Bella's Reality (Pfeiffer Syndrome)

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  • Опубліковано 23 вер 2017
  • Bella is diagnosed with Pfeiffer syndrome, a condition that affects the shape of her skull. She wishes that other children would just say “hi” and accept that she’s a normal kid.
    Bella is so typical she even quits “Candyland” when her Dad is winning.
    SBSK Patreon: / sbsk
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    Behind the scenes pics on IG at / specialbookbyspecialkids
    SBSK updates on twitter at: / chrisulmer

КОМЕНТАРІ • 620

  • @glowworm2
    @glowworm2 3 роки тому +1097

    Bella is extremely smart. She told a very sophisticated joke for her age. She's a lovely little girl.

    • @MsLarry111
      @MsLarry111 3 роки тому +11

      how old is she?

    • @glowworm2
      @glowworm2 3 роки тому +45

      @@MsLarry111 I think she was 5 when this video was made. She'd be about 9 today, if I'm not mistaken.

    • @elijah-jajah
      @elijah-jajah 2 роки тому +53

      @@glowworm2 yo she is 5? dang she smart

    • @chiaravischi
      @chiaravischi 2 роки тому +9

      @@tyler-bb6el you're not welcome here.leave this comment section.

    • @glowworm2
      @glowworm2 2 роки тому +10

      @@virg0_lem0nade Maybe so, but the fact that she knows it's a joke and that it's funny at that age is still very impressive to me.

  • @racheltheehermit7314
    @racheltheehermit7314 3 роки тому +293

    She is such a cutie. I’m so glad she can use assistive communication. She has a lot to say! What a bright little girl. Wishing her and her family all the best.

  • @fairyoforbit
    @fairyoforbit 2 роки тому +155

    i love how bella tries to talk by herself even if there’s a speaker in right front of her to use. she’s so cute.

  • @zenoxiiii
    @zenoxiiii 3 роки тому +621

    words cannot express how much i love this child. she's so funny and just all around adorable. I hope she makes lots of new friends and stays happy forever! :)

  • @Clydekid
    @Clydekid 2 роки тому +138

    Omg I love her tiny voice when she says thank you! So precious!

  • @dwilson6769
    @dwilson6769 Рік тому +49

    She is like everyone else but a slightly different vessel. Dad is wise. Only the best parents get the special angels.

  • @hayleyyeager8008
    @hayleyyeager8008 Рік тому +69

    I am glad that he let Bella take her time communicating because she has to think about what she wants to say before she types but I am happy that she learned sign language and is able to speak too! Bella is a smart girl who deserves to be loved and accepted!!!

    • @sophiaesmarcharo9775
      @sophiaesmarcharo9775 Рік тому +2

      😍🙏🙏❤

    • @willow_jayde
      @willow_jayde Рік тому +4

      Chris always gives his advocates time :) he interviewed a 20some year old almost 30 mins, a couple 15s a 20 and a few 5-6 minutes to respond and recorded it. He sat patiently and watched her work her machine, quietly, and kept on asking questions even with all that time between, then he captioned the time she gave her anster at the bottom so we could skip to it if wanted, but alot of folks waited too

    • @hayleyyeager8008
      @hayleyyeager8008 Рік тому +1

      @@willow_jayde Everyone is different and that’s ok

    • @angelinaquilimaco8105
      @angelinaquilimaco8105 11 місяців тому +4

      So I am blind! How is she communicating? What is the machine she was using? I use an iPhone! She is the sweetest little girl ever! I will be your friend Bella! I would love to get to know you better!

  • @dunkinbutterbeans710
    @dunkinbutterbeans710 2 роки тому +66

    i’m glad this man is so patient and loves kids and people even if they’re different mentally or physically. i like the fact that he interacts them with their own level

    • @user-kp8ti7ix4p
      @user-kp8ti7ix4p 3 місяці тому +1

      Bella may be mentally and intellectually the same as other kinds, though. This syndrome often only affects the bones while the brain stays absolutely healthy.

  • @companyowner111
    @companyowner111 3 роки тому +314

    Bella you should let your dad win at Candyland. It isn’t your fault you are too good!!

  • @jnieswartz4878
    @jnieswartz4878 2 роки тому +53

    I love this family! Bella is adorable! Her dad is hilarious and her mom is so sweet n loving. Bella was never a punishment from god. She’s a blessing.

