His mom must have been amazing to take so much care to weigh EVERYTHING. What a cool dad to have! He really does prove that taking care of yourself pays off. His consistency in caring for his body is inspirational to diabetics and non-diabetics alike!
Hi Mackenzie! Thank you SO MUCH for your comment! I LOVE MY DAD! My Grandma (his Mom) was indeed a very amazing woman and she did take a very special care or him! He's also very lucky in that he has my Mom (his wife) who takes supreme care of him too! I think with diabetics, your support network is integral to high quality care on an emotional and physical level. Love truly is the best medicine. And the love of yourself too - my Dad truly is an inspiration to me, and the care he continues to take of himself, and management of his diabetes is awesome. I do feel very lucky to have this example in my life, and I thank you for letting me share this with you on this channel and for watching. Wishing you the most wonderful day! :-)
Well done Larry. I have had T1D from 18 mths of age to now. I had my 60th birthday this year and I was thrilled to know that I made it this far with all my body parts internal and external and had 3 children. I agree with Larry of the good care in the first 20 yrs has kept me healthy to now and beyond. Yes, I remember the test tube sugar tests in the early days. Wow so much has advanced over the decades good and bad.
Watching and learning from other diabetics has really put my mind at ease. I was diagnosed a little over a month ago with T1D, and obviously as daunting and terrifying as it is, just being able to have access to people all around the world has made the transition into this lifestyle so much smoother! Thank you for your guys insight, and I’ve already subscribed! I’m hoping to start my own diabetics channel soon as well!
Hi David! Thank you so much for your comment! I'm so sorry to hear of your recent diagnosis, this must be a very tricky time for you. Oh - and welcome to the 'club' lol! I know it's not the most desirable club but it is FULL of incredible people that are willing to share their experience and help one another. Truly it is one of the most supportive and joy-filled communities in and amongst some really tough stuff! I'm so glad this had been helpful to you and I'm sure you will continue from strength to strength! And as for the channel - DO IT!!! You won't regret it!! I think it would be especially interesting to have a channel out there that documents things from a very early point of diagnosis. That would be very unique and hugely interesting. I just straight up encourage you to do it!!!
Wow - I'm sure you're going through a lot of overwhelming feelings at the moment! Luckily the online community of Type 1's are pretty darn amazing and supportive of one another. Thank you so much for your kind words and your comments. I will continue to work to make content that is helpful! If you have any suggestions or requests please feel free to say!! Sending you strength!!!
@@ShesDiabetic yep, its pretty nice how the internet can concentrate all of us t1d's making it feel like diabetes is a normal part of life. if you could do a video of how you manage the stress/anxiety of the THOUGHT of going low. like i dont think i could go walk nature trails alone . i would have a panic attack. because im scared ill pass out and die and nobody will find me. : D
Hi! Thank you so much for this suggestion! I'm so sorry to hear that this gives you such anxiety, but I really understand where you're coming from. Have you considered a CGM with alarm functions in order to have a sort of back up buddy of information? I will definitely put this topic suggestion on the list of videos I need to make!
@@0i1f I was diagnosed at 27, 3 and a half years ago. It's still a daily struggle to keep it up. I find I go through phases of excellent control and then a get a little complacent. Not hugely, but just a little slippery. If you worry about going low, just make sure you have a tastless sugar drink with you. Something that isn't appealing to drink. I find having jelly babies at all times etc. just tempts you, or reminds you that you can't have the thing that you can taste nice. This may not be the best advice but if I'm travelling long distance and I don't have the capacity to monitor effectively, I prefer to run a little higher. Swimming for instance.
This is really helpful for a 21 years type 1 like myself that was diagnosed at the age of 5. Although we don't have CGM and pumps, it's all done manually by myself, I still have hopes of reaching his age. He's an inspiration. :) P. S. I have passed out trice by going too low at night :D
Man that sounds crazy being diagnosed at age 5, I was 14 when diagnosed with t1d I'm 30 now, I have always wondered if I had been diagram at an earlier age if I would have accepted it better. If you don't mind me asking, how long did it take you to become fairly good at taking good care of it? Also do you know about how low you were the couple of times you passed out? The lowest I have seen mine was 13 but luckily I have never passed out.
Thank you and your father for sharing your thoughts and experiences. I was diagnosed type 1 when I was fifteen, 42 years ago. I had my first insulin shot on 7/7/77!! I can relate to all your father's stories of how we used to live, even to being told there would soon be a cure! I remember having a blue plastic box which held insulin bottles, needles and swabs and it had a tube in which my glass and metal syringe was stored in alcohol to keep it sterile. Taking an injection was a bit of a palaver, the syringe had to be flushed out to remove the alcohol then filled and injected and then flushed out again to remove the insulin. I agree with you that accurate CGM is certainly the most valuable piece of equipment we have to maintain control of our blood glucose levels. Wish you both good health always!
Wow!! Well done to you for living with T1D for 42 years Brian! That is such an achievement and super awesome!! And what a significant date for your first insulin shot! Wishing you the best and continued success with your T1D and thank you so so much for you kind words - from both myself and my Dad!! ♥️
@@babytigtig3795 Hello, apologies for the delay in replying. From the beginning I have had protein in my urine and because of that I took part in many study programs at Guys Hospital in London throughout the 80's. Diabetic neuropathy has always been an issue for me. In 2014 I narrowly missed a heart attack and had a stent put in a coronary artery, my endocrinologist said it had been a long time coming and had nothing to do with lifestyle and everything to do with injected insulin. Life is good, I am happy and I accept my body and its quirks.
@@brianrobinson1234 Thanks for your story. I was diagnosed last year at age 46. I am still trying to figure this out. I am starting to get used to this new life. It is really wearing me down so far but I keep telling myself just hang in there it will get better. I hope you continue to have good health.
Such a strong man & dad, My fiance is diagnosed with Type 1 a few days ago, I was so stressed but when I see people like you guys I get stronger and stronger, Thank you guys, Keep it up. God bless you
Hey Andrea! It's really great to hear from your Dad! I'm in the same generation, 46 years T1D, diagnosed at 11 in 1973. But my doctor said, don't worry, you will probably only live 10 years! Glass syringes, two injections a day with horse needles, urine and tablets....OMG I remember all that BS! My parents divorced shortly after I became diabetic, and I had no careful monitoring. We are talking radical adolescent behaviour! Ketoacidosis at 14 (3 days in a coma), and a number of trips to the hospital (or police rides home) with low blood sugar. Yet, I can thank my parents for good genes as I have had no significant complications in all this time. I am still on pens, but using CGM and hoping to get onto an insulin pump this summer(once COVID-10 settles down). We have two grown sons, ages 26 and 23, and no diabetes in them (so far). I thank my wife's good genes for that! I really never thought my life would turn out this good. But, as your Dad has shown, we can do it, and we can do it well. Thank you!
Oh my goodness Terry thank you so so much for sharing your experience with me and all of us here!! I'm so sorry to hear that you had such a rocky start with diagnosis and then several traumatic events to follow - but right you are - this just goes to show that even with stuff like this happening, we can live long and well!!! It's not always easy but it's definitely worth it, especially with such a beautiful family as yours it sounds like! I'm so happy for you and thank you so much for sharing all of this here and being vulnerable with myself and the entire community here. Sending you so much joy, happiness, health, and safety! :) All the very very best to you Terry!!
wow its so incredible how far medicine has come in just 60 years. now we have these little machines that test our blood sugar every 5 minutes and administer insulin on their own as needed. really gives me hope.
Agreed!! I honestly wasn't even aware of how far diabetes tech had come until I sat down and really talked through it with my Dad. Even the thought that there were no BG monitors when my Dad was first diagnosed really blew my mind! Hope indeed!!! :-)
I have been type 1 for 50 years and remember the glass syringes which had to be boiled regularly. It’s sad that even today it’s a struggle just to get Freestyle Libre sensors. At the moment I am in a battle to get Dexcom G6 and the Tandem X2 pump , I must say the Libre has made a vast difference instead of finger pricking, hopefully the G6 and Tandam will see an end to the biggest problems I have. All the best to all out there who have struggled on for decades and still struggle to get the latest innovations. Peter
@@ShesDiabetic Very poor training as well! And misdiagnosis! My dh was diagnosed as a t2d and treated as such for 23 years until 2002 when we went from stone age endocrinology to an insulin pump in about 3 months.
Love love LOVE this! Similar to you, my mum and i both have T1D (crazily enough both diagnosed at exactly 2 and a half years), mum's now had it for 65 years and me for 27. It's such a special bond to have and how lucky we are to have such incredible parents who just get it
OMG it is SUCH a special bond! Completely agree! I know it comes out of something very difficult but truly I feel so lucky to have that connection with my Dad and point of understanding through him. Lucky Lucky we are! Agreed!!!
In 1985 I was loosing weight thirsty very tired at 18 a neibor told me I believe u got type 1 diabetes like your dad does his mom had type1 too he said I can test you and see what it is he a huge test machine nothing like now he tested my sugar 320 I felt tired he said you got it .iv lived with every since it's difficult to live with now I have complications from it not testing or eating right it's wore me out my shoulders and hips are stiff it don't get better heart problems feet and legs pain constantly.test test test insulin around the clock if u need it .I took 1 shot a day for prob 20 years I didn't test .I passed out while driving and went to a coma a few times got my attention im 56 it's a Hassel pay for insulin test strips adds up nothing free .
Thank you so much for this suggestion! I've actually bought a new camera that accepts external audio (my current camera does not) so hopefully I'll be able to improve the audio moving forward!!
@@ShesDiabetic Good to hear. I've found your videos amazing and energy and sunny disposition inspirational. I'm so sorry to hear about your father - I watched your vids with him and your mother and then learned later as I was skipping around of his death. My daughter was just diagnosed at 18.5years with type 1 and I am so angry and bitter that I needed a channel like yours to help. Have you ever considered what causes type 1? The idea that our body destroys itself never made sense to me. I am certain that some sort of chemical poisoning from our chemical/medical industry is to blame - and that a cure will never be "found".
THIS! IS! FABULOUS!!!! I'm so happy to hear this - thank you or sharing this with me and all of us here!!! Shows it can be done, absolutely and utterly!!
I was diagnosed at the age of 5, I'm 47 now. I remember some of the things your dad talked about in the testing and insulin delivery. I didn't have BG meters at first, had to do the urine in a test tube and match the colors. My original insulin was Regular and NPH drawn up in 1 syringe twice a day. We had disposable syringes not those glass one he had to use, I believe I was about 12 when I first heard of pumps.And they were a lot different then than now. Even weighing out the food you ate. Evereything was so much different then than now.Thank the maker for advanced technology!
Thanks for your comment Roy! Wow - you've lived with t1d for a LONG time too! It's quite crazy to think and hear about how things used to be - I find it fascinating and also I'm extremely grateful for the advancements in insulin delivery and technology - especially the CGMS! Wishing you health and happiness! Thank you so so much for watching :-)
I used to ride my bike after I came home from work. One time I was really dragging and when I made it home my glucose was 25. I learned to be more careful after that.
I know that I'm late to the party here, but I just wanted to say thank you for making this video. I was recently diagnosed with T1D and I'm currently 25 yrs old. I can't tell you how refreshing it is to hear from someone who has lived with this for 60+ years. Hearing yours and your fathers story gives me hope. Keep doing what you're doing.
I’m so sorry to hear of your recent diagnosis. No doubt you’re going through a lot right now. But I’m so glad to hear that this video helped you and has given you hope! This is wonderful! I too take a lot of inspiration from my Dad and am so glad I could share this and his perspective with the community here! Thank you once again and sending you strength in this time of getting to grips with your new diagnosis, and indeed always! ❣️
I was also diagnosed at age 15 (i'm now 50), I used the 1st generation glucose meters and the test strips for urine where you match-up the strip with the color graph on a vial.
I'm gonna try to get more content over Thanksgiving and Christmas with good old Pops!! :) I'll be all like "Hey Dad, we just had a Thanksgiving feast - what's your BG!" Bahahahah!!!
Your dad reminded me of myself. I've had type 1 for 44 years. They had disposable syringes in 1975 ( I was also 15 ), but I did have to use the keto districts in urine until I got my first bg meter in about 1978. Thanks for his insight.
I have been Type 1 for nearly 30 years I was diagnosed late age 43. I had lost 60lbs in about 6 months whist eating like a pig! I had ketones in my blood etc. I tried the pump for 8 years an could not get my A1cs below 9. I met a Doctor who was an endocrinologist, and the first thing we did was to unhook the pump and go back to Injections, I should mention that the Doctor was a type 1 himself.. My Aics are now 6-7 and I do not feel like I have a monkey on my back. I found the pump intrusive and a nuisance. Changing the infusion set every 3 days was a nightmare for me as well as the cost with no insurance. Its true to say that I did change my diet drastically which has lowered my bolus insulin needs by 30% but for me with New insulins such as "Tresiba" my control is excellent. I also have been using the "Freestyle Libre" system which works great.
Thank you so much for sharing your story Brian! It just goes to show you that everyone is different and their needs are completely individual. I’m so glad you’ve been able to achieve such excellent control and have found what works for you!! This makes me very happy indeed!! Wishing you all the very best!
@@ShesDiabetic Thanks as you know it's not easy living with diabetes type 1, I completely eliminated wheat and grains from my diet 3 years ago hence the need for less insulin, I believe type 2 diabetics should do the same, its the only way to lose weight.
Gracias por compartir. De todos modos no sé si podria cambiar a la bomba de insulina! y al estar mirando todo el tiempo el monitor de glucosa y contabilizando todo
Your podcasts are excellent. Five *****. Your interviews with Dad and Dad/Mom are really special. Please stay healthy in the COVID-19 Pandemic and diabetes. And, continue making you podcast as time allows. :) Your are so upbeat a person. I got diagnosed at 62.5. About 4+ years years It change my life completely. You casts are informative and supportive. Great job. :)
I go back and watch this every now and then, watch your diagnosis story video, and listen to your Type 1 on 1 interview on Spotify. Your dad clearly had a positive impact on your life. He was a beautiful and amazing person, and so are you. The ways he taught you to view your life with diabetes are the ways everyone should look at life: beautiful because of the pain, not in spite of it. My dad is my diabuddy too, and I am so grateful for that. Thank you so much for sharing your experiences in the way you do!
