Takotsubo Cardiomyopathy: why do i still not feel right?
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- Опубліковано 7 тра 2018
- many people who have had takotsubo cardiomyopathy still continue to complain of symptoms of tiredness, breathlessness and chest pain many months after the event. in this video, i discuss why
Thanks for doing part 2. Praying for healing and complete heart restoration for anybody that has this prognosis.
Thank you xxx
Thank you!
Thank you 🙏
Thank you so much! Feeling like people think you are faking or lazy is even worse than the original pain!😅😅😂💗💗💗💗Much love back to you!
This rings so true for me and my heart condition! Thank you, Doctor.
Great video! 👍 I hate the go-to response of it must be anxiety/stress answer that doctors give patients when they don't know what's going on or they can't figure out the problem. Instead of saying "sorry, I don't know" or "it's out of my realm of knowledge" ... Patients get "It must be in your head".
Actually "anxiety/stress" is not benign. It can kill you.
@@sunshinegirl1967 Oh, yes you are right about that! But sometimes you know that it is 'something' physically not right with your body, whether it be blood chemistry, or disease ect. Especially if you are not one that's prone to worry or stress much. And even more so if you were feeling fine and then suddenly started feeling un-well and not yourself, and the feeling tends to drag on and not improve.
@@gloriamaryhaywood2217 Yes! And that's why I am so glad for doctors like Dr. Gupta who actually LISTEN to patients when they say "I don't feel right". No one knows their own body better than the person herself. If you only go by what the mayo clinic says about Takotsubo syndrome you will be led to think that if you don't feel completely better within a month then you don't have that particular syndrome. I'm so thankful that Dr. Gupta recognizes the fact that only what is currently known about any disease is NOT the final word on it. Knowledge is always increasing and no one fits any textbook case 100%.
@@sunshinegirl1967 Agree entirely. I am from the old school of "suck it up and power thru things!" I endured very aggressive chemotherapy treatments only 4 yesrs ago. Horrible experience to be sure but I was able to hold tight and now in complete remission. AndI was feeling great and On Top of the World for the past 3 years since. Only health issue was slightly elevated blood pressure which I took 5 mgs of an ace inhibitor to control. Then suddenly I started feeling VERY nauseous and would startle VERY easily and the slightest noise!! This was NOT Me!!! Suddenly my blood pressure started swinging Wildly like 180 over 115! My doctor had nerve to write it all off as merely the Ageing process!!! He increased my blood pressure medication and actually said..."This is what generally happens as we begin to ripen, Mama!!!" Are you Believing that Crap? Like I'd suddenly aged 20 years in front of him or something! Didnt run Any test what so ever. I am NOT a chronic complainer or hypochondriac! If I'm calmly telling him I been feeling really Cruddy lately (and he knew I'd been feeling and doing great since I"d recovered from cancer) then why the hell wouldn't he take it Seriously and try to get to the bottom of what was going on ??
Nope, he effing Dismissed me and about 2 months of this condition dragging on, I had a Major Afib attack!! Took several hours of intravenous drugs to finally get back into normal sinus rhythm! Oh, yeah Then he Finally understands that something triggered that attack, and he's now consulting with the cardiologist that treated me in the hospital. I feel a lot of grief and stress could have been avoided if he'd gave a crap and listened to what I was trying to tell him about the symtoms that I was experiencing!!!!
(I live in a small town and my choices of doctors who accept my insurance is very limited ...or honey I would have already been long gone!!!)
@@gloriamaryhaywood2217 Wow! So sorry that happened to you. I've noticed that at times my hearing is acute and startles me but I've associated that with panic, so I'm wondering if it means something more. Its a wonder any of us make it through life as long as we do given doctors like yours and they are everywhere. I saw a cardiologist back in January this year and told him my heart feels weak at times. He acted like I wasted his time. If there is a difference like this it needs to be investigated not dismissed!
This is so true, the doctors act like it's all in your head. The feeling is still there. I wish I could do things like I used to. Thanks for the info.
Thank you sooo much. This is me. Had my first episode at 53, and was released off meds after 3 months. Had more episodes after that, and yes, I’m learning how to know what triggers me, so that I can prevent the onset. They’re scary to say the least. I’m 60 now .. wear a nitroglycerin patch every night, and keep spray with me at alllll times. Thank you once again for this upload, and prayers for all out there who suffer with their hearts ♥️
I was 55 when I had the first one, 63 (last year) for the second one. Hope you're doing well!!
Very interesting. I enjoy your video - they are very educational!
Doc, Thank You for this. It's extremely valuable.
Thank you for explaining the study, I read it and did not understand it as well until I saw this video.
