Anxiety is always a cop out doctors will do when they don’t know what’s going on. Funny thing is anxiety is usually a major symptom of many neurological disorders so it alone doesn’t rule anything out.
Yes that’s pretty much me. I just said fuck it and forget about them. If it comes back then I also just ignore. You can’t stop ALS if we had it so it’s better to ignore and live your life. I stressed a lot before
Just came across this now. If it makes to feel any better, I was diagnosed with benign fasciculations aged 21 in med school. Am 50 now, still healthy and strong. Still get them… I figured that if it was something bad it would have got me by now. 👍👌
Thanks a million for this. These started for me after Covid. Nothing helped. I went through ALL of the tests. Several times. I also get the horrid myoclonic jerks and yes it’s worse when I’m tired. I have them full body. For 3 years now.
Almost 10 years dealing with calf muscle twitching 24/7 if I stretch I get a big cramp like everyone else many exams and thousands of my dollars so so far I kind give up right now the last I did saw a physical therapist but no results
I also suffered from fasciculations of muscles all over my body that wouldn't stop 24 hours a day for many months. I can't trust Japanese doctors at all, so when I looked at information from overseas, I saw a lot of convulsions like this caused by Lyme disease. Then, I remembered a photo taken a year before my symptoms started showing two holes in my leg and the area around them was red. Then I remembered that I developed severe flu-like symptoms. I live in the progressive city of Tokyo, Japan, and I was diagnosed with Lyme disease by sending an overseas test kit to Japan's only Lyme disease specialist. There were no other noticeable symptoms, only neurological symptoms. 
It took me a year to convince my GP to refer me to the Neurologist, it then took a year to see the Neurologist, he then referred me for EMG tests. I was then diagnosed with "non-benign cramp Fasciculations". I do get some muscle twitches sometimes in my leg and feet muscles. I also have osteoarthritis. My legs/feet can cramp up at anytime, with the condition. If you cross-reference with Isaacs Syndrome, Potassium controls what goes in and out of the muscles, that is has far as I've got with my research. With my condition the nerves are over firing the muscles but in the medical papers I've looked at, it says it is a rare condition and a lot more research has to be funded to find out the cause for the over firing. What I would recommend is that you read a book by Sally, K Norton, titled, "Toxic Superfoods" on oxalates. Food is certainly a starting point.
Man this is exactly what is happening to me it's crazy, i'm 100% related. the hypnic-jerks, fear of falling asleep I feel the same way and im pretty sure that a ton of people fell the same way, thanks so much for this video
This is my exact issue. I'm just starting off on trying to sort my issue out. Frankly, It's terrifying. My calves are just non stop fireworks, and I get just the occasional twitch else where. I'm just praying it's benign. This video gives me some hope that I'm just in the same boat as you. My father does have parkinson's which is the other factor in all of this. I just pray it's not ALS.
@jason7428 How are you doing now? I have the same thing going on in both feet and calves. They are firing off constantly 24/7 every second. Fortunately I cannot always feel it but if I check I see them constantly moving. I also get random twitches elsewhere. The twitches started about 3 months ago now.
@@ch-eo7nd it’s annoying. I went to see a neurologist and had a nerve conduction study. Everything came back normal so they diagnosed me with BFS. Now I’ve calmed down a bit the twitches don’t bother me quite as much, but they are still there.
@@ch-eo7nd yes my calves are very similar. My right forearm has been twitching now for about 48 hours. It’s really annoying. I started getting them about 4 months ago now. Started with just eye twitching, then all over body twitching. But seemed to settle in my feet and calves which is constant. Yea I was aware BFS is just a diagnoses by exclusion like IBS for example but as long as it’s benign I’ll just have to learn to live with it. I don’t know to what degree but I do believe stress and anxiety has something to do with it or at the very least makes it worse. I was suffering from bad anxiety when the twitching started but I was also taking citalopram (SSRI) but trying to work out was caused it is impossible which I suspect is why they just say it’s BFS. I thought it was serotonin syndrome to begin with, then I thought it was the SSRI. My blood-work seems fine so there isn’t any imbalance and thyroid. I guess it’s just one of those things now that I’ll have to just accept.
This video has been so informational. Thank you for sharing your symptoms and how you deal with it. A lot of us have had the same fears and also have experienced the same symptoms you have shared. Thank you
Thanks for posting, Jack. I’m 35, and have had these symptoms for 1.5 years now. They fluctuate, but the exercise intolerance and easy fatiguability is brutal. Was also a CrossFitter, and this has ended that for me. All investigations benign, just like everyone else. Came out of nowhere after a tremendously stressful year. If you’ve stumbled across any treatment options, please post to your feed. The leg zaps as I’m falling asleep are terrible! I’m desperate for a solution.
How are you getting on now? I’ve been getting constant twitches now for about 3 months. Started with my eyes, then my entire body. The last month my feet and right calf has been twitching non stop. Fortunately I cannot always feel them as they are quite small twitches but if I check them I can see them popping every second.
Your video has just calmed me right down! I’m 34 F - there isn’t a place on my body that doesn’t twitch. I’ve seen a neuro x 2 and he preformed a NCT and EMG - in my two legs and arm. Both areas that twitched. They both came back clean - also had an MRI that came back clean - of course I go down the same rabbit hole as you!
@@brittanysacco2335how are you doing now? I’ve been twitching for about 3 months all over. The past month I have been constantly twitching in both feet and right calf which does lead to cramping. Fortunately I cannot always feel the twitching but if I check I can see them popping constantly every second.
I was diagnosed with Parkinson’s disease May 2021 at age 51, but started having symptoms in my mid-late 40’s. Yes i have these symptoms, it feels like I’m shaking all over, tremor in left hand, I have many more symptoms. I’m on medication CARB/LEVO and Primidone. I’m struggling to deal with this disease, it’s very painful and has started to effect my movement. God has a sense of humor.
I'm sorry to hear what you're going through. You'll be in my thoughts and prayers, I hope things get better for you. If there's anything I can do to help, please let me know. Thanks.
I only drank 2 cups of coffee a day and no other caffeine intake. That alone made my whole face twitch all day long, my back and my right calf. Lasted mabye a year. A week stopping coffee fixed it all.
I have the same thing for the past 4years.. ive been ran through the ringer with tests after tests.. and like you said all are within normal ranges.. i have the temors all over along with the feeling like I have bugs crawling inside me.. i just recently found out about this syndrome literally a week ago.. i have made videos of all my symptoms because I feel like I need some kind of proof to show that I'm not crazy when I talk to my doctors.. i have no doubt after watching other people's videos that this is what is going on.. its amazing to me that I am able to find this stuff and the doctors just look at you and say well I don't know....
This video is great. Same symptoms. Have had fasciculations in my calves for 2 years. Gonna book an appointment with my primary care for peace of mind. I'm terrified its ALS...
I was also diagnosed with BFS back in 2018. I was worried out of my mind that I had ALS or some other fatal neurological disorder. My twitching has improved considerably the last five years, though I do have occasional, short-lived flare-ups. I think the worry the symptoms cause are often much worse than the symptoms themselves.
I agree with what you're saying 100%! The symptoms are very manageable, that said they can be very challenging psychology. Part of the issue, in my opinion, is accepting BFS as a diagnosis. Most people think it has to be something else, MS, ALS, and so on. The fact is BFS is a real diagnosis, with real symptoms. I need to make a new video. I have talked to many people who have commented and responded to the videos. All have contributed what I consider valuable information. We all have very similar symptoms. Like I said, I will try to make a new video and pass this information along.
@chaitanya668, I don’t recall having any of those symptoms when I was diagnosed. A few years later, I was diagnosed with sciatica, which definitely causes a burning sensation in my buttock and the back of my left leg.
@@paullance1258 Exercise was the best remedy for me. From my understanding, once you engage the twitching muscle, the twitching will stop, at least temporarily. I also went on a low dose of Lexapro for the terrible medical anxiety I developed because of my symptoms. That seemed to help as well.
I've been going through this nightmare for the past 5 yrs. Everything you explain here exactly. Likewise with the exercise intolerance to the point of feeling weak and shaky. My weight has remained the same...I can jump and touch an 8' ceiling still, can still do a pushup. But there are days where I feel rubbery, anxious and weak. I used to fixate on every symptom...if my arm felt numb i would perceive it as worse. Of course I catastrophize as well in thinking the worst such as ALS. i cut out caffeine just this yr to see if it helped and it did some with the anxiety of the situation. Also, I would get the myclonic jerks out of a dead sleep as well. Also, on rare occasions I would wake up gasping for air as if I were suffocating; long list of symptoms. Just to clarify I've had body-wide twitching for the past 5 yrs. My PCP doesn't want to send me to neuro because reflexes are still normal and I don't present with substantial symptoms like loss of function or atrophy. To be honest, I've given this much thought and others might quickly seek out other opinions, but if I did have a worst--case scenario condition I'm not sure I'd want to know if the possibility of normal function existed for a few more years. I'd rather cling to hope and not know until it's blatantly obviously I can't walk, speak or whatever. It's a mental grind for sure...very difficult mental grind. I'm about to turn 45...this all started at just before turning 40. Also, there are days where I feel so anxious and have absolutely no energy at all, yet can't seem to relax or even fall asleep.
Hi! To be honest, I've been crying the whole video cause it hit where it hurts the most. It can be so scary and your whole life can be turned upside down because of those insecurities. (Especially when I've went to the same investigations as you described - they can be so so so stressful). It's been quite a while now since I'm experiencing this and I'm trying my hardest to accept this 'new normal'. Anxiety can be such a pain in the ass. Thank you for sharing this, for me it was beyond helpful and I'm sure others feel the same. I hope you're fine!
@@erikagonzalez7156 yea true. Unfortunately I got tested and my levels were ok so that’s not causing my twitching. I’ve been twitching now for 9 months. My calves literally never stop. It’s horrible. Went to a neurologist about 6 months ago and got all of the usual tests done and they said it was benign fasciculations.
