What a find! I had a lacunar stroke 2.5 months ago. 69 yrs., Normal wt., never smoked, lifelong fitness advocate, vegetarian. Lower Left side is numb. Getting good rehab and am working hard to walk normally. But I can’t see a neuro for 8.5 months 😢. Your video is a miracle, a gift.
I also had a thalamic lancular stroke! 8mths on my balance is completely off and I have heavy feeling in the left arm and leg! Weirdly I also struggled getting words out although that settled down but I feel like I don't physically recognise who I am right now! Was told I should be almost recovered by now but that's a long way off! I'm 61yrs old never smoked and was very healthy prior to this stroke!
Thank you for offering this valuable information. It would have helped me immensely on what to expect if i knew about SVD 11 years ago when my dad's cognitive decline began. It was relatively abrupt. In less than a month he descended into a hazy and depressed state of mind, compared to his previous diligent and brilliant personality. Both MRI and CT reported: "Old lacunar infarct in the region of the left lentiform nuclei" and "periventricular and subcortical bifrontal FLAIR hyperintensities". Years later I learn about SVD, and the functions exerted by the areas of the brain where the lacunar infarction and the hyperintensities appeared (under the basal ganglia, white matter around the ventricles and the basal forebrain), also about the clinical consequences when the circuits in those areas are interrupted. That explained his long progressive but stepped decline, sudden dementia, depression, obsession with certain foods, apathy, incontinence, poor balance, frequent falls, etc. The neurologist diagnosed AD because of the mild atrophy in the hippocampus shown on the MRI, also because he failed miserably on cognitive tests. but I felt it was something else. Maybe he have both AD and SVD but now it doesn't matter. In the final stages of any dementia they all look the same. My dad's is too severe now and it's too late to do something about it.
That is right. The majority of the patients have a combined process. We are more predisposed to that since we are living longer. The diagnosis of Alzheimer's disease is more accurate clinically at this time due to multiple biomarkers available, including findings on the cerebral spinal fluid. However, the combined process is the rule rather than the exception. A good diet and high-mod intensity exercises are paramount. People need to start now, not later.
Thank you very much for this presentation! I am in my early 70’s and have several of the factors you spoke about. I’ve been seeing a neurologist. This information was helpful!
I'm 38 and my MRI shows white matter and small vessel ischemic disease...and the lesions look like mini strokes?? Wth I've never had a stroke...but my mother has??I forget everything...it's frustrating when your brain doesn't work...
May be ok. We are all allowed one or 2 whl each decade. How is your cardiovascular health? Pls eat good cholesterol and do cardio bc it helps w good blood flow ! Pubmed is a good source for your medical research
Very informative doctor glad I found you and your video. I’m so sick and tired of hearing from the MRIs and CAT scans about the white matter etc. etc. it always appears to me that these doctors are too lazy to order other tests and check for further problems if you’re someone like me who has kidney disease Liver disease, diabetes high HDL triglycerides are used to be about 13.9 on the A1c and I’m now down to around 10. It’s still explosive pressure in your system. I see my doctors in Boston on Tuesday. I currently have skin cancer along with other issues and I am going to request a pet scan, so I can find out more clearly where the cancer cells may be seeing as my father died of pancreatic cancer at 68 and I am 64. My mother had a stroke has a fib she’s 87 and my brother who is 65 had a stroke at 62 my grandfather died of a heart attack at 58 years old, his wife, my grandmother on my father side again died of an aneurysm and stroke. I’m not gonna wait around to be the next one. I’ve been very proactive and I’ve got to put them up against the wall and smack them around for a while until they get the message, cause some of these doctors need a good tuneup pardon my expression thank you for the knowledge that you shared and helps people such as myself to be able to continue to run my own healthcare
I have T2 white spots on my brain MRI also. I had taken pseudoephedrine and did not realize that it stimulates TRPV1 that constricts microvessels called arterioles. This leads to cerebral ischemia due to too much vascular constriction that does not allow enough oxygenated blood to the brain. I had dropped foot and weak left side of my body. I took vitamin D 10,000 i.u. 4 X/day and it stopped. Vitamin D is a partial agonist of TRPV1 and blocks complete agonists such as pseudoephedrine and capsaicin in hot peppers and other things such as acidic pH and heat. I stopped taking pseudoephedrine after realized what had happened.
I'm curious about your situation. I took ephedrine consistently for about 8 years, and now I'm wondering if I'm seeing the same thing. My MRI is showing an impression of small vessel disease. If you have any more insight as to the condition I can consider that would be helpful. Thanks,
@@dlambethful I haven’t looked further since my lesions have not changed in 3 years. There are a number of reasons for them and my basic impression is that the keto, low carb and carnivore diets are the best at not adding inflammation to the microvasculature in addition to holding off the ephedrine type drugs. Multiple sclerosis patients get brain lesions due to destruction of the myelin that surrounds the neurons and TRPA1 has been found to cause that. TRPA1 is a transient receptor potential channel that is stimulated by many things from inflammation to foods such as mustard oil, garlic, cinnamon, toxins and cold temperatures.
