I am so glad that I found this. I have been having that tenderness in the neck, the pain in that area, shooting headaches, and all this other stuff. I had literally given up and decided that I was going to be like this forever. This gives me hope for the first time.
I was in the same position, I've gotten some Pressure Point therapy and it's helped, He's gotten my Head back into a better shape. BUT I want it all the way gone, so I was excited to find this.
I was recently diagnosed with occipital neuralgia… it has manifested in me, severe anxiety and panic disorder. Idk how this came about as, thankfully, I was not in any kind of accident or bad fall. Doctors just say try PT. I’m currently trying massage therapy (by an actual masseuse bc idk what I’m doing) and acupuncture. Thank you for shedding light on this topic and we hope to see more from you on our healing journey 🙏🏼
I had severe panic and anxiety as well. Honestly, anxiety and depression have been lifelong complaints of mine. Then my symptoms turned physical. My anxiety and depression are now well controlled! Massage is excellent for easing anxiety. So is acupuncture. I hope you are able to achieve relief with your therapies!! Are you also doing the curalistic program?
I'm doing a Pressure Point Therapy and He's managed to get my Head reshaped, it has helped, but this thing is insane. IT seems to have a will of it's own, I have to go 3 time's a week but I just started the therapy about 6 weeks ago, it's working but it's a slow process. Best of luck in getting your's under control.
Oh my Lord, this video just popped up. I've searched for the cause of my years of neck and scalp tenderness that travels up back of scalp, over head, and stabs my right eye, triggers migraines several times a week. I've described this neck and scalp pain as like a "tazer" to doctors, and they all just stare blankly at me with no thoughts. Botox injections in my low skull, up over scalp were done for three month trials and they didnt fix problem, so I was told I failed that treatment. Can't find a comfortable position for sleeping. I can't be still or it begins the aching, burning that travels up over scalp, over crown and into right eye again. SO happy to have found your channel! Thank you!!! ❤🙏
@@bollysongs_status_ the root cause in your neck , I mean behind the neck .. Of that eye side , if it's on right then behind right neck . Vice versa.. So do neck excercise to increase blood flow in neck . That will help ur nerves to revive and regenerate faster . And improve your health I also have same problem in past , it's like hell . I can understand
I couldn't even lay my head down, it took them 2 year's to diagnose me. My Head was changing shape, vision in right eye was blurry. I've had pressure therapy that is helping but not totally, so I'm so glad I found this.
Very grateful to have found you today, Kayla, you are SO knowledgeable and kind enough to share yourself! 👍 CM1 then 2 & Syringomyelia here. 3 brain surgeries later (and partial C1/2 remaining) and this is my daily life! Now in a chair, with the effects of Syrinx progression, but the ON eats away at what bit of normalcy I have remaining! Take care there, and for all my fellow fighters! 💪
Inflammation is part of the cause of Occipital Neuralgia. I suffered with this for the first time about a month ago. The pain was terrible 😅. I went to my chiropractor who verified my findings. He massaged my neck and did some cracking on my back, which helped. I also went for a deep tissue massage on my neck and shoulder area, and you used Excedrin pain reliever so i could get back to work. I was able to wean myself off the Excedrin after 5 days. I watched my diet for any foods that caused inflammation. Also, hot and cold packs alternating on my neck and shoulders helped. I did stretching and toning exercises and still do. After about 7 days, I can say that I have not had another attack 😅. Phone usage while looking downward is a no no. Also long usage as it affects the nerves 😅 I also had a very stressful situation going on at work, which I believe was pivotal in my experience with this. I plan to do all i can going forward to never feel that pain again. I pray the same for each of you 🙏🏽
@@AtulKumar-vh4sy Make sure you use a smaller pillow to sleep. Also be careful with phone where you lay on your back with head propped up. Try to always remember to stretch your neck. It helps to work on posture as well. Imagine a balloon attached to the top of your head pulling your head and neck straight up to the sky. These are some things that have been helping me a lot with my occipital neuralgia. It's still there but a LOT more managable
I will definitely be checking out your other videos! You made me feel like I'm not just crazy and like there actually is hope for this! Thank you so much!
You are absolutely NOT crazy!! These symptoms however are completely insane. I hope the information I share is helpful to you. Thank you for showing me support 💛
Why do we have to check out another one of her videos? Ask yourself, why didn’t she share her healing techniques in this video? Hmmm, it does not take long to realize she is gaming you to add views to her channel.
Hi Kayla, thank you so much from the bottom of My heart for making this video. It gives me so much hope. My ON has caused me to have a very rare form of Tinitus (Middle Ear Myoclonus). I really hope and pray I one day have a recovery story just as you. I will def be watching your videos. You are amazing for treating yourself. You inspire me to do the same! ❤️❤️❤️❤️
@@amritagautam24 I’m so deeply sorry to hear that. I’ve a fault struggles with it since Feb 2022, it’s very very disturbing to me. I had MRI with contrast of the brain and they found nothing. I’m waiting on results of a ct scan now since my lymph nodes are swollen so I wonder if that’s what’s causing it. Had X-rays, MRIs, of back and neck and nothing abnormal. I do suspect however that mine has to do with inflamation. I noticed symptoms are worse when I have unhealthy food especially one that’s salty. Changing my diet to vegan Whole Foods helped a lot. Not cured but made a huge difference. I have days where I don’t think about it much now.
