All parts of the body work together and influence each other. I had trouble with my gait and went to neurological physiotherapy, and it has been very helpful.
Self understanding and acceptance.....very important concepts. We don't have to like it or enjoy it. Just understand that it's not our fault we have MS or are no longer able to do certain tasks. We still need to love ourselves and be with others who love us.
Hi Seb!!! I am a first year rehab assistant student from Vancouver, Canada and my professor showed us your MS video during online lecture. You are so inspiring! Sending lots of love from the other side of the world. :D
Over a year before I got to the state of needing a right hip replacement my massage therapist recommended I get a "gait analysis" and I found out they are about impossible for an adult to get. They are available in pediatric care but not adult. Very odd and very needed! Apparently I was having foot drop affect my gait before I noticed it and this gait imbalance (and a flat foot on the right and then a dislocated big toe) all compounded to require a hip replacement. Little things add up and when they aren't corrected can have this sort of major impact! Now I have noticed that when I am seated against a wall I can not raise my right foot from the floor...but can raise the left! I have found I can bend the knee and draw the foot towards myself...but it is hard and tires easily. That has now been added to my workout! a little self assessment I had and something I think I can do to improve it while I can't get into my PT guy as all offices of that sort are shut down and we are pretty much staying home trying to shut down this virus... Take care- thanks for the recommendation-
Hello Brother Seb, I am a 44yr male from Uk diagnosed with Primary Progressive M.S. first Diagnosed in 2008 but symptoms started in 2003 just as I graduated from university. Now I walk with cane but I know what you mean about running. My gait without cane is same as a drunk or drugged person. I too became too tired just from walking..... Get better from covid19 stay safe bro.... 🤜🏽❤✌
Sometimes I feel like just stepping up or down has become a chore. I literally have to mentally prepare myself to just attempt the action of lifting my foot.
id love to switch with family or friend just to walk a mile in my shoes as the saying goes some days i do not feel presant other days someone could be standing in front of me talking and i can hear what is said and see the mouth moving but the person is out of sync i also do not run for fear my legs will give out and even walking can cause my fee to give out but like you i am strong and i have beaten so many odds
My knee was killing me and I mentioned it to my physiotherapist. It turned out my left leg was getting weaker and weaker and my body was compensating. The reason it was getting weaker is it hurts me and I had shifted my weight to the right leg. Had to learn walking properly again - now I do it even if the left leg hurt - I just take a short break. Thx for video. Keep on going :). P.S. I'm taking swing lessons starting tomorrow. They are online and they started last week, but I had hardware difficulties :=. Wonder how will it go with those legs, lol.
@@diceydaze dunno. Probably spasticity (definitely more tense then the right, in both legs muscles twitch constantly - I don't have the clip I made of it on yt). It doesn't matter how long I sleep, when I go to bed and when I wake up :=. But pressing spots near my left heel, that my physio's shown me, helps a bit to relax the leg.
My partner had MS and he has to wear a brace on his ankle to stop his “foot drop” but as he gets warmer his symptoms get exasperated so he loses coordination and stumbles. He can’t go far before it happens maybe a km so yeah
Oh my god that is the first time I hear about someone who goes through the same process. When I told the doctor about my foot drop after 1km they were like “isn’t that just cause you get tired?” Thanks for sharing bro and best wishes to you and your partner xx
Life of Seb yeah it is really just how hot he gets really. The brace is secured around the ankle then the rubber tubing is pulled over a hook that is tied in the laces of his shoes
@@ianchapman-hall4961 The gal I used to see for PT had recommended I try this and got me one but I really didn't like it. I had to strap it so tightly around my ankle that it seemed to impact the tendon behind the ankle and not allow normal foot movement. Due to this I got an AFO of pretty flexible plastic. I got the Swedish one that a PT helped me select and used it for months but it seems it allowed my shin muscles to atrophy www.ebay.com/itm/DROP-FOOT-SPLINT-SUPPORT-SWEDISH-ORTHOSIS-AFO-POSTERIOR-LEG-ANKLE-BRACE/171646121560?hash=item27f6e7f658:m:mL1sSn2V5D7EFvGChL0ZLPQ I am now hoping to get approved for the L300 Go FES device as that helped me walk the best and I think will keep the muscles working and therefore strengthening the more I use it. Insurance is declining my request, however. Amazing that they pitch out hundreds of thousands of $ for DMTs in the hopes I can keep walking but not a few thousand to ensure that I can...
