Thanks for everyone's support 🌿I try to read and reply to everyone's comments, though I'm not always able to. UA-cam does also delete some comments for some reason, so many apologies if I don't get back to you. All the best 😊🌿
Thanks for sharing your experience, Conor. There are a lot of us w/ severe ME who are very concerned about getting the vaccine. Hope you can continue to stay on a healing course, calm your nervous system, and see consistent improvement. Wishing you all the best
Hi connor this is quite a normal pattern with ME with ME you have a maladaptive stress reaction to everything most of ME suffers including myself have and are on your same journey also we can tolerate meds I've had ME about 17 years I would not take covid jag because I feared reaction with my ME everyone makes there own decision about that also I also use a tens machine for pain and cold and hot pads you are very brave and honest so please know every word you say I've been there and still go there with any stresser so keep your chin up and good luck with the future all the very best take care and thanks for posting big hugs patricia knights 🙂
Hi Conner I also meant to say keep up with your plants when you can even a few mins sitting out with your plants is of great benefit mother nurture turely is a wonderful soothing gift 🙂🙂
I've notice I made mistake in my first message I meant to say I can not tolerate medication along with many other people with ME so I try to avoid it and all costs and use other methods when possible all the best Conner I hope today you have some better moments take care xx patricia knights
Thanks for your message. Yes I seems we are just a little more sensitive to meds and other things. I will keep up with the plants! Wishing you all the best 😊💪🌿
Great to hear from you 😊! I'm glad you're doing better. I used to have a big garden. I loved all my plants and trees..but when I got sick I had to sell my house, I just couldn't take care of it and garden. I'm eager to watch your other channel 😄.
Found out about ME/CFS after having Long Covid for 9 months now. Your videos do a good job showing what it’s like for someone with it. I am afraid to take the vaccine honestly because of the chance of getting worse is not one I can take. I wish you the best.
Thank you 😊So sorry to hear you're struggling with long Covid, I really hope things start to pick up for you soon. I think the vaccine was just a temporary rough patch, and things are easing a bit now. All the best.
Great to see you're doing so much better. I think we've all been in the pit during a major setback. It's hard to describe how horrible it is to someone who hasn't been there. Anyway, glad to hear how it's all going 🌈 All the best 😁
Hi Conor, it may be small comfort but you do LOOK better than previously when you were effectively confined to bed, good skin colour. Hopefully plants will continue to be therapeutic. The pineapple guava looks very healthy 👍😁
I had covid in Dec 2021 and long covid,not knowing anything about m.e/cfs which I'm being diagnosed with went and had the jab 26th April 2022 and has made me and my symptoms very ill indeed,I wish I never had it but what can I do? I did
Hi Conor. So so great to see you and to see your continued improvement. I’ve heard quite a few people say the reacted quite bad to first dose then nothing the second or vice versa. Also after the initial flare comes a great flow of better health. So, so great to see you on the other side. Cheering you on. :)))
Hi !! I’m so glad you are improving!! How are you building up your activity? I’m severe as well but the more I rest the worse I feel !!! Weird ! Thank you !
Thanks! I just add somewhere between 3% and 5% each week to my sitting up time, or standing up time etc. Way back when I was really severe, it was adding on 5 seconds onto brushing my teeth time each week etc So I had to start small, but it does build up, and then you're able to take bigger leaps eventually. Wishing you all the best 😊🌿
@@conorhope2307 thank you so much for replying! Means the world. I’m here crying in my bed cause I’m afraid of not getting better ever . I also have lyme but PEM it’s a cfs symptom. Have to decide if I do lyme treatment but I’m very severe affected and very weak . Thank you for giving me hope of better days ❤️
Better days will come. I have been near the point of ending it all, but now I'm starting to see the glimmer of a normal life on the horizon. Keep going, lots of self love, self compassion, calming the nervous system down, and really gentle increases in physical activity. Wish you all the best 🌿
@@conorhope2307 thank you so much … It’s seems that you were reading my mind … I’m lying here thinking of what’s the point then you message pop up as notifications. I don’t use to open them right away but I did and then I read exactly what was crossing my mind and your message of hope . Weird world. Sending ❤️
Hi Conor, Good to you well enough to do another update, I'm glad to hear that you are over the worst of it. May I ask which vaccine you had? Wishing you well 😊👩🦽
@@demolaj1 My immune system has always been terrible and I had a lot of colds/allergy stuff during the onset. I think there is an immune component, probably determined genetically, or triggered by a virus. But I don't think it's the whole picture. I think irs the combo of that, plus lots of stress/trauma/certain personality traits etc.
Thanks for everyone's support 🌿I try to read and reply to everyone's comments, though I'm not always able to. UA-cam does also delete some comments for some reason, so many apologies if I don't get back to you.