@@lizgil7534 Thank you very much for getting back to me so soon. I pray for you to get rid of it someday. May we all do so.. please let me know what your scans say. I do have some tightening in my back and neck a bit on the face too. Getting regular massages helps most of the time. Surely a clean diet makes a big difference as well. Please do stay in touch. Thank you again 💓
I am fighting chronic pain everday just like you described, it is hampering my everday functions, i am going to watch this video and hopefully it helps me
I have been suffering with ON for twenty years. I lost my career. I experienced cognitive decline. For about ten of those years I averaged less than two hours of sleep a night and became afraid to lie down. I engaged in suicidal ideation and I began taking ridiculous risks in the mountains that sometimes resulted in further injuries because I realized the pain of a broken bone distracted me from the pain in my neck and head (as well as the emotional pain and depression I have struggled with). I have tried a lot of therapies. Cranio-sacral therapy saved my life but when I retired and moved back to Japan--where my wife and I met thirty years ago--I lost that therapist and her maintenance. I have not found anybody here who can do what she did to relieve my pain. And in the four years since that move my ON episodes have become progressively more frequent and more severe. I refuse all pharmaceutical and surgical interventions because I know what they lead to. I am an active mountain and endurance athlete and when I am not in a severe episode, I can still perform at a high level even at age 65. But when it's going off, it is completely debilitating. All I can do is lie flat on a hardwood floor and try not to move while I cry for hours. Eventually it does recede but it comes back in an instant like a bolt of lightning in my head. I just found your video and will take a look at your videos. Thank you for putting this out. I am so grateful to hear your story because for decades I have felt so alone with very few people who understood the pain that I live with.
Wow Kayla you are so strong and so sweet I appreciate that you share your knowledge and wisdom I have scoliosis and struggle not so much with pain but such awkward discomfort No one can tell me why but I believe the way that you do that something rang the alarm within me and the muscles went into super protective mode I can feel that I sent this video to my sister also as I think it will be a help God has blessed you greatly and I will pray for you
Definitely do! I have a video that shows you how to ID active points in the neck and shoulders. Try it out and let me know if you find anything! I never knew trigger points could cause so many problems. It’s truly quite amazing.
@@Rapturetjmoore yes I checked it by doctor , she suggest me eye drop 💧 now it's ok , thanks for telling , yes it's because of eye pressure👍❤️❤️ 🙏 Jay siyaram jai hanuman ❤️🙏
Before two days I diagonised occipital Neuralgia pain.... I am suffering and searching on UA-cam and google how to relieve from this pain. Then I got your video. Thanks a lot for your information and experience. Plz pray for me. From Bangladesh 🇧🇩
Went to a chiropractor after two adjustments problem solved and I'm going to continue to get adjustments for atleast 6 more months cause that numbness and tingling was driving me crazy!
Thank you for this video I'm definitely going too look into your other videos see if your technics can help me. I've been suffering with this for years off on and lately it's been full force dizziness is unreal the neck and head pressure I'm miserable.
I’ve been suffering with this for 24 years. I literally just found out through UA-cam that I’m suffering with Occipital Neuralgia. I’ve been through so many tests and crap and years of medication for no one to diagnose me for this. I was totally lost. At least now I can tell my doctor what it is. Sheesh bro this crap totally sucks. I’ve been working 40to 60 hours a week feeling like imma die from pain. This is no joke. If it wasn’t for chiropractors helping me I wouldn’t have even made it out of bed. Matter of fact I’m going to tell them what it is too.
Like you, I have had this pain for atleast 30 years now. Throughout all that time, I had seen a small army of different doctors. All of them diagnosed me incorrectly with migraines. (I always asked for a copy of my records whenever I went for treatment. With all those doctors, it's interesting that not one of them had the same type of migraine listed! The billing codes were all different. And the doctors never listened to me.) Anyway, after numerous visits to the ER, CT & MRI scans, about 4 years ago, just Googling updated treatments for "migraines," I came across "Occipital Neuritis," & I struck gold. That was me! Just to finally have a correct diagnosis is EVERYTHING! And strangely enough, a few weeks after that, another Google search got me my relief and it may help you. Nobody has tried this or even mentions this but there is a horse linimint called "Draw It Out." It's a clear watery gel, odorless and had over 100K 5 star ratings from previous customers. Of course, this is a veterinarian formula for race horses. Who wants to spend 1000s of $$$ buying a horse and letting them suffer with sore muscles? So vets came up with this solution you rub onto the skin or hide of the horse and horse owners were raving about how great their horse felt. Some owners said that they used it for their sore hands and other parts and loved it. I bought some. I rub it into my scalp wherever it's sore, give it about 15 minutes, and your head, neck and back pain will go away! Sore hands, too! You might want to Google it for yourself and check it out. It's so popular with humans using it on ourselves that this same company came out with a formula for humans. I wish you well.😊
So glad I came across this video, giving me hope. I have a quick question I have pain on my neck and back of my skull, when I walk I feel off balance and a feeling like someone pulling my head backward with a sudden pain in the occipital region. Its like coming and going. Have you or anyone experienced this way. Many many thanks, Love from Canada
I’ve had migraines for two years STRAIGHT. They first started in the rifht side of my neck right at the occipital nerve, it’s gotten so much better but still not living without pain. I have severe nerve pain and tingling in my right side of my scalp and extreme right eye pain
Broooooo please repllyyyyy!!!hello- i have this thing pain start from neack end at abow the ear,I just want to know that it's because of migraine, or iam having migraine with aura because of that, if you know anything about this please reply and give some solution
ive had this chronically since last Sept, in the past ive had a car crash whiplash and head injuries from bike accident (helmet fell off)and beatings from ex husband, constant tense neck and shoulders,paracetamol helps a little,i also have fibromyalgia and cfs,arthritis etc etc so many health problems, feels like judgements from GOD, ive had multiple traumatic experiences since early childhood so i think all these events are what's caused it.
You sound very typical of people in the curalistic group! All of your symptoms are very standard for having active trigger points caused by traumatic injury and stress. Have you considered trying massage therapy?
