Fibromyalgia is complicated. Everyone is different. Movement is essential. I know a lot of people with fibromyalgia. I’ve had it for 23+ years. Cannot over do it, that’ll make it worse. Finding the right balance of resting and movement takes time. I’ve kept a journal for many years noting what increases pain/fatigue. The more I laid in bed the more I hurt. If I over do it working in the yard, I hurt for days. Stretching is effective. I started slow and easy. Stretching helps my muscles relax and it helps with my mental fog (controlled breathing while stretching). Keeping a journal was the best thing I have done to find what works and what doesn’t.
I realise this comment was made 3 years ago. I’m so impressed with the journal I’m going to do the same. I agree sometimes you’re in so much pain all you want to do is stay in bed, but moving is the key. I’ve learnt to pace, move but don’t over do it. Thanks Bob and Brad, first for recognising fibromyalgia is real, and thanks for having the good Dr on.
Thank you! I have been a long-time sufferer. There was a time when I couldn't get out of bed...tired and in pain. I now eat Keto and do intermittent fasting. I do meditation. I'm terrible about movement and that has been my downfall. But eating WELL through Keto and keeping my weight down has decreased my pain an incredible amount. When I eat crap I feel miserable. I needed the reminder to get moving more consistently. I know it helps tremendously!
Many of the people that I have talked to that have fibromyalgia have had one huge psychological trauma or an accumulation of painful events in their life that created this pain. Most people have a lot of unhealed emotional issues.
abc xyz I was hit by a car. Spent two weeks in hospital and two years having various staged surgery to regain function in my leg. Lots of damage and long periods of “mental” pain management just to get through the acute stage of healing.
I had a virus that kicked me into viral rheumatoid arthritis. Took a second doctor 10 days after being misdiagnosed to get proper treatment. Felt crappy ever since.
So the implication I am getting from this is that if I move more I won’t hurt. Funny, I have maintained a full time job, walking regularly, still fairly functional although I have developed some arthritis and disc problems from years of working as a nurse doing a lot of lifting, transfers etc, Never in all those 35 years since diagnosis has my fibromyalgia pain decreased because of activity.
Good. Golly!! kcnurse19 !! Idk HOW the HECK you can even do nursing while suffering with fibro!! Ugh. I don’t feel better the more I do. I feel worse. For then DAYS! I’d guess you can relate! 12 years ago when I was 48, I could go to my camper and do everything by myself. With my dog, of course. 🐶. Now, I’m neatly 61. My daughter and I live together which helps her, but it also really helps me, honestly. I haven’t been able to go out and enjoy my camper for several years now because I just. have. nothing!! Anymore. I’m in bed. A lot!!Plus my back and feet have been just crazy with pain so I had them both checked out so now I have the spondylolisthesis like Brad has and my arthritis doctor said, oh well some people don’t even get pain with that and I said well I don’t know. I guess I am not that person! I have a rheumatologist, a regular medical doctor, any pain management doctor. ENT and Gastroenterologist. Back in the day you just had a doctor not you go to 10 of them and nobody knows what anybody else is doing. it’s just a messed up thing. I normally type better it’s been a long day and I’m really tired but it’s nice to meet you! Truly, it is :-) there’s a app and website called the mighty that is for peoples conditions and there’s some helpful tips on there and you can talk to others with conditions like your own. And I’m on a couple Facebook groups of pain management. That helps too. Please, take care!! Especially right now, in your field!!! I know how bad it is! My niece is a physician not far from where we live. She keeps telling us we haven’t seen anything yet! Nite
kcnurse: Nice that you have invalidated others with fibromyalgia. Many doctors diagnose people with FM and it isn't FM at all. If you are still functioning as you say you are, then you either have a very slight condition or someone was pulling your leg when they labelled you with that diagnoses. If you lived a life involving FM and remained working in the traditional medical system, then you would not have known much about this medical condition. It was neither recognized nor respected by conventional doctors back in the 80's, only Naturopaths. Been there done that in one of the most progressive cities in N. America.
Sleeping Lioness sorry but you do not even know what you are talking about. Not only have I worked in traditional medicine but I have been treated by traditional doctors. I have participated in university studies regarding best treatment regimens to remain functional with fibromyalgia. I may have been able to continue working but that does not mean I have had a full life. I work because I have to in order to take care of my family. I do not, however hike mountains anymore and my recreational activity level is almost nil as I expend all my energy on must dos. How dare you judge me without knowing me. Your judgement regarding my level of functioning is every bit as arrogant as doctors who used to assume when I told them my diagnosis that I was in their office seeking drugs. People’s experiences with this condition are as individual as any other health condition. You cookie cutter armchair diagnostic skills are not welcome.
kcnurse19 I’ve been accused of drug seeking, after my first hip replacement went bad after 11 months and the doctor said it was perfect and I was there to get drugs. I wasn’t used to hearing anything of that nature in my life. I was so shocked I just didn’t have words for what he was saying to me. He was judging me as though I was a corner h user or some bs. Things we never forget!
I suffered the pain/ fatigue of fibro for most of 14years. Tons of meds. Changed diet to whole food, plants only. No oil. No sugar. Little salt. Totally healed in five months. I was 52.
My daughter had extensive pain when she was 18 and then again at 22. She had sensitivity to sound and to light, headaches, brain fog (this A+ student couldn't link 2 sentences together), depression, joint pain in all joints, sensitivity to touch over her whole body and constant tiredness. I looked online and found a chiropractor 65 miles away who advertised that he could help fibromyalgia with “brain-based therapy.” Much of the therapy involved balance exercises while breathing oxygen, which immediately started giving some relief. After extensive testing he told her to go off gluten. She hadn’t noticed stomach or gut issues, but followed the diet faithfully. After a few months she found that a little bit of wheat would feel like shards of glass in her stomach. She became more sensitive to smaller amounts over time. After a few years she realized that she was getting all the fibromyalgia symptoms along with the shards of glass. And then one Thanksgiving she found that breathing flour in the air gave her all the fibro symptoms without the shards of glass feeling. So she is very healthy as long as she can avoid gluten completely. I’m not sure if that counts as a cure, but it certainly seems like it.
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When people hear fibromyalgia many medical professionals don’t take it seriously. It’s like a smack to my face . Because I’m there for help. There are days when I feel like I just can’t do it anymore.
I have had this since 1992, I do not understand why or how I got it !!!! I remember when this happened I remember where I was ! It was as if I was hit by the devil. I thought I had the FLU FROM HELL , I have no other words for it . I deal the best I can. I could write a book .
Hi John. I have fibromyalgia. I found after many years that much of my widespread pain was caused by food allergies and caffeine. Good sleep and walking have helped. Everyone is different. My experience obviously is probably different from you. But I thought I’d share my story just in case it might be something that you haven’t considered.
@@DeaconOnTheAir thank you. Once I figure out how to live without caffeine, I'll let you know how that goes. I'm willing to go carnivore diet if that's what it takes. If it wasn't for Kratom rn, I'd suck start a firearm.
