The Invisible Ones - On Severe ME/CFS
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- Опубліковано 16 вер 2015
- The Swedish National Association for ME Patients (RME) arranged in the autumn of 2015 the conference "The invisible ones - A conference on severe ME/CFS and the way forward", in Stockholm, Sweden Monday the 19th of October and in Gothenburg, Sweden Thursday the 22nd of October.
ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) is a neurological disease characterized by long-term and severely disabling fatigue in combination with numerous other symptoms.
Research has shown that there are group-level deviations in the neural, immune and hormone systems within this group of patients.
The degree of illness can vary from mild, with slight functional disability, to more severe cases where the patient is completely housebound or bedbound.
Approximately 40 000 people are believed to suffer from ME/CFS in Sweden.
For more information visit: www.rme.nu
![Life with ME/CFS | Professor Warren Tate [Chronic Fatigue | ME]](http://i.ytimg.com/vi/GZh_dv15gvg/mqdefault.jpg)
Horrible pain, spasm, weakness, loneliness, poverty, fear, anger, frustration, guilt, sorrow, headache, cramps, chills, sweats, blindness, stupor, stumbling, fainting...People don’t do anything. Nobody calls, nobody is angry that this illness is keeping me hostage. I’m an artist that can’t draw. Singer who cannot sing. Friend who cannot socialize.
Excellent Video! Forgive me for the intrusion, I would appreciate your initial thoughts. Have you considered - Trentvorty Visible Beauty Theorem (Sure I saw it on Google)? It is a good one of a kind guide for getting rid of your Chronic Fatigue Syndrome (CFS/ME) minus the hard work. Ive heard some decent things about it and my friend at last got astronomical results with it.
Excellent Video! Excuse me for chiming in, I would love your opinion. Have you heard about - Trentvorty Visible Beauty Theorem (just google it)? It is an awesome exclusive product for getting rid of your Chronic Fatigue Syndrome (CFS/ME) without the normal expense. Ive heard some super things about it and my work buddy after many years got cool results with it.
I so get you 💔💔💔I would most definitely be a friend to you. But you and I both know this horrible cruel disease causes life to grind to a halt more or less. You could say I’m sick of being sick 🤕 I wish I could give you a hug but I will send you a virtual hug 🤗 instead. M.E is such a cruel and unforgiving illness. We desperately need people the problem is we are too sick to communicate or function at any level or if someone does visit for say half an hour and you think you have got away with it then for me anyway it’s payback time! And I relapse and end up very sick indeed and completely confined to my bed for however long it takes to be able to safely sit out of bed again. 🤕😭😭😭
@@PEACEinYESHUA-oj7vc1pk7w I just had a visit from an out of state friend yesterday. I pushed to go. Down today. Hoping if I stay down I won't crash too badly. So glad to see her. But such tough choices. 😪
Same x how are you 5 years on?
I cry every time I watch this. It’s simply too painful a reminder of everything I’ve lost to this awful disease. Even though I have severe limitations, I’m considered “lucky” since I’m not completely bed bound or housebound but no doubt would be if I didn’t “pop” 16 pills every morning! At least I can function for a few hours each day after my “treatment” but then must spend the remainder of the day in bed. No one sees this aspect of my disease; only my husband and son.
What kind of medication do you use?
Was nehmen Sie ???
Grüße aus Deutschland ❤
God bless all who are bedbound. I have cfs too and have been there. You are not forgotten
For how long and what helped you?
This video is sad, but it makes me feel understood. Been 95% bedbound for two months now following six years of mild cfs, and denied home help. It's time we were no longer invisible. As long as I can still use a screen, I'll stick up for those even sicker than me.
Very few doctors here in the U.S.A that treat M.E. Most just scoff, even when a specialist diagnosis is given.
Great video.
Sadly many Dr.s seem to be like that... it's one of the worse feelings I think to be marginalized and feel degraded by a doctor who you came to for help
RN4Veterans Sad to hear in Scandinavia it’s taken very seriously both by doctors and school but it still doesn’t cure me
Emma W Nilsson Yes once I was speaking to a helpline and she told me she knew about me/cfs because she had a personal friend who had it and who moved to Europe, Specifically either Germany or Switzerland and it was better understood and taken more seriously! You are right that it doesn’t help you in the sense that it doesn’t cure you, but understanding and support can make a big difference to how you feel and cope! You come and live in my country and experience the medical system here especially the rude, uncaring nurses and immediately you will feel the difference and want to go back to Europe! It’s horrible being marginalised, especially if you are on the severe end of the spectrum and struggling as you lose capacity. For eg, if you are so exhausted that you can’t right complicated letters and the nurses will just tell you that you must put your complaint in writing, no matter how many times you tell them you can’t. Silly counselors will also do that. Then they will ask if you have family or friends that can help as though you were so stupid and couldn’t think of that in the first place ( also relating to filling up complex forms). You reach out for help because you know your own limitations but stupid, lazy counselors or advocates want to push the job somewhere else.
