Not necessarily. The reality is that greed all around is what has messed up our healthcare system. Doctors, hospitals and drug companies use the insurance companies as "deep pockets." Let me give you a couple of examples. In the late 80's I had my own personal health insurance account. When I signed up it seemed super cheap, and I asked if it was legitimate. It was $30 a month with a $500 annual deductible. Even in the late 80's that seemed awfully cheap. I called the state Insurance Commission and asked if it was a legitimate company. A person said yes, they are legitimate, but "they have the lowest financial stability of any company in the state." What he meant, of course, was that they do pay claims but are at risk of going bankrupt. I decided to sign up anyway since it was so cheap. Several years later they did go bankrupt. They weren't charging enough. That's one reason why Republican claims that more "choice" in health insurance would solve our problems are so wrong. What it would really do is spawn a whole bunch of companies that would go bankrupt. Another example is the drug Claritin. I remember in the 90's when it was still a prescription drug I used to spend over $90 a month for it because I didn't have insurance. Then about 2001 the FDA decided to make it over the counter. The company protested bitterly, though no one could give a good reason you should need a prescription. I'm sure it was that they knew they could no longer charge $3 a pill now that insurance companies wouldn't pay.
I don’t have Pandas I have lupus which is another autoimmune disorder. From personal experiences I can confirm doctors treat like you’re crazy mainly cuz THEY will go years without running a simple blood test. Bless theses people for bringing light to such another terrible autoimmune disease. I feel for these kids. From one autoimmune 💜🦋 to another 💚🐼 stay strong panda patients
I get you’re not trying to compare, but also I don’t believe you know what it’s like when people think you’re mean and crazy, when you don’t even understand what’s going on, nor do the doctors
@@westsurvival4429 dude yeah I do. I was gaslit for 20 years. The diagnosis that I had last year wasn’t even proper that’s only one out of the several times I was misdiagnosed. And that’s when they decided to care enough to even put names to my pain. I was passed off to the point of near death. I was 90lbs and losing. Puking blood. And couldn’t keep a single meal down. My stomachs paralyzed. Ontop of it I have a genetic condition. That on average takes 10-12 years to get diagnosed and is one of the most difficult to diagnose conditions. Not for any reason other then drs don’t believe people could actually have it and very rarely check for it. And both those conditions have cause my autonomic nervous system to shut down. I wouldn’t say that if I truly didn’t know how it felt. You shouldn’t be commenting what you did because you have 0 idea on my life story. www.ehlers-danlos.com/may-awareness/why-we-need-awareness/ medium.com/the-road-to-wellness/me-and-my-collagen-24a451796caf Pls read both these articles and think next time before you comment because I had validity to my statement and your comment picked a spot at a sore spot. You literally gaslit my gaslighting experiences…
@@Amanda.Allison there’s a difference between misdiagnosed and being blamed for things you can’t control. Pandas is often misdiagnosed but more often than not it’s not diagnosed as anything other than mental illness and therefore many of us are labeled crazy and mentally ill and are abused by guardian figures and family. And do things we can’t control and think we’re doing something else, we think we’re doing good, yet you still get blamed. So no you don’t know a thing about what having pandas is like. You’re autoimmune disease doesn’t cause inflammation of the brain and doesn’t cause severe mental illness in over 60% of cases so don’t compare kid
@@westsurvival4429 dude… wtaf am I not allowed to relate due to own personal experiences... sure I may not have those exact symptoms and I may not have episodes or emotion responses I can’t control but I was blamed for my conditions and passed off for mental illness for over half my life… Pls don’t act like I don’t know anything about Pandas either. I watched tons of videos back then because I was intrigued and felt tons of both empathy and sympathy for the situations as I had experienced the lack of support from my physicians. Ones we’ve been Taught to trust. The ones we were told saved lives. I wasn’t gonna tell you the whole story but because you’re insisting on invalidating me and calling me a kid for some reason despite evidently not being (our channels were made a year apart) I guess I’ll share… As a baby I was sick. They told my mom it wasn’t a big deal all babies cry like this and are colicky. As I grew older I started not being able to eat without severe pain to the point of crying. They then told it was just anxiety. Around the same time