LIVING WITH DEMENTIA EP. 24 | 7 TIPS TO PROVIDE SUPPORT FOR CAREGIVERS | PLUS QUICK UPDATE ON JASON
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- Опубліковано 2 жов 2024
- LIVING WITH DEMENTIA EP. 24 | 7 TIPS TO PROVIDE SUPPORT FOR CAREGIVERS | PLUS QUICK UPDATE ON JASON. Caring for someone with dementia can be emotionally and physically demanding. Here are seven ways to provide support for a caregiver. Remember that every caregiver's situation is unique, so it's important to ask them how you can best support them. Your presence and willingness to help can make a significant positive impact on their journey.
You can follow A Charming Abode on Instagram. I do post somethings with Jason, but just know it is not a dementia account! It showcases recipes, decorating and just our life in general!
/ acharmingabode
Thank you for this video! 🙏🏼 My son is 20 with Severe Autism and is non-verbal. I get so frustrated and sad for my son when people talk about him in front of him. He is unable to speak verbally, but he can still hear you!
You are helping so many! ((❤️))
I’m so sorry to read this. I know so many people don’t mean to cause pain, but this is just so insensitive and I can only imagine how much that hurts. ❤
Leslie, please know that you are included in the prayers of so many people that you will never know, including myself. God bless you both.
This was a very important video. 10 years ago I found myself in a similar situation to you. We (the family) moved our Dad in with me as he began to show signs of dementia and was unable to remain on his own. I had zero experience and very little knowledge and as it turned out, family who weren't really very helpful - to him or me. Everything you have said here is so true - caregivers don't want a pity party but they could use someone to help out and to just listen!
Heavenly father, I lift Leslie and Jason up in prayer. I pray for renewed strength for Leslie, I pray for calmness for Jason. Lord, please bless this couple in a very special way this week.
Amen 🙏♥️🙌
Amen ❤🙏
Amen
Amen & Amen in The Name of our Lord & Savior Christ Jesus and thru The Holy Spirit. Thank you Lord. 🙏💙♥️
Amen
Jason is incredibly blessed to have a partner and caregiver like you. ❤️❤️
I have one more tip. Talk to the caregiver about them and just real life friend stuff. I personally get tired as being known as the saintly wife whose husband has “insert mental health condition here”. When every person at church greets you sadly and says so how is hubby? You are such a saint, angel, patient you start to want to avoid going.
I learned to use UA-cam videos of my Dad’s hometown as a way to engage! He told me SO MUCH about my relatives who worked/lived in the area. He was fascinated by the memories that came up. (And so was I!)
This was another amazing video. I went through something similar with my wife who had Lewy Body Dementia. I would add three things to your list….
1) if you stop over to visit, talk TO the person that has the illness. I can’t tell you the number of times friends would come over and only talk to me. The person is there! Be patient, give them time to respond. They WANT to be included.
2) Yard work. When my wife was sick the next door neighbor did all of my yard work! From mowing the grass to shoveling snow. This let me stay inside with my wife. I owe that man more than money could ever pay.
3) I was the sole caretaker, and at a point I could not leave her sight nor was it safe for her to travel. I even left the bathroom door open and continued to talk to her so she would not get scared. At that time I reached out to a Hy-Vee grocery store and asked them about food delivery. I told them I could pay, since they were 20 miles away (we are country folks). Well, the store manager called me and they delivered food, zero delivery fee!! for the last three years of my wife’s life, every Thursday like clockwork. When my wife passed away I called them to tell them that she had passed and they would not need to deliver food. The manager called back and said we WILL continue to deliver for free until YOU are ready. They also delivered a HUGE flower arrangement! They were so sweet!
What a rare blessing that store manager is... God Bless all of you.💖
Omg there really are good people in the world ❤️
Absolutely lovely. Thank you for sharing your heartwarming experience.
Your videos have been a blessing more than you can ever realize.
I thank God for you and Jason.
