My Diabetes Diagnosis Story
Вставка
- Опубліковано 24 лип 2024
- I was diagnosed with type 1 diabetes in 1997 and this is my diagnosis story…
0:00 Introduction
1:01 Before my diagnosis - diabetes symptoms
3:22 My diabetes diagnosis
5:30 The initial diabetes education
8:20 Living my life with diabetes
11:09 The importance of initial diabetes education
SUBSCRIBE to the Diabetes Strong UA-cam Channel HERE ► goo.gl/VSNTQI
Check out more Diabetes Tips & Tricks HERE ► rb.gy/srbjlp
FOLLOW DIABETES STRONG ON:
Website: diabetesstrong.com/
Facebook: / diabetesstrong
Pinterest: / diabetesstrong
Instagram: / diabetesstrong_ig
DISCLAIMER: I’m not a medical professional, never stop your current treatment without consulting with your doctor
I was diagnosed over 40 years ago and although I was told by the endocrinology team at the time all I would not be able to do like having kids, travelling etc it did not stop me … I switched hospital, found a wonderful endocrinologist and he knew I had to spread my wings … so I was able to have kids even if it was a roller coaster ride since my 1st born did not make it but I did not give up and had 2 more kids. I have lived in different parts of the world, did amazing discoveries along the way being a foodie … nothing has stopped me … not even breast cancer 3 years ago … one thing I’ll say is that pretty early on I knew managing my diabetes was on me and this even became my career as a diabetes care specialist for many years! One thing we all have in common is our will to go above and beyond the diagnosis … diabetes does not define me … it is part of me, part of my story!!! Thank you so much for sharing yours with us! Bless you 🙏
Thank you so much for sharing! Your story sounds like a great example of not letting your diabetes stand in your way. And I think you’re right, we probably have to be a little strong-willed, and that might come with the territory of living with diabetes
I was diagnosed initially with Type 2 and I think it's because I was 62 at the time of my diagnosis. I did persistently tell my PCP that my father had been T1D as well as a cousin (both of them deceased). I finally went to an Endocrinologist who DID diagnose me as Type 1, but refused to let me see a CDE or a nutritionist. He put me on an Omnipod insulin pump after two months with 2 hours of instruction instead. My second Endocrinologist did allow CDE and nutrition, but based most of my care on Type 2 style insulin doses and approaches, giving me huge amounts of insulin and ordering a ramp up in exercise. No surprise that by this point I was experiencing 6-8 lows a day and feeling scared and exhausted! Plus -somewhere along the line I became severely allergic to the acrylic adhesives used in insulin pumps and cgm patches.
I called Joslin Clinic in Boston 2 years into my disease to ask if I could be a patient there and they agreed. On my first visit to the adult clinic at Joslin my new doctor lowered my insulin doses by 60% for both basal and bolus. The lows did stop but I am now 7+ years into my diagnosis and I have never had excellent blood sugars although I am diligent, active, eat a clean diet, and understand my protocols for my disease. I do have a lot of excellent medical care at Joslin including CDE, nutrition, both an endocrinologist and an NP, an exercise physiologist, (I practice weight training as part of my exercise routine), a nephrologist, and two eye surgeons in the eye clinic there. Was this a bad head-start with a poor showing in the first quarter of the race? I do the best that I can and refuse to give up on the trying. Forgiveness when this disease is not currently controllable are also part of the treatment for T1D!
Thank you so much for sharing. I read stories like yours and I’m so happy you didn’t give up or settle for those first two (!) endos. Unfortunately, we still have to be our own advocates, and knowing when to push back can be so challenging. It sounds like you’re on a good path, and yes, we can’t control everything, especially when it comes to diabetes ❤️
I was diagnosed exactly three months ago when I came across your video. I was diagnosed in a hospital after my heart gave out from exhaustion and dehydration and they contributed it to my type 1 diabetes which had been going on for a while. I was in a hospital where a nurse strike was going on and the hospital was in full panic mode, to the point where only one traveling nurse was taking care of the whole floor of patients. At this point it’s day 3 and only nurses had helped me with my insulin injections. No one had come by to give me any sort of education or even pointers on how to manage my diabetes. Suddenly I was told that I needed to be discharged (because I wasn’t critical anymore) with a prescription for insulin pens with a vague sliding scale. My sister picked them up and showed them to me as I was leaving and I was completely overwhelmed. Why are there different colored pens with different names on them? Do I attach the needle to them? What’s the green cap thing?