Thank you so much for your super kind and loving words here. You have a diabuddy Dad too - oh they are the best, aren't they? My Dad gave me (and continues to give me) so much even though he's not physically here with me anymore. It's a special bond we all share when we walk this earth together - plus add a thing like diabetes to that mix and it's even more profound. Thank you so much for listening and watching and being so supportive and sharing your kindness. I wish you and your Dad just all the best and most wonderful things!! 💙💙💙
I hear you...I don't get excited when I hear research because I just feel like it's just always a bit of a let down and I don't want to waste my energy getting excited if that makes sense? 😢
Your dad is just like mine was… the most lovely person, my dad was a guiding parent although he was not diabetic (That genetic characteristic came from my mum who has MS so I believe that is where the autoimmune thing came from)
I remember using (I still have it somewhere) a photometry-based glucometer, where one used disposable strips similar to the urine test ones and, after a minute, washed off the blood and then measured the intensity of colour on the strip by placing it on an illumination window on the device. I too remember using the zinc suspension Protaphane long-acting insulin. Let's hope later generation diabetics can one day say they even remember wearing a CGM or pump. Interesting research which confirmed the possibility of in vitro transformation of autologous monocytes into glucose-sensing and insulin-producing cells and which could be reintroduced via the portal vein to reside within the liver and normalise glucose levels in diabetic animals, as well as many other approaches, holds much hope for the future. Let's hope young diabetics don't have to wait 60 years for that to happen. Of course, the top prize would be gaining insight into what actually triggers the autoimmune response that wipes out the beta cells of the pancreas in DM1 patients in the first place and what specific genes may predispose family members to higher risk, as evidenced by your father and yourself. I too have a family member who is DM1. Great video! One thing you might focus on, if you haven't already, is the huge stress DM1 can have on family members, whether in the case of parents of young children or a spouse, especially due to hypos and how CGMs are changing that.
Great video idea - thank you so much for suggesting it! I will work on this - especially for the next time I can get home and interview my amazing parents!! Thanks Paul! :-)
I have been type 1 for 40 yrs.....and a stageIV cancer survivor for 23 years. I am also an atheist. Modern medicine is the reason why. I am still here. Trust me. I got receipts.
Hi sister iam so glad to hear your and dad video Can you tell me extra Information about how to control your sugar level Always my sure level high 350 and I start taking insulin 6 months ago
Hello lovely, I'm so sorry to hear that you're battling highs, they can be so frustrating! Every single person is different, so I couldn't possibly give you the answer to help you specifically, but I would urge you to speak to your doctor and discuss this with him. I do have a few videos on my channel talking about high blood sugar that may help as well. I truly hope you're able to find the answers you're looking for! I'm sending you all the very best!!!!
I also experienced the chemistry with pipette & tablets in tubes to mesure urine-sugar in the late 70's-early 80's. Oh boy, those got really hot when bubbling. I burned my fingers quite a few times with that setup. IMHO, it was rather inaccurate not only because of the urine not reflecting the instantaneous blood glucose level, but also the quantity of water and urine wasn't that very precise. So was also the color-shade that wasn't very easy to compare. But, still, it was the only test that existed then. I also used IO/IPZ insuline couple, IO being the ordinary insulin and IPZ the slow one IIRC. Those came from crunched pigs' pancreas I was told. No synthetic insulin at that time. The issue with those insulins was that they were not at a standard 100units/ml concentration and also the concentration between the ordinary and the slow one were different. This meant that at a relatively very young kid (around 10yo), I had to compute proper ml to mix and inject w.r.t to different insulin concentration. I had to quickly master the cross-product recently learnt at school (and got quite good in mathematics by the way I suppose :) ). I also did learn to put IO first in the seringue and then the IPZ to avoid contaminate IO with zinc (retardant). I did a lots of summer-camps with other diabetic-kids (hiking in the mountains, sleeping under tents, etc.) to get autonomous with the condition. Later we had urine-test strip. No more chemistry, but still hard to evaluate color-shades. Later the urine-test were replaced with blood-test (and that bloody -- pun! -- hurting finger-pick machine), but still color-shades based. This was more precise I guess. Later then appeared some (huge) electronic device that had a light-sensor able to read the color-shade and produce a number (or was it crosses... oh no, crosses were for the acetone level with an other urine-based test). Then, in the 90's appeared the insulin pens, and the multiple injections per day scheme for me (one in the morning the other in the evening). By y2k I switched to insulin-pump (Minimed) and was introduced to FIT (Functional Insulino-Therapy -- ie. carbs counting). And by 2024, after 40 years of type-1 diabetes I am now in a semi-closed loop with the insuln-pump and a CGM. This is almost the artificial pancreas the doctors were predicting to arrive soon in the 80's. I hope improvement will appear faster for new diabetic people. I think the next revolution will not be machine-based, but biologically-based like in a way to (regularly?) "refill" the pancreas (or some other proper place) with artificially created and immune-system neutral Langerhans cells. These will be the perfect closed-loop we are missing.
Thank you for this video. I have had type 1 for 52 years so I understand everything that your dad has gone through. The new technology is amazing compared to where we started.
I am 17 years old and was diagnosed last summer about 8 months ago and it still feels like my whole life is falling apart. This gives me so much hope. He looks so content eventhough his therapy was so difficult back then and must have had a even bigger influence on his life because of that. I am so grateful to be able to grow up in a time where sensors and insulin pumps are available. Thank you for sharing your story!!!
Hi Lena! I’m so sorry to hear of your recent diagnosis and that you’ve been within such a battle and feeling of your world falling apart. I really hope you feel this when I say - this SUCKS and I’m so sorry, but also I PROMISE YOU this is completely normal, and will pass and you will get used to this and find more space for yourself and your feelings with this disease. I PROMISE YOU THIS. I also applaud you for taking to the internet to research and make connections! This is the single most important thing I think - that you know you are not alone ❤️. I really thank you for your kind words and will share them with my Dad. He will be so pleased to hear them - I’m sure of it!! Thank you once again and sending you strength and joy!!! 🌟
@@ShesDiabetic Omg thank you for answering and your kind words:) I really appreciate it! 💞 Everything has been so great the past weeks:) I met some other T1s in person and it totally changed my perspective about it! It is always so inspiring to know that you are not alone and have such a supportive community! And even If it is not always easy T1D has already taught me so much about myself and my body. I have learned much about nutrition and fitness and what I want to do in my life. 😋 #youcandoanythingwithT1D
@@lenaelisaaa I am 30 and was diagnosed t1d at age 14 and I was totally an immature/rebellious doofus for sure and I was really mad for a long time about it but I eventually got over it and realized upholding the utmost attention to my glucose levels and developing the best method for me to stay within a good A1C is really the most important thing in my life. One thing that allows me to keep optimistic is thinking about how much worse the situation can be and how others overcome much more difficult adversities, not to downplay our disease lol. I know it's hard to really listen to all the people that give you advise especially random strangers but I had seriously the worst attitude and was the absolute worst kind of person to take on all this responsibility. You can do it. It actually made me a better person I think. Good luck to you!
I've only had Type 1 diabetes for 50 years but I can well remember my Dad having to boil his needles and occasionally sharpen them on a whetstone. I can also recall the absurdity of urine tests that took several minutes to perform and which gave you info of negligible value. I imported my first bG meter from England as American meters were at the time very difficult to use and woefully inaccurate. Even the best English meter at the time took around 2 minutes to assess the test strip and accuracy was poor.
Great video! I can relate to your dad and his memories of living with Type 1 diabetes. My T1D diagnosis was in 1963, and I still remember using Clinitest and Tes-Tape for urine testing. I started out with one morning injection of Lente insulin and progressed to multiple daily injections in high school. I began using a glucometer around 1980 and switched from MDI to an insulin pump in 1999. That was a big improvement over 4 to 7 daily injections. I couldn't agree more that the CGM is the big game changer. I have hypoglycemia unawareness and have vivid memories of insulin reactions over the years. These include waking up in the emergency room after slumping over the steering wheel with the car still in drive. In 1968, during my freshman year in college, I came home for winter break. My mother prepared frozen food for me and my brother to eat while my parents vacationed in the Caribbean. One evening I put black raspberry ice cream, rather than the frozen casserole, in the oven. My brother still talks about that. In 1978, while attending a conference in Columbus, Ohio, I passed out in the hotel restaurant while ordering dinner and woke up in the emergency room. The nurse told me my BG had dropped to 14 mg/dL. Do any other long-term T1Ds have hypoglycemia unawareness and memories of severe hypoglycemia?
Hi Marty - oh my goodness I'm so sorry to hear of your struggles with hypoglycaemia unawareness. That must be incredibly scary for you - and I can see CGM being incredibly helpful for your specific situation. Hopefully with CGM you are able to avoid these type of scenarios and live a more full, and relaxed life!! Thank you so much for sharing and I just applaud you so much - you're a T1D Warrior - I'm in awe!!! BRAVO!!!
Oh, yeah! Many many episodes involving high and low bg especially since we never measured food at all. We were on 1 and then, 2 shots of Lente and later switched to NPH. We never were taught MDI or carb counting. I didn't even find out about glucagon kits until 1997! We learned about insta-glucose a bit before that (about 1994, I think).
My husband has been type 1 for 44 years. Since he’s retired he’s had such a hard time regulating his bs he had a very active hard outdoor job ate all day long just to keep his blood sugar up. Now he eats very little actually and us not active at all due to handicaps I don’t know what to feed him half the time any suggestions to keep him steady.
What a cool resource. To have your father totally engaged and caring for your diabetes as you grow up. My grandfather had diabetes and used to lay his insulin needles and syringe is out on the sink and he filled them Up every night, one for when he went to bed and then one for when he woke up in the middle of the night. He to tested his urine. I didn’t have to live with that catch by had a blood close glucose meter from the start catchy and when we went from needles to Pins. We both got diabetes at the same age catcher and He went on insulin right away and I went on insulin within a few years. We both were insulin resistant and yet insulin-dependent. Our bodies just Did not make the insulin we needed and often when we would get it it will not absorb. It just wore our pancreas out. In the last two years I have learned that Cancer and Radiation really messed up my numbers are and I had to pivot from quick to point with agility. Now I will be going on a pump and I can avoid as many shots a day as I was taking. I do think of diabetes every day, every hour as I often play catch-up and it does teach you much, not always things you want to learn. What was that saying from the 80s reality bites. I should be getting my pump this week and it will be coming direct to me in the mail and then I will call Michael educator and go in and begin the process of setting things up. Actually I am really excited about this. No more of being all over the place. Not being as afraid of Food every day. When I first got diabetes it was really depressing to me and I needed to find a diabetic support group and that made it huge difference. Has John Donne said “no man is an island.” No I had today got cancer and my resistance went through the roof it was encouraging to find out in my cancer group that other men experienced the same thing. Your father is to be commended. He did a great job raising you. Thank you for this video.
Thank you so much for sharing all of this Tom. I'm so sorry to hear of your battles with cancer and the knock on effect that's had on your insulin resistance. It sounds like you are balancing a lot, but it also sounds like you are doing it with a wonderful spirit of hope and determination. Your choice to go on the pump probably wasn't an easy one (it rarely is for people, I've found) so just making that choice and being brave enough to make a massive change when you've been used to another way for so long it to be commended in a HUGE way. I hope (and have a great feeling) that it all goes well for you, and you experience a new way of life that is significantly improved! I also thank you for your kind words on my video. My Dad is indeed a wonderful man, support and resource to my Brother and I (both Type 1 Diabetic). Sending you so much strength and positivity, and wonderful wishes for a smooth transition onto the pump!!
I was diagnosed in 1998 age 12 and since then in Greece I have lived with urine test strips , my first blood glucose meter and glass vials that were a problem as I remember , being in Egypt in 2001 and my vial dropped and broke. Life is better now with pens and cgms. I am absolutely with you.
I think your videos are the best!. You are very thorough. This particular video with your Dad was extra special.Do you think your diabetes was inherited from your Dad's side of the family? Are there other members in your extended family tree that have type1 or type 2 diabetes? I had been using the Dexcom G6 system & unfortunately I had a problem with my mail order supplier. So I got in touch with Dexcom bc I was hoping they could get me switched to a new supplier . They told me thay had done that & then when I went to the prearranged local pharmacy was told that Medicare would have to approve it. Medicare had been covering my Dexcom supplies when I was getting it through the mail order supplier. So I don't know why it has to go through some long drawn out process just simply to switch from one supplier to another. The local pharmacy said it could take 3 weeks to get approved. I was loving the Dexcom G6 so much & really miss it. It's a game changer! Please continue your excellent videos. You're the best! Btw the apple didn't fall far from the tree! Your Dad is pretty great also! May God be with you in all you do.
This bring back so many memories... I was diagnosed at 7. I remember the urine tests. The thick needles and my first portable blood glucose monitor (a plexiglass box with an optical reader). In the very beginning it was even mixing the chemicals and boiling the mixture over a flame.If non-zero result: empty the bladder, drink some water, and test again 15 minutes later. The arrival of humalog insulin was actually for me the first big game changer. The previous (animal based) insulin caused antibodies to capture the insulin and release it at very unpredictable moments. The artificial pancreas (which is now a reality - with still room for improvements) was predicted since the 70-ties as arriving "soon". It took a long time arriving, but at least it has beaten grid ready nuclear fusion (which has remained 30 years in the future since 50 years). And yes, mothers were in those earlier days very important. Current technology definitely not only helps the diabetic kid, but also their caretakers. Thanks for sharing how our "normal" was so different from the non-diabetics.
Thank you for sharing Peter! That's so so interesting about the animal based insulins releasing at unpredictable moments - I never knew that! I'm so grateful to be alive in this time because of all the amazing technology we have access too - truly what a time to be alive!!
