Something I Should Have Told You A Long Time Ago
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- Опубліковано 11 лис 2021
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Yo MD here, this disease usually in population from Japan is related to a disease called Sclerodermia. You can go and see a Rehumatology specialist in your city. I really hope you get better.
Raise this comment people.
Shogo needs to see this
If you search Scleroderma NHS you can find an easy to understand description of it and it even mentions Raynauds in the Systemic sclerosis section.
It says how its treated a little bit below it.
Hope you see this and it helps Shogo!
Would a vasodilator help? Or even a liniment like Dit Da Jow? Of course he'd have to ask his doctor if it would be bad, but these were meant for improving circulation.
Damn, the fact you trained in swordsmanship despite having this sickness is amazing. You're like a modern day Okita Soji, a swordsman whose illness did not dissuade them.
I imagine that traditional swordsmanship could be good for him. It emphasizes discipline, harmony and selflessness in order to become a better swordsman.
Hopefully it contributes to reducing his stress and keeping the worst symptoms at bay.
Thank you for leaving a comment!
I hope I don’t die because of my sickness like he did though😂
@@LetsaskShogo please don't :( really love your content
@@LetsaskShogo Please, be here forever. You can give hope for many people. I am really broken and each time I want to give up I'm thinking about the mentioned above Okita Souji. If he would have not been there this hundred years ago, I also would die long time ago. If I wouldn't look up to him, I would give up many years ago. Just like this kind person above compared you to him, I think I can see some other reason to compare you to him. There are people who look up to you and probably they live only because you live. We can't go back in time and help Okita in any way, we can't go back in time and take care of him or make him happy. But we will do everything to help you and make you happy. I'm really broken and I have no reason to live, but I try to live because I always think that if there is any afterlife and I would meet Okita there, he may be angry that someone who says they admire him just gave up. I just don't want to make him hate me for giving up. And I don't want people to think that people who admire him are bad. So I live only because he had lived. Even if just his existence had helped me a lot, I can't do anything for him. Maybe tell people about him, make more people admire him. But I'm still useless. You can do everything and you can make everyone happy. Can you let us do something for you? You are helping us a lot. I have many damages after my illness I had, my lungs are bad, my nerves are bad. But I try to live because each time I think I can't do something because of some damages I immediately think "Okita was fighting even while he was sick, wouldn't he think I'm bad if I would give up while telling people how I admire him?" like, wouldn't he be disappointed that I only talk about him, not live up to admire him properly with my life, not just words? So now I will add you to my motivation too. I have bad lungs and my fingers are weird but I still play flute because my important person played flute (he was also sick so he's also a motivation, he told me many things, told me to do what I want to do and not believe that I can't do it), I do it because he did, when I cough too much I think about Okita fighting despite the illness. So now each time my flute will escape my hands or if my hands would throw away my pencil while drawing without a reason I would think of you. So your life will become a reason to live for someone else. I can't thank Okita for giving me hope and reason to live. But I can thank you. So Thank you. I can't do anything for Okita, no matter how much his life helped me. But I can do something for you, right? Just tell me if there's anything I can do for you. I'm really bad at everything but maybe I can draw a portrait of you? Or anyone you admire? I'm not as great as you and I will never be. Even if I can technically do something, I just am useless. But I will try. And each time I will get angry at my hands throwing away my pencils, I will think of you and do my best. Just like I play flute thinking about my important person and just like I use my mask that helps me breathe and think of Okita instead of just letting this breathe stop and just finally rest. You became another on this list of reasons to live. And you are the only person I can thank for it. Maybe this will also explain why I always asked you about Okita so much. I was scared you would think I'm weird because of it. It may be weird, I'm so useless and I was told I shouldn't exist. But I still admire so great people and use them as reasons to live even if it would be better for everyone if I would have given up years ago. I'm sorry if my existence and comments are a problem to you. I just want to thank you for helping me even if you don't know you had helped. And I want to do something in return. I can't do anything for other people who helped me I mentioned before. So I want to do something at least for you. Even if I know I can't do anything. I'm sorry for everything and thank you for everything. Please, live forever. All people who gave me reasons to live passed away while being younger than I am now and I'm still alive even if I shouldn't. So please, at least you should live forever. You deserve it. And I just don't feel any more guilty for living longer than better people. Please, live a lot longer than me, so I won't feel guilty for living.
@@LetsaskShogo you're probably fine lmao
As a medical professional, when someone comes in and tells me they have five hours of sleep, I am aware that their other issues will be worse. Most humans need from 7-9 hours of sleep a night. With your condition I want to encourage you to get enough sleep that you do not need an alarm to wake. I do wish you all the best.
Is is bad that I got 7 hours of sleep in 2 days in total?
I got 2 hours of sleep on the first day and the second was five
@@gigaacademia9313definitely not healthy. Please prioritise getting 7-9 hours sleep every night.
My wife gets Raynaud’s as well, and has mostly happened when she has been pregnant. As it turns out, the symptoms have been most strong when she has had low levels of Vitamin B1 (Thiamine) and you may want to talk to a physician about taking synthetic B1 to help with symptoms.