I realize this is 2 years old but I am literally going through this right now. It started after a medical accident. I am seeing a neurologist and we are ruling out ALS and MS but the tests and waiting for appointments take so so long. The unknown is scary and the muscle fatigue is so frustrating. I can't do what I use to do and I freaking hate it. Glad to see I'm not alone.
Don't worry your not alone. There are a ton of us going through the same thing. I know that doesn't make it easier, but hopefully you know your not alone. I have been dealing with this for a while now. It had not gone away, that said I think I'm coping with it better. Hope you're well.
So, during a period of extreme stress about 12 years ago, the Fasciculations started in my calves, and have never stopped. I was tested for ALS, and I've been healthy ever since, except that I've developed very painful cramps in my calves if I turn my toes inward (like pigeon-toed). I'm mostly afraid of Parkinson's, except that I have no resting tremors. I've had some episodes of waking up in a dream and moving. But I don't know if that is RBD (a pre-dromal sign for Parkinson's) or just waking up while dreaming. Here's the deal: I think there is a lot of truth to the theory that anxiety compounds the problems. Although I've received treatment for anxiety, the Fasciculations still remain, and probably will till the day I die. Good luck!
Anxiety is a bullshit cop out. My primary doctor was telling me it was anxiety but and I was just diagnosed with MS. Request to see a specialist for autonomic disorders or MS.
I went through all this before, I know the fear. But as your neurologist likely told you fasiculations are not the first symptoms of many of the motor neuron diseases that you are afraid of, muscle weakness is. I do not have any weakness but did an EMG and nerve velocity test and brain MRI anyway which all came back unremarkable. My condition is a little more complicated because I sometimes have "relapses" with parasthesia and widespread pain but I've been assured its benign. I've been like this for 23 years with still no weakness and fortunately pretty rarely have those "relapse" moments so I try not to worry about it. I'm 53 and started TRT a year ago and have been able to build a good amount of muscle mass.
Hi Jack, I’ve been getting twitches throughout my entire body since February. I went to see a neurologist in July and was diagnosed with Benign Fasciculation Syndrome. However, that was without running any tests. My neurologist told me to wait 3 months to see if they go away if not then I will need to have some blood work done and an EMG. Tomorrow i go in to get bloodwork and to schedule my EMG. I don’t have any weakness but I’m still worried it could me MS or ALS. I’m hoping it really is BFS, though i would of course prefer to not have anything. As terrible as it sounds, It brings me a semblance of peace knowing I’m not the only one feeling this.
I have been experiencing fasciculations since August 2019. They started in my calf muscles...literally just one day started and have not stopped since. I have seen several neurologists , neurosurgeons, ms specialists etc. My MRI’s are normal to date...I have had 2 EMG’s one of which was my left arm, it only showed carpal tunnel. My very first symptoms were bladder symptoms and numbness and tingling in arms and hands...with major burning sensation in my feet. Long story short...I have been diagnosed with neurogenic bladder of “unknown etiology”. My urologist is frustrated that none of the neuro docs can figure this out. I have been to a neuromuscular specialist who said these were “benign fasciculations”. Since then I have lost 20 lbs. have had considerable wasting in both calf muscles and hands. My most recent neuro visit he insisted I be re evaluated with neuromuscular bc something is definitely wrong. It is so frustrating!!! Meanwhile my daughters are both freaking out bc they are watching all of this happen with no answer. Also I 54...this all started January 2018...No diagnosis. Next up is neuromuscular,, and a memory specialist bc of cognitive decline...
Rooted Rotor I am pretty sure somewhere in the midst of all of the labs they have done they have checked for it. I will confirm though. There is just so much going on and not one dr can determine what is happening
@@denisedevore619 Believe me - I know. 3 years into this seen over 25 doctors. Been to the Mayo Clinic 3 times. Finally saw an LLMD who tested me properly for Lyme and diagnosed me. The tests done at the local hospital are trash. Need to be tested by a quality lab. Anyway, not saying you have it, but it's a epidemic. 300k new cases per year and its devastating (more than just twitching). Hope you start to improve soon.
Rooted Rotor I think I could have accepted the BFS diagnosis if I hadn’t had the muscle wasting after it started. I am currently staying with my daughter who is 33 bc in December something weird happened...she said I had a seizure...the ER doc thought it was a major panic attack but wasn’t sure. I know anxiety can cause a lot of these symptoms but not the wasting. I guess I will see
I’ve been twitching for over 4 years. Some days more than others. Had many tests all clean. The way I coped was to quit worrying anymore about them and let them be. A lot of it is anxiety related and stress.
Had it for 4 years now, still happening 24/7. Started a week after I discovered my uncle was diagnosed with ALS. He died in 2022. I have health anxiety. Did not test for anything....too fearful of the results. I have been on antidepressants since 2019.
Had twitching in all my muscles for 34 years and at the time ( 1988) the specialist at hospital said he didn't know what it was and tbh I think he thought I was a bit odd, roll on until about 7 years ago I came across BF on Internet and knew that was me, it's never getting any better I have learned to live with it i get muscles cramps as well sometimes and they are really painful.
It’s scary how spot on this is to what’s happening to me! Fasciculations, jerks, gym intolerance, etc. I’ve developed a fear of sleeping. I’ve done all the testing, except EMG, and I’m still worried.
@@bahaamuhsen3254 I do sometimes. I had neuropathy for the past 12 years. It is in my feet. I used to have lots of burning, tingling, cold/heat sensations etc. Now it is mostly numbness and cold feet. I am 38. Twiches started or maybe I started noticing them about a month ago. I just went through EMG and did correspond with the one I had back in 2019 which confirmed neuropathy. I still scared about ALS thinking that last EMG did not catch it because it is too early. How are you doing?
@@danealexandertrusk8079 Hey I'm doing fine actually, my symtpoms are still there but they are very very very minor like they don't bother me anymore, i did MRI on the brain and it was clear, i did nerve conducting study too and it came back normal.
I am 59 year old man I have had this close to 6 years started out in right calf now all over. I also get cramps in both calves this came a few years after being diagnosed with bfs. Now bcfs cramps Suck. I have been to mass general in Boston and Lahey clinic. Had at least 10 emgs. Still the same answer bcfs. I mountain bike and ride enduro. But when I do any of this I pay for it the next day. Legs seem to be getting worse. But no weakness or atrophy. Just fatigue. I wish this would just go away. But it looks like I just have to keep on going and deal with it. I have tried everything took every test that was available. I hope that somebody figures this out. I wish anyone who has this to keep fighting. Believe me I know what your going through. Good luck to you. And I’m here to answer any questions you may have.
I'm 58.....I was an avid runner but now can only run half the miles I did a few years ago. Agreed that this sucks but only because there are no answers why.
Jack, have they checked your ferritin level? Too much iron will cause never damage. It will also kill your testosterone which sounds like your muscle fatigue.
Hey jack Hope all is well. I also have the exact same symptoms as you. It's been going on for 8 months now. What really made me nervous was the exercise intolerance.. I have done a ton of blood work and just did an emg and the neurologist thinks its anxiety. He made me do certain strength tests like squats and push ups and just like you I can do them but it's the fatigue I get from doing them. The neurologist says hes pretty certain that it's not ALS as if it was you probably wouldnt be able to do 1 push up or squat.. he never diagnosed me with BFS but I'm thinking that it is that.. by the way these symptoms happened after i had a massive panic attack and developed a mental disorder called depersonalization This symptom sucks but hopefully we can find a solution to help with it.. I'm seeing a naturopath doctor to see if theres any natural cures or remedies out there Keep fighting.. these videos make a lot of is feel better
Thanks bro. My twitching started 11/19/22 after ER visit. I didn’t have leg specifically calf or shin weakness until today after a workout it’s sore beyond normal.
I'm experiencing this. Just over 2 months twitching. Had an EMG in some muscles after 6 weeks and was fine. I twitch randomly all over body every few seconds. Sleep is so hard. They just brush you off and say deal with it if nothing major found. My neuro wasn't worried about ALS and MS has been cleared with MRI
Thank you for posting. I am scared right now. After general surgery I got alot of strange symptoms like yours and more. I am scared that the surgery triggered Parkerinson or MS or ALS. I been to two neurosurgeon MRI of the brain and specialist of autoimmune. As well other doctors. I am going crazy. Thank you for your video
Anybody experiencing eye twitching as well ? I m having eye twitching for 3 months but my doctor said take some magnesium and multivitamin and u will be good .
Hey Jack. Any updates on your BFS? Going through same here with fasciculations. Tremors led to PD but neurologist says my fasciculations are not PD related. Anxiety is high as my mother passed from ALS and I am a Vet.
I have these tiny jerks and some twitches all over my body. Some days they are less frequent and I forget all about them until I have them now and then. It's been there for a month now. I spoke to my GP and she pointed to the highly stressful pandemic environment and the multitudes of tasks I have been doing. Her advise was to do self massage, exercise and relax. I am so far sticking to it. However, being in my thirties, and with scores of responsibilities on my shoulders I feel a bit scared. :(
DOES ANYONE HAVE ANY SORT OF IDEA IN REGARDS TO WHATS HAPPENING IN THE BODY WITH THIS? BOTH MY CALVES GO OFF CONSANTLY AT REST… IS THIS SOMETHINF IN THE BRAIN? THE SPINE? THE MUSCLES THEMSELVES? I DONT GET IT
I have these, mostly in my calves. They started 2 weeks ago. I do have some arm weakness (perceived). I can still lift my normal amount but I'm ALS fear is definitely there.
Me too Megan. I have light twithcing constantly in my calves, very sporadic everywhere else. Arm heaviness as well. MRI has been fine, EMG and neerve conduction study were good. For 6 months now, I've had the fear of ALS, but this video has helped. Have a seocnd EMG and nerve study in Oct. Hope you're feeling better.