I sat there looking at my insulin and had no clue on what to do. I was given insulin injections through syringes at the hospital so it was like…what are all these other things? I refused to leave until someone came by to give me enough knowledge to at least manage until I could see an endocrinologist. I was given maybe a twenty minute lesson on insulin, thankfully they stayed long enough to teach me how to use the pens, and then I was on my way home. I wasn’t even prescribed a glucometer at this point. It’s 9pm and I had to run to Walgreens to get one to just get through the night. I couldn’t even function in the right mind space at the time. Trying to not have a mental breakdown and not to worry my family even though I had no idea what my future would be like. It was a type of uncontrollable fear that crippled me to the core. I turned 28 two days after I was discharged and was scared to eat my own birthday cake. It was so ridiculous in which two weeks later I see my endocrinologist and she notices my insulin with an ice pack and asked me why it was like that, I said, well aren’t you supposed to keep your insulin in the fridge at all times? And then she told me, insulin pens need to be out of refrigeration after opened. Only unopened ones stay in the fridge. And I just froze in her office and I was stunned because NO ONE TOLD ME THAT. It was so stressful when I thought, well I need to keep my insulin cold at all times? How will that affect my life? What if I’m out for a long period of time and the ice pack melts? Is my job going to fire me if i ask to store my insulin in their fridge? So much of this could’ve been avoided, I think. But at the same time, I didn’t think I could learn as much as I did and I do not have any more time on wasted moments. The more I learn, the more I can prepare for it and then, there’s less fear. I’ve learned that you just have to go through the process in order to learn, like how your stress or your period can greatly affect your numbers and that sometimes a walk can help you out immensely.
Thank you for sharing your story! Your videos have become a great help for me these past few months, and you have helped me make my decision in getting the Dexcom g6! I am on day 3 now and I am really grateful for your tips! You don’t have to do these videos but you do them anyway, to help out our community and I wish you the best of everything, because you truly deserve it. Love from a 28 year old from SF, who can’t thank you enough for your love to the diabetic community, which I am no longer ashamed to be part of. ❤️❤️❤️
Oh my gosh!! I'm so sorry you had to go through all of that. And I hate that this is not the first story I've heard of people just being send home with a prescription and NO training what so ever. I'm glad you refused to leave before they at least told you how to use the pens, but I completely understand the fear and anxiety.
And I'm so glad my videos are helpful. Your comment made me tear up, thank you ❤️
My son who is 8 was just diagnosed on July 5th and I have been listening to podcasts and watching as many UA-cam videos regarding diabetes as I can to learn as much as I can. Thank you for sharing your story. I love your videos and they are so educational. Thank you for making them as they are a great help.
Thank you for that note. I’m glad it’s helpful. A new diagnosis can be so very overwhelming and scary so I’m glad you’re finding my, and others, information helpful
It’s great that you’ve been able to live an interesting and full life. I have high regard for how you dealt with it then and how your living with it now.
Thank you so much!
yes it's very important how you are educated as a newly diagnosed diabetic, and as you said you can continue to learn and improve your management as you learn more. I was diagnosed in 1986, I had a good basic education as an in patient for about a week or so, I heard many different opinions but I knew that I could do anything I wanted, just needed a bit more preparation/planning. one thing I have learnt recently is the importance of peer support and taking to other people with diabetes, it's great!
Yes! I agree peer support can be a game-changer. It wasn’t something I realized until about 8 years ago…
No one in my family is diabetic. A new co-worker is type 1 like I am. Its really great to have someone who understands!
I was diagnosed in 1999 I was 13 years old my storie is similar to yours I hade great help on getting me understand how to manage blood sugars and insulin. I've had it for 23 years . Just recently I started to use the dexcom g6 sensor. 🙂
Thank you for sharing
Great story. I must admit that the best part, for me, is learning that you are a fellow Dane. Well, I’m only 1/8 Dane, my great grandmother was born in Saeby.
Glad you have been winning the fight between you and diabetes.
🙂 🇩🇰
My daughter was diagnosed December 2021 at 9 and a half years old. The doctor was super sweet saw how shocked we were and told us almost the same you were told. You can have a completly normal life, do everything you like and eat everything you want. My daughter has ballet lessons 3 times a week, ballroom dance lessons, acrodance and Judo. Other than diabetes she is a healthy normal happy 11 year old. We still have the same medical team helping us with appointments every 2 months and they are extremely suportive and very sweet treating her.
