Vlog | A Day in the Life of a Girl in a Wheelchair | How I Got My Spinal Cord Injury
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- Опубліковано 28 тра 2024
- I hope viewers take something positive from our day & the emotional day that created a new life for me. This follows my day from start to finish and gets vulnerable about the day my life changed forever and I became confined to a #wheelchair. We take you inside one of my dreams, go for coffee, shopping at home goods, out to eat, spend time cuddling at home and more! Enjoy the #vlog !
The Crystal Lovers Channel is an #interabledcouple who wants to shift perspective on disability that shares adventures & episodes weekly - most of our time is spent crystal mining in the spring & summer (but soon to be full-time travelers.). Check out our crystal mining adventures and subscribe to get updates on future ones here: / @nicholettebrian
Join our Patreon members who believe in us as a couple trying to make a difference 💖 / thecrystallovers
We make our living doing this and sell our crystals on Etsy so feel free to check it out and buy a crystal or handmade product to support our journey: www.etsy.com/shop/ShopTheCrys...
Want to support our channel or have a suggestion for us? Email us at ShopTheCrystalLovers@gmail.com ! We are working on making this full-time and following our shared passion of traveling and crystal mining. We have to find a wheelchair accessible van that we can convert so thats our main priority this month and next! Thanks again for watching!
Thanks for sharing your story. My daughter 16 years old fell off a bluff hiking, the edge gave way , she fell 40 foot below and rocked fell covering her ,her 5th vertebra was crushed and 4th pushed into her to spine , she's currently in n a spinal rehab center ( shepherd) in Atlanta & slowly getting use of her left fingers and hand.. I love that you accept you for where you are I pray my daughter keeps her spirit up & lives her life to the fullest she can.. thanks again for the encouragement
Sorry,I hope she is doing better now.
I.m in a wheelchair too and had to learn all what she is doing. In and out of bed, car's, showers, getting dressed and so on I had to learn how to do all these things plus cooking, doing laundry by myself and I have done well. It's iffy that I'll walk again but I can stand in my walker just not strong enough to take steps by myself. I stagger more than take steps, but I have a very good attitude and I'm really working to walk again, in my walker with full strong steps ! I had 3 strokes and have been in this wheelchair over 3 years. I'm 83.😇
Thank God you can accept because I am not able to accept my situation yet but God willing one day I will
Any one of us can have an accident and find ourselves in the same situation, you truly are an inspiration
It’s crazy because I never ever imagined it to happen to me, but it’s all about how we deal with what life throws at us. Thanks for watching ☺️
My mother was in a wheelchair all my life. i am ashamed to admit it embarrassed me horribly. This is very educational. Thank you.
Don’t feel shame, this is normal. Part of the reason I share my life is to reverse the stigma on handicapped people and it being only a negative thing. Society was never accepting of anyone who may be different but it’s changing 🫶🏼
With a power chair, you can add a drink holder. :)
I have just come across your channel. And after watching one video I am now going to spend the rest of this day watching all your videos. And not simply owed to the fact that I, too , am disabled. I'll watch because I love your relationship as well as your strength and positive attitude.
When you mentioned that you walk in your dreams it made me smile. I too have dreams in which I walk. I’ve been hesitant to share it with anyone because of their reaction which is often their telling me that I’ll be able to walk again. Perhaps I will, but I don’t rely on dreams for a prognosis. I wish you guys well in your endeavors…
My daughter has a t12 spinal cord injury. She was also 16. Now a year and a half later she has good days and bad days. You are amazing!! Thanks for sharing your story.
You're a badass Nicolette. Keep on rockin in the free world ❗❗🤙🤙🤙
You two are a beautiful couple❤
What a great example you are!!! Thank you for being brave enough to share and encourage others.
Nicholette - you are awesome! I see you as a normal person who gets around differently than most people... Thank you for sharing your journey. You have great courage so keep up the great work.
And you can add a valcro in the back of the power chair to store stuff. Just remember to charge your chair at night.
i was born disabled but we have alot of the same adaptations. I use a low bed etc. and usually I'm very positive but sometimes we do have down days and that's ok :). I'm glad you have someone to support you!
Thanks so much for the support! The bed on the floor is really tough but I got used to it!
