'You Don't Look Disabled' | Fashioneyesta
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- Опубліковано 12 вер 2024
- Greetings Everyone!
Todays video is going to be one of those videos where I sit down to discuss another topic relating to disability. And today I wanted to shed light on the disabilities that are not necessarily seen, but are still there.
This video is not intended to insult or offend anyone, it is simply a video to discuss misconceptions that surround unseen or invisible disabilities like mental health, illnesses, learning difficulties and cognitive disabilities.
Please Note: This topic is meant to be a discussion and I welcome anyones opinions so long as they are NOT discriminatory or offensive to anyone. Any comments that I deem that are so will be removed.
But any comments or questions I welcome (smiles.)
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• Talking Disability
What I am wearing
Dress-Willow Pattern Shirt Dress Primark
Navy Headband-New Look
Earrings-Accessorize
Lipgloss-Tanya Bur Picnic in the park
Music: www.bensound.com
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When I'm not using my guide dog, I use a hot pink cane! People always say "you don't look blind!" I always just ask "what does blind look like?"
Exactly! Truer words were never Spoken :)
Some people think you have to have pure white or cloudy eyes to be blind
I think your guide dog is black otherwise I would recommend dying her (safely) pink too XD
Susan Williams Her guide dog is a yellow lab.
Danielle Dewitt no, molly’s guide dog (named gallop) is black with white markings
My friend is legally blind and she has good days where she doesn't need a cane and some days she does. It is so annoying when people say oh you don't have your came you can see again? No! Loved the video.
OMG YES! I once went to the fish and chip shop with my mates and the guy in there was like 'You can see! You have not cane now!' and I was like Nope sorry to disappoint now can I have a portion of chips please :) Glad you liked the video
fashioneyesta I ordered the other day some green fishing hologram stickers to cover the horrible red part of my "selfie stick" so I donʻt actually feel too self-conscious when I need to whip it out. And thereʻs also Kustomcane - eeexactly: why have a boring white cane?
Unuhi Nuiʻi Exactly! Its funny you should mention this as that is what my next video is about :D
I'm half blind have ADD and right sided hemiplegia but I look normal so I get called a liyer or people say I'm fussy or clumsy but I have those conditions and I have asma lymphangioma and circumscriptum.
Thank you for making this video and spreading awarness for all of the invisible illnesses out there. I have a genetic disorder called Ehlers-Danlos syndrome. It is a disorder that affects your connective tissue through the body and can cause dislocations of joints from just walking, as well as many other umbrella issues to go along with it, since your entire body systems are made up of connective tissue it affects joints,skin, organs...pretty much everything. Connective tissue is on the inside, and although Im only 29 and may not look disabled... I am. Someone last week left a note on my car that read "you don't look handicapped to me. Shame on you". I was having a good day that day, out to buy supplies for a new puppy, spending time with my kids... and then that happened. People can be so narrow minded and ignorant. They don't stop to think about how... if they are wrong.... how that could negatively affect someone who is already struggling.... already suffering. People shouldn't have to watch this video to get this concept, especially this day in age... but my note is proof.... stupidity is out there everywhere. So thank you for the awarness
Such a great video! I often get people asking me if i'm actually visually imapired. I mean i wouldn't lie about something like that! After i uploaded my video about being visually impaired someone asked me if it was true! I wouldn't make a video about it if it wasn't true!! It's like people expect disabled people to look a certain way or to be different to everyone else. Which i think is totally wrong! The fact that we are disabled doesn't mean that we are different to anyone else in this world it just means that we need a bit of extra support to get through our day to day life. Congrats on 400 subscribers again Emily! You deserve it 💗
Its such a shame that this still happens in todays society, I can't believe someone actually had the cheek to ask that! Glad you liked the video though and thank you so much I'm still quite shocked that people keep subscribing to me :)
I rode paratransit two hours in the morning to work and almost two hours home one day last week. When I drove, it would take about 20 minutes to get to work I often carry three different tinted sunglasses and a white cane.. Every once in a while, someone will ask if I’m blind, and I answer vision impaired and legally blind in one eye. I wouldn’t wish this on my worst enemy, I have really good days with vision and then some that are not so good. I don’t mind people asking me about my vision, but when they treat me like an imbecile and wonder how I can work.