John Rice Yea it took me a while to stop drinking it. Check out (Bob & Brad) other video. It’s about fibromyalgia and foods to not eat. Might be helpful. Hang in there. ua-cam.com/video/fU_gMhMkwy8/v-deo.html
J Smith Crazy isn’t it! You go to the doctor and they can’t help you. It’s been years of reading and talking to people like you that got me to a more comfortable life. Hope your doing better now.
15 years I'm bedridden from 60 -100%. Currently must have an exercise program. A very pretty short time job 2-7 hours a week and to much alone bed time is a Killer to me.
Thanks fellas!!! I found a practitioner. One of them, in my hometown. I might just check it out. The best thing about this video with the camaraderie we have had in the comments and I really thank you much for that!. THAT would be something to talk about!!!
I love this channel, but living alongside my partner that has chronic pain since childhood, after watching the whole video, i felt misled to hear the lack of ways of treating fibromyalgia. ... maybe change the title to a quick description of that particular doctor and what he does, because this is honestly all I got out of it. No disrespect intended. Aloha and God bless
muvma hi ! I’m with you!!! I did look up that man’s website and there is one therapist in my town. I mean if my insurance covered it I give it a try. I try about anything
It’s a real place. Luckenbach (/ˈluːkɪnbɑːk/ LOO-kin-bahk) is an unincorporated community thirteen miles (19 km) from Fredericksburg in southeastern Gillespie County, Texas, United States, part of the Texas Hill Country. Luckenbach is known as a venue for country music.
I believe that I have had Fibro. for many years. Most of my pain has been and is totally in my muscles. It hurts if someone or my cat touches me and as I get older it is hard to walk, I have no energy, brain fox, and many other symptoms. My bone scan relates that I have osteopenia. Up until recently, Fibromyalgia was not a subject to be discussed because most MDs just don't know that much about it. Thank you for sharing. (How does one get diagnosed?)
Poverty limits the time some of us have to actually help ourselves. I cant slow down as much as my body needs to in order to heal. Its a constant game of do what im capable of and not necessarily priority. That ends up adding stress cause our livelihoods are now affected and boom, more pain. He is saying something ive never heard. But the reality is its a disability. We need financial help in order to have the time to meditate, sleep, and reset. If I dont sleep the fatigue is debilitating. I have 24 other conditions, 5 of which are chronic diseases.
Renee Maurice I put my ZIP Code in and nothing came up at all. I just looked at the map and squish my fingers together so I could get my area and I found one doctor in my area and then a couple of an hour north. You might have better luck trying it that way because putting my ZIP Code in did not work for me. I’m gonna look at the map and see if I can see anything with Canada the way I did it. HI 👋 if you take your fingers on the map and with two fingers move the map around and get up to Canada and then spread it out there are some up there. I think honestly it would be just easier to call the place because the search doesn’t work at all. It didn’t work for me either, sorry to say. and I know I’m not trying to be rude or judgmental. I just couldn’t make it work by putting in my ZIP Code at all. I couldn’t see how to like put the distance out if that’s what the issue it wouldn’t of been the issue because there’s one in my town. So anyway it didn’t work for me either! Good luck!!! This condition is NO FUN!!!
I hope you can make some sense out of that message. I’m sorry. I am not feeling very good today and I just was trying to let you know I think there’s somebody up there somewhere but I don’t know if it would be anywhere near you. Thanks. We just need to care about one another. I’m so tired of the way everything is right now in the states with all this hate. I cannot take it anymore.
@@Nan-59 I did understand and thank you for replying I can try that as well but honestly it will probably be another dead end like everywhere else, and yes it sucks big time, stay safe Nan 59
It feels like your just trying to sell stuff to desperate people, that's the worst, whether it's a book or a lifestyle, the feeling of being sold something that you need to feel better is awful. Especially when you have spent years trying different things and have exhausted all the options you have the strength for. We need a pathway to recovery, like when someone is diagnosed with cancer and is told, here's what we do next, we're not told where to go from here when diagnosed, and if not we never get help.
Improving one's health is an investment and unfortunately you're probably going to have to spend some money. The folks that studied and wrote the book, developed a plan spent their valuable time investing in research and documentation. Many things can be found online or at the library. Radical diet improvement is always a good place to start, but it'll cost more to buy healthy foods than to eat hot dogs and Mac and cheese. Exercise, however small a start is also a great thing. I'm sorry you're having health and financial issues, but so am I. Nobody owes me anything. I'm thankful for what I have and I give thanks to God for the wisdom and healing options He gives me - Including helpful videos from Bob and Brad.
Yes, i heard theories and overview. But no actual help. Maybe a link to his book or future shows that explain what he does by example, like with new patient role play.
Carol the Crazy Camper Yup! I felt like it was just information about those therapists might be out there somewhere near us that’s what I got out of it. And his books.
When my rheumatologist diagnosed me with it, he said it is real pain. He then implied it was less than a real condition when he said things like: it’s mostly middle-aged women who present to him with these pain complaints, & they often have traumas from unhealthy relationships/events. I didn’t know what to make of that statement at the time... he had just examined me and tested my pressure points for pain tolerance and told me & my husband who was with me at the appt that that’s what I had that was causing my pain. When he had mentioned the troubled relationship / marriage component, I was in shock because I felt that was me! I never said anything nor did my husband, just looked at the dr dumbfounded. His solution: a sleep study & subsequent sleep apnea equipment, PT work (bad osteoarthritis) & an antidepressant which I can’t remember but it didn’t agree with me (made me anxious & sleepless.) I gave up a while ago on those treatments & the sleep apnea machine. I’m still in my unsupportive & at times emotionally abusive marriage. And I still have fibromyalgia. Just not sure where to turn anymore.
Very interesting. I believe this. I have heard that it's a result in the body due to not being loved by someone who was supposed to love you like a parent or spouse should. In a sense it's physical pain in the body because of a broken heart. I also believe that it's something that Jesus can heal. And crucial for us to forgive those people who failed to love us properly.
Unfortunately, he can often be correct about the trauma component, but the offhanded delivery is BS. A Harvard psychiatrist who was foundational in the 'discovery'/diagnosis of PTSD from it's modern beginnings in Vietnam War vets has stayed unbelievably involved in the neuroscience component, much like Dr. Lowe their guest was speaking of. While Dr. Lowe focuses on teaching physical therapists and physicians about the importance of how we can help help people to retrain their brains, this Harvard psychologist gets more into some of the psychological 'why' that is so often associated with chronic intermittent conditions, like fibromyalgia, irritable bowel, and others. The book is called The Body Keeps the Score. It's absolutely fascinating.
