Gynecologist for Adenomyosis | Let's Talk IBD

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  • Опубліковано 9 січ 2021
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КОМЕНТАРІ • 172

  • @kylasaundersmiller2286
    @kylasaundersmiller2286 3 роки тому +95

    1976 - at 15 years old I was diagnosed with endometriosis and the doctor said I would never have kids and recommended a hysterectomy. My mom told them that as long as I was willing to handle the symptoms, I’d keep my girlie parts. Fast forward 7 years. I got married and our first son was born just short of 10 months later. Another son 2 years later and another 2 years after that. Healthy pregnancies and healthy babies. I did finally have that hysterectomy. NEVER give up as long as you’re A-symptomatic.

    • @annarink9847
      @annarink9847 3 роки тому

      congrats..... im the female infertile due to endo

    • @Darmok_onthe_ocean
      @Darmok_onthe_ocean 9 місяців тому +3

      Adenomyosis is different than endometriosis. The symptoms are worse and get worse over time.

    • @KenotheWolf
      @KenotheWolf 6 місяців тому

      ⁠@@Darmok_onthe_oceanThere is little about Adenomyosis, at least in German and not much that sums it up how I need it to understand.
      I thought i had Endometriosis, but the Gyn said it might be Adenomyosis.
      So, which one did you refer to as worse? It wasnt really clear to me when reading sorry.

  • @kimberlypowell6020
    @kimberlypowell6020 3 роки тому +38

    Honestly, I think it’s a blessing that you found it now. I was misdiagnosed for years and I think that is what prevented me from having children.

  • @laurenpaterson5651
    @laurenpaterson5651 3 роки тому +22

    My aunt has endometriosis and she still managed to have two healthy daughters naturally, don’t give up hope ☺️

  • @rae1957tn
    @rae1957tn 3 роки тому +15

    I had endometriosis and it took awhile to get pregnant but I did and she was my miracle. She’s now 42 with 3 beautiful kids

    • @user-nh7gp4iu2o
      @user-nh7gp4iu2o Рік тому

      Please tell us more about it I’m 31 and have diagnosed with it but i have no idea about it

  • @lisalove511
    @lisalove511 3 роки тому +14

    I just love that you’re getting all the information you need and are being so proactive in regards to this particular issues. Sounds like you have a wonderful group of doctors and that is so important. Again, all will work out as long as zak is by your side! Loved the video ty for sharing! ❤️🙏🏻❤️

  • @jenniferadam2258
    @jenniferadam2258 3 роки тому +9

    I am so glad you caught it early and have a good medical team! That makes such a huge difference. Good luck.

  • @alisonkopp8686
    @alisonkopp8686 3 роки тому +2

    Yay for pelvic floor PT!! I am so pleased to hear you talk more on this. I am a pelvic PT and have thought you'd make a great candidate from the beginning- but even more so after you began to notice the menstrual pooling. You are going to help so many people by getting the word out about your treatments, including pelvic floor therapy. Thank you and wishing you the best!

  • @emilyhenderson9902
    @emilyhenderson9902 3 роки тому +16

    Hey girl, I haven't ever commented before but just wanted to take the time to say that pelvic floor exercises are INVALUABLE! I just had to jump in and tell you that after I had my son I did some damage to myself but this very non invasive PT was amazing as far as fixing what I did as well as making thing better than they have ever been down there. So just keep your head up and do what the doctor recommends and try to stay away from the negative thoughts! Love you and really appreciate your willingness to be so open and honest with your life and what you share with us!

  • @hopeunfinished8462
    @hopeunfinished8462 3 роки тому +2

    I love how proactive you are with your health and fertility. I’m so sorry you have been through SO much medically. You are not alone! I have had endometriosis, adenomyosis and have been through pelvic floor therapy. My pelvic floor muscles are in a constant state of spasms and was told the same thing about kegels.

  • @aprilgriffin9218
    @aprilgriffin9218 3 роки тому +2

    I prayed for you and Zak. I am glad to know God answers prayer! Love you guys

  • @jacquelinelc2843
    @jacquelinelc2843 3 роки тому +1

    So happy you checked it out right away Maggie...better than waiting and wondering. An active imagination can be a scary thing sometimes. Best wishes to you and Zak!

  • @chelsiebrown3276
    @chelsiebrown3276 3 роки тому

    Thank you for sharing your story, you have explained many things in you videos that I have never even considered, and I wish you the best of luck in life and children.

