I choose to amputate. I was also the first person to bring it up. I followed the same reasurch path you did. This decision was huge and scary. How ever it was the best decision of my life. We are rooting for you about the crps your in our thoughts and prayers dally. Hang in there sister Phoenix.💥
@@onefootedphoenix I think with time you will get there. It has to get better. If we keep faith and hope alive I think we can get things on A better level togeather.
Your video is interesting. Difficult decision for a young person. I am older. I have learned that with tough decisions...there is always second guessing. The best advice, keep moving forward and living in the present. You're doing well.
Awe! Big hugs! It’s a tough situation to be in! I hope my channel helps you make an informed decision that is best for you! Let me know if you have questions! Happy to help! If in some way all the hard things I’ve faced help someone else, the reason for being a content creator is accomplished! I do this because I want to help others in this unfortunate club to accept themselves and thrive as the learn to rise from the ashes with me :)
Hey one footed phoenix your not alone you have your phoenix family . I waited for five years to decide to have my leg taken off after 5 years of my accident I'm very lucky that someone was looking over me but I decided to have it taken off because never being able to walk properly I still have trouble maybe one day. Hope you have a good appointment with he doctor and everything goes really well . Your awsome hope to see more of your video and people subscribe to you .🌸🌺🙏🌼🙏
How's the phantom limb thing going? Getting better? I am not totally sure but I feel like I've heard you mention having some of that in a previous video?
I am probably much older than your regular viewers, I am 54. But I have been researching amputation because of a failed hip replacement. You are a very brave young person, as I am in a state of terror and I am a combat veteran. My choices are pretty limited, I can drag around a useless, painful leg or have it amputated at the hip. Keep getting better, show this old curmudgeon the way.
Not all amputees can use prosthetics consistently, I’m one of them. But overall, my life is better because I choose to have the amputation. I’m glad you found the Phoenix Family! :)
@onefootedphoenix thank you for your reply. I have found very few options that appear functional in an active lifestyle for an at hip amputation. Most need a nub or vestigial limb to actively function. Do you know of any? In particular, that don't involve an intricate and apparently uncomfortable system of straps and hard plastic molds?
Appreciate your information. I have CRPS as a result of an ankle sprain in 2009. Not properly diagnosed for over 10 years, so it's well entrenched. Standard medication protocol has been ineffective. Now on LDN and transdermal Clonidine, also ineffective. Due to delay in diagnosis, insurance has refused to cover a spinal cord stimulator trial. I suppose next step will be Ketamine. When all these options fail and doctors/insurance refuse amputation as the last viable treatment option, is a CRPS patient just supposed to "suck it up and deal with it"?
I did ketamine, it’s a temporary solution at best for me. There is no true cure so everything will have its downside. Bisphosphinate infusions are the only thing that has worked on me. Every six weeks, very expensive and not covered by insurance.
Unfortunately, I’ve not seen much success come from the SCS models that are out there today. Surgeries = risk of spread for anyone with CRPS. Even amputation isn’t a perfect solution and needs to be done following protocol.
@@onefootedphoenix Understood. When I go in for my next appointment on June 4th, I suspect the conversation will be about Ketamine. Hopefully it will help, but I have doubts that it's an effective long-term answer. After that, I'm pretty much out of other options. Thank you for the response!
@@Brîndușa_D Oh so you want a comment war now, do you? Well, have it your way! You are just promoting my content even more the more you return to comment on it! The joke is totally on you!
I choose to amputate. I was also the first person to bring it up. I followed the same reasurch path you did. This decision was huge and scary. How ever it was the best decision of my life.
We are rooting for you about the crps your in our thoughts and prayers dally. Hang in there sister Phoenix.💥
@@onefootedphoenix I think with time you will get there. It has to get better. If we keep faith and hope alive I think we can get things on A better level togeather.
