You are not alone | Huntington's disease youth engagement service

This film was created by our young volunteer group, HD Youth Voice. The video has been created to show other young people that they are not alone.
HD Youth Voice gives young members from the Huntington's disease community the opportunity to be involved in shaping the future of how we support young people.
When planning the film, the group talked about the things that they wish they would have heard when first finding out about Huntington’s disease.
You can find out more about how we can support ychildren and young people through our Youth Engagement Service - HDYES at www.hda.org.uk/hdyes or by calling 0151 331 5444.
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Please note that every Huntington’s disease experience or journey can be different and not all information shared by the Huntington’s Disease Association will be relevant to all. Please discuss with your GP before undertaking any exercises or medical advice given in our videos.
#HuntingtonsDisease#huntingtonsdisease

[@JenniferSutton-l6l]

A brave video which will help so many people. I learnt I was at risk when I was 16. I waited until I was 47 to get a negative test. During that time, there was no support. I'm 62 now, with numerous family members who have passed away as a result of the illness. The disease changes family dynamics and isolates. If you are able to talk about it, it will help the terrible isolation of this illness.

[@user-te5pg8nu3c]

Well too you all of use great video living with my son with juvenile Huntingtons knowing now that I'm not alone in so great ❤

[@charlesnovis6866]

What a brilliant film and well done to all the youngsters who took part and were so open and honest about this condition. An exemplar for others to consider.

[@cherylhowes1279]

Well done. You are brave young people. This video will help so many

[@garethburroughs8422]

Well done to all those involved. This a great video and very useful

[@ruthanne4402]

Fantastic video

[@delcien9697]

Great video! :)

[@bigazza7829]

I have this disease.
I think it's about time someone finds a cure

[@evvaughnn]

then why do i feel so alone?