how i almost died - type 1 diabetes diagnosis
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- Опубліковано 11 жов 2019
- here is the story of how i found out i have type 1 diabetes at age 19! time stamps below ⬇️
1:01 phase 1: the first signs
3:37 phase 2: everything starts to get worse!
7:44 phase 3: i go to the ER with DKA
20:40 phase 4: post-diagnosis
week in the life vlog: • this is what undiagnos...
3 month update: • 3 month diabetes updat...
note: i am not a medical professional! this is just my experience of how i found out i have diabetes. if you have any questions / concerns, please contact your doctor or a medical professional. stay healthy + safe y'all!
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instagram @sarahpriscilla_ and @sarahs_veganplate - Розваги
this literally explains my life. exactly what happened to me right before i was diagnosed.
Marin Rose what’s your diagnosis story?
From which country you are?
I recently got diagnosed with diabetes
This video is so good and I’m glad you are doing better now!! I was diagnosed with T1D 2 and a half years ago at the age of 10 and I love hearing about other people’s stories about how they were diagnosed and stuff. I know that the first couple months was hard but don’t worry about it and you are brave and really strong!!❤️❤️
aww thank you! you’re really strong as well :)
I feel you on the part where you had to take tons of breaks on your five minute walk home. I remember having to sit down on a bench on the 50m walk from my doctors office to the pharmacy. Thank you for sharing your story :)
Ik your probably not active anymore but I'm currently waiting for a blood test results for diabetes after having all the symptoms and shaking like crazy, so binge watching all your videos to learn more about t1d. I totally love your vibe and you sound so amazing and cool 💪
How did it go? Do you have diabetes?
@@alyssas9354 hello, I don't have diabetes but I am getting further tests for undiagnosed cystic fibrosis 💪😭
sooo are you going to update us or leave us wondering about you
Update? Did u die?
My T1D diagnosis was in 1963, shortly after my 13th birthday. I had classic diabetes symptoms of unquenchable thirst, frequent urination, weight loss and tiredness. Shortly before the diagnosis, I also experienced heartburn and nausea. When admitted to the hospital, I had high urine ketones but did not have ketoacidosis.
Portable glucose meters became available in 1980, so back in the day, people with diabetes never knew what their blood sugars were unless they visited a doctor or hospital. We did urine tests to estimate BG by dropping 5 drops of urine and 10 drops of distilled water into a test tube and then adding a Clinitest reagent tablet. After the mixture boiled, we compared the color of the solution to a chart to estimate the percentage of urine glucose. Blue meant no glucose, several shades of green indicated intermediate percentages and orange indicated a high percentage. I switched from 5 to 7 daily insulin injections to an insulin pump in 1988, and currently use the t:slim X2 pump and Dexcom G6 sensor. I highly recommend both. Glucose sensors are perhaps the greatest technological innovation. Wishing you the best of luck!
wow, that’s insane that you had to do all that just to see your blood sugar levels! i really need to think about that when i complain about testing my blood sugar with my meter every few days hahaha 😂😂🙄 thanks for sharing that. wishing you the best of luck as well!
Thank you for posting your journey
This will raise awareness and help so many !
Thank you ! 💙
I fell into a short coma. I was awake and asleep at the same time, that hospital visit felt like 2 days when it was actually 5
Girl you were so close to a coma. I'm so glad you went, you already sound so much better!
I was diagnosed with t1d a week and a half ago, after I was been admitted ti the hospital with severe symptoms and ketoacidosis. I feel you
It was so scary 😢 i have Diabetes since I was 10 its been 11 years and I hope you are doing okay ❤ you are not alone ❤️ 😢
I wish you all the best, my son who is 17 experienced the same a monrh ago. He is now processing all the lifetime changes in his life.
thank you, and i wish him the best as well! it’s definitely tough to adjust to
A lot of strength to you sister. You are awesome. just in few weeks you are so confident. I sill struggle after one year. Thank you for sharing your story.
thank you :) you’re strong as well
Hi Sheetal are you from Mumbai, even I got recently diagnosed.
