i have a family member - late 50's first told she had CRPS then changed to parkinsons ...most recently parkinsonsism she had cervical fusion (3/4 & 4/5) surgery 2021 and has never been the same - pain meds - botox (all over the body) nerve blockers - epidurals ....no relief and condition is more severe .....any suggestions.....ideas....people to contact...treatments ....
It sounds like a complex situation and we’re sorry to hear what’s difficult time she has had. A movement disorder specialist is usually the person most experienced and handling Parkinson’s. If she hasn’t seen one already, that is who she should seek.
410A refrigerant, is in most home's HVAC now. When your A/C leaks, 99% of the time its the indoor coil. 50% of 410-A is Pentafluroethane. 31% of Pentafluroethane is Tetrafluorothane, a derivative of trichloroethylene (TCE). TCE is linked to Parkinsons. Nobody is talking about this.
A close friend of mine developed PD two years ago during COVID after he received 5+ jabs in order to keep his job. I see a definite relationship to the vaccine. Devastating for many I'm sure.
My sister died of Parkinson's October 2021 and only just turned 70. They had well water and lived near apple orchards for 40 years. orchards sprayed etc... ( Why her husband and children not diagnosed ? Do some people have more immunity ? I worked with solvents./trichlorethaline, inks, ferric chloride etc... around second hand smoke and exposed to environment but have no Parkinson's at age 77 ???
Elaine, very sorry about your sister. Not everyone who is exposed to these agents will get PD. More research is clearly needed to determine why one person is more susceptible than another.
Wouldn't you expect then a high ratio of dry cleaning workers with Parkinson's? Also I would expect to see a higher ratio of couples or siblings with Parkinson's if the origin is pesticides because they generally eat much of the same produce due to the fact that they live together; however that is not the case.
There are still many unanswered questions. Sometimes family members do end up with PD but not always so there is most likely other factors making certain people more susceptible to exposure than others. Hopefully, more research will provide the answer.
We aren't aware of that specific correlation, Eileen. There are toxins that can lead to cancer so there could be a relationship that hasn't been identified. Not fair to have so much to deal with!
Hi Pamela, thank you for sharing a bit about yourself. We are so sorry to hear that you are struggling with your PD so much. Unfortunately we can't provide any medical advice but we hope that our videos continue to support you in some small way.
whenever I hear the term "Tri-Chloro" I immediately think of pool chemicals. Specifically the chlorine tablets used to maintain the chlorine level of 1-3ppm. has anyone looked into this? These tablets are 99% Trichloro-S-TriazineTrione. 4 older guys in my neighborhood all have parkinson's and all have an inground chlorine pool and have used those tablets for 20+ years...Im not a scientist but shouldnt the scientific community situations like this?
Thanks!
Thank you for joining us friend!!
i have a family member - late 50's first told she had CRPS then changed to parkinsons ...most recently parkinsonsism
she had cervical fusion (3/4 & 4/5) surgery 2021 and has never been the same - pain meds - botox (all over the body) nerve blockers - epidurals ....no relief and condition is more severe .....any suggestions.....ideas....people to contact...treatments ....
It sounds like a complex situation and we’re sorry to hear what’s difficult time she has had. A movement disorder specialist is usually the person most experienced and handling Parkinson’s. If she hasn’t seen one already, that is who she should seek.
410A refrigerant, is in most home's HVAC now. When your A/C leaks, 99% of the time its the indoor coil. 50% of 410-A is Pentafluroethane. 31% of Pentafluroethane is Tetrafluorothane, a derivative of trichloroethylene (TCE). TCE is linked to Parkinsons. Nobody is talking about this.
Thanks so much for your comment friend, we appreciate your input.
A close friend of mine developed PD two years ago during COVID after he received 5+ jabs in order to keep his job. I see a definite relationship to the vaccine. Devastating for many I'm sure.
Thank you for sharing Doris and for taking the time to watch this interview!!
My mum got Parkinson's after the 2nd covid jab.
@@chantelborg1031 It was discussed by many scientists that, PD would happen as a result of them💉
I got Parkinsons after the J and J jab...no previous symptoms 😢
@@annb5610 You'll be in my prayers Ann🙏✝️
My sister died of Parkinson's October 2021 and only just turned 70. They had well water and lived near apple orchards for 40 years. orchards sprayed etc... ( Why her husband and children not diagnosed ? Do some people have more immunity ? I worked with solvents./trichlorethaline, inks, ferric chloride etc... around second hand smoke and exposed to environment but have no Parkinson's at age 77 ???
Elaine, very sorry about your sister. Not everyone who is exposed to these agents will get PD. More research is clearly needed to determine why one person is more susceptible than another.
Wouldn't you expect then a high ratio of dry cleaning workers with Parkinson's? Also I would expect to see a higher ratio of couples or siblings with Parkinson's if the origin is pesticides because they generally eat much of the same produce due to the fact that they live together; however that is not the case.
There are still many unanswered questions. Sometimes family members do end up with PD but not always so there is most likely other factors making certain people more susceptible to exposure than others. Hopefully, more research will provide the answer.
@PowerforParkinsons So much research is taking place, yet unfortunately, at the moment, so little to show for it.
Could having radiation treatment for breast cancer and leg cancer cause Parkinson disease?
We aren't aware of that specific correlation, Eileen. There are toxins that can lead to cancer so there could be a relationship that hasn't been identified. Not fair to have so much to deal with!
@@PowerforParkinsons❤
I work with nail polish and polish remover, is it possible to get PD from that smell?
I thought this was going to be another kook. Obviously, he’s a really bright, credentialed academic.
Thank you for this.
Thank you for taking the time to listen and comment Michael - we greatly appreciate it!!
Can you come off medication i have had dbs surgery at hallamshire hospital and i am not better i am worse i no longer walk or talk
Hi Pamela, thank you for sharing a bit about yourself. We are so sorry to hear that you are struggling with your PD so much. Unfortunately we can't provide any medical advice but we hope that our videos continue to support you in some small way.
whenever I hear the term "Tri-Chloro" I immediately think of pool chemicals. Specifically the chlorine tablets used to maintain the chlorine level of 1-3ppm. has anyone looked into this? These tablets are 99% Trichloro-S-TriazineTrione. 4 older guys in my neighborhood all have parkinson's and all have an inground chlorine pool and have used those tablets for 20+ years...Im not a scientist but shouldnt the scientific community situations like this?
We aren't aware of the correlation, but it could be something to investigate. Thanks for listening to the interview!