Hands up to being the person who went undiagnosed for years and looked over..yet my tumours have been there for years. When my symptoms became so debilitating. ( Breathing, seaizure and swallowing no longer able to walk. I Had doctor's throw antidepressants at me. Years and years of misdiagnosis is exhausting. No one did the how are you feeling about this conversation. It was more like Go away it's in your head was the diagnosis. 20years later I'm having surgery on the first larger tumour. Which causes so many symptoms to deal with. My support network are amazing Willing to advocate for me with professionals who clearly have no understand. Of how delaying much needed treatments can affect family and wider community. Well done on recognising and bringing this up. Not all people are faking illnesses. Some are left to die if they don't fight for themselves.
As someone who is a sole caregiver of a medically complex person, I feel so uncomfortable when a medical professional hears this person’s symptoms and experience and then turns to me and praises me for all the work that must require. Um wtf I’m a fly on the wall, this is their appointment. If I need validation, I can get a therapist. Ick
ARE YOU TELLING ME THAT I WAS ACCUSED OF MBP BECAUSE I’M AUTISTIC, AND THUS NATURALLY SPEAK ABOUT MEDICAL SYMPTOMS AND DIAGNOSES LIKE I’M READING FROM A TEXTBOOK?! ARE YOU KIDDING ME. This explains a LOT. I thought if I do my research, if we build a case, then maybe my partner’s chronic illness will be taken seriously. Little did I know I was making it more difficult for a biased, neurotypical doctor to understand our very real plight for medical care.
Just want to add in my point of view (as a nurse in Australia) This is such a great perspective if you live somewhere without free healthcare. I work in a hospital that provides complete free treatment to any Australian citizen despite how long it takes or how extensive it is. In my hospital, beds are so scarce and it's so heartbreaking having one of them taken up by somebody who is essentially FORCING themselves to be in hospital. I know that's not the case for all, but it's becoming a more common outlet (especially for teenagers). We are so blessed to have free healthcare because it means that chronic illnesses don't often go missed at all.
My mom did this to me and to herself. It is HORRIBLE. She is also narcisist abusive and severe emotional abuse to me and my brother. As far as I know I was only sibling to experience this but I went into foster care at 16 so my brother had many years where I wasn't there I don't know if she did it to him too I can't watch the movies thry are too triggering. I 100% believe it is medical abuse not a mental illness.
I have a video about the origins of the DSM and the issues with it coming out on July 13 which should answer all the things! Debating whether to make a separate specific video on them or not after the fact but we will see lol
AAAAAA. thank you. I can't really describe my thoughts on this video but I know commenting helps with the algorithm also lets you know you're making good stuff so hey. keep at it
This is REALLY great!! Excellent job! Although I kept wanting to tap your face to put you into focus rather than the background. 😂😂 Until you became my hero and fixed it! Ha! I’m subscribing. You’re alright in my book! 🎉
At 22:15 - Although in a different context... I'm very familiar with this. And it's hard to even communicate to people what the problem is. You want to accomplish [x], you know how to accomplish [x], you don't accomplish [x]. Why not? I don't know... and people don't know how to respond other than telling you how to accomplish [x].
We diffinately need universal health care and mental health care is medical care. I can't bring myself to trust this multination corporate predatory profit machine we have, especially given my experience with what it has done to my mom. And no one can afford it, and young people do need help, we all do , we all deserve it.
Great video. I wish I could talk to you face to face because a great deal of your video resonates with me on so many levels I can't convey it appropriately in the comments section.
Knowing everything about your diagnosis (especially if it ends up becoming one of your special interests) is in itself an indicator that you might be autistic and, as a female autistic adult who was DENIED an assessment because "I don't look autistic", I am SO grateful that you addressed the fact that people with chronic illnesses can pass as malingering when they're being gaslight by medical professionals into thinking that they are exaggerating their symptoms or simply don't have what they claim to have. Because, if you KNOW there's something wrong with you and the medical professionals refuse to listen, then of course you're going to start doing your own research and keep going from one doctor to another until someone sits down and actually listens to what you're trying to say. It's absurd how many years (5-10+) adult females need to be diagnosed with things like ADHD, autism or DID. The person seeking diagnosis is not always a sign of malingering, it can also be a sign of incompetent and negligent medical professionals. As for us causing our own flare-ups, I was told by a therapist that I was malingering because I thought that not only I was triggering myself with downward spirals of my own thoughts but also because, even if I got randomly triggered by something in my environment during the day, I seemed to mostly have delayed flashbacks to the trigger that would only hit me when I found myself in the "safety" of my home. It made me feel like I was going cr*zy. It took other people with C-PTSD to confirm that a) "it's totally possible for you to accidentally trigger yourself" and b) "delayed reactions to triggers are not only possible but actually quite common because we learn to "push through" so we can function" for me to come to terms with the fact that, if other people were having the exact same experiences I did, then there was no way I was just "making it all up". Honestly, I have an array of neurodevelopmental disorders and mental illnesses and, for all of them, online support communities have always been more helpful than actual "professionals".