Nutritional yeast has most of the B complex (lots of B1) and is better absorbed by the body. I hope this helps.
ITT : intercontintental armchair physicians
Dudes fingers are rotting and hes still training, mad respect, your incredible, stay strong ❤
Sounds like he's just unlucky to get that disease.
I have this in my feet so I mean can be much worse they aren’t actually rotting rotting kind of an exaggeration there
Very "Metal!"
Well they‘re not really rotting… besides, Raynaud‘s Disease should be treatable very well with a combination of keeping the fingers warm and taking certain medication.
@@pixlord9773 exactly I’ve dealt with it for 20 years and it’s in my feet..dude needs to Man Up cause he’s far from alone
He is always smiling, while talking about his sickness. Give this man the respect he deserves, because he earned it!
He's got a respect i reserve for very, very, very few people, so little that shogo is the only living person to get it.
Agree,
When he said 'I actually can't feel my fingers right now' with that a smile, that got to me.
It takes a lot of strength to face difficulties with smile and a positive mindset.
That takes profound inner strength.
@@cult_of_tyr eeeeh not really, it's a matter of accepting the fact
You're a huge inspiration to me, and many MANY other people. Your perspective in life is so special and positive, so keep your head held high! Thank you for fighting strong, especially for many of your viewers suffering from their own challenges and sicknesses.
Sincerely -Charles
You're awesome.
What a angel you are
W
O
how did you add a donation to your comment?
Shogo is like the friend we all want to have.
Your wife crying at the end shows how much she cares about you and it warmed my heart. I wish the best for you an your great family!
They really are a lovely, loving team.
Yes she seems very sweet
I was crying and wish you two hugged!!
I have raynauds too. I fill a sock with rice, microwave it for 30 seconds and it holds heat so I can warm my hands when needed. Thank you for sharing your story. Best wishes.
Ive used things like this too
My family has had generations of members having crippling migraines and we have like 10 rice socks that we microwave to put on our heads to make it feel better, never I underestimate the power of the rice sock
@@zpetrie88 Have you looked at your water intake to see if that affects the rate at which you get migraines? Genetics can influence one's sensitivity to hydration.
how long does that stay warm?
Lentils work as filling as well. It stays warm for a long time.
I started crying when his wife explained her side of the story. I’m wishing the best for your family and stay strong ❤️
I really appreciated this video, even though it made me a little tearful. I wish you both very well.
If anything, the fact that you still train in spite of your disease makes you even more impressive.
How is the video uploaded 4 hours ago but this comment is posted 3 days ago?
@@minsoobae6458 he has a channel member ship to Shogo, he can watch videos early and other benifits too
@@chauxingho3093 ohh i didnt know that. Thz :)
I've Raynaud's too. A few months back, my condition was almost as bad as yours. It's heartbreaking to hear another person with the same condition. I've done treatment and experienced 50% improvement. If there's anyway we can reach out to each other, I'm happy to share more information. Another thing you can try is any aerobic exercise. Like cycling or running. It helps with long term circulation. Every little bit counts. Wishing you the best of health.
Do contact them on their socials please...🙇♀️❤
Please try vitamin E. It helps with circulation.
@@benm8274 studies show excessive vitamin e can cause heart failure tho. Please consult a doctor first.
@@chaotic_empty You gotta go way overboard with vitamin e supplements for it to have negative effects though, simply a diet very high on vitamin e would be completely safe and perhaps very helpful
@@chaotic_empty who said anything about excessive? Take the amount that can help you.
It's like potassium, you NEED it, but excessive amounts can kill you.
I also have Raynaud's, but mine is caused by an inflammatory autoimmune disease. I used to be a gardener/ landscaper by trade, and my autoimmune disease rendered me unable to continue to work in that field. The fact that you're not giving up despite the pain and difficulty you're living with is inspiring. I have continued to do a little gardening as a hobby, but was on the brink of deciding not to plant anything when spring comes. But now I think I am going to plant a garden this year and keep trying. My condition is also incurable currently, because it is genetic, but I don't want to continue letting it take away the things I love doing. You're very brave to keep doing the things that mean a lot to you.
I’m just now watching this and I also have Raynaud’s. When you said that the internet says it is caused by smoking, extreme stress, or too little sleep, I was shocked because I was diagnosed at 15 and I did not smoke, slept a lot, and I do not think I had much stress at that point in life compared to now. I lived in a climate where it was very cold, below freezing, so it was difficult. Now in a warm climate it is better but occasionally my toes will go numb as our floor is cold tile. I just try to keep warm but sometimes there is no preventing it
You can literally see that his wife was a little worried while Shogo is opening up about his sickness.. ☹️ Wishing you all the best to you and your family Shogo
agreed, God Christ Jesus bless you my sister, have a nice day
it's also a cultural thing, some western societies are often very open and verbal about their problems even personal problems, but the Japanese are very secretive and keep to themselves in most cases, so it's not a very common occurrence when a Japanese person comes out like this with his issues or illnesses.
