The worst part is when everyone had expectations of me and thought I am healthy and young..but I couldn't exceed peoples expectations as I was so exhausted and fatigued and the brain fog..and depression.
Thank you so much for sharing! ❤ The stressful ending of my abusive marriage has me in the middle of a horrible flare-up. Debilitating. I am so active for my age, 55, so when the fatigue and weakness hits, it affects my whole life so much. I throw around 50lb bags of feed and bales of hay all day, so it it a frustrating situation for me to feel so badly. My doctor and I feel that once I am completely free from the abuse, my stress will ease, and I will be back to doing well again. That really is what you have when you have Hashimoto's... you do well or you don't. Stay strong and don't stop speaking your truth and searching for what works best for your body.
I was diagnosed with hypothyroidism 20 years ago. I was 230 lbs. about a year ago I was diagnosed with hashimotos in 2023. My doctors says I’m ok because I am of far eastern descent. I lost 80lbs in 8 months Since I had hypothyroidism I had tight throat and gagging and the gagging doesn’t go away. In my case both parents have thyroid issues. The heart races and the gagging are still there. My doctors are saying I need a psychiatrist. I don’t know what to do it s like my world changed almost literally like a different planet not only physically but among people I am close to and trust. since discussion and when asking for advice from a lot of people I got a deaf ear eventually. Your video is very helpful and informative!
For some fortunate people when the doctors give them a pill they get better and do pretty well. No so for me and maybe for you. The meds you are on may not be the right ones for you. No matter what the test results are you still have many symptoms. There is a book called Stop the Thyroid Madness. It may be a starting place to start making progress toward getting better. I hope so. Good luck in your health journey. The gagging may be digestive issues. See if you can get checked out by a gastroenterologist. If it is not that don't give up keep doing research and looking for the right doctor to get your concerns properly addressed.
Look for a functional doctor. Unfortunately it will be out of pocket but it's worth it. Get your bloodwork checked, Dutch test and food allergy tests. Good luck!
that is me too, and lost 35 pounds in 2 months , and they said is a mental issue, I am frustrated because the lock of empathy and knowledge of this condition.
I’ve had Hashimoto’s since my early 20s. I’m in my 50s now. It it absolutely devastating and life changing. It’s awful. 😢 I also believe my Hashimoto’s developed due to extreme teenage stress as well.
I feel you, it’s so frustrating knowing that external factors which happened due to not our fault, contributed to our loss of health. Be gracious to yourself and recognize yourself for everything you do despite that limitation. Sending you love 🥰
One of the hardest things about having Hashimoto is understanding from other people about how hard it is to function day to day. Many people look at me like I’m so lazy even though I have two kids that I homeschool, nanny 2-3 days a week, plus try to be active and just by adding one thing out of the routine can wipe me out. It also does come with multiple of other diseases which tend to affect your life. Thank u for this video and letting others like u feel like we r not crazy and we try to do the best we can but always seems like it’s not enough.
Thank you for sharing! I was diagnosed with Hypothyroidism in 2001 and didn’t know until 2019 that it was Hashimoto’s. Your perspective and outlook on the disease and life is very encouraging and uplifting.
Thank you for watching and taking time to comment, I am glad to know it was encouraging and uplifting. I hope you are doing well. Have a great week ahead 😘
Everyone speaks about cancer, but rarely do I hear them speak about how horrific Hashimoto’s thyroiditis can be, it can feel like a terminal illness, even when eating properly.. hormone is needed. Thank you for sharing your story.
Do realize how they institutionalized woman back in the day. It's still missed and mostly now linked to bipolar disorder bcz they over medicated or did nothing at all. I hear the pain all to much 40 plus yrs.
Its hard for me to open up like you just did because chronic illness devistated me. I had a very bright future, was lucky in the respect I had a strong skill set that led to a really incredible life but like you, grew up in a turmoiled growing up, I entered a very high stress industry but got to say I loved it anyways. I had bouts of infections my whole life, but it never kept me down, always bounced back even if I was periodically hospitalized, but just as I got my life right where I got comfortable a bit I awoke to a total nightmare, one of such high pain loads I really felt like I was better off dead sometimes as it would cause me to black out. I had zero strength, I swelled up like a balloon and just to get out of bed was a whole chore in itself let alone feed myself. I spent years alone, confined because my body began attacking my skin, took me four years to understand why and then another six years to get internal damages repaired usually after suffering in multiple ERs through seizures where I was even awoke once to an officer demanding I stand up or he'd drag me out in handcuffs. I too suffered huge amounts of abuse from medical facilities, Im lucky Im still alive after multiple adverse reactions from multiple misdiagnosing. I found my problem through my own research and a kind doctor who was paying attention and ran a test that most doctors wont. The damage for me has been done, my chances out of this now due to delays is slim to none. Some days Im ready to fight and try and other days I crumble in defeat and I think the worst part for me is in knowing my doctors still refuse to let me even near what could help me. I do not have the luxury of resting as I fend for myself, my family has substantial problems so yeah Im very much walking this road alone. It is my creative passions that keep me going, but everyday is a challenge and most my dreams seem to get further and further away from me. Thank you, your story is just nice to know others out there are also trying to find a way to cope with probably the hardest journey of life. We take for granted the body God gives us until it breaks down and find out no one wants to really fix it. If not for my strong belief in God I would have given up a long time ago. I know when my time is up its up and not much else you can do, but try your hardest to overcome what you can and hope for the best.❤
Thank you for sharing your story here. I am aware there surely is so much more pain to it than you were able to describe.. 😢 I don’t know you but I am proud of you for dealing with adversity so well, specially walking this path alone. That requires tremendous amount of strength and though due to your health you may be lacking physical streangdh, you surely have more mental strength than most people. I hope God will reward your endurance 🌹
Thank you for your video. I was diagnosed with hypothyroidism 20 years ago i am now 64. I have been taking levothyroxine for all these years. I have flare ups from time to time fatigue brain fog etc. I really appreciate your speaking on how peoples opinions is really hard to accept and i try to shut out that noise as it doesn't help me. I take it one day at a time and pray 🙏 i really appreciate you sharing your journey. I hope and pray for continued health for you ❤
My daughter was diagnosed with Hashimoto's Disease as a child. She was placed on Thyroid medication and did fine until after the birth of her daughter at age 17. Suddenly her thyroid levels were within normal limits and the Dr took her off the medication. It has stayed that way ever since then. She has all the symptoms of someone with thyroid disease yet the labs remain normal. Her hair falls out, she is cold all the time, she has gained a lot of weight and she has palpitations with panic attacks. She is always tired and has to push herself. She does not sleep well. The Doctors tell her that her thyroid levels are fine so they do nothing. Now her thyroid is developing nodules. I worry so much about her and nobody will help.