I understand why people who think like that behave that way to keep down people who need care. I don't understand why people think that way in the first place and choose cruelty over "facts snd logic" as they often try to falsely try to claim they have the monopoly on.
Of course there must never be any question of society dropping the unconditional support for those who are unable to carry themselves for whatever reason, especially not on account of so-called 'fakers'. The crucial question must be: 'But why would anybody want to fake it? What's the real problem there? What is missing?'
I get why people might go to the internet when they don’t feel ok. I do it sometimes and I think it’s normal. But it does seem like there has been a rise of people self-diagnosing themselves and I don’t care for that. As I said, I understand some of the reasons behind this behavior: doctors can be expensive and also disappointing (many times they don’t listen, so you feel on your own), families might be against going to a psychiatrist… And I am not at all against patients having more information and agency. But I don’t like it when people act like self-diagnosis are official. They could say “I feel like there’s something wrong with me, but I haven’t been diagnosed yet”. Saying you have something you don’t officially (and might not even have) is invalidating for the ones who do. Getting a diagnosis should be a serious process. Many of these people seem like they are trying to solve their life through this. It won’t. If you actually have the condition, with patience, adequate medication, and therapy, things will improve, but getting a random diagnosis doesn’t fix anyone’s life. Another thing that bothers me is that so many of those people have a terrible understanding of how science, psychiatry, and meds work, so I see many people getting treatments that don’t work, or giving themselves two diagnoses that, by definition, don’t go together. It’s a fake category created by humans! You can’t have these two at the same time because it would be pointless! There IS a big glamorization of mental illnesses. Think Angelina Jolie and Winona Ryder in that movie that isn’t even that good (the book is much better). There IS an association between madness and intelligence, artistic genius, and the ability to solve any math problem. Van Gogh, John Nash, Yayoi Kusama, Sylvia Plath, etc. And I don’t mean it for the ones who really have it (I do it, so I get your fear of being invalidated. Hell, during my worst phase I used to fear I was faking it all the time), but maaaybe having a mental illness can work as a good excuse. I don’t know who would think that because it just destroyed a big chunk of my life and I never use it as an excuse to anyone because people don’t buy it and not even to myself. After all, I rather think I do everything wrong on purpose. Well, just a hypothesis, I am not sure people actually might think it’s a good excuse.
Self diagnosis isn't inherently a problem! I have a video about that here if you want to learn more - ua-cam.com/video/8yM8fnYxbos/v-deo.html&ab_channel=SydneyZarlengo
Just out of curiosity, at 7:14 when you mentioned “an induced chronic stress disorder causing their digestive tract to shut down,” did you mean Hashimoto’s thyroiditis? I just started watching your channel (so maybe you have discussed it in other videos), it would just be cool to know we’re twinsies (in this one teeny tiny instance).😊
That’s a physical inflammatory disease of the thyroid, which isn’t in the digestive system. They are talking about psychological (mental) abuse turning into physical symptoms.
And you're not providing examples of where those projections and logical fallacies are in the video. You don't have to point out all, but like maybe around 4 or 8 if there's so many
This is tricky, unstudied thing. My mother has undiagnosed autism. She has been diagnosed with 4 dozen Other things and had many unnecessary operations(everything from chronic fatigue to yeast on the brain) some very damaging. Probably, the only thing she's been diagnosed with that she actually has is OCD/depression/anxiety. She has a very low iq and an 8th grade education. I would say it's Munchausen, at least ocd hypochondria. She did take me to homepathic and quack doctors a few times, but I got out of most of it, I was physically fine except undiagnosed autism. Bottom line, I'd say there is a problem with low functioning autistic moms in general, and this kind of ocd intensified hypochondria, and not diagnosed autism of course. We have to admit mothers can be awful, and it usually goes Unknown. Oddly, my dad has the same confidence in strange cures and theories, scientology and qanon, he's also undiagnosed, so it's not JUST the gen z's who a mess, lol.