By any chance do you still live in Colorado? I just came across your video as I was doing my own research about this. I live in Colorado.. and I too went to my pcp here in Fort Collins where I live. And he wasn’t concerned. I on the other hand am concerned. I know this video is 3 years old .. but I really appreciate all that you shared. And honestly how eloquently and open you were. I am struggling with these muscle twitches mainly in my left calf. I like you eat healthy , work out. I’m in my late 30’s. I’m just absolutely terrified of ALS. Thanks 🙏
Did you ever get a spinal tap? I was experiencing muscle fasciculations and spasms like crazy this past year. The only slight painful ones were the extremely random ones that would happen in my feet or quads/hamstrings every other day. The fasciculations have been literally non-stop though. I have always had mental fatigue/problems concentrating/sometimes my memory would fail me in the moment/a intense detached feeling from reality at times, stuttering since childhood, heat interoperable, lack of sweat, and tingling or pins and needles in my legs or arms (less often). I am 27 now and as I said all of these issues got far worse this past year. I was recently diagnosed with MS based on a new MRI and an evoke potential test showing nerve damage in my lower body. I seem to walk and run just fine but now that I think about it some days do feel off or it takes a while for my muscles to get going. I defiantly feel that exercise fatigue you are talking about. One more thing I find interesting is that I have many lesions on my putamen and just odd gray matter patterns on them in general. This is commonly seen in Parkinson’s. I also learned, (I probably suffered a prenatal or infantile stroke) and it affect my basal ganglia which is probably why I stutter and have adhd like problems. I am pissed off I had to discover this truth myself by doing loads of research on my own old MRI’s. I have no idea why they did not bring up the obvious stroke scar when I first got my test done. I showed my neurologist and she confirmed what I was seeing but why didn’t she bother to mention it either? Basically the truth is you can’t always trust or rely on doctors. I would suggest asking for your MRI and all your medical records and do a lot of research on them.
I have had no less that 4 MRIs over the last 10 years or so. None of them ever showed anything;, that said I did not go over them myself. Hope you're doing well? Thanks for the helpful suggestions. Have a great night
Hey man I hear a bird calling in the background and it sure sounds like my conure, my issue started a year and a half after becoming a bird owner and sometimes his calls stress me out.
Have you been tested for vitamin deficiency. Muscle fasciculation can be caused by a lack of calcium absorption and lack of vitamin D! Get a blood test and see if you’re levels are low! It also is a cause for fatigue. You might just need to take supplements.
I have had these for 2 years.. my difference is that I have a 50% chance of carrying a gene for ALS. I am still hoping this is all in my head but I know this could be the first sign of this terrible disease.
Hi mate, I'm in very similar situation like you, but my one also includes Small Fibre Neuropathy. Started one and half years ago from nowhere.(Just like that-one night) I'm fit and like you I have been training last 30years in the gym. Is getting worse and I have tried diet, fasting, supplements.... .I have done few tests ,MRI and so on... ...neurologist are rubbish.... believe me! The only thing helping me a little bit is yoga and meditation, possibly a very clean diet, possibly ketogenic diet, no sugar and carbs. You need completely to avoid alcohol and coffee. To be honest with you my only hope is the work of Dr. Joe Dispenza. I'm trying hard to do the meditation aprouch. Good luck to you, I hope you get better.
@DIMEPIECE ENTERTAINMENT Hi brother, finding the root cause of the problem is the million dollar question. VERY, VERY HARD TO DO SO! Believe me! If you want to get better you need to change your self, your life, lifestyle completely.....Also very hard to do so! We all have to make a choice! Doctors, neurologists regarding this condition will NOT help you. The power is in you!
@DIMEPIECE ENTERTAINMENT Yes, ketogenic anti inflammatory diet is the way to start. I have been struggling to keep this diet, it is hardcover diet -but helps. Good luck to you, I hope you get better!
I had neuropathy for 12 years and now I got the twiches. Very stressful...gives me really bad anxieties..neuropathy alone was really hard to live with and now this on top of it, recent EMG did not show any progression in my neuropathy since Nov. 2019..but after twiches started I can't calm myself down...keep thinking about ALS
I've got small fiber neuropathy symptoms also, sometimes they fully relapse and I get widespread itching and stinging sensations and muscle pain. Most of the time the symptoms remit and are so very mild that I rarely notice them though. Exercise and good quality sleep keeps it at bay. When I feel terrible I take Colonazapam and soak in the hot tub in the evenings for an hour and then try to get 8 hours of good quality sleep, a few nights of that and I improve rapidly.
I exactly have the same symptoms as yours. Likely, we have bfs. Mine is caused by anxiety. I just eat 2 eggs in the morning and 2 soft boiled eggs at night. I juice carrots 2x a day, apple juice 2x a day and pineapple juice once a day and my twitching slowly fading away.
Since Feb or March I've been having body jerks. Usually one limb at a time but often just a full body jerk. Haven't been seen for it yet. I'd be interested to know if the poster of this video has had any improvements or what.
Going through this exact same thing right now - and have been in denial about caffeine being a factor. I keep telling myself I'll give it up but then I end up needing it because I need to knock out a big day of work, etc. Did anyone else ever give up caffeine completely and did it help??
Hi... I think going off of caffeine helped?? That said, it did not go away. Like I said slightly better, but still not "normal". Lowering caffeine and trying to eliminate and or lower stress helped, somewhat. Sorry, wish I had a more concrete answer for you.
I appreciate the video.. even if it was years ago. Im currently at the beginning stages of trying to figure out what the heck is wrong with me. I have the twitch/spasm in my calves (sometimes it looks like an animal is trying to escape from inside my skin).. both of them get the spasms. I get random twitches all over my body here and there, nothing as constant as my calves like someone is poking me with their finger. I have some shaking issues as well. My legs mostly but my entire body feels weak/shaky like malnutrition. I haven't been referred to see a neurologist yet. I assume that's the next step now that initial bloodwork came back fine. Im trying to chalk a lot of this up to stress/anxiety. Im sure I have physical symptoms from anxiety, but curious if the anxiety is the issue or if anxiety is intensifying another worse issue. I like others am losing my sh!t over the idea that it could be ALS, MS, Parkinsons, or at best case maybe Benign Fasciculations and Essential Tremors.. either way, I feel absolutely screwed.. and keep trying to calm myself down by just accepting that it is what it is and I can't change it if it's something bad. To be honest, I think I just wanted to type it all out as some sort of weird therapy for the mind 🤣.. I haven't really told anyone and don't plan to unless its something Ill need help with in the future.
I’m exactly the same as you. Twitches, shakes and fatigue. Going on 14 months now. All tests clear. Just got to live with it and manage the bad days as best we can
Hello, Thanks for this video. I too have all the symptoms you are describing. I have had body wide twitching for 4 months now, I have also started other weird symptoms such as random buzzing in spots off and on, I also get nerve shock pain here and there, my hands and legs seem to fall asleep really easy usually at night. I too get the jerking thing when in a light sleep.
Bahaa Muhsen nope I still have all these symptoms some days none some days all it’s very strange but I’m getting used to it, it’s definitely anxiety or a hormone thing for me though
Hi sir,i had twiching all over my body my thighs, my feet,shouder,ass,a few in the back,sometimes in the eyes,i have moderate pain sometime in my right thighs, and my right knee,back of my right leg fell moderate pain,my right shoulder feel moderate pain too,its almost two months,im scared sir,can't go to neurologist, here in the phillipines its very expensive, im.only a security guard,hope sir you answer me,sorry for my english,thank you sir
Im the same I work and can’t get past a few hours without fatigue get home and go to bed. Doctor says menopause ! Wtf no it’s not I only just found on UA-cam what it could be .. thanks
Dude the first 2 minutes of your video, describing the muscles twitching and muscle weakness in the exact same spots as you. I've been dealing with it for a few months. Could it be arthritis? Also any IBS or stomach issues? Any rashes on your arms or knuckles that comes and go? Any heart palpitations or increased heart rate when standing up?
Same here,does anyone get like jaw jerk in the morning?I got everything done,blood,EMG, MRI,Neuro doc says I'm good,but still worried.Gym strength is still good at planet fitness,did the whole incline rack (300 lbs) and whole rack of pec deck flys. I have a cramp in my right leg that just won't go away,I'm scared every day and have no clue what lies ahead,but for the ppl who have this for 2 years ,I think you guys are good, all this started for me like mid March with numbness and tingling.It really sucks and super scared😩😢
Where do you have the numbness and tingling? And honestly if you got EMG and MRI done and doctor says your good I would take it as he says and be stress free :)
Let your primary doctor know and ask to see a neurologist. Could be nothing too serious although I believe benign muscle twitching syndrome is simply another way of saying “we simply just don’t know why exactly.” I was going through this same symptology and was diagnosed with MS.
I have had these in my calves for 8 years 24/7. The twitching does happen in other areas too just not nonstop. Muscle cramping. Exercise fatigue. Get pins and needles at times. Occasional numbness. I have tried everything I know. Have seen a few neurologists and had the emg/ nerve conduction tests. Nothing. Still worry about ALS but I guess if I had it I should have been dead awhile back
@Ansh Bawa I have just been living with it this whole time but symptoms have become more bothersome the past couple months. So have an appt with another neurologist on Friday
Hello, I am writing from Azerbaijan. I am 21 years old. For two months, I have weakness in my arm and numbness in my hands and feet. This problem has spread all over my body. Do you think I have Als? İ am 21 years old
Buralarda teshis arama. Doktora git. Semptomlarin bir cok sebebi olabilir. Ciddi sebepler olabilecegi gibi basit sebepler de olabilir. Doktor muayenesi en dogrusu.
