Fetal Alcohol Spectrum Disorder
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- Опубліковано 25 лип 2016
- Families with children affected by Fetal Alcohol Spectrum Disorder share how this disability impacts on their lives.
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100% preventable, unlike other neurodevelopmental disorders. That's the most horrible thing.
Alcoholism is a disease; you should feel just as sorry for the person who is suffering from it, not just the after math of what it can do.
Saraj E. Stephenson drinking is a choice
Yeah true, but it's still preventable by simply not drinking when you are pregnant. You can also (mostly) recover from alcoholism. Not so with FASD.
Saraj E. Stephenson oh man are you wrong
Torchy Brown a disease you go to rehab for
I was born with this. My mother drank alcohol and possibly used other substances whilst pregnant with me. I had a very difficult start and even died several times at birth. I was put into care and was adopted at 3 months. My adoptive parents were told that I would be mentally and physically disabled and that they were taking on a lot. They stuck by me and gave me a loving and supporting home. I was very hyperactive, impulsive and destructive for quite some time. I was however very creative and this is what I excelled in. I went on to do a design degree and eventually start my own business. I’m 50 now and have had problems with substances myself over the years but I’m happily sober now and I am feeling positive about the future. I feel very lucky that I had the right support early on and was able the reach my best potential.
Thank you so much for sharing your story, James. It helps me immensely in learning how to interact with the homeless teenager I have befriended. What a wonderful success story you are!
So so glad you’re doing better
Thank you for sharing James. I work with adolescent FASD kids in crisis and I just hope to get them through one day at a time. I’m grateful for the insight you have shared and the success that you have achieved. It helps me to know that it is worth continuing to fight for these kids. I hope you continue to have growth and accomplishment in life.
I will carry your message with me as I go back everyday to work with these kids!
Do you feel that your own substance abuse is tied in with your mum's? Either through genetic inheritance or direct response.
Well done on your sobriety
Breaks my heart that anyone could sentence a child to such a difficult life when it’s 100% avoidable
they do it because the prochoice crowd dehumanize babies in wombs
We take kids away from heroine addicts yet let alcoholics keep theirs
My, mother did this to my little brother Damon, and refuse to acknowledge that there was anything wrong with him,poor Damon. He died young ,,Miss him still.
They do it because some people are ignorant of the risks, some people are mentally ill, some people are addicted and cannot make good choices.
@@voluntarism335 I am part of the pro-choice crowd who is actively working with folks who need help with addiction, mental illness, and access to healthcare services to prevent just this. You would be surprised how many people need help and cannot get it and are dehumanized by society as a whole.
These adoptive parents are saints. I know I have zero patience for kids with behavioral problems. And, I agree he shouldn't be left with an animal unsupervised.
And yes these parents are wonderful and kind people. This family are truely exceptional.
It's sad you're so selfish. Please don't reproduce. As if these kids can help how they are.
Thank God these families know what true love REALLY IS. That clearly can't be sad about everyone.
@Beth Meyers Hi Beth - you are right on one hand - the parents should watch the boy's interaction with the animals carefully !! On the other hand it is wonderful and healing to have animals around - for every child - for children having a disease/disorder it is very important , it eases their life and feelings a little bit and sometimes much !! 😉 I think children should grow up together with animals when even possible . I grew up on a farm with my grandma and many many different kinds of animals . When my children were small, we always had a little zoo , finally one cat was left . 🐱 Since that time I have one cat only here , the last 2 are from a cat rescue ... 😼 Lots of love from a German grandmother !!! 🌻
@Carrie nunya who are you to decide what someone should or should not be able to handle? People on the internet are so horrible and you CARRIE are one of them.
@@ev7985 She's selfish because she knows her limits?
I have fetal alcohol syndrome and I was taken away from my biological parents as well. But I don't let it bother me I've over come it . I've taught myself how to live in my life. I live by myself I do everything by myself for over 10 years. And I got married and I live a happy life. Disabilities do not dictate your life you can overcome them and you can live a happy life. I'm proof of that I have fetal alcohol syndrome and I live a normal life. Am 45 years old.
Ya, Ive been in the University of WA study since i was young. Im high functioning & dont really show the effects. Alot of people in the medical profession dont take it seriously or know anything about it. Ive got 2 degrees, 2 kids & hold a steady job. Thing is, I have to adjust so much to act 'normal'.
I have fetal alcohol syndrome myself. I've been with the University of Washington study for most of my life. I have two degrees, two kids and look relatively normal. Thing is, I have to adjust a lot to act normal. I have had doctors and others dismiss or not believe me when I tell them.
How do you even know?
@@51lisasmithwhat do you mean?
I have you beat I am 63 with fetal alcohol an yes like you said you can survive with this problem. However it is not easy and people who can not see this invisible fas do not give us a break so Jobs are hard to contend with yes we can do the same thing over and over again no problem but it takes longer for us to learn new things and people are not very patient. I believe they should offer more assistance to us and I think women who drink while pregnant should be punished jail time would be okay with me it would cut down on a totally preventable problem. So I guess I am not as nice as you are about it. Personally I think we all deserved to be born normal just like my mother was she got to be born normal so why didn't I and yes they should pay. I am the same as you I own my own home and I lived alone even helped my brother sisters, but I resent what was done to me because I would have liked to have been smart like my daughter I would not even drink coffee, so how dare my mother.
These heroic parents adopt a child with serious disabilities and they then get looked down on poor parents for their behavior problems. That's just deeply sad.