I came down with fibro as a single mom in my early/mid-30's during a phase when I was experiencing chronic illnesses due to vaccine injury and my antidepressant being switched to a generic. My parents and most family had long been estranged. I lost my job, home, pets, kids, independence and dignity. My twin sister stopped talking to me (as we have had a tumultuous relationship all our lives). It was and still is hell on earth. I am destitute, in pain 24/7, and drs cant, dont, wont help. Things got a lot better when I accepted I would be in pain forever and gave myself permission to be lazy and selfish. I was the type of person who could never sit still for long but am mostly homebound/bedbound now at 44. I wouldnt wish this isolated, lonely, miserable life on anyone! Thankfully my sister and i made up and i found a stranger online to take me in. For a decade I was homeless and bed surfing, couch hopping, sleeping on floors, staying with a creepy uncle, putting up with abuse of every kind because I had no way to provide for myself. I feel for all the people suffering out there. The drs do have pain meds that work but they refuse to prescribe them. Its evil. I feel grateful that every day that passes is a day closer to the end!
Might be an electrical imbalance preventing nerves from communicating. Or myelin sheaths are deteriorating. Or bacteria or mineral/vitamin imbalances. Could be so many things.
@@Mike-qs1js Haha. Yea. I went on a binge to attempt to help my mom. She recently had her teeth pulled out and she doesnt complain as much about her myalgia. Could be all the bacteria and metals in her mouth for all those years.
@@Mike-qs1js Thanks. If you search you will find. Time will tell how well she will do. With no teeth currently she is forced to eat very healthy foods also. She ate like a bird before but it was sprinkled with junk food and now its 90% nice food. She was also hit by a truck while crossing the street 10yrs ago so I think it screwed with her nerves and weakened her immune system which potentially caused her mouth to be a danger to her and she still has some incredibly heightened senses since being hit to her detriment (ie - high pitch sounds, feeling when its going to rain/storm when nothing visual indicates, can taste things that are very minuscule etc) but seems like the teeth pulling seemed to cull some of that pain.
Very good. Realistically, however, improvement depends a great deal on whether the patient lives alone or has someone to help them. It is a well known fact that people with FM who live alone do not do as well because they have to do everything themselves.
Omg. I saw you in the comments before now here you are. Well nobody is entitled to anyone. Don't treat other people poorly just because you don't have a partner if that's what you're doing.
Mine began with an accident that moved the small disc in jaws slightly...didn't know this for several years dr.s said bad wneck whiplash and the muscles were torn and now I have scar tissue impacting perrifrial nerves in my neck and jaws...and that was 28yrs ago and symptoms landslide since now my jaws have RA in them and no going back this illness is a domino effect to all the pain fatigue and all symptoms that cant be discerned by the brain anymore it's so horrible and I don't know of any cure I mean real cure not someone who doesnt have it trying to make money off us all with false hope so idk😂
Myofascial pain comes with fibromyalgia cause it can be caused by tempular mandibular inflammation and malfunctioning of the only moving joint in the head we are in real pain
The website provided seems to be for drs and therapists. I am looking for a way to get help from your guest and his team. I have been in bed for over 20 years with no hope of getting help. I think k he may be able to help me. Thx.
Have you heard of R Paul St Amand... google him and his protocol which seems to work for many. His book... what your doctor may not tell you about fibromyalgia.
sirenmuscle Thanks!! I’m gonna write all that down whenever I can find a little piece of paper around here somewhere. it’s 1:30 am. I should be sleeping. So you have found something that helps??!! I searched out the book!! I’ll have my daughter help me listen to it!! Thanks!!!!
@@Nan-59 I have been on the protocol for 7 years now and from bed ridden to active. It works.. you just have to stick with it. You can get Guardian Guaifennsin on Amazon. I know Dr Amand and have seen him many times here in CA. He used to teach here also at UCLA college. Good Luck.
sirenmuscle YOU ARE SO KIND!! Honestly I’m so tired and emotional I could just start crying! I have heard of this protocol in the past different times and no dr seems to know anything about it, or how to do it. or how much to take or where to buy the decent guaif.... 😩 I’m in Illinois. So it explains everything in that book?? I will send for the book tomorrow !
@@Nan-59 fibro is caused by calcium phosphate deposits in the cells of the body which the kidneys are unable to get rid of. The calcium phosphate disrupts all the functions of the body including muscle pains where the deposits are located and brain fog. Once the deposits are removed with the help of guai your body slowly starts to heal. The getting rid of the deposits happen at a rate of 6x the rate of input so it is painful in the beginning but once you are over the hump you will start to have good days compared to bad and they will become more frequent. The one thing that blocks guai in the kidneys which are responsible for the excretion is any type of salicylates..which are plant products... example tea, aspirin, mint, .. you will read about it in the book. Once you get things on board and in time of clearing the deposits from the body you will be able to function again. Also watch your diet.. try to eat healthy and avoid sugar and lots of carbs which convert to sugar. Sugar makes one feel bad. Hope this helps. Read the book, get the guai ..guardian brand from amazon.. (it must not contain any blue dye which blocks) and there is also a facebook group under claudia M.i forgot her last name.. one of the authors of the book.. so you can ask questions there. There is hope... just no one knows about this protocol. And other drs dont want to listen to it because it does not make money... as guai is cheap. Good Luck!
I've had fibromyalgia(diagnosed) for 31 yrs. Unfortunately I don't have health insurance or the money to see a chiropractor or massage therapist. It is so hard to hurt everyday. I do walk and stretch everyday, but as I am getting older, hard to sleep due to the pain in the shoulders, and back when standing. Not sure what I can do now. I have bought many books as I can afford it, but don't have the money to get help. I was really hoping that this video would give me ideas, I cannot afford a therapist.
Im destitute too so i am limited with what I can do to help myself. Some things I do are self massage (scalp & face massages, foot reflexology), exercises for people who are bedbound, EFT tapping, walking, meditation, use a foam roller, self pleasure, eat as healthy as possible (limit or avoid sugar, meat, bread) and avoid stress. It's an every day battle against pain and frustration. I feel for anyone that has to go thru this horrible condition. It's stolen a decade of my life away and everything I ever had or worked for. Sending strength, endurance, and love to all the pain warriors out there!
It's not just brain is the mitochondria and diet change. I healed my fibromyalgia with diet and a few supplements. I don't buy it's all in the brain. Maybe it part but diet really is key.
Paul Schneider208663531 Stuart McGill found my cause of pain. I kept complaining about my discs, was told it was fibromyalgia by a orthopaedic surgeon and physio. Guess what? They were wrong. Just because your medical clinicians don’t have the competence to determine the cause doesn’t mean there is NO cause.
@@BrodeyDoverosx I have never had fibromyalgia. But, I'm always on the lookout for something that might help fibromyalgia victims. Do you think this guy would also have misdiagnosed the cause of your pain? Who is Stuart McGill?
SAMe & iodine. (check with your doctor before taking, I am not a medical professional, blah blah blah. Don't be surprised though when they have no idea what SAMe is, and they say that in the US, we aren't low in iodine. - seriously research first though before adding anything, because things can cause issues)
Brodey Dover, I have to reply to you this way because UA-cam has disabled my ability to reply to comments because my replies are not consistent with their agendas. They have ignored my request to correct this problem for months. I have never had fibromyalgia. But, I'm always on the lookout for something that might help fibromyalgia victims. Do you think this guy would also have misdiagnosed the cause of your pain? Who is Stuart McGill?