Welp, when I was 11 every time I stood up I vomited, next day I was rushed to A&E for children I went into reassuitation because I was going into a coma due to DKA my Vains were collapsing and yeh I woke up in intensive care with so many lines on me it freaked me out and I genuinely thought this is how I die, luckily I survived and got moved to a ward (Were I live my targeted glucose level is meant to be 4-7 ..... when I went to hospital it was 72. And it went to 38 by the time I was in the ward. so I’m happy to hear you are ok🌸🌺
oh no! i’m glad to hear you’re okay too :)
My story is a bit long yet I will try to make it short. Starting from (Week1) uni starts and studying and the pressure that comes with it, life is normal. (Week2) Likewise going to uni nothing much changed, yet I had a fight with family and my household was a bit in a lot going on. (Week3,4) my grades started to decline as well as my mental health. (Week5,6) I started developing symptoms of diabetes like extreme fatigue, excessive thirst, drinking, eating, and urinating. Last days before diagnoses week 6 I started to lose consciousness even while driving to uni. I had two exams and wasn't able to concentrate even though I was pushing myself to my limits. At the end of week 6 Wednesday the day of my diagnosis with T1D I was at uni and my symptoms were so hard to tolerate that I was urinating every 30 min with excessive thirst that my tongue was like a piece of wood so I decided to check myself in the uni's medical clinic where I passed out after receiving the news of my diagnosis where my blood sugar was above 549 mg/dL then took me to ER.
Note: I was diagnosed 1 and a half months after my second Pfizer jab also I heard of similar cases, who knows
I know how you feel. I have type 1 too and when I got to the hospital my blood sugar was 735
oh wow! hope you’re doing well now :)
mine was at 900
oh no! i hope you’re doing good now too :)
If you haven’t heard of it yet, there’s a lancing device called the genteel. It’s more on the expensive side but it works wonders. No pain when finger poking. It also allows you to use your palms or stomach or thighs etc. to poke. It’s INCREDIBLE!
I've seen it before and it looks really cool! I might have to try it someday
Did not you experience blurry vision prior diagnosis or after being on insulin therapy?
Thank you!
Before I was diagnosed, I felt nauseous everyday during lunch in kindergarten so I went to the nurses office every single day but they never called my parents to tell them I’ve been feeling sick all year long?? In 1st grade I finally went into DKA. I was unconscious and had a hard time waking up, my grandpa had to carry me home since he didn’t drive back then and my parents were leaving work to pick me up. My DKA experience could’ve been prevented if the school called a year before😐
that’s really awful, i’m sorry that happened. it sucks when things could’ve been caught so much earlier if people paid better attention
glad to see your doing better. just take it one day at a time.
I was diagnosed last year too in april. Like a month after i turned 19.