I was diagnosed in 1985 and I remember testing urine with a test tube 😁 loved it when pens came. I have good control now but teenage years were tough and now I'm on dialysis. Thank you for the video it was very inspiring. And your dad is wonderful! My dad was also type 1 and it helped me a lot to not feel as alone with the disease. He used to call it the monster with many horns 😜
Hi Katherine! Thank you so much for your comment! :)The master with many horns - ha! Yep that sounds about right!!! Well done to you for living so long with this disease! I'm so so sorry to hear that you are on dialysis, but I also know that for many people dialysis is one of the best things that has ever happened to them because they feel so much better after having been put on it. But I also know there's a time commitment and potential fatigue that comes from it too. All I can say is that you sound strong and awesome and positive and I'm really inspired by that! Thank you for watching and commenting! :) :) :)
Very informative. Your dad is awesome. I've been type1 for 20 years. Used to be on dexcom. Unfortunately I changed my insurance and now this company won't cover it. Dexcom is a real life saver. Kinda makes ya feel normal. Thank you both for this great video!
Thank you for your kind words Robin! I am SO SORRY to hear the your Dexcom is no longer covered...oh my goodness I’m so sorry! That absolutely and utterly sucks! Will the cover any other CGM’s? I’m just really sorry to hear this and completely know what you mean about the Dex making you feel normal - I’m the exact same way and don’t know what I would do without my Dexcom...I hope you find something else that works for you..Sending you strength! You are AWESOME!!! ♥️
Has anyone else ever pricked their finger to test then squeezed your finger and your blood squirted to the ceiling? It's happened 3 times to me it was pretty freakin cool, it obvious wasn't a huge stream but still really cool
Your Dad is a wonderful model. I am curious, what was his HgA1c target with pen injection and what became the target number with insulin pump? Any changes?
I don't think there were any changes, no, but I do know that his control became far tighter when he went on the pump, and thus the A1C's decreased naturally. Hope this helps! :)
A big thumbs up to you and your dad for an excellent video. I was diagnosed with T1 nearly 50 years now and my father and younger sister were also T1 so my life has been very similar to what you and your dad talked about. My father was diabetic when I was born and I remember my mother toiling test tubes on the kitchen stove about once a week to do a urine glucose test. There were no kits for testing back then and you basically had to try to replicate what would be done in a clinical laboratory even to test for glucose in the urine. My sister was diagnosed when she was in junior high school and by then there were kits but only for testing the urine. It wasn't until shortly before I was diagnosed in the late 1960s that it became possible to test your blood at home. Also by that time there were disposable syringes that made life a lot easier. No more boiling syringes or storing them in alcohol between uses. So I was actually pretty lucky. As I approach my 50 year anniversary I'm still relatively healthy and continue to work about 20 hours a week and I attribute my good health to the fact that I have carefully monitored and controlled my blood glucose levels for to the best of my ability. I'm very excited about CGM having recently acquired the Libre and since I'm seeing a "dawn effect" like your dad I'm thinking about switching from MDI to an insulin pump provided my insurance will cover it. Thanks again for the excellent video.
Thanks for interesting videos. Well composed in subject and lenght. I have 54 years(so far) as type 1 diabetic. Diagnosed 2 months before my 6:th birthday. So I have traveled almost the same road as your father. Today I have the Medtronic 640G and the integrated CGM. So I told a friend that I almost feel like a normal human beeing. But the accuracy of the Enlite sensors are a concern. Had Animas Vibe and Dexcom G4 for a period and the Dexcom was much more realible both thecnically and accuracy towards the blodsugarmeter.
Hi Jonas! Thank you so so much for your kind words and for watching! Major congratulations to you for not only living with but totally thriving with T1D for so many years. This is an awesome achievement, and obviously a testament to your hard work and dedication to taking care of yourself and managing the disease, no doubt! I totally hear you on the Medtronic Enlite sensor inaccuracies. I tried that system for a while, but couldn't achieve accuracy with it, and thus I abandoned the Elite system altogether, but still use the Medtronic 640g pump. As I'm sure you can tell, my Dad and I are both huge fans of the Dexcom system, just wish it worked in combination with the Medtronic pumps!! Thanks again for watching and wishing you a wonderful, happy, healthy day!! :-)
T1D used to be a death sentence. Over the years technology and dietary advances have aloud it to be a lesser sentence. Exponential growth in tech and dietitian makes it less and less everyday. We can do this people, my Nona lived till 96 and she was diagnosed in her 30s.
Wow, that's so amazing about your Nona! 💙 And also - you're so right, about what it used to be and what is it now, very much changed by the technology we have access to! Now I just hope we can get ore people access to this amazing technology!!! 🙏🏻
Just wanted to say that I am thankful for this video (and your other ones, they're excellent), because it helped me feel even more grateful for the technology that we have access to. Dexcom G6 has been a game changer for us, with a 5 year old newly diagnosed with T1D around 10 weeks ago. Still working on getting her a pump, but honeymoon stage is making that impossible right now. But hearing your dad talk about large non-disposable (painful) needles and no blood glucose monitors, well that's just unfathomable for me to think of raising a 5 year old back then. Can you imagine? I can't. Also helpful to see how healthy he appears after living with this disease for so many years. I wish him long life and great health. David.
Well I pretty much agree with the herd here in saying thank You for taking the time and putting this video together. I want to thank Your Dad (sharp Guy) for sitting down and talking about His struggles with being type 1 like Myself. I feel so much better after watching this. I try to tell People that the hardest thing about being diabetic is that You never get a break away from it, it is there 24/7 and if You don't know You just don''t know. I can tell that Your Dad just has a great outlook on this problem and I can tell He was a great Dad. You are lucky to have such a great support Person or someone who knows what You are going through. Anyway thanks again and cheers.
Hi Charles! Thank you for watching and for your extremely lovely comment! I will definitely pass along your kind word to my Dad. I'm very grateful for his positive, even keeled outlook and I think it has and continues to served him very well in his life. I take inspiration from him and therefore wanted to share this with our community here!! Thank you again!!! :-)
Thanks for having ur dad share. It did make me feel better about my future. Fyi...type 1 for 12 yrs. Most diabetics I know of like ur dad, it's really a grim situation, so having ur dad as proof that it can b ok is great to know
Hi Lala! Thank you for your kind words regarding the video! I totally know what you mean about a lot of other long term diabetics having quite scary or grim outlooks and realities. Though I know this is the case for a lot of people - I think it's really important to highlight the alternative outlooks and realities too! Also there's a lot of fear mongering created by the health corporations, highlighting the big bad complications, and though I think it's important to be conscious of those and strive for better, there are also people living full, long, happy and healthy lives with this disease too!! Anyway I'm so glad you enjoyed the video - thank you so much for watching! Wishing you a wonderful happy, healthy day!!
You’re Dad is so kind. It was so nice to hear about his experience and his encouragement was so nice! t’s not a death sentence and you just do the best you can one day at a time. A lovely interview!
I've enjoyed all your videos very much Andrea, but I have to say, this is one of my favourites! You and your Dad touched on so many things; I could listen to a part 2 and a part 3, to this video for hours!! Perhaps the next time you're back home, you can do a few more videos with your Dad. You both provided so much helpful information, and presented in a really encouraging way!! You mentioned in one of your other videos, an interest in one day doing documentaries. I hope one of them might be on Banting! :-) Thank you both for this video!!
Thank you Pokie!! I definitely want to make some more videos with Dad - ASAP! If you have any suggestions for topics you'd like to hear him talk about please don't hesitate to let me know! I want to make the most helpful content possible! I'll see what he knows about Banting, but may not be much...! We could talk about that though! :-)
@@ShesDiabetic Thanks Andrea!! You both have a great chemistry chatting together! It's interesting to me, how he was probably the most helpful to you, when you were first diagnosed, with regards to taking shots, and using the equipment. I'd be interested to know, how much influence and help you now have on him, with regards to taking advantage of the latest technologies? There are other questions too! :-) I like how the conversation really fed of both of you, and not just you "interviewing" him. :-) It was really cool to see some of those old saved syringes too! My dentist's father was a dentist too, and he DID sharpen the reusable syringes in his day!!! Yikes, talk about turkey basters!! Regarding Banting, I was referring more to down the road when you do documentary projects; perhaps that could be one. :-) Do a trip to Canada and tour the museum, and then follow the evolution of insulin, meters, and where current research trends are taking us, etc.. Maybe not a big enough mass market to pursue such a project, but it would be cool! :-) Thanks again Andrea!! :-) Hope you're enjoying your weekend!
Very well done! It is so good to have your Dad on the show discussing his long term diabetes as it was quite a challenge in the day. I have had Type one since late 1972, and I remember those days like it was yesterday. One of the key things that I have learned in those days is that exercise and diet are the two main components of managing bloodsugars. Like your Dad, unfortunately, that went out the window in my college days as well 😄, but after I got married, had a son, and had a bad episode with my diabetes that landed me in the hospital, I got back on track again. To this day I still exercise regularly and really am conscientious on what I eat and as a result my H1AC's are always in the low 6's. I am so happy and thankful with the technology today, as it really is a game changer! Thank you for this upload, it really brought back memories!
I have been a diabetic for 34 years and soon it will be 35. I am very athletic and do not have a lot of body fat. I have been mostly sick my whole life and recently diagnosed with Hoshimotos which explains many of the symptoms including fluctuations in my blood sugar for the past 20 plus years. I also have asthma and that has been challenging but so far it is controlled. I say this because I love the insulin pump I have (Medtronic) but because I do not have a lot of body fat I have to go back to using shots because I do not have many good sites. I also just started using the Dexcom G6 and I love it but it becomes very itchy after about 5 days just like my insulin pump after 3 days. The biggest issue I have and really have always had is being in school and dealing with the management. I have had such ups and downs and really want to manage this disease and push away all the tertiary consequences are far as possible. When I was younger doctors used to say that my life expectancy was lower so make the best of it and live as healthy and as long as I can. I met a few type I's that were athletes and had diabetes for a long time but it is always great to hear perspective from people that understand what you are going through. I just stumbled on this channel looking for different insertion sites for the G6 because they advise only to use the lumbar, illiac or hypogastric regions. Thank you for sharing such personal moments and letting us into your life. This is really amazing and gives me hope to not only pursue my goals but to consider living a longer life. I was diagnosed at 18 months and knock on wood so far no problems other than being diagnosed and at risk for every autoimmune disease known to man LOL. I will definitely continue to watch all of your videos and am excited about the content you are providing.
Hi Joseph! Welcome to the family!! Thank you so so much for watching and for your kind words and comments. I’m so sorry to hear that the pump didn’t work out for you, I completely understand the difficultly with lack of good quality insertion sites and am sorry you’ve had to deal with this. I also hope you find a way to deal with the G6 itchiness. I think the Dexcom is the single most valuable piece of machinery in my t1d wheelhouse. This is just my opinion, of course, but yeah, I just adore it and not having to fingerprick! I’m so glad you’re here and have found this helpful. I’m completely delighted to have you here and thank you once again for watching!!!
Ps- I’ve never had a doctor tell me I won’t live as long, or to just make the most of my life, but I do totally understand the sentiment. However, I completely and utterly believe that we can live long and healthy lives by taking care of ourselves and eliminating as much stress from this disease as we can :-)
@@ShesDiabetic I completely agree. I think life is extra stressful with type I but having a community to interact with and express what we go through makes a huge difference. Doctors are changing, the sentiment used to be to tell type I's this so that they understand, now doctors focus on the positive aspects of control and care. I am trying to focus on that too and live the best way I can but the risk for autoimmunity is elevated and it seems like my body is trying to kill itself lol. Other than that I am happy and doing well, finding your channel was really incredible for me and please tell your dad how inspiring he is for diabetics. Your whole family is amazing and I appreciate what you are doing, personally thank you so much.
Hi Andrea. Came across you watching Homeland but your videos in this channel have been inspiring. My grandma and grandpa (mom side) both died of Diabetes in the 80s and how I wish the medicines back then were as advanced as it is now. I always have a soft spot for persons diagnosed with diabetes so I watched all your videos and how incredibly positive you are! I know that diabetes can be passed genetically. I’m 26 now and all I can do is to make sure I eat well, exercise, and pray. Thanks Andrea! I’ll continue to watch your videos and watch out for new uploads. Take care always and continue to inspire us and thousands more!
Oh thank you so much for your kind words. I'm so so sorry to hear about your Grandparents. It is quite amazing how far the technology has come, and heartbreaking to think of those that we've lost who were unable to make use of it. It sounds like you're doing all the right things - so good for you!! And thank you for tuning it - it's great to have you here! Take good care! :)
I've had diabetes for six years now, it's amazing that the technological advancements for diabetes have changed so much over the years. Ten years ago the idea of a Dexcom or CGM was a complete fantasy. I hope that by the time I get my dexcom, and maybe an omnipod if I'm ready, I'll be in good condition by the time I reach my 30's, 40's, or 50's.
You for sure will!!! There are advancements coming every day and I think it's a really exciting time to be alive in a lot of ways as a result of it!! Of course the ultimate dream is a cure- but until then, these neat gadgets give us so much more freedom than those who have come before and I'm just so grateful for that!!! :) Sending you love!!!
THANK YOU SO MUCH FOR THIS! I grew up with my maternal grandmother a type 1 and I can remember her monitor was like the size of a modern dvd player haha! But, it really was refreshing and motivating to listen to someone who has literally lived through every advancement in diabetes technology and who is able to laugh at what sounds horrifying to a lot of us. It reminds one that despite the highs and lows (pun intended) of T1D, we are very lucky to live in a time where it is easier to be diabetic and we all have our lives due to the technology. Your father is a gem and it was great to see the two of you interacting. Thanks again for great content! PS I have put in a request to see if my insurance will cover the Dexcom G6 cgm. I currently take 5 injections/day (on a good day) and rely on finger sticks to monitor bg. I have done a trial with the G4 and had mixed feelings about it - mostly the size of it. After watching your videos, along with Jen Grieves and a few others, I have decided that the only way to have better control is to have a cgm so I am going to give it another go.