@@KaylaDuncanLMT ive got a massager for neck but the tension is soon back,alot of trauma to the body,hopefully no more horrible events, ive had enough of them to last many lifetimes, Thankyou and bless you.
Have you consulted a massage therapist? Pain is a big indicator of soft tissue dysfunction. Get those muscles evaluated! Treating them could potentially relieve your symptoms.
It sucks that the treatments for ON are fairly new and we’re like Lab Rats lol. I have faith in the development of Surgical Decompression and other non-invasive treatments. I was stuck playing video games during quarantine and developed extreme tightness behind the head that lead to ON. Currently am trying dry needling and neck exercises
@@KaylaDuncanLMT I’m not sure if I’m applying too much pressure or if I’m doing them wrong but I seem to get horrible flare ups after trying them for a couple of days. My PT massage is much more rough but never get those flare ups. Idk what I’m doing wrong
I don’t think you’re doing anything wrong. Flares from massage are normal. The trick is to find your tolerance for massage. Go low and slow. Try less time or intensity for now. Definitely refer to the curalistic audio book for complete instructions for doing trigger point massage.
I’m in severe pain as I watch this. I’ll definitely do the massage but in the meantime what’s been effective in reducing the spasm? I feel it on my scalp behind my ear . Did you take any meds?
Disease and dysfunction is not a gift. We live in a profoundly sick and dysfunctional world and our bodies do all kinds of maladaptive things in an effort to survive. Fix ourselves. Fix the world. Stop the endless cycle of suffering.
@@erickaepworth6257I get what you’re saying and my goodness do I understand it, in a way though feeling like there’s purpose can maybe help overcome And if you decide that that is what the purpose and use it as much as you can for your good despite the agony that I personally understand I promise you that but maybe that helps make it where you do make best use of it
One week is very early in! My recovery took a solid 14 months to achieve. You will experience new, old, and changing symptoms. This is all a part of the process. Pease refer to the curalistic audio book for complete treatment instructions. I highly recommend working with a licensed massage therapist so that you can ask questions and get familiar with massage. My neck used to crack and pop a lot! I noticed that it was cracking a bit like it was adjusting. I no longer perceive bothersome audible neck sounds.
i habe this sharp stabbing shooting pains in back of my head behind my war in my ear temples forhead eyes first just on one side now on both but mostly right my right neck and shoulder feels so tense now started getting vertigo when layin down a certain position i also have a history if anxiety and panic attacke i used to get oanic attacks 4 years aho aftee they stopped i was left with a lot of symptoms like lightheadness off balance blurry vision brainzaps and internat head vibrations thight throat and neck muscels tension headaches ovcasionally and now all if this stabbing pain daily its so frustrating the MRI of my brain showed nothing
I am sorry you are struggling. Massage therapy and integrative dry needling made my ON go away. Have you consulted with a massage therapist or physical therapist for an opinion or treatment?
Thank you!! I focused on using my neck properly but didn’t do neck strengthening specifically. I love doing Pallof presses for spinal stability. Look into the McGill big three exercises for spinal stability. I have a cervical spine exercise guide posted in my Facebook recovery group. Here is the link! www.spine.org/KnowYourBack/Prevention/Exercise/Cervical-Exercise
Massage via the Curalistic program and also FNP posture training!! Feel free to join my recovery group for better response times and up to date information on recovery techniques that myself and others are using to overcome their symptoms. Find us on Facebook at The Duncan Recovery Method. I’m also available via Galen’s Massage Gymnasium.
I am gradually getting worse with this. I find that eating also make my OR worse. My Dr. just said 'take tylenos 3'. And I am allergic to codeine....which he was supposed to know from my chart. I am about to give up ever feeling well again. I have also had swelling in my face, expecially my eyes. I don't know why that would be.
I feel occupital pain in my neck left portion , my left temple , my left eye , sometimes it gone red . Sometimes I feel in right side of head and sometimes left side . Base of head or sometimes on top of head one side . Sometimes I feel it in eyebrows and sometimes between eyebrows .
Yes, you heard correctly. Eagle syndrome is an uncommon condition commonly characterized but not limited to sudden, sharp nerve-like pain in the jaw bone and joint, back of the throat, and base of the tongue, triggered by swallowing, moving the jaw, or turning the neck. More info online.
I’ve been struggling with ON for ten months now, it’s very debilitating dizziness,nauseous, severe pain in the back of my head, pressure severely the sides and even the forehead… I have c3 to c5 fused… the pain clinic injections haven’t worked he now thinks it might be the c 3 occipital nerve but it’s harder to get too because I’m fused 😩😩😩😩
it was the single worst thing i have ever dealt with. 6 months in now, the terrible headaches, dizziness, confusion and light sensitivity with the weird vision are gone but still dealing with daily stiffness and some pain when moving my head around
@williams5618 i honestly haven't man. doing neck exercises for physical therapy at home using 2 specific youtube channels helped me manage the terrible vertigo and neck pain, but it took a month or 2 of me doing them daily 2x a day. the 24/7 headaches seemed to disappear for the most part on their own after months. im still suffering from the weird vision, occasional nausea, erratically high heart rate/blood pressure, stiffness and some pain in the neck with the pain running all the way down the back of my legs. bare in mind my neuralgia is caused by a subluxated atlas(C1/C2 vertebrae instability or also known as atlantoaxial instability.) the only 2 real solutions i've read that have helped ppl are a Atlas Orthogonal Chiropractor, i saw one today got some xrays done and he will let me know on friday if this is something he can help me with. the other option is a prolotherapy clinic that has offices in chicago/florida. most dr's say there is 0 proof prolotherapy works but ive read a lot of positive success stories from people who were stuck like you and i who now have regained their life back.