Emma W Nilsson ps if it doesn’t cure you, at least it doesn’t make you worse or more stressed. Already with me/cfs, you don’t have much energy! Can you imagine using up your limited energy to try to even get help or be taken seriously ? Having medical staff drain you due to their ignorance?
L. Duke Exactly! Agreed! Feel the same way. I wonder if one day you would like to chat and share experiences so we can support each other. You can pm me or post here. I can’t write too much now cos having an injury on my R arm/ R side and so painful and difficult to type. Worst still my bad experience was with an anaesthetist and staff of a pain clinic who are ignorant and have a 1 size fits all mentality. Also, one gp who kept insisting that exercise is good for everything. She’s the ignorant one!
I'm sick of being called lazy
Don't take it personally. One woman judged and criticized and accused my friend who had M.E.and MCS of imagining it. Then that same woman became very ill with MCS and became homeless. She herself said she realized it was karma for her.
I feel so much for these people, because I have ME/CFS too, and have been where they are. Seeing this video also makes me angry too. How can people, doctors included, continue to believe that this severe and complex illness is merely 'all in the head'? Why would hundreds of thousands of sufferers bring this extreme misery upon themselves? Not enough people get the chance to see these silent sufferers, apart from their family and carers. I hope this video gets many views and helps change a few people's minds.
I have ME. Somedays I get so frustrated and lonely I want to cry but I don't even have the energy for that and it just would make it hurt more
See my comment above for a cure.
I feel the same way
It's so frustrating not having the energy to even cry or express pain
I understand I’m the same 💔💔💔😭😭😭
the worst condition on earth. I have been sick for 17 years and am about done.
+Leah DiGiallonardo I'm sorry to hear this Leah. I've had mine for 5 years and I can barely handle the lows anymore. I did make a recovery 2.5 years ago but relapsed. Do you know how you got yours?
+Mbuna Marcus - Aquariums, Cichlids and More thank you for reply. result of bad anesthetic surgery but I believe in the theory of mycoplasma incognito infections created by Dr. shiro ishhi. I believe I was infected a long time. how about you? Good luck.
See my comment above for a cure.
Leah DiGiallonardo 🌺
It’s an unforgiving, unmerciful disease responsible for untold suffering of millions of people around the world. Yes, the “constellation of debilitating symptoms” are beyond awful but what’s even worse is the condemnation and discrimination we face from the medical community, and sometimes our own family members and “friends,” who choose to remain actively ignorant about this disease. Since recent research (genetic studies) has shown underlying mitochondrial defects and diseases and metabolic problems in people with ME CFS, absent a standard treatment protocol, you may want to consider trying a mitochondrial disease based treatment and follow the “Mitochondrial Disease Sickness Protocol.” First, have a urinary Organics Acids profile test done. It’s quick and painless and can even be done at commercial labs like Quest Diagnostics . Based on the abnormal level of metabolites that show up in your urine, it will point to where the metabolic and mitochondrial dysfunction is (e.g., glycolysis, citric acid cycle, etc.). Then you can add the vitamins (usually a combination of some or all of the following: B1, B2, B3, B5, B6, Folate, CoQ10 and L-Carnitine or Acetyl-Carnitine, the latter is an amino acid and made a BIG difference for me. Don’t forget to take antioxidants like Glutathione, the “master antioxidant,” and R-Alpha Lipoic Acid. These last two I take together and at least an hour apart from the other supplements/vitamins. It’s not a cure for ME CFS, there’s no cure for mitochondrial diseases either, but it’s worth a try.