Hi Jack, thanks for putting up this video. I started having arm muscles twitching a week ago. But my arm muscles only twitch when I am resting or when my muscles are relaxed. When I walking or doing normal activities like cleaning, cooking....etc, my muscles do not twitch at all. Not sure if that had happened to you as well.. Thanks again.
likely carbon Dioxide. if he is crossfit , he probably is low carb. Low carb is lower levels of carbon dioxide in blood. this will lead to respiratory alkalosis, nerve excitability. he said he is type a. breathing quickly. this also is offloading his carbon dioxide and making oxygen exchange harder. (exercise intoloerance.) Slow breath, eat grains, drink water, and rebalance chemistry so nerves can function instead of adapting. Look at chemoreceptors anxiety Co2.
2 years in with this. Calves twitch like crazy. My legs haven't felt comfortable for 2 years. Always feel pain....numb or just detached. God .....I hate this.
Nice to hear your story, but I'm sorry for what you are going through. I wanted to say my muscle twitches came on around age 27. I had REALLY bad muscle aches and joint aches as well. I would be 100% fine half the days of the month and the other half I would literally be bed-ridden with pain. The twitches were the least of my worries because the pain was on the same level as natural childbirth. I wouldn't even be able to get my phone to call 911 sometimes. I would just ball up in a fetal position and try to survive...the intense pain was all over my body in all my joints--but was like a severe ache. Even had them in my jaw joint. So all my bloodwork and tests came back normal. They found "extra electrical activity" in my legs with the test the neurologist gives (EMG? EEG?) But I was told all was fine. I had to quit my job due to severe pain. I remember using the wheelchairs at the grocery store because my hips and knees would hurt too bad to walk. Sometimes I couldn't even use my computer in med because lifting my arms to type would cause the pain to start in seconds. Anyhow, that was hell. They only found high levels of arsenic in my urine. Idk why. But it was gone when I was re-checked. It was bad for 4 or 5 years, then I became pregnant and immediately all my symptoms went away. Just like that. I had my baby at age 32 and I had zero health issues until my kid was about 4 years old and I had a LEEP procedure (removes pre-cancerous cells from cervix) and after that, I had VERY painful muscle twitching each time my menstrual cycle would come. It would be JUST like before--except the painless twitching I had all over my body was now painful. My daughter is 11 now and so it's been about 7 years and I still get the painful muscle twitches about 1-2 weeks each month. Sometimes it's during another part of my cycle, like ovulation, but about 95% of the time it's during my menstrual cycle. Doctor's say all is fine. I'm in such bad pain and no medication has helped. I am extremely happy that I get pain-free days though.
Thanks so much for your kind words. Sounds like you've been through some really tough times. I can empathize with you completely. So sorry for what you've been through and continue to go through. I am much like you some days are better than others. I guess you learn to live with it best you can. Hope thing get better for you.😊
Since it has something to do with hormones, could supplementing with boron help ? research boron and sex hormones. Boron also happens to help calcium and magnesium to work properly which can help relief muscle spasms
I'm am well. I would say my symptoms are the same, possibly slightly better. My ability to cope with the symptoms has got much better. All in all I would say i'm doing great. Thanks for asking
My muscles have been twitching I areas of my right leg. My arms. My shoulder and back. The twitching lasts for at max 2 seconds and then no more twitching for like 5 mins. I almost never twitch whenever I'm moving so I think this is BFS. I'm going to get checked tomorrow what do you think
My twitching started 2 weeks ago and it’s all over my body, I’m freaking out thinking it’s something serious, I’m going through all the tests now (EMG set up for next week) I don’t feel weakness by my anxiety is affecting my day To day life. I’m 31 and worried about ALS or MS.
Thanks for sharing! I have been dealing with the sleep issue of jerking/twitching and it'll wake me up just as I begin to drift. Soooo annoying! Have you found a good treatment for it? How are you managing these days. -Best
Thank you for posting it. Even though it doesn't resolve my issue this video is definitely spirit lifting leaving you with a feeling you're not alone. By the way, how are you feeling now? 3 years after posting it.
Hi, thanks for the videos, they are definitely a lot clearer than trying to dissect your way though all the information available. I have been struggling with twitching all over (predominantly calves but also thighs, shoulders, face etc.). I've had an emg which was negative and my understanding is that if you have twitching and it's ALS it will definitely show. Is this consistent with your understanding and what you have been told by neurologists? Thanks in advance!
Yes, from what I understand. When you have the fasciculations that would be the nerves dying off, which would almost definitely show up on an EMG. Hope this helps, have a great day
@@jackemma5116 Thanks for replying. I've been reading so much as my concern was that I may have had the EMG too early and other symptoms such as weakness and atrophy might still come. I'm hoping that because the EMG didn't pick up any neurogenic changes I can relax now as if it were ALS I was under the impression this would definitely show given the twitches would be associated with the nerves / muscles dying.
@@markryan6521 This is what I am going through right now. I am 38. I had neuropathy in my feet for almost 12 years. I had long haul covid in late December, recovered around late January, noticed twiches all over my body. Went to see my neurologist, reflexes were a little brisk. I had an emg back in 2019 that showed neuropathy, but I managed it OK and lived a normal family life. Just got my second EMG done, it did correspond with the one I did back in 2019 which means that my neuropathy did not get worse. My neuro told me, OK no ALS, you have BFS, but now I keep thinking that it was an early EMG and we did not catch it.
23 dealing with muscle twitching for 3-4 years. Also I have really bad sleep maintenance insomnia and jerks that i developed 4 months ago. I'm terrified I'm dying to a prion disease or ALS or something. I've had health related OCD for a very long time so it's not the first time I've been convinced I was dying but these symptoms along with the fear of a terminal disease has pretty much destroyed my life. I would actually be relieved to get an MS or parkinson's diagnosis because then I could actually have an explanation for everything that isn't a 1-2 year fatal disease.
The fasciculations cause anxiety because in the back of your mind you think it might be ALS
Anxiety is always a cop out doctors will do when they don’t know what’s going on. Funny thing is anxiety is usually a major symptom of many neurological disorders so it alone doesn’t rule anything out.
Yes that’s pretty much me. I just said fuck it and forget about them. If it comes back then I also just ignore. You can’t stop ALS if we had it so it’s better to ignore and live your life. I stressed a lot before
Just came across this now. If it makes to feel any better, I was diagnosed with benign fasciculations aged 21 in med school. Am 50 now, still healthy and strong. Still get them… I figured that if it was something bad it would have got me by now. 👍👌
You feel any burning sensation in your fingers or leg
Thanks a million for this. These started for me after Covid. Nothing helped. I went through ALL of the tests. Several times. I also get the horrid myoclonic jerks and yes it’s worse when I’m tired. I have them full body. For 3 years now.
Almost 10 years dealing with calf muscle twitching 24/7 if I stretch I get a big cramp like everyone else many exams and thousands of my dollars so so far I kind give up right now the last I did saw a physical therapist but no results
I also suffered from fasciculations of muscles all over my body that wouldn't stop 24 hours a day for many months. I can't trust Japanese doctors at all, so when I looked at information from overseas, I saw a lot of convulsions like this caused by Lyme disease. Then, I remembered a photo taken a year before my symptoms started showing two holes in my leg and the area around them was red. Then I remembered that I developed severe flu-like symptoms. I live in the progressive city of Tokyo, Japan, and I was diagnosed with Lyme disease by sending an overseas test kit to Japan's only Lyme disease specialist. There were no other noticeable symptoms, only neurological symptoms.

It took me a year to convince my GP to refer me to the Neurologist, it then took a year to see the Neurologist, he then referred me for EMG tests. I was then diagnosed with "non-benign cramp Fasciculations". I do get some muscle twitches sometimes in my leg and feet muscles. I also have osteoarthritis. My legs/feet can cramp up at anytime, with the condition. If you cross-reference with Isaacs Syndrome, Potassium controls what goes in and out of the muscles, that is has far as I've got with my research. With my condition the nerves are over firing the muscles but in the medical papers I've looked at, it says it is a rare condition and a lot more research has to be funded to find out the cause for the over firing. What I would recommend is that you read a book by Sally, K Norton, titled, "Toxic Superfoods" on oxalates. Food is certainly a starting point.
Man this is exactly what is happening to me it's crazy, i'm 100% related. the hypnic-jerks, fear of falling asleep I feel the same way and im pretty sure that a ton of people fell the same way, thanks so much for this video
Of course! Hope things improve for you. Have a great night! 🌙
This is my exact issue. I'm just starting off on trying to sort my issue out. Frankly, It's terrifying. My calves are just non stop fireworks, and I get just the occasional twitch else where. I'm just praying it's benign. This video gives me some hope that I'm just in the same boat as you. My father does have parkinson's which is the other factor in all of this. I just pray it's not ALS.
@jason7428 How are you doing now? I have the same thing going on in both feet and calves. They are firing off constantly 24/7 every second. Fortunately I cannot always feel it but if I check I see them constantly moving. I also get random twitches elsewhere. The twitches started about 3 months ago now.
@@ch-eo7nd it’s annoying. I went to see a neurologist and had a nerve conduction study. Everything came back normal so they diagnosed me with BFS. Now I’ve calmed down a bit the twitches don’t bother me quite as much, but they are still there.
@@ch-eo7nd no trigger that I can think of other than stress and anxiety was peak. This seems to be a common occurrence.
@@ch-eo7nd yes my calves are very similar. My right forearm has been twitching now for about 48 hours. It’s really annoying. I started getting them about 4 months ago now. Started with just eye twitching, then all over body twitching. But seemed to settle in my feet and calves which is constant. Yea I was aware BFS is just a diagnoses by exclusion like IBS for example but as long as it’s benign I’ll just have to learn to live with it. I don’t know to what degree but I do believe stress and anxiety has something to do with it or at the very least makes it worse. I was suffering from bad anxiety when the twitching started but I was also taking citalopram (SSRI) but trying to work out was caused it is impossible which I suspect is why they just say it’s BFS. I thought it was serotonin syndrome to begin with, then I thought it was the SSRI. My blood-work seems fine so there isn’t any imbalance and thyroid. I guess it’s just one of those things now that I’ll have to just accept.