@@Tad-For-Global-Peace capsaicin does however it can cause cardiac death too in people who take it for weight loss. Too much capsaicin also stimulates too much TRPV1 that leads to hyponatremia, bone loss and many other health problems such as the hypoosmolality ->too much TRPV4-> hypokalemia and induces Brugada syndrome sudden cardiac death. Combined with the carbohydrate/sugar stimulation of glp-1 can stimulate too much GnRH -> FSH -> SHBG and in people with low estrogen cause many disease from very little active estrogen osteoporosis, hearing/vestibular loss of function, neuropathy such as small fiber neuropathy/pain, atherosclerosis, hypertension.
I was diagnosed with SVD about 10 years ago. I have recently noticed that I am much slower in moving, my memory is being affected, my balance is off and I can't lift my left leg like I should when I walk. It is stiff and mildly drags....I can't seem to lift my toes on my left foot. I hope this doesn't mean I will need to go into a facility soon. 🥺 ADD: I also have SLE, am prediabetic and have moderately high blood pressure, but my doctor doesn't think I need any further eval or treatment. This makes me MAD! I do exercise regularly, but not vigorously. When I was diagnosed with SVD, I went in because I was having chest pain and they saw part of my heart had died. They did an Atherectomy thinking I had blocked arteries, which caused a blockage to my hear, butmy large arteries were fine. That's when I was diagnosed with SMV and IHD.
I think there could be a genetic link on why this can happen and also autoimmune implications are being studied right now! I've had a small thalamic infarct stroke that i was told might be due to high blood pressure! I also have what they called small vessel disease with mild white matter I read a lot and found a lot of information on how it can cause cognitive decline and dementia..im hoping that I'm not going in that direction! Your video was spot on describing what you can possibly do to prevent it..although there is a lot of clinical trials looking into inflammation and autoimmune causes for people that have healthy lifestyles but still develop white matter lesions and infarcts at a young age! My so called small infarct stroke has left me with severe balance issues and weakness in the lower left leg and that's after 8mths and physio These small infarcts have a tendency to be called strokes that have a good recovery..but in my case and many others that hasn't happened!
That is right, but the lesions tend to have different characteristics. Also, it is significantly less common. For example, MS is an autoimmune disease with characteristic lesions and many other clinical features.
@@luisezayasmdpt4397 I would love you to be able to take a look at my brain scans, they ruled out MS and susac syndrome and then said looks like small blood vessel disease but the whole brain lights up and I have had so many DRs say well you certainly don’t look like someone who has all that wrong and been told they haven’t seen anything like it before, for someone to have so many random widespread diseases across the body and look fine on the outside, am 39 and have also had a lot of gaslighting because I have a immunodeficiency aswell and my bloods don’t show infections, inflammation or damage
But maybe it’s not uncommon. Maybe there’s an unidentified autoimmune factor in a greater percentage than is known. Look at the replies. So much autoimmune mentioned
My dad passed away in 1991 due to cerebral atrophy at the age of 69. His symptoms appeared about 2 years before he passed away. 1) he lost his memory gradually 2) he lost ability to walk.
Same happened to my mum. she passed on 21st may, 2024 at 65. dementia happened 2 years 2 months before she passed. First memory loss, hyper agitation, lost ability to walk and keep balance, ability to swallow, finally couldn't breathe...
I have aswell I am 39 and brain lights up like a Christmas tree with it they said, rare apparently at our age and had strokes too and a lot of internal damage widespread
I had a concussion last year, had an mri scan this year which showed mild CVD, I've had continuous head pain, dizziness, pressure feeling since concussion, though my neurologist says the CVD is not due to the concussion, I know it is.
I just have an MRI last week and its says, mild patchy periventricular and subcortucal T2 hyperintense foci in both supratentorial. Mild cerebral volume loss with compensatory dilation of the ventricular stem . Mild small vessel ischemic disease. And slight narrowing after the stent i have after my brain Hemorrhage blast year but stent wis patent.
I just had a mri/mra done a week ago & it showed moderate atrophy but the pa who talked to me about the report told me it was nothing to worry about even though we already have confirmation that it is more than the previous one they did 2 years ago ; lack of circulation in my arteries & small vessels with vision loss, bp issues & 2 brain aneurysm one (right PiCA) which has grown from a 2 to a 2.4mm in a year and the 2nd a new one in the left opthalmic with vision loss & periodic total transient blindness but don't worry she says) & orthostatic hypotension, Angina (diabetic LADA fir 32 years) Had spinal meningitis years ago will that show up as white spots??? Also diagnosed with Arachnoiditis back in 2013...will this affect the brain???