in my early youth I developed extreme joint pain. They told me that was just growing pains. Fast forwarded another four years and I’m 12 ish now. Now this dr I’m seeing cuz we move cities is telling me it’s “psychosomatic” all in my head and that he could run thousands of tests on me and nothing would turn up because I don’t have anything wrong physically it’s in my head. Fast forwarded another 3 years I’m 15. I’m now puking blood and can’t keep down most of my meals. Again the dr told me he couldn’t do anything for me other then give me a new form of antidepressants because I just had extreme anxiety and depression. I ended up having a barium scan in 2018 when I was 16 That test showed my gastropersis. They told me my test was fine. They also ran autoimmune tests. Which were positive. Tsh and Ana. Both weren’t addressed either and eventually I was referred to another psychiatrist to provide me medication for my psychosomatic symptoms EDNOS (eating disorders not otherwise specified) and was also diagnosed with fibromyalgia from being “clinically depressed and not taking care of myself”. Fast forward again 2 years I’m now 18 and on my own for the first time in 2020. I was so sick I began falling down. Again my Ana was positive. Nothing done but ANOTHER SSRI. Last year i had a dr say that they think it’s more then likely lupus and they are more then confident. I took that as the answer cuz it made sense to me at the time and I accepted it. My labs came back a month or two later fine. I was confused and lost as I knew for a fact I wasn’t depressed but now I was starting to truly believe they were right and it was all just in my head and I had some weird mental health connection with my brain that caused extreme pain. Until September of 2021 when they diagnosed me with gastropersis a paralzyed stomach. A year later. (This summer) I saw a rheumatologist who noticed my hypermobility. She instantly ran me through a set of tests and I passed all of them. She diagnosed me with Ehlers danlos. Last week I was diagnosed with the final thing POTS. the thing causing me to faint. It’s VERY common when you have a chronic condition to be misdiagnosed. And a misdiagnosis includes one of mental illness and disorders. When drs are super pressed on it being those things without running proper tests its called medical gaslighting… me-pedia.org/wiki/Medical_gaslighting Pandas patients aren’t the only ones who face it and you’re being very invalidating imo because my conditions are also deadly. If I was left another year without meds I woudve starved to death (not even an exaggeration I was so malnourished) because they preferred to assume I was just depressed. They told me I was causing myself and eating disorder etc. I’m allowed to have similar but not exact experiences and still relate. I told you already I would’ve never commented if I didn’t relate or understood. I watched the video and felt a connection due to my own experiences. I don’t need to experience the exact same thing that pandas patients do to be able to relate and feel compassion for another. I should be allowed to express that I relate and feel for this community and that i see them for who they are because I understand the gaslighting and ignorance of the medical system.
@@westsurvival4429 also I’d like to know when I compared. You are the only one comparing here. I never said I have it worse or they Arent that bad etc. all I ever said is understand because drs do treat you like you are crazy. Because they do! From my own experience they love to jump straight to it being a mental condition instead of it physical especially when young. And besides it’s clear you’re not even reading my responses if you think I still have an autoimmune disorder because I told you it’s not it was misdiagnosed it’s a genetic condition I sent you links and asked you to read them because you were being invalidating
What happens when they become adults? I'm 48 and when I was a kid until my late twenties I would get strep throat 4 5 6 times a year. And I have I know I have OCD. Can it go under this into adulthood
Similar scenario here. My pre-teen years were marred with numerous strep infections and mumps. Returning from the mumps I realized my mathematical skills had nosedived. My adult years were peppered with moments of acute OCD.
Thank you for this valuable information. So if you believe your child has this,,,how do you get your dr to help and listen without thinking you are making it up?
I would say if your pediatrician doesn't believe it's a real thing. Find another one until you find one that is familiar with it. Keep searching until you do. It's really quite sad more doctors don't know about it or believe it's real. By a miracle our pediatrician happened to be somewhat familiar with PANS/PANDAS and was able to start antibiotic and anti-inflammatory treatment quickly for our son. Also the PANDAS network has a list of providers by state and some other countries that provide care for this.
