I'm 80, I'm a truck driver, i run long haul. I've driven 50 years. I feel good when driving because its what i do! I cannot deal with many things i should do, so i escape to something i can do. Life in any other enviroment is difficult. I am also on HRT for the Disphoria that i have discovered. I also have been dealing with Depression sinse teen years. I have had 5 failed marriages . I am afraid, now, of dementia, at my age.i want to enjoy the time i have left, but, i have no idea what to do. I dont want anything.
My grandma had a vein in her neck collapse when she was in her early thirties. She was not expected to survive, but they put a stint in and she was able to walk out of the hospital 2 weeks later. In 2020 she had signs of dementia, doctors said that it would most likely be vascular. She had been living with only eating a boiled food diet since her 30’s. I noticed her repeating stories over and over in 2020. My grandpa passed in 2021, my aunt moved in, I was with her every day until the mid afternoon, my uncle would come until my aunt was home. She declined so rapidly and I was not sure how. But in 2 years, she went from the stories to not knowing who her parents, husband or children were. She had a fall and they did a MRI and confirmed that it was vascular. So many people have expressed that her decline was so severe and so fast that it was not really common for vascular. She passed away 3 months ago and it was very strange and I still don’t understand what happened. Her temperature dropped to 92, she was just waking up and had not ate anything and didn’t have diabetes, but her blood sugar was in the 300’s. No matter how many times I tried, and I tried with 3 different machines, it would not work for me to get a blood pressure reading. The blood oxygen test that you put on the finger wouldn’t even work. But it all worked fine on me. After I had her warmed up I was able to get her oxygen readings and it was 78. Right before the ambulance arrived I was able to get a blood pressure reading and it was 191/160. Paramedics were there 5 minutes later and her vitals were fine, but they were saying that she had a vagel response or something like that and she was fine. They said to give her a breathing treatment and that they see this often and it’s not a concern. 30 minutes later she had the same symptoms, I held her until her heart suddenly stopped. They ruled her death as cardiac arrest, but it doesn’t seem to explain why she had those symptoms and how long it lasted (from 7am and she was pronounced at 12pm). I don’t know if it’s related to the vascular dementia and went into cardiac arrest from the dementia taking the natural course and those are the systems of actively dying from it or if the mystery of events put her in cardiac arrest. I seen the peace in her while she was passing and it brings me peace knowing she was not alone and her last words were “you are the best one”. I still have a void of not knowing what happened in the hours leading up to her passing. So I am curious to see if you have any thoughts about this.
Without an autopsy, it would be hard to say exactly what her case of death was. I’m glad you were there for her and with her, and that you can have the peace her last words bring. Thank you for listening and sharing your story ❤️
@@MelissaBPhD I watched a few videos on actively dying and it felt like I got my answers. All of her symptoms were aligned with the natural progression of dying. It was enough to make me let go of the anger felt for the first ambulance crew since that’s not what they are trained on. I’m at peace with this now and I feel like I did all I could
My husband had a hemorrhagic stroke 8 years ago and in the last month diagnosed with vascular dementia. It’s hard to know what symptoms are from the stroke or how long he’s had vascular dementia.
Thank you for the very helpful video and wealth of information. I do think my mom has vascular dementia and would like to take her for evaluation. I also agree we, as a society need to get more things in place, as with insurance and simply availability of experts it is often quite difficult to get care in a timely manner. Also both my parents are very resistant to going to see med professionals and following through with recommendations.
Thank you. I'm 58 and my brain looks like a 95 year old dementia patient. I also have a very rare genetic disease called Schwartz Jampel. Dr.'s do not know if this is related. In 2018 I had moderate white matter lesions. Now it is severe. I got healthy. Lowered my BP. Lost a lot of weight. My Dr said there is nothing more I can do. But today I forgot what year this was.
