The Wilson Disease Discussion
Вставка
- Опубліковано 21 лип 2024
- Date Recorded
December 5th, 2019 at 1pm EST
Audience
Primary - Patients and caregivers; Secondary - Clinicians [Wilson Disease, Rare Liver Diseases]
Program
This webinar provides guidance and education on the causes, symptoms, diagnosis and treatment options for Wilson Disease. A patient speaker was also featured, to provide their story and patient experience, with topics including initial signs of the disease, diagnosis, daily challenges, dietary issues, and disease management.
Presenters
Dr. Jeff Bronstein, MD, PhD [Assistant Professor of Neurology and the Director of Movement Disorders Program at UCLA]; Virginia Kiser [Patient Speaker - diagnosed with Wilson Disease at the point of liver failure (senior year of high school) - 12 years post liver transplant
Made possible from support from
Alexion Pharmaceuticals
This was so insightful thank you all. Couldn’t really diagnose what is wrong with me after many tests now I can see why. They are not doing the right tests. Now with these knowledge I think I have this disease and need treatment as soon as passible.
I have Wilson's disease is no joke and more people should be aware of this disease because if it gose without being treated you can end up like me and have to pray to God that it's not my time yet and hope to God that my liver will heal itself enough so I can live to be a old man besides dieing young
Remember you received memory cells from any type of transplanted organ,, memory from the donor and their dreams and memories from the life they lived/live …
thanks for the video. Well at least there is a treatment
In general speaking by zinc treatment should decrease absorption of copper from entrocyte, then decrease the copper level in both serum and urine consequently, while zinc concentrations increase in both. It is correct? Or what do you think about that?
What type of zinc and what dose?
Galzin zinc 50mg
Keep it mind eh ? How’s sixty years of inept ness in the medical world. I figured it out. I’m a lucky one.
Need help, my sister is suffering from Wilson disease need help
Give her Zinc supplement.
I have wilson disease also how is your sister health now
The true identity of ZUL-KARNAIN (unknown to many) as described in an allegorical manner by God in Quran 18:83 is none other than SAMUEL ALEXANDER KINNIER WILSON. He was a NEUROLOGIST. A man with two horns simply means a man who studies and specializes in NEURON or NEUROLOGY in general.
From the Quran,
They ask you about Zul-Qarnain. Say, "I will narrate to you some of his history." (18:83)
* English Gematrical Value (EGV) for SAMUEL ALEXANDER KINNIER WILSON = S(60) A(1) M(40) U(6) E(10) L(30) A(1) L(30) E(10) X(2060) A(1) N(50) D(4) E(10) R(200) K(20) I(10) N(50) N(50) I(10) E(10) R(200) W(6) I(10) L(30) S(60) O(6) N(50)
= 6014061030 130102060150410200 201050501010200 6103060650
* 1883 6014061030 130102060150410200 201050501010200 6103060650 = 19 x 9913691611 0684895274 0007916326 3263710790 0053687422 66350.00
Peace from Elias.
What do you mean I want to truly understand