Thank you for sharing. Sounds like your daughter is doing great
I was diagnosed in the ER with DKA ( as an adult type 1 diabetic)- after spending the day getting rehydrated I was sent home with insulin and no directions. The next morning I went to Kaiser’s diabetes in service education( I had to take an Uber because my vision had deteriorated to the point that I couldn’t see 2 feet in front of me)-a lot of the information was spotty and nutritionist was opinionated and rigid - so I’ve advocated for myself. Six years later- I now have a Dexcom and pens for Humalog and Lantus- I demanded both - I don’t have and endocrinologist but see a GP as Kaiser thinks this is good enough. I am doing fairly well but keep in mind I am a pharmacist and seriously can’t imagine what it would have been like for someone else. I’m angry when I see how little is done for type 1s and am thankful type 2’s are increasing as it means more attention is being given to better insulin therapy for all of us- more patients who use insulin ( even eventually) means more profit for big pharma.
I get so mad about the lack of education as well. It’s completely unacceptable! I’m glad you’re doing good. Thank you for sharing
Thank you for the informative video mrs diabetes strong you are strong 💪🏻
I was 23 at diagnosis. without further ado let’s start with the story which is not really fun (Week1) uni starts and studying and the pressure that comes with it, life is normal. (Week2) Likewise going to uni nothing much changed, but something happened which is having an argument and physical fight with one of my family members resulted in depression plus past issues alongside of the fight (Week3,4) my grades started to decline as well as my mental health. (Week5,6) I started feeling symptoms of diabetes like extreme fatigue, excessive thirst, drinking, eating, and urinating which progressed rapidly. Last days before diagnoses week 6 I started to lose consciousness even while driving to uni. I had two exams and wasn't able to concentrate even though I was pushing myself to my extreme . At the end of week 6 Wednesday the day of my diagnosis with T1D I was at uni and my symptoms were so hard to tolerate that I was urinating every 30 min with excessive thirst that my tongue was like a piece of wood so I decided to check myself in the uni's medical clinic where I passed out after receiving the news of my diagnosis where my blood sugar was above 549 mg/dL then I was took to the ER.
My sincere love
Saudi Arabia
Ali
Oh wow, that sounds traumatic. I’m so glad you checked yourself into the hospital. I hope you received good care
@@DiabetesStrong Actually I received a good care cause it happened to be that I live nearby the best equipped diabetes hospital, however in terms of the healthcare team efficiency it was decently fair not impressive as the equipment and supplies they got!
@Multi Logs I talk about all of that in the video 🙂
While I was diagnosed much later in life (40’s) looking back I honestly do think i was pre-diabetic even as far back as my teens.
But the trigger for me was a very stressful 7 years in my life that resulted in me going to my PCP with my suspicion of full blown high blood sugars and her confirming my self diagnosis and putting me on metformin. 3 dats later I was in the ER being admitted for DKA. This was 2011. Seems like I got a bit lucky because I did have a couple visits from the diabetes educator who showed me how to inject my pens, what they were for and was given a basic meal plan to follow until I could take the diabetes classes. This was a 7 week course that my husband accompanied me to. I was encouraged to sign in to ADA and I did but I was also encouraged to join forums.
I will say say that was the biggest help ever.
I can see that forums are falling out of favor but I would still say they were the biggest help. Low carb was as accepted back then but the forums I joined encouraged it. I learned all about my insulins and when I was switched back to metformin it was the forum discussions that alerted me that maybe I had a sensitivity to metformin. If not fir that forum I do think I might’ve had a bad outcome eventually. I developed severe insomnia and I either would’ve eventually been admitted to a psych hospital or worse.
Overall I was Atleast given some direction and I’m grateful I stumbled into the rest.