I have finally got some answers I need concerning a dear friend of 35 yrs who I suspected had vascular dementia because he was found in a diabetic coma back in Sept 2014....he was out 5 days and during that time had a brain MRI which showed areas not getting proper circulation....he also has A-fib and neuropathy up to his knees....he is very weak in the legs and slow doing everything....thanks for your video clip
Been diagnosed with compression of my jugular veins on both sides wondering if this could cause dementia or memory loss because of the flow of the blood not getting in and out of the brain and the Brain not emptying of toxic material feeling memory is fading and disorientation and confusion at times could this be because of the jugular veins not having enough blood flow to the brain
Tks I have vascular dementia, I’m starting to exercise and eat meat and salad with veggies. Ill be 70 in April. What would be good for breakfast? Are you saying I had A stroke!
Blood clots in the brain is one cause of vascular dementia, and most common reason, but there are others. Here’s another source for you to learn more. Thanks for tuning in! www.hopkinsmedicine.org/health/conditions-and-diseases/dementia/vascular-dementia#:~:text=What%20causes%20vascular%20dementia%3F,Blood%20clots
We live in South Africa. My biological father has vascular dementia. He is treated by a psychiatrist of good repute. Neuro imaging has been done however we have not seen the imaging as there are very few psychiatrists neurologists in RSA, so appointments are very few and very pricey. I have a psychiatric psychology background. My father is on dorminoct memor and an antipsychotic. Your response would be greatly appreciated. Sue from South Africa
Never mind. All sorted. Have seen the images checked the meds the diagnosis. We live in Africa. We were the country that performed the first heart transplant here in South Africa. We have good Drs but many have emmigrated. We live in the most beautiful country in the world. I have Ehlers Danlos Syndrome. Ever heard of that? It's currently International EDS month. Blessings from South Africa Sue@@MelissaBPhD
You are the only person that talked a little about my experience balance falling anxiety those are. The worst thing for me I had a MRI she only said I have 2 kinds of dementia. I go to see her September 27 but do you have any points for my falling no balance
I’d ask for a referral to Physical Therapy (PT) when you have your appointment. They can do a lot to help with balance and strength training to help prevent any more falls. Thank you for listening and commenting! ❤️
My husband was diagnosed with Vascular Dementia, but he never had a stroke, or heart attack? His doctor saids its VD, according to his MRI, but no explanation as to why he had this with no evidence of a stroke or heart attack?
There is rare genetic cause of vascular dementia, viz, Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy (CADASIL). Nice video.
I was diagnosed with psp by a neuro thru a scan which he had me take at the hospital he worked at. was in denial that i had psp. he saw the hummimg bird. never went for a second opinion...tke ..big mistake now my kids believe him. I am67 dont drive , have to reley on my daughter. I do have a stiff neck hurts in the morning . take tyenol.....or a cold compress. have tinnitus. i dont have the tremors they talk about in pd. and dizzy 24/7 for the past 3 years not getting any better
I would suggest that anyone exhibiting signs of vascular dementia review the work of Dr. Tobinik in Boca Raton Florida with Perispinal Etanercept. Some amazing post stroke recovery results.
My husband is 82 he has V.dementia. He never hungry but I always put food in front of him if he picks at it but never finishes. No car anymore?? Does not exercise, Tv addict. Memory is mild. I stress kindly that he has to eat, be a little responsible for himself, but he doesn’t care. It’s hard,one day at a time. I’m 80 Just saying !!
Here are resources that may help you with mealtimes: COURSE: melissabphd-s-school.teachable.com/p/managing-eating-challenges EBOOK: melissabphd-s-school.teachable.com/p/my-downloadable-516325
My mama was diagnosed at 58 that she has a FTLD...now she's 61 it's so progressive she's getting mad day by day
I'm 80, I'm a truck driver, i run long haul. I've driven 50 years. I feel good when driving because its what i do! I cannot deal with many things i should do, so i escape to something i can do. Life in any other enviroment is difficult. I am also on HRT for the Disphoria that i have discovered. I also have been dealing with Depression sinse teen years. I have had 5 failed marriages . I am afraid, now, of dementia, at my age.i want to enjoy the time i have left, but, i have no idea what to do. I dont want anything.