Lots of people are assholes when it comes to disability, and it's disheartening. These parents are doing such a great job ♡
@@polydactilism I agree with you ! The thing is. : out in public it is hard to differ a child having a mental disability from a bad behaving child just showing up a temper tantrum for a stranger . Maybe these wonderful parents should offer little cards to the strangers pointing at them etc , where it is written a little information about this disorder or any other disability ... Could this be helpful ???!!
@@dorisdaumann5914 I think that would be alot of extra work expected from the parents to hand out pamphlets, but to each their own. People with the privilege of time could take that on instead. Good activism is what will ultimately re-shape the belief systems that underlie people's reactions/empathies
No way
My father has FASD, his mother also drank while she breastfed him. He was born in the late 1950s, so the affects of alcohol on fetuses weren't well known. He's had several diagnoses including ADHD and bipolar. I used to hate him for his temper and childish behavior, I try not to now. I know that he could not help most of his behavior. If there is anyone here who has a parent with FASD, know that you are not alone.
Thanks for sharing Yael, we hope you enjoyed the episode!
Attitude you're welcomr, thanks for posting!
Do you have any health issues resulting from your father having fasd or are you completely healthy ?
May I ask how the relationship between your parents was?
Yael Feder are there Any Affekts to your Own Health? Did he inherited spmething to you? I am sorry I Hope Not but I Wonder if such things Happen.
Aw,, she didn't know why they didn't like her. Maybe its because she's short? Omg! That broke my heart!
My husband and I raised a child whose mother abused alcohol and drugs while pregnant. He had many behavioral issues . He was very impulsive even violent at times. He suffered from night terrors when he was small. He never thought about consequences. He was very impulsive. He was easily led by others in his peer group. He got into drugs and alcohol and when high he jumped off a bridge. He did not survive and died at age 19. We very much felt the pressure from others who didn’t understand his problems. They felt we were just bad parents. We grieve for him still and wish he could have had a fulfilling life. We loved him very much and wish we could have somehow done more.
I am so sorry for your loss😥
What a painful loss. Bless you for giving him love and care during his short time here.
How wonderful you were to love and care for him. One never fully recovers from the death of a child. My heart breaks for you. From one grieving mother to another.....
Maureen I’m so sorry for your loss. I work with adolescent FASD kids in their highest periods of crisis. They are some of the toughest kids that come through the doors. They are everything you described in your grandchild- impulsive, behavior issues, etc. It is a 24/7/365 job to raise these kids. They don’t sleep well, they never slow down, they react to the slightest stimulus, and their reactions are extreme. You did not fail. You gave safety and 19 years; our system that allows this harm to innocent babies has failed. I hope your heart has found some peace.
I am glad he met you guys and got a chance at a decent childhood
Having raised 2 grandsons with fetal alcohol effects, I identified with this video very much. The scrutiny suffered by me is immeasurable. We need more videos like this.
This is incredible, we are currently fostering my husband's nephews and one doctor has given us an unofficial diagnosis of ADHD, but his therapist has given him an unofficial diagnosis of FASDs. His mother (my sister in law) drank HARD and smoked marijuana and I am convinced he has fasd. He is 8, but mentally is about 6 and is so much like these kids. All we want is a diagnosis, so we can find the best way to support him and we can learn how to deal with his behaviour in a positive way. After seeing this video I am convinced he has it.
My aunt Wendy has fetal alcohol syndrome. She's almost 50 and still lives with my grandparents. She's very high functioning though... she's been a kitchen manager at UCD in Davis CA for like, 10 years, and has worked there for close to 20. She'll never be capable of living alone though. Her mental state is that of a 12-14 year old girl. She's super rad though, I love her. It's crazy that this is the first doc that's popped up on this subject, for me. I'm an obsessive doc watcher, and it never occurred to me how few vids there are on this paticular subject.
Thanks for watching Megan!
Attitude Seem to be watching a lot of your vids lately! Thanks for posting, keep up the awesome work!
Awesome! 😀
She can run a major university's food program, but cant live on her own?
Something doesn't add up.
MrKevMan That’s not true. Even though working in a kitchen can be really demanding, it is regimented in a way that someone with certain disabilities could thrive, yet living on their own would be too overwhelming.
This is one disability that is avoidable. So sad.
You only get ONE chance to grow a baby. For Pete's sake, lay off the spirits during pregnancy. These children are precious. What a shame they will be affected by this forever. Thank goodness this little boy (Jayden) is now in an environment in which his brain receives rich stimulation (sibling interaction, access to animals on his farm, building with Legos, etc.) and his soul receives love and care. Despite his personal obstacles, there's hope there.
He was unwanted by his birth mother. This is what can happen when you force women to give birth.
They don't care. I've had numerous arguments with women about drinking "It's no harm having one glass every now again"
Betsy Collins thanks for the obvious and super general comment??
@@DD-nd3fh oh get off of your abortion soapbox, you have absolutely no idea whether this mom was forced to give birth which is a stupid expressionist anyway. You are assuming something based on your own philosophy and agenda
@@DD-nd3fh They can choose to not have sex if they don't want childern
so FASD can be misdiagnosed as ADHD if the mother were dishonest about drinking during pregnancy?
yup
Yes, I've seen it happen. But ADHD can be part of it. FAS is a syndrome, so it can be a collection of illnesses.
Fun fact: if a mother DOESN'T admit to drinking while pregnant, you actually CAN'T get officially diagnosed with FASD, even if you have all the other symptoms. They can only say "suspected FASD" until there's admittance by the parent or confirmation from another reliable source saying that they for sure drank.
