurts my body, and it was really nice to see you doing this and feeling accomplished about it and being happy.
I'm happy you found something to help with your migraines. I had a jaw problem and had frequent migraines as well. Menopause has been such a blessing, no longer have them. And it is such a relief. So happy you don't have to wait that long.
You know those videos that are kind of like mukbangs except instead of eating, people are doing things like this and chatting? It's kind of like hanging out and I really liked it! I'm also feeling a little gloomy because I just returned home from visiting England for the first time (first time even leaving North America) and I wish I was still there lol, so this was a nice calming, pleasant video to see and also fun. Radio Flyer is always coming up with new things!
Your little mini rant about independence starting at 9:19 made me feel so SEEN. I have this too and it's so hard to explain! Like yes I would like to do Things but I'm also scared of doing Things or trying and failing or trying and getting sicker again or *gasp* trying and SUCCEEDING??? And now I have to be Capable™️???
I'm so happy to hear the botox is working well for your migraines 💗 when my doctor suggested trying botox for my migraines (because nothing has really worked so far) I instantly thought of your videos about it. Sadly the first time didn't show any results but I'm hoping this second time it will finally work 😖🤞
I have chronic migraines, and a neurologist at Mayo hospital in the states thinks I have EDS as well. I have done one round of Botox for my migraines, and the second round will be in a couple of weeks. It didn’t help the first time around, so I’m really hoping that it will the second time.
I just repaired my grandmother-in-law's lazy Susan. I felt like a total baddie and such a handy(wo)man. There's such a sense of accomplishment with doing something yourself. I may be limited, physically. But sometimes a little determination and going slow can still get you where you want.
I am so happy for you to have found something that helps managing your migraine and to have made the decision to learn to drive. I am autistic and have crippling anxiety and brain fog and learning to drive was a big trigger for me as the person teaching me was very abusive and it took me years to get over that fear and must admit it still feels surreal sometimes that I now have my own car and I am a very good driver and even drive to manage my anxiety sometimes !! I'm all heart with you :)
You did beautifully both explaining about your jaw muscle pain and keeping on track with Rupert's new flyer. Tackling new projects can be scary and rewarding for me also.
You ARE a DIY queen!!! And you're learning to drive!!! While Rupert is your primary motivation, you may discover that you like the independence of driving. You are rockin' it, queen!!! And I'm so glad you're able to get the botox treatments again.
I totally understand the kind & loving impulse to reassure you that your face isn't noticeably wonky but it's probably more use to highlight that at your wonkiest you're beautiful, as well as a great person doing great things in the world 💙
You did a great job! I know Rupert will love his wagon.☺TIlly is so cute sitting next to you in the chair. I know the feeling of feeling accomplished in doing a DIY project because I had put together my nightstand, and saying "Yay, I did it!" And yes, you look like a princess. ❤
Jessica just casually looking more glamorous than I did at my wedding... to sit on a floor and build a wagon 😂 Very relatable though, I have hypermobility and other chronic illnesses and I also have a wonky jaw. No one seems to notice but it bugs me and hurts sometimes - though thankfully doesn't give me migraines. And I definitely get the independence thing too, I'm trying to risk more things for my kid but it's hard when it's something I know will probably impact my illness and/or anxiety.
Your videos are always so soothing. I love your voice. I find that every time I watch and listen and learn, you instantly calm me down. Much love to you and Claudia and Rupert! 🫶
Finding something that helps is amazing. I had a really bad bout of depression recently and I got anti-depressents for the first time. It didn't just that bout but I was happier than I had been in years. So many things I had been angry about constantly that I didn't even know I had been mad about just didn't matter any more. I woke up each morning and I felt good. I went about my day found delight in everything. I still felt emotions like worry, regret, fear, but they weren't crippling anymore. I think I've grown tolerant and don't think it works as much but the fact I'm not crying over it not working like it did suggests it's still helping me somewhat. Now I'm just really grateful for a the happiest three weeks of my life.
I, too, am in the rubbish jaw club (and the zebra club). I once injured it so badly by...trying to close my mouth...that I spent a whole year unable to open my mouth more than about a centimetre. Eating was...challenging. Fun times. I missed sandwiches. And burgers. And chewy things. And crunchy things that were not my actual jaw itself. It still randomly goes *crunch* quite painfully, on both sides now (insert Joni Mitchell warbling). I also have migraines, which are only partly jaw-related. I think the majority are neck-induced(I have disc degeneration and nerve impingement and various other fun things going on there), but jaw, sinuses, etc, all seem to play a part. They tend to last 2-3 days, and happen 2-3 times a month (sometimes more, sometimes less). But my GP only gives me 6 zolmatriptan a month. Which I clearly need to have a word about...with my new GP, who I have just joined and not actually met yet. They will be wonderful and perfect and better than my last GP, who were shit. This is obviously an optimistic view of things. I'm trying to be optimistic. I am struggling to identify a single body part that is working properly and not causing me pain right now. I think my left middle finger is a contender. Most of my fingers ache, burn, tingle, or feel numb. They sort of cycle through the various sensations. But Left MIddle is currently doing none of those. Hooray!