Don't look for someone who will solve all your problems. Look for someone who won't let you face them alone.
I'm glad that you have found Harumi who has become the source of your strength. So stay strong, Shogo!
Very well said 🌞
Now *this* is the best quote I've ever read on this website.
I'll be praying for you and your family, Shogo. Thank you so much for all you've shared with us thus far, and how you've included us in your life. (continued...)
My partner had scleroderma, and a whole host of other autoimmune diseases: including Reynaud's. She passed away in April of 2020 in Canada. I am really glad that you have a supportive partner, and system in place to help you. My partner, in between hospital stays, undertook a lot of activism and educational programs about her auto-immune diseases, as well as leading pain management workshops. She sought to help others with similar conditions even as she sought to educate. It *is* a big deal, and I can only imagine how hard, but necessary it was to reveal your condition to your audience, but I respect you a lot for doing so, and telling us about this part of your life.
This made me shed a tear.
My cousin’s Reynaud’s was caused by genetics that cause magnesium to be difficult to absorb. He was placed on a calcium channel blocker to slow the disease, and a form of magnesium that’s absorbable - magnesium L-threonate 3x per day. These things stopped the progression for him.
Did he try warm baths in Epsom salt?
@@kathleen1685 Epson salts are probably ill advised just like people with diabetes should not use them... it can worsen the condition.
Sorry, should have made it clear I was referring to the comments from dppage. I didn’t realise my comments would appear at the bottom of the list.
I'm taking magnesium supplements myself, though mostly for other reasons, though I'm wondering now if that isn't also keeping my symptoms at bay. My Reynaud is undiagnosed, just cursorily noted by a doctor in passing, untreated, and also much much milder. The worst attack I've had was in winter with two fingers going first numb, then getting the pain. I had to keep my fingers under warm running water till they got better. It may well be due to genetics, as my father has similar symptoms.
@@Katoshi_Takagumi lots of things can cause fingers to go numb. Thoracic outlet syndrome is another one that will cause numbness in your extemeties, especially in the pinky and ring fingers. Either way, you should definitely bring it up to your gp the next chance you get, numbness can be indicative of something more serious and progressive.
The loving and supportive husband-wife relationship of Shogo and Harumi is just beautiful.
fr
Yeap its refreshing to see a couple actually treat eo like a king and queen should. And im the type to say most relationships will fail so why bother. Im not going out downing ppl for having them but when asked why i dont engage in dating thats one of my responses.
When she shared her feelings and began to tear up I completely lost it and started crying. Partly because of the condition and the pain she too goes through seeing her loved one endure, but also because of the love she has for her husband.
They are wonderful people.
I've been to Japan 3 times, all aboard USS Midway, I was tasked with traveling all over the countryside and taking photographs. As a USN photographer I had a wonderful time. I'm 71 and would like to take my wife there but I can't due to my illness I must stay close to a hospital, I have end stage kidney disease. Please keep up the videos I enjoy seeing Japan again. :)
Shogo, you are the epitome of what is known as what is positivity. I can't express how amazing and inspiring it is to see your happiness and your smile show through what you are dealing with. Bless you, and bless your wife as well for being by your side and supportive and loving you through it all. You are both so amazing and I am so glad that yhe both of you are able to spread such positivity into the world.
I'm a 60 year old man, half a world away, having never met you in person and I feel gut punched. I will keep you in my thoughts and prayers. I'll also be more diligent at watching your videos. 😢
@@thotslayer9914 Knights by Julek Heller and Deirdre Headon
Now that you’ve revealed such a personal battle please don’t push yourself making the action videos, just presenting content like this is very informative and helpful to ur audience. I’ve been wearing a prosthetic since 1988, nothing to be ashamed of, I recommend embracing your situation when applying yourself so that you don’t make it worse. We want to continue watching Shogo videos for the next 50 years! Take care of yourself and your family! Everybody loves you Shogo!
I completely agree!
Totally agree! Informative videos are more than enough for the cold season! Please take care and don't push yourself!
Exactly
Great advice from Darth KillsAll
I love watching your videos and learning about Japanese culture. Thank you for your courage to talk about this hard topic.💝
sending healing prayers. i hope you can let go of the average sleep expectations in japan, and please consider that 5-6 hours of sleep each night actually is not sufficient. 7-9 hours is a better goal. i hope you will consider spending your winters in a tropical climate. you’re worth the extra effort. your enriching and educational videos have inspired my personal goals and interests! all the best to you and to your wonderful family. ❤️
Yes, I agree!
I thought this exactly. 5-6 hours of sleep is not enough. Please get more sleep 🙏
Also I hope you don't feel guilty about not saying this sooner, the only right time to say these things is when you're ready. No one should shame you for wanting privacy and accommodation when you are already open with so much.
I'm going to stop typing before I rant lol, I just hope you get the relief and support you deserve it looks like it was quite a difficult video to make.