    • @KrystalHarwood-ty7rk
      @KrystalHarwood-ty7rk Рік тому

      sometimes others beliefs are confusing

    • @peppergirlrocks
      @peppergirlrocks 6 місяців тому +1

      @@KrystalHarwood-ty7rk Sometimes some people just like to think in the negatives.

  • @rosanne0569
    @rosanne0569 2 роки тому +203

    Fun fact: the name Bella in Italian means “beautiful”. Just to show that she is really a beautiful human being. Peace and love to her and her family. ❤️✨🌈

    • @JuntosXlaLibertadMileyBuIIrich
      @JuntosXlaLibertadMileyBuIIrich 2 роки тому +7

      In spanish too

    • @dadycreations100
      @dadycreations100 11 місяців тому +1

      not exactly beautiful, wich in Italian is meraviglioso/a, but nice, very nice ..

    • @JoostWasR0bb3d
      @JoostWasR0bb3d 9 місяців тому +2

      ​@@dadycreations100some languages have different words for stuff that they use in different contexts

    • @TaylortheBarbie13
      @TaylortheBarbie13 2 місяці тому +1

      Belle in french too!

  • @clouds1761
    @clouds1761 2 роки тому +126

    It warms my heart that this girl is so cute and amazing! It’s hard to believe that ppl think she’s a punishment from god she is the literal opposite she’s an angel!

  • @JackieHagge
    @JackieHagge 3 роки тому +55

    I’m back again watching this ...Bella is sooo sweet...I can’t get enough!! I love her happiness...I just get happy watching her be happy!! Personally I think she is so beautiful inside and out! Chris - update please!

    • @turkishpunisher6386
      @turkishpunisher6386 3 роки тому +2

      Same here

    • @saidkada1920
      @saidkada1920 2 роки тому +1

      Ok💟💙💚💜👌👌👌👍💋👠👡👜👗👙💝💞👒

    • @KyleCronin93
      @KyleCronin93 2 роки тому +14

      @@tyler-bb6el seriously what is wrong with you, did your parents not love you?

    • @alanmoulet1362
      @alanmoulet1362 7 місяців тому +1

      @@tyler-bb6el the look in her eye make her so much more human then yours

  • @lorelieplum81
    @lorelieplum81 3 роки тому +87

    I'm so glad the comments are back. I adore Bella. Will you be doing a follow up when safe to do so Chris? I feel so sad at the when she gets upset.

  • @erinriley3912
    @erinriley3912 3 роки тому +28

    Going around spreading love in the SBSK comments to celebrate them coming back!!

  • @manestage5403
    @manestage5403 2 роки тому +277

    I can tell Bella is sassy. 😂
    I love her personality and am so grateful she has a device that allows her an opportunity to communicate her thoughts and feelings to us.
    She's sharp.
    Shame on the morons who say that people with medical conditions are cursed by God.

    • @kidwiththekoolaid
      @kidwiththekoolaid 2 роки тому +9

      I personally don’t have a disability but I like to think disabilities are a sign that God loved you enough that he decided to challenge you. And that’s a good thing. (Sorry if I didn’t make any sense. Im not very good at explaining my meaning lol 😂)

    • @Xamy-
      @Xamy- 2 роки тому

      @@kidwiththekoolaid oh bugger off, that’s such an atrocious way of thinking. If that’s the case then god is an arsehole. In reality it’s just DNA replication issues

    • @tamaragabr244
      @tamaragabr244 2 роки тому +4

      @@kidwiththekoolaid Exactly! So many people dont get this!

    • @msca2480
      @msca2480 Рік тому

      Loro sono i salvi

    • @NostalgiaEdits111
      @NostalgiaEdits111 6 місяців тому

      ​@@kidwiththekoolaidThen God is wicked and likes to play with mortals...🥲

  • @pipper70
    @pipper70 3 роки тому +53

    It's so wonderful to give this young lady a voice and see why her family loves her so much.

  • @sherryb7018
    @sherryb7018 2 роки тому +37

    She is a BLESSING!! NOT a punishment. Live well Bella!!

  • @wolfehtreez
    @wolfehtreez 3 роки тому +31

    She’s adorable and I can’t stop smiling at this video 😊😊😊

  • @reggieandenzoschaos7726
    @reggieandenzoschaos7726 3 роки тому +40

    Such a big personality in such a small package. I wish her lots of love and joy

  • @Jenna_Phillips1122
    @Jenna_Phillips1122 Рік тому +6

    She has so much patience and grace. I imagine it must be difficult to understand everything that’s going on but not being able to verbally express yourself. Being aware that your body cannot keep up with your brain must be very frustrating at times. I’m glad she has a system in place that works for her, allowing her to communicate. And I’m happy to see she has such a loving family that is patient with her.