This video has been so informational. Thank you for sharing your symptoms and how you deal with it. A lot of us have had the same fears and also have experienced the same symptoms you have shared. Thank you
Thanks for posting, Jack. I’m 35, and have had these symptoms for 1.5 years now. They fluctuate, but the exercise intolerance and easy fatiguability is brutal. Was also a CrossFitter, and this has ended that for me. All investigations benign, just like everyone else. Came out of nowhere after a tremendously stressful year. If you’ve stumbled across any treatment options, please post to your feed. The leg zaps as I’m falling asleep are terrible! I’m desperate for a solution.
Following this comment!
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Same here
How are you getting on now? I’ve been getting constant twitches now for about 3 months. Started with my eyes, then my entire body. The last month my feet and right calf has been twitching non stop. Fortunately I cannot always feel them as they are quite small twitches but if I check them I can see them popping every second.
Your video has just calmed me right down! I’m 34 F - there isn’t a place on my body that doesn’t twitch. I’ve seen a neuro x 2 and he preformed a NCT and EMG - in my two legs and arm. Both areas that twitched. They both came back clean - also had an MRI that came back clean - of course I go down the same rabbit hole as you!
I'm glad it helped. Sorry that you're going through it! I'm glad that your results came back clan. Hope you feel better soon!
@@jackemma5116are you still twitching? And also - do you suffer from cramps too? - my neuro said I have BFS
@brittanysacco2335
Feel free to shoot me a call or text at 7202884648. Sorry, I'm not on here much. Thanks
@@brittanysacco2335how are you doing now? I’ve been twitching for about 3 months all over. The past month I have been constantly twitching in both feet and right calf which does lead to cramping. Fortunately I cannot always feel the twitching but if I check I can see them popping constantly every second.
I was diagnosed with Parkinson’s disease May 2021 at age 51, but started having symptoms in my mid-late 40’s. Yes i have these symptoms, it feels like I’m shaking all over, tremor in left hand, I have many more symptoms. I’m on medication CARB/LEVO and Primidone. I’m struggling to deal with this disease, it’s very painful and has started to effect my movement. God has a sense of humor.
I'm sorry to hear what you're going through. You'll be in my thoughts and prayers, I hope things get better for you. If there's anything I can do to help, please let me know. Thanks.
Thank you!
Try high dose Thiamine (vitamin B1)...saw videos on this for Parkinsons
@@charlotterose8356 I’ll look into this… thank you!
I only drank 2 cups of coffee a day and no other caffeine intake. That alone made my whole face twitch all day long, my back and my right calf. Lasted mabye a year. A week stopping coffee fixed it all.
Bam Bam damn I’m twitching but it’s so hard to quit caffeine when working 10-12 hours a day
That was probably a serotonin toxicity problem
@@MAledishWhat kind of state of serotonin causes convulsions?
I have the same thing for the past 4years.. ive been ran through the ringer with tests after tests.. and like you said all are within normal ranges.. i have the temors all over along with the feeling like I have bugs crawling inside me.. i just recently found out about this syndrome literally a week ago.. i have made videos of all my symptoms because I feel like I need some kind of proof to show that I'm not crazy when I talk to my doctors.. i have no doubt after watching other people's videos that this is what is going on.. its amazing to me that I am able to find this stuff and the doctors just look at you and say well I don't know....
Hey
Do you have any sensory symptoms like burning , stinging. Electricity feeling , vibration, cold and hot flashes etc
@@bahaamuhsen3254 I have all of those
This video is great. Same symptoms. Have had fasciculations in my calves for 2 years. Gonna book an appointment with my primary care for peace of mind. I'm terrified its ALS...
If you've had twitching in your calves for 2 years from ALS your leg strength would basically be none existent by now.
@@questtech7148 i appreciate the response. I was thinking that as well. The irrational part of my brain always made me worried though. Thank you!
@@robbiedubes Yes, i to am familiar with that part of the brain. Sometimes i wish i could have my part removed.
Had them 13 years now in my legs hasn't got any worse
Both my calfs and feet do it 6 months now
I was also diagnosed with BFS back in 2018. I was worried out of my mind that I had ALS or some other fatal neurological disorder. My twitching has improved considerably the last five years, though I do have occasional, short-lived flare-ups. I think the worry the symptoms cause are often much worse than the symptoms themselves.
I agree with what you're saying 100%! The symptoms are very manageable, that said they can be very challenging psychology. Part of the issue, in my opinion, is accepting BFS as a diagnosis. Most people think it has to be something else, MS, ALS, and so on. The fact is BFS is a real diagnosis, with real symptoms. I need to make a new video. I have talked to many people who have commented and responded to the videos. All have contributed what I consider valuable information. We all have very similar symptoms. Like I said, I will try to make a new video and pass this information along.
You feel any burning sensation in finger of arm or leg
@chaitanya668, I don’t recall having any of those symptoms when I was diagnosed. A few years later, I was diagnosed with sciatica, which definitely causes a burning sensation in my buttock and the back of my left leg.
We’re there any specific things you did that you found help the symptoms?
@@paullance1258 Exercise was the best remedy for me. From my understanding, once you engage the twitching muscle, the twitching will stop, at least temporarily. I also went on a low dose of Lexapro for the terrible medical anxiety I developed because of my symptoms. That seemed to help as well.
I've been going through this nightmare for the past 5 yrs. Everything you explain here exactly. Likewise with the exercise intolerance to the point of feeling weak and shaky. My weight has remained the same...I can jump and touch an 8' ceiling still, can still do a pushup. But there are days where I feel rubbery, anxious and weak. I used to fixate on every symptom...if my arm felt numb i would perceive it as worse. Of course I catastrophize as well in thinking the worst such as ALS. i cut out caffeine just this yr to see if it helped and it did some with the anxiety of the situation. Also, I would get the myclonic jerks out of a dead sleep as well. Also, on rare occasions I would wake up gasping for air as if I were suffocating; long list of symptoms. Just to clarify I've had body-wide twitching for the past 5 yrs. My PCP doesn't want to send me to neuro because reflexes are still normal and I don't present with substantial symptoms like loss of function or atrophy. To be honest, I've given this much thought and others might quickly seek out other opinions, but if I did have a worst--case scenario condition I'm not sure I'd want to know if the possibility of normal function existed for a few more years. I'd rather cling to hope and not know until it's blatantly obviously I can't walk, speak or whatever. It's a mental grind for sure...very difficult mental grind. I'm about to turn 45...this all started at just before turning 40. Also, there are days where I feel so anxious and have absolutely no energy at all, yet can't seem to relax or even fall asleep.
You are not alone - same for me. Try to turn down the fear - fear drives a lot of this imo.
Same here
Everything you said we are all going through exactly.
Hi!
To be honest, I've been crying the whole video cause it hit where it hurts the most. It can be so scary and your whole life can be turned upside down because of those insecurities. (Especially when I've went to the same investigations as you described - they can be so so so stressful). It's been quite a while now since I'm experiencing this and I'm trying my hardest to accept this 'new normal'. Anxiety can be such a pain in the ass.
Thank you for sharing this, for me it was beyond helpful and I'm sure others feel the same. I hope you're fine!
I pray mines is anxiety
How are you doing now? I’ve been getting constant twitches for about 3 months now.
@@spaceoddity54it also can be with magnesium and potassium deficiencies
@@erikagonzalez7156 yea true. Unfortunately I got tested and my levels were ok so that’s not causing my twitching. I’ve been twitching now for 9 months. My calves literally never stop. It’s horrible. Went to a neurologist about 6 months ago and got all of the usual tests done and they said it was benign fasciculations.
@@florentinaosoeanu how are you doing now?
I realize this is 2 years old but I am literally going through this right now. It started after a medical accident. I am seeing a neurologist and we are ruling out ALS and MS but the tests and waiting for appointments take so so long. The unknown is scary and the muscle fatigue is so frustrating. I can't do what I use to do and I freaking hate it. Glad to see I'm not alone.
Don't worry your not alone. There are a ton of us going through the same thing. I know that doesn't make it easier, but hopefully you know your not alone. I have been dealing with this for a while now. It had not gone away, that said I think I'm coping with it better. Hope you're well.
Any update? Doing better?
Hey, how are doing, do you still get the twiches?
Updates?
Thank you for this video! And thank you for being very thorough in your addressing BFS. Covering all the bases helps a lot.
So, during a period of extreme stress about 12 years ago, the Fasciculations started in my calves, and have never stopped. I was tested for ALS, and I've been healthy ever since, except that I've developed very painful cramps in my calves if I turn my toes inward (like pigeon-toed). I'm mostly afraid of Parkinson's, except that I have no resting tremors. I've had some episodes of waking up in a dream and moving. But I don't know if that is RBD (a pre-dromal sign for Parkinson's) or just waking up while dreaming.
Here's the deal: I think there is a lot of truth to the theory that anxiety compounds the problems. Although I've received treatment for anxiety, the Fasciculations still remain, and probably will till the day I die. Good luck!
Anxiety is a bullshit cop out. My primary doctor was telling me it was anxiety but and I was just diagnosed with MS. Request to see a specialist for autonomic disorders or MS.
@@MAledish How old are you Sir? How long did you have twiches before getting diagnosed?
Thank you Jack for sharing your experience! Best Regards from Brazil
Wow, this is scary how close this is to what I have been going through in the last year. I mean spot on. Found anything that helps?