I totally agree with "the only right time to say these things is when you're ready. No one should shame you for wanting privacy "
Yes absolutely. Also please take any time or accommodations you need and you don't have to tell us about it or why if you don't want too!
8 hours is enough sleep. 5 hours removes a full REM cycle and will weaken your immune system.
7 is ideal for for me
Bro science, most tribesman nowadays who live without electricity were recorded to sleep in average 6.4 hours per night.
@@trollingisasport 7 is weekday for me, 8 is on weekends
That's more of a myth. The amount of sleep you need depends on genetics, lifestyle, and quality of sleep. My body for example will not stay asleep longer than 5-6 hours. I still go through all the cycles and sleep very well. Actually, If I sleep 8 hours than I occasionaly will oversleep and be tired through the entire day.
I can hear one winged angel in the background as Sephiroth advises his patient on good sleep hygiene.
Being able to speak frankly about a disability helps the mental health of the person living with it. You are more than your sickness Shogo, and having to find ways to work around it to live with it is courageous. You are teaching your children about dignity and perseverance. You are an amazing father, and a wonderful husband, and you are blessed with a family who loves you wholeheartedly, and a team and fan base who only want the best for you. If you need breaks, take them. Your health is more important. We can be patient and wait for content. Thank you for being a part of our lives.
When he can't work on his body, he works on his mind. Absolute legend
Learning that this man has a disease that is literally rotting away at him, Shogo you are in my prayers my friend, I’ll look into the Raynaud’s disease even though I’m not a doctor, stay strong brother, wish you and your wife a safe year
Shogo, let us all struggle together and each find our own ways. Thank you for being so vulnerable, I know how much courage that takes. You set an amazing example.
i have raynaud's, rheumatoid arthritis, scleroderma, and some other conditions, and my raynaud's always worsens when my RA flares. i love your channel and your personality so much, and i sympathise with your suffering and hope your condition improves! a rheumatologist and occupational therapist have improved my condition enough that i am able to resume archery sometimes, but raynaud's is such a difficult to manage autoimmune disorder and so subjective to many things, some days i can't even dress myself.
i'm sending you and your family so much love and support ♡
Same, but with my lupus flares! Interesting how that happens. Autoimmune diseases really are the “when it rains it pours” type.
As a disabled vet who has problems with day to day life as well just remember that which does not kill us makes us stronger. Stay strong and never give up. I have a hard time letting people help me and have to constantly remind myself I am not the only one affected by my disabilities and those who care about me want to help so let them!
So true! I feel like such a let down needing help, but I never hesitate to offer help, and I never feel like they’re weak or less valuable human beings. Thank you. Kindness is twice blessed-once in the giving and once in the receiving. 💕
Thank u for ur service
Stay strong King
Or should l say SHARE your Strength with us, King?
“Remember what doesn’t kill you is what builds your throne!”
- a song I forgot the name of it 😅
Thank you for being an example of a true human being. Much power to you. It is so important to be honest with yourself and others, and carry on together.
I randomly came across your video in my shorts - I was shocked it was you! You served my husband and I at a tea ceremony on our honeymoon, and your experience was one of our favourite moments on our trip. We still talk about it.
I'm sorry to hear you're sick and that you're living with this illness. I hope you manage it as well as possible and continue to be an absolute delight ❤️
Thank you for sharing this extremely personal story. Must have been a difficult decision. My brother told me about your videos and I am glad I followed his advice to watch them. I lived in Misawa from 89 to 91, Okinawa 92 to 96, and Atsugi 2002 to 2003. I loved my time there.
Give this man some respect he i still making vids with his sickness and still smiles
You should not feel bad or guilty for being reluctant to talk about this or reply to questions regarding your health. It is your personal information and is entirely up to you whether you want to discuss it. It was very brave for you to make this video and to share this with us. I wish you all the best and hope that things improve. You are an inspiration, stay positive!
Yes. It is a painful disorder. I had to quit volunteering at a raptor sanctuary because of the cold weather where I live. I've received warm whirlpool treatments that have improved my condition. Diabetes contributed to my condition and it forced me to eat regular meals and increase my hours of sleep. I enjoy your videos!
I had to Google "raptor sanctuary" because to me that sounded like you worked in a sanctuary for flesh eating dinosaurs. I learned something new today 😄
@@AniMin82 and i understood the actual meaning immediately but still have an active imagination on the side. 👍
@@AniMin82 same.
@@AniMin82 me too
I know what he meant but I still pictured you training blue in Jurassic world
Seeing how much your wife cares for you and how you both support one another was so heart warming. I was in Kyoto the 2018-2019 academic year and you reminded me why I liked the city. Thank you also for that, I hope this winter goes easy on you and I wish you all the best!
I appreciate your courage coming forward with this and I'm glad we have the kind of relationship where you can do these things in an open forum and that you can trust your viewers with something so personal. Personally knowing this new bit of information about you does nothing to change my opinion of who you are or how I view your channel, you sir are still Shogo same as you've always been! Also I think you should take into account that many people would look down on themselves for having a similar disease perhaps and allow it to negatively influence their lives little by little until it begins to consume them, seeing someone like you retain a positive outlook and strive to find ways to prevent and cure your disease may give hope to others so thank you for that!