I am very humbled by some f the replies here and my hearts goes out to everyone. But I would also say if you have questions try to find a diabetes forum, join and ask away. Good luck everyone ☮️
In 1983, I was told I had gestational diabetes. I knew nothing about this and was not offered any help/understanding. Gestational surfaced again in 1988, hospitalized for control and to avoid pre-term delivery. Again told it would "go away." Within a few years, I was being treated for type 2 with oral medications. I never experienced any help with oral meds but was not offered help. Fast forward to 3rd pregnancy and diagnosis in 1997. More oral meds to follow. 2020 happened and I was hospitalized with severe/acute pancreatitis and a "completely destroyed pancreas" were words I heard from the endo on call. Came out fully insulin dependent and off all oral meds. In the last many years I have practiced good nutrition as a means of tightening up my daily readings and A1c. Knowing the diabetes I lived with for all those years was different, I pushed for proper diagnosis and my medical record changed from type 2 to type 1 lada. My 2 siblings all have the same diagnosis. My antibodies do not support this diagnosis, C Peptide is on the very low end showing sone insulin production. Not sure this is conclusive in my diagnosis of type 1 lada but my history and symptoms support that diagnosis. Would love to know your thoughts. Currently have a CGM and working with an endo nurse practioner and learning to better manage diabetes, bring some help and healing to my pancreas, and not allow living with diabetes to limit me.
Thank you for sharing. When you say your antibody results don't support LADA, I guess that means no antibodies? There are a lot of different types of diabetes (it seems like more subtypes are constantly discovered) so maybe yours doesn't "fit" the T1D/T2D/T1.5D boxes. But regardless, with decreasing insulin production, you'll need insulin and probably more over time.
So I was diagnosed with type 2 in September of 2022. I had a major cancer scare and was majorly depressed and was contemplating su*cide… but as I did my research on diabetes I realized there was hope to control it and I told a good friend at work “I refuse to be another statistic” I’m now much healthier and much happier then I was then.
I’m so glad you worked through that. We can do this
Just found out my 1 year old daughter has type 1 diabetes. This is life changing for me and I am having a difficult time coping especially since her BG is still not stabilized after 3 weeks 😭
I'm sorry to hear that. It's definitely a diagnosis that can be tough on the whole family. I the video that is scheduled for today (June 12) will be the perfect video for you. That video is all about raising a child with type 1 and how to deal with some of all the anxiety as a parent
Your very lucky. All my Dr. Said too me was I needed to start watching what I ate. I knew then I was on my own.
😕 that’s not okay
I agree that when you're first told you are in such shock you dont remember anything else. My diabetes educator told me "dont live your life around your diabetes, your diabetes fits in with your lifestyle" like you I needed to hear that as at the time I was living life controlled by diabetes and my insulin injections. I'm more educated now and still learning but managing it and life much better. I'm 1 year into my diagnosis at age 55
Love to hear that. Thank you for sharing
I was diagnosed in 1965 at the age of 10. Of course, things were extremely different than they are today, in terms of resources and management. Then, my daily routine consisted of 1 morning injection of long-acting insulin (short-acting had not yet been developed) and urine testing (hoping for blue and not red!). My parents supported me, however they, nor myself, were truly aware of complications or management. We just did not have the proper education or understanding. I'm sure that my blood sugars were consistently high, until a light bulb finally went on, sometime in my mid-30's, and I finally became more serious about proper management. Once I began proper (or I should probably say better) management, I began to experience low's, and have had several terrifying experiences (crashing cars, etc.). My management continued to evolve, and today I do pretty well (A1C's in the 5.9 - 6.0 range typically). I understand the importance of exercise and proper eating, and fortunately I have avoided major complications. Sometimes I do feel overwhelmed by diabetes, and of being "on the clock" 24/7. But having a CGM and supportive wife has made my life much easier.
Thank you for sharing your story
I saw my rheumy in late Nov. 2019. She ordered a battery of tests and my glucose was 300. I have been "pre-" for 20 years but never this high so I made an appointment with my primary doctor, first available was Jan. 2, 2020, so I started finger sticks, 3 times a day. When I saw my doctor, he was glad I had all of this data. He asked questions and joked that I was presenting more like type 1 than 2 (assumed I was 2). He did tests and called me at home on Sat. evening, Jan. 4 and confirmed I was type 1/1.5/LADA. So I was diagnosed 59! He sent me to the endo who is very good and I got my Dexcom that March and have been on it ever since. I'm under good control, Novolog before meals and Lantus at night, 95% of time in range, average glucose of 127 currently, A1c last was 5.7, and have started Ozempic which has helped decrease insulin needs and helped me drop weight (even though they say it isn't for type 1). The worst time for me is the 2 hour warm-up for Dexcom, otherwise I'm used to my condition and hope to stay under control. I don't have a sweet tooth so there's no temptation there, unlike friends I know with diabetes.
