Jessica's story - Hypoplastic Left heart Syndrome (HLHS)

Tragically, the rare heart condition Hypoplastic Left Heart Syndrome (HLHS) claimed little Jessica’s life. Parents Michael and Louise describe their family’s heartbreak and hope for the future as Dr Pablo Lamata develops 3D computer modelling to help babies and their surgeons.
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[@sylvanafow1340]

I'm so very sorry for your loss. Glad you got to spend some beautiful years with her.

[@angelikabertrand4045]

So sorry. When did this little Angel pass? Children should not get such diseases.

[@HereWeGoAgain661]

I have a grandchild born with this condition on June 3rd 2021. This is a very difficult situation for and family to have to endure. It appears that medicine has advanced greatly for these kiddos. I am truly sorry for your pain and loss of your beautiful daughter. I send my best wishes to your family from the USA.

[@Ary-er3sj]

I am born with it too. I wanted to comment because i was born on june 3rd 2004.

[@AS-yz2iz]

I'm so sorry for your loss. I hope you can take comfort in the fact that this happened in your room with both of you present. This could very well have happened while she was asleep. God gave you that little blessing.

[@angelikabertrand4045]

I feel for these families. I was born with Tetralogy of Fallot, Interrupted Aortic Arch [Tof], plus 2 holes in my heart chambers. I m now 58 and had a total of 7 surgeries. I hope this little girl has the strength and power to succeed. Just like I have.

[@franny5295]

She died...

[@SanctifiedLady]

Wow! That’s amazing! Bless your heart ♥️ 🫀

[@mweembahamalowa5676]

May God bless bless you for the encouraging words.

[@thebrightman6456]

May God Bless You, for 100yrs❤

[@nicovanmu8659]

I am sorry to hear this, this little angel is in heaven now, with a perfegt body.
May your family finds peace and God gives your comfort...
I am waiting my wofe to give birth for my little one whi has a single ventricule ...

[@jerrylockhart3069]

Hope you are doing good and sorry she didn’t make it. Sorry for your loss

[@jayep9424]

Sorry for your loss my niece died at 2 months from this 😔 right before her second surgery

[@rachel_a_whisman17]

I have this heart condition and I’m the only baby that survived

[@jayep9424]

@@rachel_a_whisman17 may god bless you and you continue on healthy and full of life ❤️

[@rachel_a_whisman17]

@@jayep9424 aw thanks, I have a scar and everything

[@TheKyramSingleton]

@@rachel_a_whisman17 I wish I could meet you and give you a big hug. My Mirabelle died after her Glenn. She had the most severe case. I'm in school now. Big love to you and your beautiful heart

[@Salome445]

I am so sorry for you