My mri shows multiple microangiopathic punctate lesions on brain . My ankles really hurt my wrists hurt my head goes numb waiting see neurologist. Nit sure if it's ms or white matter disease. The lesions are in subcortial
True frustration is suddenly becoming fully incontinent at 36, suddenly developing focal aware seizures, as well as tingling, raynauds and neuropathy in my extremities, and severe cognitive decline among other things and being told the white spots and atrophy are just normal aging. At 36. With all the sudden onset of symptoms not taken into consideration. I am having a spine MRI in a month. Pray that this will finally get me somewhere. Ive been fighting to be heard and not told "youre just getting old" for three years now. Im only 39.
I have parallels with you. I do have lupus with neuro symptoms , but neuroimmunologist says the white matter lesions at upper limit of normal and unrelated. I’m improving from this flare up but problem with thinking, slow and uncoordinated, loss of balance, etc. low BP, no dm, normal weight, good lipids. Yes on migraines. I see the best or one of best, and even he can’t give me an answer. I’m taking prednisone, hydroxychloroquine, and I’m doing my own addition of baby aspirin, lots of omega oils, trying to get good exercise, but it’s so terrifying when even the best don’t really know
Oh also- I’m the worst of the flare- I did have neuropathy, new onset Reynaldo’s too which so weirdly seems gone as the flare up has subsided. If you see my reply and for some reason they haven’t already, ask your drs to test autoimmune panels
Trust your gut this isn't normal for 36. Suggest looking into: -hypoxia -hypoperfusion -hypercapnia -internal carotid artery compression if you have Thoracic Outlet Syndrome or Ehlers-Danlos Syndrome -Dysautonomia -Skim biopsy for alpha-synuculinopathy is you have neuropathy The straightest line to diagnostic testing is a chiropractic neurologist. I went to a double board certified autonomic neurologist, vascular surgeon, neurologist and neuro-ophthalmologist. None of their tests or assessment came close to what I found through an MRI and the results from the chiropractic neurologist. Stay strong it's not an easy road. 🕊️
Hi My mom has csvd in brain my mom only 41 years old she didn’t smoke she didn’t drink but for 6 years she has been having bad headache yesterday She was taken MRI and doctor said she has this disease WHAT CAN I DO
@@dp4008 neurologists or other providers use name the name “mini stroke” , so patients can understand that if you do not take care of yourself you will end up with a stroke. “mini stroke” is the equivalent of TIA ( transient ischemic attack). As the word transient indicates, it last usually 10 minutes, sometimes few hours and the MRI is normal for acute infarction ( death tissue). If the mri shows acute infarction then you call it stroke. The symptoms depend on the location. Acute management is different but the chronic management is the same including risk factors modifications
I am in SD and want to find a board certified neurologist that will take white matter seriously and prevent further and improve rather than ignore. How to find a gd neurologist, I have options with a PPO
I get you completely I actually am terrified of developing dementia as I had a thalamic stroke and they say the recovery is good for these strokes but 8mths on I have no balance and a heavy left leg! Let's just hope we don't go up the dementia route until we are in our 80s😂
Don’t be- change diet and lifestyle. Vitamin k omega 3 vitamin c eat more greens like arugula. Drink more water. Avoid stress . Get a whole body cleanse at a wholistic facility. Add sprinting to your exercise regiment.
Dr Zayas: tengo 56 en edad en 2023 durante un surgical clearance MRI of brain salio con white matter pero radiologist puso era Normal. me hice la espalda y como suele ocurrir segmentos subsiguientes necesita mas cirujia por que es otra vertebra y a penas puedo caminar . El cuello tambiem se desborono y AY SANTO!!! Dios me entra un dolor intenso en la nuca y un temblequeo de cuerpo completo que no podia controlar. Me hospitalizan pero Se reservaron el resultado del MRI del cerebro AHORA a 12 meses mas tarde ahora radiologo escribees Chronic Isquemia Diseasewith Demyeling Disease. ME SORPRENDI porque el ER staff escriben que yo estaba malinguering parece creyeron yo era tan talentosa como para fingir un temblor del cuerpo asi. No fumo No diabetes solo Cervicall instability adressed by surgeries. Eso si apenas 4 meses el dolor de espalda estenosis me subio la presion de 120/70 siempre tenia con pastilla y ejercicios buena dieta a 140 160/100 aun con pastilla. El LDL estubo bien pero por primera vez 12 meses atras total colesterol fue 199 . Gracias por su video estoy tomando canyenne peper en mi te 2 veces al dia y hasta flotandome el cuerpo con cayyenne pepper y aceite de castor. sere aun mas rigurosa con beets en batidas y todo lo que he leeido a ver si esas manchas no progresen mas se que estoy enjececiendo pero al menos mantener vascularidad intacta Gracias un millon