Kristie Anderson If you don't have the hallmark FASD facial features (like a lot of space between your nose and mouth), then you probably do have ADHD, not FASD.
there are symptoms that are characteristic of ADHD and not FASD. it is a lot more complex than just saying someone is hyperactive and impulsive. People with FASD almost always have learning disabilities while people with ADHD may have trouble with school but do not technically have learning disabilities. there is more but that is basic differences
Why a glass coffee table in the middle of his (evidently) play place where he jumps and twirls from the furniture? That looks like a serious accident waiting to happen!
It's an inch thick... Shut up!
I am a cat lover but I find it really strange that people in the comment section are more concerned about the kittens then the boy.
Being honest, I don’t like children and he would do my head in! I prefer kittens to children
That glass table give me goosebumps every time he passes by...
You and me both girl,my first thought was,how many times has he hurt himself on it...i would take it out...with his ADHD its a bad idea..
Awesome parents! But a glass coffee table with a rambunctious young boy... BOLD 😂
Hope you enjoyed the episode Josephine! Thanks for watching!
Attitude I definitely did! My stepsons have some issues that have yet been diagnosed but their biological mother admitted to doing cocaine and heroin while pregnant with both. My boys are incredibly lucky as even at their young age it looks as though they'll be able to live independently successfully. My heart goes out to these kids and their parents. So much strength and love! ❤
Thanks for sharing Josephine! Hope you and your boys have a great christmas!
Josephine Balch Agreed. That coffee table is scary.
this is sych a pure hearted dad comment. i love it
Being the parent of a kid like the first sounds like a nightmare. You can hear in the voice of the mother how tired she is.
I'm 25 years old and I suffer with FASD and I have ADD and I take medication for it. But as I grew up with this I am normal but I have my days were my brain acts younger then I am, and I have random break outs or temper tantrums, I have a mild effect of FASD and I need help in a lot of things. But I have problems asking for help, and I need to stay stimulated on certain things. But I mean all in all we all want to be treated like a normal person. ❤️
So we need a lot of patience ☺️ and you have to explain things thoroughly so that our brain and mind can function in time to understand what your telling us, along with big words you gotta break it all down, and with FASD sometimes we cant control our feelings either or deal with stress, so we have freak outs because we don't understand. So you gotta be patient with us .
Thank you for sharing Krissy, we hope your living a happy and healthy life now!
Good luck to you, Krissy
You are normal person. You happen to have a disorder like anyone else with a chemical lmbalance. I applaud your attitude. I was adopted and have struggled with anxiety disorder my whole life. I've heard thru the grapevine my bio mother drank while pregnant with me. I'm now 52 and after a lifetime of struggling I've finally come to love myself and my life. A large part of what bothered me was knowing she didn't want me and thought nothing of my well being while pregnant with me. It took a long time for me to come to terms with my origins. I'm at peace with myself now.
I have ADHD I was born in 72 when diet pills were the big thing the dr didn't know it would have an effect on me but it did I had a good mother but I have a predisposition to get paranoid if I'm worried I was put on disability when I was 23 I cry easy and can't handle stress and I have trouble learning I wish the drs had of studied this in fetal development my mom would have never took it I had a loving patient and understanding mom it wasn't her fault
Lisa Lentile I’m sorry for your situation, Lisa. My mothers mother took diet pills and it caused her death and perhaps contributed to mental illness in her children though they all have had high IQs. I hope despite struggles that you’ve found or will find happiness and health. Good luck to you ❤️
Whenever I’m out and I see children acting out I try and never feel annoyed or judge bc you never know what the child is dealing with and def don’t know or understand what the parent is going through on a daily basis.
He should be careful with the cats. He could hurt them or vice versa....
There probably used to him though
Be careful with those adorable kittens 🙀
@@Chobaca animals don't "get used" to being handled roughly. He needs to be more careful or they shouldn't have kittens in the house.
Watching him handle the cats made me cringe so hard
@Christina Sweetheart There are plenty of cats.
That boys parents love him so much. I'm so glad he was able to be adopted by such a good hearted family who has the means to properly care for him and give him the understanding and effort he deserves
I think it is highly irresponsible of the parents to have kittens in the household. What were they thinking?
Agreed. Wait till they are older.
Everyone commenting about the cats when these poor people are suffering a disability through no fault of their own! The cats are fine, the boy is the one born from addiction and abuse and he deserves your sympathy. All these adoptive parents are absolute saints.
Thanks for your kind words Mugwort! Hope you enjoyed the episode and thanks for the support
Mugwort animals can actually be wonderfully therapeutic for people with neuro disorders. he should be instructed in how to handle them, but I think having them could be really beneficial to him.
Gosh, I really feel for Katherine when she says she has few friends and how people have been so cruel to her with words... Katherine, on the off chance you would be reading this comment right now, I justwant to say to you that you are a wonderfully valuable soul and anyone would be extremely lucky to call you a friend, so before anyone is so quick to judge you on having a condition that you cannot help having, let's all look at negative traits that those who have so horribly judged you happen to possess: judgement, intolerance and lack of empathy... meanwhile you strike me as a gentle soul and a great heart. You have a lot of reason to hold your head high and be very proud of yourself xx
Lizzy And Baby but she admits to being violent in the past!
Lizzy And Baby 0
Lizzy and Baby, I could not have said this better myself!
Thanks I really appreciate that. Anyone would be lucky and Blessed to be your friend too.