So glad botox works for you! I was having around 20 migraine days a month too, I've been having a greater occipital nerve block and I'm down to 5 days a month! Life changing! (I'm 18 so they didn't want to give me botox this early haha)
I feel you on multiple-week long migraines. I had one recently go from the end of November to mid-January. I wish I was kidding. And now I have fibromyalgia, probably from having a 6-week migraine
I mean, idk how reliant you have to be on driving, but I grew up with a single mum and we didn‘t have the money for a car and both my sister and I could perfectly work around it. in kindergarten and elementary school, we just walked and biked everywhere, so we knew how to get around between friends’ houses, school, and activities on our own. In grammar school we then had public transport tickets, and that let us explore the rest of town. it also made us more resourceful with how to transport various items, which helps now at uni where I neither have a car nor a driver‘s license. Kids can work around needing a car ride. So yeah, don‘t pressure yourself too much, though I also absolutely understand wanting to drive yourself bc I also want to get my license when I got enough money (driving a moving truck myself so I don’t need my family to help with moves?? yes please???)
I have EDS and recently found out that my face bones shifting around gives me trigeminal neuralgia. Might be worth looking into some of the treatments for that as well as things involving your TMJ. I dislocated my jaw as well but because of my EDS I also dislocated other facial bones. Just a thought. Sending you love as a fellow rainbow zebra
Jessica, I know you don't know me, but I just wanted to say that I watched your videos for a long time until about a year ago, when I noticed myself having symptoms of chronic illness. Well, turns out I have Ehler's Danlos Syndrome, POTS, chronic migraines, Raynaud's Syndrome, Erythromelalgia, Hidradenitis Suppurativa, a couple immune deficiencies, suspected Chronic Fatigue Syndrome, and a bunch of other stuff I am still getting tested for. I just wanted to say thank you for inspiring me to get help. I knew something was wrong, but doctors kept dismissing my symptoms. Now I can confidently advocate for myself when I need to.
I really like the videos in which you talk while doing something else. I find they soothing. You take your time and go from step to step with such care. I like making things as well. It's always a joy to see the result of your work. P.S.: I'm spoiled and always miss the kiss at the end.
I love this video. I understand being afraid to do something or go somewhere because of the threat of possible pain. I'm on new meds and I have to reteach myself pacing. On average I feel better, but I keep overworking myself because I still have the same amount of energy. It is a long and laborious process.
its fascinating listening to other people to talk about their migraines because its so interesting how differently they present for everyone. I have chronic migraines but I don't often get migraines with a headache, I just get the aura. which is an extremely scary experience since for me that presents as temporary blindness, a numb tingling sensation in my face, slurred speech and weakness of my limbs. I can relate so much to not doing things because it can trigger a migraine but still wanting to push yourself. Thank you for sharing, Jessica, it was great to learn more about peoples' experiences with migraines
Okay Ive now actually watched the whole video and omg your smile and beam of happyness and proudness at the end is just.. youre gonna make me cry 🥰🥰🥰 you deserve more Independence and experiences. There will probably be setbacks, but keep on keeping on as always and youll get there 💪
"I don't have a migraine today, so running with it!" Is really such a wonderful mood! It's always lovely to discover I can function and use my brain again and work on the traffic jam of projects that were waiting for such a day
I get botox too although in my case is in the legs for spasticity. I feel so fortunate that I have been able to get it regularly all this time in spite of covid because it really makes a difference in my quality of life.
I'm considering trying botox for migraine again - the process gave me such a bad migraine the last time, I didn't want to go through with it. Great job on the wagon!
I really enjoyed and loved this video because of your honesty and just talking to us about how you are and how your life’s challenges. Thank you so much for sharing this great video
Oh! This is the same wagon that my great uncle got me and my cousins. It has my name on it and I just love it. It was fun when I was older than a baby also, because you could put toys in it (or a younger sibling/cousin) and push it around, or take turns with siblings and cousins pushing each other in it. I still have it and it’s just lovely.
My Botox wore off while I was recovering from surgery, and I was like omg it was doing something. I couldn’t understand why it hurt so much to chew post surgery till I was like… oh wait my Botox wore off. My pain meds were doing double duty for awhile. My Botox was for migraines and TMJ.
It's funny, no doctor has ever asked about *my* history of headaches (or stomachaches), so I didn't know I'd probably been dealing with this all my life. Both of my parents described their mothers having "lay in the dark for days" kinds of headaches though, so it's pretty certain I got the migraines from both sides. (They're both long since passed, years and years before my diagnosis so I can't exactly compare notes.) It feels like I got a double helping though, lol. I wish I could say botox fixed things, because then I wouldn't feel like I've wasted a year of my life, but here we are, and it didn't work for me. Onto lucky number 7 treatment. Also your answer to the question "why do you get migraines" is seriously the *most* relatable. I wish I knew as well.
The thing about EDS is that your connective tissue plays a role in eliminating toxins (this includes things your own body makes, like lactic acid!) and the EDS makes it slow down and not do its job properly. The consequences of this includes migraines, but also general stiffness in the muscles that can limit movement and lead to tightness. Basically your body parts are not communicating like they should. Ironically this can also lead you to not tolerate the doses of botox because your tissues cannot transport it quickly enough. I've been helped immensely by fascial (not facial) therapy and recently I went to another physiotherapist who taught me to massage my masseter muscles (that's the one that connects the skull and the jaw) by myself and this has been a game changer. There's all kinds of small but super long muscles running from the skull to the ribcage via the neck and jaw and so resolving a tiny issue with one tiny muscle can bring relief in a profound way, apparently.
As far as I can see, your face absolutely does not look at all wonky; but I get how you notice things like that more when it's your own body and you're used to seeing very particular things. All the best ❤️
The power of "My child wants to do this, so that's what we're doing" should not be underestimated. Coincidentally, I went to soft play today and it was actually fun.