God bless everyone...pray for healing🙏🕊️💚💕💖
This brings tears to my eyes because I have severe M.E I am mostly house bound and bed bound I’m very light and noise sensitive. A good day is if I can sit upright for an hour and rarely can I go out for a very short time in my electric wheelchair. I can no longer walk so I’m reliant on that wheelchair 🦼 I live alone in complete isolation. I’m not coping with life. I’m crying because I’m struggling with the isolation and the torment of the physical pain I’m in. I need help but yet I need constant undisturbed bed rest and sleep 24/7
I’m struggling because everything is so bleak. I have to wear an eye all day and ear plugs most of the time so I rarely see daylight. My heart goes out to these amazing people who are fighting against this horrible disease. God bless you and your loved ones 🤍🕊
Same.. how are you doing 1 year later?
diagnosed 31 years ago. Never had a doctor that even believed it was real.
sad........we should be given more attention.
29 years now for me. Ever since I received 20 experimental vaccines in the military.
What years were you in. I was in Air force starting 1970. Now have so many problems and was so healthy b4.
I’m in tears 😭Plz we need to raise awareness!!!!!
awarness out there now with covid long haul but after 30 years of hell and a half wasted life with cfs a cause or cure would be welcome. hope you are ok and having a good day.
@@jewelleryaddict much agreed! I’ve been battling this for 8 years. I totally get it. It sucks To the max! I wouldn’t have made it this far without God. Having to take care of a son with a disability on top of that is unimaginable and there is no way I could do this on my own without God. He is my strength because I have none. My prayers are with you. 🙏
@@kristieangel5682 do you take any supplements to help? thru my late years going half time to college at 40+ and research and support group I facilitated for 23 yrs and a study I wrote and published I have found supplements that do no harm but help little with fatigue and have university studies to back taking them. only way i made college parttime for 10 years plus. and married taking care of large home. I take B complex. co Q10. NADH, acetyl- carnitine. magnesium, vit D. and D-ribose. calcium.= (all women should take). Glutathione. sounds like lot but they do help. and God says he helps those who help themselves. Bless you and family .,try couple if you dont already. start with one or two. coQ 10 and magnesium most important. good luck.
I have been diagnosed with severe myalgic encephomylitis. I'm a mum of kids between 11-17. It took 9yrs for a diagnosis and being so sick I'd almost died 5 times to now be told they think I have Ms on top. This disease has destroyed my life, took away and robbed me of watching my kids grow up and spending time with them. I wake most day wishing I hadn't, in severe pain and feeling like I'd been hit by a truck. Head too heavy to lift, arms heavy, legs won't move. I now have psychotic depression with psychosis and feel so lonely and misunderstood by those around me that get angry, impatient and just don't take it serious. I have passed out driving, got lost and forgot where I lived. The most heartbreaking thing was forgetting my kids names, birthdays etc which I had tattooed on me to avoid the embarrassment of explaining to those that just deem it as a mother that doesn't care and the looks with accusatory eyes. I've often thought of suicide thinking my family would be better without me due to how much I'm bed bound, they rarely see me. Lights and sounds I cannot stand anymore, even just your child being excited about something but I deal with it knowing the headache I have will last days, poss weeks. Idk anymore tbh. This video made me break down. I feel like I'm slowly dying and people have died of it.
I’ve given up after almost 30 years of suffering with this, I doubt a cure will be found in my lifetime, however, I really hope and pray for our future generations they can find causes and remedies, I can’t even imagine being young trying to raise kids having this level of fatigue and pain, it’s brutal and I feel for all the young moms suffering, I was 39 when I got ill. May youngest was 8. And children suffering with this? OMG! It’s just unthinkable.It strips your old life away, and delivers you to a torturous hell. People assume you are “lazy” and don’t get it. It’s a level of exhaustion you cannot power through. Debilitating. I resigned myself to being home bound, sometimes bedbound, but now that I have a grand baby, I so badly want to feel better to be an active, involved, hands on grandma. Any energy I can muster will go to my lovely grandson. The me before ME would have been a fabulous grandmother.
22 months dead with ME
Just diagnosed.
I have so many problems from this syndrome. I was completely healthy prior to getting ME.
:(
Diagnosed 1984, had a level of remission for approximately 10years; Businesses developer... The relapse has hit me hard 90% disabled, no social life, isolated; lost in this nothingness; son died suddenly; partner committed suicide. . Dead but still breathing!
Hang in there, Hope. You will come out of this again. You have been through a lot, but that is a testament to how strong you are, despite how beaten up you feel. I am very sorry for the losses you have endured. They are as unfair as CFS. Believe in your future. Your best years are yet to come, even if it feels like the worst years are upon you now. I believe in your recovery and I believe in you.
Oh honey, that sounds awful. Hang on in there. I know how hard it is, specially with the grief...