Wow I can't believe I haven't found you before! What you said is really inspiring and I wish others would listen to the way you have perfectly put this. I have Ehlers-Danlos Syndrome, a connective tissue disorder, but it's a invisible illness. I have to use a wheelchair, walking stick and crutches. I get a lot of people say stuff to me, and it gets me down, but it's nice to hear how you have put this point across and I respect you for it x
Thank you for the shout out for Epilepsy! I have Epilepsy and it is not often mentioned when people are talking about disabilities, which can make you feel like your disability doesn't count. Loved the video! Keep up the great work! :)
I'm glad you liked my video and I always try to mention as many different disabilities where possible to educate people about all different ones. Let me know if you have any suggestions or any questions for a Q&A :)
I am so glad you are getting that message out there. I think it is terrible how people can treat disabled people.
I would also like to add, this also applies to learning disabilities aswell, I am Dyslexic and when people give me grief for not understanding something, not reading books getting extra help or extra time to finish tasks, it's so frustrating because it's not a choice that I get that I need extra help to do certain things and just because I seem like I don't need help, if I feel I need to use it, I need to do that (which I don't most of the time, because I want to do it like everyone else - I have also never shared that on the internet, but I think I should share this information more often when needed or to help others.)
But all in all amazing video and I am so glad at everything said in this video!
LifeIsYourInstrument I'm glad you found this video useful and that it was relevant.
I totally get where your coming from and thank you for sharing your story with us I am glad that this video made you feel like you could and I'm sorry to hear people treat you that way. Things need to change for the better :)
This video is brilliant, you hit the nail on the head! Congrats on 400 subscribers Emily! xx
A totally relevant discussion. I got that a lot after I started using a cane even though I should have had it all along which I told people. I also have some medical concerns that are pretty significant but that aren't as easy to spot and when people hear about it they often say but you don't look sick.
I'm sorry to hear that you get these comments it sucks that people in this modern day and age still have these ideas towards disability. But that's why I wanted to make a video on it so I'm glad you liked it :)
fashioneyesta It doesn't bother me, really. I take it as a chance to educate people, too. It just takes time to explain. That's why I love your videos! Hopefully a lot of people will watch and learn.
Great job educating people! A lot of disabilities are not as visible as mine is for sure. First time viewer. This video was great. You are beautiful.
Thank you so much x
This is so true! I've got Wernicke Encephalopathy Syndrome & I have a nystagmus too!!! I can see fairly well I just have very poor night vision & for some reason can't drive (within the last 6 months that's happened) but Wernicke effects more than just my eyes, it effects my brain & makes my memory bad as well as makes me tired all the time. "Disability is bloody hard" is SO true! Thanks for helping people understand.
when someone tells me I don't look disabled i tell them I can not see there brain so they must not have one, and when they tell me that I am to young to be disabled , I tell them they are to old to get blown up by a mortar, usually after that they tell me that does not make any sense but then they as me my age thinking i'm only 20 and they are shocked when I say 39 then they always shut up after that. people never expect those responses when they accuse me of faking my disabilities. and people seem to think that I am some sort of drug dealer just because I have to were blue filters in my glasses and park in a handicap parking space. or they think i am on drugs because I end up walking into things because some of my peripheral vision is gone. anyways your video does make a great point and more people need to understand this.
I HATE WHEN PEOPLE SAY THAT! You tell them.
+Anastasiya Andreyeva I know right! so annoying
Thank you!!!! I have been looking for a visually impaired youtuber, and if you have any suggestions to others with low vision or some of my conditions, please tell me about them. I have Acromotopsia, Ocular Albinism, and Cataracts since birth, but I just found out this year. I am sixteen, I will never be able to drive. Most people don't understand, that I can use large print and small print on different occasions. One person, broke 3 of my page magnifiers and my prescription sunglasses. Thank you for understanding, that you don't need to look a certain way to be visually impaired.
Oh gosh, I have so many conditions, some of them are complicated. One of my main ones currently results in my getting dizzy and sick if my heart rate rises; and being so super sensitive to light that, despite having reasonable visual acuity I have to live in the dark. Out and about I am vision impaired due to the amount of light I have to block out, and outdoors I'm a cane-travelor (bless the new zealand blind foundation for taking me under their wing). I also have visual disturbances that I see all the time. I am also socially anxious, constantly fatigued, Autistic and I get panic attacks.