I am so sorry for your daughter, the worst part is that doctors do not really do much to help the condition not to progress over time. And it does progress while left untreated. I hope your daughter will find a good specialist and feel better soon 🙏🏻
I am in the exact same boat as your daughter except I have not yet had a diagnosis. I've been suffering for the last few years so bad. Been in and out of ERs and all that shows up is low TSH level but nothing to the point of them doing anything about it. They also found 4 thyroid nodules but since they aren't huge they "monitor" them. I'm left to try to survive this with no help. Healthcare is awful in the U.S. now, especially where I am. As my condition worsens I wonder how much longer I will live but since my labs aren't alarming they do nothing. Praying for your daughter and answers for us all in this situation!🙏
I highly recommend to check out McCall McPherson and the Modern Thyroid Clinic. She is a Hashimoto’s expert and her clinic is extremely popular for giving people their lives back. Find her on social media and even here on YT and you’ll learn very valuable information on how to fix your daughter’s thyroid. The key is to be guided by someone like her instead of the normal general practitioners who have no clue about thyroid treatment. Please share this with others too. I’m in no way affiliated with them, I just have done a lot of research over the years for my own Hashimoto’s. Good luck!😊
For the panic attacks, you need to make sure she's taking nutritional yeast... That will really help. Also look into taking salt... Either Himalayan or sea salt. I found that did help me. You don't have to take a lot just to pinch in water in the morning and a pinch at night in water. Maybe test it for a few days and see if that helps? Also look and see if she's got h pylori or even Candida... That could wreak havoc on your whole system. If she does I would tell you to steep herbs like clove, cinnamon, nutmeg and ginger and drink one or two cups a day. I would also tell you to cut out the sugar and eat good healthy meats like mackerel or sardines several times a week along with good fats and fruit ... Hope she's better
I relate so much to people not taking you seriously because of age and being seemingly healthy. I've been very sick with Ehler Danlos syndrome since age 14, and now I also found out that I have Hashimotos (actually one year ago). I ignored the symptoms for a long time because I just assumed it was the progression of my other illness. And also because the Dr. (not a specialist) said we just need to monitor it and treat it if it becomes hypo or hyper-thyroidism, but the last few months have been so awful. No energy, too much sleep but never feeling rested, unusual weight gain, scalp flaking and itching :/ My face changed so much
I am so sorry you have to be going through this. Recently I had my medication dose adjusted and I feel much better, hopefully your doctor can find a right dose for you too 🙏🏻
@@AlicjaGriffiths Thank you so much! And thank you for sharing your story. I really feel for you. I will find a doctor that actually treats Hashimoto's and see what can be done :)
Thank you for describing your thyroid Hashimoto’s thyroid so well. My TSH test came back at 36 and I am so frustrated that no one understands how exhausted I am and how difficult it is for me to get out of bed every day. I am not depressed; I can’t understand why so many doctors don’t recognize the symptoms of Hashimoto’s, especially when for over a year I was complaining of energy and memory issues. Lab work needs to be done early and not just for TSH. I hope better care is on the horizon for all who experience this debilitating illness.
You are right, it’s so frustrating that it often gets overlooked by doctors and also people around fail to understand challenges a person with autoimmune condition faces daily .. I hope you will feel better soon 😘thank you for watching
Omy same here! Been to the hospital 3 times within a week! Told me it was my anxiety. Well I finally left after they didn't help me. I went to my dr and said please check my thyroid! Of course it was off.
Thank you for being so open about your story and giving such an uplifting message about staying determined and consistent!! It must not have been easy to share such challenging personal times but helps me see that we are all human. I also have ongoing health struggles but even standing one minute in the sun or appreciating the flowers in the park is something I can do to bring a bit of joy because every day is a gift as they say
Oh, my goodness! Thank you, thank you, thank you! I am in the throws of this very struggle! You poor girl! I have had hypothyroidism for more than 15 years and am only now booked in with an endocrinologist. I relate to all the symptoms. So tired, brain fog. Can't read, can't make a plan. It takes monumental effort to do simple daily tasks! Thank you for making me feel like I'm not the only one!
I am around the same age as you and my symptoms are very similar to yours. It can be so frustrating. I am getting treatment but it is so difficult to have patience with myself and to avoid pushing myself. I am the type of person that likes to do so many things. I guess I am learning to accept how I feel and only try to do what I can. I am learning my limits. Stress definitely makes me feel worse. I hope the treatment you will receive is successful. Thank you for sharing your story❤
Hi Sara, thank you for watching. As you said it is really important to know your limits when you suffer with chronic condition. I hope you will find the way to feel better soon ❤️😘
Thank you for being as transparent as you were, about your condition. I am just blown away by your courage and your determination to stay as happy, healthy, and grateful as you possibly can!! I am in awe of your resilience, and I pray that your health continues to improve. I wish you nothing but peace, healing, and an abundance of joy.
Thank you so much for such a sincere, thoughtful comment. I teared up reading this, I appreciate your support, kind words and wishes. I wish you all the best as well 😘
I got tested because i was having sharp pains in my neck where my thyroid is very sharp stabbing pains. I Went to the ENT it wasnt my esophagus, had a scope down my throat, it wasn't my throat. Drs played me down when i told them about the sharp pains in my neck they all dismissed me and said that the thyroid doesn't cause pain in fact when I suggested the test my doctor said I doubt it's hashimoto's but we'll go ahead and test you and my test was positive my tpo was very high and it was confirmed i have autoimmune thyroid disease. I knew it it's really sad that doctors aren't educated on all the symptoms there is a painful variant of hashimoto's yet I had two different doctors tell me that hashimoto's doesn't cause pain everyone's body is different and mine is causing me pain and it's very real and it's very scary
Thank you for sharing. I had Hashimotos undiagnosised for 16yrs. Now diagnosised, and having it for many yrs. I have Hashimoto, Sjogrens B, Non Alcoholic Fatty Liver. Chronic SIBO. It is really difficult to balance life. I have a faith in Jesus Christ which helps me greatly. You have encourgaged me to be exercise more even when I am exhausted. God bless you.