  • @vickirichards3567
    @vickirichards3567 3 роки тому +6

    Pelvic floor therapy is amazing, I did it 7 years ago. I had terrible wetting issues and went to the dr expecting to have pelvic prolapse repair, (I had a hysterectomy when I was 25 and was told I would most like need surgery in the future.) My urologist said let’s try therapy and after 2 weeks I no longer needed to wear pads/liners during the day. It took 6-8 weeks before I was able to quit wearing them at night. 100% best therapy as far as improving my issue. The initial visits to therapy will be a little awkward just due to the way they test your muscles (basically like a cardiac monitor but attached down stairs. Without a doubt it is completely worth the time and effort, I learned so much.

  • @melaniepoulton6738
    @melaniepoulton6738 3 роки тому

    What a great appointment-it sounds like your gynaecologist gave you some amazing information and she's got lots of options and tools for you! Thank goodness you have some good options-sending blessings to you Maggie!

  • @alexormerod5943
    @alexormerod5943 3 роки тому +2

    Definitely good that this has been diagnosed now. You have youth on your side which is a real positive. From my experience, I would say eat well, exercise regularly and start trying for a family as soon as you’re both ready. My symptoms progressed as I got older ... so don’t delay and have plenty of fun! Sending you lots of girl power and best wishes for health and happiness. 🤗

  • @dawnchristman4805
    @dawnchristman4805 3 роки тому +1

    I wish you health and happiness, it took 2 years for a diagnosis and I had a hysterectomy at age 36. I felt alone because no one understood what adenomyosis was, you are fortunate to have info, options and no symptoms. I will tell you that I had hemorrhage issues after both of my children and I never found out if it was related. I am glad you are able to shed light on this issue, thank you

  • @NegativeOctopus
    @NegativeOctopus 3 роки тому +15

    Thank you so much for making this video. I have also just been diagnosed with Adenomyosis. Its hard to find support online, it feels disheartening and I feel unheard but this made my day thank you.

    • @theotherliz_13
      @theotherliz_13 3 роки тому

      I have endo and suspected adeno. I found the best support groups on IG for both. The Endo Monologues, Oh Endo Comic, Adeno About You, Endo_the_world, Endo What, and The Adeno Project are some of my favorites.

    • @1mama402
      @1mama402 3 роки тому

      @Negative Octopus. If you are on Facebook there are a few Adenomyosis support groups there that I found very helpful when I was first diagnosed

    • @AmyRobertsonNZ
      @AmyRobertsonNZ Рік тому

      I’ve noticed this I only just been diagnosed and it’s hard to find anything

  • @rebeccalunsford9372
    @rebeccalunsford9372 3 роки тому

    Thank you for sharing you story. I know you are helping so many people.

  • @rally4reel77
    @rally4reel77 3 роки тому +13

    Adenomyosis caused my hysterectomy at 26! Its no joke, stay strong!

    • @user-nh7gp4iu2o
      @user-nh7gp4iu2o Рік тому

      How did you discover it and how long time you stayed without symptoms?

  • @bereal6590
    @bereal6590 3 роки тому

    I love the fact you post all the time and have let us into it lives. From someone who might be facing perm ileo(caused by incorrect treatment). It vlogs have helped me stay mentally okay and not going off the deep end. It vlogs are different as it feels were part of ur lives showing ostomy stuff but everything else as well.. it's super real and really helps people see how others are living and how they might also be able to make it thro too.. luv and best wishes 🐾🐾🐾🙋👏👌😷

  • @to41815
    @to41815 3 роки тому +2

    Pelvic floor physical therapy is incredible! I did it for a few months for a hypertonic pelvic floor and it has helped so much with my pain. I had also googled and scared myself so badly! Hope you are on the mend soon!

  • @waitwhat3630
    @waitwhat3630 3 роки тому +3

    I don't have IBS or Chrones butt here I am bingeing your channel. Best of luck to you sweet lady❤

  • @victoriahollis3454
    @victoriahollis3454 3 роки тому +5

    Looking forward to this

  • @astrol64
    @astrol64 3 роки тому

    I'm soooo glad you are ok! *hugs* Love ya Maggie!