Oh thank you so so much for your kind words Jennifer! I've passed them onto my Dad too, I know he will really appreciate them! It's so true and I take so much inspiration from my Dad and how he's able to keep a healthy mind and spirit with it all - laughing all the way! I really really hope you're able to get the Dexcom G6 - it's so much smaller than the G4 and just an incredible upgrade in so many different ways. I think you'll love it - truly! Mine has changed my life!! PS - I love Jen Grieves - she's the best!!!! I'm glad you've found her channel too!! Big love and strength diabuddy!!! :)
I heard and read the same thing when I was that teenager long ago. Read the headlines Diabetes cure on many occasions raising my spirit and hope. The articles always ended the same. “ Well this won’t be ready for 10 years or 20 years as my head dropped in anger and disgust. If I sound mad or I did on your last video I am kinda sorta. Let me tell you the true story of the discovery of Diabetes which goes way back to the Roman. You know how the had public urinals and such? Well a physician of that time noticed that flies would gather around certain guys peeing and not others. I’m not sure but curiosity got the best of him and he decided at some point to test it. That person was much sweeter than the no fly guys. Suppose to be a true story which makes sense. They drank lots of wines and such. Anyway, I believe there is a cure out there already but turning it loose would cost Trillions in lost revenue. Think how many industries it effects?? We give billions every year and just a few Mnitors. Granted they changed us for the better but Cmon !! Or. Let’s start donating or taking healthy Pancreases from Donations? Should be a law but we are too goodie two shoes.. O no how could you. Bologna ?? Anyway nuf said, Yea I’m 70 and lived with lots of pain . You wouldn’t believe what I been through. In crazy Ca live alone in a very clean home. My gal friends ay joe. Don’t know how you do it , I’m ne armed, I have 2 but one is paralyzed due to a big stroke at 44 I thing...... The End.. Enjoyed your Dad. Lil Miss
Joe G., sounds like you really have had your tough battles with your Type 1 Diabetes. I am sorry to hear you had a stroke, but am glad you survived, even though it must make life even harder to deal with. Like Andrea likes to tell it so well on her site, this disease is a 24/7 one to deal with. I have honestly thought that Big Pharma will never let the doctor’s find a cure and/or get it approved and taken to market as it is a major money maker, in the Billions, yes with a B. So I have just made peace with my own Type 1 Brittle Diabetes and I do the best I can each day. Not so easy some days. When my sugars are wonky, I can be ill tempered and simply in a bad mood. Some days I can even feel my own rage boiling. I was diagnosed with my diabetes at the age of 43, one year after a nearly fatal car accident. Well, the trauma to my body and lack of proper follow up led to me becoming diabetic. Each month I had to see my pain specialist, and I would show her my loss of muscle tone, as well as tell her that I felt we were “missing” something. So if you or any of your friends or loved ones are on pain meds for whatever reason encourage them to ask for a simple blood test and urine analysis. The saddest thing, since I did NOT get my blood or urine checked I ended up in the ER with a body that had turned yellow so I thought, oh thank God, finally my liver and gall bladder are giving a shout out for some “HELP, PLEASE”!! The doctors thought I simply had NOT been taking care of my diabetes. I explained I don’t have that as no one in our family has is. Are you sure you are in the right room? Then they told me they were not sure what to do with me until further testing. Finally, one doctor explained that everyone is a bit on edge and not sure of what IS going on due to my blood sugars being so high they were confused as to why I was still alive and/or NOT in a diabetic coma. I was too sick to be alarmed. Besides, there were all of the diabetes commercials that made it look like a “walk in the park”. Little did I know they were only targeting Type 2 diabetes, and Type 1 was a completely different ballgame. So anyway, the trauma to my body at the time of the accident did not help with my recovery as I could hardly get out of bed due to all of my injuries. Well, it is now 15 years later and I have yet been able to find the best choice for control. I have watched Andrea’s videos and she gives hope for all of us diabetics and I am so happy to have found her. Now, seeing her dad and the previous video with her mother I can see how and why she is so well adjusted, happy, takes great care of herself and most importantly she shares her knowledge. I do want to let you know that in the early 1900’s is when they were first seeing signs of diabetes and not having a clue as to what it was or what to do. In the rest homes when patients died in the night they would be covered with ants by morning. I can be outside with my non-diabetic boyfriend in the evenings and I am being swarmed by mosquitos 🦟 big time. Basically, I would just go inside. He would tell me it was because I was extra sweet, and my response always is YUP, I am full of good ole BS!! But moving on, I just want all diabetics to know this is such a bizarre disease as it can take you on a roller coaster for life. I have been doing my best, yet still no control. Also, if ever you get sick to your stomach for hours and you have high blood sugars, just go to the ER as you may be slipping into DiabeticKetoacidosis (DKA). Big news as I had never been warned by my doctors about it. So do what you can to stay in control, or as they told my boyfriend, had he not brought me in I could easily have been found dead in bed by morning. That was a HUGE wake up call. Also, I was in the ICU for 6 nights before they could let me go home. I have now been told an infection, mental or physical trauma, poor sugar control and missing just one shot of insulin can bring on another episode of DKA. Sure enough I have been to the ER and taken to the ICU so many times they call me a “frequent flyer”. But moving forward I am trying the Dexcom6 and so far the first two sensors have been off by 50-60 points, just like my Medtronics CGM and pump, which I finally gave back as it was causing more stress. So time to move on and be as positive as possible, watch what I eat, and deal with the grief of four deaths in family in the last 2 months. 2 were shockers, 2 we knew what to expect. All of this along with 2 surgeries and living in an evacuation zone due to fires that were about 3 miles from our home. So far, no DKA. I guess I just wanted you and others who live with Type 1, that it is tough, but doable. Watch all of Andrea’s videos should you care to as she truly is a shining star 🌟 in our community. I can just see what a rock her father is, plus her mom is so positive in all that she shared. It is obvious where Andrea inherited so many wonderful traits!! Just think how happy our world could be if all children were so well loved and supported to grow up to become independent, healthy and able to take great care of themselves. Diabetes or no diabetes, these are some great parents!! I am so happy to have found them. Okay Joseph - keep up the good fight and find what works for you as we all find many different ways of coping!! Sending ☮️ n❤️ from 🌞 sunny Arizona, 🌴🌵 May you enJOY your day!!
Gastro Gal , Thnx for the kind words. I am sick of this disease as you are.. As most are.. This is a tough disease to cure, n my opinion requires a new part but I was hoping in all this time and monies spent looking for a cure they would have found something by now.. One hallava balancing act is what it is.. drink your water and eat veggies and good lean protein.
Fantastic video! I love your dad’s positivity, he’s so great! And those needles 😳, I feel quite lucky to live in a time when the treatment and management of diabetes is so much better than even 20-30 years ago. I don’t think there’s likely to be a cure anytime soon, it’s much too profitable to keep treating diabetes rather than curing it, plus, diabetes has so many possible causes that it would need huge amounts of research and investment to be able to definitively cure all the different mechanisms that can cause diabetes to occur, in my opinion anyway. I’m very excited about the ‘smart’ insulins that are being developed at the moment, I think these could potentially give people with diabetes a lot more freedom from constantly having to think about their BG levels, I think it’s something that could really radically change how we live with this condition.
Supramate But then it would be a one off treatment rather than something that would need to be paid for over an entire lifetime. I know it sounds cynical and hopefully I’m wrong about this.
Thank you for your comment Sarah! I totally hear you, I do worry that the treatment of diabetes is so so so deliciously profitable for companies that there may not be a huge push, from a financial standpoint to cure it. But I also believe, perhaps foolishly, but nevertheless in the power of people and hope and determination to find a cure. I'm sure it will happen one day, I really am. I too am very excited to see the continued developments in the meantime, of smart insulins, smart insulin pens, smaller insulin pumps, perhaps implantable ones - all that stuff!! Really I think now is a very exciting time to be alive in regards to the rapid development of new products and competition amongst CGM/pump/pen providers to accelerate this! :)
When I was first diagnosed there was only U40 insulin. After a couple years I was able to get U80 and then eventually U100. I remember the test tubes and the chemicals. OMG what a pain. It wasn't until I was 16 that glucose meters became available.
Wow - YOU ARE A TRUE WARRIOR!!! Thank you so so much for sharing! And also what a pain indeed I am sure! Thank goodness for advances in technology and actual insulin!! Keep being amazing my friend - you inspire me!!!
Duuuude there's some paranormal stuff going down at around 10:00 there is a loud thump then a few seconds later you can see a stream of orbs just to the right of your pops! Awesome!! Did you notice that?
@@ShesDiabetic you are so cool for actually reading your viewers comments and replying to them, thanks. I noticed it was happening throughout the video, but I would say I have a relatively high experience with paranormal stuff; it could be a "spirit" of a prior resident of the home, since you are in mary old England and there have been lots of generations. I think tho if you haven't had any sort of negative feeling from whatever it is, then it's nothing to be concerned about. When I lived with my parents we would see on the security cameras a huge stream like vortex thing of orbs that circled the house consisting of thousands and thousands of individual orbs and the stream would change direction randomly it was really weird, one of the times I saw on the cameras it was happening I took a ladder to one of the cameras to try to figure out if it was water droplets or insects or some kind of smoke or mist but I could not feel any difference at all when I climbed the ladder up to the camera. Thanks for taking time from your day. Cheers!
@@MeatMachine69 thank YOU for taking the time to respond to me about this! Actually this took place in my family home in Michigan- but I love the idea of what your written above! I love the unexplainable! Thank you again and I wish you a most wonderful week ahead my friend! 🪄
Wow, great remembrance, I’ve had diabetes for 56 yrs & Larry brought up many things that I can relate to, I didn’t hear much about the insulin changes, I started on U40, which required more insulin than the current U100. I can associate w/the parental help, my Mom & Dad set me on a course of success & due to that I believed that greatly helped me stay active & retire from 2 occupations being EMS/Fire & Industry, I’m thankful for my many blessings! Staying active is the way to live longer w/this disease, thank you for what you’re doing ! Kindness Regards, JG
I am 47 years old and I was diagnosed at the age of 13 and I still do not have a glucose monitor or an insulin pump... I continue with the pen and the manual glucose meter... it should be a guaranteed right once the best is developed treatment available at any time, we continue in the fight! Thanks for sharing
Great video! Do you know what he typically kept his a1c or average blood sugar at over those years? I’m trying to figure out what a good level is to avoid long term complications, something which he seems to have mastered!
Wow, Congratulations on your 60+ Years!!! I have had it for 53 Years and laughed when your dad was telling how sugars were tested. Blue was good Orange was bad. It didn't give you sugar readings right then and there it was 4 hours previous. The long acting was NPH. I can see your Dad is Insperational. Type 1 Diabetics are having a greater chance for living a long life than before. Awesome Interview!!!!!
Thank you so so much for your kind words and for sharing your insights! 53 years is AMAZING and something you should be SO PROUD OF!! YOU ARE AN INSPIRATION!!!
Wow! Thank you, Andrea. Say thank you to your father. The conversation between you and him reminds me of my old days and encourages me a lot though I was depressed by Coronavirus. I remember 1977, the year when I was diagnosed as T1D. I was 4 yrs old then. But he has experienced much more than me. It’s amazing!
You're so welcome! Thank you for your kind words - and I'm so so glad that this provided you with a little relief within these trying, stressful times!! Stay safe and healthy!!
Had type one myself 50 years and had the same things as your dad! But an exception I never had background insulin until I was 13 I only was allowed 1 injection a day. Great video and was nice to hear your dads views and history on T1's life in the 60#s Them needles where def like Logs and the ones from the hospital I used to run away from! :-) the future of T1'q will only get better for us all I just hope I can fig more things to put into these pumps like are temperature as this effects us all too! Well me it does anyway! My long acting also does what your dads does and raises at night but I do not have a pump so Dexcom alarms me and I have got used to shooting 3u and going back to sleep!
Ah! Thanks so much for sharing! 50 years is an absolutely incredible achievement and I think you should be so so SO proud of yourself!!! And I'm so glad you too have the Dexcom and pump combo that can allow you to live a more relaxed and full life (and hopefully get some good sleep too!!!)
His mom must have been amazing to take so much care to weigh EVERYTHING. What a cool dad to have! He really does prove that taking care of yourself pays off. His consistency in caring for his body is inspirational to diabetics and non-diabetics alike!
Hi Mackenzie! Thank you SO MUCH for your comment! I LOVE MY DAD! My Grandma (his Mom) was indeed a very amazing woman and she did take a very special care or him! He's also very lucky in that he has my Mom (his wife) who takes supreme care of him too! I think with diabetics, your support network is integral to high quality care on an emotional and physical level. Love truly is the best medicine. And the love of yourself too - my Dad truly is an inspiration to me, and the care he continues to take of himself, and management of his diabetes is awesome. I do feel very lucky to have this example in my life, and I thank you for letting me share this with you on this channel and for watching. Wishing you the most wonderful day! :-)
Well done Larry. I have had T1D from 18 mths of age to now. I had my 60th birthday this year and I was thrilled to know that I made it this far with all my body parts internal and external and had 3 children. I agree with Larry of the good care in the first 20 yrs has kept me healthy to now and beyond. Yes, I remember the test tube sugar tests in the early days. Wow so much has advanced over the decades good and bad.
I’ve been type 1 since 1981 and I agree that the CGM is THE biggest game changer, just mind blowing.
Watching and learning from other diabetics has really put my mind at ease. I was diagnosed a little over a month ago with T1D, and obviously as daunting and terrifying as it is, just being able to have access to people all around the world has made the transition into this lifestyle so much smoother!
Thank you for your guys insight, and I’ve already subscribed! I’m hoping to start my own diabetics channel soon as well!
Hi David! Thank you so much for your comment! I'm so sorry to hear of your recent diagnosis, this must be a very tricky time for you. Oh - and welcome to the 'club' lol! I know it's not the most desirable club but it is FULL of incredible people that are willing to share their experience and help one another. Truly it is one of the most supportive and joy-filled communities in and amongst some really tough stuff! I'm so glad this had been helpful to you and I'm sure you will continue from strength to strength! And as for the channel - DO IT!!! You won't regret it!! I think it would be especially interesting to have a channel out there that documents things from a very early point of diagnosis. That would be very unique and hugely interesting. I just straight up encourage you to do it!!!
i was just diagnosed at the beginning of this year at 29 yrs old. thank you for making these. i really like you.
Wow - I'm sure you're going through a lot of overwhelming feelings at the moment! Luckily the online community of Type 1's are pretty darn amazing and supportive of one another. Thank you so much for your kind words and your comments. I will continue to work to make content that is helpful! If you have any suggestions or requests please feel free to say!! Sending you strength!!!