Wow! YT finally let me out of their "YT blocks ALL of MY REPLYS jail". I hope YT does not decide to re-imprison me again anytime soon. Thank you YT, for finally releasing me from your "YT blocks ALL of MY REPLYS jail".
"fibromyalgia" isn't muscle pain. It's most likely a chemical issue. Humans have natural pain relieving hormonal responses. People with "fibromyalgia" do not have the appropriate responses chemically to pain. So if you have arthritis and you move more, it may help the arthritis, but the pain response is personally and very subjective. I've been "sensitive" my entire life. This works both ways, for pain and pleasure. I feel like "fibromyalgia" has been used as a blanket diagnosis so doctors offices can get paid and drug companies can make money.
Wow a book is all I need to be cured 😂 what a bad joke to try to play on people who really suffer with this hellish Flu , pain , migraines, Fatigue....and multiple multiple symptoms.....just know this exercise other than stretches warm moist heat. and pacing our selves is the best we can do.... I know because I've tried over and over again pushing exercise or sitting because I dont have the energy or strength at all to move causes worse flare ups ....please Dr.s or anyone who doesnt have Fibromyalgia or cfs... please stop trying to make money off this illness....please we cat take another gimmick we need real answers real cures not your books or videos... for sale God Help us 28yr sufferer.....thanks but no thanks it dont work
Unless you actually suffer from fibromyalgia all your life you have no idea what it’s like. All the research and study cannot get rid of fibromyalgia because everyone’s body is different and some people have other illnesses in there body as well as fibromyalgia. Non of these men siting hear dictating about fibromyalgia suffer from fibromyalgia just look at them non of them have chronic pain get real. Exercise increases your pain and inflames it makes it worse l have tried everything all specialists, exercises even yoga the yoga teacher told me that l should not do yoga because the pain is far to intense. I have had fibromyalgia all my life not just a couple of years all my life l believe l was born with it l couldn’t understand why it hurt so much to do any sport at school the doctors just said back then it was growing pains what crap anyway it just got worse when l reached 20 years old after l had my baby’s, after years of trying to find out where and what this chronic pain was l finally got diagnosed with fibromyalgia at the age of 35 and depression the anti depressant when taken that l am on does help for a while Effexor XR l am now 64 years old and had to stop working because l just cannot work anymore the pain is far to bad the only medication that reliefs my pain for a while is pannadiene forte l am allergic to all other pain relief but thank god not this one. Codeine is why l was able to keep my job for years but when they took it of the over the counter l had to stop working because you can only get it by prescription now and they only give you one box at a time it’s so unfair for people like me l have no quality of life anymore l just cannot fight fibromyalgia anymore it’s to much. These so called experts really have no idea what there talking about when it comes to someone like me. If someone has fibromyalgia and what they say works for them they are extremely lucky but but how long have they had fibromyalgia for mmm a couple of years mmm. Well l have had it all my life.
I'm exactly the same as you. Now 72, I believe I've had it all my life. Only diagnosed a couple of years ago and that was after l read about it and suggested to my doctor could that be what l had.Didn't understand why l was exhausted walking up the hill to school and having pains in my chest but just assumed everyone else felt the same. When l had dental work done always needed far more injections than usual. I've had a tremendous amount of stress in my life which doesn't help. Pregabalin has made me gain weight which also doesn't help. Exercise leaves me in agony. It's not a cure all for everyone.Sleeping is difficult as every position hurts. Not sure also that if it's in my brain why is my left leg so swollen? Isn't that physical? I don't know just saying.
People who miss use codeine and other strong pain medications wrongly have ruined it for people like me who doesn’t miss use it they have made it so hard for us to relieve our pain that we have to suffer a lot of the time and can’t even use the correct dose because we are afraid they will take it of us and then we will have no pain relief at all. The only pain medication that l am not allergic to is pannadiene forte. As we fibromyalgia people know that Panadol or Panadol osteo does absolutely nothing for our pain.
I’m on venlafaxine just to help me take shower brush teeth . However I still have undiagnosed pains. I agree with what you said . I don’t know what I would do without my med. it’s suffering every millisecond
@@lorainewaring539 my mom has mention to me my leg seems swollen to. I’m thinking maybe we don’t have good blood flow in our legs and maybe it’s clogged
Fibromyalgia is complicated. Everyone is different. Movement is essential. I know a lot of people with fibromyalgia. I’ve had it for 23+ years. Cannot over do it, that’ll make it worse. Finding the right balance of resting and movement takes time. I’ve kept a journal for many years noting what increases pain/fatigue. The more I laid in bed the more I hurt. If I over do it working in the yard, I hurt for days. Stretching is effective. I started slow and easy. Stretching helps my muscles relax and it helps with my mental fog (controlled breathing while stretching). Keeping a journal was the best thing I have done to find what works and what doesn’t.
I need to stretch a lot I have muscle spasms often and stretching seems to help some.
Bike Cycle lol, I know. I was in big hurry! Thanks for correcting me.
Badger Pa Stretching is so important. Keep it up, slow and easy. Research the best ones for your issues. It’ll be second nature in no time.
I realise this comment was made 3 years ago. I’m so impressed with the journal I’m going to do the same. I agree sometimes you’re in so much pain all you want to do is stay in bed, but moving is the key. I’ve learnt to pace, move but don’t over do it.
Thanks Bob and Brad, first for recognising fibromyalgia is real, and thanks for having the good Dr on.
Thank you! I have been a long-time sufferer. There was a time when I couldn't get out of bed...tired and in pain. I now eat Keto and do intermittent fasting. I do meditation. I'm terrible about movement and that has been my downfall. But eating WELL through Keto and keeping my weight down has decreased my pain an incredible amount. When I eat crap I feel miserable. I needed the reminder to get moving more consistently. I know it helps tremendously!
Many of the people that I have talked to that have fibromyalgia have had one huge psychological trauma or an accumulation of painful events in their life that created this pain. Most people have a lot of unhealed emotional issues.
abc xyz I was hit by a car. Spent two weeks in hospital and two years having various staged surgery to regain function in my leg. Lots of damage and long periods of “mental” pain management just to get through the acute stage of healing.
I believe mine came from emotional trauma
I had a virus that kicked me into viral rheumatoid arthritis. Took a second doctor 10 days after being misdiagnosed to get proper treatment. Felt crappy ever since.
I believe you are correct 💯
yyyeeesss!! me too!!
So the implication I am getting from this is that if I move more I won’t hurt. Funny, I have maintained a full time job, walking regularly, still fairly functional although I have developed some arthritis and disc problems from years of working as a nurse doing a lot of lifting, transfers etc, Never in all those 35 years since diagnosis has my fibromyalgia pain decreased because of activity.