  • @123hunden123
    @123hunden123 3 роки тому +1

    For me it is very interesting to follow you on You Tube .i have just removed my rectum.. i diagnosted colon rectal cancer and i had to go true an big surgery, now i have a colonstomi. thank you Maggie i am so glad for all the wisdom you share with us ... .. All the best for you ,,, best wishes from Norway. :-)

  • @wallspatty
    @wallspatty 3 роки тому +1

    I subscribed to your cite a little while ago after it popped up for I don't know why. I was curious so I kept looking at your uploads. It was very interesting and I didn't know so many people have ostomies! I will pray for you on your journey with this new diagnosis! Hopefully it will not affect your trying to get pregnant! A little Magzak would be great! Keep your chin up and I am so, so glad you have the best husband you could ever have! Love to you both!

  • @rebeccaclavette2329
    @rebeccaclavette2329 3 роки тому +1

    Yay you for the pelvic floor therapy!! My muscles are super tight, almost done with it! Be patient with yourself. ❤️🤛🏻💪

  • @hopeleanna6292
    @hopeleanna6292 3 роки тому

    I am so glad you found out about this so early! My mom has this and did have to have a hysterectomy, but she had three children before that and she was 56 when she did get the hysterectomy!

  • @silviemarksilverstein3031
    @silviemarksilverstein3031 3 роки тому

    Wish you the very best and I hope everything will work out.

  • @alexthenerd1
    @alexthenerd1 3 роки тому +27

    Pelvic floor physiotherapists are some of the nicest, most gentle and understanding practitioners I have ever met! It can be scary to try at first. But in my experience, there was nothing to be afraid of once I began! The benefits have far outweighed any initial awkwardness!

  • @mariebarnes416
    @mariebarnes416 3 роки тому +5

    It's actually amazing that this was caught with your MRI, a blessing in disguise.

  • @patriciaconstantino4669
    @patriciaconstantino4669 3 роки тому

    Happy Maggie that your gynecologist appointment seems to have gone well and gave you some positive answers. It seems like your doctor is going to really stay on top of your treatment👍 I like that she suggested not waiting the year but getting back to her in six months if need be... hopefully by you being proactive and your doctor staying on top of your diagnosis you will get the best possible outcome 🙏🙏♥️♥️

  • @rileymccune6845
    @rileymccune6845 3 роки тому +2

    I’m meeting with a surgeon for a laparoscopy in less than a month for suspected endometriosis! Glad you’re being so open with this!

    • @theotherliz_13
      @theotherliz_13 3 роки тому

      Best of luck!!!! I'm having my second surgery in a few days. My first one was life-changing (in a good way).

    • @rheagalarneau1366
      @rheagalarneau1366 3 роки тому

      Good luck

  • @kellywong664
    @kellywong664 3 роки тому +37

    I know this is off topic but we Stan a strong queen that wears a mask when she goes out!. Stay strong gurl!!

    • @cantstanditanymore
      @cantstanditanymore 3 роки тому

      Whatever with the face diaper, that aCTUALLY does NOTHING! Written RIGHT ON THE BOX GIRL!!!! 🙄🙄🙄🙄🙄🤡 CLOWN PLANET man!!!

  • @cjp7413
    @cjp7413 3 роки тому

    You’re so brave to share all this!

  • @mayanne5409
    @mayanne5409 3 роки тому

    I truly feel that as you have regular cycles that all will be fine dear Maggie. ❤

  • @randinatkowitz2487
    @randinatkowitz2487 3 роки тому +2

    You are so right Maggie... googling symptoms, etc can be the worst thing to do!!!

  • @marg9017
    @marg9017 3 роки тому

    So glad everything is ok💕

  • @makennahomer4109
    @makennahomer4109 3 роки тому

    Glad your appointment made you feel better!
    As an Endo patient, if your pain ever gets extreme and unbearable plz seek out an Endo specialist that does Excision surgery and not Ablation. It’s a suuuuper common and pervasive myth that a hysterectomy cures Endo. There’s lots of steps that can be taken before reaching that point. So don’t panic that you’re going to have to get a hysterectomy one day because for many women with Endo they never end up getting one. Pelvic Floor PT works wonders and really excited for you to see one! Looking forward to hearing how it helps you. :)

  • @Lilukalani
    @Lilukalani 3 роки тому +8

    I have Endometriosis and had Adenomyosis, which was found via a Hysterectomy. The Hysterectomy has helped tremendously with most of my pain but since I still have Endo growth on my spine, bladder and bowels I still deal with flares. I will never regret my decision to get my uterus removed. Best decision of my life.