I went through all this before, I know the fear. But as your neurologist likely told you fasiculations are not the first symptoms of many of the motor neuron diseases that you are afraid of, muscle weakness is. I do not have any weakness but did an EMG and nerve velocity test and brain MRI anyway which all came back unremarkable. My condition is a little more complicated because I sometimes have "relapses" with parasthesia and widespread pain but I've been assured its benign. I've been like this for 23 years with still no weakness and fortunately pretty rarely have those "relapse" moments so I try not to worry about it. I'm 53 and started TRT a year ago and have been able to build a good amount of muscle mass.
Hi Jack, I’ve been getting twitches throughout my entire body since February. I went to see a neurologist in July and was diagnosed with Benign Fasciculation Syndrome. However, that was without running any tests. My neurologist told me to wait 3 months to see if they go away if not then I will need to have some blood work done and an EMG. Tomorrow i go in to get bloodwork and to schedule my EMG. I don’t have any weakness but I’m still worried it could me MS or ALS. I’m hoping it really is BFS, though i would of course prefer to not have anything. As terrible as it sounds, It brings me a semblance of peace knowing I’m not the only one feeling this.
Adriana
How was your tests ??
What we’re the results?
Hey Adriana, how did your test go? Do you still get twiches?
U good?
@Krishna Thapa did it go away? What was the diagnosis?
I Got mine after a Car crash ( Whiplash). Up to 300 times a Day , all over my body ,in my eyes ,in my ears , in the scalp and face .
I so sorry to hear that. Hopefully it will get better with time?
I have been experiencing fasciculations since August 2019. They started in my calf muscles...literally just one day started and have not stopped since. I have seen several neurologists , neurosurgeons, ms specialists etc. My MRI’s are normal to date...I have had 2 EMG’s one of which was my left arm, it only showed carpal tunnel. My very first symptoms were bladder symptoms and numbness and tingling in arms and hands...with major burning sensation in my feet. Long story short...I have been diagnosed with neurogenic bladder of “unknown etiology”. My urologist is frustrated that none of the neuro docs can figure this out. I have been to a neuromuscular specialist who said these were “benign fasciculations”. Since then I have lost 20 lbs. have had considerable wasting in both calf muscles and hands. My most recent neuro visit he insisted I be re evaluated with neuromuscular bc something is definitely wrong. It is so frustrating!!! Meanwhile my daughters are both freaking out bc they are watching all of this happen with no answer. Also I 54...this all started January 2018...No diagnosis. Next up is neuromuscular,, and a memory specialist bc of cognitive decline...
Have you been checked for Lyme by a Lyme specialist (LLMD)? Might want to consider it.
Rooted Rotor I am pretty sure somewhere in the midst of all of the labs they have done they have checked for it. I will confirm though. There is just so much going on and not one dr can determine what is happening
@@denisedevore619 Believe me - I know. 3 years into this seen over 25 doctors. Been to the Mayo Clinic 3 times. Finally saw an LLMD who tested me properly for Lyme and diagnosed me. The tests done at the local hospital are trash. Need to be tested by a quality lab. Anyway, not saying you have it, but it's a epidemic. 300k new cases per year and its devastating (more than just twitching). Hope you start to improve soon.
Rooted Rotor I think I could have accepted the BFS diagnosis if I hadn’t had the muscle wasting after it started. I am currently staying with my daughter who is 33 bc in December something weird happened...she said I had a seizure...the ER doc thought it was a major panic attack but wasn’t sure. I know anxiety can cause a lot of these symptoms but not the wasting. I guess I will see
have you been tested for MS? Bladder issues and numbness and tingling is very common with this condition.
I’ve been twitching for over 4 years. Some days more than others. Had many tests all clean. The way I coped was to quit worrying anymore about them and let them be. A lot of it is anxiety related and stress.
Had it for 4 years now, still happening 24/7. Started a week after I discovered my uncle was diagnosed with ALS. He died in 2022. I have health anxiety. Did not test for anything....too fearful of the results. I have been on antidepressants since 2019.
If you have had it 4 years than it is not ALS. That illness would have killed you twice on such period od time
Had twitching in all my muscles for 34 years and at the time ( 1988) the specialist at hospital said he didn't know what it was and tbh I think he thought I was a bit odd, roll on until about 7 years ago I came across BF on Internet and knew that was me, it's never getting any better I have learned to live with it i get muscles cramps as well sometimes and they are really painful.
It’s scary how spot on this is to what’s happening to me! Fasciculations, jerks, gym intolerance, etc. I’ve developed a fear of sleeping. I’ve done all the testing, except EMG, and I’m still worried.
Hey omar
Do you have sensory symptoms like burning sensation or electrical pins ?
@@bahaamuhsen3254 I do sometimes. I had neuropathy for the past 12 years. It is in my feet. I used to have lots of burning, tingling, cold/heat sensations etc. Now it is mostly numbness and cold feet. I am 38. Twiches started or maybe I started noticing them about a month ago. I just went through EMG and did correspond with the one I had back in 2019 which confirmed neuropathy. I still scared about ALS thinking that last EMG did not catch it because it is too early. How are you doing?
@@razorred1128 how are you now ?
@@danealexandertrusk8079 Hey I'm doing fine actually, my symtpoms are still there but they are very very very minor like they don't bother me anymore, i did MRI on the brain and it was clear, i did nerve conducting study too and it came back normal.
I am 59 year old man I have had this close to 6 years started out in right calf now all over. I also get cramps in both calves this came a few years after being diagnosed with bfs. Now bcfs cramps Suck. I have been to mass general in Boston and Lahey clinic. Had at least 10 emgs. Still the same answer bcfs. I mountain bike and ride enduro. But when I do any of this I pay for it the next day. Legs seem to be getting worse. But no weakness or atrophy. Just fatigue. I wish this would just go away. But it looks like I just have to keep on going and deal with it. I have tried everything took every test that was available. I hope that somebody figures this out. I wish anyone who has this to keep fighting. Believe me I know what your going through. Good luck to you. And I’m here to answer any questions you may have.
I'm 58.....I was an avid runner but now can only run half the miles I did a few years ago. Agreed that this sucks but only because there are no answers why.
Jack, have they checked your ferritin level? Too much iron will cause never damage. It will also kill your testosterone which sounds like your muscle fatigue.
Hey jack
Hope all is well. I also have the exact same symptoms as you. It's been going on for 8 months now. What really made me nervous was the exercise intolerance.. I have done a ton of blood work and just did an emg and the neurologist thinks its anxiety. He made me do certain strength tests like squats and push ups and just like you I can do them but it's the fatigue I get from doing them. The neurologist says hes pretty certain that it's not ALS as if it was you probably wouldnt be able to do 1 push up or squat.. he never diagnosed me with BFS but I'm thinking that it is that.. by the way these symptoms happened after i had a massive panic attack and developed a mental disorder called depersonalization
This symptom sucks but hopefully we can find a solution to help with it.. I'm seeing a naturopath doctor to see if theres any natural cures or remedies out there
Keep fighting.. these videos make a lot of is feel better
Did you take antibiotics anytime near when it started?
Mark any updates with you ?
@@bcviking9381 I took them about a month before mine started
@@tommyrhodes6054 do you still suffer from twiching?
Thanks bro. My twitching started 11/19/22 after ER visit. I didn’t have leg specifically calf or shin weakness until today after a workout it’s sore beyond normal.
I'm experiencing this. Just over 2 months twitching. Had an EMG in some muscles after 6 weeks and was fine. I twitch randomly all over body every few seconds. Sleep is so hard. They just brush you off and say deal with it if nothing major found. My neuro wasn't worried about ALS and MS has been cleared with MRI
Great post - u have described me . I appreciate your insight
Thank you for posting. I am scared right now. After general surgery I got alot of strange symptoms like yours and more. I am scared that the surgery triggered Parkerinson or MS or ALS. I been to two neurosurgeon MRI of the brain and specialist of autoimmune. As well other doctors. I am going crazy. Thank you for your video
I had hernia surgery and like you got all strange twitches.
Anybody experiencing eye twitching as well ? I m having eye twitching for 3 months but my doctor said take some magnesium and multivitamin and u will be good .
Hey Jack. Any updates on your BFS? Going through same here with fasciculations. Tremors led to PD but neurologist says my fasciculations are not PD related. Anxiety is high as my mother passed from ALS and I am a Vet.
I have these tiny jerks and some twitches all over my body. Some days they are less frequent and I forget all about them until I have them now and then. It's been there for a month now. I spoke to my GP and she pointed to the highly stressful pandemic environment and the multitudes of tasks I have been doing. Her advise was to do self massage, exercise and relax. I am so far sticking to it. However, being in my thirties, and with scores of responsibilities on my shoulders I feel a bit scared. :(
I can relate, I'm in the same boat with the same symptoms.
@@chelseykent5762 Oh No. What are you doing for it?
I am in the same situation.
DOES ANYONE HAVE ANY SORT OF IDEA IN REGARDS TO WHATS HAPPENING IN THE BODY WITH THIS? BOTH MY CALVES GO OFF CONSANTLY AT REST… IS THIS SOMETHINF IN THE BRAIN? THE SPINE? THE MUSCLES THEMSELVES? I DONT GET IT
I have these, mostly in my calves. They started 2 weeks ago. I do have some arm weakness (perceived). I can still lift my normal amount but I'm ALS fear is definitely there.
Me too Megan. I have light twithcing constantly in my calves, very sporadic everywhere else. Arm heaviness as well. MRI has been fine, EMG and neerve conduction study were good. For 6 months now, I've had the fear of ALS, but this video has helped. Have a seocnd EMG and nerve study in Oct. Hope you're feeling better.
Same…how has the twitching been?
By any chance do you still live in Colorado? I just came across your video as I was doing my own research about this. I live in Colorado.. and I too went to my pcp here in Fort Collins where I live. And he wasn’t concerned. I on the other hand am concerned. I know this video is 3 years old .. but I really appreciate all that you shared. And honestly how eloquently and open you were. I am struggling with these muscle twitches mainly in my left calf. I like you eat healthy , work out. I’m in my late 30’s. I’m just absolutely terrified of ALS. Thanks 🙏
Keep drinking Water it's really
Important! When I got optic
Neuritis that's what let them know I got Ms!