Hope you're OK Shogo. If cold is a problem please come to Australia, you'll love it here and never be cold again.
I'm a new follower and was instantly drawn to your positivity. Now, I really look up to you and Harumi. I'm a disabled veteran with chronic neuropathy and as I type this I'm in discomfort. I see you. Embracing the reality of a condition in public is such an amazingly brave thing to do. I'll be cheering you on and offer wishes of great things to come.
Thank you for your service. :)
Welcome here Rob, and thank you for your sacrifice. He makes great informative videos, and some are funny too.
Shogo. I am talking as someone who has this in family, there are certain things that can help. First - climate. Definitely should move to warmer place, probably seaside. Avoid barometric pressure changes. You have to adopt the healthy lifestyle of sports that promote circulation, for example running will be very good for you. Food has to promote circulation as well, eating spicy food or anything with capsaicin will help.
Read about supplements that people use for tonyo byo (they also have digital wounds because of circulatory drop). Avoid sedentary activities and look for alternative medical treatments (you tried already but keep looking).
I wish you all the best, retain ganbaru !
I hope he either sees this comment or knows about this so that he can get better
@@ashynix228 Yes everyone who reads this should like this.
I wonder if any of the doctors he's seen have told him this, but his whole life, business and family is in Kyoto so it would be very difficult to move. I'm sure he's tried a lot of remedies, he really needs a specialist who has worked with this disease before or experimental medicine that may be able to help when other medicine hasn't
Alternative medicine? Yikes
@@FutureBoyWonder Regular medicine provides limited answers to this. You know what mainstream pharma pushes ? Vaccines to sell. The rare diseases are not profitable therefore they will not bother that much about those.
Thanks for oppening up to us Shogo, you're one of the most wholesome people I know, and honestly your videos have only made me love japanese culture more than I did before. I really hope you get better, we all love you man!
The fact that you sincerely are trying to apologize at the end saying you don’t want it to make you look sad, and stuff of that nature. just laughing through it being so positive truly shows who you are. You are such a great person and I truly hope you and your family continue the channel and have fun as u you do.🙏🏻
Shogo, please don't risk going outside, even temporarily, for videos! Hearing that you would be willing to film perhaps even a few during autumn and winter for your channel broke my heart. I can hear the passion behind your voice when you talk about your channel, your fans, family, friends, passions, etc.. and it's inspiring to hear you maintain your optimism.
As someone who struggles with a lesser known illness as well, I genuinely hope that you are able to continue pursuing your passions.
Yes, he could send out others to do the videos and keep in touch by text or FaceTime. Then he could provide the commentary safely indoors. Not worth damaging himself!
@@jwoolman5 think about it though, would he really want to live like that? what's the point if you cant do what you love... what would you do?
Agree with you, Pyro. Actually, Shogo as Shogo without autumn and winter scenes filmed outside would be just fine.
I knew there was a battle that you were heavily embroiled in, as I mentioned in my letter to you when I sent your gift months ago. I didn't want to pry about the details because I knew that if you WANTED to speak about it, then you would do so. AND, like I said in my letter, as you did as well, we each have our battles. I feel it's important to SHARE them because, "As iron sharpens iron, so one man sharpens another." Your strength and perseverance in this struggle, as I mentioned to you before, will inspire others ESPECIALLY with the size of your platform...this will allow you to inspire even more people. Some people, when they pray for others, pray for deliverance from illness or suffering. However, when I pray for people, I pray for strength for them to endure the lessons life has to teach them...I do this for you often and have been for some time now. You sir, are no less than a warrior of the spirit and you fight VALIANTLY EVERY DAY and I can see it. Utmost respect.../deepest bow
This brought me to tears. What's even more touching is your great attitude! And the support of your beautiful wife... you guys are such a beautiful family. I wish you all the luck and thank you so much for your amazing content shogo.
"In some ways suffering ceases to be suffering at the moment it finds a meaning." -Viktor Frankl, Man’s Search for Meaning
I'd be surprised if you haven't already, but have you seen a rheumatologist? A lot of autoimmune diseases are prone to Raynaud's and are invisible diseases (many doctors turn autoimmune patients away since they appear young and healthy or hypochondriacs). I have undifferentiated connective tissue disease and it took a positive ANA test (a routine screening test) and a lot of pushing for me to get a referral. But with such extreme Raynauds, most rheumatologist referrals would be approved, (at least in the US) since it's such a major key symptom. I had minor Raynauds and that was something that was alleviated through the control of my underlying disease, so I hope maybe this could help in offering a path you might not have considered or known about. I wish you the best!
PSA: Raynauds is often but not always connected with hypothyroidism (in addition to the autoimmune issues). If you have Raynauds, make sure you get your T4 and T3 hormones checked out. It is no guarantee that it will be the reason and "fix", but it's worth seeing if it is.