Mine is not its atrohied due to neuroleptics if it hadnt been overdosed my brain would still be big enough.dopamine inhibitors were given unecessarily id like to know what shrinkage of brain does to vessels in this case and its not age because then at36 i was still training improving with intent getying 10 s to 10.5 at100m.thats why back isdue could nerded resolving .im tored of abuse denialby drs.muscleweakness antipychotics cause (neuroleptics) is so bad its like muscular dystrophy , and i got fluid coming out it said spinal chord fluid.i was gymnast its not age its directlyneurolepyics lying down slering makes stiff walking rids it it was imediate on injection had i neen left alone id not id still be sprinting they were sameuntil this it took 6 months its not age to say so would be denial abuseatrophy starts in 70s .i was naturally muscular person i had low blood pressure just as bad.i dont belei e in age in my case body builder had muscles in 70s .it ages us by 20 years and im ovese due to neuroleptics not diet its five years despite regulary intervals of 7 day fasting still obese thats over 5 years.i was picture of health before they did this bar few things infection is one issue i think rare because not spotted adenoids were infected .i want to runagain before its too late.ithink they ship wrecked neurologicalsystem endocrine system i been running since i was 8 ,20 mins a night no problem and no knee or ankle or hipproblems .any pain is caused by them .i nearly died as result of them started craving carbs.before no crisps nosmoking no fizzy drinks no alcohol .i checked for diabetes its negative .later as teenager idid at least 35km on bike ran swam inclub once week aswellcompeted did circuit training fell walking mountaineering all energy systems.i cant do slow too painfull .fristrating i try but i get a hes cramps.unless i can push past wall then i can go for ages.i had big muscles at 5 or less .i think muscles lost if one sits at ofgice desk loses out on fartlek training like kids in playground get a lot off sto run five minutes rest again go on slide etc so maximun heart rate near maximum and atspecific rate when tbey run around play ground they do this.i used to jump up fown on huge concrete tubes i think hips ankles strengthen die to all jumping .hanging on frame extended spine too it used to feel good and then seining etc .peoplr don't do this in hospital .
It is not normal. I am doomed. I take lion maine, b12, b5,b1 and other supplements nothing works.
8 місяців тому
ME49 toxoplasmosis in the JABS didn't help.. ROSUVASTATIN if you want a statin.. research toxoplasmosis because that's what all those MEDS are FOR we want to get RID of TOXO not keep it at bay for another day to reactivate... MODERN day SNAKE OIL salesmen now use bacteria, fungi, mold, PARASITES and WORMS!
Sleep apnea is one of the risk factors. Get this: I got a fitted dental guard on upper and it stopped my snoring bc I can’t suck air thru mouth when it’s on so I’m forced to use my nose. I use Vaseline keep moist. But yeah, I’ll never use that other apnea device that thrust jaw forward bc it moves the teeth.
What a find! I had a lacunar stroke 2.5 months ago. 69 yrs., Normal wt., never smoked, lifelong fitness advocate, vegetarian. Lower Left side is numb. Getting good rehab and am working hard to walk normally. But I can’t see a neuro for 8.5 months 😢. Your video is a miracle, a gift.
I also had a thalamic lancular stroke!
8mths on my balance is completely off and I have heavy feeling in the left arm and leg!
Weirdly I also struggled getting words out although that settled down but I feel like I don't physically recognise who I am right now!
Was told I should be almost recovered by now but that's a long way off!
I'm 61yrs old never smoked and was very healthy prior to this stroke!
I was diagnosed at the age 44 with small vessel disease chronic
Thank you for the info
have you had white spots showing on your mri? thank you for reply
In my latest MRI 2 weeks ago that small vessel deases was in a new finding
I'm 46 just diagnosed
Thank you for offering this valuable information. It would have helped me immensely on what to expect if i knew about SVD 11 years ago when my dad's cognitive decline began. It was relatively abrupt. In less than a month he descended into a hazy and depressed state of mind, compared to his previous diligent and brilliant personality. Both MRI and CT reported: "Old lacunar infarct in the region of the left lentiform nuclei" and "periventricular and subcortical bifrontal FLAIR hyperintensities". Years later I learn about SVD, and the functions exerted by the areas of the brain where the lacunar infarction and the hyperintensities appeared (under the basal ganglia, white matter around the ventricles and the basal forebrain), also about the clinical consequences when the circuits in those areas are interrupted.
That explained his long progressive but stepped decline, sudden dementia, depression, obsession with certain foods, apathy, incontinence, poor balance, frequent falls, etc. The neurologist diagnosed AD because of the mild atrophy in the hippocampus shown on the MRI, also because he failed miserably on cognitive tests. but I felt it was something else. Maybe he have both AD and SVD but now it doesn't matter. In the final stages of any dementia they all look the same. My dad's is too severe now and it's too late to do something about it.
That is right. The majority of the patients have a combined process. We are more predisposed to that since we are living longer. The diagnosis of Alzheimer's disease is more accurate clinically at this time due to multiple biomarkers available, including findings on the cerebral spinal fluid. However, the combined process is the rule rather than the exception. A good diet and high-mod intensity exercises are paramount. People need to start now, not later.