All the best 😊🌿
Thanks for sharing your experience, Conor. There are a lot of us w/ severe ME who are very concerned about getting the vaccine. Hope you can continue to stay on a healing course, calm your nervous system, and see consistent improvement. Wishing you all the best
Thank you. I think though, that it was a temporary reaction, so feeling more positive now. Take care 😊🌿
Hi connor this is quite a normal pattern with ME with ME you have a maladaptive stress reaction to everything most of ME suffers including myself have and are on your same journey also we can tolerate meds I've had ME about 17 years I would not take covid jag because I feared reaction with my ME everyone makes there own decision about that also I also use a tens machine for pain and cold and hot pads you are very brave and honest so please know every word you say I've been there and still go there with any stresser so keep your chin up and good luck with the future all the very best take care and thanks for posting big hugs patricia knights 🙂
❤❤
Hi Conner I also meant to say keep up with your plants when you can even a few mins sitting out with your plants is of great benefit mother nurture turely is a wonderful soothing gift 🙂🙂
I've notice I made mistake in my first message I meant to say I can not tolerate medication along with many other people with ME so I try to avoid it and all costs and use other methods when possible all the best Conner I hope today you have some better moments take care xx patricia knights
Thanks for your message. Yes I seems we are just a little more sensitive to meds and other things. I will keep up with the plants! Wishing you all the best 😊💪🌿
@@conorhope2307you're very welcome take care ❤
Great to hear from you 😊! I'm glad you're doing better.
I used to have a big garden. I loved all my plants and trees..but when I got sick I had to sell my house, I just couldn't take care of it and garden. I'm eager to watch your other channel 😄.
Ah thats such a shame! Hopefully youre still able to grow a few plants where you are now. All the best 😊🌿🌱
Found out about ME/CFS after having Long Covid for 9 months now. Your videos do a good job showing what it’s like for someone with it. I am afraid to take the vaccine honestly because of the chance of getting worse is not one I can take. I wish you the best.
Thank you 😊So sorry to hear you're struggling with long Covid, I really hope things start to pick up for you soon. I think the vaccine was just a temporary rough patch, and things are easing a bit now. All the best.
Great to see you're doing so much better. I think we've all been in the pit during a major setback. It's hard to describe how horrible it is to someone who hasn't been there.
Anyway, glad to hear how it's all going 🌈 All the best 😁
Thank you! All the best to you too 😊🌿🙌
Hi Conor, it may be small comfort but you do LOOK better than previously when you were effectively confined to bed, good skin colour. Hopefully plants will continue to be therapeutic. The pineapple guava looks very healthy 👍😁
Thanks Brett! Feeling positive. Haha, trust you to notice the pineapple guava 😅
Best of luck on your recovery journey bud!
Thank you! 🌿
I think you do amazingly! Don’t ever give up hope despite any set backs! ❤️
Thanks so much 😊🌿
I had covid in Dec 2021 and long covid,not knowing anything about m.e/cfs which I'm being diagnosed with went and had the jab 26th April 2022 and has made me and my symptoms very ill indeed,I wish I never had it but what can I do? I did
Hi Conor. So so great to see you and to see your continued improvement. I’ve heard quite a few people say the reacted quite bad to first dose then nothing the second or vice versa. Also after the initial flare comes a great flow of better health. So, so great to see you on the other side. Cheering you on. :)))
Thanks so much! Yes I don't think the second will be as bad as the first, and feeling quite positive in general. All the best 😊🌿
Hi !! I’m so glad you are improving!! How are you building up your activity? I’m severe as well but the more I rest the worse I feel !!! Weird ! Thank you !
Thanks! I just add somewhere between 3% and 5% each week to my sitting up time, or standing up time etc. Way back when I was really severe, it was adding on 5 seconds onto brushing my teeth time each week etc So I had to start small, but it does build up, and then you're able to take bigger leaps eventually. Wishing you all the best 😊🌿
@@conorhope2307 thank you so much for replying! Means the world. I’m here crying in my bed cause I’m afraid of not getting better ever . I also have lyme but PEM it’s a cfs symptom. Have to decide if I do lyme treatment but I’m very severe affected and very weak . Thank you for giving me hope of better days ❤️
Better days will come. I have been near the point of ending it all, but now I'm starting to see the glimmer of a normal life on the horizon. Keep going, lots of self love, self compassion, calming the nervous system down, and really gentle increases in physical activity. Wish you all the best 🌿
@@conorhope2307 thank you so much … It’s seems that you were reading my mind … I’m lying here thinking of what’s the point then you message pop up as notifications. I don’t use to open them right away but I did and then I read exactly what was crossing my mind and your message of hope . Weird world. Sending ❤️
Looking good Conor!
Thanks! 😊🌿
As someone with long covid please stay safe. The vaccine also made me crash pretty hard.
Really hope it starts to ease for you soon. All the best 😊🌿
Hi Conor,
Good to you well enough to do another update, I'm glad to hear that you are over the worst of it.
May I ask which vaccine you had?
Wishing you well 😊👩🦽
Thanks, I actually don't know, I haven't checked as I didn't want any placebo effect making things worse than they were. I hope you're doing well 🌿🌿😊
Amazing progress. What do u grow x
Thought I'd replied to this, sorry! I grow lots of potted fruit trees, figs, apples, apricots etc 😊🌳🍎
Have you looked up medical medium Anthony William 🙏
Yeah 😊🌿
I'm sure his information helps, its helped me,
Are you hypermobile?
Fairly, quite flexible, not diagnosed with anything like that though
what caused this for do you think ?...
A combination of long term stress, lots of self-imposed pressure to do well and probably certain genetic predisposing factors.
@@conorhope2307 any vrius or sickness prior to onset ?
@@demolaj1 My immune system has always been terrible and I had a lot of colds/allergy stuff during the onset. I think there is an immune component, probably determined genetically, or triggered by a virus. But I don't think it's the whole picture. I think irs the combo of that, plus lots of stress/trauma/certain personality traits etc.
@@conorhope2307 have you ever had any vaxes prior to this in life ?
@@demolaj1 Yeah just the usual stuff