The new (2021) NICE Guidelines for ME/CFS: Following the science

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  • Опубліковано 16 жов 2024
  • RME (The Swedish ME-Association) holds a yearly conference, inviting among others, scientist from all over the world to talk about their recent finding.
    In this video Professor Brian Hughes,
    National University of Irland, Galway,
    guides us thru the new NICE Guidelines for ME/CFS from 2021. What has change and why? Following the science.

КОМЕНТАРІ • 23

  • @clairenaylor8346
    @clairenaylor8346 Рік тому +3

    As a patient with ME I hold Professor Hughes in the highest regard. As a professor of psychology he's quite the figure to rebut the old presumptions and im eternally grateful for his commitment to stand up and tell it as it is for us as a patient group in a measured and sensible way. 💙🙏💙

  • @vladislavmalinovsky5111
    @vladislavmalinovsky5111 8 місяців тому +1

    Respect for dr. Brian Hughes!! Respect for dr. David 'Paceman' Tuller !!!

  • @rebeccarobb4121
    @rebeccarobb4121 4 місяці тому

    Thank you. I can now refer the NICE guidelines to my primary physician. This is like finding buried treasure to ME/CFS patients.

  • @dianecarubia1099
    @dianecarubia1099 Рік тому +6

    after 20 years with this i now have some hope

  • @slovokia
    @slovokia 2 роки тому +22

    Maybe it’s the physicians that need treatment with CBT?

    • @MackLee23
      @MackLee23 Рік тому +5

      BINGO! If only we had a simulator which produced the ME/CFS "experience". Put these ridiculous physicians in there and leave them there for a month.

    • @chansonette22
      @chansonette22 Рік тому +1

      Indeed

    • @bigbear8645
      @bigbear8645 Рік тому +1

      😂

  • @ginger_rose9745
    @ginger_rose9745 Місяць тому

    this talk gives me hope for the medical industry

  • @erikjohnson4275
    @erikjohnson4275 Рік тому +5

    Holmes 1988 Chronic Fatigue Syndrome specifically lists chronic psychiatric disease as a condition which must be excluded in order to obtain a diagnosis of CFS.
    How did any doctor arrogate the privilege to themselves of ignoring this exclusion? Shouldn't they be struck off for incompetence?

    • @ryanneilcarr
      @ryanneilcarr Рік тому

      ME/CFS isnt about original CFS or ME Erik. They are all con artists.

    • @paulmaurer294
      @paulmaurer294 6 місяців тому

      I'm just an Engineer, but the concept that a person can't have 2 un-correlated conditions at the same time is ludicrous and non-scientific.

    • @erikjohnson4275
      @erikjohnson4275 6 місяців тому

      @@paulmaurer294 It was to make sure that patients with a real disease don't get tossed into the psychiatric trash bin.
      Obviously the effort failed, People fought for the right to be a mental case and won their victory.
      They should be happy.