I’m on my fourth dose of Botox for migraine, I think there are different areas for my migraines. I googled it and I’m getting the 31 injection set in forehead, nose, scalp, spine and shoulders. It’s super painful, but is an effective treatment. It’s helped with the intensity but not frequency. Which is still a huge help. Hope your Botox continues to heLp.
I unconsciously clench my teeth all the time and my muscles there are very, very over developed. It probably contributes to my migraines but sometimes the muscles are just sore and achy. They're also very hard to stretch. Also I have a close friend who gets botox for their migraines and it is literally a life saver. The migraines don't go away, but it helps a lot.
This is so strange, I just got botox today in my jaw after I havent been able to since august, and bam this video shows up 🤷🏻♀️ okay back to the video, love you, you are awesome ✌️
I very very much empathise with your plight. I've had chronic migraines since childhood. I've only been receiving botox for my severe chronic migraines since January 2019. I went into it believing it was total witch-doctery voodoo, but it works. It stops my migraines from expanding out from their point of origin to encompass the whole of both my hemispheres. This keeps them smaller and allows me to more effectively treat them with rizatriptan. Consequently they last fewer days. However, I've only recently begun receiving botox in my TMJ muscles as well. I've ground my teeth in my sleep most of my life. Sadly, my TMJ muscles have grown strong as superman's, and have consequently changed the shape of my face. I get the same comments.
I also have eds and migraine. Did your pain start with popping in your jaw b/c mine has started doing it. Also thanks for just taking about this and making it casual. Seeing you happy with everything makes me happy too.
i didn't do well with Botox - it didn't go where it was supposed to. However. I can remember all those tummyaches as a kid. yes i do! and the auras as well. such fun, chronic migraine. the family gift that keeps on giving.
When I was like, 12 or 13 I heard a doctor on a radio program describe the differences between types of headaches, and that was how I found out that I had been suffering migraines since I was VERY young. I still don't know what caused them, and I'm incredibly lucky that I no longer get them with any regularity, in fact my last one was many years ago now. However, I do get tension headaches quite often, thanks to my neck and shoulders. Anyway, all that to say, I'm so glad botox works for you, and those in similar situations, I know the pain all to well, it's just not something you forget.
Right now, my migraines are pretty well managed with amitriptyline, but if that ever stops working, I'll definitely look into the TMJ/Migraine connection. I didn't even realize that the two could be connected, so thank you for this video!
The fear of trying new things and getting hurt + the fear of seeming too capable so people forget that you need help bit took me OUT! I simultaneously feel seen and called out.
I've had migraines since I was teeny tiny (somewhere around 5-6), but it was never a stomach ache - always the horrific, rat-chewing-my-optic-nerve pain, almost always on the left. My mother's father had them all his life, too. Migraines and red hair, that's what I inherited from my grandpa. lol
![You won’t believe this ending! // Baking Bad Pandan Cake [CC]](/img/n.gif)
Dress from Hearts and Found: bit.ly/3vPi9GO 💖 👗
does rupert like what you made?
I love, love, absolutely ADORE that you look this glamorous to do DIY. The dress, the necklace, the hair. I bow to you.
You read my mind. ^_^
Thank you for posting your journey, including your EDS struggles. Hopefully you getting these things "out in the open" helps you. We like knowing we aren't all alone with EDS. My whole family has mild EDS, except my eldest, she's got progressively, worsening issues with it. She's 24 & tall, slender & beautiful, like you. AND she too has jaw issues _but_ thank heavens no migraines... just regular headaches, a few times a week. Well, so far. Have your doctors mentioned regular heart valve checks to you? AND your optic nerves getting regular checks too? Love your channel.😘💕💕 Thanks again for your honesty & _mega_ charm.
ps. LOVE your style so very much! Hoping you'll consider showing off, by gracing us with a full season fashion show, someday?🤞 You know, spring summer 2022 & later fall winter 2022. (Only _if_ you think you'd have fun doing it though!) 💕💕 Lots of love from this Canadian gal, to you.
Where did you find your petticoat? It's gorgeous! 💖
I grew up with a parent that can’t drive (she has a fear of driving and never went faster than 5k when she was learning). And as kids we never felt like we missed out on anything. We had a big backyard and she’d always have fun crafts and activities to do. So even on holidays when dad was at work and we stayed home most of the time. We found it fun and enjoyable. It was only when we got older when my mum said she felt bad for limiting what we could do as kids as she couldn’t take us out we realised that it was related to her not driving.
Neither of us ever felt like we were ‘stuck’ at home or couldn’t go out. We enjoyed being at home with mum because she always made it fun.
I think it’s great that you’re wanting to learn to drive, but as a kid who spent a lot of time at home I never felt like I was missing out on anything. Don’t feel like you have to force yourself to do something because you’re afraid of Rupert ‘missing out’. Because home days were mum days, where we got to spend time with her and going out days were family days with the whole family. They were both special for different reasons.
As someone who doesn't expect to ever be able to safely drive due to narcolepsy, this is so heartwarming! Thanks for sharing! ❤️
I too have a parent who hardly drives, after she crashed the car with me as a small child (nothing serious, neighter we, the car nor the tree got injured, but it scared her).
It was never really a problem, even when dad went on longer business trips. We used bikes and the bus to get places, which made me good at getting around, despite my lack of orientation ability. This allowed me to be independent once I was a teen, unlike those of my friends who were used to being driven places.