Lizzy And Baby she brought this on herself. There's no excuse for drinking while pregnant. There's adequate information out there now that there's no excuse. I have no sympathy for her as she was so willfully ignorant and didn't care for her child's future.
Oh no. Makes me nervous seeing him with those kitties
Me, too. That's not ok.
Those poor cats
Blobby Blob My thoughts exactly. :/
Blobby Blob I bet those poor kittens are no longer with us...
ReneeandJimmyG nut he will be excused because of his disability. He should never be allowed near them unsupervise!
ReneeandJimmyG I have cats they are very theryputice
Blobby Blob I have the same conditions
Dont think generally people know how strong someone like Kathryn is. I would have loved being her friend.
Thanks for watching Kathryn!
Thanks😄
The parents are absolute saints especially when it comes to their patience!
Amazing people aren't they, thanks for watching Kate
Kate Cunio I think my cousin was born with it. He was slow, looked strange and had a heart disorder.
We adopted a child 35 years ago with FAS. Life was very hard since not that much was known at that time. I was very aggressive in getting her the help she needed. It is sad that they get judged for what their mom did to them. She has a husband and a perfectly normal 11 year old girl. Life is still challenging but there is hope for a good life for them. God bless all the fragile children🙏❤️
i am a individual with fasd and i have live both these kids stories this one really hurt for me to watch. but we can be stronger than what people labelize us we will rise above!!!
giraffe4998 sometimes its helpful for people to identify because those people need extra love, that's all.
This boy is very intelligent...he runs, jumps and navigates, cares for his family, in his own special way...he is actually recovering from a brain injury and doing well, It is only when he is highly frustrated, tired or as a feeling of not being heard, he may self harm or harm other. And due to the fact he is in an amazing environment!!...as he grows so will some neural path ways and he will blossom to be the best he can be! Thanks for sharing.
Thank you for watching Growing Together, hope you enjoyed this episode!
Growing Together god bless you . What kind words
Growing Together he is completely beautiful
There's no recovery from FAS, or other such things.
I wouldn't downplay his condition and be patronising by calling him "very intelligent". He has FAS, he has brain damage, it affects him and his family's life a great deal. He's doing really well, but he's not very intelligent. That's patently untrue.
I really hope his parents keep a really, really close eye on those kittens. He looked like he was being kinda rough with them and it can cause the kittens to fear him or other people as they grow up. the kittens need to be raised properly just like children.
his parents keep a very close eye on him and they wouldn’t let him near the cats if they didn’t trust him to not hurt them, as they’ve taken things away from him before when he had tantrums. kittens are surprisingly resilient and you can’t really see how he treats the cats all the time from a short clip
I was thinking the same thing. His parents should really teach him not to be so rough with an animal. He has to learn to respect animals as well as people.
Joc Joc I work with fostering and rescuing cats and you’d be surprised how many people don’t know how to treat animals. Many animals are returned because kids hurt the animal and the parents are upset when the animal retaliates in defence. People need to learn to respect them and their space, they are not toys.
I empathize with Jaden's situation. But having pets in a home where the child has no impulse control and has episodes of agression is totally inappropriate.
@@DreamOfGenie I agree. I worked for an animal rescue organization and so many dear animals were returned for these reasons. Not every home is right for a pet. In this case I really worry about those cats, as he is not capable of any kind of self regulation.
Jaden is so lucky to have such a wonderful family. And I'm sure they feel the same of him.
They are certainly a great family! :)
Im sure they dont but its too late now
the girl broke my heart :(
Yes, such a lovely, sweet person. I can't believe nobod stopped those girls bullying her.
@@thaliasghost I don't understand this ether ... where had been the teachers ??!! 😢
She doesn't tell if she talked about it at home ...
with the way he jumps around in the living room, they should take that glass table out and get a softer wood one
Omg i have a kitten if someone handled her like that I'd lose it! kittens need to be raised with lots of love and trust :(
meow Kittens are not china dolls. They were not hurt. He needs to be around the unconditional love that animals provide. He didn't hit them or kick at them or throw them. Yes, he was pretty exuberant and excited and picked them up but cats are flexible so they weren't being hurt. Its only our perception and humanize it. They aren't infant children. This little boy will grow up and have a special bond with animals. Animals can sense these things and will do a lot to help and they will have an amazing bond. But micro analyzing everything leads to increased stigma and judgement. The same could be said of any interaction and we know what happens to kids that have limited interactions with other living beings.
meow and a kid with disabilities doesn't...
oh poor cat that was being played with where it was beimg annoyed if anythimg by a really hyper kid. poor abused cat!
my husband has fetal al. disorder....he is legally blind (born 1953), he's really very intelligent. He does not make decisions dealing with time very well, and he loves walking. It's really his vision that's the problem. Born about 1 lb. and a few oz. his mother had him after 7 mo. gestation.
I would remove the glass table top from the room where the couch's are. If he were to jump and fall onto the glass it could possibly cut him deeply and or kill him
Angie Burrage thought the SAME THING
Now this I agree with fully. I would never have a glass coffee table and that simply because I have kids!
Angie Burrage our dinner table and coffee table are both made of glass. PS two kids.
Maybe the keep the glass table top, right where he plays, and gets all crazy and jumps off the couches - so that one day, hopefully, we WILL end it all! That's what I'd do!!!!