Thank you for sharing. Yes must love yourself. It saddens me when I meet someone who is wheelchair bound and are mad at the world. There is so much out there. DO LIFE!
always !! ☺️☺️
So many stories, everybody has their book to write . So many obstacles and situations in this world. Stay strong people thats all we can do and try to enjoy the ride. I have no issues with myself and i say to myself why you mad why you stressing ? sometimes we able bodies dont know how good we have it. Loving couple i wish you all the best in life.
hello, thank you for sharing your story, hi my name is Marcy and yes I've struggled being in a wheelchair since i was six years old but i am now 35 years old and i've grown to love myself for who i am and not what i am, and you really made me feel so much better about myself, i was only six years old when i had both feet and both hips replaced for what reason is unknown about my hips but i had clubbed feet though and the doctors told me that i needed surgery to fix my clubbed feet and that was it, they never mentioned anything about doing anything to my hips though and i thought with a little physical therapy i would be up and walking again but no i couldn't walk at all and i required the use of a wheelchair and i began to love myself for who i am and not what i am, yes its tough sometimes yes but i try to over look that and i hope that things get better for you though and thank you for sharing your story
This is cool. I have cerebral palsy and can’t walk independently but I can’t move around if I’m holding onto something. I love seeing how our different levels of ability allow us to lead different lives but with similar goals in mind.
I'm so glad to find your channel. Not wheelchair bound myself, but I have invisible disability that does limit daily life activity. I love that you guys decided to travel via vanlife and are documenting it. Really inspiring!
Same here. From a broken tailbone and complications.
Thanks for sharing your story😊 I wish I also have the courage to accept my situation. I got my spinal cord injury way back in 2018. Until now, it's really hard to adapt the changes in my life. But I have the support of my family, so I have to be strong.
Oh what happened to you
You’ll get there beautiful ! It takes time, it took me so much time- don’t lose hope and take chances 🫶🏼
Nicholett 😲OMG You would never know that you were in a wheel chair. Iam not in a wheel chair, and you do things better, and faster than me.
I’m couchbound due to multiple chronic autoimmune illnesses. It’s nice to have someone who understands you, otherwise it’s a cause of huge fight. People who are sick and disable should set up a business to help pay for daily and medical expenses
I'm going back and watching some older videos to catch up on your journey. Thank you for sharing your story. I'm sure it's quite hard. I am also disabled but not in a w/c. My life also changed in one day. I won't lie, I did not adjust quickly. I appreciate your outlook on life.
I’m struggling to stay alive. Thank you for your message.
If you need someone to talk to, I'm available. I'm not always on here, but will def respond to any msgs
No matter how hard it gets, there will always be hope and every new day is a brand new beginning. Please dont despair. Dont give up. Life is hard many times, but it will always be worth living.
I am also a disabled person . In 2018 my legs are paralyzed . U are very inspiration
Oh my Lord you are just so amazing beautiful
I too was in a car accident and my life as so change I have times when I miss my old life
Thank you for sharing I personally know how hard it is to share our stories
❤️from Adelaide Australia 🇦🇺
This video may be a year old, and I just found it along with your Channel. Thank you for bringing the "real" home to me. B safe, B loved.
im also a wheelchair user , only just started my journey and started vlogs , your awesome an have a terrific guy xx
That is a scary accident. I’m glad you gained a positive mindset to stay strong and have a good quality of life. Self love and care is the most important thing and you’re teaching others how to live, not only in a wheelchair but also in any difficult or challenging condition. It’s all about acceptance and brightening each day with beauty and simple joys.
That's right ever give up
I’ll share a bit bc I am very grateful to have found you and this video. I am struggling with a genetic neuromuscular disease.
I’ve lived a pretty normal life physically aside from random numb areas I discovered as a teen (whatever) and random, very painful issues but that were spread out enough that they didn’t seem connected. I had kids and lived a totally normal (Scratch that, who the hell is normal?! Not, not me. That’d be no fun lol). Up until 6 years ago I was running marathons. I’m even a registered “marathon maniac” which means I’ve run back to back marathons.
My legs and feet are so painful now it’s unbearable at times. So bad I can’t think straight or even talk. Sometimes irregardless of the pain, I’ll have a foot or entire leg and foot just not work. Mostly it happens to my foot only (drag foot) but I never know if it’s going to be a few days, a few months, permanent? A bizarre and scary feeling.
Anyhow, things are progressing pretty quickly now
and there’s no cure. I’ve a team of doctors at U of Rochester (NY) Strong Memorial (It’s 5 hrs away but it ain’t a plane ticketthat monitors and collects data from me, and a doctors who’ll be implanting some stimulators in my back in a few weeks to hopefully get some pain relief, but they wont help the progression and the other effects.
Soooooo, I may lose the ability to walk. Many of the people who have this disease do so. I’m struggling with it. I’m angry. I’m so sad. I know I can’t live in that place though.
