Dysautonomia in ME/CFS and Long COVID

RME (The Swedish ME-Association) holds a yearly conference, inviting among others, scientist from all over the world to talk about their recent finding.
In this video Professor Peter Rowe,
Johns Hopkins University School of Medicine, Baltimore,
talks about dysautonomia in ME/CFS and Long COVID.

[@cherylallis2458]

Thank you so much for posting this video.
It re-enforces that it is beneficial to me to lie on the floor for several minutes with my feet up on a chair or couch after standing up to get dressed or shower or sitting up to eat.
It would be interesting to know how that effects CBF.

[@cherylallis2458]

Interesting that CBF is reduced even without measurable POTS symptoms. That explains why so many ME patients don't have less fatigue when POTS symptoms are reduced by medication.

[@bridaw8557]

Doctors used to ridicule ME CFS sufferers. These sensitive people tend to have over reactive immune systems. Perhaps more women suffer from these conditions?
They called them similar to hysterics. Now we know better. When psychological symptoms in response to the symptoms. The severe pain which doctors would say is psychogenic.
We’ve all had past trauma but these kind of people are more sensitive from childhood so any environmental trauma during development.
But it’s not an emotional or psychological problem that blames the sufferer and says they just need behavioral therapy.
This kind of treatment is a trauma itself due to isolation, pain, invalidation and desperation
Anyone who isnt passive and mellow is going to be in serious anxiety. And being more emotional is often something women’s biology creates .
I always knew my best friend was telling the truth and stared going a little bunkers wondering what was happening to her and being shut down
She’s better now but still has to be careful to get enough sleep. That’s the biggest issue.
If you can improve sleep and actually try to relieve the pain long enough to relax. It took her 8 years to get better.

[@Fiawordweaver]

Thank you for being such a loving friend and posting your observations.