Thank you for sharing, I always wondered where your UA-cam videos had gone. Sorry to hear you had a stressful upbringing, maybe you could make a video on this if you’re comfortable to get a deeper understanding of the stress that causes this disease. Praying a good fertility journey for you in the near future
Dear Alicja, thank you for sharing this ❤️ There is this one quote came to my mind listening to your story 'God gives his toughest battles to his strongest soldiers' Stay strong 🌹
I suspected I had thyroid issues since my late teens, had every symptom I'd read about. Finally diagnosed mid thirties, but didn't really take it seriously. I took my meds, but didn't look into it further. At 42 Hashimoto's is kicking my ass. So thank you so much for sharing this! It's so important for people to know how serious this can be!
It is indeed very serious condition, unfortunately it is not widely understood due to lack of awareness. Left untreated it can completely mess someone’s life. I am happy my video is helpful and I also hope you get the treatment that will make you feel well again 💕
Thank you for sharing your story 🙏🏼 if you have celiacs make sure you read your medication ingredients because some thyroid meds contain gluten 😔 I just got diagnosed with hashimotos and graves and my endocrinologist didn’t prescribe me anything or give me any diet changes. I feel like crap and he literally said “you don’t look sick to me” Decided to go another route to see a functional medicine doctor, she teaches how to heal with diet changes and does a few other procedures to help the healing process and what I can say is she said the liver, kidney, and gut are connected to thyroid so if they aren’t thriving then thyroid can be affected. In my case I strongly believe it was gut & stress induced. I will start a detox for those organs this week and praying for healing, this desease is so exhausting 😩
thank you for sharing your story, my mom and grandma both have hashimoto's and my grandma had thyroid cancer so this just makes me feel a little happier because my chance of getting this when I'm older is very high.
Thanks so much for sharing. I've had hoshimito's for almost 30 years. Multiple hospitalizations for thyroid storms including a 114 TSH and complications. Currently stage 4 and gave resorted now to carnivore diet to try to slow down the progression. You speak well for the progression you've had. I have a list a mile long of diagnosis' Including disability caused by a completely unrelated disorder. But am always encouraged by those who are able to articulate there journey such as you have.
Hello😊 my heart goes out to you. I completely understand what you’re going through. I just turned 60 in June and I have been dealing with Hashimoto’s for almost 20 years and boy is it hitting me hard right now! I too had to close down my hair salon business and take a break from uploading to my UA-cam channel. I am trying to get started back this month. Extreme tiredness,digestive issues and joint pain is my biggest struggles. I subscribed to your channel. I will keep watching and hopefully all of us can help each other!
Thank you for watching, I am glad it was helpful, recently I posted an updated video on Hashimoto’s disease, check it out, you might find that one helpful too 😊
I completely relate to you. It seems no matter how much I explain my disease and how I feel everyone seems to overlook that and when I have really bad flare ups and symptoms people at my job and anywhere honestly treat me like I'm on something. My tpo antibodies are over 24,000 my tsh came down to 11 over a month ago yet was at 24 a few weeks prior to that and when I was diagnosed with hypothyroidism 5 years ago was over 40 and has been up and down ever since . it has been a long hard awful road and yes some days you feel better and think you are getting better and then you don't and struggling to make it through the day and work. I truly appreciate you posting this video I'm definitely going to send it to people who dont seem to get why I am and feel the way I feel in hopes that they will understand
Thank you so Much for this Information. I have been Horrified and Dealing with Hypothyroidism for Years, Now I realize I probably have BOTH. I 100% understand the whole yawning thing and Not having the Energy to Do things I can't do. Wow , It being Stress Induced Makes Sense. I probably had it years before I was diagnosed. I am so blessed I found your Channel. I will have a Major discussion with my New Doctor on 6/20/24. You are a Guardian Angel for giving this Information to those who Need it. xo
The support and understanding of close people is one of the crucial factor of recovery from flare ups and for the condition not to get worse in my opinion. I am glad you have support that you need ❤️
I have Hashimoto's disease and I FEEL HORRIBLE!! Everything that you have described I am experiencing. My skin feels itchy or like it's absolutely crawling. I need my doctor to do something 😢
I am sorry to know you feel so bad. To have all the symptoms at the same times is absolutely the worst. I hope you will find the right doctor for you and get the help that you need soon 🙏🏻❤️
I have underactive thyroid gland, diagnosed in 2011. Not sure it is the same as Hashimotos. My skin itches like insects crawling especially at night. I thought it was bites, then heat, but now I think it is perimenopause and depleting estrogen. I am on HRT but it started a tear after taking it.
Thank you for sharing your story, I really hope you are feeling better now. I have had hypothyroidism (diagnosed) for over 15 years, after a time of hyperthyroidism and lupus. Because I have had repeated pericarditis in the past I have always been undertreated with levothyroxine. My TSH with treatment has been around 6-7. Constant weight gain (I used to be too skinny, everyone in my family is skinny at all ages and I´ve always had a very healthy lifestyle) that I kind of accepted (gave up with) after some years, extreme fatigue (this is the worst part, but sadly I have been the first one to treat myself as lazy), lots of hairfall and hair breakage, ridged nails etc. For the last year and a half it´s been much worse, I spent a few months hardly going out of my bed. Because of having had difficulty finding good doctors before I didn´t seek help at that point, instead I bought even more books, trying to "fix" the problem myself with special diets/detox/sleep/meditation etc (all very good but not instead of doctor´s consultation). After a few months I felt good enough to force myself to go out for yoga lessons, and to have blood tests and finally see an endocrinologist. My medication dose was increased but very little, and I did not feel much better. The endocrinologist was not interested in my symptoms, only in the TSH and in getting it almost within the range. I did not go back again as I was so disappointed. My extreme fatigue, weight gain etc. continued. Since the beginning of this year it has been worse but I blamed it on having had covid, and being depressed because of grief etc. Finally beginning of April I decided to return to India (I love traveling there, and had planned to go for almost a year but had to cancel due to my health) even though I didn´t feel better, as I thought it might be in my mind so once I´m in a place I want and surrounded by friends etc. I´ll feel better. Well since I´m here in India it´s become more obvious that my health really is bad right now. I can feel that I am not depressed but that does not help me getting out of bed, I definitely sleep more (garmin showing me scores of 80 and above) but still as tired, it´s 45 degrees and I can spend nights without a/c freezing (I checked for fever but it was just my body temperature being below 25), garmin regularly shows me poor breathing rate during night (as low as 8) etc. I went to see a plastic surgeon because I´m so sad about my extremely puffy eyes and didn´t think that was the thyroid, well he said I should consult urgently for myxedema. I went to 3 endochrinologist within a few days, the third one was excellent, best one I have ever seen, she examined everything (reflexes, skin etc.). She said that my symptoms were very severe, but when the blood work came back, almost within range, she did not want to increase my dose more than a tiny bit, also saying that since it´s summer and extremely hot here lower dose is needed. I feel desperate, I just can´t continue with this extreme fatigue (having finally understood I am not lazy and that I cannot not find all the answers in my super, sometimes extreme, healthy diet and lifestyle), and I´m scared now that I finally understand that low thyroid is something to take very seriously as it can kill you.
