I have finally got round to watching this, and I am so glad I have! Exceptional work Dr. Roberts and the team. Not only for the level of research you're doing and contribution to the overall support for our patients/members, but also how brilliant you have presented this information for all to understand. Thank you
Great video guys! I've been diagnosed about a month now and they have given me some stronger anti-inflammatory tablets morning and night, definitely has helped but my pain in my Achilles is so tender so hard to jog had it for the last 3-4 years no rest or strengthen has helped it go.
Hi, sorry to hear that. We have a video about foot and ankle pain that may be helpful: ua-cam.com/video/PGnjzLPlwj0/v-deo.htmlsi=X0kFJ6oqgaDDkpXF If you haven't already, do mention this pain to your rheumatologist as they may be able to offer advice or change medication if it doesn't settle with the new anti-inflammatories. They may also be able to refer you to a rheumatology physiotherapist for personalised advice ~Zoë
I totally agree with Dr Roberts. I got AS at 17, by 24 my spine had fused. I spent years on NSAIDS and opioids so I could work, it was hard work and I knew doing more than 4 hours a day would damage me, I was a very sick person and my hips were really bad. At 30 I got a dog for companionship and to get me walking. I gradually increased how far I walked every day and in 4 years I was able to jog and walk long distances. Also I was not taking drugs to get through the day. I felt like Forest Gump it was amazing. Now my dog is older and he can`t walk very far so I don`t walk as much, I am back to having bad hips and taking opioids to get by.
Thank you so much for your tireless work, and for bringing it directly to us! Question: My job requires a lot of walking (approximately 12K steps in a 5-hour shift). I stretch my back a lot when required to bend over (as I cannot squat due to advanced knee arthritis). I rely on a heating pad on my back when I am not in motion at home. It is soothing, but is it actually doing anything helpful? Just wondering if I am doing further harm to my spine (many bone spurs throughout-“facet syndrome” and diagnosis axial spondyloarthritis) since I am doing more than the amount of walking your research shows is helpful.
Hi, so sorry if I've misunderstood your question. Were you asking whether the heating pad is helpful? They can be really helpful for pain relief and relaxing muscles. As long as your skin is protected, they shouldn't do any harm. Also, doing more than the amount of walking the research showed was helpful shouldn't do any harm. But as Matt shared, it may be helpful to add in other activities outside of work, like gentle stretches, to help balance things out. I hope that's helpful ~Zoë
Hi, I'm afraid we don't have a transcript available for this at the moment. In the meantime, are you able to use the closed captions on the video? ~Zoë
Walking is a problem for me as I fractured my T11 and it's a wedge fracture, pushing everything forward in my stomach, it's so bad it's affecting my stomach, bowels ect. I'm waiting to have an operation now as it's causing so many issues on top of everything else. What's your thoughts on this please?
Hi, I'm afraid as a Research Scientist Matt wouldn't be able to advise on this. I recommend asking for a referral to physiotherapy, as they should be able to advise what activities are going to be helpful for you to do and safe while waiting for surgery ~Zoë
A really big Thank you to Dr. Roberts, his team, the participants and NASS for this study. Very grateful for these studies.
This is EXACTLY the kind of information I was looking for! Thank you so much.
I have finally got round to watching this, and I am so glad I have! Exceptional work Dr. Roberts and the team. Not only for the level of research you're doing and contribution to the overall support for our patients/members, but also how brilliant you have presented this information for all to understand. Thank you
So glad it was helpful! I'll pass this onto Matt and the team, thanks Josh! ~Zoë
Very interesting session. I have shared to my NASS branch members and to a couple of fb groups.
That's wonderful, thanks so much for sharing! ~Zoë
Great video guys!
I've been diagnosed about a month now and they have given me some stronger anti-inflammatory tablets morning and night, definitely has helped but my pain in my Achilles is so tender so hard to jog had it for the last 3-4 years no rest or strengthen has helped it go.
Hi, sorry to hear that. We have a video about foot and ankle pain that may be helpful: ua-cam.com/video/PGnjzLPlwj0/v-deo.htmlsi=X0kFJ6oqgaDDkpXF
If you haven't already, do mention this pain to your rheumatologist as they may be able to offer advice or change medication if it doesn't settle with the new anti-inflammatories. They may also be able to refer you to a rheumatology physiotherapist for personalised advice ~Zoë
I totally agree with Dr Roberts. I got AS at 17, by 24 my spine had fused. I spent years on NSAIDS and opioids so I could work, it was hard work and I knew doing more than 4 hours a day would damage me, I was a very sick person and my hips were really bad. At 30 I got a dog for companionship and to get me walking. I gradually increased how far I walked every day and in 4 years I was able to jog and walk long distances. Also I was not taking drugs to get through the day. I felt like Forest Gump it was amazing. Now my dog is older and he can`t walk very far so I don`t walk as much, I am back to having bad hips and taking opioids to get by.
Thanks so much for sharing, I'm so glad your dog helped you get more active and animals are so important for companionship, aren't they?
A very interesting and informative session. Thank you very much indeed.
Thank you so much for your tireless work, and for bringing it directly to us! Question: My job requires a lot of walking (approximately 12K steps in a 5-hour shift). I stretch my back a lot when required to bend over (as I cannot squat due to advanced knee arthritis). I rely on a heating pad on my back when I am not in motion at home. It is soothing, but is it actually doing anything helpful? Just wondering if I am doing further harm to my spine (many bone spurs throughout-“facet syndrome” and diagnosis axial spondyloarthritis) since I am doing more than the amount of walking your research shows is helpful.
Hi, so sorry if I've misunderstood your question. Were you asking whether the heating pad is helpful? They can be really helpful for pain relief and relaxing muscles. As long as your skin is protected, they shouldn't do any harm. Also, doing more than the amount of walking the research showed was helpful shouldn't do any harm. But as Matt shared, it may be helpful to add in other activities outside of work, like gentle stretches, to help balance things out. I hope that's helpful ~Zoë
The 'show transcript' doesn't work for me. can you fix?
Hi, I'm afraid we don't have a transcript available for this at the moment. In the meantime, are you able to use the closed captions on the video? ~Zoë
My blood sugers are all over the place, lowest 4.7-highest 11.2... It's very frustrating. Is this normal for someone with ankylosing spondylitis?
Walking is a problem for me as I fractured my T11 and it's a wedge fracture, pushing everything forward in my stomach, it's so bad it's affecting my stomach, bowels ect. I'm waiting to have an operation now as it's causing so many issues on top of everything else.
What's your thoughts on this please?
Hi, I recommend speaking to your healthcare professional about this. We're not aware of a link, but it's best to get personalised advice ~Zoë
Hi, I'm afraid as a Research Scientist Matt wouldn't be able to advise on this. I recommend asking for a referral to physiotherapy, as they should be able to advise what activities are going to be helpful for you to do and safe while waiting for surgery ~Zoë
@@NASSCentral Thank you x
@@NASSCentral Thank you again for getting back to me x