My LGMD2A story final part.
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- Опубліковано 9 лют 2025
- Hello Everybody. Wow I took forever to film the final part, for that I'm thankful for your understanding.
Please do not forget to leave a comment down below of what you would like to see next.
IG: @sorallalove
Track: Halvorsen - Wouldn't Change It [NCS Release]
Music provided by NoCopyrightSounds.
Watch: • Halvorsen - Wouldn't C...
Free Download / Stream: ncs.io/wci
Most of my family has MD also. My grandad had a mild form of it and lived into his 80s and who was able to walk into his 70s! Our type is passed 50/50 but some people in my family actually have it but don’t show signs it’s a pretty rare form! It’s called Fshd and it affects upper body more so than legs so kinda similar to limb girdle but not so much in the hip girdle area. We found out my mom had it recently but she’s hiking still at 60 so it’s pretty weird how it varies
I read your profile on the LGMD site. Our daughter, now 13, has LGMD2C. Not exactly the same but close enough. She has figured out how to do alot on her own but physical therapy, occupational therapy and regular meetings with psychologist have played a key role also. Thank you for taking the time to tell your story.
No problem, all our stories matter. This way we feel seen and not so alone. I wish your daughter the best.
Merhaba lgmd2a hayatım evliyim 2 kız annesiyim 3 yaş ve 10 aylik kızlarım var acaba onlarda lgmd2a olurmu endişeleniyorum bunun cevabını öğrenmek istiyorum
Hi, lgmd2a will only be passed down if both parents carry the gene and only if that specific DNA gets passed down to that child. I have 2 siblings and they are perfectly healthy. My parents both carry the gene but only I have it.