Dysautonomia in ME/CFS and Long COVID

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  • Опубліковано 26 лис 2024

КОМЕНТАРІ • 14

  • @cherylallis2458
    @cherylallis2458 Рік тому +3

    Thank you so much for posting this video.
    It re-enforces that it is beneficial to me to lie on the floor for several minutes with my feet up on a chair or couch after standing up to get dressed or shower or sitting up to eat.
    It would be interesting to know how that effects CBF.

  • @cherylallis2458
    @cherylallis2458 Рік тому +5

    Interesting that CBF is reduced even without measurable POTS symptoms. That explains why so many ME patients don't have less fatigue when POTS symptoms are reduced by medication.

  • @bridaw8557
    @bridaw8557 Рік тому +6

    Doctors used to ridicule ME CFS sufferers. These sensitive people tend to have over reactive immune systems. Perhaps more women suffer from these conditions?
    They called them similar to hysterics. Now we know better. When psychological symptoms in response to the symptoms. The severe pain which doctors would say is psychogenic.
    We’ve all had past trauma but these kind of people are more sensitive from childhood so any environmental trauma during development.
    But it’s not an emotional or psychological problem that blames the sufferer and says they just need behavioral therapy.
    This kind of treatment is a trauma itself due to isolation, pain, invalidation and desperation
    Anyone who isnt passive and mellow is going to be in serious anxiety. And being more emotional is often something women’s biology creates .
    I always knew my best friend was telling the truth and stared going a little bunkers wondering what was happening to her and being shut down
    She’s better now but still has to be careful to get enough sleep. That’s the biggest issue.
    If you can improve sleep and actually try to relieve the pain long enough to relax. It took her 8 years to get better.

    • @Fiawordweaver
      @Fiawordweaver 5 місяців тому

      Thank you for being such a loving friend and posting your observations.

  • @Truerealism747
    @Truerealism747 3 місяці тому

    Fnd is a part of cfs autism heds adhd i have rhem all