Can this happen to an adult? I cant find anything that fits my symptoms im getting nowhere with drs. I seem to get attacked at night where my body goes through hell to be fine next day but exhausted and sore. Attack only happens at night or eve. I dont understand whats going on
it is believed that the child is sensitive to the toxins excreted by the bacteria, there are also adults who get auto immune disease of the brain resulting in seizures and, pscyotic behavior, the treatment for adults is IVIG, read Brain on Fire, it could be some of our mental illnesses are due to bacterias, imagine how impacting that would be. It is not due from use of antibiotics
This was my theory. I heard that many children suffering from autism spectrum disorders are missing certain critical intestinal bacteria, and that in some cases these symptoms began appearing after antibiotics were used to treat them. Maybe pandas might be linked to a lack of the full spectrum of intestinal bacteria and antibiotics use
What if your kid was born with strap??? I see a lot of these kids where 1y or more after they caught the infection but is there any documentation of a child being born with it ??
It's highly improbable, if not impossible, a baby could be *born* with streptococcus. (Strep throat) The infant is protected in utero by the mother's antibodies.
There's a difference between spiritual issues and physiological issues. You can certainly have both like a dog or cat can have ticks and fleas. A holistic approach is probably the best approach.
I have PANDAS and the cause of PANDAS/PANS is the viruses antibodies accidentally attacking a part of the brain instead of the virus. The antibodies attacking the brain is what makes the brain become inflamed and causes these symptoms.
5 doctors on base telling me my child was looking for attn. FOund one off base who took the simple blood test I asked for by prior doctors. Antibiotic was given. You can not make money off a cured child. I hear you! My own military doctor told me he could heal me when I was ill but not to tell his uppers because they like to have repeat patients and empty their private pharmacy. I was told I can not get my meds from Walgreens etc.. False. Made Dr check and he wrote it out. ANother Dr said it was because they like to make the money. All about business. If your Dr has not healed you so you do not need meds then they have not healed you.
Sorry this sounds like Demonic Possession of course the clinical Doctors aren't going to give you that conclusion but that's what it sounds like. Turn to our Hebrew Bible and our Elohim The Most High Yahuah in the name of our Lord, Savior and Bridegroom Yahushua Hamashiach.
There's a difference between spiritual sickness and physiological illness and you can definitely have both at the same time like dogs and cats can have ticks and fleas. However, if you pay closer attention, you will rely that these children recover while taking ibuprofen and specific antibiotics. It is an inflammation of the brain.
@@Blu3b3rrymuffinn I'm so sorry to hear that. Daisy. I hope you are taking care of yourself. And have a good doctor. And integrated doctor is a really good choice because they seem to be more open-minded to pandas and the effects that it can have. Any virus is a trigger. This inflammation of the brain is so heartbreaking.
So glad a documentary has been made to bring awareness to this heart wrenching illness.
The insurance company's never want to pay for anything if they can get out of it. They are crooks.
Not necessarily. The reality is that greed all around is what has messed up our healthcare system. Doctors, hospitals and drug companies use the insurance companies as "deep pockets."
Let me give you a couple of examples. In the late 80's I had my own personal health insurance account. When I signed up it seemed super cheap, and I asked if it was legitimate. It was $30 a month with a $500 annual deductible. Even in the late 80's that seemed awfully cheap. I called the state Insurance Commission and asked if it was a legitimate company. A person said yes, they are legitimate, but "they have the lowest financial stability of any company in the state." What he meant, of course, was that they do pay claims but are at risk of going bankrupt. I decided to sign up anyway since it was so cheap. Several years later they did go bankrupt. They weren't charging enough. That's one reason why Republican claims that more "choice" in health insurance would solve our problems are so wrong. What it would really do is spawn a whole bunch of companies that would go bankrupt.
Another example is the drug Claritin. I remember in the 90's when it was still a prescription drug I used to spend over $90 a month for it because I didn't have insurance. Then about 2001 the FDA decided to make it over the counter. The company protested bitterly, though no one could give a good reason you should need a prescription. I'm sure it was that they knew they could no longer charge $3 a pill now that insurance companies wouldn't pay.