Thank you very much for this presentation! I am in my early 70’s and have several of the factors you spoke about. I’ve been seeing a neurologist. This information was helpful!
What treatment did you get
I'm 38 and my MRI shows white matter and small vessel ischemic disease...and the lesions look like mini strokes?? Wth I've never had a stroke...but my mother has??I forget everything...it's frustrating when your brain doesn't work...
What details it says in mri? I have confluent bilateral periventricular white matter that are hyper intense
May be ok. We are all allowed one or 2 whl each decade. How is your cardiovascular health? Pls eat good cholesterol and do cardio bc it helps w good blood flow !
Pubmed is a good source for your medical research
Even I was diagnosed at 38. So scared lately suffering from headaches.
@@saisailaja887I have headache from past 4 months....what did your doctor say ?
I'm 45 and I have it. No obesity, no smoking, only had gallbladder removed and have a hard time with cholesterol and dumping syndrome.
Very informative doctor glad I found you and your video. I’m so sick and tired of hearing from the MRIs and CAT scans about the white matter etc. etc. it always appears to me that these doctors are too lazy to order other tests and check for further problems if you’re someone like me who has kidney disease Liver disease, diabetes high HDL triglycerides are used to be about 13.9 on the A1c and I’m now down to around 10. It’s still explosive pressure in your system. I see my doctors in Boston on Tuesday. I currently have skin cancer along with other issues and I am going to request a pet scan, so I can find out more clearly where the cancer cells may be seeing as my father died of pancreatic cancer at 68 and I am 64. My mother had a stroke has a fib she’s 87 and my brother who is 65 had a stroke at 62 my grandfather died of a heart attack at 58 years old, his wife, my grandmother on my father side again died of an aneurysm and stroke. I’m not gonna wait around to be the next one. I’ve been very proactive and I’ve got to put them up against the wall and smack them around for a while until they get the message, cause some of these doctors need a good tuneup pardon my expression thank you for the knowledge that you shared and helps people such as myself to be able to continue to run my own healthcare
I have T2 white spots on my brain MRI also. I had taken pseudoephedrine and did not realize that it stimulates TRPV1 that constricts microvessels called arterioles. This leads to cerebral ischemia due to too much vascular constriction that does not allow enough oxygenated blood to the brain. I had dropped foot and weak left side of my body. I took vitamin D 10,000 i.u. 4 X/day and it stopped. Vitamin D is a partial agonist of TRPV1 and blocks complete agonists such as pseudoephedrine and capsaicin in hot peppers and other things such as acidic pH and heat. I stopped taking pseudoephedrine after realized what had happened.
I'm curious about your situation. I took ephedrine consistently for about 8 years, and now I'm wondering if I'm seeing the same thing. My MRI is showing an impression of small vessel disease. If you have any more insight as to the condition I can consider that would be helpful.
Thanks,
@@dlambethful I haven’t looked further since my lesions have not changed in 3 years. There are a number of reasons for them and my basic impression is that the keto, low carb and carnivore diets are the best at not adding inflammation to the microvasculature in addition to holding off the ephedrine type drugs. Multiple sclerosis patients get brain lesions due to destruction of the myelin that surrounds the neurons and TRPA1 has been found to cause that. TRPA1 is a transient receptor potential channel that is stimulated by many things from inflammation to foods such as mustard oil, garlic, cinnamon, toxins and cold temperatures.
Ty! ❤️ capsaicin protects against ischaemic or excitotoxic cerebral neuronal injury and may lower the risk of cerebral stroke.
-pubmed
@@Tad-For-Global-Peace capsaicin does however it can cause cardiac death too in people who take it for weight loss. Too much capsaicin also stimulates too much TRPV1 that leads to hyponatremia, bone loss and many other health problems such as the hypoosmolality ->too much TRPV4-> hypokalemia and induces Brugada syndrome sudden cardiac death. Combined with the carbohydrate/sugar stimulation of glp-1 can stimulate too much GnRH -> FSH -> SHBG and in people with low estrogen cause many disease from very little active estrogen osteoporosis, hearing/vestibular loss of function, neuropathy such as small fiber neuropathy/pain, atherosclerosis, hypertension.
@Tad-For-Global-Peace no it doesn't.
I was diagnosed with SVD about 10 years ago. I have recently noticed that I am much slower in moving, my memory is being affected, my balance is off and I can't lift my left leg like I should when I walk. It is stiff and mildly drags....I can't seem to lift my toes on my left foot.
I hope this doesn't mean I will need to go into a facility soon. 🥺
ADD: I also have SLE, am prediabetic and have moderately high blood pressure, but my doctor doesn't think I need any further eval or treatment. This makes me MAD!
I do exercise regularly, but not vigorously.