Hi ! i am sufering of this already 5 years ... i hoop i learn from you something that can help .... thank you for sharing ! at least i know i am not crazy... with all the pain that i feel end nobidy can give me no help ....
Do your blood pressure goes up when you're experiencing the discomfort? Im worried about my situation that this is occipital neuralgia but at the same time I have hypertension 😔
Hi kayla..after how many days you recovered from occipital neuralgia by doing all the excercise you mentioned.Iam also suffering since 6 months.it feels pathetic..my neck head , eye,ear everything on left side is paining all day.
I did self massage with the Curalistic program, saw a licensed massage therapist for deep tissue massage, worked with a DPT for integrative dry needling, and also did appointments with several other bodyworkers including coaching the body and orthobionomy. My recovery took more than a year. I still do bodywork to control my symptoms and take care of my body.
I have a preliminary diagnosis of ON. I have experienced severe brain fog, anxiety that is not mental but physical, tinnitus, tingling, disorientation, and even confusion. I don't know how this started but I am looking for help!
Thank you for your input. I will be updating my content as I am able. Every older publication is rather dated and possibly out of my scope of practice. I will be removing and revising content as I am able. Thanks again.
This has started for me at 6 weeks of pregnancy nw im 7months and i sufr with the pain in my head and eyes every single day. I dont know what to do abt this pain if the pregnancy is causing it
I am sorry that you are struggling. My last pregnancy was when my symptoms began as well. Pregnancy is stressful for the body. My best suggestion for you is to develop a good self care routine. Consider enlisting help once the baby arrives. Rest as much as you can. Don’t forget massage!
@@KaylaDuncanLMT thankyou I've been targeting them and omg the occipital part of head is so tender.. I feel like my neck is moving towards left more is this normal?
I take essential oil capsules with copaiba balsam and frankincense. Get therapeutic essential oil and capsules and put a few drops of each in capsule and take with food. You can do this up 3x capsules 1. It’s great!
Mam hello- i have this thing pain start from neack end at abow the ear,I just want to know that it's because of migraine, or iam having migraine with aura because of that, if you know anything about this please reply and give some solution
Oh my gosh no video no any kind of examples at all and I'm headache day number 5 are you kidding me I'm looking for serious Solutions and all I have to do is listen to someone talk over and over and over and over and over and over when my head is pounding!! It makes it sound like there's going to be relief in this video there is no relief!!!!! 😢
I am so glad that I found this. I have been having that tenderness in the neck, the pain in that area, shooting headaches, and all this other stuff. I had literally given up and decided that I was going to be like this forever. This gives me hope for the first time.
I was in the same position, I've gotten some Pressure Point therapy and it's helped, He's gotten my Head back into a better shape. BUT I want it all the way gone, so I was excited to find this.
@@Rapturetjmoore I need to look up more about Pressure Point therapy. Like you, I want this all the way gone.
@@Sopranoscrew.311 This disorder SUCKS!!! I wish you luck 💕
Same situation 😔😔😔
I have been suffering from ON since 2003.
Great to hear your not suffering anymore. Dry needling and lifestyle changes totally changed my life too. Keep up the good work!
She did not explain/share anything about the dry needling process. A waste of time.
YOU ARE AWESOME!!! I am so grateful for your videos!! I only just found you today, Kayla! ❤💜🙏🏼
I was recently diagnosed with occipital neuralgia… it has manifested in me, severe anxiety and panic disorder. Idk how this came about as, thankfully, I was not in any kind of accident or bad fall. Doctors just say try PT. I’m currently trying massage therapy (by an actual masseuse bc idk what I’m doing) and acupuncture. Thank you for shedding light on this topic and we hope to see more from you on our healing journey 🙏🏼
I had severe panic and anxiety as well. Honestly, anxiety and depression have been lifelong complaints of mine. Then my symptoms turned physical. My anxiety and depression are now well controlled! Massage is excellent for easing anxiety. So is acupuncture. I hope you are able to achieve relief with your therapies!! Are you also doing the curalistic program?
I'm doing a Pressure Point Therapy and He's managed to get my Head reshaped, it has helped, but this thing is insane. IT seems to have a will of it's own, I have to go 3 time's a week but I just started the therapy about 6 weeks ago, it's working but it's a slow process. Best of luck in getting your's under control.
How are you doing now?
Oh my Lord, this video just popped up. I've searched for the cause of my years of neck and scalp tenderness that travels up back of scalp, over head, and stabs my right eye, triggers migraines several times a week. I've described this neck and scalp pain as like a "tazer" to doctors, and they all just stare blankly at me with no thoughts. Botox injections in my low skull, up over scalp were done for three month trials and they didnt fix problem, so I was told I failed that treatment.
Can't find a comfortable position for sleeping. I can't be still or it begins the aching, burning that travels up over scalp, over crown and into right eye again.
SO happy to have found your channel! Thank you!!! ❤🙏
It also happens
Cause of bad neck posture
When we use mobile phones
Amitriptyline
How to cure eye pressure from this 😢I have all the symptoms with severe eye discomfort and light sensitivity
@@bollysongs_status_ the root cause in your neck , I mean behind the neck ..
Of that eye side , if it's on right then behind right neck .
Vice versa..
So do neck excercise to increase blood flow in neck .
That will help ur nerves to revive and regenerate faster .
And improve your health
I also have same problem in past , it's like hell . I can understand
@@bollysongs_status_ don't use Mobile phone, it makes ur neck posture back and hurt the nerves .
Triger the pain that goes in ur scalp and eye ...
I couldn't even lay my head down, it took them 2 year's to diagnose me. My Head was changing shape, vision in right eye was blurry. I've had pressure therapy that is helping but not totally, so I'm so glad I found this.
How are you now?