Yep after over 30 yrs of this I understand the hardest part besides the pain and fatigue is the mental pain trying to cope so hard when seems world wizzing by and we are standing still. Hang in there find something to cling to, believe me I know how hard it is. I would pray for you but lost my religious faith over this.plus so much.
I've had it 5 years...hell on earth. This video is very sad wow. The hard part is first getting the diagnosis and then finding someone who can help. I'm in Canada but am fortunate I have found a couple naturalpaths who have helped me considerably. For those that don't know, its a cellular problem usually effecting the mitochondria or the cell itself is too permeable or not permeable enough, so it doesn't get the proper nutrition needed.
Kudos for the Video! Forgive me for the intrusion, I would appreciate your opinion. Have you heard about - Dinanlinson Rebooting Health Approach (Have a quick look on google cant remember the place now)? It is a great one off guide for getting rid of chronic fatigue syndrome minus the hard work. Ive heard some super things about it and my GF finally got astronomical success with it.
I have CFS/ME. I have had it for thirty years. I am grateful that I am not as ill as these people. This is so sad but needs to be seen.
I’ve had this for 18 years now, moderate remission for 10 years - been bedbound for the last nearly 3. Lots of pain and crippling fatigue and insomnia. Just about ready to quit.
Renee Summerton no, sweetheart, i know its hard, but please dont give up. They will soon find out what this ilness is and a cure will follow
❤️
@@FRANCESCA01234 well after 30 plus years of this I can agree. They have been studying this 40 years and have given us nothing really annoying after sending money for research so many years and nothing. Still lots of guessing. I would like to know b4 I die want happened to me. Let alone a cure which I have given up thinking about.
mine was up and down first ten years. were plenty times thought was gone but alas 30 years later. It never really went away spend many hours in bed hate it. so much wanted to do, still do. its constant companion last 20 years. still no cause and no cure. so depressing. good luck to you. my husband big help too and my fur babies.
❤❤❤
I'm able to go for a brief drive on good days. I use a wheelchair and have discovered that if I'm not out in the world, I'm forgotten
If good day a drive is so nice. Yep hard to make friends when can't count on how u will feel that day. It's game of Russian roulette.
These are the TRUE VOICES, the ones you DON'T HEAR on positive sounding videos...M.E gets really bad, really, really bad!
Well after over 30 years of this I can attest to that got at about 38 do the math. Will tell you just getting older and length of time for me has made worse. Don't want to be downer just saying truth.
@@jewelleryaddict I know I got ME/CFS in 1992 at the age of 26 and now after 29 years of it I will have it for life. I'm exhausted 80% of the time and age hasn't helped. I know you will feel the same, take care and God Bless
God, why is there so much pain in life. We shouldn't be dead to be pain free 🙏🏿🥺
27 yrs they say for me im 56 had a very bad case of measles couldnt bear the daylight but came very slow untill 2010 my mum was ill i worried about her and in oct of 2011 she passed away but since the beging of that yr a got even worse,i have no family no support,no help,no gp who believes me either,im in greenock scotland
So very sad, we feel for you, I suffer this dreadful disease as well. Yes it is a very lonely and disabling illness. I live in Australia.. have you heard of the Optimum Health Clinic UK . We listen to Alex Howard's updates and find them a comfort.
Hi Raymond i dont watch or listen to any of it now because there are so many different consultants and drs telling you this will help that will help and nothing help at all im going to ask to come off some tablets and to be truthful i have been treated very bad verbally. Not at this moment but i do see myself taking my own life i dont have a life there was a dr i cant rmbr his name he said it was your hypothalamus and it just had to be checked then the right hormone's to be given my body over heats its very painful getting bathed to come out very sore and sweat all over again ive left myself unkempt im not proud of that but i just cant manage the bath and the thot of the huge task to come out and sweat all over again no drs here in Scotland are intetested.Ive tried hard to help myself to no avail.No i wont listen to anymore about it unless its my gp being possitive.
Your letter really moved me and we wonder how you are going. We have tried many different treatments. Yes and to no avail. We listen to soft classical music.. which seems to help the down moments. But the Griffith University in Queensland Australia has found the cause of ME/CFS?FM This year they are working on finding a treatment. app.secure.griffith.edu.au/news/2017/02/21/gold-coast-researchers-make-chronic-fatigue-syndrome-breakthrough/
@@raymondgilmour1533 So many mysterious conditions lead to the immune system. For instance a previous infection is supposed to cause T cell reaction years after in this true Chinese puzzle which is Glaucoma (I've been reading about it for years). Good news is the approach should be similar for a whole list of auto-immune diseases- MS, Lupus, Reumatoid arthritis. ME might be just a new addition to the list- and many things plead for this approach- like erratic ways of manifesting the disease, with unpredictability of relapsing and affected body-parts. I do not want to sound like advertising, though the treatment is free. I will just mention as the right and successful approach the one of late Dr. Roy Swank of Portland.