I agree! I wish I could include a picture. I feel onto a table as a child and almost died.The scar is so thick and deep and wrap around my thigh.About one inch wide from my knee up.
people often act like fasd is caused by frivolous women drinking while pregnant apathetically or maliciously, but it’s not. they’re addicted to alcohol, and it’s not like an addiction can go on pause for nine months. obviously they aren’t in a place to raise their kid themselves (at least not right away) but that’s why charging people criminally, as i’ve seen suggested, wouldn’t prevent this.
Finally! The voice of reason. Alcoholism is just as much a disease as any other.
My mom who raised me has this and we are hanging on my a thread in our relationship. I told a close friend “trying with my mom feels like climbing a rock wall where every surface is covered in glass” I feel so alone. I only want to share this in case anyone else here is in a similar situation so that maybe they don’t have to feel alone too.
It is so sad that the parents get blamed for poor parenting, rather than realizing the child has a medical condition. My sister has autism, depression & anxiety & her problems get blamed on poor parenting or a bad family life, it is so frustrating when the medical professionals won't listen to the family.
Sharp edged glass tables and wooden corners everywhere! Watching him zoom through the house and graze his skull was very stressful!
Anyone who adopts are great great people but ones who adopt and take in children who have special needs are super hero’s in my eyes!! Every child deserves a loving family and to see how far these children have come with these loving nurturing homes is awesome. To think where they might be if they weren’t taken in by people who dedicate the time and love no matter what obstacles and difficulties might be in the way is so special.
I am Katherine but my hair is short now. I have FASD but I am gentle and kind. People who know me say I have the softest and most gentle hands in the world. I am not bad behaved or violent like the boy on this video. It's hurts that people think that every person with FASD is violent and has bad behaviour problems
Hi Katherine! Nice to see you on here. I hope you have made some friends 💞
Hello! Thank you for sharing your story. You are brave & kind. ❤
is it rude of me to ask what name you've chosen to adopt as you enter this next chapter of your life, since your bio says something about your gender being different than you & your parents used to think it was? I'm sorry. I'm a 20 year old trans girl (I don't feel mature enough to adopt the term "woman" for myself, and I was assigned male at birth) named Ellenor and I have autism, which makes me inappropriately curious.
@@Ancheladamichelada I have made friends thanks. My name is Jed now. Would you like to be my friend?
@@ashleysimmons9411 thanks and your welcome. Would you like to be my friend? I am Katherine in the video but now I am calledJed
I adopted my daughter who has FAS. I have had a child worker on McGuire AFB in NJ completely ignore me because I went to their organization for help because she is disabled. And the woman acted REALLY ANGRY toward me and refused to help me for like 30 minutes. She thought I was the birth mother. When she discovered I was the adoptive mother, her attitude went from angry and short to incredibly "sweet" and nice and helpful. I eventually confronted her on that and she denied it. I told her that that definitely occurred. Regardless of her pretending it did not. It was super obvious. I feel so bad for the birth moms because of workers like that.
This was exactly what I needed today. The consequences of drinking during pregnancy need to be KNOWN
omg katherine made me cry. She has such a kind and innocent soul. I hope she is happy.
Maxie Wallace Apparently, she’s 3 comments above yours.(Katherine Law) she said she’s nothing like the boy in the video, she’s very gentle and caring now and has short hair 😀 (she’s wearing shades in prof pic)
Thanks Maxine. My name is Jed now. I was Katherine Law but now I am Jed Kevin Jones
Thanks Marie Wallace from Katherine Law
No safe amount of alcohol during pregnancy! This video is heart wrenching.
I believe that this is one of the very best channels on UA-cam.
Thanks for your kind words! Hope you stay tuned!😀
My cousin adopted two kids, siblings. They were only told the girl, who was 5 at the time that she had ADHD. They found out this year, what many of us close to the family already suspected, that she does has FASD. She’s just turned 20, can’t pass school (college, trade school...), has no ability to focus for 5min, can’t hold a job. Her parents are in huge denial and keep encouraging her to try programs at school that she cannot possibly get through let alone get a job in later! She’s also been diagnosed with depression, and other psychological problems. It’s sad really bc they may have been more apt to help her better had the truth come out when she was still a child.
Blessed are the parents with the patience to lovingly raise these children because I simply couldn't deal with it!
Thanks for watching and sharing Danielle!
Bless they're pea picking souls because I never could take it on. I'd have a heart attack from worry , stress and heartbreak
I have a family member with FASD. I watched this until the abuse of the defenseless cat. It sickened me and I cannot unsee it. My family member has been responsible for animals’ deaths. I did not stay to see whether any responsible adult helped the defenseless animal. I applaud this family’s patience and dedication. I respectfully disagree with having a cat or any animal, who of course depends on them also, living in a home with a child with FASD. The cat has no advocate. What I saw the child doing before I got off was already far too horrible.
Come on...he was just carrying it slightly roughly. Maybe not the best idea for them to have pets but I mean it's not exactly traumatizing.
@@vanderbam2741 She was referring to the child in HER FAMILY that killed animals.
I totally agree that an animal should not be involved when a child has no impulse control
Just watching this triggers my anxiety
FASD can be misdiagnosed as ADHD. This happened to our child that we adopted. We found out from the birth mom herself that she drank alcohol and did meth during the pregnancy. Once CPS found out, it seemed like they didn't want our child to receive the diagnosis. We learned from others that it would be harder to rehome our kiddo if they had to, because now he's considered special needs - but we were blessed to be able to adopt him ourselves.
Is the family in danger when Jayden is bigger and stronger? I admire the parents for their love and commitment, I hope there is never a circumstance where someone gets seriously hurt.