When I was diagnosed with SVD, I went in because I was having chest pain and they saw part of my heart had died. They did an Atherectomy thinking I had blocked arteries, which caused a blockage to my hear, butmy large arteries were fine. That's when I was diagnosed with SMV and IHD.
Thank you for sharing
I think there could be a genetic link on why this can happen and also autoimmune implications are being studied right now!
I've had a small thalamic infarct stroke that i was told might be due to high blood pressure!
I also have what they called small vessel disease with mild white matter
I read a lot and found a lot of information on how it can cause cognitive decline and dementia..im hoping that I'm not going in that direction!
Your video was spot on describing what you can possibly do to prevent it..although there is a lot of clinical trials looking into inflammation and autoimmune causes for people that have healthy lifestyles but still develop white matter lesions and infarcts at a young age!
My so called small infarct stroke has left me with severe balance issues and weakness in the lower left leg and that's after 8mths and physio
These small infarcts have a tendency to be called strokes that have a good recovery..but in my case and many others that hasn't happened!
Old age just snuck up on me. Doesn’t God have a good sense of humor. We look like cartoon characters lol🙏🏻
Great video. Regards from sanjay maheshwari of India
I am sorry that you did not discuss links with autoimmune diseases.
That is right, but the lesions tend to have different characteristics. Also, it is significantly less common. For example, MS is an autoimmune disease with characteristic lesions and many other clinical features.
@@luisezayasmdpt4397 I would love you to be able to take a look at my brain scans, they ruled out MS and susac syndrome and then said looks like small blood vessel disease but the whole brain lights up and I have had so many DRs say well you certainly don’t look like someone who has all that wrong and been told they haven’t seen anything like it before, for someone to have so many random widespread diseases across the body and look fine on the outside, am 39 and have also had a lot of gaslighting because I have a immunodeficiency aswell and my bloods don’t show infections, inflammation or damage
But maybe it’s not uncommon. Maybe there’s an unidentified autoimmune factor in a greater percentage than is known. Look at the replies. So much autoimmune mentioned
My dad passed away in 1991 due to cerebral atrophy at the age of 69. His symptoms appeared about 2 years before he passed away.
1) he lost his memory gradually
2) he lost ability to walk.
Sorry pad, what did he die from?
Same happened to my mum. she passed on 21st may, 2024 at 65. dementia happened 2 years 2 months before she passed.
First memory loss, hyper agitation, lost ability to walk and keep balance, ability to swallow, finally couldn't breathe...
@@renus6015yes. Same thing happened to my Dad
On this disieas any medicine is avilebal yes or no my father is suffering this disease please help me guidline about that matter
Thanks a lot docter very informative
Great content
I am 51and was told I have small vessel disease. I have atherosclerosis in my brain I feel I am too young and it scares me
And I have had seven strokes
I’m have it too I’m only 43yr
Old my mri show few white spots
I have aswell I am 39 and brain lights up like a Christmas tree with it they said, rare apparently at our age and had strokes too and a lot of internal damage widespread
@@familyvlogsellieneavejackb3251are you taking any medicine and what are your symptoms
I had a concussion last year, had an mri scan this year which showed mild CVD, I've had continuous head pain, dizziness, pressure feeling since concussion, though my neurologist says the CVD is not due to the concussion, I know it is.
My dad had small vessel disease. The depression got so bad he took his life. Drs didn't care.
thank you, I am terrified no one explained any of this to me . I am not old but my scan you wouldnt guess
I just have an MRI last week and its says, mild patchy periventricular and subcortucal T2 hyperintense foci in both supratentorial.
Mild cerebral volume loss with compensatory dilation of the ventricular stem .
Mild small vessel ischemic disease.
And slight narrowing after the stent i have after my brain Hemorrhage blast year but stent wis patent.
Thanks Doctor!
I was just diagnosed with cerebral small vessel disease. Unfortunately, I don't have any risk factors to work on other than age.
Take care
Unfortunately, or fortunately?
test for toxoplasmosis
I read on pubmed people are all allowed one or 2 whl each decade.
I was just diagnosed with cerebral small vessels disease
I just had a mri/mra done a week ago & it showed moderate atrophy but the pa who talked to me about the report told me it was nothing to worry about even though we already have confirmation that it is more than the previous one they did 2 years ago ; lack of circulation in my arteries & small vessels with vision loss, bp issues & 2 brain aneurysm one (right PiCA) which has grown from a 2 to a 2.4mm in a year and the 2nd a new one in the left opthalmic with vision loss & periodic total transient blindness but don't worry she says) & orthostatic hypotension, Angina (diabetic LADA fir 32 years)
Had spinal meningitis years ago will that show up as white spots???
Also diagnosed with Arachnoiditis back in 2013...will this affect the brain???
I'm sorry you have to go through this. I have similar issues to some you have mentioned. Hang in there!