@@ShesDiabetic yep, its pretty nice how the internet can concentrate all of us t1d's making it feel like diabetes is a normal part of life. if you could do a video of how you manage the stress/anxiety of the THOUGHT of going low. like i dont think i could go walk nature trails alone . i would have a panic attack. because im scared ill pass out and die and nobody will find me. : D
Hi! Thank you so much for this suggestion! I'm so sorry to hear that this gives you such anxiety, but I really understand where you're coming from. Have you considered a CGM with alarm functions in order to have a sort of back up buddy of information? I will definitely put this topic suggestion on the list of videos I need to make!
@@0i1f I was diagnosed at 27, 3 and a half years ago. It's still a daily struggle to keep it up. I find I go through phases of excellent control and then a get a little complacent. Not hugely, but just a little slippery. If you worry about going low, just make sure you have a tastless sugar drink with you. Something that isn't appealing to drink. I find having jelly babies at all times etc. just tempts you, or reminds you that you can't have the thing that you can taste nice.
This may not be the best advice but if I'm travelling long distance and I don't have the capacity to monitor effectively, I prefer to run a little higher. Swimming for instance.
Hello same here
This is really helpful for a 21 years type 1 like myself that was diagnosed at the age of 5. Although we don't have CGM and pumps, it's all done manually by myself, I still have hopes of reaching his age. He's an inspiration. :)
P. S. I have passed out trice by going too low at night :D
Man that sounds crazy being diagnosed at age 5, I was 14 when diagnosed with t1d I'm 30 now, I have always wondered if I had been diagram at an earlier age if I would have accepted it better. If you don't mind me asking, how long did it take you to become fairly good at taking good care of it? Also do you know about how low you were the couple of times you passed out? The lowest I have seen mine was 13 but luckily I have never passed out.
Thank you and your father for sharing your thoughts and experiences. I was diagnosed type 1 when I was fifteen, 42 years ago. I had my first insulin shot on 7/7/77!! I can relate to all your father's stories of how we used to live, even to being told there would soon be a cure! I remember having a blue plastic box which held insulin bottles, needles and swabs and it had a tube in which my glass and metal syringe was stored in alcohol to keep it sterile. Taking an injection was a bit of a palaver, the syringe had to be flushed out to remove the alcohol then filled and injected and then flushed out again to remove the insulin. I agree with you that accurate CGM is certainly the most valuable piece of equipment we have to maintain control of our blood glucose levels. Wish you both good health always!
Wow!! Well done to you for living with T1D for 42 years Brian! That is such an achievement and super awesome!! And what a significant date for your first insulin shot! Wishing you the best and continued success with your T1D and thank you so so much for you kind words - from both myself and my Dad!! ♥️
You are a source of hope for all of us. Have you had any complications from T1D? What a1c has kept you healthy?
@@babytigtig3795 Hello, apologies for the delay in replying. From the beginning I have had protein in my urine and because of that I took part in many study programs at Guys Hospital in London throughout the 80's. Diabetic neuropathy has always been an issue for me. In 2014 I narrowly missed a heart attack and had a stent put in a coronary artery, my endocrinologist said it had been a long time coming and had nothing to do with lifestyle and everything to do with injected insulin. Life is good, I am happy and I accept my body and its quirks.
@@brianrobinson1234 Thanks for your story. I was diagnosed last year at age 46. I am still trying to figure this out. I am starting to get used to this new life. It is really wearing me down so far but I keep telling myself just hang in there it will get better. I hope you continue to have good health.
Such a strong man & dad, My fiance is diagnosed with Type 1 a few days ago, I was so stressed but when I see people like you guys I get stronger and stronger, Thank you guys, Keep it up. God bless you
Hey Andrea! It's really great to hear from your Dad!
I'm in the same generation, 46 years T1D, diagnosed at 11 in 1973.
But my doctor said, don't worry, you will probably only live 10 years!
Glass syringes, two injections a day with horse needles, urine and tablets....OMG I remember all that BS!
My parents divorced shortly after I became diabetic, and I had no careful monitoring.
We are talking radical adolescent behaviour!
Ketoacidosis at 14 (3 days in a coma), and a number of trips to the hospital (or police rides home) with low blood sugar.
Yet, I can thank my parents for good genes as I have had no significant complications in all this time.
I am still on pens, but using CGM and hoping to get onto an insulin pump this summer(once COVID-10 settles down).
We have two grown sons, ages 26 and 23, and no diabetes in them (so far). I thank my wife's good genes for that!
I really never thought my life would turn out this good.
But, as your Dad has shown, we can do it, and we can do it well.
Thank you!
Oh my goodness Terry thank you so so much for sharing your experience with me and all of us here!! I'm so sorry to hear that you had such a rocky start with diagnosis and then several traumatic events to follow - but right you are - this just goes to show that even with stuff like this happening, we can live long and well!!! It's not always easy but it's definitely worth it, especially with such a beautiful family as yours it sounds like! I'm so happy for you and thank you so much for sharing all of this here and being vulnerable with myself and the entire community here. Sending you so much joy, happiness, health, and safety! :) All the very very best to you Terry!!
Great interview again, I am so happy because I see your father so well with a lot of years with diabetes. Thanks for the video.
Thank you so much Alonso! :)
wow its so incredible how far medicine has come in just 60 years. now we have these little machines that test our blood sugar every 5 minutes and administer insulin on their own as needed. really gives me hope.
Agreed!! I honestly wasn't even aware of how far diabetes tech had come until I sat down and really talked through it with my Dad. Even the thought that there were no BG monitors when my Dad was first diagnosed really blew my mind! Hope indeed!!! :-)
I have been type 1 for 50 years and remember the glass syringes which had to be boiled regularly. It’s sad that even today it’s a struggle just to get Freestyle Libre sensors.
At the moment I am in a battle to get Dexcom G6 and the Tandem X2 pump , I must say the Libre has made a vast difference instead of finger pricking, hopefully the G6 and Tandam will see an end to the biggest problems I have. All the best to all out there who have struggled on for decades and still struggle to get the latest innovations. Peter
@@ShesDiabetic Very poor training as well! And misdiagnosis! My dh was diagnosed as a t2d and treated as such for 23 years until 2002 when we went from stone age endocrinology to an insulin pump in about 3 months.
Good luck and health to the father and you, and good sugars!
Thank you Audrey! I hope the same to you and your family! ❣️
We will need people that are not compromised by money to find a cure for diabetes and cancer.
Am type 1 diabetes and am struggling to find a love partner in my country 😂😂😂 Zambia Africa 😭😭😭
I'm so sorry to hear this!! Please keep the faith - you will find someone who will love you for who you are!! I truly believe this!!
ya me too. since 1964. my mom neasured everything.
Hi Dee! Wow since 1964 - congratulations for living with T1D since then! You're a fighter and an inspiration! Thank you so much for watching! :-)
Love love LOVE this! Similar to you, my mum and i both have T1D (crazily enough both diagnosed at exactly 2 and a half years), mum's now had it for 65 years and me for 27. It's such a special bond to have and how lucky we are to have such incredible parents who just get it
OMG it is SUCH a special bond! Completely agree! I know it comes out of something very difficult but truly I feel so lucky to have that connection with my Dad and point of understanding through him. Lucky Lucky we are! Agreed!!!
In 1985 I was loosing weight thirsty very tired at 18 a neibor told me I believe u got type 1 diabetes like your dad does his mom had type1 too he said I can test you and see what it is he a huge test machine nothing like now he tested my sugar 320 I felt tired he said you got it .iv lived with every since it's difficult to live with now I have complications from it not testing or eating right it's wore me out my shoulders and hips are stiff it don't get better heart problems feet and legs pain constantly.test test test insulin around the clock if u need it .I took 1 shot a day for prob 20 years I didn't test .I passed out while driving and went to a coma a few times got my attention im 56 it's a Hassel pay for insulin test strips adds up nothing free .
Love your work. Please buy lav mics and improve the audio for your hard of hearing audience.
Thank you so much for this suggestion! I've actually bought a new camera that accepts external audio (my current camera does not) so hopefully I'll be able to improve the audio moving forward!!
@@ShesDiabetic Good to hear. I've found your videos amazing and energy and sunny disposition inspirational. I'm so sorry to hear about your father - I watched your vids with him and your mother and then learned later as I was skipping around of his death. My daughter was just diagnosed at 18.5years with type 1 and I am so angry and bitter that I needed a channel like yours to help. Have you ever considered what causes type 1? The idea that our body destroys itself never made sense to me. I am certain that some sort of chemical poisoning from our chemical/medical industry is to blame - and that a cure will never be "found".
I have been a Type 1 diabetic for 56 years. I have had no complications.
THIS! IS! FABULOUS!!!! I'm so happy to hear this - thank you or sharing this with me and all of us here!!! Shows it can be done, absolutely and utterly!!
Absolutely inspirational. Such a powerful story to share. Keep doing it.
I was diagnosed at the age of 5, I'm 47 now. I remember some of the things your dad talked about in the testing and insulin delivery. I didn't have BG meters at first, had to do the urine in a test tube and match the colors. My original insulin was Regular and NPH drawn up in 1 syringe twice a day. We had disposable syringes not those glass one he had to use, I believe I was about 12 when I first heard of pumps.And they were a lot different then than now. Even weighing out the food you ate. Evereything was so much different then than now.Thank the maker for advanced technology!
Thanks for your comment Roy! Wow - you've lived with t1d for a LONG time too! It's quite crazy to think and hear about how things used to be - I find it fascinating and also I'm extremely grateful for the advancements in insulin delivery and technology - especially the CGMS! Wishing you health and happiness! Thank you so so much for watching :-)
I used to ride my bike after I came home from work. One time I was really dragging and when I made it home my glucose was 25. I learned to be more careful after that.
Wow! 25! That must have been quite scary! I'm sorry to hear of this incident, but am glad you're okay and have learned from it! :)
I know that I'm late to the party here, but I just wanted to say thank you for making this video. I was recently diagnosed with T1D and I'm currently 25 yrs old. I can't tell you how refreshing it is to hear from someone who has lived with this for 60+ years. Hearing yours and your fathers story gives me hope. Keep doing what you're doing.
I’m so sorry to hear of your recent diagnosis. No doubt you’re going through a lot right now. But I’m so glad to hear that this video helped you and has given you hope! This is wonderful! I too take a lot of inspiration from my Dad and am so glad I could share this and his perspective with the community here! Thank you once again and sending you strength in this time of getting to grips with your new diagnosis, and indeed always! ❣️
I was also diagnosed at age 15 (i'm now 50), I used the 1st generation glucose meters and the test strips for urine where you match-up the strip with the color graph on a vial.
Wow, so incredible!!! Well done to you for being such a warrior for so long!! You are AMAZING!!!
Omg you need to turn this into like a regular thing 🤔😂❤️✌🏻🙌🏻 he is the best
I'm gonna try to get more content over Thanksgiving and Christmas with good old Pops!! :) I'll be all like "Hey Dad, we just had a Thanksgiving feast - what's your BG!" Bahahahah!!!
Your dad reminded me of myself. I've had type 1 for 44 years. They had disposable syringes in 1975 ( I was also 15 ), but I did have to use the keto districts in urine until I got my first bg meter in about 1978. Thanks for his insight.
Oh wow - you are a WARRIOR! 44 Years! You should be so proud of yourself. Thank you for sharing! 💙
I’m with you Bob. I was 6 in ‘74. TD1 for 47 years & remember all that.
I have been Type 1 for nearly 30 years I was diagnosed late age 43. I had lost 60lbs in about 6 months whist eating like a pig! I had ketones in my blood etc. I tried the pump for 8 years an could not get my A1cs below 9. I met a Doctor who was an endocrinologist, and the first thing we did was to unhook the pump and go back to Injections, I should mention that the Doctor was a type 1 himself.. My Aics are now 6-7 and I do not feel like I have a monkey on my back. I found the pump intrusive and a nuisance. Changing the infusion set every 3 days was a nightmare for me as well as the cost with no insurance. Its true to say that I did change my diet drastically which has lowered my bolus insulin needs by 30% but for me with New insulins such as "Tresiba" my control is excellent. I also have been using the "Freestyle Libre" system which works great.
Thank you so much for sharing your story Brian! It just goes to show you that everyone is different and their needs are completely individual. I’m so glad you’ve been able to achieve such excellent control and have found what works for you!! This makes me very happy indeed!! Wishing you all the very best!
@@ShesDiabetic Thanks as you know it's not easy living with diabetes type 1, I completely eliminated wheat and grains from my diet 3 years ago hence the need for less insulin, I believe type 2 diabetics should do the same, its the only way to lose weight.
"Type 1 Diabetes doesn't come with a Manual, it comes with a Daughter who never Gives Up" !!!! 😀😊😂😂
😭🥰
Gracias por compartir. De todos modos no sé si podria cambiar a la bomba de insulina! y al estar mirando todo el tiempo el monitor de glucosa y contabilizando todo
Your podcasts are excellent. Five *****. Your interviews with Dad and Dad/Mom are really special. Please stay healthy in the COVID-19 Pandemic and diabetes. And, continue making you podcast as time allows. :)
Your are so upbeat a person.
I got diagnosed at 62.5. About 4+ years years It change my life completely. You casts are informative and supportive. Great job. :)
I go back and watch this every now and then, watch your diagnosis story video, and listen to your Type 1 on 1 interview on Spotify. Your dad clearly had a positive impact on your life. He was a beautiful and amazing person, and so are you. The ways he taught you to view your life with diabetes are the ways everyone should look at life: beautiful because of the pain, not in spite of it. My dad is my diabuddy too, and I am so grateful for that. Thank you so much for sharing your experiences in the way you do!