Stumbling on to your clip this evening was perfect timing and very inspiring to me. You didn’t shut down and shut in but are out there living life. I’m embarrassed to say that while I was a backpack and a plane ticket chick to places all over the world, like India and Thailand in 2017, I’m heartbroken and rarely leave the house.
You’ve reached me at a tipping point I think though. I need to live a real life again. I need to figure this sh$t out. I think seeing how amazing you’ve been with having an obstacle in front of you that you did not choose, and seeing you climbing right the hell over it, was the message I needed.
So thanks Nicholette. I needed your story and wish you the best life has to give ❤
Hi I can totally relate as I am disabled and in a wheelchair due to a R.t.a accident when I 19 years old , I am now 57 years old , I totally agree you have to keep going and not let your disabilities rule your life and that you do face some obsticals in your life but you find a way to overcome them keep strong in mind and soul., Take care
Its all about learning from life experience, taking it as is and growing! Thanks for watching and sharing your own story. it means a lot 💖
What is R.t.a.?
Me and my hubby are both disabled and he has mild Right sided Cerebral palsy and I am epileptic and I have 12 plates in my head show saying that I have an balance complex meaning very hard to balance is the understatement of the year we both understand what it takes to make y'all these videos because we ourselves are disabled other people who are normal may not get just what goes into a wheelchair loading and unloading my husband has to load my chair in the back of the pickup and that's just my manual I also have an electronic wheelchair which gets out of its own way cerebral palsy is a birth defect it is an umbrella term that blankets a lot of different Little Things that could all be a part of different disorders but instead they're a part of the CP keep making your videos cuz you have awesome content so in fact that he can still drive without hand controls the adaptations
I've been dealing with epilepsy for a little over 30 years now myself....it really sucks being unable to drive even though my seizures are pretty much under control with my current medication regimen. I only require to anticonvulsant medications but fortunately they're working well at a fairly low dose.
Hopefully you're not having to take several different medications just to keep your seizures under control.
Thanks guys, I had not realized the languages that you have included in the subtitles, I will review all the previous videos, because I can understand English but nuances escape, now it is much simpler 👏👏👌👍🤗🤗
Hey! Thanks so much for letting us know the you use the subtitles! Recently, we started adding a dozen or so language options so more people can experience our video's and get perspective on disability! We want to make sure we include your language on all of our subtitles so what language do you use? One day we will try to have every language available for our video but we're taking it slow and steady. We're really happy this has benefited at least one person!
This the 1st time I saw this video. I’ve been following your channel for over a year. ❤
So sorry to hear about your accident Nicolette, you have an amazing spark of life and energy. Your body may be a bit disabled, but not your mind/Spirit. Our Creator allows us each to travel down different paths in this flesh experience, all quite different. I didn't really awaken to Him until my life-threatening injury 21 years ago. Coming so close to death really got me thinking about an afterlife, and I now know that this life in these flesh bodies is quite temporal, but our Spirit is eternal. I've come to know Him, our Creator, quite well during my search for truth. I've discovered many things along the way, most of which many refuse to believe. Anyway I don't want to ramble or I'll go all day, just wanted to say hi and that I love you! Give Brian a big hug, he seems to be a genuinely nice person and quite compassionate. Take care sweetheart! ❤
It's amazing how people like us have very similar perspectives on life. You said 2 things in that video. Never quit no matter what. Never gave up is the title to one of my videos. Read the mini essay on the description to that video if you have the patience.. and you said there is a reason for all of this. " everything happens for a reason" is something I say to myself often and is one of the reasons I survived these last few years.. i will make a video on that topic soon.
I’ll look forward to that video ! Thanks Tom & you never quit as well ☺️
Thanks you for sharing your story a lot of people just don't realise how much that life can change I am very proud of you be happy be safe
Thanks so much for watching Ronnie & also understanding my message ! ☺️
You've got more courage and a positive attitude than I would ever have😉
Thank you for sharing. Im an wchair user, have chronic pain and a spinal cord stimulator. I am definitely not the same person, but there is gratitude and beauty every day 💛
Brian - you are awesome too!
Nicolette I totally agree with you, you have to ❤ love yourself. You need to be confident in yourself who you are. You need to believe in yourself. I agree with everything you said.
Davis314Family has subscribed and ready to enjoy your van life videos❤
Never never never never ever give up! That's the motto!