I'll be honest, as someone part of Gen Z (born in 2006), and who possibly thinks they have DID. This video helped us a lot, we ALWAYS think we're faking because of all the videos on UA-cam plus our ex fakeclaiming us for faking DID, this video has helped us realize that we aren't faking, like this has helped us realize that if a disorder is considered rare, people will deny people have it. I have noticed a lot of kids who are self-diagnosed or aren't diagnosed get most of that hate, which sucks because we were self diagnosed at one point, again thank you for making this video, this has helped us a lot! -Byte & Co.
![Cringe Culture, Creepiness, and Autism [CC]](http://i.ytimg.com/vi/Ro66g2H5Ga0/mqdefault.jpg)
![Cringe Culture, Creepiness, and Autism [CC]](/img/tr.png)
Hands up to being the person who went undiagnosed for years and looked over..yet my tumours have been there for years. When my symptoms became so debilitating. ( Breathing, seaizure and swallowing no longer able to walk.
I Had doctor's throw antidepressants at me. Years and years of misdiagnosis is exhausting. No one did the how are you feeling about this conversation. It was more like Go away it's in your head was the diagnosis. 20years later I'm having surgery on the first larger tumour. Which causes so many symptoms to deal with. My support network are amazing Willing to advocate for me with professionals who clearly have no understand. Of how delaying much needed treatments can affect family and wider community. Well done on recognising and bringing this up. Not all people are faking illnesses. Some are left to die if they don't fight for themselves.
As someone who is a sole caregiver of a medically complex person, I feel so uncomfortable when a medical professional hears this person’s symptoms and experience and then turns to me and praises me for all the work that must require. Um wtf I’m a fly on the wall, this is their appointment. If I need validation, I can get a therapist. Ick
Ahayyy, I love your style! Thanks for taking the time to make this vid!! I just found your channel- real good stuff :) I’m excited to watch more
YES YES YES EXACTLY OH MY GOD THOSE VIDEOS "DISPROVING" PEOPLE'S DISORDERS ALWAYS LEFT A BAD TASTE IN MY MOUTH AND YOU PUT IT INTO WORDS THANK YOU
I don’t know how I ended up here but I just want to hug you and say thank you for putting words to my thought vomit in my brain
Good job. Your transparency is appreciated. I appreciate the points you have brought up here. All valid so far as I understand. Keep up the good work.
ARE YOU TELLING ME THAT I WAS ACCUSED OF MBP BECAUSE I’M AUTISTIC, AND THUS NATURALLY SPEAK ABOUT MEDICAL SYMPTOMS AND DIAGNOSES LIKE I’M READING FROM A TEXTBOOK?! ARE YOU KIDDING ME. This explains a LOT. I thought if I do my research, if we build a case, then maybe my partner’s chronic illness will be taken seriously. Little did I know I was making it more difficult for a biased, neurotypical doctor to understand our very real plight for medical care.
Just want to add in my point of view (as a nurse in Australia)
This is such a great perspective if you live somewhere without free healthcare. I work in a hospital that provides complete free treatment to any Australian citizen despite how long it takes or how extensive it is. In my hospital, beds are so scarce and it's so heartbreaking having one of them taken up by somebody who is essentially FORCING themselves to be in hospital. I know that's not the case for all, but it's becoming a more common outlet (especially for teenagers).
We are so blessed to have free healthcare because it means that chronic illnesses don't often go missed at all.
My mom did this to me and to herself. It is HORRIBLE. She is also narcisist abusive and severe emotional abuse to me and my brother. As far as I know I was only sibling to experience this but I went into foster care at 16 so my brother had many years where I wasn't there I don't know if she did it to him too I can't watch the movies thry are too triggering. I 100% believe it is medical abuse not a mental illness.
im so sorry you went through that. People who have that kind of mental illness truly need help and need to seek the Lord for repentance!
This video was so needed...THANK YOU!!!👏👏👏💕
Especially as someone diagnosed with a personality disorder, I'd love to hear why you think personality disorder diagnoses shouldn't exist.