Thank you so much for your super kind and loving words here. You have a diabuddy Dad too - oh they are the best, aren't they? My Dad gave me (and continues to give me) so much even though he's not physically here with me anymore. It's a special bond we all share when we walk this earth together - plus add a thing like diabetes to that mix and it's even more profound. Thank you so much for listening and watching and being so supportive and sharing your kindness. I wish you and your Dad just all the best and most wonderful things!! 💙💙💙
Diagnosed Feb 1974 @ 10 years old & like your dad heard don't worry there will be a cure & 50 later still waiting
I hear you...I don't get excited when I hear research because I just feel like it's just always a bit of a let down and I don't want to waste my energy getting excited if that makes sense? 😢
Your dad is just like mine was… the most lovely person, my dad was a guiding parent although he was not diabetic (That genetic characteristic came from my mum who has MS so I believe that is where the autoimmune thing came from)
I remember using (I still have it somewhere) a photometry-based glucometer, where one used disposable strips similar to the urine test ones and, after a minute, washed off the blood and then measured the intensity of colour on the strip by placing it on an illumination window on the device. I too remember using the zinc suspension Protaphane long-acting insulin. Let's hope later generation diabetics can one day say they even remember wearing a CGM or pump. Interesting research which confirmed the possibility of in vitro transformation of autologous monocytes into glucose-sensing and insulin-producing cells and which could be reintroduced via the portal vein to reside within the liver and normalise glucose levels in diabetic animals, as well as many other approaches, holds much hope for the future. Let's hope young diabetics don't have to wait 60 years for that to happen. Of course, the top prize would be gaining insight into what actually triggers the autoimmune response that wipes out the beta cells of the pancreas in DM1 patients in the first place and what specific genes may predispose family members to higher risk, as evidenced by your father and yourself. I too have a family member who is DM1. Great video! One thing you might focus on, if you haven't already, is the huge stress DM1 can have on family members, whether in the case of parents of young children or a spouse, especially due to hypos and how CGMs are changing that.
Great video idea - thank you so much for suggesting it! I will work on this - especially for the next time I can get home and interview my amazing parents!! Thanks Paul! :-)
I have been type 1 for 40 yrs.....and a stageIV cancer survivor for 23 years. I am also an atheist. Modern medicine is the reason why. I am still here. Trust me. I got receipts.
Hi sister iam so glad to hear your and dad video
Can you tell me extra Information about how to control your sugar level
Always my sure level high 350 and I start taking insulin 6 months ago
Hello lovely, I'm so sorry to hear that you're battling highs, they can be so frustrating! Every single person is different, so I couldn't possibly give you the answer to help you specifically, but I would urge you to speak to your doctor and discuss this with him. I do have a few videos on my channel talking about high blood sugar that may help as well. I truly hope you're able to find the answers you're looking for! I'm sending you all the very best!!!!
Pumps are ok to use or they are risky
They are completely safe I've found and have read up a lot about this! They've been a game changer for me and everyone in my family, I must say!!
I also experienced the chemistry with pipette & tablets in tubes to mesure urine-sugar in the late 70's-early 80's. Oh boy, those got really hot when bubbling. I burned my fingers quite a few times with that setup.
IMHO, it was rather inaccurate not only because of the urine not reflecting the instantaneous blood glucose level, but also the quantity of water and urine wasn't that very precise. So was also the color-shade that wasn't very easy to compare. But, still, it was the only test that existed then.
I also used IO/IPZ insuline couple, IO being the ordinary insulin and IPZ the slow one IIRC. Those came from crunched pigs' pancreas I was told. No synthetic insulin at that time. The issue with those insulins was that they were not at a standard 100units/ml concentration and also the concentration between the ordinary and the slow one were different. This meant that at a relatively very young kid (around 10yo), I had to compute proper ml to mix and inject w.r.t to different insulin concentration. I had to quickly master the cross-product recently learnt at school (and got quite good in mathematics by the way I suppose :) ). I also did learn to put IO first in the seringue and then the IPZ to avoid contaminate IO with zinc (retardant). I did a lots of summer-camps with other diabetic-kids (hiking in the mountains, sleeping under tents, etc.) to get autonomous with the condition.
Later we had urine-test strip. No more chemistry, but still hard to evaluate color-shades. Later the urine-test were replaced with blood-test (and that bloody -- pun! -- hurting finger-pick machine), but still color-shades based. This was more precise I guess.
Later then appeared some (huge) electronic device that had a light-sensor able to read the color-shade and produce a number (or was it crosses... oh no, crosses were for the acetone level with an other urine-based test).
Then, in the 90's appeared the insulin pens, and the multiple injections per day scheme for me (one in the morning the other in the evening).
By y2k I switched to insulin-pump (Minimed) and was introduced to FIT (Functional Insulino-Therapy -- ie. carbs counting).
And by 2024, after 40 years of type-1 diabetes I am now in a semi-closed loop with the insuln-pump and a CGM. This is almost the artificial pancreas the doctors were predicting to arrive soon in the 80's. I hope improvement will appear faster for new diabetic people.
I think the next revolution will not be machine-based, but biologically-based like in a way to (regularly?) "refill" the pancreas (or some other proper place) with artificially created and immune-system neutral Langerhans cells. These will be the perfect closed-loop we are missing.
Thank you for this video. I have had type 1 for 52 years so I understand everything that your dad has gone through. The new technology is amazing compared to where we started.
I've had Type 1 for 16 years i thought that was a loooong time
It is a long time! 16 years is awesome - you're a warrior! But also - I know what you mean!
I am 17 years old and was diagnosed last summer about 8 months ago and it still feels like my whole life is falling apart. This gives me so much hope. He looks so content eventhough his therapy was so difficult back then and must have had a even bigger influence on his life because of that. I am so grateful to be able to grow up in a time where sensors and insulin pumps are available. Thank you for sharing your story!!!
Hi Lena! I’m so sorry to hear of your recent diagnosis and that you’ve been within such a battle and feeling of your world falling apart. I really hope you feel this when I say - this SUCKS and I’m so sorry, but also I PROMISE YOU this is completely normal, and will pass and you will get used to this and find more space for yourself and your feelings with this disease. I PROMISE YOU THIS. I also applaud you for taking to the internet to research and make connections! This is the single most important thing I think - that you know you are not alone ❤️. I really thank you for your kind words and will share them with my Dad. He will be so pleased to hear them - I’m sure of it!! Thank you once again and sending you strength and joy!!! 🌟
@@ShesDiabetic Omg thank you for answering and your kind words:) I really appreciate it! 💞 Everything has been so great the past weeks:) I met some other T1s in person and it totally changed my perspective about it! It is always so inspiring to know that you are not alone and have such a supportive community! And even If it is not always easy T1D has already taught me so much about myself and my body. I have learned much about nutrition and fitness and what I want to do in my life. 😋 #youcandoanythingwithT1D
@@lenaelisaaa I am 30 and was diagnosed t1d at age 14 and I was totally an immature/rebellious doofus for sure and I was really mad for a long time about it but I eventually got over it and realized upholding the utmost attention to my glucose levels and developing the best method for me to stay within a good A1C is really the most important thing in my life. One thing that allows me to keep optimistic is thinking about how much worse the situation can be and how others overcome much more difficult adversities, not to downplay our disease lol. I know it's hard to really listen to all the people that give you advise especially random strangers but I had seriously the worst attitude and was the absolute worst kind of person to take on all this responsibility. You can do it. It actually made me a better person I think. Good luck to you!
I was diagnosed at 12..im 41 now. I remember these testing methods...finger stick needles were like swords
Indeed! I’m so sorry you had to endure that, but so so glad the technology has improved 🙏🏻 You’re a warrior!!!
I also prefer vials. With pens I got a lot of misfires and I couldn’t do .25-.5 unit shots.
That’s interesting! I always say whatever works best for you! ♥️
Man I want to be friends with this dude I bet he's one of the coolest people
I can confirm...Yes...my Dad is...the absolute best - thank you for being so kind 💙💙💙
I've only had Type 1 diabetes for 50 years but I can well remember my Dad having to boil his needles and occasionally sharpen them on a whetstone. I can also recall the absurdity of urine tests that took several minutes to perform and which gave you info of negligible value. I imported my first bG meter from England as American meters were at the time very difficult to use and woefully inaccurate. Even the best English meter at the time took around 2 minutes to assess the test strip and accuracy was poor.
Great video! I can relate to your dad and his memories of living with Type 1 diabetes. My T1D diagnosis was in 1963, and I still remember using Clinitest and Tes-Tape for urine testing. I started out with one morning injection of Lente insulin and progressed to multiple daily injections in high school. I began using a glucometer around 1980 and switched from MDI to an insulin pump in 1999. That was a big improvement over 4 to 7 daily injections.
I couldn't agree more that the CGM is the big game changer. I have hypoglycemia unawareness and have vivid memories of insulin reactions over the years. These include waking up in the emergency room after slumping over the steering wheel with the car still in drive. In 1968, during my freshman year in college, I came home for winter break. My mother prepared frozen food for me and my brother to eat while my parents vacationed in the Caribbean. One evening I put black raspberry ice cream, rather than the frozen casserole, in the oven. My brother still talks about that. In 1978, while attending a conference in Columbus, Ohio, I passed out in the hotel restaurant while ordering dinner and woke up in the emergency room. The nurse told me my BG had dropped to 14 mg/dL. Do any other long-term T1Ds have hypoglycemia unawareness and memories of severe hypoglycemia?
Hi Marty - oh my goodness I'm so sorry to hear of your struggles with hypoglycaemia unawareness. That must be incredibly scary for you - and I can see CGM being incredibly helpful for your specific situation. Hopefully with CGM you are able to avoid these type of scenarios and live a more full, and relaxed life!! Thank you so much for sharing and I just applaud you so much - you're a T1D Warrior - I'm in awe!!! BRAVO!!!
Oh, yeah! Many many episodes involving high and low bg especially since we never measured food at all. We were on 1 and then, 2 shots of Lente and later switched to NPH. We never were taught MDI or carb counting. I didn't even find out about glucagon kits until 1997! We learned about insta-glucose a bit before that (about 1994, I think).
He is a role model for all of us young T1Ds. Has he had any complications?
My husband has been type 1 for 44 years. Since he’s retired he’s had such a hard time regulating his bs he had a very active hard outdoor job ate all day long just to keep his blood sugar up. Now he eats very little actually and us not active at all due to handicaps I don’t know what to feed him half the time any suggestions to keep him steady.
Thanks for posting this! I'll be 60 years T1 in 6 months! My early care was identical, spoons of butter , gram scales, etc..
What a cool resource. To have your father totally engaged and caring for your diabetes as you grow up. My grandfather had diabetes and used to lay his insulin needles and syringe is out on the sink and he filled them Up every night, one for when he went to bed and then one for when he woke up in the middle of the night. He to tested his urine. I didn’t have to live with that catch by had a blood close glucose meter from the start catchy and when we went from needles to Pins. We both got diabetes at the same age catcher and He went on insulin right away and I went on insulin within a few years. We both were insulin resistant and yet insulin-dependent. Our bodies just Did not make the insulin we needed and often when we would get it it will not absorb. It just wore our pancreas out. In the last two years I have learned that Cancer and Radiation really messed up my numbers are and I had to pivot from quick to point with agility. Now I will be going on a pump and I can avoid as many shots a day as I was taking. I do think of diabetes every day, every hour as I often play catch-up and it does teach you much, not always things you want to learn. What was that saying from the 80s reality bites. I should be getting my pump this week and it will be coming direct to me in the mail and then I will call Michael educator and go in and begin the process of setting things up. Actually I am really excited about this. No more of being all over the place. Not being as afraid of Food every day. When I first got diabetes it was really depressing to me and I needed to find a diabetic support group and that made it huge difference. Has John Donne said “no man is an island.” No I had today got cancer and my resistance went through the roof it was encouraging to find out in my cancer group that other men experienced the same thing. Your father is to be commended. He did a great job raising you. Thank you for this video.
Thank you so much for sharing all of this Tom. I'm so sorry to hear of your battles with cancer and the knock on effect that's had on your insulin resistance. It sounds like you are balancing a lot, but it also sounds like you are doing it with a wonderful spirit of hope and determination. Your choice to go on the pump probably wasn't an easy one (it rarely is for people, I've found) so just making that choice and being brave enough to make a massive change when you've been used to another way for so long it to be commended in a HUGE way. I hope (and have a great feeling) that it all goes well for you, and you experience a new way of life that is significantly improved! I also thank you for your kind words on my video. My Dad is indeed a wonderful man, support and resource to my Brother and I (both Type 1 Diabetic). Sending you so much strength and positivity, and wonderful wishes for a smooth transition onto the pump!!
I was diagnosed in 1998 age 12 and since then in Greece I have lived with urine test strips , my first blood glucose meter and glass vials that were a problem as I remember , being in Egypt in 2001 and my vial dropped and broke. Life is better now with pens and cgms. I am absolutely with you.
Totally agree - though life is not perfect with all this tech, it's certainly more doable and for that I'm so so SO grateful!! 🙏🏻
I think your videos are the best!. You are very thorough. This particular video with your Dad was extra special.Do you think your diabetes was inherited from your Dad's side of the family? Are there other members in your extended family tree that have type1 or type 2 diabetes? I had been using the Dexcom G6 system & unfortunately I had a problem with my mail order supplier. So I got in touch with Dexcom bc I was hoping they could get me switched to a new supplier . They told me thay had done that & then when I went to the prearranged local pharmacy was told that Medicare would have to approve it. Medicare had been covering my Dexcom supplies when I was getting it through the mail order supplier. So I don't know why it has to go through some long drawn out process just simply to switch from one supplier to another. The local pharmacy said it could take 3 weeks to get approved. I was loving the Dexcom G6 so much & really miss it. It's a game changer! Please continue your excellent videos. You're the best! Btw the apple didn't fall far from the tree! Your Dad is pretty great also! May God be with you in all you do.
This bring back so many memories... I was diagnosed at 7. I remember the urine tests. The thick needles and my first portable blood glucose monitor (a plexiglass box with an optical reader).
In the very beginning it was even mixing the chemicals and boiling the mixture over a flame.If non-zero result: empty the bladder, drink some water, and test again 15 minutes later.
The arrival of humalog insulin was actually for me the first big game changer. The previous (animal based) insulin caused antibodies to capture the insulin and release it at very unpredictable moments.
The artificial pancreas (which is now a reality - with still room for improvements) was predicted since the 70-ties as arriving "soon". It took a long time arriving, but at least it has beaten grid ready nuclear fusion (which has remained 30 years in the future since 50 years).
And yes, mothers were in those earlier days very important. Current technology definitely not only helps the diabetic kid, but also their caretakers.
Thanks for sharing how our "normal" was so different from the non-diabetics.
Thank you for sharing Peter! That's so so interesting about the animal based insulins releasing at unpredictable moments - I never knew that! I'm so grateful to be alive in this time because of all the amazing technology we have access too - truly what a time to be alive!!
