Day #6, FH Europe awareness campaign for Rare Disease Day 2020,
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- Опубліковано 8 лис 2024
- Day 6 of our awareness campaign. Meet Thanos from Greece, an accomplished bass guitar player, also a graduate from a nursing school, who is currently pursuing his ambition in becoming a qualified dietitian. Thanos is also an HoFH patient, diagnosed at the age of 4. Today he is sharing some of his life stories and challenges, emotional burden he experienced, and thoughts from his earlier years. You will be able to learn more about the emotional side of life of HoFH patients.
Tomorrow we will share more information about LDL apheresis. So make sure you follow us and please share and comment so we can together #FindFH and #HoFH to prevent the catastrophic consequences of the conditions.
#EarlierIsBetter, #HoFH =#RareDiseaseDay