My grandma had a vein in her neck collapse when she was in her early thirties. She was not expected to survive, but they put a stint in and she was able to walk out of the hospital 2 weeks later. In 2020 she had signs of dementia, doctors said that it would most likely be vascular. She had been living with only eating a boiled food diet since her 30’s. I noticed her repeating stories over and over in 2020. My grandpa passed in 2021, my aunt moved in, I was with her every day until the mid afternoon, my uncle would come until my aunt was home. She declined so rapidly and I was not sure how. But in 2 years, she went from the stories to not knowing who her parents, husband or children were. She had a fall and they did a MRI and confirmed that it was vascular. So many people have expressed that her decline was so severe and so fast that it was not really common for vascular. She passed away 3 months ago and it was very strange and I still don’t understand what happened. Her temperature dropped to 92, she was just waking up and had not ate anything and didn’t have diabetes, but her blood sugar was in the 300’s. No matter how many times I tried, and I tried with 3 different machines, it would not work for me to get a blood pressure reading. The blood oxygen test that you put on the finger wouldn’t even work. But it all worked fine on me. After I had her warmed up I was able to get her oxygen readings and it was 78. Right before the ambulance arrived I was able to get a blood pressure reading and it was 191/160. Paramedics were there 5 minutes later and her vitals were fine, but they were saying that she had a vagel response or something like that and she was fine. They said to give her a breathing treatment and that they see this often and it’s not a concern. 30 minutes later she had the same symptoms, I held her until her heart suddenly stopped. They ruled her death as cardiac arrest, but it doesn’t seem to explain why she had those symptoms and how long it lasted (from 7am and she was pronounced at 12pm). I don’t know if it’s related to the vascular dementia and went into cardiac arrest from the dementia taking the natural course and those are the systems of actively dying from it or if the mystery of events put her in cardiac arrest. I seen the peace in her while she was passing and it brings me peace knowing she was not alone and her last words were “you are the best one”. I still have a void of not knowing what happened in the hours leading up to her passing. So I am curious to see if you have any thoughts about this.
Without an autopsy, it would be hard to say exactly what her case of death was. I’m glad you were there for her and with her, and that you can have the peace her last words bring. Thank you for listening and sharing your story ❤️
@@MelissaBPhD I watched a few videos on actively dying and it felt like I got my answers. All of her symptoms were aligned with the natural progression of dying. It was enough to make me let go of the anger felt for the first ambulance crew since that’s not what they are trained on. I’m at peace with this now and I feel like I did all I could
Thank you so much...my mother had that before she died at 92, I have similar symptoms as you mentioned...I am 73
My husband had a hemorrhagic stroke 8 years ago and in the last month diagnosed with vascular dementia. It’s hard to know what symptoms are from the stroke or how long he’s had vascular dementia.
Dankie
Baie leersaam 😊
Thank you ! I am a retried nurse 20 years has really helped me and I am going blind.! All your information has help
I'm so glad that the information has been helpful to you! Thank you for listening and commenting!
Thank you for the very helpful video and wealth of information. I do think my mom has vascular dementia and would like to take her for evaluation. I also agree we, as a society need to get more things in place, as with insurance and simply availability of experts it is often quite difficult to get care in a timely manner. Also both my parents are very resistant to going to see med professionals and following through with recommendations.
Thank u Melissa ❤️😀🥂🌎
Thank you. I'm 58 and my brain looks like a 95 year old dementia patient. I also have a very rare genetic disease called Schwartz Jampel. Dr.'s do not know if this is related. In 2018 I had moderate white matter lesions. Now it is severe. I got healthy. Lowered my BP. Lost a lot of weight. My Dr said there is nothing more I can do. But today I forgot what year this was.
My doctor told me last year "we do not know If you have 10, 8, 6, 4, or 2 years to live." Brutal
@@MichaelSheridanV21I have white matter lesions too and I am only 48. Have had migraines for 30 yrs probably that's why. They dont tell me anything 😢
Thanks great information
Glad it was helpful! Thank you for the comment!
Well done ❤
Good information, but really, >2 minutes of socials at the beginning and end??