All of this adds up to not wanting to fumble my way through shoving crowds up flights of stairs between uni lectures, so I use the disability lifts to go up the 1 or 2 floors I need. Everybody turns their heads away from me within a 3 foot radius of that lift, even if they are disabled themselves. I'm overweight and I don't 'look disabled', I know what they are thinking.
i had this on the bus too i sat in the disable area of the bus i was in alot of pain that day i could bareley sit up so admittedly i wasnt in th mood a lady walkd up and said i coudltn sit there im not disabled i told her i was she scoffed and walked (with few issues actuallly) to the bac of the bus , i have ehlers danlos syndrome my joints dislcoate daily i have chronic pain i am also fed via a tub due to my digestive system not working , on this journy i felt so unwell i had to take medication which meant popping it down the tube (nothing shows as its a long tube so it was just a seringe and some water , it was either do that or get off the bus to throw up ad wait for the enxt one which was an hour wait , when i was oing my meds the lady walked passed and apprently the lady gave a look but didnt appologise , i dont know why people think they have the right to accuse people lke this , theres no look to disability , i also gt this when i take my wheelchai out , my chair is for long distances so i can stand and i can walk for short periods when i stand from my chair or get out of my chair for some reason ive had commented like 'where the person your pushing ' and 'are you jst being lazy' its hard but i wish people knew not everyone in a chair is totally unable to walk infact most pople in them can have some sort of mobility out of the hchair even if just standing i wish more awareess was out there
So sorry to hear you've had to deal with people like this :( I always say you don't know whats going on in a persons life and thats why I get so frustrated when people make assumptions about people not 'looking' disabled. Sometimes I think people just seem to go out of their way to send out bad vibes into the world, which is so not what we need. Sending you lots of love xx
thank you so much and so true some people just look for issues x
The black people in my area (Chicago) are much worse. If you sat in a disabled spot, and even though you really need to use it, if they don’t see you as being disabled they’ll practically throw you out of the chair or get up in your face. I have autism and major depression and there are days I cannot stand on a crowded bus or sit in the back / middle. I remember one time I was not feeling well AT ALL and I was out of it. This bus driver got up and shook me (which really got me very agitated and almost made me have a meltdown) just to have some old lady with a cane take the seat. However, there were others sitting in the disabled seats and yet she made ME move. But because I have a hidden disability, and if I tried to explain I’d probably get harassed or worse, I just get up and move to avoid conflict.
Fashioneyesta people just want a reason to be violent. It’s not out of generosity, they’re life is miserable so they try to find a justifiable reason to mess with someone.
Feeling the same, also visually impaired, love from Germany :)
+nineu313 back at you from England :)
I have just losted my eye sight and I listen to your youtube video's and you made me happy and not give up and because of your video's on UA-cam i asked my friend if she would be my eye's and sighted guide and take me exploring 2 abandoned buildings last night and we went exploring and I just like to thank you for inspiring me not to give up and to live life to the fullest with sight loss thank you so much
This is an old video, but I wanted to say, the amount of people who tell me that I'm too young to have a disability, or I don't look disabled, or the classic "that's not a real thing!" Like no. I'm 13, and I've been dealing with chronic pain since I was 6 and a half, but problems with my joints my whole life. So I've had a huge amount of people tell me I'm faking throughout the last seven years, and saying that to an 8-year-old is not okay. I'm embarrassed to speak out abouy disability and would never use a lift or a disabled seat unless I absolutely have to. The systematic ableism of our society is harming people, and it needs to change.
I am new to this. I have not been assessed yet so I don't have a cane. My boyfriend was helping me walk in the high street when a random stranger blocked my path, laughing to his friend saying that nothing is wrong with me. It was very upsetting. I wish more people had better understanding.
+DDonSon1 You can get some really insensitive people and I know it can be really upsetting. But, those people are the ones who are worse off because they choose to remain so closed minded x
Disability is not inability 💕
Love this video! I totally understand
So pleased you like it :)
Years ago my mother and I went to Costco for a grocery run. I haven't hydrocephalus and am weak on my left Sid, so I borrowed one of the store's scooters (This was well before I went legally blind). I also tend to be overweight so the scooter does really help.
We were finished shopping so I went to the car with Mom; as I was helping be lose a high stuff, a lady tan to me and remarked, "Hey, asshole, if you backed off of the junk food and got healthy, you wouldn't need to STEAL the scooter from the SCOOTER EAL disabled Prime pole who need it more than you do!" (Her emphasis)
I turned wround, held back y anger as hard as I could, and asked, "Excuse me, have we met?" She started to say something else, but I cut her off: "I am disabled, we have the placard to prove it. Do you know what hydrocephalus is?"
"No, but..."
"Put tour hand on the left side of my neck. What you're feeling is the shunt that's keeping my brain from destroying itself. Yes, I'm fat, but you font get a shunt or a placard just for giggles."
"I..."
"Yeah, I know. Maybe if you didn't jump to o conclusions so fast, and AEKED why I nerd the scooter, you wouldn't have a o attack people in public. Which is what you're doing."