It's Crazy I Hear So Many Ppl With MS Struggle With Heat, Me It's The Cold Like My Body Literally Locks Up On Me & Have Me Feeling So Stiff But The Heat Doesn't Trigger Me At All
😞I’m trying to understand my disease but everything I’m doing naturally hurts my body I have always worked out 7 days a week vegetarian and I’m still jacked up 😫
Curious if you are doing the Dr. Wahl Protocol? I’ve started it a week ago and my fatigue is already greatly reduced but my gait is off so I’m going to try PT with e-stim to see if that helps.
![Multiple Sclerosis Diagnostic Criteria [Neurologist Explains]](/img/n.gif)
Ms diagnosis since 2018m you couldnt have explained it better. 🏃♀️👏
🧡🙏🏻
Stay STRONG Sister
❤
All parts of the body work together and influence each other. I had trouble with my gait and went to neurological physiotherapy, and it has been very helpful.
Thanks for sharing 🧡🙏🏻
Self understanding and acceptance.....very important concepts. We don't have to like it or enjoy it. Just understand that it's not our fault we have MS or are no longer able to do certain tasks. We still need to love ourselves and be with others who love us.
Hi Seb!!!
I am a first year rehab assistant student from Vancouver, Canada and my professor showed us your MS video during online lecture. You are so inspiring! Sending lots of love from the other side of the world. :D
Thank you for sharing!! It’s deeply humbling to know that my videos are being shown out there. All the best xx
Oh wow only seeing this now! Thank you for your comment ☺️🧡
Thanks so much for sharing. I’ve been I denial and coming to a place of acceptance and self compassion.
Stay strong 🧡💪🏻
Over a year before I got to the state of needing a right hip replacement my massage therapist recommended I get a "gait analysis" and I found out they are about impossible for an adult to get. They are available in pediatric care but not adult. Very odd and very needed! Apparently I was having foot drop affect my gait before I noticed it and this gait imbalance (and a flat foot on the right and then a dislocated big toe) all compounded to require a hip replacement. Little things add up and when they aren't corrected can have this sort of major impact!
Now I have noticed that when I am seated against a wall I can not raise my right foot from the floor...but can raise the left! I have found I can bend the knee and draw the foot towards myself...but it is hard and tires easily. That has now been added to my workout! a little self assessment I had and something I think I can do to improve it while I can't get into my PT guy as all offices of that sort are shut down and we are pretty much staying home trying to shut down this virus...
Take care- thanks for the recommendation-
Stay strong 🧡💪🏻
Hello Brother Seb, I am a 44yr male from Uk diagnosed with Primary Progressive M.S. first
Diagnosed in 2008 but symptoms started in 2003 just as I graduated from university. Now I walk with cane but I know what you mean about running. My gait without cane is same as a drunk or drugged person.
I too became too tired just from walking.....
Get better from covid19 stay safe bro....
🤜🏽❤✌
Be strong brother 🙏🏻🧡
Sometimes I feel like just stepping up or down has become a chore. I literally have to mentally prepare myself to just attempt the action of lifting my foot.
Thank you for the encouragement
🧡🙏🏻
id love to switch with family or friend just to walk a mile in my shoes as the saying goes some days i do not feel presant other days someone could be standing in front of me talking and i can hear what is said and see the mouth moving but the person is out of sync i also do not run for fear my legs will give out and even walking can cause my fee to give out but like you i am strong and i have beaten so many odds
Yeah it seems like some in my world dont understand they say sometimes what's the matter?
I can run on a tred mill the bars help with balance the yoga helps me more than anything stay safe Seb ..
You too buddy!
Thanks for sharing 🧡🙏🏻
@@LifeofSebMS 2 long years have passed since ive shared hope ur doing well 😊
You are a beautiful person. Thanks for sharing.