Thanks for mentioning that, I was going to say similar: my sisters and I get relatively minor bouts of Reynaud's, from autoimmune problems we all have. For me, it's really mostly a big nuisance when I handle cold things, (Since I work with my hands, I've got to be careful of cold metal, I've even got a polycarbonate socket wrench that can stay in the car in winter without becoming a problem. :) ) Anyway, it's possible there's diet-based ways to help, I personally do a lot better if I avoid nightshade plants, which may not be a generally-applicable thing, but I do that anyway cause it makes the arthritis a lot less crippling. (One reason I'm interested in Japanese food is it doesn't rely on so many of those things, lack of tomatoes and potatoes and chilies really cramps my usual culinary style. :) But there could be something Shogo could try cutting out, or maybe getting more of. )
Heh, you beat me to it! I work at a clinical immunology lab, and I can confirm that Raynaud's is often mentioned in the paperwork.
Just want to give this a little push up, It is important to know!
I’m celiac (another autoimmune disease), and I also had issues with raynaud’s as one of my symptoms until I found out what my issue was and went gluten free. I don’t think raynaud’s is a recognized symptom of celiac disease, but it completely went away one I stopped eating gluten.
Definitely worth it to see a rheumatologist!
My mom has this sickness, actually that was the whole reason why we moved from the city I was born because it has a rather cold weather and she was born on a more tropical/hot weather. So we moved to her hometown and thankfully she is so much better now.
yes, moving to a different part of the planet might be a solution as well
@@irinapop6566 Absolutly, for my mom it has been a real game changer
Happy to hear your Mom is healthier! :)
Oh no, I'm actually born on tropical country (from Borneo Island) I already have plans to go to Kyoto about my japanese language course after graduation and I'm scared that I might get it with high possibilities (while my migraines just happen last year with overwhelming pain that I didn't tell my mom about it)
@@ame6318 This syndrome is genetic as far as I'm aware, so if there are no other members of your family that you know have it, it's still a possibility but far less likely that you'll develop it overnight. Also, I'm from Mexico, not Japan so the weather is not the same, but the cold can get close to 0°C where I was born although it never snows but we do have hail and fog, a lot of fog
I know exactly what it is like to have a medical condition where there is no cure. I've had multiple sclerosis for about 20 years now. I've tried to not let it control my life and I am about to finish my 3rd year at university and my hope is to come and work in Japan in 2023. My rule is to live each day as it comes and worry about tomorrow later.
If temperature matters, maybe moving to a warmer climate would be wise. Okinawa, perhaps?
It's a shame you feel guilty about not talking about you intimate private life. Some people on UA-cam feel a certain entitlement to knowing everything about the creators we watch, and it's really not fare.
We all wish you the best and will continue to watch and enjoy your content Shogo.
And I for one hope you find effective treatments for your condition.
❤️
He doesn’t need to explain about his illness.
@@rietakahashi3820 that's what he said
Fair* however, i am going to dig into this, see what the solution could be, i know what a degenerative disease is like, mine has preventative measures, but it's a pretty shitty way to go. However, shogo goes above and beyond, he doesn't deserve this.
I developed Raynaud's because of an autoimmune disease. Thank you for sharing your experiences. I find that using electric gloves helps me not to have a severe reaction as often in the winter.
I love that his wife was cimfortable enough to show her vulnerablitlity to her husband, and shogo remained stoic and supportive, and then they go right back to laughing. I wish them luck on managing the syndrome, but they makebit better with each other. 💜
Love you, Shogo. Great to see your wife too. Keep staying strong my friend!
I would recommend asking your doctors about vasodilators if you haven't yet, since they widen your arteries. Otherwise, I would also see if you can go through a series of tests to find the root cause (it could be a lot of things, like a autoimmune disorder/disease). I wish you the best, sir. Thank you.
i assume he has primary Reynaud’s, when it's caused by something else it's secondary and is just a symptom of something else, but yes, vasodilators is one idea, but it's actually a pretty wide range of medication and there is another option for medication that more specifically targets the symptoms and that would be Calcium channel blockers, they work on relaxing the vessels and making them not close up, there is also a surgical treatment that if successful can effectively cure it, but it's also not ideal, and lastly there is also local anesthetics being injected that can sometimes work
@@tomykong2915 it's likely it could be secondary. He didn't develop symptoms until later in life, which is common w/ secondary. And secondary reynauds tends to be more extreme and severe like his.
"At least 5-6 hours of sleep. Most of the time"
And here's me sleeping at least 8-10 hours, sometimes even up to 14 hours.
You probably don't have kids :)
Wow... I've had Raynauds my whole life and I've worried about this before I know I'm months late to this but I've only just discovered your channel and my heart goes out to you man.
All the best in the world you and your wife seem like some wonderful people to get acquainted with.
Thank you for keeping me company❤❤❤
It's so nice to see you two supporting each other as family. I hope your sickness can be controlled and not get worse anymore. I also live with an autoimmune condition, and have now accepted that my sickness is dynamic, and my normal is different from other people's normal.