Sending love, gratitude and prayers from Nova Scotia, Canada
My mom was the caregiver for my dad who had Alzheimer’s until she could no anymore. His last three years he lived at VA and got very excellent care. Mom visited very day for hours at a time for three years. He died after 10 years. She always felt guilty that she could not take care of him longer. So yes, pray for the caregivers. It is a job that has its own kind of suffering.
Thank you so much , once again . I’m a caregiver for my 70 yr old ex husband. He has parkinson with dementia. I’m on my own - no family or friends locally . Each day it’s just me - and im on disability with panic and anxiety disorder. It’s so rough - omg - we never ever thought this would be our future .
Your videos help so much .
Sending hugs to you and Jason !
I understand.
No Parkinson’s and five years younger, but it is lonely. Anxiety and panic make the smallest things seem so overwhelming.
I watch ASMR by little me carmie and gentle whispering. Sounds crazy but it helps. People praying for you is good but the day to day worries are real. ❤
God bless you. You are an angel to your ex!
my husband also has Dementia and Parkinsonism 😔
Bless you for caring for him! ❤ prayers for strength. It’s amazing what you are doing
Me too for my husband with Parkinson’s I have depression and anxiety and feel so sad here’s we are just retired and we can’t go anywhere 😞
Leslie, you are living the vows of your marriage in grace. You are a precious woman and caregiver.
Yes, I pray for my brother, who is caring for his wife with stage 5 dementia, for wisdom and knowledge of this disease. Also to give him patience and compassion.
My sister-in-laws bubble is home, church and grocery store. Took her to get new shoes and she got an anxiety coughing spell.
Every time you do a dementia video I do pray for you.
Thank you so much for sharing your caregiver journey with us.
God loves you both and so do I.❤
Thank you Leslie, as a caregiver for my husband I get so stressed when he has his rages & doesn't remember where he lives asking me to go check our other house which we don't have. You are so right that the caregivers need lots of prayer. I'm suffering sciatica & panic/anxiety disorder too. .
💐🙏
My dad is caring for my mom who has LBD. One thing I have noticed with offering help. Many times, he would rather be doing the shopping, errand, lawn care, etc and have me sit with her so that he can get a break rather than me do the errands or housework.
I live 7 hours away, so I'm only able to come up every 2-3 months. One thing we do after a visit is I give him a summary of the things I notice that have changed with her. Sometimes it's hard for him to gauge changes, because he is with her every day.
My wish is that you could visit more often. Someday you may wish you had.
@@GrandmaLM thank you! I have increased my visits in the last couple of years as she is starting to have some memory and comprehension issues that are obvious to me. I have one entering high school this year, so getting away hasn't been as easy in the past, hopefully I can manage a bit more frequently soon.
7 tips: “spread them in the world, be kind, and spread joy”. I hope your words travel far Leslie. You are a gift 🙏
I wish I had your videos years ago when I took care of my Mother with dementia. It was difficult to always know the correct response to odd things happenning all the time. She was always a tough lady, so you can imagine with dementia she was not easy going. I have never regretted taking care of her the best I could at the time. I did try to show her compassion and love. She knew I loved her. That was the one thing she always remembered. ***Leslie, You are such a sweet person and a wonderful, strong, and giving human being. You are very appreciated by making all these videos. God never gives us more than we can handle, even when we don't see it at the time. I pray for you and Jason- a wonderful couple.
My husband was diagnosed with Pancreatic Cancer in April. He has had surgery, and started Chemo last month. I understand how tough it is being a caregiver. Thanks for sharing your story. One of our daughters sent me a caregivers care package. That was a great welcome surprise. I maintain a group chat with our kids and his sister so I don't have to try to remember who I've told what. It has been a great tool to keep everyone informed on his condition.