    • @virginia3283
      @virginia3283 10 місяців тому +2

      Wait... you can get "endo growth" on your bladder & spin???!! 😢

    • @Lilukalani
      @Lilukalani 10 місяців тому

      @@virginia3283 Yes! There were even case studies finding Endo growth on the brain. It can grow just about anywhere internally but some places are much more rare than others.

    • @wildflower7321
      @wildflower7321 4 місяці тому

      Omg how!? ​@@Lilukalani

  • @Cochita322
    @Cochita322 3 роки тому

    Hi Maggie❤your hair looks beautiful, keep us updated please, sending you my admiration and love

  • @ChicaChikita1
    @ChicaChikita1 3 роки тому

    That's great news Maggie good luck dear with getting pregnant 🙏🙏🙏🙏🙏❤❤❤❤❤

  • @Joyce-dd3fm
    @Joyce-dd3fm 3 роки тому

    God bless you Maggie! You're adorable! Hi Zak!

  • @notme5646
    @notme5646 3 роки тому +4

    I was diagnosed with adenomyosis about 10 years ago. Mine was finally diagnosed when I had a hysterectomy due to horrid cramping. I lived with that pain for a few years before I was at my breaking point to where I just wanted it all out. I was done having children so it wasn't too big of an issue. I am happy to say that I am better. For me, it was the right decision. I pray you find something that works for you.

    • @AnnikaBergmannArt
      @AnnikaBergmannArt 2 роки тому

      Did you have troubles with infertility? I was given the diagnosis adenomyosis and the doctors are split on whether that has no effect or a huge effect on pregnancy chances

    • @notme5646
      @notme5646 2 роки тому +1

      @@AnnikaBergmannArt no I didn't. I did have an ectopic pregnancy and very early miscarriages. I was to the point where I was done having kids. I ended up having 2 healthy kids

  • @emmafaulkner8468
    @emmafaulkner8468 3 роки тому +7

    I was only diagnosed with adenomyosis when I had my hysterectomy, I had never even heard of it before. Living without being in constant pain was revolutionary, never realised how much it affected me.
    Glad you have been diagnosed early and they are proactively doing treatments and actually listening to you.

  • @K8james
    @K8james 3 роки тому

    Stay safe ,well and positive your a strong women you been through quiet alot,xx👍🏻💕🏴󠁧󠁢󠁷󠁬󠁳󠁿

  • @chacefn
    @chacefn 3 роки тому +4

    Omg she speaks straight facts love her

  • @kittycatoutlaw9673
    @kittycatoutlaw9673 3 роки тому

    Thanks for being real!

  • @julielevesque4578
    @julielevesque4578 3 роки тому +10

    i suffered my entire life with adenomyosis and was only diagnosed at 47 after I bled continuously for 7 months
    then they removed my uterus and its better !!

  • @jeanninesneathen68
    @jeanninesneathen68 3 роки тому +2

    I suffered for years with adenomyosis and the unrelenting pain ....30 days a month. Every day was horrible. Hemorrhaging for 10 days and a couple days without bleeding then another 10 days of hemorrhaging. Finally got my uterus, ovaries, and fallopian tubes out at the age of 49. Blessed relief from pain!

  • @joycependleton589
    @joycependleton589 3 роки тому

    You are looking way better in this video. More relaxed. It is better to not get ahead of things. Less stress. Take care of yourself.

  • @neelapatowary8924
    @neelapatowary8924 3 роки тому

    Good luck 👍💓

  • @rachelm973
    @rachelm973 3 роки тому +1

    I'm so glad they found this because if you ever have major ongoing pain around your period and/or ovulation or weird symptoms you will know what it's from. I have had endo for over 20 years--it's treatable when you're able to manage the symptoms. Hysterectomy is last option. Don't let people scare you about having problems conceiving--you will be fine :)

  • @rennierad
    @rennierad 3 роки тому +1

    Hi Beautiful,
    I'm happy your doctor answered all your questions, and a hysterectomy is the last thing to consider you're too young for that. Let us know how the exercises work. Much love ❤

  • @cantstanditanymore
    @cantstanditanymore 3 роки тому +5

    I was diagnosed with Adenomyosis AFTER MY THIRD BABY! No issues getting prego... Over the years, unbeknownst to me or my doc,
    THE PILL PRESERVED MY FERTILITY!!!