Diabetes runs on both sides of my family. I had 2 cousins on my father's side with type 1, one was 6 months younger than me, diagnosed in childhood back in the 60s, had a kidney/pancreas transplant around 2000, she lost them both not taking care of herself, and died Jan. 2009 in a diabetic coma. The other cousin I didn't know had diabetes until he died, went on a horse ride and the horse came back alone, they found him the next day. He had an insulin pump and I think was on a CGM. He was 49. I have 1 aunt I think is type 2 and my grandmother was type 2. On my mother's side I lost my favorite uncle in 2020 who was type 2 and didn't take care of it. He was 72. His mother was also type 2 as was her sister.
What a story, thank you for sharing. Glad you got the right diagnosis and are doing so well
I wish that my introduction to diabetes had been as good in the 1970s. if I had known how much time and effort it was going to take during my lifetime when I was diagnosed I'm not sure that I would have had the strength to go on. My succeeding has more to do with me being independent and stubborn than being prepared.
My total knowledge of diabetes was that my father was a type 1 diabetic, a poorly controlled one. As far as I knew he didn't take insulin. If he did it was well concealed. I knew that I had diabetes before I had it confirmed by a doctor. They admitted me to the hospital for 3 days, taught me practically nothing except what I couldn't do, and kicked me out. I knew how to stick a syringe in an orange or my leg and how to measure a fixed dose of NPH that they gave me, once a day. No one ever called to check on me. The only time I interacted with that doctor all he would do is criticize me and tell me that I wasn't working hard enough. I never felt like I could call that doctor for help.
I was lucky in that my honeymoon lasted about a year and I was able to figure out what I had to do on my own through trial and a lot of errors. Now that I've used a CGM and insulin pump I probably know more about what can go wrong and what not to do with diabetes technology than most doctors. And I continue to discover and solve new problems that my doctors can't respond to fast enough to be useful. I ask them for practical advice and unless I ask specific questions all I get is rote training in things that I already knew how to do.
Yes, you can live with type 1 diabetes, but to suggest that it doesn't interfere with your ability to live as you choose is a disservice. For it to not impede doing whatever you want to do, you have to become an expert at your first job- staying alive and healthy by using drugs, equipment and knowledge.
The thing is, after you've been doing extra work for decades, you no longer remember or notice how much effort it was and is- until you can't do it alone.
It’s definitely a condition that requires us to be self-driven (and/or stubborn) for us to not live in a constant battle with it. I’m really sorry to hear how tough your diagnosis was and how little support you received.
One thing I’m convinced of is 6 weeks before my diagnosis (No symptoms and totally flukey!) I had a gastro illness for a week which took a really odd path so I reckon it was viral and I think this is what kicked off the autoimmune attack on my poor old pancreas. Do you remember anything similar before your diagnosis? Does anyone else?
I wasn't sick or anything, but I believe it's generally thought that illness or trauma can "tricker" type 1 diabetes
@@DiabetesStrong My mum has MS diagnosed at age 38 when I was 18 (32 yrs ago) so this is where I think my inherited autoimmune predisposition gene came from.
My diagnosis also came after stomach issues and I’m never somebody who has stomach issues and then it complicated everything with diarrhea and then low sodium and other things before they could get the diagnosis right.
@@lucieni my friend's MS trigger was huge personal stress and for my thyroid autoimmune problem extreme work stress. Also I had a lot of health issues at that time, got sick a lot so it might have been that as well. It has been shown that certain viruses can trigger these kinds of responses 🙁
My epilepsy diagnosis felt like a death sentence in 2016
You story is quit the same mine except that i was 23 years old , and i was in sudan so not professional doctors and bad hospital so i got wrong diagnoses i am type 2 diabetes and my first doctors said basis on my age iam type 1 so i start taking mixtures insulin making me having low blood sugar all the time , some times near to death .
Iwas shocked at first but i got along with it , i had long time to learn what should i do and what should i eat cuz no body her in Sudan knows what to do , i learn by my self by the internet ,so this is who i am .😊
Your story inspired me alot i am happy to hear all that Succeed in your life 💕
I hope i could travel to Korea my dream country and Mary my crush 😂😂
Thank you for sharing. I hope you get to go to Korea!!! And thank you
@Multi Logs
I just have about 2 years since i diagnosed , 4 weeks ago my weigh was 48 , my hight is 170 centmeter .