I was diagnosed with Hashimotos from Mayo Clinic, i was in critical stages, musle spasms every where, large nodules on my temples, extreme dry mouth, I'm 60 now, but i still do not believe I'm where i should be. I'm on 1.50 mcg Levothyroxine.
I got diagnosed in 35 (completely by chance during an unrelated check), I'm M, 40, and I've been on medication nonstop and feeling good so far. Strange thing is i barely had any symptoms prior to being diagnosed. Just got tired quite quickly but since i was physically inactive, I didn't think much of it. Started exercising a year ago and doing good so far. I'm never planning to stop my medication after hearing your story. Stay strong!
I am glad my story can be useful, I am sorry that you got diagnosed with that condition as well. Sadly nowadays everyone is so used to being tired, with current paste of life being tired all the time almost become the norm and it’s so easy to overlook it as a symptom of something potentially very serious. I am glad you are doing good now. Wish you all the best
I was diagnosed with Hashimoto’s when I was on my 30’s but I realized I have been dealing with this since I was younger , unfortunately doctor’s in my country never tested me for that. It’s a struggle and yes unfortunately people are ignorantly and because they see me skinny and fit can’t even imagine with what I have to deal with hashimoto’s. Not very lucky with doctor’s either but doing my own research and advocacy I have been able to be in reemission and not taking medication for almost 3 years . Thank you for talking about this chronic disease.
This video was very helpful because now I know it’s not all in my head and your case seems to be a lot like mine so it was very reassuring that I’m not the only one.
I have hashimotos hypothyroidism. I’m tall and thin. I had a lot of trauma in my first 25 years then a stressful life the past 15 years as a military spouse. For the past 4 years I have had gut issues and we recently discovered in the past year it’s related to my pancreas- chronic pancreatitis. I was told it was celiacs or a gut imbalance. I had to advocate for myself and go to the ER in a terrible stomach pain flare for them to catch my elevated lipase to diagnose me. You are right- after 15 years battling this disease it’s wreaking havoc on my digestive system. I need to be strict dairy and gluten free. But sometimes cream of wheat is all I can eat without pain. I go off and on liquid diets.
This video just made me cry . Who suffer from it know why this video can make someone cry . Autoimmune conditions make sick people look fine and that why they arent taken seriously . It is painful .
Thanks Alicja for sharing your experience on Hashimoto D. I was diagnosed with hypothyroidism defined under the Graves Disease umbrella in Oct 2023. Learning to asjust to it.
You really have suffered, I hope you are able to find some peace and relaxation now. I agree, stress and insomnia are huge triggers for me. Also diet, I cut out Soy, gluten, alcohol, caffeine, meat and dairy and only eat organic whole foods now. I do a 16/8 fast every day, and take supplements plus Reishi, nettle, slippery elm, aloe, ginger and turmeric. This has helped my IBS and keeps me as close as possible to a state of Hashimoto’s remission. Some days I actually feel almost normal now. I hope you continue to recover ❤️
Thank you for your compassionate comment, I feel like you really understand how I feel. I really appreciate your words❤️ Your recommendations inin regard to diet are aligned with all the research I made recently, you are right, this diet works for Hashimoto’s but is so restrictive 😫😭 I don’t like it.. I will try those eliminations for some time and see how that is going to work for me. Thank you 🙏🏻
Thank you for sharing your story I understand all your symptoms and struggles with the disease, I had hyperthyroidism and then ended up having hypothyroidism I can relate and hope that you stay well
Thank you, Alicja, for this. I am often very bewildered about my thyroid issues. I was under an endocrinologist in my late 30's as my bloods were showing thyroid issues. As I felt fine, he did not medicate me for the first 3 years until symptoms started to show. I don't know if I have just hypothyroidism or it has developed into Hashimotos, as since then I have been discharged from endocrinologist (I'm 53 now) and my general doctor just keeps prescribing me 100mg of levothyroxine. I have bloods checked every 6 months, and they show my TSH levels are "normal". I have daily body aches and my voice is definitely changing and hoarse. I find it hard to lose weight even though I try to eat well. I get tired, and my energy crashes in the afternoon's around 4pm. Hair has thinned, but not that noticeable. I am also 6 years postmenopausal, so many of these symptoms could be due to that also. I'm in a quandary, as I don't feel great, but I'm managing things. As a condition, it baffles me, as I don't know what is causing what.
Thank you for sharing your story. I went from thyroiditis with the goiter to hyper thyroidism to thyroiditis with Hashimoto’s. 47 years old. And it seems like every year I get a new diagnosis and there’s something wrong with me and now I have high cholesterol after my recent blood test. All I wanted was to be sent to an endocrinologist but Kaiser doesn’t want to go that route AnyWho never really connected all the things that go along with it besides the fatigue and weight gain and brain fog, I was also diagnosed with lymphocytic colitis so fun I had my gallbladder removed. I had 21 day menstrual cycles so I decided to have uterine ablation. Feel like I’m falling apart and I’m not even that old but now I know I’m not crazy. Thank you.
You are not crazy, this is a very serious condition that affects life in many ways. In order to feel good and function properly despite having that condition, constant daily effort is required and it is definitely not easy. Hold on there, I hope you get better soon. Thank you for sharing your story ❤️ After I am done with posting my Japan travel series I will share more about what I do to help myself with that condition.