Did you ever get a spinal tap? I was experiencing muscle fasciculations and spasms like crazy this past year. The only slight painful ones were the extremely random ones that would happen in my feet or quads/hamstrings every other day. The fasciculations have been literally non-stop though. I have always had mental fatigue/problems concentrating/sometimes my memory would fail me in the moment/a intense detached feeling from reality at times, stuttering since childhood, heat interoperable, lack of sweat, and tingling or pins and needles in my legs or arms (less often).
I am 27 now and as I said all of these issues got far worse this past year. I was recently diagnosed with MS based on a new MRI and an evoke potential test showing nerve damage in my lower body. I seem to walk and run just fine but now that I think about it some days do feel off or it takes a while for my muscles to get going. I defiantly feel that exercise fatigue you are talking about.
One more thing I find interesting is that I have many lesions on my putamen and just odd gray matter patterns on them in general. This is commonly seen in Parkinson’s. I also learned, (I probably suffered a prenatal or infantile stroke) and it affect my basal ganglia which is probably why I stutter and have adhd like problems. I am pissed off I had to discover this truth myself by doing loads of research on my own old MRI’s. I have no idea why they did not bring up the obvious stroke scar when I first got my test done. I showed my neurologist and she confirmed what I was seeing but why didn’t she bother to mention it either? Basically the truth is you can’t always trust or rely on doctors. I would suggest asking for your MRI and all your medical records and do a lot of research on them.
I have had no less that 4 MRIs over the last 10 years or so. None of them ever showed anything;, that said I did not go over them myself. Hope you're doing well? Thanks for the helpful suggestions. Have a great night
Hey man I hear a bird calling in the background and it sure sounds like my conure, my issue started a year and a half after becoming a bird owner and sometimes his calls stress me out.
I’ve noticed that every one who has these type of problems consume coffee or energy drinks
DIMEPIECE ENTERTAINMENT hey man try cbd oil and cbd weed I’ve been using for a week and have seen a drastic reduction In twitches
I have had it for years.
Have you been tested for vitamin deficiency. Muscle fasciculation can be caused by a lack of calcium absorption and lack of vitamin D! Get a blood test and see if you’re levels are low! It also is a cause for fatigue. You might just need to take supplements.
I have had these for 2 years.. my difference is that I have a 50% chance of carrying a gene for ALS. I am still hoping this is all in my head but I know this could be the first sign of this terrible disease.
IM GOING THROUGH THE SAME THING!!! and I’m 17 😭
Hi mate, I'm in very similar situation like you, but my one also includes Small Fibre Neuropathy. Started one and half years ago from nowhere.(Just like that-one night) I'm fit and like you I have been training last 30years in the gym. Is getting worse and I have tried diet, fasting, supplements.... .I have done few tests ,MRI and so on... ...neurologist are rubbish.... believe me!
The only thing helping me a little bit is yoga and meditation, possibly a very clean diet, possibly ketogenic diet, no sugar and carbs. You need completely to avoid alcohol and coffee.
To be honest with you my only hope is the work of Dr. Joe Dispenza. I'm trying hard to do the meditation aprouch.
Good luck to you, I hope you get better.
@DIMEPIECE ENTERTAINMENT Hi brother, finding the root cause of the problem is the million dollar question. VERY, VERY HARD TO DO SO! Believe me! If you want to get better you need to change your self, your life, lifestyle completely.....Also very hard to do so! We all have to make a choice! Doctors, neurologists regarding this condition will NOT help you. The power is in you!
@DIMEPIECE ENTERTAINMENT Yes, ketogenic anti inflammatory diet is the way to start. I have been struggling to keep this diet, it is hardcover diet -but helps. Good luck to you, I hope you get better!
I had neuropathy for 12 years and now I got the twiches. Very stressful...gives me really bad anxieties..neuropathy alone was really hard to live with and now this on top of it, recent EMG did not show any progression in my neuropathy since Nov. 2019..but after twiches started I can't calm myself down...keep thinking about ALS
@@theself-helpconnection3731 Could you pls share some info about the diet?
I've got small fiber neuropathy symptoms also, sometimes they fully relapse and I get widespread itching and stinging sensations and muscle pain. Most of the time the symptoms remit and are so very mild that I rarely notice them though. Exercise and good quality sleep keeps it at bay. When I feel terrible I take Colonazapam and soak in the hot tub in the evenings for an hour and then try to get 8 hours of good quality sleep, a few nights of that and I improve rapidly.
I’m going thru the same, but I have lower back pain and shoulder pain.. I’m on the road to railing out Al’s, or Ms.. I was told it fibromyalgia
Hope you get some answers. Let us in now what you find out. Best of luck to you
I exactly have the same symptoms as yours. Likely, we have bfs. Mine is caused by anxiety. I just eat 2 eggs in the morning and 2 soft boiled eggs at night. I juice carrots 2x a day, apple juice 2x a day and pineapple juice once a day and my twitching slowly fading away.
@@jackemma5116 yes, I still eat rice and other food but to a minimum. I also avoid meat especially beef but I’m big on fish.
@@ConcernlangtayoDue to Poor blood circulation
@@Concernlangtayo How r u feeling now... Does your twitching stopped completely
@@premmysterio4018 yes it went away on its own. I stopped eating carbohydrates. Just eggs, vegetables and meat.
@@Concernlangtayo How many days do u suffered with twitches... And do ur eyelid twitch
Since Feb or March I've been having body jerks. Usually one limb at a time but often just a full body jerk. Haven't been seen for it yet. I'd be interested to know if the poster of this video has had any improvements or what.
Going through this exact same thing right now - and have been in denial about caffeine being a factor. I keep telling myself I'll give it up but then I end up needing it because I need to knock out a big day of work, etc. Did anyone else ever give up caffeine completely and did it help??
Hi... I think going off of caffeine helped?? That said, it did not go away. Like I said slightly better, but still not "normal". Lowering caffeine and trying to eliminate and or lower stress helped, somewhat. Sorry, wish I had a more concrete answer for you.
I appreciate the video.. even if it was years ago. Im currently at the beginning stages of trying to figure out what the heck is wrong with me. I have the twitch/spasm in my calves (sometimes it looks like an animal is trying to escape from inside my skin).. both of them get the spasms. I get random twitches all over my body here and there, nothing as constant as my calves like someone is poking me with their finger. I have some shaking issues as well. My legs mostly but my entire body feels weak/shaky like malnutrition. I haven't been referred to see a neurologist yet. I assume that's the next step now that initial bloodwork came back fine. Im trying to chalk a lot of this up to stress/anxiety. Im sure I have physical symptoms from anxiety, but curious if the anxiety is the issue or if anxiety is intensifying another worse issue. I like others am losing my sh!t over the idea that it could be ALS, MS, Parkinsons, or at best case maybe Benign Fasciculations and Essential Tremors.. either way, I feel absolutely screwed.. and keep trying to calm myself down by just accepting that it is what it is and I can't change it if it's something bad. To be honest, I think I just wanted to type it all out as some sort of weird therapy for the mind 🤣.. I haven't really told anyone and don't plan to unless its something Ill need help with in the future.
How u hanging up
Same here
How are y’all doing???
I’m exactly the same as you. Twitches, shakes and fatigue. Going on 14 months now. All tests clear. Just got to live with it and manage the bad days as best we can
Hello, Thanks for this video. I too have all the symptoms you are describing. I have had body wide twitching for 4 months now, I have also started other weird symptoms such as random buzzing in spots off and on, I also get nerve shock pain here and there, my hands and legs seem to fall asleep really easy usually at night. I too get the jerking thing when in a light sleep.
Exactly the same...but in time...many symptoms go away or fade a bit.
Hey any updates christina ?
@@lastcall170 same here , did u figure it out ?
Bahaa Muhsen nope I still have all these symptoms some days none some days all it’s very strange but I’m getting used to it, it’s definitely anxiety or a hormone thing for me though
@@platinumreflex but did u see drs and do tests ? Specially mri
Hi sir,i had twiching all over my body my thighs, my feet,shouder,ass,a few in the back,sometimes in the eyes,i have moderate pain sometime in my right thighs, and my right knee,back of my right leg fell moderate pain,my right shoulder feel moderate pain too,its almost two months,im scared sir,can't go to neurologist, here in the phillipines its very expensive, im.only a security guard,hope sir you answer me,sorry for my english,thank you sir
How are you now ?
Im the same I work and can’t get past a few hours without fatigue get home and go to bed. Doctor says menopause ! Wtf no it’s not I only just found on UA-cam what it could be .. thanks
Check for Lyme!
Dude the first 2 minutes of your video, describing the muscles twitching and muscle weakness in the exact same spots as you. I've been dealing with it for a few months. Could it be arthritis? Also any IBS or stomach issues? Any rashes on your arms or knuckles that comes and go? Any heart palpitations or increased heart rate when standing up?
I think you are describing what I think I am having early onset of.
Sometimes my bicep twitches but I can only feel it I can’t see it.can you see your twitching
Hi Jack just seeing how your symptoms are going
Almost 2 years of calf aches, tightness
and twitching for me. Nothing helps and no diagnoses.
Same here I think it has something to do with the s1 nerves in lower back,you get the cramps to?
Same here,does anyone get like jaw jerk in the morning?I got everything done,blood,EMG, MRI,Neuro doc says I'm good,but still worried.Gym strength is still good at planet fitness,did the whole incline rack (300 lbs) and whole rack of pec deck flys.