Exactly what I'm thinking about. He can be potentially dangerous when he's grown up and stronger.
I was really worried while he was "playing" with the cats. I fear for them and the family.
What a poor, sweet little soul. So much has been stolen from him by his mother.
I have it. I see life expectancy is 34. I wanted a long life. My depression has been low for years. My birth mum ruined my life.
I am a 40 year old woman living with FAS. Growing up I had educational delays, mental illness, extreme outbursts of anger over nothing really. I consider myself lucky though because if FAS was a whole iceberg then as far as symptoms go I've only got the tip of it. When I say educational delays that's literally what I mean. I'm just as smart if not smarter than a lot of people, but the way I learn and memorize things is so convoluted I was considered impossible to teach. As an adult I still deal with the issues that come with FAS. In the form of rather severe treatment resistant depression and anxiety. I am socially stunted, I can not hold a conversation because I have never mastered the art of small talk, and groups of more than 10 people scare the living daylights out of me. Unfortunately my Mothers choice to drink through my pregnancy left me just disabled enough not to be able to function in a normal adult world, but smart enough to know what's wrong with me and be even more depressed about it. I will be on SSI and living at 90% below the poverty level my entire life unfortunately. All because of FAS and really bad stress reactions caused by the symptoms of it.
The real kicker comes in when you stop to think I've got 2 children. An 11 year old son and 7 year old daughter. They are in my care. Both born free of drugs and alcohol. However they've both got FAS symptoms. I don't know if the alcohol I got while in utero did something to my genetics or what but both my kids have been diagnosed with ADHD, and my son is on the Autism Spectrum. He's verbal and very high functioning, but he STEMS a lot. He's a toe walker and a hand flapper big time. When he's really stressed he has this high pitched whining noise he can make for an hour straight without taking a breath too. It's awful...like feedback from putting a microphone too close to a speaker.
Your kids don't have fetal alcohol syndrome then. They have gotten diagnosed wrong. Respectfully. I have it and read up on it and the only way you can get it is if the mom drinks.
It's not genetic or hereditary.
LEEGGGOOOOOSSSSSS!!! I know that feeling well. Diagnosed Asperger Syndrome and ADHD, the stimulation, sound touch sight(and sometimes taste😣) is the beeesssst. Thanks for sharing your stories!
God bless them. I know I wouldn't have the patience.
Josh Popichak Me neither, I’d sell them on gum tree! Kidding. but you’re right, sooooo much excess energy.
Same!!!
Same
When my parents adopted my brother they were told some drugs and alcohol may have been consumed while he was in utero. He seems to exhibit some of the symptoms displayed in this video. But it is a spectrum. He lives and functions on his own. Though not particular well. Unlike the first boy in the vid. He is completely unviolent . He recoils when exposed to it. I’d say he stoped maturing somwhere between 13-17, mentally. Though at times seems perfectly at par with his age. Though not mostly. I often wonder if my parents had to deal with others judging them by his actions. I’d like to think not as we lived in a small rural community. And all would have been aware that he was adopted.
We all love him and try to help him. But we can only do so much. He must be his own person. However many mistakes he makes we wish he would learn from, but never does.
The young lady is extremely well articulated!
Thanks 😊 from Katherine Law
My brother was born with fetal alcohol syndrome....growing up no one knew this.....my mother would say watch him, yes ask a 7 year old to watch him, we would turn the play pen up side down with him in it...we could not control him, in school he left room for the bathroom, he came all the way home in winter with no coat, his teacher was frightened....they sent the principal to home, my brother lock himself in the bathroom, my uncle had to take the door off to get him...at 17 my dad put him a private hospital, they were the ones who diagnose him.....it explained so much...every time he left the house he would fall over the fire plug out front, he would always say who put that here...send him to the corner grocery, I would repeat a dozen times what to get....I would say 3 items, milk ...bread...pepsi...he would come back with 3 different items, he says well you told me to get 3 things so I did...
Hey! I am studying Fetal Alcohol Disorder for a project, is there any way I could get in contact with you to ask you a few questions?
Am I the only one cringing to see that half of these comments are about these kittens we see for 30 seconds being kinda shaken up and down and not about the lifelong suffering of these people?!
👏🏻
💜💜💜💜💜💜💜Thank you for this comment
whats wrong with you? be happy that people care about the weak creatures in society - it shows empathy and moral.
we should never put a childs fun over an animals live. pets are no toys - end of the story.
I agree, and when the kitten was reached a breaking point and bites and scratches, then, " oh no! what a horrible thing to happen!" It is preventing harm to the child as well.
I love animals ! but I did not see any distress by the looks of the kittens behavior. So no you are not the only one, I let my opinion be known in one of the comment threads above. Kids treat animals like that boy and sometimes worse, and they are not diagnosed with any disorders. People freak out over nothing and @Redditor is right, people are ridiculous.. and that is the nicest word to describe that...
I was cringing so hard when that kid was fooling with those kittens
I know from experience it’s exhausting dealing with a child in perpetual motion constantly...
While I feel this is the most wonderful couple and such a blessing that this kind of selfless and patient people exist....I do feel very sad and sorry for the other children in the family. They will never have a normal family life, get relatively little attention since most of the parents time and energy goes to this 1 child. That’s obviously just my opinion🤷🏼♀️
You're very correct. I adopted 2 children from foster care and one is un-diagnosed but I feel very certain he has this and this is exactly right. No one else in the family's needs get met because he's so demanding of everyone's attention. Going out is a nightmare and people don't understand. It's taken a lot of me to not dissolve my adoption. I know it's not his fault but it's more than I signed up for and way more than I can handle since I already have a special needs biological child of my own.