These are great tips Leslie. I would add onto your tip for others to educate themselves to also not question the caregivers on the diagnosis. Casual friends or long distance relatives who only see the Showtime” behavior of someone with dementia sometimes make me feel like I’m making things sound worse than they are but they don’t witness the really hard times. I’ve also found myself so much less judgmental of other people’s behavior because you don’t know what they are going through. You are doing such a great job with Jason and your insight for others going through hard stuff. Prayers for wisdom as we make hard decisions and navigate this journey. ❤️
Yes the oh he seemed fine to me when we saw him out the other day. Well good I’m glad but behind closed doors it is NOT fine most of the time
Oh yes! Totally agree with you! If your loved one has been officially diagnosed and being cared for by you, then NO ONE has any say what so ever about day to day care unless they are right there doing the care with you! Outsiders always want to have an opinion, but until they live it, they have no right to judge!
@@LIVINGWITHDEMENTIAPODCAST ❤️
@@LIVINGWITHDEMENTIAPODCAST there is a saying and I would like it in a t shirt… ‘ you don’t look ill and you don’t look stupid!’
Take care of yourself as best you can ❤️
I had the same reaction from some family members when I was caring for my mom. Judgmental comments weren’t helpful when they weren’t here to see her day-to-day reality. Thankfully her doctor knew that she could pull herself together at times for her visits and believed what my brother and I were saying. Such a hard time, Leslie. I think you’re doing an amazing job. Prayers for you both.
You're in my thoughts and prayers.🙏❤️🙏When my husband passed away I moved in with my elderly mother who has dementia, and it's getting worse. Before my husband died he was exhibiting a lot of signs of dementia, but he died from a massive heart attack, and the dementia didn't get to the point of not knowing a lot of things, but I think the dementia was working on him before the heart attack. When I moved in with my mom to help her, I didn't realize that she had Dementia, but it didn't take me long to see the signs. She also noticed things about herself, and she was finally diagnosed with dementia. My mom can't go to the store by herself anymore , and she tried to drive herself to the gas station while I had to do a military funeral, and she couldn't remember what kind of gas her jeep took. She thought it was lead gasoline, and I told my mom they don't sell lead anymore, so she finally put premium in it and thought she ruined her jeep. I told her as long as she didn't put diesel in it she's fine. She got so upset, she couldn't remember how to get home. This all happened while I was at American Legion, but thank God, by the time I got back, she had made it home. I let her drive to the end of the road to the dollar store, but it's getting to the point that I'm afraid to let her drive at all. Nobody but me knows how bad she really is because I'm with her everyday.
Just being with her for a short period, and talking to you, you wouldn't think anything is wrong, so when I try and tell my brother and daughter, they act like they don't believe me. They didn't see her the morning that I had her at the grocery store, and she got so confused, she didn't know where she was at, and I had to lead her to the frozen food, but then because of the situation she had a full blown panic attack. My mom"s personality has completely changed. I'm her only caregiver, and it's so hard😢
Dear Cherie, I will be praying for you and your mom. So sorry you are going through this very hard time. ❤ Big hugs
With a spouse with dementia l thank you so much.
You will never know how much you are helping.
May God give us caregivers strength.
Bless you.
This was so helpful. I went thru 10 years caring for my mom at my home. I had to plan and schedule my days, yet be flexible because her day may not turn out as we hoped. I felt that sometimes my friends did not understand why I might need to cancel something at the last minute. I think if they had heard your videos, it would have made more sense to them, and they could have encouraged me. Mom died last year. I sorely miss her, as she was funny and happy and sweet, even with dementia. But I always knew where she was going and I was glad she could be promoted to heaven and live without her health complications.
Praying for you Leslie and for Jason. Thank you for sharing and being so brave!
Yes we need the prayers too my husband has Parkinson’s and I feel your sadness too
🤗💕🙏 I share tears with you today. I'm a fatigued caregiver. I'm so thankful I can do this, by the grace of God, but I do wish those around us could see I'm really not super human. 😉 These are wise suggestions, Leslie. I will continue praying for strength, wisdom, guidance and support as you press on showing the love of Christ to Jason and all others watching from the outside. Thank you🙏💕
Amen! Very good comment.