Hi Alicia! I know how you feel you described my situation and illness I have every symptom you mentioned. I have Hashimottos too. I've had an extremely hard life as well. I cant wait to hear the rest of this video I gained a bunch of weight I decided to remove things like dairy and processed food and added kelp, magnesium and because I was constipated I ate cashews throughout the day and fruit berries and apples and pears peaches cut sugar and all processed food. So i ate only things that were whole food like rice and potatoes instead of pasta and bread. I stopped coffee switched to tea with almond milk and honey. ... Just stuff that is whole some. All that excruciating body wide pain, throwing up acid, HUGE THYROID STICKING OUT OF MY FAT NECK blacking out after meals and being super tired fluctuating sleep on and on ALL WENT AWAY IN LITERALLY WEEKS! I bever had good days like remission i am beginning to think remission is just eating better for a while. Im on 88 mcg levothyroxine it only manages my mood and a little of my tiredness. Anyway i had all tye stmptoms you mentioned and still do since i wrnt back to my poor diet I'm 56 yrs old. I'm not preaching to you because I began eating bad again, regained all the weight and symptoms. I am disabled and cannot work over this. However I now know HOW to fix it. I hope this helps you like it did me.
Thank you so very much for sharing.. I'm at a complete loss for answers with my hashimotos and I need to find a new Doctor mine retired..Wishing you much blessings ❤❤Ty again
You are right, it takes one’s maturity to self reflect and recognize that and lots of people unfortunately go into parenthood without that realization.
On my Goodness 😢 I can relate to so much of your journey with Hashimotos. It made me realise that I do need to take good care of myself and I am only now starting thyroid meds after 24 years and terrible 9 years of hyper symptoms and no doctor could tell me what was wrong , it settled in to hypo after radioactive thyroid scan and I functioned . Today I'm still trying to get a good doctor to help me and to get the right Dose of Medication that suits my body. Also Post Menopause which throws another spanner in the works . Thank you So much for Sharing your story with us and for making me realise it's not in my head that it is real and serious. None of my family understand or even care to understand Sadly they just think I'm a moaner .blushing you well .
Thank you. Your story is somewhat . I am have complicated UTI’s. Antibiotic resistant. Family doesn’t think I am sick. Thank you for your encouraging words. God Bless you indeed
Oh my your childrood was really a challenge My thyroid is verv frustrating as a grown up . But for you dealing with so much God bless you. Your story makes me understand myself better. I couldnt understand why i was heavier than my sister my life changed about 13 years old weight gain i was called fat slob by my brother i weighted 140 lbs 4th grade monthy periods were he__ my mom took me to Dr to lose weight. Wanted me to.get off my but and get active. I couldnt lose weight until high school . I was saving my lunch money to buy something and only ate ice cream cone only for lunch . I got down to 120 lbs. But still tired falling asleep during classes in high school and grammer school.. teachers were concerned. I connect somewhat with you. But still cant imagine your hurt and pain. My tsh being 7.296 nothing compared to you. You were probably shakey all the time from being breathless. Glad to hear your story. Your husband seems like a true hero helping you . True you almost died but you lost out on so much as a young person. I hope the best for you. Pushing yourself to go on. I just turned 75 trying to be more like you. You set a good example.. helpful. Beautiful lady.
Thank you for sharing your experinces & knowledge regarding these two thyroid conditions (I have been diagnosed w/ hypo only but have symptoms of both hypo & hyperthyroidism as well). The T4 meds (including Tirosint which has no fillers) have not helped & cause rapid heart beat. Conventional Dr.'s don't seem to know what to do & Functional are usually more knowledgeable but many (like myself) cannot afford the ongoing cost to visit them.
Ty, Ty, Ty.. There's no telling how long I may have had Hashimoto's disease but like you, I suspect since childhood. As a young adult, I stopped seeing doctors because it was always the same, depression. I had all of the visible signs of Hashimoto but doctors never put the puzzle together until I demanded THS, T3, reverse T3, T4, and TPO blood work after doing my own research. I always had normal TSH results and every time that's when every doctor stopped looking at the Thyroid. I'm angry at the lack of care and for all of the money I spent trying to find out what was wrong with me just to have diagnosed myself. Also Like you, I have a wonderful husband I married 50 years ago at 17 years old who saved my life. Thank you, GOD..
Wow you poor thing you’ve gone thru so much this is new journey for me I got long term Covid which attacked my thyroid and for a year or two I ignored my symptoms thinking it was Covid symptoms or I was to busy until I started gaining weight & was so fatigued my numbers were high 52 then within a month to get to a specialist they went to 80 so my thyroid stopped working my meds are tripled and and we will see next week with blood work if there helping so far I do not have hashimoto disease so I pray they can fix my thyroid Thank you for your video
As a 16 year old girl who's had hashimoto's my entire life, I am sick of people expecting me to be full of energy and attentive all the time. I can't even stay stood up when doing normal everyday activities because I get super tired. I'm sick of being called lazy, even if it's just a joke because I know that I want to get up and do things but physically and mentally can't do it. I have probably missed over a year or two of school but I had to make different excuses, like saying I'm just not well or threw up, because nobody will understand or care. I also suffered with severe anxiety since around 9-10 years old. I'm now home schooled since year 9 because of that, and I'm currently in year 11 which is my final year of high school. I'm finally getting over it after praying to God. I was recently diagnosed with chronic pain and fatigue so yay for me! I'm currently still under my ENT doctor for another 6-12 months because I am being monitored for thyroid cancer. I don't have cancer, my doctor is just keeping an eye on me because a nodule was found and was slightly bigger than normal. My endocrinologist told me that I shouldn't be feeling my symptoms because I'm on levothyroxine which is just a silly thing to say because that isn't even how it works, clearly. My family would start to tell me that I'm "playing on it", even my mum. Once she got hashimoto's, she never said that again. I most definitely still get all the symptoms. I sometimes can't even remember what I ate for breakfast, or a conversation that I had no more than 5 minutes ago. I'm just sick of barely being able to live my life, none of my friends have the same thing and I have nobody my age to relate to. I get pain constantly in my lymph nodes and I'm, guessing my voice box but I have no clue. It hurts when I talk sometimes that I have to stop talking, and my voice has become increasingly hoarse recently. My ENT did an ultrasound and said my thyroid looks extremely tired. I am constantly in pain, it's never ending. It is so draining. My mum has hashimoto's too, but I got it before her, weirdly. I'm the first person in my family to have Hashimoto's, from what we know. She was recently diagnosed with it this year. My mum only wants competition and to be the one who is more ill, so there's no point in trying to relate to her or complain about it to her. There's been multiple times where I've left the dishes for about a week and my family gave me a hard time about it but they truly do not understand how it feels. I also believe that my hashis could be due to stress, but my mum told me that my symptoms started when I was 2. I also am intolerant to gluten, but I'm not celiac so I still eat it so I don't become allergic to it. I am really scared that I am infertile or less fertile than the average woman because I want kids when I'm older. I also know that miscarriages is something that could happen and that's a big fear of mine. I cannot stand to lose my own child. I am so sorry this happened to you, you're so strong. I completely agree when you say that you grew up with a stressful household, I really get you on that one. I will never be stress free until I move out. My symptoms have never stopped and they won't anytime soon. I have hypothroidism, and I gained weight noticeably when I was 10. I've always felt like the bigger one compared to my friends and was bullied for being fat in primary school (I wasn't fat). This isn't even the half of it. I wouldn't wish hashimoto's on my worst enemy. I really hope you're okay and live an amazing life. God bless you.