Thanks
Great, simply great video.
All the best.
I was diagnosed in 1985 and I remember testing urine with a test tube 😁 loved it when pens came. I have good control now but teenage years were tough and now I'm on dialysis. Thank you for the video it was very inspiring. And your dad is wonderful! My dad was also type 1 and it helped me a lot to not feel as alone with the disease. He used to call it the monster with many horns 😜
Hi Katherine! Thank you so much for your comment! :)The master with many horns - ha! Yep that sounds about right!!! Well done to you for living so long with this disease! I'm so so sorry to hear that you are on dialysis, but I also know that for many people dialysis is one of the best things that has ever happened to them because they feel so much better after having been put on it. But I also know there's a time commitment and potential fatigue that comes from it too. All I can say is that you sound strong and awesome and positive and I'm really inspired by that! Thank you for watching and commenting! :) :) :)
Very informative. Your dad is awesome. I've been type1 for 20 years. Used to be on dexcom. Unfortunately I changed my insurance and now this company won't cover it. Dexcom is a real life saver. Kinda makes ya feel normal. Thank you both for this great video!
Thank you for your kind words Robin! I am SO SORRY to hear the your Dexcom is no longer covered...oh my goodness I’m so sorry! That absolutely and utterly sucks! Will the cover any other CGM’s? I’m just really sorry to hear this and completely know what you mean about the Dex making you feel normal - I’m the exact same way and don’t know what I would do without my Dexcom...I hope you find something else that works for you..Sending you strength! You are AWESOME!!! ♥️
I was diagnosed @ 24...55 now, very up lifting!!!!!
15 years n counting...man
Has anyone else ever pricked their finger to test then squeezed your finger and your blood squirted to the ceiling? It's happened 3 times to me it was pretty freakin cool, it obvious wasn't a huge stream but still really cool
Your Dad is a wonderful model. I am curious, what was his HgA1c target with pen injection and what became the target number with insulin pump? Any changes?
I don't think there were any changes, no, but I do know that his control became far tighter when he went on the pump, and thus the A1C's decreased naturally. Hope this helps! :)
A big thumbs up to you and your dad for an excellent video.
I was diagnosed with T1 nearly 50 years now and my father and younger sister were also T1 so
my life has been very similar to what you and your dad talked about.
My father was diabetic when I was born and I remember my mother toiling test tubes on the
kitchen stove about once a week to do a urine glucose test. There were no kits for testing
back then and you basically had to try to replicate what would be done in a clinical laboratory
even to test for glucose in the urine.
My sister was diagnosed when she was in junior high school and by then there were kits but
only for testing the urine. It wasn't until shortly before I was diagnosed in the late 1960s that
it became possible to test your blood at home.
Also by that time there were disposable syringes that made life a lot easier. No more boiling
syringes or storing them in alcohol between uses. So I was actually pretty lucky.
As I approach my 50 year anniversary I'm still relatively healthy and continue to work about
20 hours a week and I attribute my good health to the fact that I have carefully monitored
and controlled my blood glucose levels for to the best of my ability.
I'm very excited about CGM having recently acquired the Libre and since I'm seeing a "dawn effect"
like your dad I'm thinking about switching from MDI to an insulin pump provided my
insurance will cover it.
Thanks again for the excellent video.
Thanks for interesting videos.
Well composed in subject and lenght.
I have 54 years(so far) as type 1 diabetic.
Diagnosed 2 months before my 6:th birthday.
So I have traveled almost the same road as your father.
Today I have the Medtronic 640G and the integrated CGM.
So I told a friend that I almost feel like a normal human beeing.
But the accuracy of the Enlite sensors are a concern.
Had Animas Vibe and Dexcom G4 for a period and the Dexcom was much more realible both thecnically and accuracy towards the blodsugarmeter.
Hi Jonas! Thank you so so much for your kind words and for watching! Major congratulations to you for not only living with but totally thriving with T1D for so many years. This is an awesome achievement, and obviously a testament to your hard work and dedication to taking care of yourself and managing the disease, no doubt! I totally hear you on the Medtronic Enlite sensor inaccuracies. I tried that system for a while, but couldn't achieve accuracy with it, and thus I abandoned the Elite system altogether, but still use the Medtronic 640g pump. As I'm sure you can tell, my Dad and I are both huge fans of the Dexcom system, just wish it worked in combination with the Medtronic pumps!! Thanks again for watching and wishing you a wonderful, happy, healthy day!! :-)
T1D used to be a death sentence.
Over the years technology and dietary advances have aloud it to be a lesser sentence. Exponential growth in tech and dietitian makes it less and less everyday. We can do this people, my Nona lived till 96 and she was diagnosed in her 30s.
Wow, that's so amazing about your Nona! 💙 And also - you're so right, about what it used to be and what is it now, very much changed by the technology we have access to! Now I just hope we can get ore people access to this amazing technology!!! 🙏🏻
@@ShesDiabetic
I am very excited about stem cell therapy because it no longer requires aborted fetuses. Can't wait to take my last needle.
Just wanted to say that I am thankful for this video (and your other ones, they're excellent), because it helped me feel even more grateful for the technology that we have access to. Dexcom G6 has been a game changer for us, with a 5 year old newly diagnosed with T1D around 10 weeks ago. Still working on getting her a pump, but honeymoon stage is making that impossible right now. But hearing your dad talk about large non-disposable (painful) needles and no blood glucose monitors, well that's just unfathomable for me to think of raising a 5 year old back then. Can you imagine? I can't. Also helpful to see how healthy he appears after living with this disease for so many years. I wish him long life and great health.
David.
Well I pretty much agree with the herd here in saying thank You for taking the time and putting this video together. I want to thank Your Dad (sharp Guy) for sitting down and talking about His struggles with being type 1 like Myself. I feel so much better after watching this. I try to tell People that the hardest thing about being diabetic is that You never get a break away from it, it is there
24/7 and if You don't know You just don''t know. I can tell that Your Dad just has a great outlook on this problem and I can tell He was a great Dad. You are lucky to have such a great support Person or someone who knows what You are going through. Anyway thanks again and cheers.
Hi Charles! Thank you for watching and for your extremely lovely comment! I will definitely pass along your kind word to my Dad. I'm very grateful for his positive, even keeled outlook and I think it has and continues to served him very well in his life. I take inspiration from him and therefore wanted to share this with our community here!! Thank you again!!! :-)
Thanks for having ur dad share. It did make me feel better about my future. Fyi...type 1 for 12 yrs. Most diabetics I know of like ur dad, it's really a grim situation, so having ur dad as proof that it can b ok is great to know
Hi Lala! Thank you for your kind words regarding the video! I totally know what you mean about a lot of other long term diabetics having quite scary or grim outlooks and realities. Though I know this is the case for a lot of people - I think it's really important to highlight the alternative outlooks and realities too! Also there's a lot of fear mongering created by the health corporations, highlighting the big bad complications, and though I think it's important to be conscious of those and strive for better, there are also people living full, long, happy and healthy lives with this disease too!! Anyway I'm so glad you enjoyed the video - thank you so much for watching! Wishing you a wonderful happy, healthy day!!
So helpful, wished you did more like this interviews with your dad.
Thank you 💙 and Me too 💙
You are so so beautiful specially when you laugh or smile 😊
Thank you! That's such a kind thing to say!
You’re Dad is so kind. It was so nice to hear about his experience and his encouragement was so nice! t’s not a death sentence and you just do the best you can one day at a time. A lovely interview!
Thank you - I agree whole heartedly, my Dad is simply the best. Thank you for your kind words and for watching! 💙
I've enjoyed all your videos very much Andrea, but I have to say, this is one of my favourites! You and your Dad touched on so many things; I could listen to a part 2 and a part 3, to this video for hours!! Perhaps the next time you're back home, you can do a few more videos with your Dad. You both provided so much helpful information, and presented in a really encouraging way!! You mentioned in one of your other videos, an interest in one day doing documentaries. I hope one of them might be on Banting! :-) Thank you both for this video!!
Thank you Pokie!! I definitely want to make some more videos with Dad - ASAP! If you have any suggestions for topics you'd like to hear him talk about please don't hesitate to let me know! I want to make the most helpful content possible! I'll see what he knows about Banting, but may not be much...! We could talk about that though! :-)
@@ShesDiabetic Thanks Andrea!! You both have a great chemistry chatting together! It's interesting to me, how he was probably the most helpful to you, when you were first diagnosed, with regards to taking shots, and using the equipment. I'd be interested to know, how much influence and help you now have on him, with regards to taking advantage of the latest technologies? There are other questions too! :-) I like how the conversation really fed of both of you, and not just you "interviewing" him. :-) It was really cool to see some of those old saved syringes too! My dentist's father was a dentist too, and he DID sharpen the reusable syringes in his day!!! Yikes, talk about turkey basters!!
Regarding Banting, I was referring more to down the road when you do documentary projects; perhaps that could be one. :-) Do a trip to Canada and tour the museum, and then follow the evolution of insulin, meters, and where current research trends are taking us, etc.. Maybe not a big enough mass market to pursue such a project, but it would be cool! :-) Thanks again Andrea!! :-) Hope you're enjoying your weekend!
Very well done! It is so good to have your Dad on the show discussing his long term diabetes as it was quite a challenge in the day. I have had Type one since late 1972, and I remember those days like it was yesterday. One of the key things that I have learned in those days is that exercise and diet are the two main components of managing bloodsugars. Like your Dad, unfortunately, that went out the window in my college days as well 😄, but after I got married, had a son, and had a bad episode with my diabetes that landed me in the hospital, I got back on track again. To this day I still exercise regularly and really am conscientious on what I eat and as a result my H1AC's are always in the low 6's. I am so happy and thankful with the technology today, as it really is a game changer! Thank you for this upload, it really brought back memories!
I love your VEGAN coffee cup!
My I heart Michigan cup?!
I have been a diabetic for 34 years and soon it will be 35. I am very athletic and do not have a lot of body fat. I have been mostly sick my whole life and recently diagnosed with Hoshimotos which explains many of the symptoms including fluctuations in my blood sugar for the past 20 plus years. I also have asthma and that has been challenging but so far it is controlled. I say this because I love the insulin pump I have (Medtronic) but because I do not have a lot of body fat I have to go back to using shots because I do not have many good sites. I also just started using the Dexcom G6 and I love it but it becomes very itchy after about 5 days just like my insulin pump after 3 days. The biggest issue I have and really have always had is being in school and dealing with the management. I have had such ups and downs and really want to manage this disease and push away all the tertiary consequences are far as possible. When I was younger doctors used to say that my life expectancy was lower so make the best of it and live as healthy and as long as I can. I met a few type I's that were athletes and had diabetes for a long time but it is always great to hear perspective from people that understand what you are going through. I just stumbled on this channel looking for different insertion sites for the G6 because they advise only to use the lumbar, illiac or hypogastric regions. Thank you for sharing such personal moments and letting us into your life. This is really amazing and gives me hope to not only pursue my goals but to consider living a longer life. I was diagnosed at 18 months and knock on wood so far no problems other than being diagnosed and at risk for every autoimmune disease known to man LOL. I will definitely continue to watch all of your videos and am excited about the content you are providing.
Hi Joseph! Welcome to the family!! Thank you so so much for watching and for your kind words and comments. I’m so sorry to hear that the pump didn’t work out for you, I completely understand the difficultly with lack of good quality insertion sites and am sorry you’ve had to deal with this. I also hope you find a way to deal with the G6 itchiness. I think the Dexcom is the single most valuable piece of machinery in my t1d wheelhouse. This is just my opinion, of course, but yeah, I just adore it and not having to fingerprick! I’m so glad you’re here and have found this helpful. I’m completely delighted to have you here and thank you once again for watching!!!
Ps- I’ve never had a doctor tell me I won’t live as long, or to just make the most of my life, but I do totally understand the sentiment. However, I completely and utterly believe that we can live long and healthy lives by taking care of ourselves and eliminating as much stress from this disease as we can :-)
@@ShesDiabetic I completely agree. I think life is extra stressful with type I but having a community to interact with and express what we go through makes a huge difference. Doctors are changing, the sentiment used to be to tell type I's this so that they understand, now doctors focus on the positive aspects of control and care. I am trying to focus on that too and live the best way I can but the risk for autoimmunity is elevated and it seems like my body is trying to kill itself lol. Other than that I am happy and doing well, finding your channel was really incredible for me and please tell your dad how inspiring he is for diabetics. Your whole family is amazing and I appreciate what you are doing, personally thank you so much.
Hi Andrea. Came across you watching Homeland but your videos in this channel have been inspiring. My grandma and grandpa (mom side) both died of Diabetes in the 80s and how I wish the medicines back then were as advanced as it is now. I always have a soft spot for persons diagnosed with diabetes so I watched all your videos and how incredibly positive you are! I know that diabetes can be passed genetically. I’m 26 now and all I can do is to make sure I eat well, exercise, and pray.
Thanks Andrea! I’ll continue to watch your videos and watch out for new uploads. Take care always and continue to inspire us and thousands more!
Oh thank you so much for your kind words. I'm so so sorry to hear about your Grandparents. It is quite amazing how far the technology has come, and heartbreaking to think of those that we've lost who were unable to make use of it. It sounds like you're doing all the right things - so good for you!! And thank you for tuning it - it's great to have you here! Take good care! :)
I've had diabetes for six years now, it's amazing that the technological advancements for diabetes have changed so much over the years. Ten years ago the idea of a Dexcom or CGM was a complete fantasy. I hope that by the time I get my dexcom, and maybe an omnipod if I'm ready, I'll be in good condition by the time I reach my 30's, 40's, or 50's.
You for sure will!!! There are advancements coming every day and I think it's a really exciting time to be alive in a lot of ways as a result of it!! Of course the ultimate dream is a cure- but until then, these neat gadgets give us so much more freedom than those who have come before and I'm just so grateful for that!!! :) Sending you love!!!