Good. Golly!! kcnurse19 !! Idk HOW the HECK you can even do nursing while suffering with fibro!! Ugh. I don’t feel better the more I do. I feel worse. For then DAYS! I’d guess you can relate! 12 years ago when I was 48, I could go to my camper and do everything by myself. With my dog, of course. 🐶. Now, I’m neatly 61. My daughter and I live together which helps her, but it also really helps me, honestly. I haven’t been able to go out and enjoy my camper for several years now because I just. have. nothing!! Anymore. I’m in bed. A lot!!Plus my back and feet have been just crazy with pain so I had them both checked out so now I have the spondylolisthesis like Brad has and my arthritis doctor said, oh well some people don’t even get pain with that and I said well I don’t know. I guess I am not that person!
I have a rheumatologist, a regular medical doctor, any pain management doctor. ENT and Gastroenterologist. Back in the day you just had a doctor not you go to 10 of them and nobody knows what anybody else is doing. it’s just a messed up thing. I normally type better it’s been a long day and I’m really tired but it’s nice to meet you! Truly, it is :-) there’s a app and website called the mighty that is for peoples conditions and there’s some helpful tips on there and you can talk to others with conditions like your own. And I’m on a couple Facebook groups of pain management. That helps too. Please, take care!! Especially right now, in your field!!! I know how bad it is! My niece is a physician not far from where we live. She keeps telling us we haven’t seen anything yet! Nite
kcnurse: Nice that you have invalidated others with fibromyalgia. Many doctors diagnose people with FM and it isn't FM at all. If you are still functioning as you say you are, then you either have a very slight condition or someone was pulling your leg when they labelled you with that diagnoses. If you lived a life involving FM and remained working in the traditional medical system, then you would not have known much about this medical condition. It was neither recognized nor respected by conventional doctors back in the 80's, only Naturopaths. Been there done that in one of the most progressive cities in N. America.
Sleeping Lioness sorry but you do not even know what you are talking about. Not only have I worked in traditional medicine but I have been treated by traditional doctors. I have participated in university studies regarding best treatment regimens to remain functional with fibromyalgia. I may have been able to continue working but that does not mean I have had a full life. I work because I have to in order to take care of my family. I do not, however hike mountains anymore and my recreational activity level is almost nil as I expend all my energy on must dos. How dare you judge me without knowing me. Your judgement regarding my level of functioning is every bit as arrogant as doctors who used to assume when I told them my diagnosis that I was in their office seeking drugs. People’s experiences with this condition are as individual as any other health condition. You cookie cutter armchair diagnostic skills are not welcome.
kcnurse19 I’ve been accused of drug seeking, after my first hip replacement went bad after 11 months and the doctor said it was perfect and I was there to get drugs. I wasn’t used to hearing anything of that nature in my life. I was so shocked I just didn’t have words for what he was saying to me. He was judging me as though I was a corner h user or some bs. Things we never forget!
@@kcnurse19 sending you love 💕 thank you for working so hard to help other people at the expense of yourself!! xx
I suffered the pain/ fatigue of fibro for most of 14years. Tons of meds. Changed diet to whole food, plants only. No oil. No sugar. Little salt. Totally healed in five months. I was 52.
Wow thanks for sharing this! I'm 51 so there is hope after all 🙏🏽🙏🏽🙏🏽
This is very encouraging!!!!!!!!! 🎊
Any meat?
My daughter had extensive pain when she was 18 and then again at 22. She had sensitivity to sound and to light, headaches, brain fog (this A+ student couldn't link 2 sentences together), depression, joint pain in all joints, sensitivity to touch over her whole body and constant tiredness. I looked online and found a chiropractor 65 miles away who advertised that he could help fibromyalgia with “brain-based therapy.” Much of the therapy involved balance exercises while breathing oxygen, which immediately started giving some relief. After extensive testing he told her to go off gluten. She hadn’t noticed stomach or gut issues, but followed the diet faithfully. After a few months she found that a little bit of wheat would feel like shards of glass in her stomach. She became more sensitive to smaller amounts over time. After a few years she realized that she was getting all the fibromyalgia symptoms along with the shards of glass. And then one Thanksgiving she found that breathing flour in the air gave her all the fibro symptoms without the shards of glass feeling. So she is very healthy as long as she can avoid gluten completely.
I’m not sure if that counts as a cure, but it certainly seems like it.
Thank you for your videos. I have fibromyalgia. Your videos are a constant reminder to keep moving, if ever so gently.
I appreciate DR OGBEIFUN for his marvelous work in the life of my daughter and wife, he cured my PARTNER with his natural herbal product?
May God continue to bless you and increase in your life🙏🙏
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Email Address: DROGBEIFUNHERBALHOME1@GMAIL.COM
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DR OGBEIFUN UA-cam CHANNEL: m.ua-cam.com/channels/yjTV3aK66o41h-TKyHn4dg.html
When people hear fibromyalgia many medical professionals don’t take it seriously. It’s like a smack to my face . Because I’m there for help. There are days when I feel like I just can’t do it anymore.
I have had this since 1992, I do not understand why or how I got it !!!! I remember when this happened I remember where I was ! It was as if I was hit by the devil. I thought I had the FLU FROM HELL , I have no other words for it . I deal the best I can. I could write a book .
My pain has been getting worse as time goes by. Not only that, I am developing new symptoms.
Did you give up sugar and gluten yet?
I just need someone to tell me exactly what to do to make the pain stop now
Hi John. I have fibromyalgia. I found after many years that much of my widespread pain was caused by food allergies and caffeine. Good sleep and walking have helped. Everyone is different. My experience obviously is probably different from you. But I thought I’d share my story just in case it might be something that you haven’t considered.
@@DeaconOnTheAir thank you. Once I figure out how to live without caffeine, I'll let you know how that goes. I'm willing to go carnivore diet if that's what it takes. If it wasn't for Kratom rn, I'd suck start a firearm.
@@DeaconOnTheAir I found out the same thing after years of pain
John Rice Yea it took me a while to stop drinking it. Check out (Bob & Brad) other video. It’s about fibromyalgia and foods to not eat. Might be helpful. Hang in there.
ua-cam.com/video/fU_gMhMkwy8/v-deo.html
J Smith Crazy isn’t it! You go to the doctor and they can’t help you. It’s been years of reading and talking to people like you that got me to a more comfortable life. Hope your doing better now.
15 years I'm bedridden from 60 -100%. Currently must have an exercise program. A very pretty short time job 2-7 hours a week and to much alone bed time is a Killer to me.
Thanks fellas!!! I found a practitioner. One of them, in my hometown. I might just check it out. The best thing about this video with the camaraderie we have had in the comments and I really thank you much for that!. THAT would be something to talk about!!!
I love this channel, but living alongside my partner that has chronic pain since childhood, after watching the whole video, i felt misled to hear the lack of ways of treating fibromyalgia.