It is a very serious condition with lots of side effects. Give yourself grace when needed but don’t let it stand in the way of living your life. You are only 16, so don’t let that condition prevent you from achieving in life. It is still possible to live life to the fullest with enough will and determination. My life would look very different now if I just accepted the fact that I was tired all the time. Despite that, I did masters degree while working very hard in a corporate finance world, had successfull careers across multiple industries and lived in 6 countries, owning properties etc. I keep fit despite the conditions and approaching 40 and eat healthy. All of that is possible cause I push myself and refuse giving up. I hope you will find right doctors that will help you to feel better and that my story will motivate you to achieve a lot in life despite that illness. Support of close ones is tremendously important, I hope your family will learn to support you in the way that you need, cause unfortunately stressful environments only worsen the condition. Take care of yourself and be strong❤️
I too have Hashimoto’s and so exhausted. I had neck pain and was put on a round of steroids for a week and felt better. Was given a second round and symptoms were gone, energy levels normalized and I felt great. Now I’m back to exhaustion, sleeping day and night and aching. Good luck with your new doctor appointment and thank you for sharing your experience. I’m wondering if steroids can be prescribed as treatment. I’m not sure if research has been done but it definitely made a huge impact on my symptoms when I had the steroid medication for the week!
Thankyou for doing this. I ha e Hashimoto hypothyroid..no one seems to know what to do especially doctors. It's totally stress related..and for the first time in my life I am non stop gaining weight no energy. I push myself. Only the ultrasound tech told me the truth telling me my gland is nonfunctional and ancient looking
Thank you for sharing your story. Nobody knows how it is until they are experiencing this and it is scary! I had hyperthyroid 1st and i felt like i was going to have a heart attack and die. And then after months of going through hell it switched to hashimotos been dealing with it for over 15 years now and it has been awful I get alot of those symptoms and it is devastating cause i havent felt normal since I was diagnosed. I know have high anxiety and cant figure out how to control it and now I cant drive due to the high anxiety. I just found a doctor who cares and its getting a little better for me for now.
I have hashis and have been diagnosed with me/cfs and pots... I believe my cfs and pots are related to my hashimotos...im not on thyroid meds yet but my tpo is always between 600-3000. I was in an abusive relationship for 20+ years and one day i crashed and never recovered. The anxiety is off the charts, heart palpitations, chest pain, short of breath, fatigue, intolerant of any stress ( even stressful conversations and jump scares)
Hi, may i know how do you deal with heart palpitations, anxiety and intolerant of any stress, shortness of breath? I have high TPO and TRAB and high ANA, but my doctor diagnosed me with graves disease. The problem is i have both symptoms of hypothyroid and hyperthyroid and my digestive system is totally out of whack. I have severe constipation (no feeling of bowel movement).
Thank you for watching, I am sorry you also have hashimoto’s. I am glad I was able to provide more information and insight about this condition, since knowledge about full spectrum of this disease is not that common. Wishing you lots of health 😘
You are 100 right - hyperthyroid is stress induced - I’m sorry you story was so difficult 🙏💖I also had graves also radiated and live now with the horror effects - I believe killing throws dhould be illegal
It indeed should be illegal, I am sorry you are dealing with the same issues and I really appreciate your supportive and compassionate comments, thank you 🥰
Thank you so much for this video. I get down on myself because of the tiredness and often don’t eat right. Your story and encouragement has really helped me to eat better and give myself grace. God bless you ❤
Eating well is one piece of the puzzle, but you can still feel unwell if not on the correct thyroid hormone. Carnivore has really reduced a lot of the symptoms that comes with hashimotos, but I’m still trying to find the right hormone.
I am sorry to hear that you suffer with those conditions as well. Stay strong 💪🏻 I have more videos in my channel related to autoimmune conditions, I hope they can help you 😘
I’m battling Hashimoto. It’s attacking other systems in my body. I went into ER twice from hashimotos. I get the heart palpitations almost to the point where I can easily. But my rheumatologist is just pinning that on my my weight gain. the inflammation has gotten out of control that it’s painful at this point. I have to even walk with a cane now for my balance and stability.
That’s so horrible, I feel for you. I know Hashimoto’s can cause a real havoc in the body. In order to start getting better, try introducing and maintain healthy diet to reduce inflammation in the body. Inflammation causes massive flare ups and makes everything worse. Healthy diet and no alcohol is the key to reduce inflammation. Good luck I hope you will get better soon.
Stress plays a huge part in all disease and I too have and still struggling with hashimoto's tyroiditsis, but, it lead to my severe inflammation my whole life upper respiratory asthma, breast cancer polyps (nasal) digestion, miscarriages, endometriosis breast cancer, and now post menopause 11 years and still can't get anyone to pay attention to my T3 and t4 I'm a mess at 61.
Dang so many of these things are happening to me. My heart races. Hard to breathe in having a hard time getting going. I climb out of bed and later go back in bed. I try so hard not to let it affect me. My hands shake. But I’m gaining weight. I ended up in the hospital cuz my heart went crazy but they didn’t find anything wrong. I do have thyroid problems. I think hypothyroidism. I’ve had half my thyroid taken out due to a goiter. 5 years later my other half of thyroid goiter has grown but benign.
Take methylcobalamin b12 to help with the breathless part. I was diagnosed with hoshimotos and b12 is the only thing that keeps the breathlessness away
Please, please, PLEASE look into the Immune+ Protocol by Silver Fern Brand. I have Hashimoto’s, too, and I’ve had almost all the same debilitating issues as you, but this protocol is helping me. Also please look at taking creatine for Hashimoto’s, as well. ❤
I’ve done the excessive yawning since I was a pre-teen & thought it was just an anxiety thing, but I think I’ve had hashimotos/hypothyroidism for a lot longer than I realize. So frustrating.