Me, too. In 8th year, one day break. I slept the whole time despite plans to catch up on everything.
As someone who helped my sister-in-law care for my brother with glioblastoma, (she worked part time) and a few years later, a sole care giver for my mom with Alzheimers, even though my caregiving roles are over, I so thought this video was so wise and so important. I appreciated everything you said. And every care giver, like the patient's situation is unique. Keeping YOU and Jason in my prayers.
Wow Leslie… you are a living angel on earth. Even tho I have no one right now who is needy, your words of wisdom are priceless for all to hear, and digest. I wish there were more genuine, selfless , people like you around . The world would be a better place. God Bless you and Jason.
Just recently found your channel. Thank you for this, sharing your personal grief is admirable to help others. I was recently diagnosed with early inset Dementia, I also have an autoimmune Arthritic condition that is debilitating, as well as heart disease -- I'm 59. I seem to be close to Jason's "stage" I am better in some ways and worse in others. I am completely focused on my Wife, I feel like my future is spoken for and the thing that Frightens me most is becoming a Burden to my wife. I already am in many ways, ie. not travel, not socializing, no activities, ....
I have vowed that I will not allow myself to become a Burden and will hit the "check-out" counter before it is too debilitating.
I absolutely agree! Letting them communicate when they start. My husband struggles with this a lot.
Sweet Leslie, thanks so much for sharing these wonderful tips!! Both of my parents had Lewy Body and I practiced all of these. Believe me, they absolutely work!! Keep sharing, you’re helping so many that are new or struggling with caregiving. Much love, sweetheart!! ❤️❤️❤️❤️
Such great tips. I’m a caregiver for my special needs adult son with Down syndrome and now my husband who’s has Friedrich’s ataxia. My husband is declining and can’t get around well. In fact he fell last week and has hurt his shoulder. Prayers are very much appreciated. I pray for you and Jason.
God is using you, Leslie, in a mighty way! Thank you!
Leslie sweetie I definitely will keep you in my prayers ! God bless you! Sending you a big hug.
As I have been in your shoes before, let me say that people do not understand that when you have a functional "dementia" patient, people do not see that the person we knew personally is gone. They are there in person, but our relationship the way we knew it personally is very diminished, altered, and changed. It's difficult to have people from the outside understand we need a friend/sitter/support person, so we can have a mental break, if even for an hour in our own home.
I can so relate to your comment, "They are there in person, but our relationship the way we knew it personally is very diminished, aldtered, and changed."
AND might I add: It is very lonely! I am thankful for the 3 dear friends in my life I can talk to without judgement!
Wonderful information Leslie. I do my run to the store when my husband is napping. I am never more than 5 minutes away. My guy also would rather not have anyone here , he feels it’s an imposition to ask other family. So I like you, squeeze in my time out during naps, I have cameras in my home so I can always watch him when I am not home.
Such good advice Leslie. I pray for you and Jason. You are such a caring loving lady. ♥️
Leslie, you’re helping so many people, and you are a true inspiration!
🙏 praying for you Leslie.
Caregivers on the list.
💓❤️🙏🙏 I'm so sorry you both are going through this. You have been so steadfast in your ability to read his mood and make each day the best it can be. My prayers are for you and Jason daily. 💕💯
Praying for you two, your Family and All your loving Friends who are feeling this Walk with you two✝️🙏🏼🕊️❤️❤️
You are an amazing woman and I’m having you both in my prayers every night ❤❤❤
Leslie, you are such a light. Thank you for sharing your experience with us. My husband has Parkinson’s and besides the hand tremors, is now having some non motor symptoms of the disease. One day at a time , or better one moment at a time.
I pray for God to strengthen you
and we just need to remember to lean lean lean on him. He’s always there for us❤I always look forward to your videos on both of your channels! Thank you for all you do!