... maybe change the title to a quick description of that particular doctor and what he does, because this is honestly all I got out of it.
No disrespect intended.
Aloha and God bless
Patient diagnosis is individual. Treatment is also individual. They can’t tell you online anything because they have no way to test it.
@@beerman1957 I understand that, but you have to admit... the title is very misleading after watching the whole video.
muvma hi ! I’m with you!!! I did look up that man’s website and there is one therapist in my town. I mean if my insurance covered it I give it a try. I try about anything
muvma Also, Your lady is lucky to have a guy who is so caring. A lot of men walk out on ill women.
@@Nan-59 Thank you, but most of all I thank God He brought her into my life.
In today's video, I see Gumby perched in the coffee mugs. I loved these guys before but now.....I LOVE THESE GUYS! Long live Gumby. All hail Gumby.
I'd love someone to address the swelling in feet and hands that my fibro brings on.
It’s a real place.
Luckenbach (/ˈluːkɪnbɑːk/ LOO-kin-bahk) is an unincorporated community thirteen miles (19 km) from Fredericksburg in southeastern Gillespie County, Texas, United States, part of the Texas Hill Country. Luckenbach is known as a venue for country music.
Bob and brad. 👋 has always
Thank you so much for this information it brought me hope !
I wish all Drs would watch this video.
I believe that I have had Fibro. for many years. Most of my pain has been and is totally in my muscles. It hurts if someone or my cat touches me and as I get older it is hard to walk, I have no energy, brain fox, and many other symptoms. My bone scan relates that I have osteopenia. Up until recently, Fibromyalgia was not a subject to be discussed because most MDs just don't know that much about it. Thank you for sharing. (How does one get diagnosed?)
Poverty limits the time some of us have to actually help ourselves. I cant slow down as much as my body needs to in order to heal. Its a constant game of do what im capable of and not necessarily priority. That ends up adding stress cause our livelihoods are now affected and boom, more pain. He is saying something ive never heard. But the reality is its a disability. We need financial help in order to have the time to meditate, sleep, and reset. If I dont sleep the fatigue is debilitating. I have 24 other conditions, 5 of which are chronic diseases.
I went to that site and there are none in Canada, is there a Canadian site as well we can search?
Renee Maurice
I put my ZIP Code in and nothing came up at all. I just looked at the map and squish my fingers together so I could get my area and I found one doctor in my area and then a couple of an hour north. You might have better luck trying it that way because putting my ZIP Code in did not work for me. I’m gonna look at the map and see if I can see anything with Canada the way I did it. HI 👋 if you take your fingers on the map and with two fingers move the map around and get up to Canada and then spread it out there are some up there. I think honestly it would be just easier to call the place because the search doesn’t work at all. It didn’t work for me either, sorry to say. and I know I’m not trying to be rude or judgmental. I just couldn’t make it work by putting in my ZIP Code at all. I couldn’t see how to like put the distance out if that’s what the issue it wouldn’t of been the issue because there’s one in my town. So anyway it didn’t work for me either! Good luck!!! This condition is NO FUN!!!
I hope you can make some sense out of that message. I’m sorry. I am not feeling very good today and I just was trying to let you know I think there’s somebody up there somewhere but I don’t know if it would be anywhere near you. Thanks. We just need to care about one another. I’m so tired of the way everything is right now in the states with all this hate.
I cannot take it anymore.
@@Nan-59 I did understand and thank you for replying I can try that as well but honestly it will probably be another dead end like everywhere else, and yes it sucks big time, stay safe Nan 59
It feels like your just trying to sell stuff to desperate people, that's the worst, whether it's a book or a lifestyle, the feeling of being sold something that you need to feel better is awful. Especially when you have spent years trying different things and have exhausted all the options you have the strength for. We need a pathway to recovery, like when someone is diagnosed with cancer and is told, here's what we do next, we're not told where to go from here when diagnosed, and if not we never get help.
Improving one's health is an investment and unfortunately you're probably going to have to spend some money. The folks that studied and wrote the book, developed a plan spent their valuable time investing in research and documentation. Many things can be found online or at the library. Radical diet improvement is always a good place to start, but it'll cost more to buy healthy foods than to eat hot dogs and Mac and cheese. Exercise, however small a start is also a great thing. I'm sorry you're having health and financial issues, but so am I. Nobody owes me anything. I'm thankful for what I have and I give thanks to God for the wisdom and healing options He gives me - Including helpful videos from Bob and Brad.
5 years ago I was recommended his book on pelvic pain by a pelvic pt. It was so interesting, and did really help.
Yes, i heard theories and overview. But no actual help. Maybe a link to his book or future shows that explain what he does by example, like with new patient role play.
Carol the Crazy Camper Yup! I felt like it was just information about those therapists might be out there somewhere near us that’s what I got out of it. And his books.
When my rheumatologist diagnosed me with it, he said it is real pain. He then implied it was less than a real condition when he said things like: it’s mostly middle-aged women who present to him with these pain complaints, & they often have traumas from unhealthy relationships/events. I didn’t know what to make of that statement at the time... he had just examined me and tested my pressure points for pain tolerance and told me & my husband who was with me at the appt that that’s what I had that was causing my pain. When he had mentioned the troubled relationship / marriage component, I was in shock because I felt that was me! I never said anything nor did my husband, just looked at the dr dumbfounded. His solution: a sleep study & subsequent sleep apnea equipment, PT work (bad osteoarthritis) & an antidepressant which I can’t remember but it didn’t agree with me (made me anxious & sleepless.) I gave up a while ago on those treatments & the sleep apnea machine. I’m still in my unsupportive & at times emotionally abusive marriage. And I still have fibromyalgia. Just not sure where to turn anymore.
Very interesting. I believe this. I have heard that it's a result in the body due to not being loved by someone who was supposed to love you like a parent or spouse should. In a sense it's physical pain in the body because of a broken heart. I also believe that it's something that Jesus can heal. And crucial for us to forgive those people who failed to love us properly.
Unfortunately, he can often be correct about the trauma component, but the offhanded delivery is BS. A Harvard psychiatrist who was foundational in the 'discovery'/diagnosis of PTSD from it's modern beginnings in Vietnam War vets has stayed unbelievably involved in the neuroscience component, much like Dr. Lowe their guest was speaking of. While Dr. Lowe focuses on teaching physical therapists and physicians about the importance of how we can help help people to retrain their brains, this Harvard psychologist gets more into some of the psychological 'why' that is so often associated with chronic intermittent conditions, like fibromyalgia, irritable bowel, and others. The book is called The Body Keeps the Score. It's absolutely fascinating.