I don’t have Pandas I have lupus which is another autoimmune disorder. From personal experiences I can confirm doctors treat like you’re crazy mainly cuz THEY will go years without running a simple blood test. Bless theses people for bringing light to such another terrible autoimmune disease. I feel for these kids. From one autoimmune 💜🦋 to another 💚🐼 stay strong panda patients
I get you’re not trying to compare, but also I don’t believe you know what it’s like when people think you’re mean and crazy, when you don’t even understand what’s going on, nor do the doctors
@@westsurvival4429 dude yeah I do. I was gaslit for 20 years. The diagnosis that I had last year wasn’t even proper that’s only one out of the several times I was misdiagnosed. And that’s when they decided to care enough to even put names to my pain. I was passed off to the point of near death. I was 90lbs and losing. Puking blood. And couldn’t keep a single meal down. My stomachs paralyzed. Ontop of it I have a genetic condition. That on average takes 10-12 years to get diagnosed and is one of the most difficult to diagnose conditions. Not for any reason other then drs don’t believe people could actually have it and very rarely check for it. And both those conditions have cause my autonomic nervous system to shut down. I wouldn’t say that if I truly didn’t know how it felt. You shouldn’t be commenting what you did because you have 0 idea on my life story. www.ehlers-danlos.com/may-awareness/why-we-need-awareness/
medium.com/the-road-to-wellness/me-and-my-collagen-24a451796caf
Pls read both these articles and think next time before you comment because I had validity to my statement and your comment picked a spot at a sore spot. You literally gaslit my gaslighting experiences…
@@Amanda.Allison there’s a difference between misdiagnosed and being blamed for things you can’t control. Pandas is often misdiagnosed but more often than not it’s not diagnosed as anything other than mental illness and therefore many of us are labeled crazy and mentally ill and are abused by guardian figures and family. And do things we can’t control and think we’re doing something else, we think we’re doing good, yet you still get blamed. So no you don’t know a thing about what having pandas is like. You’re autoimmune disease doesn’t cause inflammation of the brain and doesn’t cause severe mental illness in over 60% of cases so don’t compare kid
@@westsurvival4429 dude… wtaf am I not allowed to relate due to own personal experiences... sure I may not have those exact symptoms and I may not have episodes or emotion responses I can’t control but I was blamed for my conditions and passed off for mental illness for over half my life… Pls don’t act like I don’t know anything about Pandas either. I watched tons of videos back then because I was intrigued and felt tons of both empathy and sympathy for the situations as I had experienced the lack of support from my physicians. Ones we’ve been Taught to trust. The ones we were told saved lives.
I wasn’t gonna tell you the whole story but because you’re insisting on invalidating me and calling me a kid for some reason despite evidently not being (our channels were made a year apart) I guess I’ll share…
As a baby I was sick. They told my mom it wasn’t a big deal all babies cry like this and are colicky. As I grew older I started not being able to eat without severe pain to the point of crying. They then told it was just anxiety. Around the same time in my early youth I developed extreme joint pain. They told me that was just growing pains. Fast forwarded another four years and I’m 12 ish now. Now this dr I’m seeing cuz we move cities is telling me it’s “psychosomatic” all in my head and that he could run thousands of tests on me and nothing would turn up because I don’t have anything wrong physically it’s in my head. Fast forwarded another 3 years I’m 15. I’m now puking blood and can’t keep down most of my meals. Again the dr told me he couldn’t do anything for me other then give me a new form of antidepressants because I just had extreme anxiety and depression. I ended up having a barium scan in 2018 when I was 16 That test showed my gastropersis. They told me my test was fine. They also ran autoimmune tests. Which were positive. Tsh and Ana. Both weren’t addressed either and eventually I was referred to another psychiatrist to provide me medication for my psychosomatic symptoms EDNOS (eating disorders not otherwise specified) and was also diagnosed with fibromyalgia from being “clinically depressed and not taking care of myself”. Fast forward again 2 years I’m now 18 and on my own for the first time in 2020. I was so sick I began falling down. Again my Ana was positive. Nothing done but ANOTHER SSRI. Last year i had a dr say that they think it’s more then likely lupus and they are more then confident. I took that as the answer cuz it made sense to me at the time and I accepted it. My labs came back a month or two later fine. I was confused and lost as I knew for a fact I wasn’t depressed but now I was starting to truly believe they were right and it was all just in my head and I had some weird mental health connection with my brain that caused extreme pain. Until September of 2021 when they diagnosed me with gastropersis a paralzyed stomach. A year later. (This summer) I saw a rheumatologist who noticed my hypermobility. She instantly ran me through a set of tests and I passed all of them. She diagnosed me with Ehlers danlos. Last week I was diagnosed with the final thing POTS. the thing causing me to faint.