Live you sister in the same way
My prayer for you is for faith and strength. This has got to be the longest , loneliest journey a spouse has to make. Grieving everyday, the loss of a little more of the person you love is heartbreaking. I do wish I was your neighbor and could be of help in some way. But all I can do is send love and prayers.
I have learned if I am to roll my eyes in frustration and my loved one sees it NOT to feel guilty. He will forget and I can make peace with myself and move forward. I am not perfect and I can’t expect to be 24/7. I pray for good days. For calm days. And for peaceful days. Your videos and of course hearing from Jason are helpful. 💜
My prayers go out to you.💕
So appreciate you and Jason. Just starting this journey. I am finding I have to slow down, let him finish and then interpret internally or gently for other people who he may be talking with. This and your other suggestions came at the right time. I am learning and you are helping so much.
Prayers for your strength 🙏🏻🙏🏻❤️
Leslie, Yes, Our Prayers are with you 🙏 I can't imagine going through what you are , trying to be supportive and positive. I think you're an amazing woman and a Wonderful Wife ! I can tell Jason loves and adores you . May your faith in our heavenly Father can give you strength beyond what is Normal ! 🙏🙏🙏
Good evening Leslie! I am praying for you. I pray that God holds you close to Him and gives you His sufficient grace while you take care of Jason. I firmly believe that God will never leave you nor forsake you. I pray you are able to get some rest. Thank you for sharing your journey. 🙏🏻💕
Thank you LESLIE YOU and JASON S. INFORMATION helps me a lot as I'm a caregiver also HUGS
Praying for you 🙏❤️
Thank you Lesley, you are an amazing care giver. You are so fortunate to have such great support. I was watching another channel (@thecrapgoth) and this mum was talking about what it was like to care for her son in Palliative care. One thing she said and I have to agree with her (as a fellow care giver), "it's like being in a living grief" as we know what the outcome is going to be, it is never easy and nothing really prepares you for it.
Please keep sharing your story, it helps both carers and non carers to understand, as well as sometimes you say something that helps a carer put things into perspective on what they are feeling. Sometimes, we can't always articulate what we want to say about what we are feeling or going through.
Leslie these tips are so caring and thoughtful. I’m just wondering what you do for self care. Your time is not your own anymore , so how do you manage to find the strength while making sure you don’t burn out and you still enjoy life. Sending you prayers
I do lots of things! I schedule time to have my hair done every two months! I have lots of hobbies and crafts to keep me busy! My own UA-cam channel keeps me SO busy! Getting time to go shopping for items to make those videos are such a joy for me! Thank you so much for the prayers!
Will pray for both of you.
You single handedly saved me from giving up. I mean that! What you and your family is doing is a great sacrifice & I would be grateful to see you be given as much comfort, guidance & support as possible.
So have my Mother's and it hurts all of us
Leslie, I admire you so much. I've walked your walk. My husband died in 2014 from early onset dementia. After he died my sister wanted me to start a caregiver group for people going through the same thing and I was do burnt out, mentally, emotionally, physically that I know I had post traumatic stress. I told her no and I know that upset her but you are so right about the caregiver needing prayer and emotional support. Only by the grace of God I got through it and sometimes years after he has past away I think back on how I could have handled things differently. Please know that I'm praying for you and Jason, and your family. I'm so happy to hear you have a good support system that rallies around you. Thank you for helping others learn about this disease. I don't think I could have gotten through some of the videos you done - you are a strong woman.
Leslie... you are so inspirational! Just the love you have for Jason and compassion....
Leslie! I can not tell you how much your videos have helped me! Your talking to the caregivers is priceless. God bless you as you walk this journey, it’s so hard and you are a blessing through it. 🙏🏼😍
Thank you so much for the great tips, insight, and your compassion to help others. My father is suffering from dementia. Sending you special prayers of strength and peace. 🙏💜🙏
Leslie, your videos are very insightful! Thank you!