Thank you so much for the video I was diagnosed in November 2016 at the age of 47 with no triggers. Diagnosis was delayed for a week because the ER doctors thought it was just anxiety, that I was too young for it to be a heart problem, and ignored my symptoms, until I had a full collapse and was hospitalized.
My heart has never returned to normal function, have to take medicine for heart failure, left with limited strength and activities
gosh I am sorry to hear this Rhonda..did you have an MRI scan?
York Cardiology an MRI is the only thing I haven’t had yet. Diagnosis with Heart Cath and Echo, repeat echos at 6 weeks and one year show mitral regurgitation/prolapse. EF remains 45-50%. No meds prescribed due to low BP, was still very symptomatic at 6 months. Put on Low dose Ivabradine which helped keep me on my feet for basic daily activity. It’s taken me almost 2 years to accept that this is the new me and I will never be as strong as I was before. I asked Dr about MRI... if it was worth spending the money. He said even if it did show scarring or damage, the treatment I’m on would be the same. I can’t tolerate beta blockers, etc.
Thank you again for all the information you share, it does help.
@@TXVirtual
I hope you’re doing better. I’m also mid 40s, and I had many of these symptoms back in May when I lost my very precious brother. Then I got COVID in June, which left me very week. Emotionally, I’ve been at peace, despite intense heartbreak. No depression or anything like that. I’ve definitely felt sad a lot though. Mostly I feel joy when I think of where my brother is with Jesus. I get super sleepy in the afternoon, and have to stop work to sleep.
So anyway, just wanted you to know I’m in your boat of being mid 40s and having to push myself to get through the day! Praying we both get better! 🙏🏻
Well hot diggity!
Someone finally decided to not brush this off with that all in your head malarkey?
Thank you.
You might consider, with the contortions that the heart goes through during this, that there might... Just might... Be scarring?
No, I was never diagnosed. I was widowed at 55, in the States, no health insurance, and since we were on EBT (food stamps) before he died, no life insurance (not allowed).
It's a bit of a shock to wake up the next morning and think 'Is this what is meant by the term "broken heart"?'
I didn't go to a doctor because I couldn't afford it, and frankly, at that point, I didn't care if I did die.
My chest pain lasted a year.
My endurance is way down still.
It'll be 7 years in July.
Now. What about the tendency of doctors to dismiss the patient's observation?
And don't tell me what's "normal", especially "for a woman of your age".
I've lived in this body 62 years. I'm pretty familiar with what's normal for this body.
I went to UCLA with this a couple months ago. I believe it was caused by extreme stress and frustration. I still feel a pressure on my chest, some discomfort, tiredness and sadness. I was prescribed an antidepressant which I fight taking and therapy which I haven't availed myself of. I will be going to cardiac rehab when a space opens up and look forward to that. Thank you for this video.
I know how you feel exactly at least we know it’s real and that what we’re feeling isn’t in our heads look after yourself 😀😀
I had an 8th Takotsubo episode in July 2019. My autonomic nervous system is also dysregulated and triggered constantly. The doctors have no idea how to prevent the TTS. On beta and alpha blockers (small doses), but that has not prevented them. Have many constant, incapacitating symptoms post TTS (first one was in 2010) even though EF and heart looks normal on echo when I have follow-up.
I was diagnosed in 2015. I’ve had 7 attacks and I’m currently laying in a hospital bed recovering from an attack. It’s a horrible thing to have. No amount of medicine stops this onset of an attack
Look up Dr. Carolyn Dean and magnesium deficiency. If that caused your cardiomyapathy in thefirst place, then it could possibly still be effecting you after if you never addressed it.
My wife had this 4 years ago and said that her heart has never felt the same. Her cardiologist said that the her heart looked normal and healed but she said that it is different than before the incident. She said that it feels as if the attack took something from her heart and she gets frustrated that it doesn't feel as strong as it did before. She is very in tune with her body and is very knowledgeable about it and her heart. She is starting to accept that her heart has changed and won't ever feel like she did before. 😢
Just out of hospital from my 4th Takotsubo attack :( 1st one was at the age of 35. All extreme stress. Saying that it is due to emotional vulnerability is oversimplifying. We don't know the actions that drive the response and physical stress can cause TTS attacks too.
This needs joined up care - neurology, endocrinology and cardiology. Dealing with the cardiology side is at the end point of the event. Prevention would be better!
Palpitations and tiredness since my first episode. Never gone away.