I joined the military when I was 17 & that really flared it up. I’ve always carried some extra weight besides a few years when I was very strictly paleo & working out constantly, which led to an ED. In Highschool they tried to put me on meds for gastritis but it didn’t help & the only thing that helped was correcting my diet.
Omg I’m yawning every day at midday since 20 years and don’t know why? But no Hashimoto discovered by me. The hormones in blood are fine and in Saliva to low progesterone and testosterone. How do you get diagnosed? Because I really have the symptoms.
Thank you for this video and explanation of Hashimoto. I have hypothyroidism since early 30s and fibromyalgia, ibs, Diverticulitis. Question, do endincrinologists, check T3, 4, etc with TSH? I hear and know that they don't anymore and I don't understand why. My t4 when checked is literally borderline. Noone checks t3. U need t4 to have t3. Tsh is produced from pituitary gland. T3, t4 produced from thyroid. Nobody has checked antibodies. I have severe hypothyroidism symptoms on .0.75 mcq levothyroxine. Some ppl need t3 and fee better. I have 2 grandkids grandkids with very rare genetic disease that affects thyroid, and more. I am 69 now.
Hi Alicjia! Thanks for sharing. Hashimoto's is awful. I'm dealing with it since my 16 yo. I''m 52. Are u on supplements too? If so, what supplemments do you take? Could you please tell us more about your diet and exercise plan? Thanks. My hug from Lisbon, Portugal.
Oh my God!! I have no idea how did you even get out of bed and function .. that must have been an absolute nightmare.. I feel for you, I hope you are better now 🙏🏻 take care of yourself ❤️
Unfortunately endocrinologists aren’t always helpful. I’d research here on UA-cam, including Dr. Westin. Not against western medicine, but they seem to follow a very narrow path when it comes to the thyroid. A functional medicine doctor is the best one to see. But they are $$
I have hashimotis and hypothroid i feel like crap!!! Ttc after having children easy and now 2 yrs on im infertile due to this.. im a diff person and strugglin to get it ubder control im so poorly. Thanks for sharing. Hope ur ok xx
Thank you for sharing your story. Creating awareness is so important when it comes to chronic conditions. I'm really sorry to hear that you've had such a difficult road so far and hope that your health improves and that you stay well. I was diagnosed with Hashimoto's 10 years ago and it has been a journey to say the least. Being kind to yourself and practicing self-care without judgement can be so helpful and I'd say it's crucial for getting better. Our genes load the gun, but environment pulls the trigger as they say. And yes, stress is a huge trigger for most of us. I've mainly managed my condition through holistic means, changing my diet and lifestyle and taking supplements and Dr Izabella Wentz's work has been a massive key for me to unlock a lot of this.
Often there is another autoimmune desease.. plus hashimoto✌️ sjögren, lupus, collagenoses… etc… and it is importent to check the balance of estrogenes abs progesterone
The worst part is when everyone had expectations of me and thought I am healthy and young..but I couldn't exceed peoples expectations as I was so exhausted and fatigued and the brain fog..and depression.
NDT or synthetic medication?
I know exactly how it feels and people’s expectations of your ability to exceed cause you are young and fit can be very frustrating.
I agree people are to quick to judge and its so hurtful. Praying for all of us with chronic health ❤
Yes I relate
You literally hit the nail on the head. I feel exactly the same. 💔
Thank you so much for sharing! ❤ The stressful ending of my abusive marriage has me in the middle of a horrible flare-up. Debilitating. I am so active for my age, 55, so when the fatigue and weakness hits, it affects my whole life so much. I throw around 50lb bags of feed and bales of hay all day, so it it a frustrating situation for me to feel so badly. My doctor and I feel that once I am completely free from the abuse, my stress will ease, and I will be back to doing well again. That really is what you have when you have Hashimoto's... you do well or you don't. Stay strong and don't stop speaking your truth and searching for what works best for your body.
I was diagnosed with hypothyroidism 20 years ago. I was 230 lbs. about a year ago I was diagnosed with hashimotos in 2023. My doctors says I’m ok because I am of far eastern descent. I lost 80lbs in 8 months
Since I had hypothyroidism I had tight throat and gagging and the gagging doesn’t go away.
In my case both parents have thyroid issues.
The heart races and the gagging are still there.
My doctors are saying I need a psychiatrist.
I don’t know what to do it s like my world changed almost literally like a different planet not only physically but among people I am close to and
trust. since discussion and when asking for advice from a lot of people I got a deaf ear eventually.
Your video is very helpful and informative!
For some fortunate people when the doctors give them a pill they get better and do pretty well. No so for me and maybe for you. The meds you are on may not be the right ones for you. No matter what the test results are you still have many symptoms. There is a book called Stop the Thyroid Madness. It may be a starting place to start making progress toward getting better. I hope so. Good luck in your health journey. The gagging may be digestive issues. See if you can get checked out by a gastroenterologist. If it is not that don't give up keep doing research and looking for the right doctor to get your concerns properly addressed.
This is the same for me. Choking and breathless. Numb arms. Very poor sleep.
Does the tight throat come and go based on certain foods or is it all the time?
Look for a functional doctor. Unfortunately it will be out of pocket but it's worth it. Get your bloodwork checked, Dutch test and food allergy tests. Good luck!
that is me too, and lost 35 pounds in 2 months , and they said is a mental issue, I am frustrated because the lock of empathy and knowledge of this condition.
I’ve had Hashimoto’s since my early 20s. I’m in my 50s now. It it absolutely devastating and life changing. It’s awful. 😢 I also believe my Hashimoto’s developed due to extreme teenage stress as well.
I feel you, it’s so frustrating knowing that external factors which happened due to not our fault, contributed to our loss of health. Be gracious to yourself and recognize yourself for everything you do despite that limitation. Sending you love 🥰
Progesterone✌️ check your balance of estrogenes and progesterone… agnus castus helps a lot
same
I believe mine was childhood trauma.
One of the hardest things about having Hashimoto is understanding from other people about how hard it is to function day to day. Many people look at me like I’m so lazy even though I have two kids that I homeschool, nanny 2-3 days a week, plus try to be active and just by adding one thing out of the routine can wipe me out. It also does come with multiple of other diseases which tend to affect your life. Thank u for this video and letting others like u feel like we r not crazy and we try to do the best we can but always seems like it’s not enough.
Thank you for sharing! I was diagnosed with Hypothyroidism in 2001 and didn’t know until 2019 that it was Hashimoto’s. Your perspective and outlook on the disease and life is very encouraging and uplifting.