I came down with fibro as a single mom in my early/mid-30's during a phase when I was experiencing chronic illnesses due to vaccine injury and my antidepressant being switched to a generic. My parents and most family had long been estranged. I lost my job, home, pets, kids, independence and dignity. My twin sister stopped talking to me (as we have had a tumultuous relationship all our lives). It was and still is hell on earth. I am destitute, in pain 24/7, and drs cant, dont, wont help. Things got a lot better when I accepted I would be in pain forever and gave myself permission to be lazy and selfish. I was the type of person who could never sit still for long but am mostly homebound/bedbound now at 44. I wouldnt wish this isolated, lonely, miserable life on anyone! Thankfully my sister and i made up and i found a stranger online to take me in. For a decade I was homeless and bed surfing, couch hopping, sleeping on floors, staying with a creepy uncle, putting up with abuse of every kind because I had no way to provide for myself. I feel for all the people suffering out there. The drs do have pain meds that work but they refuse to prescribe them. Its evil. I feel grateful that every day that passes is a day closer to the end!
Maybe turn to a divorce lawyer?
Might be an electrical imbalance preventing nerves from communicating. Or myelin sheaths are deteriorating. Or bacteria or mineral/vitamin imbalances. Could be so many things.
@@Mike-qs1js Haha. Yea. I went on a binge to attempt to help my mom. She recently had her teeth pulled out and she doesnt complain as much about her myalgia. Could be all the bacteria and metals in her mouth for all those years.
@@Mike-qs1js Thanks. If you search you will find. Time will tell how well she will do. With no teeth currently she is forced to eat very healthy foods also. She ate like a bird before but it was sprinkled with junk food and now its 90% nice food.
She was also hit by a truck while crossing the street 10yrs ago so I think it screwed with her nerves and weakened her immune system which potentially caused her mouth to be a danger to her and she still has some incredibly heightened senses since being hit to her detriment (ie - high pitch sounds, feeling when its going to rain/storm when nothing visual indicates, can taste things that are very minuscule etc) but seems like the teeth pulling seemed to cull some of that pain.
@@Mike-qs1js Has been an interesting journey for sure. Hope yours is fun also.
Anybody here tried low dose naltrexone? I’m planning to ask my doctor about trying LDN .
Very good. Realistically, however, improvement depends a great deal on whether the patient lives alone or has someone to help them. It is a well known fact that people with FM who live alone do not do as well because they have to do everything themselves.
Omg. I saw you in the comments before now here you are. Well nobody is entitled to anyone. Don't treat other people poorly just because you don't have a partner if that's what you're doing.
Yes so true.
I'm not fed up with fibromyalgia but I am fed up with polymyalgia rheumatica.
What is polymyalgia rheumatica
@@southerngrits A lot of people call it PMR. Google it
Prednisone on a tapering dose over a year helped me. Rheumatologist diagnosed and prescribed
Fibromyalgia is horrible along with myofascia pain
Cassandra Batista have u tried myofascial release technique by certified massage therapist
Smile Smile I have seen therapist but none seemed to be trained in that so no.
Mine began with an accident that moved the small disc in jaws slightly...didn't know this for several years dr.s said bad wneck whiplash and the muscles were torn and now I have scar tissue impacting perrifrial nerves in my neck and jaws...and that was 28yrs ago and symptoms landslide since now my jaws have RA in them and no going back this illness is a domino effect to all the pain fatigue and all symptoms that cant be discerned by the brain anymore it's so horrible and I don't know of any cure I mean real cure not someone who doesnt have it trying to make money off us all with false hope so idk😂
Myofascial pain comes with fibromyalgia cause it can be caused by tempular mandibular inflammation and malfunctioning of the only moving joint in the head we are in real pain
The website provided seems to be for drs and therapists. I am looking for a way to get help from your guest and his team. I have been in bed for over 20 years with no hope of getting help. I think k he may be able to help me. Thx.
This crazy crap I have had fibro 24 years and this does not work
.
Have you heard of R Paul St Amand... google him and his protocol which seems to work for many. His book... what your doctor may not tell you about fibromyalgia.
sirenmuscle Thanks!! I’m gonna write all that down whenever I can find a little piece of paper around here somewhere. it’s 1:30 am.
I should be sleeping. So you have found something that helps??!!
I searched out the book!! I’ll have my daughter help me listen to it!! Thanks!!!!
@@Nan-59 I have been on the protocol for 7 years now and from bed ridden to active. It works.. you just have to stick with it. You can get Guardian Guaifennsin on Amazon.
I know Dr Amand and have seen him many times here in CA. He used to teach here also at UCLA college. Good Luck.
sirenmuscle YOU ARE SO KIND!! Honestly I’m so tired and emotional I could just start crying! I have heard of this protocol in the past different times and no dr seems to know anything about it, or how to do it. or how much to take or where to buy the decent guaif.... 😩
I’m in Illinois. So it explains everything in that book?? I will send for the book tomorrow !
@@Nan-59 fibro is caused by calcium phosphate deposits in the cells of the body which the kidneys are unable to get rid of. The calcium phosphate disrupts all the functions of the body including muscle pains where the deposits are located and brain fog. Once the deposits are removed with the help of guai your body slowly starts to heal. The getting rid of the deposits happen at a rate of 6x the rate of input so it is painful in the beginning but once you are over the hump you will start to have good days compared to bad and they will become more frequent. The one thing that blocks guai in the kidneys which are responsible for the excretion is any type of salicylates..which are plant products... example tea, aspirin, mint, .. you will read about it in the book. Once you get things on board and in time of clearing the deposits from the body you will be able to function again. Also watch your diet.. try to eat healthy and avoid sugar and lots of carbs which convert to sugar. Sugar makes one feel bad. Hope this helps. Read the book, get the guai ..guardian brand from amazon.. (it must not contain any blue dye which blocks) and there is also a facebook group under claudia M.i forgot her last name.. one of the authors of the book.. so you can ask questions there. There is hope... just no one knows about this protocol. And other drs dont want to listen to it because it does not make money... as guai is cheap. Good Luck!
When was this filmed a few months ago? ;)
Yaacov I think they said something like that, yes.
What % of people have Fibro?
*What's it from?*
How do you cure it?
It's related to muscle conditions like ehlers danlos which is super under diagnosed. Also neck problems/immune system problems, diet, infections etc.
I have fibromyalgia mine is hereditary and there no cure
@@roberto125919 Thanks. How do you fix?
@@southerngrits how do you know if its hereditary?
Neck and shoulder injury/instability
Great topic. I have it, fibro is awful. I’ll be getting the book bob.
I needed this video today.
I've had fibromyalgia(diagnosed) for 31 yrs. Unfortunately I don't have health insurance or the money to see a chiropractor or massage therapist. It is so hard to hurt everyday. I do walk and stretch everyday, but as I am getting older, hard to sleep due to the pain in the shoulders, and back when standing. Not sure what I can do now. I have bought many books as I can afford it, but don't have the money to get help. I was really hoping that this video would give me ideas, I cannot afford a therapist.