I have a cramp in my right leg that just won't go away,I'm scared every day and have no clue what lies ahead,but for the ppl who have this for 2 years ,I think you guys are good, all this started for me like mid March with numbness and tingling.It really sucks and super scared😩😢
Where do you have the numbness and tingling? And honestly if you got EMG and MRI done and doctor says your good I would take it as he says and be stress free :)
How are you? Do you still experience the symptoms?
Try parasite regimen for a month
How does AIS show up on an EMG?
Been struggling with this for 7 months
Let your primary doctor know and ask to see a neurologist. Could be nothing too serious although I believe benign muscle twitching syndrome is simply another way of saying “we simply just don’t know why exactly.” I was going through this same symptology and was diagnosed with MS.
I have had these in my calves for 8 years 24/7. The twitching does happen in other areas too just not nonstop. Muscle cramping. Exercise fatigue. Get pins and needles at times. Occasional numbness. I have tried everything I know. Have seen a few neurologists and had the emg/ nerve conduction tests. Nothing. Still worry about ALS but I guess if I had it I should have been dead awhile back
@Ansh Bawa still have. Some days are better and some days really are bad
@Ansh Bawa I have just been living with it this whole time but symptoms have become more bothersome the past couple months. So have an appt with another neurologist on Friday
@Ansh Bawa I will
@Ansh Bawa they will prob say bfs
Iv had this for a long time both legs thighs non stop twitches like insects all through my body day night worse at night .
You just described my life to the T. How are you doing these days?
Hello, I am writing from Azerbaijan. I am 21 years old. For two months, I have weakness in my arm and numbness in my hands and feet. This problem has spread all over my body. Do you think I have Als? İ am 21 years old
Buralarda teshis arama. Doktora git. Semptomlarin bir cok sebebi olabilir. Ciddi sebepler olabilecegi gibi basit sebepler de olabilir. Doktor muayenesi en dogrusu.
Hi Jack, thanks for putting up this video. I started having arm muscles twitching a week ago. But my arm muscles only twitch when I am resting or when my muscles are relaxed. When I walking or doing normal activities like cleaning, cooking....etc, my muscles do not twitch at all. Not sure if that had happened to you as well.. Thanks again.
Same here
likely carbon Dioxide. if he is crossfit , he probably is low carb. Low carb is lower levels of carbon dioxide in blood. this will lead to respiratory alkalosis, nerve excitability. he said he is type a. breathing quickly. this also is offloading his carbon dioxide and making oxygen exchange harder. (exercise intoloerance.) Slow breath, eat grains, drink water, and rebalance chemistry so nerves can function instead of adapting. Look at chemoreceptors anxiety Co2.
Can sparkling water be a factor?
Was your MRI with contrast?
Thanks for the comment... my MRI was both with and without contrast. Hope this helps. Thanks 😊
2 years in with this. Calves twitch like crazy. My legs haven't felt comfortable for 2 years. Always feel pain....numb or just detached. God .....I hate this.
@@jackemma5116 so...you first said you don't have twitches but later on make mention of fasics? Do you have twitches still?
@@lastcall170 how are you
Did you do any tests ?
Hey...how are you today? Do you still have to deal with twiches?
Hi can i contact u some haw got some symptoms with I want to ask u about?
I wonder if using some CBD oil may help calm some of the anxiety which would help.
Having these fasciculations after the covid vaccine, Pfizer , just first dose. Anyone else ?
Interesting! I have read about some people, haven't talked to anybody personally
@@jackemma5116 sir you can try homoeopathy medicines for twitching
Yes
@@SusanM-ez7ky did you tried homoeopathy medicine
@@nawabKhan-tv7vh no what is that?
Hi Jack.
Do you get aches in legs feet and hands when you wake up in the night?? I get the jerks before I fall asleep.
do anyone get muscle twitches when they contract their quads? my quads muscle fibers move like crazy when i flex iy
My muscles haven’t atrophy, just weakness
Nice to hear your story, but I'm sorry for what you are going through.
I wanted to say my muscle twitches came on around age 27. I had REALLY bad muscle aches and joint aches as well. I would be 100% fine half the days of the month and the other half I would literally be bed-ridden with pain. The twitches were the least of my worries because the pain was on the same level as natural childbirth. I wouldn't even be able to get my phone to call 911 sometimes. I would just ball up in a fetal position and try to survive...the intense pain was all over my body in all my joints--but was like a severe ache. Even had them in my jaw joint.
So all my bloodwork and tests came back normal. They found "extra electrical activity" in my legs with the test the neurologist gives (EMG? EEG?) But I was told all was fine.
I had to quit my job due to severe pain. I remember using the wheelchairs at the grocery store because my hips and knees would hurt too bad to walk. Sometimes I couldn't even use my computer in med because lifting my arms to type would cause the pain to start in seconds. Anyhow, that was hell. They only found high levels of arsenic in my urine. Idk why. But it was gone when I was re-checked.
It was bad for 4 or 5 years, then I became pregnant and immediately all my symptoms went away. Just like that. I had my baby at age 32 and I had zero health issues until my kid was about 4 years old and I had a LEEP procedure (removes pre-cancerous cells from cervix) and after that, I had VERY painful muscle twitching each time my menstrual cycle would come. It would be JUST like before--except the painless twitching I had all over my body was now painful. My daughter is 11 now and so it's been about 7 years and I still get the painful muscle twitches about 1-2 weeks each month. Sometimes it's during another part of my cycle, like ovulation, but about 95% of the time it's during my menstrual cycle. Doctor's say all is fine. I'm in such bad pain and no medication has helped. I am extremely happy that I get pain-free days though.
Thanks so much for your kind words.
Sounds like you've been through some really tough times. I can empathize with you completely. So sorry for what you've been through and continue to go through.
I am much like you some days are better than others. I guess you learn to live with it best you can.
Hope thing get better for you.😊
Since it has something to do with hormones, could supplementing with boron help ? research boron and sex hormones. Boron also happens to help calcium and magnesium to work properly which can help relief muscle spasms
Jack is there any way I could private message or email you? Thanks.
Feel free to text anytime 7202884648.
Anyone get incredible body-wide stiffness as well? Cracking joints/neck?
How are you now after three years?
I'm facing the same problem!
I'm am well. I would say my symptoms are the same, possibly slightly better. My ability to cope with the symptoms has got much better. All in all I would say i'm doing great. Thanks for asking
Please sir help me my name is MOSAROF I'm from Bangladesh I'm 35 year old I'm suffering MND ALS disses one year please can you help me sir please
My muscles have been twitching I areas of my right leg. My arms. My shoulder and back. The twitching lasts for at max 2 seconds and then no more twitching for like 5 mins. I almost never twitch whenever I'm moving so I think this is BFS. I'm going to get checked tomorrow what do you think
Have they ruled out Parkinson's I started with a twitch
My twitching started 2 weeks ago and it’s all over my body, I’m freaking out thinking it’s something serious, I’m going through all the tests now (EMG set up for next week) I don’t feel weakness by my anxiety is affecting my day To day life. I’m 31 and worried about ALS or MS.
Simon , any updates )?
Bahaa Muhsen nothing dangerous just got some light seizures happening causing twitching. Doctor told me not to worry, so I’m not worried
@DIMEPIECE ENTERTAINMENT do you have any other symptoms ?
@DIMEPIECE ENTERTAINMENT i have some of those symptoms specially the burning, vibration sensation
Why didn't u do mri ?
@DIMEPIECE ENTERTAINMENT why your Dr is refusing to do it even though you have all these symptoms ?
Hello everyone. Has anyone got any positive updates?
Hey, this is happening me... Exactly the same. Would like to talk o write you, need some help and advise
Thanks for sharing! I have been dealing with the sleep issue of jerking/twitching and it'll wake me up just as I begin to drift. Soooo annoying! Have you found a good treatment for it? How are you managing these days. -Best
Bro I can relate to this as well! Stress & Anxiety play a huge role on this btw!
Thank you for posting it. Even though it doesn't resolve my issue this video is definitely spirit lifting leaving you with a feeling you're not alone. By the way, how are you feeling now? 3 years after posting it.
Hi, thanks for the videos, they are definitely a lot clearer than trying to dissect your way though all the information available. I have been struggling with twitching all over (predominantly calves but also thighs, shoulders, face etc.). I've had an emg which was negative and my understanding is that if you have twitching and it's ALS it will definitely show. Is this consistent with your understanding and what you have been told by neurologists? Thanks in advance!
Yes, from what I understand. When you have the fasciculations that would be the nerves dying off, which would almost definitely show up on an EMG. Hope this helps, have a great day
@@jackemma5116 Thanks for replying. I've been reading so much as my concern was that I may have had the EMG too early and other symptoms such as weakness and atrophy might still come. I'm hoping that because the EMG didn't pick up any neurogenic changes I can relax now as if it were ALS I was under the impression this would definitely show given the twitches would be associated with the nerves / muscles dying.
@@markryan6521 This is what I am going through right now. I am 38. I had neuropathy in my feet for almost 12 years. I had long haul covid in late December, recovered around late January, noticed twiches all over my body. Went to see my neurologist, reflexes were a little brisk. I had an emg back in 2019 that showed neuropathy, but I managed it OK and lived a normal family life. Just got my second EMG done, it did correspond with the one I did back in 2019 which means that my neuropathy did not get worse. My neuro told me, OK no ALS, you have BFS, but now I keep thinking that it was an early EMG and we did not catch it.
23 dealing with muscle twitching for 3-4 years. Also I have really bad sleep maintenance insomnia and jerks that i developed 4 months ago. I'm terrified I'm dying to a prion disease or ALS or something. I've had health related OCD for a very long time so it's not the first time I've been convinced I was dying but these symptoms along with the fear of a terminal disease has pretty much destroyed my life. I would actually be relieved to get an MS or parkinson's diagnosis because then I could actually have an explanation for everything that isn't a 1-2 year fatal disease.
Have same problem, started 2 mths ago, now twitching all over.