Thank you♥️
Thanks for watching 😉🧡
My knee was killing me and I mentioned it to my physiotherapist. It turned out my left leg was getting weaker and weaker and my body was compensating. The reason it was getting weaker is it hurts me and I had shifted my weight to the right leg. Had to learn walking properly again - now I do it even if the left leg hurt - I just take a short break. Thx for video. Keep on going :).
P.S. I'm taking swing lessons starting tomorrow. They are online and they started last week, but I had hardware difficulties :=. Wonder how will it go with those legs, lol.
How does your leg hurt sorry? Does it get worse with insomnia?
@@diceydaze dunno. Probably spasticity (definitely more tense then the right, in both legs muscles twitch constantly - I don't have the clip I made of it on yt). It doesn't matter how long I sleep, when I go to bed and when I wake up :=. But pressing spots near my left heel, that my physio's shown me, helps a bit to relax the leg.
@@lastanetaarion sorry dude
You keep on going too! Your story is so inspiring!
I have been unable to walk or make my legs move forward for two years. I hate the wheel chair and Medicaid wont pay for therapy.. any suggestions ?
Cool are you unmatched videos are popping up. Hip hip hooray.
Sorry?
My partner had MS and he has to wear a brace on his ankle to stop his “foot drop” but as he gets warmer his symptoms get exasperated so he loses coordination and stumbles. He can’t go far before it happens maybe a km so yeah
Oh my god that is the first time I hear about someone who goes through the same process. When I told the doctor about my foot drop after 1km they were like “isn’t that just cause you get tired?” Thanks for sharing bro and best wishes to you and your partner xx
Life of Seb yeah it is really just how hot he gets really. The brace is secured around the ankle then the rubber tubing is pulled over a hook that is tied in the laces of his shoes
@@ianchapman-hall4961 The gal I used to see for PT had recommended I try this and got me one but I really didn't like it. I had to strap it so tightly around my ankle that it seemed to impact the tendon behind the ankle and not allow normal foot movement.
Due to this I got an AFO of pretty flexible plastic. I got the Swedish one that a PT helped me select and used it for months but it seems it allowed my shin muscles to atrophy www.ebay.com/itm/DROP-FOOT-SPLINT-SUPPORT-SWEDISH-ORTHOSIS-AFO-POSTERIOR-LEG-ANKLE-BRACE/171646121560?hash=item27f6e7f658:m:mL1sSn2V5D7EFvGChL0ZLPQ
I am now hoping to get approved for the L300 Go FES device as that helped me walk the best and I think will keep the muscles working and therefore strengthening the more I use it. Insurance is declining my request, however. Amazing that they pitch out hundreds of thousands of $ for DMTs in the hopes I can keep walking but not a few thousand to ensure that I can...
It's Crazy I Hear So Many Ppl With MS Struggle With Heat, Me It's The Cold Like My Body Literally Locks Up On Me & Have Me Feeling So Stiff But The Heat Doesn't Trigger Me At All
🧡🙏🏻
😞I’m trying to understand my disease but everything I’m doing naturally hurts my body I have always worked out 7 days a week vegetarian and I’m still jacked up 😫
Probably jacked up cause your a vegetarian!
Hello from USA -thanks for the vlog. Stay safe & hopefully the shut down soon be over.
🧡🙏🏻
The other day I TRIED to skip….did not end well. 🙄
Curious if you are doing the Dr. Wahl Protocol? I’ve started it a week ago and my fatigue is already greatly reduced but my gait is off so I’m going to try PT with e-stim to see if that helps.
Oh wow, do keep us posted on how things progress with the wahls protocol please!
Duck Feet 😩 Before Being Diagnosed With MS I Use To Say I Felt Like I Was Walking Like A Penguin Like My Feet Were Flapping Around
😖🧡
That's how I feel like I have snow shoes on or something.
Im still on denial. I cant accept this for me.. tears😢😢😢😢😢😢😢
My bad balance has slowed me down
How can I contact with you😔
I love ur relationship with ur friend ❤🌈🌈
He’s an angel!
@@LifeofSebMS ❤❤❤
i lost full motion of my knees. nothing helps
😞🧡