5-6 hours of sleep?! You might be getting more than others but that is dangerously low especially for prolonged amount of time you should be aiming 7-9 hours worth of sleep a night. Maybe not rule out the lack of sleep as the issue just yet.
Also great attitude for not being a victim of your disease and still perusing goals cause of my disability I've been put into groups that talk about themselves and some people have such defeatist attitudes and it's saddening and I'm certain there aren't any people out there who are disappointed in you for this.
This! If you forgive me the generalization, I think you should consider that using the Japanese “definition” of stress and of adequate sleep might not be the correct way to measure those things. You might not be stressed or sleep too little in “Japanese terms” but that doesn’t necessarily mean that’s what your body considers it.
Thank you for being open about your condition and I’m very sorry you’re dealing with something like this.
Incredible human being, I would have given up a long time ago. I'm struggling with a long lasting illness as well, am in a lot of pain and thought about killing myself many times. You gave me the strength to push through and find joy in life, wherever I can. Stay amazing Shogo
Stay strong dude. 🙏
Please don't give up. I'm so sorry you're dealing with so much.
i am proud of you man, keep going strong
I love you, brother. I hope you're doing ok
Keep fighting brother keep fighting. I wish you all the strength in the world.
Stay strong dude, you're still awesome no matter what!
Thank you for sharing these deeply personal struggles. I am sorry that you are forced to deal with this frustrating disease. Your videos on Japanese culture are insightful, educational & entertaining. It's obvious you put considerable time & thought into creating them & they are deeply appreciated.
My brother suffers from this illness but his isn't as bad as yours. Although like you its a mystery where his came from too. I only found your channel recently and I'm commenting on this video late but I admire you for coming forward like this and for still making content despite your illness
another comment suggested an autoimmune disorder as an underlying cause for their renauds that when addressed alleviated the symptoms , eg. an allergy to certain kinds of food , though there are a lot of others besides that kind , it may be worth suggesting to have looked into if it never has been so far
@@Marcusjnmc in my case that's accurate. I had reynauds since I was a child, and it went away after I learned that gluten was making me sick and I went on a gluten free diet. Changing my diet also ended up fixing other issues I didn't know where connected. My case was also more mild than shogos. For me, when I touched something cold or went outside my fingers would become stiff and numb and start to turn white, then when I came inside they would become swollen, red and itchy. I haven't experienced it in a couple years now.
I have Raynauds secondary to lupus, you’re not alone and you are so strong & brave for opening up about this and for still being so dedicated to your swordsmanship
I know several people who have both diagnoses. Strength to you!❤
you are still beautiful 🥺 inside and outside! ❤️ i wish you and your family all the best!!! 🙇🏼♀️🌺 take care! first and foremost we care about your health. please don’t damage/hurt yourself to make videos.
i had necrotic tissue too after a surgery, it was a nightmare!
You can also tune it to NCCG every Sunday. There are so many people those who were healed from any kind of diseases which the doctor mentioned that's impossible.
Shogo the spring samurai, cursed to seal away his sword in the wintertime lest he lose his fingers. Can’t imagine the fear of losing your extremities. I have enough issues with losing feeling in my legs due to circulation issues from long work hours. Good on you dealing with your condition as well as you have so far. ^^
Wishing you luck for this winter! My grandma has a bunch of health problems that only get better in warmer weather. She's been considering moving to a warmer place. If that ever becomes an option for you take it please. Your health comes before the channel!
You have my full sympathy, and I understand your positive attitude: realistic but not depressed.
I also have a chronic condition that limits what I can do, but like I just see it as my life. I find workarounds when I can, and live with what I can’t do.
You are especially fortunate to have your wife by your side to help and support you. All honor to her. I wish I were as lucky in that regard.
My sister was diagnosed with Scleroderma and her first symptoms were bluish white fingers when exposed to cold. Her condition is stable now and we hope there will be improvement or at least no further damage. I wish you the best. ❤️
Honestly, part of me was hoping that you meant "being sick" as a figure of speech for something unrelated to health but now I've gotta say thank you for being brave enough to open up and talk about your hardships in life. On one hand, I bet that it took a lot of courage to upload this kind of video but in the other I'm also sure that probably took a lot of weight of your chest not having to hide it or evade the topic anymore.
We understand and want to let you know that learning about this side of you doesn't make you any less of what you are. You'll always be the most cheerful and hardworking UA-camr that I've ever known, and now knowing what you've been through I think it makes you even more of man for never losing spirit.
Thank you for everything you've done up until now and I hope that you achieve even greater heights in the future. You're truly the GOAT.
"You, me, or nobody is gonna hit as hard as life. But it ain’t about how hard you hit. It’s about how hard you can get hit and keep moving forward" - Rocky Balboa.
I see this spirit in you Shogo, a spirit of a fighter, a samurai
Thats how winning is Done. Yep I remember this line. This fits well in here.
"One million subscribers by January 2023" yep. I'm here in April 2022, and there you are. You're an extremely positive person, and I wish you all the best moving forward.