Great video 📹 God bless you always. 🙏
@@onefootedphoenix thank you 😊 🙏
Your video is interesting. Difficult decision for a young person. I am older. I have learned that with tough decisions...there is always second guessing. The best advice, keep moving forward and living in the present. You're doing well.
You're brave and strong. I'm facing a foot/leg amp. Thanks for your video!
Awe! Big hugs! It’s a tough situation to be in! I hope my channel helps you make an informed decision that is best for you! Let me know if you have questions! Happy to help! If in some way all the hard things I’ve faced help someone else, the reason for being a content creator is accomplished! I do this because I want to help others in this unfortunate club to accept themselves and thrive as the learn to rise from the ashes with me :)
Choosing Amputation sounds like a tough choice to make, you are very brave
Hey one footed phoenix your not alone you have your phoenix family . I waited for five years to decide to have my leg taken off after 5 years of my accident I'm very lucky that someone was looking over me but I decided to have it taken off because never being able to walk properly I still have trouble maybe one day. Hope you have a good appointment with he doctor and everything goes really well . Your awsome hope to see more of your video and people subscribe to you .🌸🌺🙏🌼🙏
@@onefootedphoenix your welcome .🌸🌺
Praying so hard that the CRPS doesn't come back.
How's the phantom limb thing going? Getting better? I am not totally sure but I feel like I've heard you mention having some of that in a previous video?
I am probably much older than your regular viewers, I am 54. But I have been researching amputation because of a failed hip replacement. You are a very brave young person, as I am in a state of terror and I am a combat veteran. My choices are pretty limited, I can drag around a useless, painful leg or have it amputated at the hip.
Keep getting better, show this old curmudgeon the way.
Not all amputees can use prosthetics consistently, I’m one of them. But overall, my life is better because I choose to have the amputation. I’m glad you found the Phoenix Family! :)
@onefootedphoenix thank you for your reply. I have found very few options that appear functional in an active lifestyle for an at hip amputation. Most need a nub or vestigial limb to actively function. Do you know of any? In particular, that don't involve an intricate and apparently uncomfortable system of straps and hard plastic molds?
I didnt have a choice, but that being said Im ok with a missing body part and wouldnt think of trying to conceal it.
Pain bad enough to literally cut a limb off. I can't even imagine. 😮😢😢😢
Appreciate your information. I have CRPS as a result of an ankle sprain in 2009. Not properly diagnosed for over 10 years, so it's well entrenched. Standard medication protocol has been ineffective. Now on LDN and transdermal Clonidine, also ineffective. Due to delay in diagnosis, insurance has refused to cover a spinal cord stimulator trial. I suppose next step will be Ketamine. When all these options fail and doctors/insurance refuse amputation as the last viable treatment option, is a CRPS patient just supposed to "suck it up and deal with it"?
I did ketamine, it’s a temporary solution at best for me. There is no true cure so everything will have its downside. Bisphosphinate infusions are the only thing that has worked on me. Every six weeks, very expensive and not covered by insurance.
Unfortunately, I’ve not seen much success come from the SCS models that are out there today. Surgeries = risk of spread for anyone with CRPS. Even amputation isn’t a perfect solution and needs to be done following protocol.
@@onefootedphoenix Understood. When I go in for my next appointment on June 4th, I suspect the conversation will be about Ketamine. Hopefully it will help, but I have doubts that it's an effective long-term answer. After that, I'm pretty much out of other options. Thank you for the response!
@@markihde4381 if ya need a supportive person to talk to I’m here! Chin up & hope for remission 😇
Up
What?
Guess I'm lucky I didn't have to choose.
@@onefootedphoenix Honestly, I think it's just "normal" to me.
I don't even understand why is this in my feed...
Maybe so you can watch interesting videos made by an amputee!
@onefooted Don't think so optimistically...
@@Brîndușa_D Oh so you want a comment war now, do you? Well, have it your way! You are just promoting my content even more the more you return to comment on it! The joke is totally on you!
I am interested only in your video related to your amputated half brain, please!
And the jokes are really on your pittiful channell...