She also coordinated with other parents, on those times when driving was needed. Like when our football team had games in another town on a weekend. If dad was home, he would drive other kids too, and when he was gone, we would go with someone else. Mom would sometimes go, if there was room in the car and she was wanted. It was actually nice to not be the kid whose parent was always cheering on the sideline, once we got to the age where parents are not cool.
My mum doesn't drive either (not a fear or condition, she just was never interested) and growing up we would do activities that were either walking distance away or public transport could take us to! Now I'm far more independent that most of my friends because I basically grew up prawling the streets!
My mother in in a wheel chair, she physically could not drive without a special car, which we have never had. So I also grew up the same. I did spend a lot of Time at home and that was fine, but we also walked a lot of places, when I was really little I road on her lap, and later I stood on a platform on the back of her wheel chair like some of those double strollers have. (Obviously she had a electric wheel chair) we also took alot of public transportation, she knew all the bus drivers by name. It was pretty great, I was able to ride the bus alone when I needed too at 14.
Neither of my parents ever had a license and I grew up just fine as well. We just took public transport or walked places or us kids would take our bikes. Driving is definitely not necessary for a good childhood or life.
My Mom gets Botox for migraines and she gets none in her jaw. She gets hers in the high forehead and back of the neck, into the very top of the shoulders. It took a few tries to get the exact locations right for her, but it has made a huge difference for her. She was having 15+ migraine days per month, and now she gets few to none per month!
That's so awesome 🙏🙌 I'm so happy for your mum, she must feel she has a life back 🥰
Sadly my mum is similarly afflicted and the Botox did nothing for her 😭
I don't get any in my jaw, either :/
I've had a similar story with my chronic neck pain/migraines. Botox is VERY helpful. I do also feel a bit sick/more painful the day or two after getting it, but it's easily worth that for the relief it gives.
I was kinda shocked when I found out how much they use for medical necessity like migraines. I work in a workers comp law firm, and saw that they’re issued around 300 units! For cosmetic, it’s around 45. Nuts, but I’m so glad that it helps people. The more you know!
I completely understand the sentiment of "Oh no, what if I CAN do that?" I still want people to know that I can't exist in the same way as a lot of other people do. I'm afraid that if they see me doing one thing, they'll tack on more expectations of things I can't do. So I often don't even try to do new things.
Realizing why I don't DIY - I don't have the right outfit! As soon as I get my party dress and pearl choker, I'll be ready to hit IKEA. 😉 Well done Jessica. I'm impressed by your multi-tasking! Rupert is a lucky boy.
“I am powerful, I am in control”
That is a wonderful grounding affirmation!
Thank you for showing that.
I spent three years under a maxillofacial surgeon in London who at no point asked if the rest of my joints were wonky 🙄. I explained that my jaw comes partially out of the socket most times I open my mouth and was told 'no that can't happen'. Uh yeah, it can, and also you can feel it by putting your hand on my jaw and letting me open it. Eventually got discharged because 'we can't do anything else'. Two years later with hypermobility pain (waiting on an hEDS diagnosis) discovered that my jaw problems are likely related to that! This is your reminder that if you think something is wrong and the doctor is ignoring you, then get another opinion! Tell them you want it looked into. You know your body.
Something to think about/look into. I’m in the USA and I used to take care of a dentist’s granddaughter. He gives Botox injections for TMJ all the time and actual teaches classes on how to do various injectables online. If Claudia’s license allows it, and there’s a pharmacy/company in your area that will dispense it to her, she could give your Botox injections at home. I don’t know how dental licenses in the UK differ from the US.
Migraines present as stomachaches in kids?! Oh my god, I never knew that! I had stomachaches as a kid all the time, and now I spend every day trying to manage headaches and prevent them from turning into migraines! Literally gasped out loud when you said that! ✨
I got diagnosed with stomach migraines as a kid. It mostly meant that if I was to throw up, I wouldn't stop. I could hold anything down for 12+ hours. I once got hospitalised for a week because of food poisoning. Thankfully I very rarely get headache type migraines as an adult but I still have the stomach thing if I throw up. My head migraines are rare, weak and pretty low on the pain scale. I just know they're not a regular headache because of the colourful squiggles in my vision.
I have also had migraines since childhood I didn't really have the stomach ones, although often I would throw up from the pain when I was little. I think I was first diagnosed in 2nd or 3rd grade so not that little I guess.
I had to pause the video I was so shocked, a lot of things make sense now
Yep my son had abdominal migraines as a kid, hes 20 now and hasnt happened in probably 5-6 yrs so hoping he outgrew it. But hed randomly out of nowhere get bad stomach pains and then vomiting and/or diarrhea that went away in a few hours on its own usually. I get regular migraines, dr said it might be genetic and he may have regular migraines as an adult but so far he hasnt had that luckily
Never did I expect to have the honor and delight of watching a gowned Cinderella build her OWN freakin' magic carriage! My heart is full!
I have EDS too and decided to get Botox in my jaw after your first video. It was honestly pretty miraculous. The morning after I got it, not only had my jaw realigned, but also my chronically dislocated left shoulder. It's almost a year later and I just got Botox again since the pain was starting to come back. I'm so thankful for you sharing your experiences and helping me to make one of the best treatment decisions of my life. ❤️
How did they fix your shoulder? My shoulder is messed up. I had an untreated subluxation 10+ year ago and it has never been right since and dog walking has made it progressively worse.