So its been almost a year on the 20th of this month. I didnt have as crazy of a diagnosis, it was more random. Like my bloodsugar i think it was like over 400 (idk the other way of saying it) but i had extreme thirst and stuff. And i can say like the last few months before i did have weird eating habits. I'd be skipping meals. Or I'd be snacking all day long. I did have a very fast heartbeat i noticed but like I've always gotten out of breath easily so i probably did have that symptoms and just didnt notice it. But i felt like fine really just like SOOOOO THIRSTY like nothing could quench it. It was like that i remember alot weeks after my birthday. I was talkin to my mom bout it again. And she decided just to randomly check my bloodsugar And my mom actually had a bloodsugar meter because she did keto diet and then it was like really hi and she double checked it. And i was completely clueless what that meant. But then she started to say i needed to go to the er. And she called my dr and she said to take me to the er. So like i called my bf (also like my best friend) and told him i was goin to the er. Still clueless on what was goin on. Texted with him on the way. And found out from my parents what like i could have. So i was kinda worried about that tho i still didn't know really what it was. Got to the hospital and that was very uncomfortable for me, for alot of reasons. But they did bloodwork and i had an iv. I was there for awhile. They did say i had diabetes but honestly i dont think they really knew which for some dumb reason they wanted me to take metformin. Which i didnt. I just adjusted my diet and lucky i got into endo dr a few days later. And i was type 1 and they put me on lantus only. I was in the honeymoon period for long time till like probably around hmm...idk end of the year between sep-nov. Idk. I eat generally low carb. I have good days and bad days. I went keto few weeks ago. Was goin good. Now not so much and idky. Im due for like goin to the dr for bloodwork again. But with all this craziness its being put off... so idk. Hope u are doing well! Where are you from? I don't know really any type 1 diabetics personally. Atleast not at this stage or age. So i really enjoyed being able to find someone at a similar stage and age as i. If thats not crazy to say lol
wow, i’m glad you’re doing better now! and a hopefully you’ll be able to see your endo, or at least video chat with them or something
a lot of your story is so similar to mine. i also tried “keto” (i basically just ate really low carb so idk if it really counts), but after a month or so i realized it really wasn’t working for me, and tbh i missed eating carbs 😂😂
and i’m from canada btw!
@@sarahpriscilla_ yea i got video one on the 9th. But bloodwork wont be done till later
And Canada cool. Im in the US.
I been lower carb since i was diagnosed. I just gone more extreme now. Because i felt like my sugar was doin better. But now its like idk anymore tbh. Its hi again now and im just like ughhh... 269 (idk the other way to put that)
I was diagnosed on April 20th last year 2019 too! My blood sugar was at 900 though I was probably expected to die but hey, I made it out alive and I’m glad you did too!:)
Hi there.. i am in the same boat.. thank you for sharing your story.. i started after my cancer treatment, and i adopted t1d after i won the battle of my cancer.. i was tired and losing more weight, and my muscle loss and it was just a shit storm after that.. so yes i have lost 30 lbs in 2 yrs and cannot gain my weight back. im on 2 insulin pens and such..
I am glad you survived all of that! stay up and safe
@@user-pl2sy4qt8d thank yooou
I have a question, I have been getting low blood sugar readings for the past 4 times I’ve been going to the hospital. Been experiencing blurry vision,disoriented, hungry all the time,I’d pee a lot more than usual,fatigue,confused, dizziness, shaky and trembling. If I start to feel the symptoms get worse I eat something really sweet. Really worried
I hope everything is working out fir you.
Do you have a meter to check yourself? If you are on insulin maybe you meds need to be adjusted. Hopefully you’ll get this straightened out. Going low is very scary
I only got diagnosed because of my partner and if she didn't force me getting checked out I wouldn't be watching now. Scary stuff but we live with it
that is really scary... i’m glad you had her!
kussmaul breathing! Honestly if you hadn’t taken yourself to the hospital that night, you probably would have gone to sleep and would not have woke up.
i know, and it’s really scary to think about 😬
my sister got misdiagnosed by a doctor and she went to sleep one night after being super sick and my mom tried to wake her up, my dad carries her to the car and they drive to the hospital, they said she was less than an hour away from not seeing another day
that’s really scary, and really frustrating on the doctor’s part. i hope she’s doing good now!
I’m kinda worried I have diabetes because I’ve been hungry all the time and tired as well. I’ve been thinking I had it for ages but my family don’t wanna find out, I think they’re a bit worried. I’m gonna ask my mum to book a doctors appointment. The most worrying symptom is the tingly feet because I get that all the time.
the only way to find out is to go to a medical professional. i would highly recommend going sooner than later so you can get the treatment you need
How much water do you happen to drink in a day?
now i probably drink 2-4 litres, depending on how much i exercise
I was diagnosed like 2 months ago now
wow! hope things are going well for you :)
This is the exact same thing with me
I hope you are doing well. Your story sounds pretty much like mine.
thank you! i hope you are doing well too
What are you studying? I'm an Electronic Engineer! My son got diagnosed with T1D in October 2015.
i’m in civil engineering!
i hope he’s doing well :)
@@sarahpriscilla_ my son is doing very well, thank you! I wish you lots of success in your studies and in your carreer!
thank you ❤️
This is me, had a a1c it was 37 doctor said everything is okay 🙄
hello am from morocco god bless you 😍
I GOT DIABETES ON SEP 29 TO!
hahahaha twins!!