Very good information!! Thank you Leslie!!!
Very helpful. Thank you for taking the time to get this out. ❤
Thank you Leslie for sharing the tips and what it’s like for a caregiver. I like the Q & A you and Jason did the other week as well as this format. It seems so less draining on the two of you emotionally than sitting together and talking about Jason in front of him. And that’s not meant to be a negative comment, it’s just a caring observation. Your time together should be as uplifting as possible. ❤My oldest son is 26 and has severe autism. I can relate to so many of your caregiving strategies of planning. And it’s not easy to have just anyone stay to give respite. God’s continued blessings to you both as you share your gifts with us. You always make me smile. 🙏🏻
My husbands friends have totally pulled back from him since his diagnosis. They don’t call, visit or check in with me. It’s very sad - I think it’s because they fear their own mortality…. They talk about him to the group - and offer opinions about his condition and how I should care for him when I see then - but they don’t interact with him at all.
That's just awful! My hubby had a stroke 2 weeks ago. 5 days ago, the hospital took him to a care facility, 45 minutes away. Everyday friends have gone there to see him, encourage him for his physical therapy..etc. I'm so grateful. You really do know who your friends are during times like this.I'll pray for you! 🙏🙏🙏🙏
🙏❤ so hard...
They might also feel so uncomfortable knowing how to act and what to say.
My mom's friends all fell away, but for a few. Her husband divorced her because 'he didn't want to live with her dementia'.
It takes a lot of courage, strength and confidence to step up and do what is needed, including going from daughter /wife /sister... to becoming a caregiver. It takes time to be educated.
It takes commitment to be there when it's not convenient or fun. It takes real empathy, compassion and selflessness.
Leslie, you are such a kind, caring wife and a wonderful caregiver for Jason. I hope people listen to this advice and use it to help others.
Our mother has some of the same challenges as your wonderful husband. Thank you for you encouragement! 💐
YOUR THE BEST NURSE
My husband was diagnosed 11 years ago. He sleeps until 1 or 2 in the afternoon. I think his brain/body is wearing out. Use that time for you.
Perfect list❣️Being in your xact shoes, but without professional nursing skills, I love your list. Care givers are notorious for not taking care of ourselves. Respite time is so needed and rarely taken. Keep up the great suggestions.
Thank you for this video Leslie❤
Great suggestions.
♥ Remember to leave a few comments because it helps Jason and Leslie's channel ♥
Thank u so much for your excellent channel. ❤
Sending you
Light and love God be with you in your caring for Jason 🙏
First off. What room are you in ? I love it ❤ My situation is not actually caregiver but more like running interference. My husband is practically deaf and has a speech impediment because of it. Also he only eats certain foods. When we are at a social event , Dr appts or getting groceries, I have to be sure if someone is talking to him that he understands what they are saying so he answers appropriately. He can read lips but really was terrible when we had to wear masks. His eating habits prevent him from enjoying just a meal with someone. It embarrasses him to admit he doesn’t eat everything . So I guess I’m saying his stress causes me stress. You’re absolutely correct about every step you mentioned especially prayers. I pray for you daily. If it ever gets so you’re not comfortable with leaving him to say , get groceries, maybe someone can pick them up for you. I understand about Jason not wanting strangers to stay with him, I know most people I’ve come in contact with, including my father , said No ! Sorry, I got carried away. Prayers and love to you both ❤❤🙏🙏🙏
Teepa Snow’s UA-cam videos were a Godsend when my mom had dementia. Teepa’s seminar was transformative for me and my sister as helping caregivers along with my stepdad. Sending prayers💜
Teepa is amazing - I have learnt so much about dementia and ways to support caregivers and those affected.
Thank you so much for what you and Jason are doing through your videos! You mention in your video to educate yourself. I have learned so much from you and Jason.