    • @raquelholness8191
      @raquelholness8191 2 роки тому +1

      What pill

    • @user-nh7gp4iu2o
      @user-nh7gp4iu2o Рік тому +1

      Which pill

    • @shianecrow4318
      @shianecrow4318 Рік тому

      I also had 3 babies before diagnosis!
      Pregnancy out me into “remission” each time! I will say for me each time my cycle returned it got worse and I’m now 27 and considering a hysterectomy. Thankful for my 3 wonderful healthy children 🥰

    • @virginiaalderson4793
      @virginiaalderson4793 Рік тому

      Similar story. I was on the progesterone contraceptive pill for years. Only off it for a small amount of time. I wasn’t diagnosed with endo and adeno until I had completed my family 2 boys later and got sterilised. I didn’t want to use hormonal birth control anymore because of my age and being a smoker. Then the symptoms reared their ugly head eventually leading to a diagnosis. Unbeknown to me I too had preserved my fertility. Definately use hormonal birth control until you are ready to start a family. This stops the progression of the diseases.

    • @user-hy2qo6lj2q
      @user-hy2qo6lj2q 9 місяців тому

      THE pill... as in the contraceptive pill. It regulates hormones and because this condition thrives on excess estrogen (like most abnormal growths in the female reproductive system) the pill probably prevented the condition from advancing to a point that it affected their fertility. Coming off the pill, which let them get pregnant also theoretically let the disease, which had been dormant all that time to start taking over.... But traditionally, this disease was associated with women over 35, already with multiple children and it was thought age and the higher amount of children also contributed to the progression of this condition. This assumption has been challenged by the growing number of younger women without any children being diagnosed in recent years. Now they think it is probably something you are born with that just gets worse over time.

  • @OMalley1203
    @OMalley1203 3 роки тому +27

    I have endometriosis, adenomyosis, and uterine fibroids. My period is 8 days and I fill a super tampon in 30-45 minutes. When you kept saying they removed scar tissues and adhesions, I had wondered if you might possibly have endo. I’ve had 3 surgeries to remove the adhesions that like to glue all my organs together. If you’d like to reach out, I’d be more than welcome to tell you what I know.
    I do really want to point out that a hysterectomy will cure adeno, it will not cure endo. If you end up doing surgery, please please please look around and get an expert. Expert excision is the only cure for endo.

  • @Celticgirl81
    @Celticgirl81 3 роки тому

    I’m in the Philly area too! Mann center is where I saw Wait Wait Don’t Tell Me in the amphitheater 👍👍👍

  • @periwinklesjourney4150
    @periwinklesjourney4150 3 роки тому +1

    Hopefully it is caught early and they can help you. Praying for you. You have already been through a lot.

  • @breannarg
    @breannarg 3 роки тому +16

    Most surgeons do not know what endometriosis looks like - it’s not the lining of their uterus. Most experts do not believe adenomyosis and Endo are the same disease tissue as Endo is not the lining of the uterus. Hysterectomies do nottrest Endo, they treat adenomyosis because Endo is by definition is found outside the uterus. And it’s really important that this is explained. And without a biopsy, it’s hard to know if what they saw was Endo or adenomyosis.... and getting a hysterectomy for Endo doesn’t make sense unless it’s for other issues (adenomyosis, PCOS, heavy bleeding, tumors, etc.)

  • @monicah9726
    @monicah9726 3 роки тому

    I have both endo and adeno ( currently recovering from my 2nd lap for excision of the endo as I type!). I highly recommend the subreddits r/endo and r/endometriosis , even if it is only adenomyosis that you’ve been diagnosed with - they have a lot of good information and most importantly an amazing
    Community of girls who are all going through the same thing . It has truly been my lifeline ! There is also r/adenomyosis but I don’t think it is as active as the other 2 subreddits. Also, Nancy’s Nook on Facebook is a good resource for reading materials/information, but they don’t really encourage a lot of discussion/dialogue between members and it’s a bit “culty” so just be aware of that! Wishing you the best of luck with your endo/adeno journey :) for me being diagnosed was actually a positive , as I knew something wasn’t right with my body and so confirming it meant it wasn’t all in my head lol. Sending you positive and healthful vibes !

