Stories about Living with Lupus Kidney Disease
Вставка
- Опубліковано 18 січ 2010
- Baakari Wilder is a male with lupus who developed the disease while he was starring in a Broadway musical. Carla Vargas describes how she must undergo periodic chemotherapy treatments to manage the health effects of lupus nephritis.
My treatment is going on in AIIMS hospital in Delhi and i have to go for medical checkups after ever few months it is expensive for my parents . I hometown is Sudarshanpur Raiganj, Uttar dinajpur , West Bengal. West Bengal to Delhi for my treatment then expenses for staying there ,food, medical tests etc is really very expensive, my parents are really working hard enough to clear all the depths but the depths seems to be endless, I just want to complete my studies and work hard so that I can also help them to clear all the depths and give a peaceful life to my parents were there will be no tension regarding finance .💝💝💝
I was diagnosed with SLE in 2007 and my twin sister in 2008 everyday just living with this disease its a struggle the aches and pains not from the disease but from the medications is the worst. These videos of real people also struggling with some of the same symptoms makes you know you are not fighting alone.
Diagnoses 08 aged 16
on symptoms of joint swelling and pain, mouth ulcers, swollen lymph nodes, sickness, fatigue and muscle pain to the point where I couldn't walk. Put on Pred and anti malarials, doc asks for 24 hour urine sample, comes back bad, pred upped 60mg a day. Face gets huge, get stretch marks, have kidney biopsy, grade 4 lupus nephritis, put on Mycophenolate and pred, takes 6 months to get better. Year later same thing but worse, have to go on cyclo. Worse time of my life. Hair loss.
Man I am having a hard time right now being strong and I needed to see this video so I don't feel so alone.
Stay strong 💪
I just got diagnosed, so thanks for sharing your stories and strength, Blessings and Peace !
Hi am Soweta Paul, me too belongs to this family, i m also suffering from lupus nephritis, i was just 14 years old, i had to undergo a lots of medical tests cause doctor was unable to recognize my disease, but by God grace my disease was identified. I leave in a small town were there is no such treatment for this disease so my parents decided to go to Delhi for my treatment but there was a financial problem ,still my father managed to collect money.my full body was swollen and pain in joints special knees. But luckily I got a new life ,the day i reached Delhi was on my birthday i was blessed with a life . Now I m going to be 18 years old on January 28th. I have to take care of my health n take medicines for my entire life but m happy that this disease allows me to do what ever makes me happy. I am so greatfull that i have wonderful loving parents . Love you mom and dad ☺💝
What a strong young woman I can hear the pain in her voice but am so thankful for stories like hers
Thanks for the great show of strength and courage. I also have lupus...i know the feeling that truck hit you, backed over you and is dragging you along behind. Faith and taking control of your own health are wonderful tools.
I was diagnosed with Lupus Nephritis when I was 11, I had to take cytoxan 6 times, and then an oral drug to make sure the lupus never comes back. I went to the ER because I had serious back pain and I felt like I needed to urinate but I couldn't. It was scary and I spent my hospital stay mostly in the intensive care unit, but nearly one month before I got discharged they moved me to a regular floor because my bloog pressure was simmering down to normal, and it was there that I had my 12th birthday also, it was pretty sad though, only two friends came to visit, one who has been friends with me since 3rd grade and a new one who I've only known for 3 months
Really good video thanks. I am diagnoised 9 years now with SLE
Thank you for sharing these stories with us. I have lupus too and I can relate to alot of what was shared.
your all so brave
I was diagnosed with stage 4 lupus nephritis when I was 12 years old. I went through 2-3 years of cytoxan (chemotherapy treatments), plasmaphoresis, and taking lots of steriods. I am only 21 and have been told I will have a kidney transplant and to just live as healthy as possible to put it off as long as I can. As for now, I take Cellcept and a few other medications.. but I'm alive!
lindsayalyssa08 I went through the exact same thing. Over 32 years of Lupus now. Been through hell. Now I'm on kidney diaylsis. But I trust God for a miracle. There's just too much I've been through that I can't put it all down here. But God bless all that are living and battling this horrible illness.
How did U treatment the lupus kidney?
Lupus nephritis -
Class 1 - minimal mesangial lupus nephritis (*best prognosis*)
Class 2 - Mesangial proliferative LN
Class 3 - Focal LN(*Wire looplesions*)
Class 4 - Diffuse LN (*Wire loop lesion -m.c*)
Class 5 - Membranous LN (*wire loop lesion& m.c associated with renal vein
thrombosis*)
Class 6 - Advanced sclerosing LN (*worse prognosis*)