Colorectal Cancer: Survivor Shares Treatment Journey & Navigating Life with Cancer | Allison's Story
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- Опубліковано 24 сер 2020
- Allison Rosen went from lab researcher to colorectal cancer super advocate - she spends her days helping new patients and caregivers figure out how to navigate life with colorectal cancer. She shared her entire treatment journey with The Patient Story (full story → www.thepatientstory.com/cancers/colorectal/allison-rosen/).
We've listed time codes below to help you navigate this video. To those of you watching, we hope her story and words give you comfort and some knowledge on the day-to-day life with colorectal cancer.
1. Diagnosis
(00:26) 1st Symptoms
(2:10) Getting things checked out
(3:20) Describing the colonoscopy
(5:58) "Scanxiety" - dealing with waiting for test results
(8:09) Processing the diagnosis
2. Treatment Decisions
(9:48) Finding the right medical team
(12:44) Why she chose her hospital
(14:24) Treatment plan
3. Neoadjuvant Chemo-Radiation
(18:42) Oral chemo pill, Xeloda, and side effects
(21:20) Radiation and side effects
4. Surgery (Total Abdominal Colectomy)
(26:08) Prepping for surgery, emotional decisions
(31:30) Surgery and tips for updating loved ones
(33:08) Waking up from 14-hour surgery
(38:52) Recovering from major surgery
(41:15) Guidance on how to best recover
5. Surgical options
(35:21) The need for a stoma and ileostomy bag
(37:49) General surgical options
(45:55) Dealing with the ileostomy
6. Second Chemo
(43:28) More on oral chemo
(48:50) Follow-up protocol
7. Reflections
(30:05) Getting emotional support
(49:56) Hair loss was unique to Allison
(51:37) Top questions you get as a patient advocate
(52:30) Fertility preservation
(55:27) Long-term impacts of cancer
(57:20) How cancer affected relationships
(59:07) Finding your cancer community
(1:02:38) Last message to others
As an aspiring doctor, I like watching these videos to hear patient’s stories, so I can better empathize with my future patients, Allah willing. Allison, you are so brave, and I admire your tenacity in advocating for yourself. I pray for good health and happiness for you.
Thank you for taking the time to invest in understanding the patient voice! -Stephanie
You'd be the first doctor that I ever knew of that had any empathy
This gal is sensational. Very articulate about a v v difficult diagnosis and treatment process. Those facing this should listen to this. She delivers facts and feelings with knowledge and bravery.
I'll find out Thursday if my polyps are cancer prayers please, and awesome you are cancer-free!
Sending prayers and positive thoughts your way!
I'm going through this right now. It's really hard for me to even tell people about my situation.
A very brave and articulate young woman. God bless.
Thank you so very very much for sharing your experience and your story. I really appreciate your help with navigating the process!
This helped me. Thank you.
It warms my heart so much to hear this. Thank you for the message. -Stephanie
Here in the UK our first call is to our GP ( primary care) who gets in touch with the cancer unit at the local hospital. It seems a bit of an ordeal to have to find your own oncologist.
It is a confusing not to have professionals take charge but we can have freedom to choose who is giving guidance. Choices
thank you for sharing this story! I recently found out I have diagnosed with stage 3 cc. Allison would like to reach out to you.
Lisa, sending positive thoughts your way. There are more stories that may be helpful here → www.thepatientstory.com/cancers/colorectal/
How are you now?
🙏🙏🙏
Lol, I just checked my FB when her phone pinged. Must have been a right slap in the face to find out you had bowel cancer when you were putting so much effort in to stay well... 😕
It's a story we hear too often :\.
They call it “twilight sleep”
Are you wearing a wig? I'm about to have this surgery and chemo and a iliostomy bag. When did you lose your hair?
A stoma looks like a little pink rose, Jan, RN.
Her wig is funny
Inappropriate comment
@@johnreidy2804funny is inappropriate?
@@blueberry4082 Given what this woman has been through your comment is crude, hurtful and inappropriate.
Want to trade places with her Sport?
@@blueberry4082 Making fun of a cancer patients' wig is not only not funny it is despicable. Would you like to change places with her?
You are young...
@@johnreidy2804 didn’t make fun of her. You’re too sensitive I guess. And I’m not that young.
If you are a patient survivor, you must be stronger. The universe tests us with tough exams
The interviewer looks green .
Private health care system seems brutal , so glad we don’t have to find a surgeon or specialist.
Thanks for sharing your journey ❤️🩹❤️🩹❤️🩹❤️🩹❤️🩹❤️🩹❤️🩹
Thank you for your kind words for Allison!
Obviously its the lighten, thats making the interviewer look green, how rude of you