He reminds me of my foster/ soon to be adopted brother. He is such a sweet kid and is so lucky to be part of this amazing family.
Her house I’m Immaculent wow super clean look at that carpet
I have a cousin with FASD. We weren’t told what it was she had until we were adults. Our parents hadn’t even been privy to what it was that she had. The current process for prenatal genetic counseling, and testing has brought family history into the light. We had to ask what it was in the case that it was hereditary. Now that I know what it is, it is super obvious to see. Her social awkwardness, the tall tales, facial features, bodily features, are all on point. She is such a lovely woman, and great to talk to. Ultra reassuring, and a pretty great listener when it comes to things of the heart. She is on what I would estimate to be the cognitive, and emotional level of a preteen. When her mother was pregnant she didn’t know that it was dangerous to consume alcohol. Supposedly she only drank a few beers in the evening, and it still resulted in a pretty serious case of FAS. I feel like it has taught my entire family a great deal about patience, and finding the wonderful in people. To love them for all that they can do, not being frustrated for what they cannot.
I have watched almost all of these stories on this channel and this one really broke my heart These pour children. I really do feel for Katherine, I was bullied as well so I know how bad it hurts. I just want to give her a hug and tell her how wonderful of a person she and that she is worth something. She seems to be so happy in her new home and I think it's absolutly amazing she flourishing. I believe there should be so much more help for the people who are suffering from any kind of issue. A person's life is worth something and they need to be allowed to grow and learn l, no matter what they suffer from. No one should be brushed off to the side to rot. Great story! Keep up the great work.
April Chiginsky thanks
@@katherinelaw6408 Hi Dear Katherine - do you still live in that apartment you showed us in this video ?? It is so totally clean - you are a wonderful housewife 🌷😉 !! You are a very nice good hearted person indeed !! Let me send you a hug. - and a lot of love - from a German grandmother !!! 💚
Thanks April. That’s really lovely of you. My name is Jed now. I love hugs. I didn’t get hugs growing up
@@dorisdaumann5914 thanks 😊 I appreciate your love. From Katherine Law
So glad this child didn't fall by the wayside and is lovingly cared for
Awww the father with his FASD son on the bike is one of the sweetest things I've ever seen
That glass table kinda freaks me out with his hyper activity. Awesome family!
Katherine is so well spoken and insightful.
All these wonderful families deserve the best.
Love and hugs to them!
💖💖
Thank-you. My name is now Jed. I love hugs.
Catherine looks so happy to see her mom, so sweet!!
Thanks Isabel from Katherine Law
Apgar scoring is done at 1 minute and 5minutes of age and is not indicative of FAS. Some of us adopted newborns without prenatal care and only the reporting of mom only to find at age 7 ALL of the behaviors but in the terrible state of TX they don't believe in helping families or in FAS so the families are destroyed and kids wind up homeless, self harming,depressed. So glad there is one enlightened country. Sadly, I don't live there.
How could FAS be so little known 30 years ago? People have been drinking alcohol for hundreds of years. How could they not have made the connection? You'd think the fact that fetal alcohol exposure causes brain damage would have been well known for hundreds of years by now. Back in the middle ages a lot of people used to drink ale all the time because the water was bad. There had to have been a lot of disabled kids born back then because of it.
Thanks for your comment Melissa. There sure has been a lot of progress in the last few years in better understanding this condition, however a lot of education and awareness yet to raise. Hope you enjoyed the episode!
I suspect that hundreds of years ago when society was mostly farming, fishing or manual labor that illnesses such as this were simply not recognized. I'm 55. I see people labeled autistic today who would have been called retarded and left to sit in a corner when I was in grade school.
I'm not really surprised. The connection between dirt and disease was only made in the 19th century, mass education didn't start until the very end of the 19th century, so no one would have even had the thought of alcohol leading to disability.
I'm not really surprised. The connection between dirt and disease was only made in the 19th century, mass education didn't start until the very end of the 19th century, so no one would have even had the thought of alcohol leading to disability.
Alice Coughlan I just wonder how common FAS was in the middle ages, then, because of how everyone was drinking ale back then. Maybe they just thought a lot of mental disabilities were perfectly normal because so many people probably had them.
Katherine is such a sweetheart.
Thanks. I am Jed now
His sisters are so incredibly patient and kind.
This video helped my friend diagnose her child. It was all ADHD and the Only diagnosis my friend had been given.
She was against medication and because of the limited diagnosis, she sought no therapy. When I saw this video it was like watching my child’s friend in real life, recorded. She’s an amazing Mom. Her world revolves around him.
Thank you for this video. I believe thousand will have a Eureka moment.
You both are so patient and amazing. God bless your family always
Thanks for watching and your kind words Susan!
I'm very curious how they can medically differenciate fetal alcohol syndrome from ADHD? It makes me wonder how many ADHD diagnosed children actually have fetal alcohol syndrome...with the shame attached I'm sure many mothers wouldn't admit to drinking during pregnancy.