Thanks for making this video. I didn't have an injury, but I do have multiple chronic illnesses that can be incredibly debilitating some (most) days. I'm in the process of considering what mobility aids I may need to invest in, if any, to make life a little easier. I appreciate your candor and openness in this video, definitely a new subscriber. :) best of luck on whatever adventures lie ahead!
i have tinnitus and it blows. i dream without it so it's crazy frustrating in the mornings. obviously it's low on disability but very annoying never the less. it's mind boggling how many individual battles we all have. amazingly we all keep going
I think the positive in life and the struggles mold us - they make us stronger! Thanks for sharing your struggle. We didn't know about it until you just mentioned it. That definitely is something that would be frustrating to experience, not experience and come back to. Neither of us really consider things high or low just individual challenges to learn how to navigate. It really is crazy when you think about it, huh?
@@NicholetteBrian yeah i didn't either until it happened to me, protect your hearing, also can happen from certain meds. overcoming challenges is part of the human experience... for some unexplained reason. hopefully it's an important and valuable reason lol
You're beautiful and have such a beautiful outlook on life, thank you for sharing your story, it's important! ❤❤
God bless you Nicholette and thank you for sharing your story. I teach middle and high schoolers and would like to share this video, with your permission, of course. So many of my students do not have a realistic view of life and are actually sometimes quite selfish, mean and lazy. Seeing your life and that of Brian's, especially his caring attitude would be good for my students.
Please do! Always happy for something we create to be shared educationally ❤️
you are a wonderful lady, and you guy is a special man, most men would run away from this, ihe is a good man, but you are very strong women may GOD bless you and him
I also live in a wheelchair i had a stroke that is what put me in a wheelchair i had to learn how to do everything all over i lost most of my friends because of being in a wheelchair i gest that it made me stronger in life
Thanks for the honesty. Your story is awesome. I know it started badly, but you won't quit!
You are an amazing young lady, keep ❤ yourself, you are worth it. Best of luck in your adventures! Enjoy every moment.
You’re so sweet thanks so much Jean 💖
YOU ARE STRONG! I had a stroke NOVEMBER 07 b4 that I felt invisible as well but God does things for a reason
Stay strong Joel! There’s so much recovery you can achieve after having a stroke but I’m sure you figured that out ! Thanks for watching ☺️
Thank you for being vulnerable and honest, it’s not for no reason, God bless! This is more powerful than you think
Appreciate that so much ! 😊
How true you are, I've felt the same and really love what your doing and how your handling your life, sail on sweetheart.
Thanks for sharing. Awesome car transfer, still use my slide board but hopefully soon I’ll be doing them without it
Thank you!! start small without it & you’ll get there in no time
So cool ... Thanks for sharing your message, your truth. So real, so human.
You are such a beautiful and inspiring person! It’s good that you are showing others not to stop doing what you love! ❤️
Thanks for sharing. Perspective is what I gain from you sharing your story.
I love that so much! Thanks for watching and being open to gain perspective ☺️
My 1st tattoo I want is the saying "Never give up"
Get it !! ☺️
You have always been amazing even as far back as when we were kids. I firmly believe you can accomplish anything you want in life. BTW I live a few blocks up from Moes. The "Home Wreckers" are also amazing 🤣🤣 Love you Nicky!!!
Much love kev !! You’re pretty amazing yourself, thanks for always being a friend ☺️☺️ we’ll have to set up a moes date with you & gabby !! 💖
Thank you. You are inspirational
I am really understanding and have the same emotion...with you ... I do the same situation... I have to overcome with many things on daily basic ...keep it up... love yourself and take care...thank you....
Really enjoyed this perspective thank you!! We are infinitely stronger than we know
Thank you for sharing your story. Rock on you guys!!!
Thanks Dustin and we will be! Our channel will still have a strong focus on crystal mining adventures just trying a variety of things till we are on the road! You keep on rocking' too 😁
Beautiful…strong and brave. Both of you are great 😊 bless you both.
Thank you so much we both really appreciate you!
Its so nice to watch a vid where I can say me too and Its nice to know that I am not the only one. Your amazing!!! Keep it up.
Thanks so much Christopher we're glad you can relate through our videos and are here tuning in to them. We appreciate you 💖
Nicolette, you dreamed of walking, but it makes me weep. I dream of my deceased spouse alive again and in an embrace with me.
Thank you for sharing ,the two of you are awsome!
You're awesome too! Thanks so much!
Hey I'm watching your video all I got to say is I like your video keep your head up keep fighting and be strong don't give up you can overcome a lot of things you put your mind in your power to something and you can do what you want and you seen in life don't give up
i love you guys, how awesome you guys are.
Brian your such an amazing husband!