  • @susanwlasiuk9190
    @susanwlasiuk9190 3 роки тому +4

    I had painful heavy cycles since I was 11. it took a long time to be diagnosed. I had 2 children both of them were planned . Birth control pills worked until I reached my late 30's (I still had no idea what was wrong until this time) I had a hysterectomy in my 40's. I also have IBS-D

  • @mandybarnett3647
    @mandybarnett3647 3 роки тому +6

    Don’t worry too much... I had three healthy babies with little problems... everybody’s story is different. It got worse as I got older and had so many surgeries. I did have like a false pregnancy and I decided then to have a hysterectomy. Don’t Google!!! You will freak out. You are young I pray things go well. I had other factors too that I mentioned.. a disease called EDS.

  • @Snakesnarl
    @Snakesnarl 3 роки тому

    Ok love your nail color.

  • @lynnette3020
    @lynnette3020 3 роки тому +10

    i have endometriosis and I was able to have 3 babies . I planned, 2 on gods timing. ( a humorous I sens a humor he has ) - after my planned baby ( 1 yr anniversary ) I had my second exactly 3 yrs later second child to the day and 3 yrs later from her my 3rd child from that date. so the endro really did not interfere with getting pregnant.

  • @beckyshaknovich7554
    @beckyshaknovich7554 3 роки тому +1

    I hope you have a great experience with pelvic floor physical therapy. It helps me so much! ❤️

  • @melindabrock2275
    @melindabrock2275 3 роки тому +1

    Just wanted to encourage you, yes I can affirm that pelvic floor therapy is beneficial. I am a rectal cancer survivor and about 2 years after having my rectum removed (ultra low), and was reconnected, I went to several months of pelvic floor therapy to help with incontinece. M D Anderson is a phenomenal hospital and I can’t say enough good things about their staff and their capabilities. Now more than six years cancer free. Good luck I wish you the best.

    • @user-nh7gp4iu2o
      @user-nh7gp4iu2o Рік тому

      What is pelvic floor?

    • @melindabrock2275
      @melindabrock2275 Рік тому

      @@user-nh7gp4iu2o It is a group of muscles that support bladder, bowel, uterus and vagina.

  • @gracewynn268
    @gracewynn268 3 роки тому +4

    I'm starting pelvic floor therapy in 2 weeks due to my pelvic floor dyssynergia diagnosis I just got. I'm hopeful the PT will help me, I hope it helps you too!!

  • @JPMasonDun
    @JPMasonDun 3 роки тому

    I had endometriosis since I was 16 yrs old. I was never able to get pregnant from it. But I’ve learned that some of us are affected by the endometriosis more than others. I was given birth control to help reduce the lesions. It helped for a while, but as I got older, it began to fail. My periods got worse--in my late 30s, I began having fibroids, cysts in my ovaries, excessive bleeding etc. The pain was severe. So I encouraged my GYN to recommend surgery. She did. She didn’t really know bad my uterus really was just from the tests. She was in the surgery with my surgeon. They were horrified to see I had adenomosis. She said I was very close to bleeding out. I had cancerous cells in ovaries and uterus. So I had a complete hysterectomy. It felt better after years of painful periods. But I will say the sooner you get it diagnosed, the better!!! And of course, I’d had years of endometriosis that was basically unchecked bc doctors really didn’t know what to do. So you are fortunate, and Gynecology knows more about this autoimmune disease. So begin watching what foods et al your body is reacting to. Try to reduce it as much as you can. Get your immune system to calm down. That can alleviate the andenomosis. Keep us posted on how you are doing.

  • @NorseButterfly
    @NorseButterfly 3 роки тому

    Sounds like you have an amazing obgyn! Listen to her..I know it's easy to let your fear of the unknown get to you, it happens to all of us. But when you have a Dr who is up front and tells you how things are, I don't think you have much to worry about for awhile.

  • @annegreenwood3624
    @annegreenwood3624 3 роки тому

    it’s not a fun illness and endometriosis stinks you look so pretty sending happy thoughts your way bruno is so adorable another great video you inspire so many sharing your story

  • @Md_school_art
    @Md_school_art 6 місяців тому

    I didn't know that ibd came with adenomiosis , thank you share❤

  • @eevee8861
    @eevee8861 3 роки тому

    My friend with adenomyosis is in her mid 30s and got her hysterectomy last year. She had a lot of issues since she was in her late teens (pain, needing iron infusions etc due to blood loss) and has been on some pretty hefty medication for a long time (including hormone blockers I think? Induced menopause).
    Everyone is different but that's also quite a long way off anyway, and she had obvious huge issues.
    Hopefully it all goes well for you!