My mri shows multiple microangiopathic punctate lesions on brain . My ankles really hurt my wrists hurt my head goes numb waiting see neurologist. Nit sure if it's ms or white matter disease. The lesions are in subcortial
😢me too. Too chicken sh*t to go back....this stuff is scary.
my mom's brain scan report showed - cerebral atrophy, widened sulci. last stages of dementia she lost limb movement, speech, couldn't swallow...
True frustration is suddenly becoming fully incontinent at 36, suddenly developing focal aware seizures, as well as tingling, raynauds and neuropathy in my extremities, and severe cognitive decline among other things and being told the white spots and atrophy are just normal aging. At 36. With all the sudden onset of symptoms not taken into consideration. I am having a spine MRI in a month. Pray that this will finally get me somewhere. Ive been fighting to be heard and not told "youre just getting old" for three years now. Im only 39.
Can you find a different doctor? They should not be telling you that.
I have parallels with you. I do have lupus with neuro symptoms , but neuroimmunologist says the white matter lesions at upper limit of normal and unrelated. I’m improving from this flare up but problem with thinking, slow and uncoordinated, loss of balance, etc. low BP, no dm, normal weight, good lipids. Yes on migraines. I see the best or one of best, and even he can’t give me an answer. I’m taking prednisone, hydroxychloroquine, and I’m doing my own addition of baby aspirin, lots of omega oils, trying to get good exercise, but it’s so terrifying when even the best don’t really know
Oh also- I’m the worst of the flare- I did have neuropathy, new onset Reynaldo’s too which so weirdly seems gone as the flare up has subsided. If you see my reply and for some reason they haven’t already, ask your drs to test autoimmune panels
See a functional dr, check for lyme disease, mold, parasites or heavy metal toxicity
Trust your gut this isn't normal for 36. Suggest looking into:
-hypoxia
-hypoperfusion
-hypercapnia
-internal carotid artery compression if you have Thoracic Outlet Syndrome or Ehlers-Danlos Syndrome
-Dysautonomia
-Skim biopsy for alpha-synuculinopathy is you have neuropathy
The straightest line to diagnostic testing is a chiropractic neurologist.
I went to a double board certified autonomic neurologist, vascular surgeon, neurologist and neuro-ophthalmologist. None of their tests or assessment came close to what I found through an MRI and the results from the chiropractic neurologist.
Stay strong it's not an easy road. 🕊️
ANYBODY TAKING MEDICATION FOR THIS CONDITION????
Great thnx❤,
Why have u not mentioned matasis cancer which i have ,reference to age that is rubbish
Hi My mom has csvd in brain my mom only 41 years old she didn’t smoke she didn’t drink but for 6 years she has been having bad headache yesterday She was taken MRI and doctor said she has this disease WHAT CAN I DO
Was diagnosed at 61 in October 2022 with mild to moderate cerebral small vessel disease now 63 how fast does it progress?
A mini stroke -does a mini stroke in celebral do they see that how can you prevent future mini strokes. How does that show up on cat scan.
@@dp4008 neurologists or other providers use name the name “mini stroke” , so patients can understand that if you do not take care of yourself you will end up with a stroke. “mini stroke” is the equivalent of TIA ( transient ischemic attack). As the word transient indicates, it last usually 10 minutes, sometimes few hours and the MRI is normal for acute infarction ( death tissue). If the mri shows acute infarction then you call it stroke. The symptoms depend on the location. Acute management is different but the chronic management is the same including risk factors modifications
Do you do online consultations ? I am in the U.K.
No. Only in Tennessee, USA. Face to face.
I am in SD and want to find a board certified neurologist that will take white matter seriously and prevent further and improve rather than ignore. How to find a gd neurologist, I have options with a PPO
how is CKD related to dementia?
What is ckd? I would like to know about CJD Creutzfeldt-Jakob disease.
Question - what about COVID/Long Covid effects on small vessels in the brain?
I don’t think anybody knows. There are many things from Covid 19 still unclear
@@luisezayasmdpt4397 Yes, thank you, I guess then that there are only hypotheses & some limited studies, nothing very definitive.
Epilepsy connected to cerebral small vessel disease?
If small vessel disease causes an infarct (especially in the cortex), it might cause recurrent seizures (focal epilepsy)
What if you’re 36, prothrombin gene, and low blood pressure?
I have really bad headaches muscles spasms in the face. They did told me I have white spots in the brain sent me to a ear nose throat doctor
My left left drags too! SLE.
This is me and I'm terrified
I get you completely I actually am terrified of developing dementia as I had a thalamic stroke and they say the recovery is good for these strokes but 8mths on I have no balance and a heavy left leg!
Let's just hope we don't go up the dementia route until we are in our 80s😂
@@margareteid3164fearful, had a tbi n this is now a concern
Try to find info about how it’s normal to have 1-2 legions per decade
Don’t be- change diet and lifestyle. Vitamin k omega 3 vitamin c eat more greens like arugula. Drink more water. Avoid stress . Get a whole body cleanse at a wholistic facility. Add sprinting to your exercise regiment.