I would love to discuss this with you, doc. I am supposed to go for a stress test but have decided not to. An ECG performed, last week, indicated that I have not yet had a cardiac event and I know that my condition is a recurring one due to the fact that the deep stressor is also a recurring one. An echo cardio last year showed nothing abnormal, and there are no other indicators that anything is wrong. Psychosomatic illness is no longer the laughing-stock it once was; the mind-body connection is now well known and has spilled over any given field of expertise to be covered by medicine, physics and spirituality, simultaneously. Guaranteed, the people who present with takotsubo are all highly empathetic/empathic people with either a religious or spiritual bent; chances are that they suffered previous trauma(s) that had been repressed. Wish me luck in perusing the only treatment that I think has any chance of working, i.e. fixing the cause of what keeps upsetting me so badly ;)
Very useful. Thank you
This is how I feel 2 years on after 2 takotsubo I look after myself I have been plant based for 3 years, I don’t have any weight problems and I’m a fairly active person age 60 …I feel tired extremely tense a lot of the time breathless both arms and across back creepy numb feelings. I love feeling good, doing lots what can I do please ? ….I am on no medication. Thank you Lynda Australia
You never get better I’m 7 years out I still get angina and collapse.
My stress is in the stratosphere and has been for over a year. Mine was a year ago in April 2023. I'm still going to the cardiologist and the er. I was in the er last night. I'm going to have a stress test and echocardiogram and I'm wearing a heart monitor. Even though I have a massive amount of stress and trauma, I KNOW I have heart problems.
The question is.... will we ever improve? I had two reverse takotsubos in March 2021.My heart went "back to normal" pretty much in a few weeks but I was bed ridden for a month, and in a wheel chair for several months being on bisoprolol and phenoxybenzomine for the pheochromocytoma. That was removed in July and I had a full hysterectomy in October as well due to endometrial cancer. My medications were dropped after the pheo was removed, and I was placed back on bisprolol (low dose) and candesartan (low dose) I have been on them for about a year. I wonder if they actually contribute to exercise reduction as well. In saying that, I still get a weak arm, I still get some pain in my chest and I can't do any slant/hill or long distance. I was a hiker prior. I would love to know if there is hope for the future or not.
I have been cared for over two years now. Nothing is changing my symptoms are getting worse
I’m just out of a week in hospital with this condition. It occurred after painting my kitchen ceiling so non stress related in my case. I’m post menopausal so that stat seems to be relevant in patients. Fingers crossed I’ll make a full recovery after my heart meds are reduced. Sending love to you all. Linda x
I hope you are doing better.
@@ThatTaRaGiRL I am think you. Sending air kisses & hugs x
Glad it was not related to a horrible shock as in my case. Stay occupied with NON stressful stuff --- not painting for sure!😅😅💗💗💗💗
@@nancyblair9862 I’m just finding your message now. Thank you so so much lovely xx 😘
@@nancyblair9862 Looking back it was
I found your video very interesting. I had my episode five years ago, in New Zealand. To this date, I still do not feel normal
Please did you found any treatment to this condition ? I m 20 years old and i m experiencing the same thing
Thank you Dr for this interesting update. I had an tackasubo attack ayear ago. Was in hospital C Care for 4 days when my cardiologist diagnosed itl i had all the markings of a heart attack. I still feel pain, light headed, fatigue and breathlessness. I suspect the tackasubo has affected my heart. 🙏🏻
I think I got it to. Stress induced. Drinking and smoking contributed to it as well. Going on 3 months. Feeling better. Cathedral showed everything clear. Everything!!! No damage but slightly enlarged heart. Fatigue shortness of breath chest discomfort. We will see wat my ef is on December 28.
@@hotlatino7220Please did you found any treatment to this condition ? I m experiencing the same thing
I had a Takotsubo Cardiomyopathy in July, 2017.
I experienced severe nausea and vomiting , a true, cold sweat, some chest pain, although; not severe. My triponins were elevated and my infraction rate was in the low thirties. I had a normal angiogram/no blockages. Afterwards, I had weakness and dependent edema in my lower legs, upon exertion. This has improved immensely. I do have severe depression, anxiety & PTSD. I was definitely experiencing this at the time. I also have Chronic Pain (spinal fusion) and I was titrating down on narcotics. I experience my heart feeling, like I was going down on a roller coaster, so to speak with the arrhythmias. I feel I had an undiagnosed episode previously, due to the arrhythmic feelings and 2-week+ severe nausea and vomiting. I also had the severe general weakness.
As of now, August of 2019, I feel much better, barring occasionally light edema on exertion. I have had a new allergy to dobutamine, used during a stress test, that caused a severe hypertensive crisis. I failed to note my age by my birth year of 1969.