Very grateful to have found you today, Kayla, you are SO knowledgeable and kind enough to share yourself! 👍 CM1 then 2 & Syringomyelia here. 3 brain surgeries later (and partial C1/2 remaining) and this is my daily life! Now in a chair, with the effects of Syrinx progression, but the ON eats away at what bit of normalcy I have remaining! Take care there, and for all my fellow fighters! 💪
Inflammation is part of the cause of Occipital Neuralgia. I suffered with this for the first time about a month ago. The pain was terrible 😅. I went to my chiropractor who verified my findings. He massaged my neck and did some cracking on my back, which helped. I also went for a deep tissue massage on my neck and shoulder area, and you used Excedrin pain reliever so i could get back to work.
I was able to wean myself off the Excedrin after 5 days. I watched my diet for any foods that caused inflammation.
Also, hot and cold packs alternating on my neck and shoulders helped. I did stretching and toning exercises and still do.
After about 7 days, I can say that I have not had another attack 😅.
Phone usage while looking downward is a no no. Also long usage as it affects the nerves 😅
I also had a very stressful situation going on at work, which I believe was pivotal in my experience with this.
I plan to do all i can going forward to never feel that pain again. I pray the same for each of you 🙏🏽
What were your symptoms? Could you lay the back of your head on pillow?
Hey is your pain gone. pls reply.
@@AtulKumar-vh4sydo you have symptoms?
@@dalidylan yeah
@@AtulKumar-vh4sy Make sure you use a smaller pillow to sleep. Also be careful with phone where you lay on your back with head propped up. Try to always remember to stretch your neck. It helps to work on posture as well. Imagine a balloon attached to the top of your head pulling your head and neck straight up to the sky. These are some things that have been helping me a lot with my occipital neuralgia. It's still there but a LOT more managable
I will definitely be checking out your other videos! You made me feel like I'm not just crazy and like there actually is hope for this! Thank you so much!
You are absolutely NOT crazy!! These symptoms however are completely insane. I hope the information I share is helpful to you. Thank you for showing me support 💛
Why do we have to check out another one of her videos? Ask yourself, why didn’t she share her healing techniques in this video? Hmmm, it does not take long to realize she is gaming you to add views to her channel.
Hi Kayla, thank you so much from the bottom of
My heart for making this video. It gives me so much hope. My ON has caused me to have a very rare form of Tinitus (Middle Ear Myoclonus). I really hope and pray I one day have a recovery story just as you. I will def be watching your videos. You are amazing for treating yourself. You inspire me to do the same! ❤️❤️❤️❤️
Hey, How are you doing? Have you found any relief? Please do share your experience it would be soo soo helpful for me. I’ve been similar symptoms.
@@amritagautam24 I’m so deeply sorry to hear that. I’ve a fault struggles with it since Feb 2022, it’s very very disturbing to me. I had MRI with contrast of the brain and they found nothing. I’m waiting on results of a ct scan now since my lymph nodes are swollen so I wonder if that’s what’s causing it. Had X-rays, MRIs, of back and neck and nothing abnormal. I do suspect however that mine has to do with inflamation. I noticed symptoms are worse when I have unhealthy food especially one that’s salty. Changing my diet to vegan Whole Foods helped a lot. Not cured but made a huge difference. I have days where I don’t think about it much now.
@@lizgil7534 Thank you very much for getting back to me so soon. I pray for you to get rid of it someday. May we all do so.. please let me know what your scans say. I do have some tightening in my back and neck a bit on the face too. Getting regular massages helps most of the time. Surely a clean diet makes a big difference as well. Please do stay in touch.
Thank you again 💓
@@amritagautam24how are you now?
You changed my life with this video! Thank you so much.
Thank you for commenting to express your gratitude. I wish you all the best!
I am fighting chronic pain everday just like you described, it is hampering my everday functions, i am going to watch this video and hopefully it helps me
How’s it been
Thanks for sharing this..Been suffering from this for a long time..almost lost my job😢 because of this migraine
I have been suffering with ON for twenty years. I lost my career. I experienced cognitive decline. For about ten of those years I averaged less than two hours of sleep a night and became afraid to lie down. I engaged in suicidal ideation and I began taking ridiculous risks in the mountains that sometimes resulted in further injuries because I realized the pain of a broken bone distracted me from the pain in my neck and head (as well as the emotional pain and depression I have struggled with). I have tried a lot of therapies. Cranio-sacral therapy saved my life but when I retired and moved back to Japan--where my wife and I met thirty years ago--I lost that therapist and her maintenance. I have not found anybody here who can do what she did to relieve my pain. And in the four years since that move my ON episodes have become progressively more frequent and more severe. I refuse all pharmaceutical and surgical interventions because I know what they lead to. I am an active mountain and endurance athlete and when I am not in a severe episode, I can still perform at a high level even at age 65. But when it's going off, it is completely debilitating. All I can do is lie flat on a hardwood floor and try not to move while I cry for hours. Eventually it does recede but it comes back in an instant like a bolt of lightning in my head. I just found your video and will take a look at your videos. Thank you for putting this out. I am so grateful to hear your story because for decades I have felt so alone with very few people who understood the pain that I live with.
Get a memory foam pillow, that has a curve in the middle. I found one on Amazon and it has been a lifesaver.
Duloxetine saved me with this ..
How are you now?
Wow Kayla you are so strong and so sweet I appreciate that you share your knowledge and wisdom
I have scoliosis and struggle not so much with pain but such awkward discomfort
No one can tell me why but I believe the way that you do that something rang the alarm within me and the muscles went into super protective mode
I can feel that
I sent this video to my sister also as I think it will be a help
God has blessed you greatly and I will pray for you
Wow, this is wonderful. I"m so happy for your recovery. I'm suffering with some similar things. I need to look into the trigger points.