Thanks for this awesome video! It takes courage to be vulnerable and tell the truth of your story, but people need to hear this and understand what it is like to be disabled.
Thanks so much Peter for all of your support and for believing in us! Glad you enjoyed the video!
He's so sweet..both are sweet
Very well produced edited video. Thank you for telling your story. This is truly an amazing you tube channel. Please continue telling your story. I hope you will consider stopping in at rehab Hospitals and childrens hospitals to encourage others who are just starting to deal with what you have been through. I don't know if you have heard about a woman named Joni Ericson Tada. She had a diving accident when she was teenager in Maryland in the early 1970s. She was a quadriplegic. She became an artist, painting with a brush in her mouth, a writer and has a ministry called Joni and Friends. By the way you may want to try magnesium oil spray may help your legs and the upper body arms shoulders. Also great to help relax the mind as well. God bless you both!
“Keep going forward and there’s a reason for all of it” I couldn’t agree more 🤗
Thank you for sharing the vulnerable and emotional part that many find difficult to understand in such a real way, it is accepting that part that leads to acceptance and overcoming, because everything is part of the process, it is comforting to find so much truth in a video 👌🤗🤗 excuse my level of english 😅
Thanks so much Arsol we're glad you enjoyed it and checked the video out!
I hope you don't take this the wrong way, but you are so fortunate to have your hands.
No I don't take that the wrong way - I am so fortunate to still have use of my hands and never take it for granted. I think quadriplegics have it much harder. I wanted to share my personal experiences with others and what its like in a day in my life and wasn't comparing myself to anyone else. Thanks for watching!
You are a inspiration to young people
Just living our lives - thanks for watching!
You are so beautiful and so strong! Also I love your bag :)
Thank you so much!!
I really loved this video! Thanks for sharing.
Glad you enjoyed it! We appreciate you watching!
You both are a great couple!
I love it so much ! You're both luck ! For real
I've always thought they should make scissor lift wheel chairs .
Very good video, thank you for sharing it!!
Thank you 😊
Thank you so much for sharing ❤
🔥🔥🔥🔥 The World Is Y’all’s!!
God bless you. Really good video thanks so share
My take on my injury is simple. The old me died and when I came to I was reborn in a strange body............. Sugar bear, hold that man tight!
I'll be back......
Plz buckle up!!!
This is difficult..but may I ask, were you wearing a seatbelt at the time?
Thank you
Thanks!
Thanks for watching - we both appreciate you! 💖
This was an awesome video! thank you for sharing your story with all us youtubers! I admire your strength! Its so important to show the public that we are all just people no matter our physical abilities! Btw I love shopping and eating out too. A question if you dont mind. Does your chair have breaks? As an OT assistant I got worried when I saw your transfers and the chair wasn't still. Sorry couldn't help asking. Thanks again and hugs! (-:
Thanks so much Laura ☺️ !! We appreciate you taking the time to watch and take something from it. I don’t have breaks on my chair 😂😂 it can be dangerous at times but I usually try to wedge my chair between stuff so it doesn’t move. I got tired of my breaks breaking and just took them off, probably not my smartest move lol
@@NicholetteBrian Thanks so much for replying to my comment! I totally understand about the brakes thing. My more mobile patients were always needing therapy/maintenance depts to help fix their brakes. Such a hassle! Hope you have a nice week! (-:
I'm a guy so in the world according to girlietube I have no chance of becoming paralyzed.
Just about the only major thing I've had to undergo was bowel resection surgery 11 months and two days ago to remove my entire ascending colon.
I was born totally blind! Thanks for sharing your story!
You're awesome, thanks for listening to my story 💖
I was just doing some brainstorming on what kind of video that I wanted to make where I talk about my own life in a wheelchair. I did a UA-cam search "Wheelchair life" and guess what? Your video popped up! I had a spinal cord stroke at the age of 17 that left me as a C5-6 incomplete quad on June 14, 2004. If you ever want to collaborate on things for future content, feel free to hit me up! Keep up the great work!
Absolutely Trent! I’ll check out your channel now, thanks so much for watching and definitely make some videos ! Awareness is important ☺️
@@NicholetteBrian I haven’t done much with my channel yet, but I’ll hit you up once I get my current video up. Hopefully by this weekend. :)
You guys are such sweet a couple !!!
I am also SPI person.
She needsba wheeochair with armrests sobshebcan have a cup holder 😊that would solve the holding the cup issue ..
See that ladies...She's loving towards her boyfriend, and still does chores. Imagine that, and they're happy. Crazy concept.