My current concerns are developing this again, in the face of severe grief, etc. Also, how truly carful I need to be in the future due to a lingering diagnosis of cardiomyopathy that supposedly has healed.
I am open to any serious inquiries or communications on the subject at missjreynard@gmail.com
Sincerely, Kathy~
I would love to chat with you. I to believe in takotsubo. Did you ever feel like pressure in your ears???
Stem cell treatment helped a friend of mine with degenerative discs. ❤️ I hope your health gets better 🙏🏻
Could this be a reason like my heart feels like it’s flipping over or twirling inside
just diagnosed VERY interesting
I just want to read a children's book to the kiddos without breathlessness. Thank you for saying maybe it isn't just my head.
Very interesting. How often do males have this condition? Thanks for your video Doctor, I enjoy your them immensely! Cheers!
idk but I'm a male and I feel this doctor has been avoiding any topics of males and even changed his wording from saying it happening to people to it happening to women. I personally had a bad experience due to doctors not believeing I had it because I was male and was left for 7 hours and almost sent home because 'I'm male". I sincerely hope you never have to experience this. It sucks.. a lot lol
I am 8 weeks since my Takotsubo event I had a Cardiac MRI scan a couple of days ago and my Echocardiogram is tomorrow, I look forward to hearing the results from both scans.
My husband just had an argument with my mother and threatened to leave. My heart felt like it was going to stop in the shock and definitely the heartbeat went abnormal. I was born with natural heart murmur (innocent) never an issue had four children but after my son was born two years ago I had post pre eclampsia and needed short dose beta blockers. It was scary the way my heart felt like it would just stop from the stress.
I am very tired , breathless walking up the stairs and palpitations. I know how to calm myself using vagus nerve technique - will these help with takotsubo?
Yes I’ve been told it’s stress and I’m deconditioned cause I can’t breathe at times during physical activity I’m so down over all of this
Oh now I have tons of questions….does Takotsubo cause irregular heartbeat, I.e. does it show on an ECG? And does it show on an event monitor? I’ve had palpitations since I was in my 20-30s, infrequent (less than 1/month), never really investigated besides maybe an ECG. Now I’m 62 and having them up to 20x a day. I also have recently found out that 3 of my immediate family members had/have PFO, one severe enough to need multiple surgeries as an infant/toddler. I have severe long term trauma starting preschool age. I recently and suddenly came to a point of feeling almost completely hopeless with the repercussions. My stress test and echocardiogram a year ago were normal. They haven’t ordered a “bubble test.” I told my new cardiologist about the recent trauma but I didn’t know if they’re taking it into account. And I don’t know if the event monitor will catch anything either…it doesn’t seem like they monitor many factors. I’ll have to search for newer videos on this.
I've had two, 1st one also had a clot in my heart - ten yrs. the second one, i had two large bi-lateral PE's and 3-4 more in the center of my chest? I've now been diagnosed with afib, congestive heart failure class III, heart failure (i get heavy palpitations with slightest exercises but not much else. I don't feel the afib at all but i guess it shows up on ecg or echo
Your left eye has been looking better, Sanjay! Here its still wandering about but not in your latest videos! My mama, an old country girl, called it "a wandering eye"! You still do have a wandering eye but its not like this one! 😂
Can't find the Circulator Journal article? Link Please
After 27 yrs of being seizure free on June 30th, I woke up in the hospital. The Cardiologist diagnosed me with Tacosobo. The physical stress of a seizure in my sleep brought on the Tacosobo. After 6 mths, the seizures aren't completely undercontel and I worry a seizure could create another Tacosobo Event. Does anyone have similar experiences or worry Tacosobo could happen again?
Please did you found any treatment to this condition ? I m experiencing the same thing
Hormones and low blood plays major role in heart conditions.
Mr Mengal, Would it be possible for you to elaborate a little? I have extreme fatigue after a anaphylactic shock to aspirin and generally have low blood pressure. Which hormones are involved. Very grateful, thank you, Lin
@@linhur3084 a bunch. Cortisol, thyroid hormone, aldosterone, adh, renin, etc. There's so many
Hello Dr. Gupta,
Thanks for your ongoing interest. I've had a second one (TTS) in a different part of my left ventricle, now the cardiologist thinks I'm an interesting case :-). I was wondering though : have you ever used or known to used oxygen to alleviate the pain or help recovery? Or is this a complete NO-NO. I was just thinking : the heart is a muscle and cannot completely recover since it has to keep working, if you help it by getting more oxygen easier, would this be positive or even wise to try?