Definitely do! I have a video that shows you how to ID active points in the neck and shoulders. Try it out and let me know if you find anything! I never knew trigger points could cause so many problems. It’s truly quite amazing.
Hey Lisa does you feel that pain sometime in the space between your eyebrows ??
@@_ayushmehta I will tell you that it causes pressure in my eyes, and has affected my right eye.
@@Rapturetjmoore yes I checked it by doctor , she suggest me eye drop 💧 now it's ok , thanks for telling , yes it's because of eye pressure👍❤️❤️ 🙏 Jay siyaram jai hanuman ❤️🙏
Before two days I diagonised occipital Neuralgia pain.... I am suffering and searching on UA-cam and google how to relieve from this pain. Then I got your video. Thanks a lot for your information and experience. Plz pray for me. From Bangladesh 🇧🇩
Thank fully I also recovered from occipital neuralgia my first experience is on February 2024 and now July 2024 it's gone thanks Ya Allah ❤❤
Did you have neck issues as well? What did you do to recover?
I also rub lavender essential oil on neck, behind ear and around temples.
I have dreadful headaches, I am having a nerve block by my reumatologist. Can't wait.
Went to a chiropractor after two adjustments problem solved and I'm going to continue to get adjustments for atleast 6 more months cause that numbness and tingling was driving me crazy!
Cbd to!
what typr of chiropractor?
How are you now?
Thank you for this video I'm definitely going too look into your other videos see if your technics can help me. I've been suffering with this for years off on and lately it's been full force dizziness is unreal the neck and head pressure I'm miserable.
I hope you have become familiar with trigger point therapy and are working your way through these terrible symptoms. Take care!
I’ve been suffering with this for 24 years. I literally just found out through UA-cam that I’m suffering with Occipital Neuralgia. I’ve been through so many tests and crap and years of medication for no one to diagnose me for this. I was totally lost. At least now I can tell my doctor what it is. Sheesh bro this crap totally sucks. I’ve been working 40to 60 hours a week feeling like imma die from pain. This is no joke. If it wasn’t for chiropractors helping me I wouldn’t have even made it out of bed. Matter of fact I’m going to tell them what it is too.
Like you, I have had this pain for atleast 30 years now. Throughout all that time, I had seen a small army of different doctors. All of them diagnosed me incorrectly with migraines.
(I always asked for a copy of my records whenever I went for treatment. With all those doctors, it's interesting that not one of them had the same type of migraine listed! The billing codes were all different. And the doctors never listened to me.)
Anyway, after numerous visits to the ER, CT & MRI scans, about 4 years ago, just Googling updated treatments for "migraines," I came across "Occipital Neuritis," & I struck gold. That was me!
Just to finally have a correct diagnosis is EVERYTHING!
And strangely enough, a few weeks after that, another Google search got me my relief and it may help you.
Nobody has tried this or even mentions this but there is a horse linimint called "Draw It Out." It's a clear watery gel, odorless and had over 100K 5 star ratings from previous customers.
Of course, this is a veterinarian formula for race horses. Who wants to spend 1000s of $$$ buying a horse and letting them suffer with sore muscles? So vets came up with this solution you rub onto the skin or hide of the horse and horse owners were raving about how great their horse felt. Some owners said that they used it for their sore hands and other parts and loved it.
I bought some. I rub it into my scalp wherever it's sore, give it about 15 minutes, and your head, neck and back pain will go away! Sore hands, too!
You might want to Google it for yourself and check it out. It's so popular with humans using it on ourselves that this same company came out with a formula for humans.
I wish you well.😊
Thank you so much!! I’ve been suffering greatly. I look forward to following your lead
Reach out any time you need support. My Facebook recovery group is very active!! Take care and be well 💛
So glad I came across this video, giving me hope. I have a quick question I have pain on my neck and back of my skull, when I walk I feel off balance and a feeling like someone pulling my head backward with a sudden pain in the occipital region. Its like coming and going. Have you or anyone experienced this way. Many many thanks, Love from Canada
Great video! Can you say more about how/why the trap muscles stopped functioning properly?
I've been experiencing this for 3 years non stop 😳
I’ve had migraines for two years STRAIGHT. They first started in the rifht side of my neck right at the occipital nerve, it’s gotten so much better but still not living without pain. I have severe nerve pain and tingling in my right side of my scalp and extreme right eye pain
Broooooo please repllyyyyy!!!hello- i have this thing pain start from neack end at abow the ear,I just want to know that it's because of migraine, or iam having migraine with aura because of that, if you know anything about this please reply and give some solution
How are you now?
Thank you so much for making these videos you are helping so many people ❤❤❤
OMG SAME!!!! I’m watching the video as I go and I cannot have my hair up and I CANNOT BE IN THE SUN! It feels like I’m on fire 😭
Thanks for sharing. Great explanation
ive had this chronically since last Sept, in the past ive had a car crash whiplash and head injuries from bike accident (helmet fell off)and beatings from ex husband, constant tense neck and shoulders,paracetamol helps a little,i also have fibromyalgia and cfs,arthritis etc etc so many health problems, feels like judgements from GOD, ive had multiple traumatic experiences since early childhood so i think all these events are what's caused it.
You sound very typical of people in the curalistic group! All of your symptoms are very standard for having active trigger points caused by traumatic injury and stress. Have you considered trying massage therapy?
@@KaylaDuncanLMT ive got a massager for neck but the tension is soon back,alot of trauma to the body,hopefully no more horrible events, ive had enough of them to last many lifetimes, Thankyou and bless you.
I'm not diagnosed. But I have a pain behind my head in both sides. Ringing in the ears. And pain inside my ears. Hearing loss and hyperacusis.
Have you consulted a massage therapist? Pain is a big indicator of soft tissue dysfunction. Get those muscles evaluated! Treating them could potentially relieve your symptoms.