  • @helenfranklin4936
    @helenfranklin4936 2 роки тому +9

    What a adorable smart Child. May God bless this family

  • @supafr3ak4l1fe
    @supafr3ak4l1fe 2 роки тому +11

    What a little sweetie! She is a blessing and so adorable! I love her!❤❤❤

  • @dontcallmethat6515
    @dontcallmethat6515 3 роки тому +7

    bella brings so many people joy with her gorgeous smile!!

  • @betsynicholas
    @betsynicholas 3 роки тому +26

    Bella has many friends here! Such a sweet and smart girl.

  • @sichen7093
    @sichen7093 2 роки тому +2

    Such a loving family! Thank you for raising the awareness 🙏🏻

  • @maryfyfejost8243
    @maryfyfejost8243 2 роки тому +9

    She is awesome! So funny too. Her mum and Dad seem incredibly patient and loving towards her as well.

  • @taniavp4464
    @taniavp4464 2 роки тому +7

    Omg this sweet little girl melted my heart to tears, she's so adorable, smart and funny!!
    God bless her and everybody 💜🙏✨

  • @carolfitzhugh8097
    @carolfitzhugh8097 3 роки тому +9

    Bella is a perfect name for you! Beautiful inside and out. God bless you and your family.

  • @mittensledermann9562
    @mittensledermann9562 3 роки тому +15

    What a wonderful video. It’s nice to meet you Bella, thanks for telling us a bit about yourself

  • @mariadigiorgio7440
    @mariadigiorgio7440 2 роки тому +4

    What a beautiful and darling girl!!! Love her spirit and spunk; she is so precious!!! Lovely and caring parents- such a beautiful family!!!

  • @Heyymynameisjbells
    @Heyymynameisjbells 2 роки тому +6

    Awe i love her. She is incredibly cognitive which is amazing to see! Awe she is just the cutest, god bless this loving family.

  • @JackieHagge
    @JackieHagge 3 роки тому +8

    Please!!! a new beautiful Bella video!!! I wish I could meet her and her parents...such AWESOME people!!

  • @nurafaery9455
    @nurafaery9455 3 роки тому +27

    She is extremely adorable 💗💗

  • @luismorenomunoz7756
    @luismorenomunoz7756 3 роки тому +11

    The work you do is admirable, I love your channel

  • @cjstone3140
    @cjstone3140 2 роки тому +2

    Chris has the biggest and most genuine smile - and a heart as big as Texas!
    Bella is so sweet, smart, and funny and really enjoyed this visit.

  • @tanyahorula1060
    @tanyahorula1060 3 роки тому +21

    Bella must be so much fun to spend time with!

  • @allennewborn936
    @allennewborn936 2 роки тому +3

    She is utterly awesome and amazing. The little sounds are totally decipherable. Context being important of course.

  • @theirbrotherhoodandfriends6101
    @theirbrotherhoodandfriends6101 2 роки тому +2

    Way to go Bella! You're really intelligent! It was really amazing watching this interview. And you have a loving family. May you all have happy life ahead! Sending much love!❤

  • @nindikaur2095
    @nindikaur2095 Рік тому +4

    Beautiful Bella, lovely to meet you. You are intelligent and funny. Your parents are loving and kind people. Much love is in your family. Thank you for sharing. ❤

  • @edge_master69.
    @edge_master69. 2 роки тому +6

    She’s so cute! Her family is so sweet aswell.

  • @edge_master69.
    @edge_master69. 2 роки тому +10

    Her voice is adorable 🥰

  • @beasty_b6967
    @beasty_b6967 2 роки тому +6

    Aw Bella is a sweetheart. She made me smile at my darkest times

  • @morallybankrupt1461
    @morallybankrupt1461 Рік тому +1

    What an angel. God bless her and her wonderful family.

  • @patricksomerville738
    @patricksomerville738 2 роки тому +19

    omg the way she says thank you at 5:05 :) so cute!