I deal with this daily it is frustrating my cerebral palsy is not visible but when people get to know me they understand
***** It does get so frustrating especially when you think of the amount of invisible disabilities that there are
I'm on SSI SSDI and I've just recently been diagnosed highly possible autistic and already been told things like "go to work your not that bad off" or "oh so now your autistic"
I have epilepsy. Had a seizure friday night. Cut my head so they glued me back together also got a big bump on my head. So yes my head is hurting alot but they said it would. I once had a lady not too long ago when I was waiting for the green man with my friend a lady crossed and as she passed us she stopped and said you can cross now love, I said thank you but I will qait for the green man to be safe and she smiled and said ok.
I have a completely blind friend who has managed to trick me into thinking he could see on two or three separate occasions. Both were times when I hadn't been around him for a while and he is so skilled at everything he does that even I'm baffled. He's blind, but other than the cane he doesn't look like it. If he had no cane you wouldn't be able to tell he has no vision. So yeah, you can't rely on people looking blind at all.
Totally, I'm the same in my family they usually forget i'm blind because I'm so confident and the way I act. So when we go out and I use Unity or can't see things in the dark they are baffled because thy forget I can't see. So as you say you really can't rely on people looking blind.
I have optic nerve hypoplasia and it only affects my left eye (completely) but I feel the exact same way as you.
One of my hobbies is photographing Victorian houses. Occasionally, I get, "What are you doing with a camera and a guide dog? I explain that looking through a camera lense is far different from crossing the street. Half my pictures have part of the house cut off, but I generally get a good one of each house. You are so funny. I'd love to have a conversation with you some time. Are you on Facebook?
+Shelley Magnussen I KNOW RIGHT! Finally another photographer who gets it, I'm a nature photographer and I always here people saying 'how can she do that if she's blind?' and I say the same thing that looking through a lens of this power makes it possible for me to be a photographer. But, they still don't buy it. I am indeed yes :) Shall I look you up?
I did agree with you 100%
Hi I had three massive strokes when I eas30. The doctors couldn’t catch them because I liked 18 so they didn’t consider strokes I had three massive ones back to back which affected me in every way since then I’ve been to dos tribunals and was e in so many words I don’t look ill or disable because I have good skin and look beautiful and well put together . I’m also autistic so things I wear must match otherwise something bad will happen in the works and it’ll be my fault. And I take care of my skin because my immune system Ya too busy keeping my organs working it has nothing left fir my skin and hair so I moisturise and I’m like my fad his sin didn’t age he passed away when he was 80 he had his own perfect teeth and skin had not one wrinkle on it . I’m 48 now look 26. I’m partial sighted now was registered
have RA and mh problem get the same reactions constantly brings you down quite often not leaving the house so I don't have to here it
+Mark Coles Coles I totally get that, it can make you feel so downtrodden sometimes and awkward. I often get sick of having to justify myself and explain my disability. So I get where your coming from, but just remember those people are irrelevant to you and your life and the people who know and understand you are the ones that matter :)
I know I have autism and high level anxiety I haven't been to school for a long time and I'm only 14 and I might be getting a guide/service dog cause I can't go out of the house without my dog without having at least one panic attack and everyone thinks I'm fine except my family they understand and strangers just do things without my permission and when I react they just look at me in a strange way and judge me and that makes me have panic attacks and I can't understand stuff as easily sorry for this long comment
I'm glad to hear your getting a service dog, I'm sure they will really help you gain more independence. Assistance dogs really give you piece of mind and the confidence to go out because you feel like you're never alone. You may find that people try to come up to talk to you because of your dog, so do be assertive and explain that they must not interact with them. Just some advise from one assistance dog owner to a soon to be one. I hope it all works out for you :)
show this video atos or dwp it compely goes over there backwared heads.
Hey Emily 😂I feel like I am talking to myself my name is Emily also 😁I am 20 years old and have a few disabilities myself I was wondering if you where planning on going to Brighton disability pride this year in July? x would love to meet you and talk 😁
Hello Emily! Lovely to meet you! I didn't even know anything about Brighton disability pride, but I'm going to look it up 😃
0:56 king Charles spaniel!
Tobey Transport yes he is! His name is Feddie 😃
@@fashioneyesta is he your guide dog? Also that was one of the quickest replies on UA-cam that I've ever had
Tobey Transport I’m current responding to comments on my latest video so that’s why it’s so quick. And no Freddie is my pet dog, my guide dog is my Labrador called unity she’s in a lot of my vlogs.
I have a king Charles spaniel
Tobey Transport aww! They’re such lovely dogs
Do you like Disney?
You don't look disabled to me...
+bhopcsgo LOLS