It sucks that the treatments for ON are fairly new and we’re like Lab Rats lol. I have faith in the development of Surgical Decompression and other non-invasive treatments. I was stuck playing video games during quarantine and developed extreme tightness behind the head that lead to ON. Currently am trying dry needling and neck exercises
I know many people that are having success with these exact therapies! Are you also utilizing any massage therapy?
@@KaylaDuncanLMT I’m not sure if I’m applying too much pressure or if I’m doing them wrong but I seem to get horrible flare ups after trying them for a couple of days. My PT massage is much more rough but never get those flare ups. Idk what I’m doing wrong
I don’t think you’re doing anything wrong. Flares from massage are normal. The trick is to find your tolerance for massage. Go low and slow. Try less time or intensity for now. Definitely refer to the curalistic audio book for complete instructions for doing trigger point massage.
@@cantseeshadowhi, how are you now
Hey is your pain gone. How are you feeling now pls reply.
What is dry needling? How long did it take you to recover ? Thanks about to watch your videos
4:58 trigger point massage
I experienced the same thing, thank you for posting
I’m in severe pain as I watch this. I’ll definitely do the massage but in the meantime what’s been effective in reducing the spasm? I feel it on my scalp behind my ear . Did you take any meds?
Maybe u wer given this condition to beat it and teach others who dont know how to treat it overcome it
That's right 🙌🏽💕
Disease and dysfunction is not a gift. We live in a profoundly sick and dysfunctional world and our bodies do all kinds of maladaptive things in an effort to survive.
Fix ourselves.
Fix the world.
Stop the endless cycle of suffering.
@@erickaepworth6257I think they are just trying to find a silver lining from something difficult
Umm nooo
@@erickaepworth6257I get what you’re saying and my goodness do I understand it, in a way though feeling like there’s purpose can maybe help overcome
And if you decide that that is what the purpose and use it as much as you can for your good despite the agony that I personally understand I promise you that but maybe that helps make it where you do make best use of it
Just completed my first week with the same symptoms as you but I also feel dizzy and nauseous too. Any advice? Thanks 🙏
One week is very early in! My recovery took a solid 14 months to achieve. You will experience new, old, and changing symptoms. This is all a part of the process. Pease refer to the curalistic audio book for complete treatment instructions. I highly recommend working with a licensed massage therapist so that you can ask questions and get familiar with massage. My neck used to crack and pop a lot! I noticed that it was cracking a bit like it was adjusting. I no longer perceive bothersome audible neck sounds.
How often is your nausea
i habe this sharp stabbing shooting pains in back of my head behind my war in my ear temples forhead eyes first just on one side now on both but mostly right my right neck and shoulder feels so tense now started getting vertigo when layin down a certain position i also have a history if anxiety and panic attacke i used to get oanic attacks 4 years aho aftee they stopped i was left with a lot of symptoms like lightheadness off balance blurry vision brainzaps and internat head vibrations thight throat and neck muscels tension headaches ovcasionally and now all if this stabbing pain daily its so frustrating the MRI of my brain showed nothing
Mine is occipital neuralgia it’s painful i can’t sleep please I need help
I am sorry you are struggling. Massage therapy and integrative dry needling made my ON go away. Have you consulted with a massage therapist or physical therapist for an opinion or treatment?
Hi can anyone explain what is the solution because i am not able to understand his English accent...
7:13 how did you strengthen the neck muscles? Great video by the way
Thank you!! I focused on using my neck properly but didn’t do neck strengthening specifically. I love doing Pallof presses for spinal stability. Look into the McGill big three exercises for spinal stability. I have a cervical spine exercise guide posted in my Facebook recovery group. Here is the link! www.spine.org/KnowYourBack/Prevention/Exercise/Cervical-Exercise
I feel constant stabbing and head pain but the neck is the one killing me i feel like i cant even hold my head
I felt this way to. Mine slowly got better
@@hairynipps2599how? im dealing with stabbing shooting pains and psinful neck 5 months now
I need this. Mine is a neuralgia when I’m sleeping. I don’t want surgery. Pls. Teach me how to recover. Thanks
Massage via the Curalistic program and also FNP posture training!! Feel free to join my recovery group for better response times and up to date information on recovery techniques that myself and others are using to overcome their symptoms. Find us on Facebook at The Duncan Recovery Method. I’m also available via Galen’s Massage Gymnasium.
I too have ON I hope to find some help with your videos.
Keep the faith. Recovery is possible.
I am gradually getting worse with this. I find that eating also make my OR worse. My Dr. just said 'take tylenos 3'. And I am allergic to codeine....which he was supposed to know from my chart. I am about to give up ever feeling well again. I have also had swelling in my face, expecially my eyes. I don't know why that would be.
My occipital neural is very bad it has me in tears quite often. Please share with me these trigger points
I feel occupital pain in my neck left portion , my left temple , my left eye , sometimes it gone red . Sometimes I feel in right side of head and sometimes left side . Base of head or sometimes on top of head one side . Sometimes I feel it in eyebrows and sometimes between eyebrows .
What syndrome at 4:45 Eagle syndrome I don't know what she said??
Yes, you heard correctly. Eagle syndrome is an uncommon condition commonly characterized but not limited to sudden, sharp nerve-like pain in the jaw bone and joint, back of the throat, and base of the tongue, triggered by swallowing, moving the jaw, or turning the neck. More info online.