Hi dear
Same here
I cannot affort therapy
N everyday i have pain
I did not understand what can i do
Im destitute too so i am limited with what I can do to help myself. Some things I do are self massage (scalp & face massages, foot reflexology), exercises for people who are bedbound, EFT tapping, walking, meditation, use a foam roller, self pleasure, eat as healthy as possible (limit or avoid sugar, meat, bread) and avoid stress. It's an every day battle against pain and frustration. I feel for anyone that has to go thru this horrible condition. It's stolen a decade of my life away and everything I ever had or worked for. Sending strength, endurance, and love to all the pain warriors out there!
Your promo/ diving code is expired
It's not just brain is the mitochondria and diet change. I healed my fibromyalgia with diet and a few supplements. I don't buy it's all in the brain. Maybe it part but diet really is key.
So, it sounds like you're saying there is no underlying medical cause? Wow! Isn't the placebo effect amazing?
Paul Schneider208663531 Stuart McGill found my cause of pain. I kept complaining about my discs, was told it was fibromyalgia by a orthopaedic surgeon and physio.
Guess what? They were wrong.
Just because your medical clinicians don’t have the competence to determine the cause doesn’t mean there is NO cause.
@@BrodeyDoverosx Testing YT reply function #53.
@@BrodeyDoverosx I have never had fibromyalgia. But, I'm always on the lookout for something that might help fibromyalgia victims.
Do you think this guy would also have misdiagnosed the cause of your pain?
Who is Stuart McGill?
Thank you!!!
SAMe & iodine. (check with your doctor before taking, I am not a medical professional, blah blah blah. Don't be surprised though when they have no idea what SAMe is, and they say that in the US, we aren't low in iodine. - seriously research first though before adding anything, because things can cause issues)
Brodey Dover, I have to reply to you this way because UA-cam has disabled my ability to reply to comments because my replies are not consistent with their agendas. They have ignored my request to correct this problem for months.
I have never had fibromyalgia. But, I'm always on the lookout for something that might help fibromyalgia victims.
Do you think this guy would also have misdiagnosed the cause of your pain?
Who is Stuart McGill?
Testing YT reply function #52.
Wow!
YT finally let me out of their "YT blocks ALL of MY REPLYS jail". I hope YT does not decide to re-imprison me again anytime soon. Thank you YT, for finally releasing me from your "YT blocks ALL of MY REPLYS jail".
*Has anyone here bee cured or fibro?*
No
@@ramonashearer7241 do u wish to?
70 percent cured.
@@Jsarson1976 LOL so not cured. you still have flare ups...and the reality is your pain tolerance is just higher than the average person.
Yes, I had backfitpro find my actual cause of pain
"fibromyalgia" isn't muscle pain. It's most likely a chemical issue. Humans have natural pain relieving hormonal responses. People with "fibromyalgia" do not have the appropriate responses chemically to pain. So if you have arthritis and you move more, it may help the arthritis, but the pain response is personally and very subjective. I've been "sensitive" my entire life. This works both ways, for pain and pleasure. I feel like "fibromyalgia" has been used as a blanket diagnosis so doctors offices can get paid and drug companies can make money.
@Bike Cycle I think they've lumped everyone together into a group..it's kinda sad really..
I feel this guy thinks of patients as children, "Suzie. I'm going to explain it to you." No thank you.
Even in 2022 I'm not telling people I have fibro...too much stigma.
Not really any answers here, unfortunately.
❤️ from 🇿🇦
Wow a book is all I need to be cured 😂 what a bad joke to try to play on people who really suffer with this hellish Flu , pain , migraines, Fatigue....and multiple multiple symptoms.....just know this exercise other than stretches warm moist heat. and pacing our selves is the best we can do.... I know because I've tried over and over again pushing exercise or sitting because I dont have the energy or strength at all to move causes worse flare ups ....please Dr.s or anyone who doesnt have Fibromyalgia or cfs... please stop trying to make money off this illness....please we cat take another gimmick we need real answers real cures not your books or videos... for sale God Help us 28yr sufferer.....thanks but no thanks it dont work
*Neuroplasticity*
Can you expand on that, Yaacov?
@@katiescarlett5249 look online it's too comprehensive for me.to expand on in YT comment section sorry. Please look into!
WHAAAAAT?????? hmmmmm !!! 🙄🤫
Unless you actually suffer from fibromyalgia all your life you have no idea what it’s like. All the research and study cannot get rid of fibromyalgia because everyone’s body is different and some people have other illnesses in there body as well as fibromyalgia. Non of these men siting hear dictating about fibromyalgia suffer from fibromyalgia just look at them non of them have chronic pain get real. Exercise increases your pain and inflames it makes it worse l have tried everything all specialists, exercises even yoga the yoga teacher told me that l should not do yoga because the pain is far to intense. I have had fibromyalgia all my life not just a couple of years all my life l believe l was born with it l couldn’t understand why it hurt so much to do any sport at school the doctors just said back then it was growing pains what crap anyway it just got worse when l reached 20 years old after l had my baby’s, after years of trying to find out where and what this chronic pain was l finally got diagnosed with fibromyalgia at the age of 35 and depression the anti depressant when taken that l am on does help for a while Effexor XR l am now 64 years old and had to stop working because l just cannot work anymore the pain is far to bad the only medication that reliefs my pain for a while is pannadiene forte l am allergic to all other pain relief but thank god not this one. Codeine is why l was able to keep my job for years but when they took it of the over the counter l had to stop working because you can only get it by prescription now and they only give you one box at a time it’s so unfair for people like me l have no quality of life anymore l just cannot fight fibromyalgia anymore it’s to much. These so called experts really have no idea what there talking about when it comes to someone like me. If someone has fibromyalgia and what they say works for them they are extremely lucky but but how long have they had fibromyalgia for mmm a couple of years mmm. Well l have had it all my life.
I'm exactly the same as you. Now 72, I believe I've had it all my life. Only diagnosed a couple of years ago and that was after l read about it and suggested to my doctor could that be what l had.Didn't understand why l was exhausted walking up the hill to school and having pains in my chest but just assumed everyone else felt the same. When l had dental work done always needed far more injections than usual.
I've had a tremendous amount of stress in my life which doesn't help. Pregabalin has made me gain weight which also doesn't help.
Exercise leaves me in agony. It's not a cure all for everyone.Sleeping is difficult as every position hurts.
Not sure also that if it's in my brain why is my left leg so swollen? Isn't that physical?
I don't know just saying.
People who miss use codeine and other strong pain medications wrongly have ruined it for people like me who doesn’t miss use it they have made it so hard for us to relieve our pain that we have to suffer a lot of the time and can’t even use the correct dose because we are afraid they will take it of us and then we will have no pain relief at all. The only pain medication that l am not allergic to is pannadiene forte. As we fibromyalgia people know that Panadol or Panadol osteo does absolutely nothing for our pain.
I’m on venlafaxine just to help me take shower brush teeth . However I still have undiagnosed pains. I agree with what you said . I don’t know what I would do without my med. it’s suffering every millisecond
@@lorainewaring539 my mom has mention to me my leg seems swollen to. I’m thinking maybe we don’t have good blood flow in our legs and maybe it’s clogged