You may be sick, but you're still the man we know and love
As someone with an autoimmune disease that also has gone beyond “the book” so to speak, thank you so much for sharing. It can be really frustrating to have people say it’s not a big deal, or easily fixable etc because you’ve definitely done as much research as possible, tried everything, and there’s also a massive psychological, social, and emotional aspect.
But learning to deal with it also comes with an incredible inner strength and maturity which really comes through in this video. Thank you for posting, it was really empowering and made me subscribe after seeing your videos several times in passing.
Please check sites like stuffthatworks and reddit communities. In most cases from my experience (having a fairly rare unexplained syndrome, probably two) the ones who have it know more about triggers and causes than Doctors, who mostly have no experience with them at all.
If you have AIDS thats because of YOUR lifestyle choices
Would You Believe if I told you I moved to a different country for treatment but am being academically bullied by one old man to Move back to my home country in the middle of my treatment?
I relate to this as well. It took years to understand my triggers, everyone is different. I've created my own normal, my own way to enjoy life. Happy to see he's found a way to live with his disease and still able live life. There can be really bad days that are hard to get through but each time you learn how to manage. Wishing for the best for you as well! ❤
Your wife is a strong woman kudos to her. Give her a hug for me, she deserves to be upheld, honored, and respected. I hope others can see her example and follow her.
Brother shogo your always accepted here! Thank you for sharing this with us! Get better my friend!
Hi Shogo. I saw your video when it came out a year ago. I was in hospital with a staph infection that almost killed me. I was recently diagnosed with lupus. I just thought about this video. You’re very much an inspiration to many of us.
i hope you can get better quickly! 🫶
You do not have to apologize for keeping this from us for so long. It’s completely understandable why you did and I’m so sorry to hear you struggle with this disease. You are so brave for sharing this with everyone and still continuing to train as well. Much love from America, and thank you for continuing to make these videos for us regardless! ❤️
I remember almost asking about it.
That said one woman at work had it for years. She worked with gloves because for her it seemed to surge more when it was cold. And since the store has the air conditioning she would wear gloves and it would help her a lot. Not sure if that could help you as well. I sure hope it will! It's interesting how not well known this sickness is, despite how early it's been described...
Take care of yourself, Shogo! We love your channel here.
-Remmy
I can't imagine how difficult this must be to experience. You have a beautiful family, who obviously loves you very much. I hope that you soon find some kind of relief.
Shogo, be strong. Every Superman needs his kryptonite. You'll find a way.
Thank you for sharing this, I was assessed with severe Dyspraxia as a teen, I can never drive a car, shouldn't ride a bike, don't know my own strength or how badly I'm hurt. Invisible disability can be frustrating. I am glad to see you participating in your passions to the best of your ability with dignity.
Shogo, this was a very revealing and poignant personal item. Your decision to share this openly, to continue training in Budo, and making videos is inspirational. Thank you.
Shogo, I'll be praying hard for you and your family. You and your family are a ray of sunshine in this world.
I have it too, but not as severe. In my case it came from getting many chemo therapies that damaged my nerves. It is very impressive how you deal with this to me, because even my lesser syndrome is already extremely painful, I really can't imagine what yours must feel like. I wish you the best, and thank you for showing me your beautiful culture!
Him: "Stress causes this sickness to act up"
Also Him: "Let's make a video about it."
100% Going to say right now, you are an awesome person. This isn't because your sickness, just about the fact you can share and help everyone understand the awesome culture that you have. I love the culture and for people like me who cannot practice it, as it is seen as dishonorable, attention seeking, or prejudice and disrespectful, it is awesome. I will say I am sorry to hear about your sickness and it actually hurt to hear that someone has to go through something like that. Thank you.
This video might have reduce stress. Lying to his audience - keeping his personal business private shouldn't be consider lying, but he does - was stressful.
Hopefully this helps him slow down the progression of his disease.
Raynauds is also hereditary. My mother has it, I have it and my sister has it. And we are not smokers or deal with stress.
This is the first I had heard of such an extreme case. I am sorry that this is happening. It’s painful as it is in a normal case. But I can’t imagine what you are going through. My thoughts go out to you.
Truly inspiring
Always loving you guys through thick and thin! Will always continue to support you guys!
My friend, sometimes these diseases have no reason. A genetic hiccup probably, but it is no fault of yours. You’re brave and strong for making this video and pointing out something I’m sure gives you anxiety and Insecurity.
I wish you all the best in finding a suitable treatment, and I hope that these comments full of love and admiration will help keep you warm during he winter!
Wow seeing how much Shogo's wife supports him at the end, I just want to say that you are not alone and that there is a whole community of people with disabilities if you choose to join it or identify that way. These are people whose body functions different from the "norm" and have to go through life in different ways, it can provide a great sense of comradery.
because she is seeing a big pay check coming soon.
💌 Respect!
Immense respect for sharing this with everyone and hope for the best for you.
Yet no one would have known had you remained silent. Yet you share this with us your growing family. Your being open about this speaks volumes.