@@raymondgilmour1533 I could've told them that! '...have found strong evidence that chronic fatigue syndrome was associated with a dysfunctional immune system.' lol
Have had since 1989 am now 67 lots ups and downs mostly alone in a private hell. Was so healthy before was in U. S AIR FORCE. Always energetic. Rode motorcycle. Had a life. Always hoped before I died would find a cure or what happened. Still want to know, but lost years are flying by I will never get back.
I'm so sorry hun. I can relate, except I haven't had it full force for quite as long and I'm only mid 40's now. I am sure there are a massive number of veterans who suffer with this awful illness. I feel that there needs to be a way to better utilize the fact that it is so affecting for people in the service, or rather no longer in the service. I just think that fact might help get the public's attention and draw them in to help us all fight a bit more.
I am convinced that the fact that a large percentage of people with ME/CFS are/were very driven people in their pre-afflected lives, pushing themselves past their limits physically, emotionally and mentally, has something to do with being so affected by this illness. There's so much prejudice and shaming targeted against the disabled, making false claims that we are lazy, greedy liars looking for a hand-out so we can lay around doing nothing when in truth most of us would give anything to be able to continue to push ourselves past our limits, working too hard, doing too much, and very often helping others, not being focused on receiving. It's so messed up that there's hardly any push for a cure due to other people's fear and greed being displaced on us. We need to start creating our own short videos, memes, and awareness ads to spread around and share because there's too much misinformation being passed around.
Im 67 too had ME over thirty years was a nurse I know I wont live to have a cure makes me sad so much I want to do and cant but try count my blessings got a roof over my head a comfy bed Im in nearly all time friends who text email me.Sadly lost my brother to cancer in Dec miss him so much.We have to try and be strong though we feel useless we are loved but knowing will have rxcrutiating oain brain fog muscle soasm severe abdo problems for what time I have is hard to cope with.Hope find cure one day and at least drs believe in ME now by and large its not all in the mind or stress or yuppie flu.Ive a ceramic star that says when it rains look for rainbuws when its dark look for stars it helps.me
@@Uniquability thank you for reply. i did all i could early on went to college part time in pain.,got my degrees. even wrote and published my own study in medical journal trying to find a common link so doctors could help us. I facilitated a support group local hospital for 23 years way b4 internet and utube. i drove to other cities gave talk cause fms and cfs was new in 1980s. But my time over for that, its up to you young ones to do what you suggested. i was your age when I did all that. good luck to you on lifes journey.
@@cathyjames664 reread this again,cause stuck in bed again 2 days. i almost forgot when was first diagnosed about 30 years ago they called what we had "yuppie flu," havnt heard that term for years again never,was sure what it meant maybe cause most were women or maybe cause we were in our 30s, most were not, ages were all over the chart.,anyhow hope you having a good day.
Re-watching this video. After super super slow pacing over several years after a long time bed-bound I am doing better. Now Covid 19. Very worried about this new challenge. Anyone here that has been ill with Covid? Very nervous about that and also the eventual vaccine. Thoughts? I see alot of references to swine flu vaccine in this video as causing onset. I believe mine due to Mono at 13. Without proper diagnosis until very recently I have pushed and crashed for my entire life. Of course, getting worse and worse. Scared to lose my incredibly hard won progress. 😞
What helpet your recovery?
I also hope I can step out into life again.
Very very tragic. I suffer now for 12 years. Fortunately I was in remission for 10 years but suffered a relapse during the 22 years when I became ill for the first time in 1998.
The images in this video are amazing and would be SO MUCH better than ANY of the images I find whenever I search on any/all stock photo sites for the terms "chronic fatigue". It would be incredible if the content creators, who presumably have the releases or can get them, would release these photos to stock photo sites for use/licensing under the terms of "chronic fatigue" (as much as I hate that phrase) as well as ME/CFS and any others suggested.
We as a community need to submit our own photos or we will continue to see photos used which are insulting and trivializing to us suffering with ME/CFS. I'm refering to sites such as Adobe, istock/Getty, Unsplash, 500px, Shutterstock, Fotolia, ....