I have finally got some answers I need concerning a dear friend of 35 yrs who I suspected had vascular dementia because he was found in a diabetic coma back in Sept 2014....he was out 5 days and during that time had a brain MRI which showed areas not getting proper circulation....he also has A-fib and neuropathy up to his knees....he is very weak in the legs and slow doing everything....thanks for your video clip
So glad that it was helpful info for you! Thank you for listening and commenting!
Could a stroke in the right pon only cause dementia? Would previous strokes show on a brain scan following a pon stroke?
Do you have a video regarding managing the negative behaviors of vascular dementia?
Been diagnosed with compression of my jugular veins on both sides wondering if this could cause dementia or memory loss because of the flow of the blood not getting in and out of the brain and the Brain not emptying of toxic material feeling memory is fading and disorientation and confusion at times could this be because of the jugular veins not having enough blood flow to the brain
Tks I have vascular dementia, I’m starting to exercise and eat meat and salad with veggies. Ill be 70 in April. What would be good for breakfast? Are you saying I had A stroke!
Blood clots in the brain is one cause of vascular dementia, and most common reason, but there are others. Here’s another source for you to learn more. Thanks for tuning in!
www.hopkinsmedicine.org/health/conditions-and-diseases/dementia/vascular-dementia#:~:text=What%20causes%20vascular%20dementia%3F,Blood%20clots
We live in South Africa. My biological father has vascular dementia. He is treated by a psychiatrist of good repute. Neuro imaging has been done however we have not seen the imaging as there are very few psychiatrists neurologists in RSA, so appointments are very few and very pricey. I have a psychiatric psychology background. My father is on dorminoct memor and an antipsychotic. Your response would be greatly appreciated. Sue from South Africa
Hi Susan, how's your day going with you?
I'm not sure what your question is?
Never mind. All sorted. Have seen the images checked the meds the diagnosis. We live in Africa. We were the country that performed the first heart transplant here in South Africa. We have good Drs but many have emmigrated. We live in the most beautiful country in the world. I have Ehlers Danlos Syndrome. Ever heard of that? It's currently International EDS month. Blessings from South Africa Sue@@MelissaBPhD
Thank u this is right in dementia
Thank u doctor
I love my work and helping the hospital ❤️🌻🐱
You are the only person that talked a little about my experience balance falling anxiety those are. The worst thing for me I had a MRI she only said I have 2 kinds of dementia. I go to see her September 27 but do you have any points for my falling no balance
I’d ask for a referral to Physical Therapy (PT) when you have your appointment. They can do a lot to help with balance and strength training to help prevent any more falls. Thank you for listening and commenting! ❤️
My husband was diagnosed with Vascular Dementia, but he never had a stroke, or heart attack? His doctor saids its VD, according to his MRI, but no explanation as to why he had this with no evidence of a stroke or heart attack?
Mini strokes.
@@lfodiwsw
There is rare genetic cause of vascular dementia, viz, Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy (CADASIL).
Nice video.
I was diagnosed with psp by a neuro thru a scan which he had me take at the hospital he worked at. was in denial that i had psp. he saw the hummimg bird. never went for a second opinion...tke ..big mistake now my kids believe him. I am67 dont drive , have to reley on my daughter. I do have a stiff neck hurts in the morning . take tyenol.....or a cold compress. have tinnitus. i dont have the tremors they talk about in pd. and dizzy 24/7 for the past 3 years not getting any better
i also had an operation for scolioses in 1972.my spine was 60 degress curved. and so they fused 2 rods to my spine
I would suggest that anyone exhibiting signs of vascular dementia review the work of Dr. Tobinik in Boca Raton Florida with Perispinal Etanercept. Some amazing post stroke recovery results.
❤❤❤
My husband is 82 he has V.dementia. He never hungry but I always put food in front of him if he picks at it but never finishes. No car anymore?? Does not exercise, Tv addict. Memory is mild. I stress kindly that he has to eat, be a little responsible for himself, but he doesn’t care. It’s hard,one day at a time. I’m 80
Just saying !!
Here are resources that may help you with mealtimes:
COURSE: melissabphd-s-school.teachable.com/p/managing-eating-challenges
EBOOK: melissabphd-s-school.teachable.com/p/my-downloadable-516325
No want for food or water. Very difficult to watch.