These parents are amazing. Providing a stable loving home for a child with this condition cannot be easy. He's a lucky little lad to have found a home there xx
There's a boy in my town, well not a boy he's like 25 but his birth mom drank very very heavily while pregnant and then left so his grandparents adopted him and he finished high school and even has a job and even though it's noticeable just by looking at him that he has it he is still smart and respectful to everyone and as sad as it is that it happened he still seems happy because loving people adopted him and gave him a great life and the people that adopt kids in general but especially with disabilities are true heroes
My adolescent and teen years were spent in foster homes. Most of the children were there because of substance abuse. Not all foster parents treat their foster children this well. It's understandable to correct them when they do something that could hurt themselves or others. But, my foster parent was very controlling, mentally abusive, emotionally abusive and corrected my foster brother, when he did annoying things. His room was like a prison sell. He was always getting punished for something. He would be punished for those quirky behaviors. It can be a challenge for those living around them, but I know the difference between abusive parenting, verses parents struggling to figure out how to raise their child. It really was an unfortunate experience.
Yes please keep him away from animals please...
Amelia Myers to bad, he will be by animals his whole life, probably instead should watch out for kids with conduct disorder if anything lol
@@Brokennindeathloop620 lol? what's funny?
He's supervised, animal interaction is important for kids especially with disabilities it teaches them about empathy and responsibilities.
Kids with fasd cannot be taught empathy. While you may think they display it once while sitting with a kitty on their lap, stroking it softly, a moment later, the pets turn into hitting it. I've seen this first hand with my nephew. IMHO, there should not be pets in the home but definitely allow supervised exposure to them.
Those cats look traumatized
I have various problems, a neonatal heart condition, severe Depression (for as long as my life/60 years now), constant anxiety and some anxiety attacks, poor focus, learning issues (math, memory, foreign language comprehension)frequently in a nervous energy state, some slight facial ( the small and smooth structure of the upper lips)
anomalies and more issues which I believe are due to FASD. About 10 years ago my Mother finally admitted (after previously denying for decades) that she drank during the pregnancy. My Dad had told me decades ago that she drank frequently (straight whiskey and other hard liquor) during 1960 ( my gestation period of time) and also my sole sibling (in 1963). Prior to the marriage she had obtained a Juris Doctorate (Law) degree and a Masters in Social Work specialized in Medical/Pediatric Social Work, therefore she was not ignorant and uneducated, this she had a serious alcohol dependency. There is not much recognition, research, services, support and understanding of the people on the lower end of the FASD, such as myself. We "fall through the cracks" so to speak! I have to help myself.
Many people who abuse alcohol have been abused/molested as kids.
sORRY MAN
Big thanks to these families for sharing their stories!!
Amazing parents! Thank god for people like them.
It sure makes a difference to have supportive parents! Thanks for watching BethanyDee!
You know if you had a child with something like Muscular dystrophy or MS, people might look and stare, but they will say oh poor child or if they are adults you get the same reaction. When there is a brain disease then people will look and say things like stupid brat can't you control him/her. Adults will be called creepy. I am wheelchair bound with some walking and people will open doors and ask do you need any help (except motorized wheelchair from the store, but that a long story.) Someone my age would be call the law on if mentally ill. Mental diseases is one of the biggest taboos that people still are afraid of. It's really no different except you can't see disability. It is sad that these kids who were innocent pay for the serious consequences for the action of these mothers be alcohol or drugs. My two sisters were adopted from a mother who drank. she had nine kids and their grandmother said she just couldn't take anymore and now when I look back I can see some of the things were from brain damage especially the middle sister. (my mom thought she couldn't have a child because of two miscarriages so right after they got them my mother got pregnant with me so I was the baby). she couldn't learn. When the two grew up they both did drugs and the middle one lost all of her kids and the older sister husband divorced and he got custody. I see that now and both are dead as well. The middle at 36 drank herself to death and the older at 50 drugs killed her. Now I am having problems with depression and I wouldn't even tell my doctor that I almost tried suicide and I thought about things I shouldn't bad things. You won't tell a stranger that but I tell people it's my RA that keeps me in the wheelchair and they are for the most part sympathetic. yes I do know not all people are sympathetic to people in wheelchairs, but most are.
I'm so sorry.
as much as they trust their child, I think it is very irresponsible for them to let him play with the cats like that. I'm not joking and I'm not being mean either. you cannot grab animals like that and push them around.
Thanks for watching Emma!Hope you enjoyed our channel!
Especially kittens. It's so wrong.
He has a lot of energy he should be in sports. Tennis, horseback riding, may calm and finding ways to calm him and exhaust his energy and keep his mind busy. Hes adorable.
God bless this family for having so much patience. I can't even imagine how difficult a child like this would be. I know that I wouldn't be able to do it.
These guys are legends
This is not true of all people with FASD. Everyone is affected differently, depending on when the alcohol affected brain development, some people don't understand consequences, or be hyperactive, have learning disabilities, have memory problem, poor emotional regulation and the list goes on. It is a spectrum disorder some are profoundly affected and some a mildly affect. I have FASD, I have very poor short term memory and am a verbal Lerner, it took me 6 years to get my college diploma,but now I am working with kids like the little guy in the video. People need to remember that we don't have these issues because we are bad, lazy, don't care, or do it to make your life difficult, we have brain damage...., no different than being in a car accident and getting brain damage. So please think before putting rude comments here.
Different people have had different paths in life and I am sure many people understand and recognize that. Only ignorant people judge and label people they dont know. You have more support and understanding than you think. Please feel bad about the opinions of bad people.
A q
I think all people with FAS who wanted to be born normal should make drinking while pregnant a a jail punishment. It would stop further damage to the baby brain and it would punish them not us.
God Bless these parents. Boy, did he hit it big in the parent "lottery"!
I love this channel, thank you to everyone involved ❤️🙇🏻♂️