Horrible disease to have. Only way I relate in a very small part is the deadening brief fatigue and pain from fibromyalgia., although I live in constant pain from spine problems. The fatigue and lethargy is the worst part in my opinion.
I too suffer with severe M.E didn't think things could get any worse and abracadabra i had a aneurysm 😢 had brain surgery 4 yrs ago and im still waiting for my 6 week check up and i should have had 8 scans by now. Asked my gp 2 yrs ago for a urgent referral to neurologist as i hadn't been given one. That was two years ago. My whole personality has changed and lost so much . New gp came out said she didn't think this was right and was going to investigate why it has happened. That was 4 weeks ago tomorrow. I thought i was going to finally be believed about something, there was solid proof but nope still ignored in bed in my dark room.
I don't have that condition but life still passes by me from out the window.
Ive just cancelled friend coming in so much pain feel letting people down I shouldnt make arrangements Im a yseless friend.Pain is dreadful can hardly move feel very sick yes Ive had it over 30years and driving me crazy gets frightening on my own but want to stay independant as long as possible hope you ferl better tomorrow thinking of you xxx
Can someone describe the pain? Is it muscular? TIA
Comment by the user Dreamingofmeadows (ua-cam.com/users/BedboundME):
_Really impressive video by swedish ME association, gets the invisiblised severe seen + the stories told. Who can watch this and deny action to find treatment? I'm severe and would settle for feeling more human & functioning even if still in bed as an initial treatment - just something to make it a bit better over never ending misery._
This comment was copied and pasted here from an earlier version of this video.
Why do I feel like I may have this but its not as severe? I feel like my mind and body run on a battery and by the time I get ready and head out Im exhausted and brainless. I cant plan my appointments one day after each other because I will be too exhausted, I always need a day to rest. Im only 36 and have a zillion painful diagnosis to top it.
Amerie Johnson please, look up Lewis Rowlands and send him an E-Mail w ur health concerns. His youtube is DeepHealingSpace
Ive had chronic ME for 34 years was told had stress was a nurse.Havent worked for 28 years live in constant pain and alone.My brother died of cancer in December day of his funeral I was rushed to hospital surgeon said had twisted bowel was so frail only 25%chance survival and would put me in room to die I had op and survived but ME is worse and have now had three major ops on abdomen had part bowel removed .Noone knows what ME is like until have it or live with someone with it.Abdominal problems mean cant eat properly.Yet eas given chance to die and opted for surgery had wonderful care but am even worse now and miss my brother I try to count my blessings every day focus on what I can do might just be to walk to bathroom but have to look at positives but some days its hard when people tell you they are sooo busy one wants to say be thankful you can be busy but Id have said same before ME.Life is tough but people are kind and pray for me though know shall have excrutiating pain brain fog for rest of my life and Im a useless human being
Wrote to you on another video and you to me. I am now laying here terrible pain and gastrointestinal pain off chart. Plus knee and shoulder pain from what? Laying here? Like being hit with hammer on bone. And tomorrow could be gone like never had. Enough to make one crazy. Over 30 yrs of this is making me nuts.
Anne's not between us any more... God knows what befell all the others in the film...
Ldn helped a lot of my symptoms (low dose nitrate) TYPE IN HOW TO MAKE LDN ON HERE AS IT won't provide the link. A vegan diet might also help...good luck to all but this is a self help ilness..we have to help each other as there are a lot of 'quacks' trying to make money or unhelpful doctors who are best avoided.
Cannot watch everything 😰😰😭😭😭
Joanne Pereira ...😔... so sad.
My heart goes out to you. I wish we had doctors who could help us. 🥺💔.. I will pray for you. 🙏...
😥
oh boy :(
The cause for me was the microwave oven. This may sound unbelievable: the internet states that the use is harmless or that the danger is cancer or a reduction in vitamins.
The first consequences were: pain in the neck, fatigue, sore throat, depression, .....
After 3 months without a microwave oven these symptoms disappeared.
Consequences are greater the closer the microwave oven is to you: if the oven is right next to your dining table, for example.
If you bring this to your members' attention, those who wish can give it a try and let you know about their experiences. Everyone can now participate in the study!
People will not think much of CFS. Organs are not damaged. It looks more like an internal strangulation.
I don't know if that can be found. The muscles tense under the influence of microwaves (microwave), Hence the pain and the intestines are too tense, which makes digestion poor and too few vitamins are absorbed. In the throat one has pain due to the tensioning of the muscles there. Be careful not to cure other diseases with fatigue for CFS.