Now iam using mixtured insline and metformin at the same time
I turned 34 in April. Over 20 years ago I struggled with "pre-diabetes." I was a teenager and diabetes runs in my family. "This is your doctor's office calling. Your results came back. You are now a type two diabetic." I fell into depression. Lost and gained 30+ lbs within 2 months. My endocrine would say: "Why do you even come here? Your A1C is always through the roof and you weigh more each time!" Most have stated to me that this is no way for an endocrine to talk to a patient. But the truth is those harsh words knocked some common sense into my brain LOL. It was like a light bulb went off in my mind. My A1c was at 12.6. I was hitting the 300-400 range daily for blood sugars. Somedays even higher than that! Now my numbers range from 80-160 on a daily basis. Since January I have lost 35+ lbs (15+ KG) by working out for two hours a day 6 days a week. I have cut out bread, rice, and sugar from my diet, I went to my endocrine recently and my A1C went from 12.6 to 7.5!!
She said in all her years as an endocrinologist, she has never seen a patient with such drastic improvement so fast. She took me off 100% of my medications. I left and cried my eyes out in my car. You are never too old to fix your life! What you may believe is not possible IS possible with the right mindset and adjustments. Don't give up. Diabetes may have its ups and downs but should never define you as a person it is just a part of us. Although I have a long way to go on my journey the doctor has me on a strict diet plan that we are both confident will work to get my numbers below the 6 mark line by my next follow-up visit in 2 months.
Man that's great you are down to a 7.5 A1c, but kinda surprised she took you off all meds with a 7.5. Do you plan to keep it there or going even lower?
I was diagnosed November 12, 2023. My glucose went from 80 - 120 to over 800! Taken to hospital by ambulance. I did injections for 6 weeks and am now on a pump.
I have cancer and take Keytruda, an immunotherapy drug. It told my body to kill my pancreas and thyroid.
I was told to take waaay too much insulin by the hospital and had continuous lows. Normally I research things to the point of ridiculous- for some reason I didn't research this whole pump thing. Wish I had!! I have a Minimed 780g and a Guardian 4 sensor. I've had 15 (yes, 15) sensor failures in 5 months! The pump info told my diabetes "educator" that I change my reservoir and infusion set every 9 days! I do every 7 because I have the extended wear. And I follow the directions step by step.
My "educator" is a joke - more concerned that I was in range 82% of the time rather than my glucose is in the 200's and 300's. I absolutely despise this cgm. Seriously considering going back to injections.
Oh, and I'm scheduled to see an endocrinologist in October!! I live in Maine and apparently endocrinologists are few and far between.
My A1c is 6.3!
On a happier note- the Keytruda is killing the cancer!!😊
Glad you're winning the cancer battle.
An insulin pen might be a better option for you. A pump isn't the best answer for everyone (I'm an example of that). And maybe it's even as simple as taking a "pump break", it doesn't have to be a complete breakup. If you go back to pens I highly recommend the InPen (smart pen). It's brilliant
@@DiabetesStrong Yes! I started on an InPen - and Lantus. Loved the InPen!!
I am young and have every possible symptom for type 1 diabetes. I am going to the doctor tomorrow and have a huge fear of needles. Ahh I am really scared 😳
Same:nph r 1976 alone now dexcom pen lantus
I was misdiagnosed as a T2d. Several years later after losing 40 lbs, I was down to 100 lbs. I knew something was really wrong. At 67 in 2020 I told my doctor I wanted an antibody and a C peptide test done to find out if I was actually a T1D. Believe me I had to DEMAND these tests be done. Surprise, surprise I flunked both tests. The doctor was shocked because I was older and always had an A1c below 7. I just didn't present with typical T1D symptoms. Because of COVID I got next to no instruction. I basically had to figure it out on my own. I have had little interaction with my endo or the other guy. I don't even know what the other guy is supposed to do for me. I think he is a pharmacist. I watched UA-cam videos and read books. I still don't exactly know what I'm doing but I seem to be doing ok. A1c is 6.2. I rarely have highs over 160 and have only had a few lows in the range of mid fifties. Lowes are usually handled with a few skittles or a roll of Smarties thanks to my Libre 2.
The need to DEMAND the proper blood work infuriates me! I’m glad you did, and that you’re getting the right care. Although, it does sound like your healthcare team could do with an upgrade…
I wonder if you heared about MODY diabetes.?
Yes, it’s somewhat rare so not something that’s talked about that often.