My friend lives across country. She is the caregiver for husband who has dementia and leukemia. I didn't know how bad things were for her until we visited because when I talk with her on the phone she simply always replies everything's fine and conveys no problems, all is okee dokee. I found out it is really taking a toll on her.
Now that we are separated again she continues to convey the same everything is fine message. I want to be emotional support for her, but how do I do so when she won't let anyone in?
Wonderful❤
When one is sick, two need help.
Absolutely right on with all your tips.
Pray for the caregiver as well!!! That’s such a good one!!! 🙏☀️♥️
As caregivers, it’s nice to be able to just talk and vent a bit. We don’t need to fix it and we are not being mean or don’t love them.
A very good video. You're doing everything right
Venting- let the caregiver vent.
Don't offer advice.
I took care of my ex-husbands grandad for 3 yrs who had Alzheimer’s. That was the hardest thing I’ve ever done. I totally understand. But I was “an outsider”. Not a relative. But it was still hard. I admire you what your doing. It’s very hard. I wish I had something like this years ago when I had to do it. May God bless you and keep helping others with the difficulty of caring for them. :)
You are such a blessing. Love you both and pray for you daily.
Thank you so much Leslie. I have 2 sons with autism. So many of your points are relevant. Sending love and prayers from London UK ❤
Thank you for these tips. They are so important for those who aren’t caregivers to understand. I have a 20-year-old daughter with microcephaly, which means she functions like a three-year-old. I especially appreciate the tip about talking directly to the person and allowing them to speak. My daughter tells cyclical stories, but I so appreciate people who take the time to listen to her. It means the world to her that someone thinks enough of her to do that. And the prayers are also key. She’s started with some behavioral issues. I have to get her up now and going for the day, and it’s hard because I never know what mood she’s going to be in or what struggles I might face today. Bless you for all the important work you do and how God is using you and your situation to touch so many others. I will add you and Jason to my prayers. ❤
This was very informative thanks for sharing this information. My prayers are with You & Jason & your children
And with your grandbabies too
My husband has MS and he experiences the same thing that Jason does about being easily overwhelmed with too much stimulation and when grandkids come over with our daughter he tends to go to his room and isolate himself it's also hard to explain to our daughter because she misses her dad the dad she remembers and she wants to handle things in her way and doesn't always understand what I have to deal with when he just wants it to be me and him so I'm trying to be compassionate to her feelings about wanting to be there around her dad at the involved but also the fact that he doesn't always want her there with our grandkids being involved because it takes too much energy it's just hard to explain and to keep everybody happy because I know I enjoy my daughter and grandchildren so much but my husband also needs me and I work outside the home and I know that one day that's not going to be the case anymore because I just won't be able to do that I really enjoy your videos and your dedication to Jason and your family thank you
Would it work for your daughter to come see dad and you to take the grandkids to the park?
They want to see him and we live in a very very small town no real park here relationships between father and daughter can be complicated and theirs always has been even before ms . Its complicated but thank you for the suggestion it's good for us to all get feedback and not feel alone:)
@@teresajohnson5010 I’m sorry you’re dealing with such hard things right now. I do understand complicated and difficult relationships.
Thank you that's very kind. I appreciate Leslie and this whole group of great people.
All very good points
Thanks Leslie---I learn so much from your videos
I think we all do ♥
❤
I have seen the devastating effects of dementia as a nursing assistant, RN and NP. It can be a difficult journey for caregivers. Thank you for sharing your journey and these insights for caregivers. I wish you continued strength and the ability to find moments of joy. 😊❤
Hang in there Leslie! ❤ talking out loud is good.. it’s exhausting ! 🙏
❤❤❤
I needed this so much today. Thank you and God bless you! ❤❤
So strong you are.
Thank you so much for your videos, Leslie. I to am a caregiver for my husband. He's going on 4 years with this awful disease. His neurologist is leaning towards FTD diagnosis. I look forward to each video that you make concerning your journey, and helping me through mine. Uplifting you and Jason daily, God bless.