Where are your videos
I’ve been struggling with ON for ten months now, it’s very debilitating dizziness,nauseous, severe pain in the back of my head, pressure severely the sides and even the forehead… I have c3 to c5 fused… the pain clinic injections haven’t worked he now thinks it might be the c 3 occipital nerve but it’s harder to get too because I’m fused 😩😩😩😩
I'm also having fluctuating blood pressure, sometimes very high, mostly due to spinal instability,🙏
it was the single worst thing i have ever dealt with. 6 months in now, the terrible headaches, dizziness, confusion and light sensitivity with the weird vision are gone but still dealing with daily stiffness and some pain when moving my head around
How'd you cure it
@williams5618 i honestly haven't man. doing neck exercises for physical therapy at home using 2 specific youtube channels helped me manage the terrible vertigo and neck pain, but it took a month or 2 of me doing them daily 2x a day. the 24/7 headaches seemed to disappear for the most part on their own after months. im still suffering from the weird vision, occasional nausea, erratically high heart rate/blood pressure, stiffness and some pain in the neck with the pain running all the way down the back of my legs. bare in mind my neuralgia is caused by a subluxated atlas(C1/C2 vertebrae instability or also known as atlantoaxial instability.) the only 2 real solutions i've read that have helped ppl are a Atlas Orthogonal Chiropractor, i saw one today got some xrays done and he will let me know on friday if this is something he can help me with. the other option is a prolotherapy clinic that has offices in chicago/florida. most dr's say there is 0 proof prolotherapy works but ive read a lot of positive success stories from people who were stuck like you and i who now have regained their life back.
Thank you! But TRE is the best to mobilize without even doing massage… It’s a self healing mechanism of the body
What type of doctor do you see for your condition…I have ON plus lots of what you have..
Do you also have spondylitis ? I’m 68 and have this .. if I get massages on neck I suffer badly with migraines from ON nerve impingement
Hi ! i am sufering of this already 5 years ... i hoop i learn from you something that can help .... thank you for sharing ! at least i know i am not crazy... with all the pain that i feel end nobidy can give me no help ....
Do your blood pressure goes up when you're experiencing the discomfort? Im worried about my situation that this is occipital neuralgia but at the same time I have hypertension 😔
hey along with these all symptoms i am experiencing hairfall as scalp has also become sensitive .
By any chance did u ever get like spasms head pain in the back when you were in a car like when you lay down because that happens to me
Omg sounds like me but my head jerks and I'm so confused if it's dystonia however I have shooting point in my right side of head
I had a head tilt to the left side and also head tremors.
Hi kayla..after how many days you recovered from occipital neuralgia by doing all the excercise you mentioned.Iam also suffering since 6 months.it feels pathetic..my neck head , eye,ear everything on left side is paining all day.
How are you now?
Hi,im this guy with long hair whit head tild ranged motion and pain , i also cant tie my hair , i want to crie everytime i...
What category of specialist deals with this awful condition? SUBBED!!! Thank you!❤
So what exacly did you do and what are the trigger points in the neck.
I did self massage with the Curalistic program, saw a licensed massage therapist for deep tissue massage, worked with a DPT for integrative dry needling, and also did appointments with several other bodyworkers including coaching the body and orthobionomy. My recovery took more than a year. I still do bodywork to control my symptoms and take care of my body.
Here is the curalistic program audio book. There is also a curalistic Facebook group. curalistic.org/sto-handbook/
@@KaylaDuncanLMT thanks for your reply back. 💙
Is dry needling same as acupuncture
I’m wondering, if this condition could be elegible for desability tax credit?
God bless my chiropractor for helping me.
Me with occipital nueralgia and ehlers n pots it's so hard
I have a preliminary diagnosis of ON. I have experienced severe brain fog, anxiety that is not mental but physical, tinnitus, tingling, disorientation, and even confusion. I don't know how this started but I am looking for help!
How are you now?
Can this helps to get rid of big occiput?
This video is more about how it affected her & her medical history than a recovery.
Thank you for your input. I will be updating my content as I am able. Every older publication is rather dated and possibly out of my scope of practice. I will be removing and revising content as I am able. Thanks again.
This has started for me at 6 weeks of pregnancy nw im 7months and i sufr with the pain in my head and eyes every single day. I dont know what to do abt this pain if the pregnancy is causing it
I am sorry that you are struggling. My last pregnancy was when my symptoms began as well. Pregnancy is stressful for the body. My best suggestion for you is to develop a good self care routine. Consider enlisting help once the baby arrives. Rest as much as you can. Don’t forget massage!
How did you fix it
Are u living completely pain free?
It's me ,you litterally talking about me, I hope I can get over it I love you ,you are Allah send to me. Thanks
I hope you are feeling well!
How did you realigned your atlas?
CSF leak in spine
i have all those darn symptoms right now😢
This is me now
I know how miserable these conditions and symptoms can be. I believe in your recovery.
@@KaylaDuncanLMT thankyou I've been targeting them and omg the occipital part of head is so tender.. I feel like my neck is moving towards left more is this normal?
I take essential oil capsules with copaiba balsam and frankincense. Get therapeutic essential oil and capsules and put a few drops of each in capsule and take with food. You can do this up 3x capsules 1. It’s great!
Mam hello- i have this thing pain start from neack end at abow the ear,I just want to know that it's because of migraine, or iam having migraine with aura because of that, if you know anything about this please reply and give some solution
Oh my gosh no video no any kind of examples at all and I'm headache day number 5 are you kidding me I'm looking for serious Solutions and all I have to do is listen to someone talk over and over and over and over and over and over when my head is pounding!!
It makes it sound like there's going to be relief in this video there is no relief!!!!!
😢
I appreciate you Kaila❣😢
This video revealed NOTHING! This was nothing more than using clickbait to build a UA-cam channel.
So what did you do????!!!!! Didn't find this helpful.
Mario !!!!!!
WHERES YOUR CURE MMNOW THAT YOU TOLD US ABOUT YOUR PROBLEM AND NO CRE OR HELP FROM YOU ,CLICK BAIT,
Fraud