  • @stephanieallen4836
    @stephanieallen4836 3 роки тому

    I see a pelvic floor physical therapist for a hypertonic pelvic floor (muscles too tight and spasming). I find it incredibly helpful. 😊

  • @emscrochetgoodies2661
    @emscrochetgoodies2661 3 роки тому

    Just got diagnosed in the beginning of December and am slowly learning more about it. Still trying to understand it all.

  • @karensexauer6138
    @karensexauer6138 3 роки тому

    Lucky break.....this happens a lot with gastric neuroendocrine cancer, my diagnosis, all in my stomach. I also have endo and after a LONG while found the right doc... a good gynecologist is worth their weight in gold. BTW I found your site looking for people who have had a total gastrectomy, my likely treatment if no mets are found. If you have run across anyone with that id I'd love to know.

  • @SbjsksmNx
    @SbjsksmNx 3 роки тому +13

    It took me 3.5 years to get pregnant. I got pregnant without any special diet or treatment. I don't have these health struggles, but I would have been written off as infertile when it simply wasn't God's time for me to get pregnant. Now my daughter is almost 2 and my second is due in June.

  • @lauraelisee
    @lauraelisee 3 роки тому

    Well wishes Maggie! Are you guys actively trying to conceive? Good luck with everything Xx

  • @melanieschnalke8525
    @melanieschnalke8525 3 роки тому

    Hi Maggie. I use Perifit to strengthen my Pelvic floor. I like it more than other kegel Systems because you can train with an App on your Handy and see, how good your muscles are. I buy it on Amazon. Greetings from Germany. Melanie

  • @nickytaylorrobinson9533
    @nickytaylorrobinson9533 3 роки тому +1

    UAE..Uterine Artery Embolization is another option as oppose to an hystorectomy.

  • @maryalice8507
    @maryalice8507 3 роки тому +2

    Maggie i don’t agree with the dr saying if it doesn’t happen in 6 months you need to go back. Plus if she said it would be treated with birth control how would you even get pregnant then. I was told after my first child that i probably would never have another one. Well 6 years later i had a son and 2 1/2 years after that i had another daughter. My nefew and his wife were told they would never be able to have kids i told them doctors don’t know everything. After 10 years they got pregnant and ended up having 3 kids all together. Another reason i really don’t like drs is everytime you go for one thing it’s seems like you end up having to go back for something else. Just really weird how one thing gets fixed and another pops up.

  • @mandybarnett3647
    @mandybarnett3647 3 роки тому +2

    Oh hon... I had that!!! Murderous pain terrible PMS.. I have Celiac disease and Vascular Ehlers Danlos Syndrome as well.. hysterectomy by 30... I had my kids early so I opted to get surgery to enjoy them. It gets worse with a lot of my surgeries.. gallbladder and kidney and poly ovarian cysts.. the cysts caused the pain.

    • @mandybarnett3647
      @mandybarnett3647 3 роки тому

      Oh...life got much better with the hysterectomy.. pessary therapy not successful or pelvic floor therapy.

  • @TheBeingReal
    @TheBeingReal 3 роки тому +1

    M or F: parts causing trouble. 😆
    Hope you get thru this!

  • @sarahfitpatrick578
    @sarahfitpatrick578 Рік тому

    I was diagnosed with adenomyosis last week. I have had symptoms for 17years. My treatment options are coil or hysterectomy. I’m 32, my scans appear quite severe. I managed to have 2 healthy pregnancy 5 and 3 years ago before I was every diagnosed. So don’t lose hope x

    • @jusme9400
      @jusme9400 Рік тому

      Hi, I was just diagnosed with adenomyosis and I’m scared to death of a hysterectomy. You mentioned coil, what is that exactly. Thanks

    • @sarahfitpatrick578
      @sarahfitpatrick578 Рік тому

      @@jusme9400 it’s the mirena coil or IUD it can help with heavy bleeding and hormones can help condition from getting worse. The oral contraceptive will do the same thing but I can’t tolerate it as it greatly affects my mood and I found it didn’t help with heavy bleeding. X

  • @brittanyBSBbabe
    @brittanyBSBbabe 3 роки тому

    At 14 I was diagnosed with PCOS or polycystic ovarian syndrome. Im turning 25 in March of this year. I didnt get a period until 16 then from 18-19 (a year and a half) it didn't come until I started birth control. Now its like clock work. But since then the main medicine to treat it decided to make my stomach hate me. Then around last year I was talking to my doctor and she suspects Endo may also play a role with my pain and issues at well. With PCOS, its normally found due to infertility. Mine was found due to pain, lack of period, and blood tests.