I wanted to ask the same thing, how did it help your shoulder? I also have a dislocated shoulder and the pain was absolutely excruciating for years. I had a procedure on my tongue which helped realign my jaw and the pain has decreased considerably in my shoulder but I live with the terror of it 'coming back' even now, even though the pain went off a few years ago. There are certain movements I still am terrified to do in case it returns with a vengance!
I think what happened was, when my jaw muscle was forced to let go of all that tension, it had a cascade effect down my neck and across to my shoulder. We often forget how interconnected everything is. This was a good reminder for me that all that muscle and fascia is linked really closely.
A few months ago my husband and I put together a platform bed with storage drawers. It came with approximately 1 million little pieces. But I had the same expression as Jessica when it was done...I made this. Well, we did. But the satisfaction of doing something you usually don't do is a real confidence boost. Good job, Jessica!
1 million pieces-lol
@@jennifers5560 Well maybe I exaggerated a bit. But it came from Ikea...so maybe I didn't. LOL
@@lisam5744 I get it. It definitely can feel like a million pieces. The worst is when it is all put together and you have a handful of things left!
The bit about being scared to try things in case you fail, with the additional worry that if you discover you can do it, you could end up losing help you're currently entitled to, really hit home. I'm fighting exactly that battle with myself at the moment.
You have to savour the small victories - yesterday I finished crocheting a baby quilt for a friend who's expecting. It took me months, but I'm so proud of it - I saw a similar expression on your face when you finished making the trolley for Rupert. Thank you for making me feel that there's someone else going through similar struggles - it makes me feel a lot less alone.
if anyone asks me to go to the beach, I'll now tell them I can't go swimming because I have the curse
The best excuse! 😂😂
I love it! What is the clip from? I always say I don't dance because I'm from the town in Footloose.
@@howiefuzz6894 From what I've gathered by Googling, it seems to be from a 1953 film called "Molly Grows Up". It was about menstruation, so the 'curse' is referring to her period.
The ladies of Rifftrax riffed this short years ago; it's on their website and absolutely a delight.
Also, my mother never drove either and that was fine. She taught us how to take public transit, taxis, etc. That was just as valuable a skill as anything else we learned
I've been struggling with my mobility since the pandemic started, but I got my first walker 6 months ago and it has done so much for my independence. Even on days when I'm feeling good and that I could not use it, I can do even more with it. I'm getting stronger and may soon be able to keep it in the garage for emergencies.
As a child, I had frequent headaches, especially at night. Doctors thought I was having migraines. Turned out the headaches were side effects of the numerous absence seizures I was having per day. When on medication for the seizure disorder, seizures lessen and the headaches stopped. I still get headaches, but more like sinus headaches and tension headaches, not the headaches that were like thunderclaps that would wake me from a sound sleep.
Hi Jessica, I have EDS as well and also have a wonky face 😕 I got Botox and it really helped my Migraines and my Neralgia I was excited. Then my insurance decided that it was not necessary and I can no longer get it. It’s very frustrating.
❤️
Man, insurance can be so fristrating sometimes... 💗
I'm sorry. I hope they change their opinion again, so you can get it again soon!
I don’t know if you tried this already, but when my insurance did this, I was able to file an appeal successfully.
I have Ehlers Danlos Syndrome as well!! I'm getting my first shot of Botox next week!!
Jessica, I know what you mean about being scared to do things incase it triggers a migraine, it's a horrible feeling.
Good luck learning to drive, we will all keep our fingers crossed 🤞
The way you described having a weird relationship to independence really hit home. Thank you. I’ve been trying to explain it but I haven’t known how
You are the only person I have ever seen "build" a radio flyer wagon or anything else dressed as a "princess" Well done !.
Right? But is there anything that she can’t do in a “princess” dress?
@@jennifers5560 I'm fairly certain there is not.
My lovely older sister gave me a positive a few years back. When I said I was TRYING to do something, she reminded me that I WAS "DOING", not trying. It was helpful to know that. You were DOING the building; you were past trying and should take credit for doing something from the start. Nothing wrong with trying, but don't give yourself less of a compliment. I'm glad you accepted that you are a DIY 👑👑👑 Queen !!! YAY I'm a bit envious as I start to sweat when an allen wrench is needed to finish a task. The cart came out beautifully ! Rupert will be off and running with it soon. yikes !!!
You have wonderful posture for someone who has a body that has trouble keeping itself together! You truly carry yourself like a princess 👑
Lovely to hear about your journey and I have nothing but love and best wishes for you and your family!
Just got botox in my forehead, neck, shoulders, and jaw. Been wanting that for years- finally my Doctors and insurance gave it to me. Feeling so much better. My Jaw used to dislocate as well, and I was getting so many forehead creases from constantly making pained expressions. It's such a relief to finally feel like myself again- not having to fret over how I was holding my face all the time.
As someone who's partner also has a messed up dislocating jaw, migraines and bottom and top teeth that don't actually meet symmetrically... I have witnessed your pain and am sending much love ❤️❤️
I've been wondering since I started watching your channel a few years ago if I might have EDS, though it presents mostly in my back and feet for me, and I just had an appointment where my doctor told me I probably did have it, and that was really validating. But now I'm going through another period of deciding how to make accommodations for myself and it's really emotional having to reconcile my want for independence and the satisfaction of accomplishments with what hurts my body, and it was really nice to see you doing this and feeling accomplished about it and being happy.