I'm not a dr, only in nursing school. If your oxygen saturation is good (90%+), then adding more oxygen isn't really beneficial. It might help if someone is in distress and/or has an issue in the lungs like pneumonia, then it might help. If blood flow isn't getting through, then adding oxygen doesn't really change anything because the oxygen still isn't going to get there because they blood isn't getting there.
Also if your hemoglobin is low oxygen will not help, as it needs to be able to attach to the hemoglobin in your blood. (Happened to me when I was going thru chemo treatments. Had to have a blood transfusion because of it!)
I was tested positive for COVID a little more than a month ago. I had severe broken heart syndrome pain and was hospitalized for about 5 days (just got home a few days ago ). Any connection to COVID ? 😱
i am sure that there can be. Any stressor could do so and COVID can be associated with a myocarditis
thanks for watching. I really appreciate it and it'd mean a tonne if you would consider subscribing to the channel.
Subscribed, thanks
Please did you found any treatment to this condition ? I m 20 years old and i m experiencing the same thing
I'm still suffering with dizziness and tiredness months later...its so discouraging !
Me too, I'm good for a couple of weeks, then I'll be extremely tired and lightheaded for a week.
@@RobinSilvers-nb4ejPlease did you found any treatment to this condition ? I m experiencing the same thing
Please did you found any treatment to this condition ? I m experiencing the same thing
I hat the felling like my hearts flipping around
Without explanation
I am not emotionally more vulnerable and it makes me cross to think you think I and others are emotionally vulnerable 😤
I think he is right on. I think I am putting my sadness onto my heart because I'm really suffering deep sadness and grief and it makes me more vulnerable to having a physical response to it via my heart and blood pressure. It is an important thing to acknowledge but it doesn't mean we are weak. It just means we hold our sadness on a cellular level. this is why it's important to practice relaxation practices and therapy to deal with any past or ongoing stress or trauma. feel it and learn to let it go so it doesn't kill us. women are heartbroken collectively. our planet and it's inhabitants are suffering. we may be suffering personal traumas. life can be hard on us. and is.
Not just women!!!
In the dark mate ?
Yeah super empath side effect
love lost kills
Broken heart syndrome after breakup
It's no joke. Real AF! Sry but it is. Stress induced. And a break up can be tremendously stressful. Especially if she left you and you let her go thinking she'd be back like before. That can put a load on a heart. Cause you know you f'up.
Please did you found any treatment to this condition ? I m 20 years old and i m experiencing the same thing
1:24 minutes in and already you're giving a false representation of Takotsubo Cardiomyopathy as you're ONLY addressing it as happening to women (and at points when saying people you "corrected" yourself to say women). As a male who had this happen to him and almost had doctors send him home even when it all pointed to Takotsubo Cardiomyopathy but I was male.. This is very dangerous. Please correct yourself and remember to include all those it affects. Maybe then I wouldn't have been left for 7 hours in a hospital bed (even if laying down hurt a lot) as doctors and nurses said it was probably just anxiety because I'm a male.
i agree. tired of hearing about it being primarily women. this is happening to my husband. a lot of men hold their emotions in and are expected to be "strong" which actually just makes this worse. hope you are doing better.
@@patticakes74 Still have issues with my heart and might be life long. Might be due to them leaving me for 7 hours going through it. Make sure your husband gets more than just the 3-6 months of treatment after!!! Recent studies say it should be longer but doctors don't update their knowledge apparently even though peoples lives are in their hands,. lol
The origin of the word ‘hysterical’ is from the Greek word ‘hystera’. The definition of ‘hystera’ is uterus.
Physicians can often dismiss female health symptoms as psychological, psychosomatic.
We will go years with undiagnosed health problems.
I personally had a heart attack for a week.
When I finally called 911, the paramedics walked me to the ambulance. Made a comment ‘see, you’re not out of breath’.
I was admitted, laid in a hospital bed for two days and the cardiologist walked in and said ‘what makes you think it’s your heart’. I asked if he’d looked at my chart.
He left the room, looked at my EKG, came back, put his chair against the bed and said they were going to get me in for a stress test tomorrow and did I need anything to drink.
Two hours later, he came back and said they were skipping the stress test and doing an angiogram.
I had a 99% blockage in the artery under my heart and 90% on the side.
I had an 8 HOUR open heart surgery. They ‘could find a soft spot’ in my arteries to bypass.
I coded twice, had swelling on my brain from too much anesthesia, on the table and in my 7 day visit to CICU.
I now have permanent heart damage and diaphragmatic palsy from phrenic nerve damage. (One of my lungs will never work).
I’ve been told many times I was ‘too pretty’, ‘too young’ to be sick.
I guess I’ve just been hysterical.