It’s VERY common when you have a chronic condition to be misdiagnosed. And a misdiagnosis includes one of mental illness and disorders.
When drs are super pressed on it being those things without running proper tests
its called medical gaslighting…
me-pedia.org/wiki/Medical_gaslighting
Pandas patients aren’t the only ones who face it and you’re being very invalidating imo because my conditions are also deadly. If I was left another year without meds I woudve starved to death (not even an exaggeration I was so malnourished) because they preferred to assume I was just depressed. They told me I was causing myself and eating disorder etc.
I’m allowed to have similar but not exact experiences and still relate.
I told you already I would’ve never commented if I didn’t relate or understood. I watched the video and felt a connection due to my own experiences. I don’t need to experience the exact same thing that pandas patients do to be able to relate and feel compassion for another. I should be allowed to express that I relate and feel for this community and that i see them for who they are because I understand the gaslighting and ignorance of the medical system.
@@westsurvival4429 also I’d like to know when I compared. You are the only one comparing here.
I never said I have it worse or they Arent that bad etc. all I ever said is understand because drs do treat you like you are crazy. Because they do! From my own experience they love to jump straight to it being a mental condition instead of it physical especially when young.
And besides it’s clear you’re not even reading my responses if you think I still have an autoimmune disorder because I told you it’s not it was misdiagnosed it’s a genetic condition I sent you links and asked you to read them because you were being invalidating
Thank you for sharing 👏👏👏👏👏👏👏
When prayer are answered 🙏 . When things dont make sense. I feel a sense of relief. Ready to join other parents to help stop this
Thank you for the information. It is unfortunate for children that are not diagnosed and treated
It is believed that my childhood strep is what caused my life long struggle
with kidney disease. 14 years on dialysis and a recent kidney transplant.
shlisa shell my wife has life long psoriasis now because of strep. It’s pretty crazy what we are learning about what strep does to us
GOD BLESS YOUR MOVIE
Strep throat made my face swell and cause nerve damage which developed into Bells palsy, its no joke
What happens when they become adults? I'm 48 and when I was a kid until my late twenties I would get strep throat 4 5 6 times a year. And I have I know I have OCD. Can it go under this into adulthood
Not sure, but I’ve heard that although not under 18. A friend of mine who is a doctor, just diagnosed a 23yr old. I will ask her
Similar scenario here. My pre-teen years were marred with numerous strep infections and mumps. Returning from the mumps I realized my mathematical skills had nosedived. My adult years were peppered with moments of acute OCD.
I can't believe that an insurance company would not pay for medication after seeing a child in such distress.
Yes, agree. All they care about is money.
Thank you for this valuable information. So if you believe your child has this,,,how do you get your dr to help and listen without thinking you are making it up?
I would say if your pediatrician doesn't believe it's a real thing. Find another one until you find one that is familiar with it. Keep searching until you do. It's really quite sad more doctors don't know about it or believe it's real. By a miracle our pediatrician happened to be somewhat familiar with PANS/PANDAS and was able to start antibiotic and anti-inflammatory treatment quickly for our son. Also the PANDAS network has a list of providers by state and some other countries that provide care for this.
When I saw the title I thought it would be of the cute black and white animals
Scary stuff. Severe Methylcobalamine deficiency can cause symptoms like this sometimes.
Why won’t they tell us how to fix it what’s the treatment ????
Can this happen to an adult? I cant find anything that fits my symptoms im getting nowhere with drs. I seem to get attacked at night where my body goes through hell to be fine next day but exhausted and sore. Attack only happens at night or eve. I dont understand whats going on
Yes. I have it. 100% sure. But my case began when I was 7. Try Ibuprofen and see whether you get better.
Yes!
Hello there
May I share something with you ?
Yes. I have it. My symptoms and attacks/outbursts happen a lot more at night. This is a horrific disease
sleep study for sure! Have you looked at your immune system?
Might the condition be from the anitbiotics used to treat strep?