I'm happy you found something to help with your migraines. I had a jaw problem and had frequent migraines as well. Menopause has been such a blessing, no longer have them. And it is such a relief. So happy you don't have to wait that long.
You know those videos that are kind of like mukbangs except instead of eating, people are doing things like this and chatting? It's kind of like hanging out and I really liked it! I'm also feeling a little gloomy because I just returned home from visiting England for the first time (first time even leaving North America) and I wish I was still there lol, so this was a nice calming, pleasant video to see and also fun. Radio Flyer is always coming up with new things!
The outfit and tools combo is just magic ❤️
Your little mini rant about independence starting at 9:19 made me feel so SEEN. I have this too and it's so hard to explain! Like yes I would like to do Things but I'm also scared of doing Things or trying and failing or trying and getting sicker again or *gasp* trying and SUCCEEDING??? And now I have to be Capable™️???
I'm so happy to hear the botox is working well for your migraines 💗 when my doctor suggested trying botox for my migraines (because nothing has really worked so far) I instantly thought of your videos about it.
Sadly the first time didn't show any results but I'm hoping this second time it will finally work 😖🤞
Stick with it for a few rounds-it took me three rounds to see improvement, but every round since has been a little better! 💜🤞
I have chronic migraines, and a neurologist at Mayo hospital in the states thinks I have EDS as well. I have done one round of Botox for my migraines, and the second round will be in a couple of weeks. It didn’t help the first time around, so I’m really hoping that it will the second time.
I just repaired my grandmother-in-law's lazy Susan. I felt like a total baddie and such a handy(wo)man. There's such a sense of accomplishment with doing something yourself. I may be limited, physically. But sometimes a little determination and going slow can still get you where you want.
I am so happy for you to have found something that helps managing your migraine and to have made the decision to learn to drive. I am autistic and have crippling anxiety and brain fog and learning to drive was a big trigger for me as the person teaching me was very abusive and it took me years to get over that fear and must admit it still feels surreal sometimes that I now have my own car and I am a very good driver and even drive to manage my anxiety sometimes !! I'm all heart with you :)
You did beautifully both explaining about your jaw muscle pain and keeping on track with Rupert's new flyer. Tackling new projects can be scary and rewarding for me also.
You ARE a DIY queen!!! And you're learning to drive!!! While Rupert is your primary motivation, you may discover that you like the independence of driving. You are rockin' it, queen!!! And I'm so glad you're able to get the botox treatments again.
I totally understand the kind & loving impulse to reassure you that your face isn't noticeably wonky but it's probably more use to highlight that at your wonkiest you're beautiful, as well as a great person doing great things in the world 💙
You did a great job! I know Rupert will love his wagon.☺TIlly is so cute sitting next to you in the chair. I know the feeling of feeling accomplished in doing a DIY project because I had put together my nightstand, and saying "Yay, I did it!" And yes, you look like a princess. ❤
Jessica just casually looking more glamorous than I did at my wedding... to sit on a floor and build a wagon 😂
Very relatable though, I have hypermobility and other chronic illnesses and I also have a wonky jaw. No one seems to notice but it bugs me and hurts sometimes - though thankfully doesn't give me migraines. And I definitely get the independence thing too, I'm trying to risk more things for my kid but it's hard when it's something I know will probably impact my illness and/or anxiety.
Thanks for the chill video! This kind of thing makes my day better especially when things are going to crap in the US
Your videos are always so soothing. I love your voice. I find that every time I watch and listen and learn, you instantly calm me down. Much love to you and Claudia and Rupert! 🫶
Finding something that helps is amazing. I had a really bad bout of depression recently and I got anti-depressents for the first time. It didn't just that bout but I was happier than I had been in years. So many things I had been angry about constantly that I didn't even know I had been mad about just didn't matter any more. I woke up each morning and I felt good. I went about my day found delight in everything. I still felt emotions like worry, regret, fear, but they weren't crippling anymore. I think I've grown tolerant and don't think it works as much but the fact I'm not crying over it not working like it did suggests it's still helping me somewhat. Now I'm just really grateful for a the happiest three weeks of my life.
I, too, am in the rubbish jaw club (and the zebra club). I once injured it so badly by...trying to close my mouth...that I spent a whole year unable to open my mouth more than about a centimetre. Eating was...challenging. Fun times. I missed sandwiches. And burgers. And chewy things. And crunchy things that were not my actual jaw itself. It still randomly goes *crunch* quite painfully, on both sides now (insert Joni Mitchell warbling).
I also have migraines, which are only partly jaw-related. I think the majority are neck-induced(I have disc degeneration and nerve impingement and various other fun things going on there), but jaw, sinuses, etc, all seem to play a part. They tend to last 2-3 days, and happen 2-3 times a month (sometimes more, sometimes less). But my GP only gives me 6 zolmatriptan a month. Which I clearly need to have a word about...with my new GP, who I have just joined and not actually met yet. They will be wonderful and perfect and better than my last GP, who were shit. This is obviously an optimistic view of things. I'm trying to be optimistic. I am struggling to identify a single body part that is working properly and not causing me pain right now. I think my left middle finger is a contender. Most of my fingers ache, burn, tingle, or feel numb. They sort of cycle through the various sensations. But Left MIddle is currently doing none of those. Hooray!
Congrats on the new doctor, I hope everything is getting better.