THANK YOU SO MUCH FOR THIS! I grew up with my maternal grandmother a type 1 and I can remember her monitor was like the size of a modern dvd player haha! But, it really was refreshing and motivating to listen to someone who has literally lived through every advancement in diabetes technology and who is able to laugh at what sounds horrifying to a lot of us. It reminds one that despite the highs and lows (pun intended) of T1D, we are very lucky to live in a time where it is easier to be diabetic and we all have our lives due to the technology. Your father is a gem and it was great to see the two of you interacting. Thanks again for great content! PS I have put in a request to see if my insurance will cover the Dexcom G6 cgm. I currently take 5 injections/day (on a good day) and rely on finger sticks to monitor bg. I have done a trial with the G4 and had mixed feelings about it - mostly the size of it. After watching your videos, along with Jen Grieves and a few others, I have decided that the only way to have better control is to have a cgm so I am going to give it another go.
Oh thank you so so much for your kind words Jennifer! I've passed them onto my Dad too, I know he will really appreciate them! It's so true and I take so much inspiration from my Dad and how he's able to keep a healthy mind and spirit with it all - laughing all the way! I really really hope you're able to get the Dexcom G6 - it's so much smaller than the G4 and just an incredible upgrade in so many different ways. I think you'll love it - truly! Mine has changed my life!! PS - I love Jen Grieves - she's the best!!!! I'm glad you've found her channel too!! Big love and strength diabuddy!!! :)
I heard and read the same thing when I was that teenager long ago. Read the headlines Diabetes cure on many occasions raising my spirit and hope. The articles always ended the same. “ Well this won’t be ready for 10 years or 20 years as my head dropped in anger and disgust.
If I sound mad or I did on your last video I am kinda sorta. Let me tell you the true story of the discovery of Diabetes which goes way back to the Roman. You know how the had public urinals and such? Well a physician of that time noticed that flies would gather around certain guys peeing and not others. I’m not sure but curiosity got the best of him and he decided at some point to test it. That person was much sweeter than the no fly guys. Suppose to be a true story which makes sense. They drank lots of wines and such. Anyway, I believe there is a cure out there already but turning it loose would cost Trillions in lost revenue. Think how many industries it effects?? We give billions every year and just a few Mnitors. Granted they changed us for the better but Cmon !! Or. Let’s start donating or taking healthy Pancreases from Donations? Should be a law but we are too goodie two shoes.. O no how could you. Bologna ?? Anyway nuf said, Yea I’m 70 and lived with lots of pain . You wouldn’t believe what I been through. In crazy Ca live alone in a very clean home. My gal friends ay joe. Don’t know how you do it
, I’m ne armed, I have 2 but one is paralyzed due to a big stroke at 44 I thing...... The End.. Enjoyed your Dad. Lil Miss
Joe G., sounds like you really have had your tough battles with your Type 1 Diabetes. I am sorry to hear you had a stroke, but am glad you survived, even though it must make life even harder to deal with. Like Andrea likes to tell it so well on her site, this disease is a 24/7 one to deal with. I have honestly thought that Big Pharma will never let the doctor’s find a cure and/or get it approved and taken to market as it is a major money maker, in the Billions, yes with a B. So I have just made peace with my own Type 1 Brittle Diabetes and I do the best I can each day. Not so easy some days. When my sugars are wonky, I can be ill tempered and simply in a bad mood. Some days I can even feel my own rage boiling. I was diagnosed with my diabetes at the age of 43, one year after a nearly fatal car accident. Well, the trauma to my body and lack of proper follow up led to me becoming diabetic. Each month I had to see my pain specialist, and I would show her my loss of muscle tone, as well as tell her that I felt we were “missing” something. So if you or any of your friends or loved ones are on pain meds for whatever reason encourage them to ask for a simple blood test and urine analysis. The saddest thing, since I did NOT get my blood or urine checked I ended up in the ER with a body that had turned yellow so I thought, oh thank God, finally my liver and gall bladder are giving a shout out for some “HELP, PLEASE”!! The doctors thought I simply had NOT been taking care of my diabetes. I explained I don’t have that as no one in our family has is. Are you sure you are in the right room? Then they told me they were not sure what to do with me until further testing. Finally, one doctor explained that everyone is a bit on edge and not sure of what IS going on due to my blood sugars being so high they were confused as to why I was still alive and/or NOT in a diabetic coma. I was too sick to be alarmed. Besides, there were all of the diabetes commercials that made it look like a “walk in the park”. Little did I know they were only targeting Type 2 diabetes, and Type 1 was a completely different ballgame. So anyway, the trauma to my body at the time of the accident did not help with my recovery as I could hardly get out of bed due to all of my injuries. Well, it is now 15 years later and I have yet been able to find the best choice for control. I have watched Andrea’s videos and she gives hope for all of us diabetics and I am so happy to have found her. Now, seeing her dad and the previous video with her mother I can see how and why she is so well adjusted, happy, takes great care of herself and most importantly she shares her knowledge. I do want to let you know that in the early 1900’s is when they were first seeing signs of diabetes and not having a clue as to what it was or what to do. In the rest homes when patients died in the night they would be covered with ants by morning. I can be outside with my non-diabetic boyfriend in the evenings and I am being swarmed by mosquitos 🦟 big time. Basically, I would just go inside. He would tell me it was because I was extra sweet, and my response always is YUP, I am full of good ole BS!! But moving on, I just want all diabetics to know this is such a bizarre disease as it can take you on a roller coaster for life. I have been doing my best, yet still no control. Also, if ever you get sick to your stomach for hours and you have high blood sugars, just go to the ER as you may be slipping into DiabeticKetoacidosis (DKA). Big news as I had never been warned by my doctors about it. So do what you can to stay in control, or as they told my boyfriend, had he not brought me in I could easily have been found dead in bed by morning. That was a HUGE wake up call. Also, I was in the ICU for 6 nights before they could let me go home. I have now been told an infection, mental or physical trauma, poor sugar control and missing just one shot of insulin can bring on another episode of DKA. Sure enough I have been to the ER and taken to the ICU so many times they call me a “frequent flyer”. But moving forward I am trying the Dexcom6 and so far the first two sensors have been off by 50-60 points, just like my Medtronics CGM and pump, which I finally gave back as it was causing more stress. So time to move on and be as positive as possible, watch what I eat, and deal with the grief of four deaths in family in the last 2 months. 2 were shockers, 2 we knew what to expect. All of this along with 2 surgeries and living in an evacuation zone due to fires that were about 3 miles from our home. So far, no DKA. I guess I just wanted you and others who live with Type 1, that it is tough, but doable. Watch all of Andrea’s videos should you care to as she truly is a shining star 🌟 in our community. I can just see what a rock her father is, plus her mom is so positive in all that she shared. It is obvious where Andrea inherited so many wonderful traits!! Just think how happy our world could be if all children were so well loved and supported to grow up to become independent, healthy and able to take great care of themselves. Diabetes or no diabetes, these are some great parents!! I am so happy to have found them. Okay Joseph - keep up the good fight and find what works for you as we all find many different ways of coping!! Sending ☮️ n❤️ from 🌞 sunny Arizona, 🌴🌵 May you enJOY your day!!
Gastro Gal , Thnx for the kind words. I am sick of this disease as you are.. As most are.. This is a tough disease to cure, n my opinion requires a new part but I was hoping in all this time and monies spent looking for a cure they would have found something by now..
One hallava balancing act is what it is.. drink your water and eat veggies and good lean protein.
Love your Dad so much!
Thank you so so much, me too 😍😍😍💙💙💙
Fantastic video! I love your dad’s positivity, he’s so great! And those needles 😳, I feel quite lucky to live in a time when the treatment and management of diabetes is so much better than even 20-30 years ago. I don’t think there’s likely to be a cure anytime soon, it’s much too profitable to keep treating diabetes rather than curing it, plus, diabetes has so many possible causes that it would need huge amounts of research and investment to be able to definitively cure all the different mechanisms that can cause diabetes to occur, in my opinion anyway. I’m very excited about the ‘smart’ insulins that are being developed at the moment, I think these could potentially give people with diabetes a lot more freedom from constantly having to think about their BG levels, I think it’s something that could really radically change how we live with this condition.
But wouldn't finding a cure be even more profitable though ? :/
Supramate But then it would be a one off treatment rather than something that would need to be paid for over an entire lifetime. I know it sounds cynical and hopefully I’m wrong about this.
Thank you for your comment Sarah! I totally hear you, I do worry that the treatment of diabetes is so so so deliciously profitable for companies that there may not be a huge push, from a financial standpoint to cure it. But I also believe, perhaps foolishly, but nevertheless in the power of people and hope and determination to find a cure. I'm sure it will happen one day, I really am. I too am very excited to see the continued developments in the meantime, of smart insulins, smart insulin pens, smaller insulin pumps, perhaps implantable ones - all that stuff!! Really I think now is a very exciting time to be alive in regards to the rapid development of new products and competition amongst CGM/pump/pen providers to accelerate this! :)
When I was first diagnosed there was only U40 insulin. After a couple years I was able to get U80 and then eventually U100. I remember the test tubes and the chemicals. OMG what a pain. It wasn't until I was 16 that glucose meters became available.
Wow - YOU ARE A TRUE WARRIOR!!! Thank you so so much for sharing! And also what a pain indeed I am sure! Thank goodness for advances in technology and actual insulin!! Keep being amazing my friend - you inspire me!!!
This was so inspiring to watch! Thank you for sharing! ❤️
You are so welcome! Thank you for watching! This is one of the videos I'm most proud of! 🥰
What a lovely guy I could listen to him talk for hours!
Thank you!! I couldn't agree more!! He is the best (in my perfectly unbiased opinion 😋)!
You and your father have such a beautiful relationship. I really enjoyed hearing your experiences. Thanks for sharing 💚
Duuuude there's some paranormal stuff going down at around 10:00 there is a loud thump then a few seconds later you can see a stream of orbs just to the right of your pops! Awesome!! Did you notice that?
You know what, I never noticed that - but you're right...what on earth do you think is going on there???!!! Do you know about this sort of stuff???
@@ShesDiabetic you are so cool for actually reading your viewers comments and replying to them, thanks. I noticed it was happening throughout the video, but I would say I have a relatively high experience with paranormal stuff; it could be a "spirit" of a prior resident of the home, since you are in mary old England and there have been lots of generations. I think tho if you haven't had any sort of negative feeling from whatever it is, then it's nothing to be concerned about. When I lived with my parents we would see on the security cameras a huge stream like vortex thing of orbs that circled the house consisting of thousands and thousands of individual orbs and the stream would change direction randomly it was really weird, one of the times I saw on the cameras it was happening I took a ladder to one of the cameras to try to figure out if it was water droplets or insects or some kind of smoke or mist but I could not feel any difference at all when I climbed the ladder up to the camera. Thanks for taking time from your day. Cheers!
@@MeatMachine69 thank YOU for taking the time to respond to me about this! Actually this took place in my family home in Michigan- but I love the idea of what your written above! I love the unexplainable! Thank you again and I wish you a most wonderful week ahead my friend! 🪄
Wow, great remembrance, I’ve had diabetes for 56 yrs & Larry brought up many things that I can relate to, I didn’t hear much about the insulin changes, I started on U40, which required more insulin than the current U100. I can associate w/the parental help, my Mom & Dad set me on a course of success & due to that I believed that greatly helped me stay active & retire from 2 occupations being EMS/Fire & Industry, I’m thankful for my many blessings! Staying active is the way to live longer w/this disease, thank you for what you’re doing ! Kindness Regards, JG
thank you for this video
He reminds me a lot of my dad. I will miss him so bad when his day comes.
💙💙💙🥰Then your Dad must be remarkable!🥰💙💙💙
@@ShesDiabetic He really is
I am 47 years old and I was diagnosed at the age of 13 and I still do not have a glucose monitor or an insulin pump... I continue with the pen and the manual glucose meter... it should be a guaranteed right once the best is developed treatment available at any time, we continue in the fight! Thanks for sharing
Very good discussion!
Please have your dad speak on the the long term psychological effects of dealing with type 1 diabetes.
Thanks for sharing your journey with us..
My absolute pleasure!!
Great video! Do you know what he typically kept his a1c or average blood sugar at over those years? I’m trying to figure out what a good level is to avoid long term complications, something which he seems to have mastered!
WoW ! I am honored seeing and listening to your papa, more to come..
Thank you so much! 💙
Wow, Congratulations on your 60+ Years!!! I have had it for 53 Years and laughed when your dad was telling how sugars were tested. Blue was good Orange was bad. It didn't give you sugar readings right then and there it was 4 hours previous. The long acting was NPH. I can see your Dad is Insperational. Type 1 Diabetics are having a greater chance for living a long life than before. Awesome Interview!!!!!
Thank you so so much for your kind words and for sharing your insights! 53 years is AMAZING and something you should be SO PROUD OF!! YOU ARE AN INSPIRATION!!!
What a lovely Father Daughter moment heartfelt love your videos
Your dad is lovely! I'm so sorry for your loss :(
Thank you my friend, he was the best, and I think about him and miss him every single day 💙
60, wow! I'm a rookie at only 44 years!
Congratulations!
Wow! Thank you, Andrea. Say thank you to your father. The conversation between you and him reminds me of my old days and encourages me a lot though I was depressed by Coronavirus. I remember 1977, the year when I was diagnosed as T1D. I was 4 yrs old then. But he has experienced much more than me. It’s amazing!
You're so welcome! Thank you for your kind words - and I'm so so glad that this provided you with a little relief within these trying, stressful times!! Stay safe and healthy!!
Had type one myself 50 years and had the same things as your dad! But an exception I never had background insulin until I was 13 I only was allowed 1 injection a day. Great video and was nice to hear your dads views and history on T1's life in the 60#s Them needles where def like Logs and the ones from the hospital I used to run away from! :-) the future of T1'q will only get better for us all I just hope I can fig more things to put into these pumps like are temperature as this effects us all too! Well me it does anyway! My long acting also does what your dads does and raises at night but I do not have a pump so Dexcom alarms me and I have got used to shooting 3u and going back to sleep!
Ah! Thanks so much for sharing! 50 years is an absolutely incredible achievement and I think you should be so so SO proud of yourself!!! And I'm so glad you too have the Dexcom and pump combo that can allow you to live a more relaxed and full life (and hopefully get some good sleep too!!!)
You are good name
Thank you! :)
This is soooo inspiring. Thank you!
Thank you so so much Paulo!! Thank you for watching! :-)