  • @dorothyhilsinger8282
    @dorothyhilsinger8282 3 місяці тому +1

    She's so precious ❤❤❤. God Bless her and family ❤❤❤

  • @BrendaMariana218
    @BrendaMariana218 3 роки тому +7

    This just warmed my heart ❤️

  • @tyrahsteele2891
    @tyrahsteele2891 2 роки тому +1

    She's so cute and all your videos make me smile and feel good about my self 🙂

  • @selenagoldberg3318
    @selenagoldberg3318 3 роки тому +26

    Please do a follow up I’d love to hear about Bella again❤️

  • @kathrynoneill5862
    @kathrynoneill5862 3 роки тому +10

    She is so cute. I just love her.

  • @janetandamocha7874
    @janetandamocha7874 2 роки тому +9

    That giraffe joke made me laugh a lot more than it should have :D

  • @aliciasimsxox3854
    @aliciasimsxox3854 2 роки тому +3

    Aww bless her she's just such an amazing human♥️

  • @olafelsberry420
    @olafelsberry420 2 роки тому +3

    She’s got a darkish sense of humor she’s cool. I’m also going to steal her giraffe joke.

  • @ETRNLIZE
    @ETRNLIZE 2 роки тому

    Man I respect you so much, your doing gods work. Thank you.

  • @user4732_
    @user4732_ 2 роки тому +2

    You guys do great work. Keep it up!

  • @davet9900
    @davet9900 2 роки тому +2

    i find her so sweet, would love to give her a hug

  • @dianee8010
    @dianee8010 3 роки тому +4

    What an adorable child! She is very bright too!

    • @krystalharwood7842
      @krystalharwood7842 2 роки тому

      i knew a girl almost like her but she had a tracheotomy. she couldnt talk and communicated just by going *pblllbbbth* with her tongue. she was also very sassy! lol

  • @jasmaya
    @jasmaya 2 роки тому +4

    Her parents are so wonderful

  • @ako_ito
    @ako_ito 2 роки тому +11

    Hahaha "silly Chris"
    I wonder how is this child...
    I am smiling while watching.
    Bless all of you.

  • @elizabethyoungshoeboot9880
    @elizabethyoungshoeboot9880 3 роки тому +13

    She is so smart and funny i love her.

  • @rachealmbabazi7453
    @rachealmbabazi7453 2 роки тому +2

    Thanks guys for the good job

  • @contemplatinggod2791
    @contemplatinggod2791 2 роки тому +4

    Wow, Bella is so smart, am sorry to have thought she probably wasnt🙈

    • @chloeshann8142
      @chloeshann8142 Рік тому +1

      I have so much respect for someone who is open to learning

    • @grasshoper
      @grasshoper Рік тому

      It’s okay. It’s good that you are open minded for learning about people with disabilities.

  • @KeshaIsAwakened
    @KeshaIsAwakened Місяць тому

    I love her personality and spirit. What a sweetheart ❤❤❤❤

  • @Kakwasi
    @Kakwasi 2 роки тому +5

    Beautiful family.i love Bella and Chris

  • @valeriepereira1581
    @valeriepereira1581 2 роки тому

    Such a lovely video and Bella, I love your great sense of humour!

  • @agirl531
    @agirl531 2 роки тому +2

    Dear Bella, No matter what anyone says u are a great person and I hope u live a happy life. 💖✌🏼

  • @freenchrist2935
    @freenchrist2935 2 роки тому +1

    I pray, from this moment on, ALL who see Bella, gives her GREAT acceptance. 5 years from now, that she will LOVE to meet new people! We LOVE you Bella, and accept you as you are!

  • @cosmicindigo2222
    @cosmicindigo2222 3 роки тому +3

    Absolutely precious - the both of you ♥️🤗

  • @electrarain5602
    @electrarain5602 2 роки тому +1

    She is so adorable and I'm glad they have those communication devices so she can talk through that and I also watch another UA-cam channel with amazing parents that have a little one who has Pfeiffer syndrome as well all children are amazing no matter if they have a certain condition or not I just wish a lot of people in the world wasn't so judgmental love and cherish your kids no matter wishing her many blessings and her parents as well and I'm sure she will make friends in time she already has a great sense of humor and a nice personality

  • @melikeczarnowski8340
    @melikeczarnowski8340 2 роки тому +3

    God bless you and this beautiful family

  • @UceyJuceyJey
    @UceyJuceyJey 2 роки тому +24

    I can’t ever wrap my head around any sort of negativity her and her family receive. Her parents are extremely lucky to have such a beautiful soul for a daughter and she’s lucky to have such incredible parents who love her for who she is.

  • @annespan65
    @annespan65 2 роки тому

    Bless you and your family, Bella. You are a miracle.