This brings out a lot of (bad) memories lol
Does diabetes run in your family?
nope!
Welcome to the club. Most people do not have much understanding of diabetes in general, much less Type 1 diabetes. Most people, including healthcare professionals think that autoimmune diabetes only happens to little kids ("juvenile diabetes") and rarely to adults. It also doesn't happen over a couple of weeks in most people, it can takes months, or years -- and because it's kind of weird combination of general symptoms, and there's almost no visible signs, it's hard to know. Too me 6 years to get the right diagnosis. Wow you look really sick in the 'before" video. It costs like $1 and takes 10 seconds to do a fingerstick and a glucometer -- I don't understand why they don't do it for everyone as soon as they come to ER. Good of you to help to educate people, because most of them are sitting around thinking, "I'm healthy. I can't get Type 1 diabetes. Why would I get that? Nobody in my family has diabetes." Wrong -- surprise.... Glad you went to the doctor in time and survived your DKA! Help us engineer a functional cure, please. I'm sure you'll get used to it soon enough and learn to titrate your own insulin much better than any of the doctors can. There's several good ways to treat and eat -- not just one way. I personally cut most carbs and do MDI with Levemir and split basal 3x day -- "avoiding the problem inputs," to make it easier to manage. But other people choose bump-n-nudge with smaller doses of insulin, often using a pump. A Dexcom CGM would be ideal if you can afford it (I can't, but I loved having it).
yeah, it’s definitely crazy how little most people know about diabetes, and how anyone can get it! i’m glad you eventually found a diagnosis and got the right treatment! and thank you for all the advice :)
Ikr whole family knew I was diabetic because it runs in my family but the Er refused to test me because they wanted to fast me then test by the time my appoint came I had already been admitted to Reassusitation and intensive care.
The doctors in Missouri do not know how the hell to do their jobs. I have been having symptoms of
1) frequent urination
2) Extremely tired
3) Constant hunger
4) Constant thirst
😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭
I am now almost 26 years old and I had to do something no one ever wants to do to get diagnosed. I had to call the cops because not one doctor in Missouri knows what the hell they are doing.
😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭
So these symptoms have been lasting for at least 10 years before someone decided to take my health seriously. Also I called the cops because my step father was attacked ten years ago and I didn't know how long he was going to live.
@@jacquelinesmith-jackson2815 Hey, do you mind answering some questions about this? During those ten years, did anyone ever test you for diabetes? How was it that doctors were unable to figure it out? Did you have any tests that came back negative before finally being diagnosed?
I ask because I’m in the same boat. Same symptoms for ten years and doctors have given up. They think it’s a ‘rare disease’ of some kind.
I thought my body would never be the same again, but you fixed it. My heartiest gratitude to you Dr Igudia for helping me cure my type 2 Diabetes successfully
i have all the symptoms 😬
Do you have it?
I was diagnosed in 2018. It's a weird lifestyle 😂
Your breathing might have been Kussmaul breathing... en.wikipedia.org/wiki/Kussmaul_breathing
13:48 super pale
@10:43 That sounds like self-inflicted torture at this point.
@16:57 Not such a good idea in hindsight, drinking liquids containing fructose. 🤔
@18:22 Fortunately a rare thing, but very dangerous.
@20:04 The best diagnosis is early in life while drinking and peeing like crazy because you have little to know idea how life feels without diabetes later on.
@21:11 Not necessarily but not unlikely.
@21:15 ... and rely on big pharma for your survival. 🥴