  • @elizabethdavila7235
    @elizabethdavila7235 2 роки тому

    I don't have pain either. But. Obgyn told me other day its only when it grows more into the muscle it starts to hurt , over time .

  • @denisew5257
    @denisew5257 3 роки тому

    I was riddled with endo. I couldn’t conceive and ended up with a full hysterectomy, which made a world of difference in my life. But, I know you’ll be just fine!

  • @emmanaughton8694
    @emmanaughton8694 3 роки тому +2

    Erin from clevver style has endometriosis (worse than yours, based on descriptions) and she went through a different operation to avoid a historectomy, I don't remember what it's called but there is a series of videos on it. I might be worth trying to contact her to learn about options that aren't widely known.

    • @OMalley1203
      @OMalley1203 3 роки тому

      Emma Naughton most doctors offer a laparoscopic surgery to remove the adhesions with relieves pain until they grow back.

  • @hollymurphy3980
    @hollymurphy3980 3 роки тому

    Adenomyosis was never detected on my transvaginal ultrasound or any other testing and imaging but was found once I had my hysterectomy for endo and poly cystic. So glad your not in pain! That is a blessing.

  • @MsLizzy2010
    @MsLizzy2010 Рік тому

    I was diagnosed with endometriosis and I am in a lot of pain a week before and the week of my period. My OBGYn called me saying I am having a hysterectomy in June 2023

  • @melaniemckown
    @melaniemckown 3 роки тому

    ❤️

  • @debratas5014
    @debratas5014 3 роки тому +2

    Your lovely inside and out, regards from Australia!

    • @mesmythamp84
      @mesmythamp84 3 роки тому

      That's what I keep telling her

  • @MarieRhondelle
    @MarieRhondelle 3 роки тому

  • @Danajanene
    @Danajanene 3 роки тому +4

    So random...your hair looks really beautiful today...have you done something different?

  • @divinelilprincesss1
    @divinelilprincesss1 3 роки тому

    I've never met anyone before with this condition. I had pain after my C-section in 1984, pain started after I stopped nursing. Birth control helped. I had a vaginal birth in 1987 after that birth the pain was intense for 10 months...My Dr suspected I had it but it wasn't confirmed till I had my hysterectomy. My Dr said it was caused by my C-section.

  • @dlbutler0113
    @dlbutler0113 3 роки тому

    My only recommendation would be to look into other more natural herbs to help with endometriosis or the early stages of it because fertility is priority birth control definitely lowers your chances and increases your chances for a hysterectomy. As a birth full spectrum Doula I highly recommend pelvic floor therapy for anyone that is getting surgeries or have had trauma or anything of weakening of the pelvic floor muscles it is a vital service.

  • @user-nh7gp4iu2o
    @user-nh7gp4iu2o Рік тому

    I’m 31 and this year I was diagnosed by adenomysis by MRI when my dr see my endometriosis is thick she was shocked why it is thick ! So she asked me to do MRI and the report states that there is adenomysis. After almost a month I got pregnant even before knowing what is written in my report and before knowing what is adenomysis then I found out that I’m pregnant in week 5 but the sack is empty which means there is no baby shown inside ..then after one weak abortion happened and still I did not come back to my dr to check what is written in the report as adenomysis!

  • @vero.bless999
    @vero.bless999 Рік тому +2

    Hi, Any updates on adenomyosis diagnosis?.. hope all is well. Thanks!

  • @Gisellej80
    @Gisellej80 3 роки тому

    😔😌 sounds painful could explain the heavy bleedin

  • @SbjsksmNx
    @SbjsksmNx 3 роки тому

    Have you tried using the ovulation test strips? Possibly quit coffee, and both times I got pregnant I was taking womens one a day Alive vitamins.

  • @breannarg
    @breannarg 3 роки тому +4

    Kind correction - endometriosis is NOT the lining of the uterus. Endometriosis is an abnormal tissue and it’s not from the uterus. Adenomyosis is when the lining of the uterus grows into the muscular wall of the uterus. Most GYNs are not skilled or knowledgeable enough, so I’m not surprised she didn’t have the right definition. Please check out “Endo girls blog”, “Endo what”, etc. It’s really important that the right information is shared on these platforms.