So glad botox works for you! I was having around 20 migraine days a month too, I've been having a greater occipital nerve block and I'm down to 5 days a month! Life changing! (I'm 18 so they didn't want to give me botox this early haha)
"there are so many magical things you can just know from hearing" hahahahaha I feel this but with sight
I love that you are sitting on the floor putting together toy while looking like a beautiful bride. I adore the necklace. Gorgeous!!!
I'm so happy you have some relief from migraines... and that's the cutest walker I've ever seen!
I feel you on multiple-week long migraines. I had one recently go from the end of November to mid-January. I wish I was kidding. And now I have fibromyalgia, probably from having a 6-week migraine
❤️
I mean, idk how reliant you have to be on driving, but I grew up with a single mum and we didn‘t have the money for a car and both my sister and I could perfectly work around it. in kindergarten and elementary school, we just walked and biked everywhere, so we knew how to get around between friends’ houses, school, and activities on our own. In grammar school we then had public transport tickets, and that let us explore the rest of town. it also made us more resourceful with how to transport various items, which helps now at uni where I neither have a car nor a driver‘s license. Kids can work around needing a car ride. So yeah, don‘t pressure yourself too much, though I also absolutely understand wanting to drive yourself bc I also want to get my license when I got enough money (driving a moving truck myself so I don’t need my family to help with moves?? yes please???)
I have EDS and recently found out that my face bones shifting around gives me trigeminal neuralgia. Might be worth looking into some of the treatments for that as well as things involving your TMJ. I dislocated my jaw as well but because of my EDS I also dislocated other facial bones. Just a thought. Sending you love as a fellow rainbow zebra
Thank you so much for sharing this. I also have EDS and your thoughts and feelings in this video resonate strongly.
I just need to say, you're too precious💖 I could feel your excitement and pride through my phone and it made me cry💕💖
Jessica, I know you don't know me, but I just wanted to say that I watched your videos for a long time until about a year ago, when I noticed myself having symptoms of chronic illness. Well, turns out I have Ehler's Danlos Syndrome, POTS, chronic migraines, Raynaud's Syndrome, Erythromelalgia, Hidradenitis Suppurativa, a couple immune deficiencies, suspected Chronic Fatigue Syndrome, and a bunch of other stuff I am still getting tested for. I just wanted to say thank you for inspiring me to get help. I knew something was wrong, but doctors kept dismissing my symptoms. Now I can confidently advocate for myself when I need to.
I really like the videos in which you talk while doing something else. I find they soothing. You take your time and go from step to step with such care. I like making things as well. It's always a joy to see the result of your work.
P.S.: I'm spoiled and always miss the kiss at the end.
Had every confidence that you would smash it out of the park Jessica.
👉👍🤜❤️
Loving the work-wear dress, perfect for DIY construction anywhere. I do hope it's dry-clean only. Machine washable is just so, boringly practical.
I love this video. I understand being afraid to do something or go somewhere because of the threat of possible pain. I'm on new meds and I have to reteach myself pacing. On average I feel better, but I keep overworking myself because I still have the same amount of energy. It is a long and laborious process.
its fascinating listening to other people to talk about their migraines because its so interesting how differently they present for everyone. I have chronic migraines but I don't often get migraines with a headache, I just get the aura.
which is an extremely scary experience since for me that presents as temporary blindness, a numb tingling sensation in my face, slurred speech and weakness of my limbs. I can relate so much to not doing things because it can trigger a migraine but still wanting to push yourself.
Thank you for sharing, Jessica, it was great to learn more about peoples' experiences with migraines
Okay Ive now actually watched the whole video and omg your smile and beam of happyness and proudness at the end is just.. youre gonna make me cry 🥰🥰🥰 you deserve more Independence and experiences. There will probably be setbacks, but keep on keeping on as always and youll get there 💪
We must be on the same wavelength, I finished putting together a whole breakfast nook set for my families dining room 😊.
"I don't have a migraine today, so running with it!" Is really such a wonderful mood! It's always lovely to discover I can function and use my brain again and work on the traffic jam of projects that were waiting for such a day
I get botox too although in my case is in the legs for spasticity. I feel so fortunate that I have been able to get it regularly all this time in spite of covid because it really makes a difference in my quality of life.
I'm considering trying botox for migraine again - the process gave me such a bad migraine the last time, I didn't want to go through with it. Great job on the wagon!
Well done!! It’s lovely and I know Rupert will love it.
You are such a star, Jessica! Congratulations, and I hope Rupert loves his wagon. 💖🎀💖
I can just imagine when Rupert is older and you show him these videos of all the things you made for him 😍
I really enjoyed and loved this video because of your honesty and just talking to us about how you are and how your life’s challenges. Thank you so much for sharing this great video
Oh! This is the same wagon that my great uncle got me and my cousins. It has my name on it and I just love it. It was fun when I was older than a baby also, because you could put toys in it (or a younger sibling/cousin) and push it around, or take turns with siblings and cousins pushing each other in it. I still have it and it’s just lovely.
I love that you are doing DIY in a very beautiful dress.
My Botox wore off while I was recovering from surgery, and I was like omg it was doing something. I couldn’t understand why it hurt so much to chew post surgery till I was like… oh wait my Botox wore off. My pain meds were doing double duty for awhile. My Botox was for migraines and TMJ.
that dress is absolutely gorgeous i think perhaps i need it... bookmarked for when i have an excuse to buy it!!
J: “Are you laughing at me in the background?”
C: “Yeah”
Relationship/marriage goals 😄❤️
Wonky or not, we love your face, Jessica.