I have a video about the origins of the DSM and the issues with it coming out on July 13 which should answer all the things! Debating whether to make a separate specific video on them or not after the fact but we will see lol
AAAAAA. thank you. I can't really describe my thoughts on this video but I know commenting helps with the algorithm also lets you know you're making good stuff so hey. keep at it
What difference does it make? This is a mother who is literally hurting her child for the mother's own gain! It's abuse either or!
This is REALLY great!! Excellent job! Although I kept wanting to tap your face to put you into focus rather than the background. 😂😂 Until you became my hero and fixed it! Ha! I’m subscribing. You’re alright in my book! 🎉
At 22:15 - Although in a different context... I'm very familiar with this. And it's hard to even communicate to people what the problem is. You want to accomplish [x], you know how to accomplish [x], you don't accomplish [x]. Why not? I don't know... and people don't know how to respond other than telling you how to accomplish [x].
We diffinately need universal health care and mental health care is medical care. I can't bring myself to trust this multination corporate predatory profit machine we have, especially given my experience with what it has done to my mom. And no one can afford it, and young people do need help, we all do , we all deserve it.
Great video. I wish I could talk to you face to face because a great deal of your video resonates with me on so many levels I can't convey it appropriately in the comments section.
Knowing everything about your diagnosis (especially if it ends up becoming one of your special interests) is in itself an indicator that you might be autistic and, as a female autistic adult who was DENIED an assessment because "I don't look autistic", I am SO grateful that you addressed the fact that people with chronic illnesses can pass as malingering when they're being gaslight by medical professionals into thinking that they are exaggerating their symptoms or simply don't have what they claim to have. Because, if you KNOW there's something wrong with you and the medical professionals refuse to listen, then of course you're going to start doing your own research and keep going from one doctor to another until someone sits down and actually listens to what you're trying to say. It's absurd how many years (5-10+) adult females need to be diagnosed with things like ADHD, autism or DID. The person seeking diagnosis is not always a sign of malingering, it can also be a sign of incompetent and negligent medical professionals.
As for us causing our own flare-ups, I was told by a therapist that I was malingering because I thought that not only I was triggering myself with downward spirals of my own thoughts but also because, even if I got randomly triggered by something in my environment during the day, I seemed to mostly have delayed flashbacks to the trigger that would only hit me when I found myself in the "safety" of my home. It made me feel like I was going cr*zy. It took other people with C-PTSD to confirm that a) "it's totally possible for you to accidentally trigger yourself" and b) "delayed reactions to triggers are not only possible but actually quite common because we learn to "push through" so we can function" for me to come to terms with the fact that, if other people were having the exact same experiences I did, then there was no way I was just "making it all up".
Honestly, I have an array of neurodevelopmental disorders and mental illnesses and, for all of them, online support communities have always been more helpful than actual "professionals".
I really like this video. Subbed.
I understand why people who think like that behave that way to keep down people who need care. I don't understand why people think that way in the first place and choose cruelty over "facts snd logic" as they often try to falsely try to claim they have the monopoly on.
Of course there must never be any question of society dropping the unconditional support for those who are unable to carry themselves for whatever reason, especially not on account of so-called 'fakers'. The crucial question must be: 'But why would anybody want to fake it? What's the real problem there? What is missing?'
I get why people might go to the internet when they don’t feel ok. I do it sometimes and I think it’s normal. But it does seem like there has been a rise of people self-diagnosing themselves and I don’t care for that.
As I said, I understand some of the reasons behind this behavior: doctors can be expensive and also disappointing (many times they don’t listen, so you feel on your own), families might be against going to a psychiatrist… And I am not at all against patients having more information and agency.
But I don’t like it when people act like self-diagnosis are official. They could say “I feel like there’s something wrong with me, but I haven’t been diagnosed yet”. Saying you have something you don’t officially (and might not even have) is invalidating for the ones who do. Getting a diagnosis should be a serious process.
Many of these people seem like they are trying to solve their life through this. It won’t. If you actually have the condition, with patience, adequate medication, and therapy, things will improve, but getting a random diagnosis doesn’t fix anyone’s life.