  • @DoctorF1984
    @DoctorF1984 Рік тому

    She is really smart and her personality ist awesome. She has the right words for every answer. I Wish her all the best from my Heart. She bring tears to my eyes.

  • @ash-gf1he
    @ash-gf1he 2 роки тому +4

    Omg this made me cry, she's so damn beautiful she has a perfect personality she's silly she's just beautiful

  • @seektruth24-7
    @seektruth24-7 2 роки тому

    What a doll! Love to her family as well!

  • @Erock927
    @Erock927 Рік тому +1

    What an awesome little girl such a beautiful soul and a light upon the world. Thanks for sharing I am glad to have had an opportunity to enjoy her presence today.

  • @meimeikoo0903
    @meimeikoo0903 3 місяці тому +5

    I like the host He is so warm.❤

    • @FullTimePatient37
      @FullTimePatient37 28 днів тому

      Yes Chris is amazing he used to teach kids with disabilities and I think his first episode was with one of his students 😊 I've been following him for years he's a master that we should learn from honestly!

  • @georginashanti4605
    @georginashanti4605 7 місяців тому

    She's absolutely gorgeous, sassy & smart. I hope she has made lots of friends & that her friends appreciate her for all her amazing qualities, I really do. 🌼🌼🌼

  • @hellohi4653
    @hellohi4653 Рік тому

    I love bella and her parents, theyre such nice people

  • @gracemusasa6026
    @gracemusasa6026 2 роки тому +1

    Wow. She's truly impressive and amazing. Cheers and love ❤

  • @randomvideos1699
    @randomvideos1699 7 місяців тому +1

    She is such a cutie. it’s really impressive how she’s able to use the device she seems like it’s delightful gifted child

  • @ladyc1226
    @ladyc1226 2 роки тому +3

    She too, is such a Happy and Smart Child...Chris is her friend now..I would like to be your friend as I watch your videos❤ Amazing💯

  • @carrielee711
    @carrielee711 2 роки тому +1

    She is so AMAZING! She's smart and seems to have a great personality!!!❤❤❤🤗🤗🤗 these precious little Angels are blessings and I'm so thankful she was blessed with such a loving family. I know it may be so hard at times, but thankfully, as I said, she was blessed with a great family. ❤❤👍

  • @johnjobin7694
    @johnjobin7694 Рік тому +1

    Hi Bella! You are amazing❤️
    I hope you are doing well❤️
    Sending love to you and your loved ones❤️

  • @gemmalouiserowledge545
    @gemmalouiserowledge545 2 роки тому +5

    She's a gift she's amazing and Jesus she as amazing lovely family ❤️

  • @ceagle1960
    @ceagle1960 3 роки тому +6

    Precious and smart

  • @Colossalbagofbruschetta
    @Colossalbagofbruschetta 2 роки тому +1

    she is just the absolute cutest I love her

  • @Clydekid
    @Clydekid 2 роки тому

    She is super smart they must be so proud of her!

  • @thesilvershining
    @thesilvershining 5 місяців тому +2

    I love this little girl, please do a follow-up episode!

  • @GracieLou626
    @GracieLou626 3 роки тому +2

    What an adorable Angel.

  • @lilo8853
    @lilo8853 Рік тому +1

    Bella is so cute and smart but the best thing is that you be you ! you can see the world of love and being able to get a friendship with people💗❤️💗🌹 I LOVE UR VIDEOS!

  • @fivelions6854
    @fivelions6854 2 роки тому +2

    She makes me smile

  • @nonniewatson4561
    @nonniewatson4561 2 роки тому

    O cannot wait to see bella again... She is spunky and above her time... I had never seen her dad... Bella has a beautiful family and their blessing show

  • @SsVoyage1892
    @SsVoyage1892 2 роки тому +2

    Bella and her family are so adorable 😭 I can’t imagine someone not liking her

  • @brunogigliofreitas
    @brunogigliofreitas 3 роки тому +12

    Bella, u r an angel

  • @user-my8bb6nc1x
    @user-my8bb6nc1x 28 днів тому

    I dont know how he doesn't break down and cry sometimes seeing these kids in such a state

  • @Marissa_loves_Jesus
    @Marissa_loves_Jesus Рік тому +6

    What a beautiful child of God. She’s precious 💗

  • @MRYEMAN
    @MRYEMAN Рік тому

    Such a sweet girl and Chris is so awesome

  • @nusratbintabdullah5713
    @nusratbintabdullah5713 3 роки тому +4

    Wow am in love with Bella little angle. God bless you