Dr Zayas: tengo 56 en edad en 2023 durante un surgical clearance MRI of brain salio con white matter pero radiologist puso era Normal. me hice la espalda y como suele ocurrir segmentos subsiguientes necesita mas cirujia por que es otra vertebra y a penas puedo caminar . El cuello tambiem se desborono y AY SANTO!!! Dios me entra un dolor intenso en la nuca y un temblequeo de cuerpo completo que no podia controlar. Me hospitalizan pero Se reservaron el resultado del MRI del cerebro AHORA a 12 meses mas tarde ahora radiologo escribees Chronic Isquemia Diseasewith Demyeling Disease. ME SORPRENDI porque el ER staff escriben que yo estaba malinguering parece creyeron yo era tan talentosa como para fingir un temblor del cuerpo asi. No fumo No diabetes solo Cervicall instability adressed by surgeries. Eso si apenas 4 meses el dolor de espalda estenosis me subio la presion de 120/70 siempre tenia con pastilla y ejercicios buena dieta a 140 160/100 aun con pastilla. El LDL estubo bien pero por primera vez 12 meses atras total colesterol fue 199 . Gracias por su video estoy tomando canyenne peper en mi te 2 veces al dia y hasta flotandome el cuerpo con cayyenne pepper y aceite de castor. sere aun mas rigurosa con beets en batidas y todo lo que he leeido a ver si esas manchas no progresen mas se que estoy enjececiendo pero al menos mantener vascularidad intacta Gracias un millon
A doctor said it’s hormones.. how true is this..
Mine is not its atrohied due to neuroleptics if it hadnt been overdosed my brain would still be big enough.dopamine inhibitors were given unecessarily id like to know what shrinkage of brain does to vessels in this case and its not age because then at36 i was still training improving with intent getying 10 s to 10.5 at100m.thats why back isdue could nerded resolving
.im tored of abuse denialby drs.muscleweakness antipychotics cause (neuroleptics) is so bad its like muscular dystrophy , and i got fluid coming out it said spinal chord fluid.i was gymnast its not age its directlyneurolepyics lying down slering makes stiff walking rids it it was imediate on injection had i neen left alone id not id still be sprinting they were sameuntil this it took 6 months its not age to say so would be denial abuseatrophy starts in 70s .i was naturally muscular person i had low blood pressure just as bad.i dont belei e in age in my case body builder had muscles in 70s .it ages us by 20 years and im ovese due to neuroleptics not diet its five years despite regulary intervals of 7 day fasting still obese thats over 5 years.i was picture of health before they did this bar few things infection is one issue i think rare because not spotted adenoids were infected
.i want to runagain before its too late.ithink they ship wrecked neurologicalsystem endocrine system i been running since i was 8 ,20 mins a night no problem and no knee or ankle or hipproblems .any pain is caused by them .i nearly died as result of them started craving carbs.before no crisps nosmoking no fizzy drinks no alcohol .i checked for diabetes its negative .later as teenager idid at least 35km on bike ran swam inclub once week aswellcompeted did circuit training fell walking mountaineering all energy systems.i cant do slow too painfull .fristrating i try but i get a hes cramps.unless i can push past wall then i can go for ages.i had big muscles at 5 or less .i think muscles lost if one sits at ofgice desk loses out on fartlek training like kids in playground get a lot off sto run five minutes rest again go on slide etc so maximun heart rate near maximum and atspecific rate when tbey run around play ground they do this.i used to jump up fown on huge concrete tubes i think hips ankles strengthen die to all jumping .hanging on frame extended spine too it used to feel good and then seining etc .peoplr don't do this in hospital .
Correcto Doctor Zayas gente tiene que parar las excusas🎉
Multiple tias . Because if antiphospholipid syndrome
It is not normal. I am doomed. I take lion maine, b12, b5,b1 and other supplements nothing works.
ME49 toxoplasmosis in the JABS didn't help..
ROSUVASTATIN if you want a statin..
research toxoplasmosis because that's what all those MEDS are FOR
we want to get RID of TOXO not keep it at bay for another day to reactivate...
MODERN day SNAKE OIL salesmen now use bacteria, fungi, mold, PARASITES and WORMS!
No you’re not. The body can heal itself. You need a whole body cleanse. Look up this facility- voice in the wilderness mission.
Get good sleep.
Get one of those pulseox meters you can wear while you sleep and records to your cellphone.
Discuss bad sleep with specialist
Sleep apnea is one of the risk factors. Get this: I got a fitted dental guard on upper and it stopped my snoring bc I can’t suck air thru mouth when it’s on so I’m forced to use my nose. I use Vaseline keep moist. But yeah, I’ll never use that other apnea device that thrust jaw forward bc it moves the teeth.