That wagon is absolutely precious!
It's funny, no doctor has ever asked about *my* history of headaches (or stomachaches), so I didn't know I'd probably been dealing with this all my life. Both of my parents described their mothers having "lay in the dark for days" kinds of headaches though, so it's pretty certain I got the migraines from both sides. (They're both long since passed, years and years before my diagnosis so I can't exactly compare notes.) It feels like I got a double helping though, lol. I wish I could say botox fixed things, because then I wouldn't feel like I've wasted a year of my life, but here we are, and it didn't work for me. Onto lucky number 7 treatment. Also your answer to the question "why do you get migraines" is seriously the *most* relatable. I wish I knew as well.
"swallowing bits" is perhaps my least favourite name for a throat haha.
The walker looks great! Hope Rupert enjoys it!
Excellent building! It is genuinely adorable.
The thing about EDS is that your connective tissue plays a role in eliminating toxins (this includes things your own body makes, like lactic acid!) and the EDS makes it slow down and not do its job properly. The consequences of this includes migraines, but also general stiffness in the muscles that can limit movement and lead to tightness. Basically your body parts are not communicating like they should. Ironically this can also lead you to not tolerate the doses of botox because your tissues cannot transport it quickly enough.
I've been helped immensely by fascial (not facial) therapy and recently I went to another physiotherapist who taught me to massage my masseter muscles (that's the one that connects the skull and the jaw) by myself and this has been a game changer. There's all kinds of small but super long muscles running from the skull to the ribcage via the neck and jaw and so resolving a tiny issue with one tiny muscle can bring relief in a profound way, apparently.
As far as I can see, your face absolutely does not look at all wonky; but I get how you notice things like that more when it's your own body and you're used to seeing very particular things.
All the best ❤️
The power of "My child wants to do this, so that's what we're doing" should not be underestimated. Coincidentally, I went to soft play today and it was actually fun.
The discussion at 9:25 about being/maybe not feeling independent is such a great/authentic commentary. Everyone should listen to it.
DIY Queen! In pearls and a princess dress! Do enjoy your visit with Clara and her family, we'll be here when you get back.
Impressive, well done friend, thank for sharing! ✨
I’m on my fourth dose of Botox for migraine, I think there are different areas for my migraines. I googled it and I’m getting the 31 injection set in forehead, nose, scalp, spine and shoulders. It’s super painful, but is an effective treatment. It’s helped with the intensity but not frequency. Which is still a huge help. Hope your Botox continues to heLp.
I unconsciously clench my teeth all the time and my muscles there are very, very over developed. It probably contributes to my migraines but sometimes the muscles are just sore and achy. They're also very hard to stretch.
Also I have a close friend who gets botox for their migraines and it is literally a life saver. The migraines don't go away, but it helps a lot.
I love all of your videos and your thoughts on different types of topics, but I think this one might be my favorite♡♡♡♡♡♡
This is so strange, I just got botox today in my jaw after I havent been able to since august, and bam this video shows up 🤷🏻♀️ okay back to the video, love you, you are awesome ✌️
I very very much empathise with your plight. I've had chronic migraines since childhood. I've only been receiving botox for my severe chronic migraines since January 2019.
I went into it believing it was total witch-doctery voodoo, but it works.
It stops my migraines from expanding out from their point of origin to encompass the whole of both my hemispheres. This keeps them smaller and allows me to more effectively treat them with rizatriptan. Consequently they last fewer days.
However, I've only recently begun receiving botox in my TMJ muscles as well. I've ground my teeth in my sleep most of my life.
Sadly, my TMJ muscles have grown strong as superman's, and have consequently changed the shape of my face. I get the same comments.
Tilly ran away before being asked to help with the push wagon diy. 🤣
The dress, the necklace, the doggy, the hairr 🗣️ You're my inspiration, *DIY queen 🖤
I also have eds and migraine. Did your pain start with popping in your jaw b/c mine has started doing it. Also thanks for just taking about this and making it casual. Seeing you happy with everything makes me happy too.
i didn't do well with Botox - it didn't go where it was supposed to. However. I can remember all those tummyaches as a kid. yes i do! and the auras as well. such fun, chronic migraine. the family gift that keeps on giving.
When I was like, 12 or 13 I heard a doctor on a radio program describe the differences between types of headaches, and that was how I found out that I had been suffering migraines since I was VERY young. I still don't know what caused them, and I'm incredibly lucky that I no longer get them with any regularity, in fact my last one was many years ago now. However, I do get tension headaches quite often, thanks to my neck and shoulders.
Anyway, all that to say, I'm so glad botox works for you, and those in similar situations, I know the pain all to well, it's just not something you forget.
Right now, my migraines are pretty well managed with amitriptyline, but if that ever stops working, I'll definitely look into the TMJ/Migraine connection. I didn't even realize that the two could be connected, so thank you for this video!
The fear of trying new things and getting hurt + the fear of seeming too capable so people forget that you need help bit took me OUT!
I simultaneously feel seen and called out.
Way to go Jessica!
That pushwalker was so cute! ☺️
Well done! Can’t wait to see Rupert pushing it around!
OMG... this dress!!!!
I've had migraines since I was teeny tiny (somewhere around 5-6), but it was never a stomach ache - always the horrific, rat-chewing-my-optic-nerve pain, almost always on the left. My mother's father had them all his life, too. Migraines and red hair, that's what I inherited from my grandpa. lol