Antibiotics are used to treat it
it is believed that the child is sensitive to the toxins excreted by the bacteria, there are also adults who get auto immune disease of the brain resulting in seizures and, pscyotic behavior, the treatment for adults is IVIG, read Brain on Fire, it could be some of our mental illnesses are due to bacterias, imagine how impacting that would be. It is not due from use of antibiotics
This was my theory. I heard that many children suffering from autism spectrum disorders are missing certain critical intestinal bacteria, and that in some cases these symptoms began appearing after antibiotics were used to treat them. Maybe pandas might be linked to a lack of the full spectrum of intestinal bacteria and antibiotics use
@@EmiliapocalypseI'm autistic and ocd I 100% believe vaxx and antibiotics messed me up.
What's the documentary called?
It’s called My Kid Is Not Crazy
Heath care in America isn't the greatest in the world. Dr.usually are about the money if you don't have good insurance the worse the care.
What if your kid was born with strap??? I see a lot of these kids where 1y or more after they caught the infection but is there any documentation of a child being born with it ??
No, and supposedly they can't get strep till 3 yrs, but my son tested positive for strep at 18mths.
It's highly improbable, if not impossible, a baby could be *born* with streptococcus. (Strep throat) The infant is protected in utero by the mother's antibodies.
Some people would say the kid is possessed with a demonic sprite before the discovery of pandas.
sprite?
There's a difference between spiritual issues and physiological issues. You can certainly have both like a dog or cat can have ticks and fleas. A holistic approach is probably the best approach.
What does CDC have to say about pandas since the are the know all be all of diseases and viruses???
Marilyn Catalano NIH is where one should look. Pubmed is another good place to look.
So, would it help to take probiotics?
you need more than that. Read dr. Natasha Campbell McBride.
This is truly horrific! Can anyone tell me what this Dr is wearing on her head? Anyone else perplexed?
Just looks like a bandana to me.
Why is her ankle twisted???
what whod happen if a kid grows up and is never diaknost whit pandas. what whod thay be like
They could end up in a long term care facility/ institution, which I am sure many people have been.
Is pandas caused by antibiotics
no it's caused from not taking the antibiotics early enough while having strep.
no not at all! i had pandas
Kat Ulicki really ? This got me nervous sorry to hear u had it
I have PANDAS and the cause of PANDAS/PANS is the viruses antibodies accidentally attacking a part of the brain instead of the virus. The antibodies attacking the brain is what makes the brain become inflamed and causes these symptoms.
Vaxxine injury
The government, especially the military, will suppress this, so save it if you want to share it.
5 doctors on base telling me my child was looking for attn. FOund one off base who took the simple blood test I asked for by prior doctors. Antibiotic was given. You can not make money off a cured child. I hear you! My own military doctor told me he could heal me when I was ill but not to tell his uppers because they like to have repeat patients and empty their private pharmacy. I was told I can not get my meds from Walgreens etc.. False. Made Dr check and he wrote it out. ANother Dr said it was because they like to make the money. All about business. If your Dr has not healed you so you do not need meds then they have not healed you.
Get them off vegetables and processed food ASAP.
Why the vegetables?
sEcOnD
2:27 this is fake
No it’s not.
@@Blu3b3rrymuffinn I actually meant the lip-syncing
@@YAPStarLine OHHH
I understand what you meant now
Chicken feet how unhealthy
so what is the treatment blah blah blah get to the point geez answer was all the way at the end
you’re rude as fuck
Fii1i1i1i111rrrst!!😋
Sorry this sounds like Demonic Possession of course the clinical Doctors aren't going to give you that conclusion but that's what it sounds like. Turn to our Hebrew Bible and our Elohim The Most High Yahuah in the name of our Lord, Savior and Bridegroom Yahushua Hamashiach.
Then how do you explain symptoms disappear after antibiotics? These children are not possessed!! Take a look at science.
@@peacefuldolphin9989 THANK YOU!
There's a difference between spiritual sickness and physiological illness and you can definitely have both at the same time like dogs and cats can have ticks and fleas. However, if you pay closer attention, you will rely that these children recover while taking ibuprofen and specific antibiotics. It is an inflammation of the brain.
@@princessbabibear4794 Yes! It is inflammation. I have this disorder too
@@Blu3b3rrymuffinn I'm so sorry to hear that. Daisy. I hope you are taking care of yourself. And have a good doctor. And integrated doctor is a really good choice because they seem to be more open-minded to pandas and the effects that it can have. Any virus is a trigger. This inflammation of the brain is so heartbreaking.