Why Research Matters with Gaurav Goyal, MD

This video provides an overview of research and highlights why research is so important to improving the care for people with ECD. This session also provides information on some of the recently completed and ongoing research studies, followed by updates from the ECD Survivorship Study.
This presentation was part of the ECD Patient & Family Gathering held in Seattle, Washington on April 14, 2024. This meeting was hosted by Fred Hutch Cancer Center in partnership with the ECD Global Alliance.

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We, the ECD community, are so thankful for all the research being done to learn more about this disease. Please use the comment field to tell us what research you think is most important. What questions about ECD do you have that you believe research should focus on?