Another thing that bothers me is that so many of those people have a terrible understanding of how science, psychiatry, and meds work, so I see many people getting treatments that don’t work, or giving themselves two diagnoses that, by definition, don’t go together. It’s a fake category created by humans! You can’t have these two at the same time because it would be pointless!
There IS a big glamorization of mental illnesses. Think Angelina Jolie and Winona Ryder in that movie that isn’t even that good (the book is much better). There IS an association between madness and intelligence, artistic genius, and the ability to solve any math problem. Van Gogh, John Nash, Yayoi Kusama, Sylvia Plath, etc. And I don’t mean it for the ones who really have it (I do it, so I get your fear of being invalidated. Hell, during my worst phase I used to fear I was faking it all the time), but maaaybe having a mental illness can work as a good excuse. I don’t know who would think that because it just destroyed a big chunk of my life and I never use it as an excuse to anyone because people don’t buy it and not even to myself. After all, I rather think I do everything wrong on purpose. Well, just a hypothesis, I am not sure people actually might think it’s a good excuse.
I really relate to this as someone who has Eds and so me and my mom took forever to be diagnosed
The people saying that they are autistic on TikTok are usually self diagnosed. That's the issue.
Self diagnosis isn't inherently a problem! I have a video about that here if you want to learn more - ua-cam.com/video/8yM8fnYxbos/v-deo.html&ab_channel=SydneyZarlengo
I was diagnosed at 4. Next!
Yeah stop self diagnosis
@@inthewoods5494What do you mean by "next" ?
@@uniformitydubliner9691 next stupid fucking assumption about people who use tiktok and openly talk about autism
Just out of curiosity, at 7:14 when you mentioned “an induced chronic stress disorder causing their digestive tract to shut down,” did you mean Hashimoto’s thyroiditis? I just started watching your channel (so maybe you have discussed it in other videos), it would just be cool to know we’re twinsies (in this one teeny tiny instance).😊
That’s a physical inflammatory disease of the thyroid, which isn’t in the digestive system. They are talking about psychological (mental) abuse turning into physical symptoms.
@@JennyGDelp I might have this problem but instead manifesting in a different area, my reproductive organs in my case
Fascinating.🙂 x
So much projection and logical flaws in this
And you're not providing examples of where those projections and logical fallacies are in the video. You don't have to point out all, but like maybe around 4 or 8 if there's so many
You should consider doing perfume/cologne reviews.
This is tricky, unstudied thing. My mother has undiagnosed autism. She has been diagnosed with 4 dozen Other things and had many unnecessary operations(everything from chronic fatigue to yeast on the brain) some very damaging. Probably, the only thing she's been diagnosed with that she actually has is OCD/depression/anxiety. She has a very low iq and an 8th grade education. I would say it's Munchausen, at least ocd hypochondria. She did take me to homepathic and quack doctors a few times, but I got out of most of it, I was physically fine except undiagnosed autism. Bottom line, I'd say there is a problem with low functioning autistic moms in general, and this kind of ocd intensified hypochondria, and not diagnosed autism of course. We have to admit mothers can be awful, and it usually goes Unknown. Oddly, my dad has the same confidence in strange cures and theories, scientology and qanon, he's also undiagnosed, so it's not JUST the gen z's who a mess, lol.
I'll be honest, as someone part of Gen Z (born in 2006), and who possibly thinks they have DID. This video helped us a lot, we ALWAYS think we're faking because of all the videos on UA-cam plus our ex fakeclaiming us for faking DID, this video has helped us realize that we aren't faking, like this has helped us realize that if a disorder is considered rare, people will deny people have it. I have noticed a lot of kids who are self-diagnosed or aren't diagnosed get most of that hate, which sucks because we were self diagnosed at one point, again thank you for making this video, this has helped us a lot!
-Byte & Co.
You need Jesus Christ. You have demons inhabiting your body
Do you have any education in psychology?
Yes! I have a degree in psychology and theater with a focus on accessible education and taught on and off for awhile while getting said degree
cool!@@disabled.autistic.lesbian
coolio! @@disabled.autistic.lesbian
U JUST LIKE ME FR
"[...] because nobody makes it out of this life alive, so-"
Well they're not 𝙧𝙞𝙜𝙝𝙩, but they are also not 𝙬𝙧𝙤𝙣𝙜.
what did i even just watch . .
You lost me with the intro.
Then fast-forward
pr໐๓໐Ş๓ 🏃