This is over coverage of MODY on the Diabetes Strong website diabetesstrong.com/mody-diabetes/
Not sure you are still checking out comments…I was diagnosed 15 yr ago at 50 yr old. I barely make any insulin naturally. I am convinced that this started many many years before but wasn’t checked. Adult onset diabetes wasn’t really a public reality even then. They treated me as type two, unsuccessfully for a couple years before finally changing their diagnosis and conducting more tests. Unquenshable thirst and so so tired. A nurse showed me how to inject rapid and long acting both of which I still take. My endocrinologist seems pretty bored when I see him and I wonder why I have to keep going honestly. I do long distance hikes, all over the globe, and swim and I’ve not let it bother me even in other countries. I do make sure wherever I stay has a fridge if I’m going to be there a few days and I use Frio and ice pack containers during hikes. I use CGM and would be lost without its low glucose warnings as the older I get the faster it happens. I carry sugar packets during hikes and lots of water. Other than showing me how to inject I sort of felt abandoned due to lack of a community. No one to really talk to about it in day to day life. UA-cam videos has really helped me out in that regard.
Thank you for sharing. It can be challenging dealing with diabetes on your own. Have you ever checked out the adult diabetes camps (like Connected in Motions “Slipstreams”)? I’ve connected with some great people that way.
I was diagnosed with T1D when I was about 20 years old. I had a bowl of ice cream one night (which was not uncommon for me) and started having very strange symptoms. My vision was blurry and I felt disoriented. I ended up going to the ER and was told my blood sugar was at 825 and that if I hadn't come in that night I might have ended up dead. I stayed in the hospital for four days, during which time I had to quickly overcome my fear of needles in order to give myself insulin! Sometimes I'll look back at my lab work from that night because I still can't believe my glucose was actually that high.
Thank you for sharing. I'm so glad you went to the ER!
My story is I live in the US in Colorado and I have had leg pain for some time and one day my chest was hurting then went to the side of me so I went to the ER and they told me that my gallbladder was bad and had to be removed so they sent me to the hospital and it got removed then they tested my blood sugars and said you are diabetic this is all over Easter weekend 2022 I'm a 42 male so they started giving me insulin in the hospital then my doctor gave me long lasting insulin and pills but it was not working so they gave me fast acting insulin they ordered me a dexcom G6 but I have not received it yet as of right now I have not seen a diabetes specialist I will see one on June 8th and they will tell me what type I am the hospital told me I'm type 2 but I don't know about that this is all new to me I started eating way less carbs and sugars I think I also have diabetic nerve pain in my legs and my hands I'm also trying to get a inpen I'm waiting for them to get back to me on price I do have a blood glucose meter but got a new one that I like but just found out that someone tested a few meters and mine failed the test so I got a new one coming but I hate finger pricking so that is my journey so far
If they haven't yet determined the diagnosis make sure they do an antibody test (to see if it's autoimmune or not) as well as a c-peptide test (testing your insulin production). Those two tests can help them come up with the most appropriate management protocol for you
Did you get the COVID-19 vaccination?
I did, as well as the booster. Didn't have any issues with it
My dietician told me that I am never ever in my whole life allowed to have sugar again.
Interesting. Hopefully that was a long time ago?
@@DiabetesStrong actually just 1,5 month ago ;-) I have just been diagnosed a month ago at 43 with LADA. Only 3 months ago I found out I have diabetes. So still trying to find my way in diabetes land 😝. Your videos are helpful and interesting. I am trying to exercise a little after my food (except at night as I am scared of getting a low during the night).
By the way, just a question. I try to exercise like 10 minutes after food to prevent a rise in my sugar. Is that a good thing to do or not? Or better exercise once a day?
@@sylviakrose-knol2130 that’s a great idea. Activity, such as walking, after meals, have the potential to lower blood sugars
@@DiabetesStrong thanks so much for your quick reply!
Your doctor sent you home with uncontrolled blood sugar? What? He should have sent you to the hospital for stabilization.
Mine did too. It was 540.
I’ve wondered why he made that call.
From some of the other comments, it looks like that’s not unusual
I guess it might not be uncommon if you’re not in DKA
@@ahimsavivrelibre8205 that does make sense. And probably something that needs to be talked more about so they know what signs to look for. Just glad you’re ok
But, how pertinent is your story as a Type I, to a day in the life of a Type 2, please?
I don't know how I could show a day in the life of someone with type 2. But hopefully, we'll see more Type 2 focused channels here on UA-cam in the future