How to Avoid Them and Recover Faster | The Chronic Illness Recovery Podcast (episode 23)
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- Опубліковано 22 сер 2024
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1. Join our free community to meet others, be inspired, and get more recovery info - / cfshealthrecoveryhub
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-Find your baseline - Stop pushing and crashing - www.cfshealth....
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I so agree. It's the emotional/mental aspect of a crash....especially a severe crash...is the hardest part to cope with. I hate the valley of death....with your help i have avoided it for a few years now
I so needed to hear this vid today. For the past week I've been doing less after successfully doing more like walk around the block. I had no symptoms and was so excited, so I rested for several days instead of maintaining only to wind up with gut issues...again. Watching this video about needing release energy once it's been built up had me going for a walk immediately afterwards. My gut feels wonderful now! I can't thank you enough for what you and your team do to help those of us with CFS, PEM, etc. A lifesaver. I've been working your program for the past 6 months and I am getting much, much better physically, emotionally, etc. Highly recommend it! 🙏
Congrats on improving !! How are you doing now 10 months later ??
@@JacquiQ Thanks for asking. I'm getting out more which is causing stress issues of its own being homebound alone for so long. I have my days still; however, I'm able to negotiate life's daily stressors, etc much more effectively w/o crashing. I was put on the FODMAP diet by a doctor which has been great.
This is me. I keep waiting for energy so I can do things like go for a walk but really I just need to start doing things now. Without overdoing it of course.
So helpful… after 3 weeks of Christmas break and staying in, I’ve felt relatively well, today, first day of school run, I’m finding it hard not to push as I’ve so much to do, and feel lazy sitting and resting… (I’ve long covid) when I am doing ok, I forget how bad it can get… need to maintain!!
Men i really apretiate what you’re doing, I’ve seen like 5 doctors for cfs and none of them have been able to help me. Now that I met your channel I’m understanding what’s happening to me and I’ve been able to get better, so thanks a lot
Since the summer, I have worked on finding my baseline. It took a while (and it was much lower than i wanted) but I am so much happier now that things are more constant and i don't feel awful all the time. My capacity has slowly started to increase over the last couple of months which is so encouraging.
Thank you so much for sharing Toby, I really find your information helpful. Much love from Norway 😊
Extremely helpful! I was in stage 2/3 been doing very well, no crashes for 8 months. Unfortunately I pushed my self too much with road cycling, cycled like a lot on days I should have taken a restday. Slowly working my way back to baseline again it's tough but I know it's possible done it before!
Thank you for sharing this info. SO very nice to listen and not hear a spiel for expensive vitamins that will work wonders! I am going to listen to more of your podcasts.
Love your channel! Hey what about crashes and alcohol consumption? Is it a fact alcohol makes this whole thing worse? If so, in what way or at what level? Thanks
Yeah, alcohol isn’t good if you have CFS.
Hey thanks Toby. Sending love. I just gotta keep trying. X
Thanks ..you are so motivating. X
I’m really just starting with this but I’m so grateful for you putting out so much information for free. You’re an angel 😊
Hi toby, I appreciate the podcast/vid on baselines that you've done today and prior to Christmas I became a newcomer to CFS Health and we have corresponded in emails so far. I however, (as you are starting to learn) am not a stranger to CFS/Muscle with 30 years under my belt and I totally get what your saying with the constant problem of "too little/too much" cycle and trying to obtain your baseline and keep it running at a nice steady course .I have found though over the years that it's really hard to find a working "consistency" that works everyday not only with the initial CFS but also with just sometimes life and/ relationships/family etc. I often feel that somedays are definitely worse than others but not just because of the condition but also other daily stresses get either in the way physically /mentally or emotionally which can have a negative effect on the overall amount that you feel like you can achieve that day. How many of us got "overwhelmed" at Christmas push/crashed just on the basis of present buying/wrapping, cooking Christmas dinner and relatives? So therefore other contributaries must be factored in somewhere while doing your chores, putting the kids to bed and trying to find a consistent baseline.
Thank you! Your experience and wisdom are always so helpful.
So good, TY Toby 🙏🙏 I get confused often tho; ( please don't take this comment down, I am sure I am not the only person with cfs to wonder this ) between taking months to get better, and I totally get the way you approach this, it makes so much sense to me and is so helpful - but people are doing these brain re wiring courses and saying in a couple of months or 6 weeks they are 'recovered' . I know someone like this, I saw her transform and she has never looked back in life, but I did the same course and I did not recover. ( I think I needed loads of ongoing support, which it sounds like cfs health does offer) Any thoughts on this ? Did I fail at the brain re wiring ? Or was I just a lot sicker and my body a lot worse and takes way more time to heal ? I don't know, but it gets confusing which approach to take.
Great video, thanks Toby.
Very interesting, thank you!
For a long covid/CFS sufferer, I've been taking antihistamines to help suppress symptoms. Is this okay for recovery or do I need to stop taking them so I can find where my baseline is truly at? When i stop taking them I feel horrible, but I feel they help me sleep and seem to be helping my PEM
Thanks! This one was really helpful to me 💙 Now a couple of new bits of the puzzle came to me. Very grateful 🫶🏻