Thank you for watching and taking time to comment, I am glad to know it was encouraging and uplifting. I hope you are doing well. Have a great week ahead 😘
Everyone speaks about cancer, but rarely do I hear them speak about how horrific Hashimoto’s thyroiditis can be, it can feel like a terminal illness, even when eating properly.. hormone is needed. Thank you for sharing your story.
Do realize how they institutionalized woman back in the day. It's still missed and mostly now linked to bipolar disorder bcz they over medicated or did nothing at all.
I hear the pain all to much 40 plus yrs.
@@TrudyContos-gq1bw😭
Its hard for me to open up like you just did because chronic illness devistated me. I had a very bright future, was lucky in the respect I had a strong skill set that led to a really incredible life but like you, grew up in a turmoiled growing up, I entered a very high stress industry but got to say I loved it anyways. I had bouts of infections my whole life, but it never kept me down, always bounced back even if I was periodically hospitalized, but just as I got my life right where I got comfortable a bit I awoke to a total nightmare, one of such high pain loads I really felt like I was better off dead sometimes as it would cause me to black out. I had zero strength, I swelled up like a balloon and just to get out of bed was a whole chore in itself let alone feed myself. I spent years alone, confined because my body began attacking my skin, took me four years to understand why and then another six years to get internal damages repaired usually after suffering in multiple ERs through seizures where I was even awoke once to an officer demanding I stand up or he'd drag me out in handcuffs. I too suffered huge amounts of abuse from medical facilities, Im lucky Im still alive after multiple adverse reactions from multiple misdiagnosing. I found my problem through my own research and a kind doctor who was paying attention and ran a test that most doctors wont. The damage for me has been done, my chances out of this now due to delays is slim to none. Some days Im ready to fight and try and other days I crumble in defeat and I think the worst part for me is in knowing my doctors still refuse to let me even near what could help me. I do not have the luxury of resting as I fend for myself, my family has substantial problems so yeah Im very much walking this road alone. It is my creative passions that keep me going, but everyday is a challenge and most my dreams seem to get further and further away from me. Thank you, your story is just nice to know others out there are also trying to find a way to cope with probably the hardest journey of life. We take for granted the body God gives us until it breaks down and find out no one wants to really fix it. If not for my strong belief in God I would have given up a long time ago. I know when my time is up its up and not much else you can do, but try your hardest to overcome what you can and hope for the best.❤
Thank you for sharing your story here. I am aware there surely is so much more pain to it than you were able to describe.. 😢 I don’t know you but I am proud of you for dealing with adversity so well, specially walking this path alone. That requires tremendous amount of strength and though due to your health you may be lacking physical streangdh, you surely have more mental strength than most people. I hope God will reward your endurance 🌹
Never give up ❤ guided meditation 3 times a day has helped me during chronic illness; I’ve grave’s disease, I believe in you, one step at a time ❤
Thank you for your video. I was diagnosed with hypothyroidism 20 years ago i am now 64. I have been taking levothyroxine for all these years. I have flare ups from time to time fatigue brain fog etc. I really appreciate your speaking on how peoples opinions is really hard to accept and i try to shut out that noise as it doesn't help me. I take it one day at a time and pray 🙏 i really appreciate you sharing your journey. I hope and pray for continued health for you ❤
Hi there, the best video ever on you tube. So insightful, sincere and brave. You are a real warrior. No wonder you inspire.
Thank you for your kind words and ongoing support, it means a lot to me 😘
My daughter was diagnosed with Hashimoto's Disease as a child. She was placed on Thyroid medication and did fine until after the birth of her daughter at age 17. Suddenly her thyroid levels were within normal limits and the Dr took her off the medication. It has stayed that way ever since then. She has all the symptoms of someone with thyroid disease yet the labs remain normal. Her hair falls out, she is cold all the time, she has gained a lot of weight and she has palpitations with panic attacks. She is always tired and has to push herself. She does not sleep well. The Doctors tell her that her thyroid levels are fine so they do nothing. Now her thyroid is developing nodules. I worry so much about her and nobody will help.
I am so sorry for your daughter, the worst part is that doctors do not really do much to help the condition not to progress over time. And it does progress while left untreated. I hope your daughter will find a good specialist and feel better soon 🙏🏻
I am in the exact same boat as your daughter except I have not yet had a diagnosis. I've been suffering for the last few years so bad. Been in and out of ERs and all that shows up is low TSH level but nothing to the point of them doing anything about it. They also found 4 thyroid nodules but since they aren't huge they "monitor" them. I'm left to try to survive this with no help. Healthcare is awful in the U.S. now, especially where I am. As my condition worsens I wonder how much longer I will live but since my labs aren't alarming they do nothing. Praying for your daughter and answers for us all in this situation!🙏
I highly recommend to check out McCall McPherson and the Modern Thyroid Clinic. She is a Hashimoto’s expert and her clinic is extremely popular for giving people their lives back. Find her on social media and even here on YT and you’ll learn very valuable information on how to fix your daughter’s thyroid. The key is to be guided by someone like her instead of the normal general practitioners who have no clue about thyroid treatment. Please share this with others too. I’m in no way affiliated with them, I just have done a lot of research over the years for my own Hashimoto’s. Good luck!😊
For the panic attacks, you need to make sure she's taking nutritional yeast... That will really help.
Also look into taking salt... Either Himalayan or sea salt. I found that did help me. You don't have to take a lot just to pinch in water in the morning and a pinch at night in water. Maybe test it for a few days and see if that helps?
Also look and see if she's got h pylori or even Candida... That could wreak havoc on your whole system.
If she does I would tell you to steep herbs like clove, cinnamon, nutmeg and ginger and drink one or two cups a day. I would also tell you to cut out the sugar and eat good healthy meats like mackerel or sardines several times a week along with good fats and fruit
... Hope she's better
At Tony boy do I hear you ! You just described me ,your daughter is not alone
I relate so much to people not taking you seriously because of age and being seemingly healthy. I've been very sick with Ehler Danlos syndrome since age 14, and now I also found out that I have Hashimotos (actually one year ago). I ignored the symptoms for a long time because I just assumed it was the progression of my other illness. And also because the Dr. (not a specialist) said we just need to monitor it and treat it if it becomes hypo or hyper-thyroidism, but the last few months have been so awful. No energy, too much sleep but never feeling rested, unusual weight gain, scalp flaking and itching :/ My face changed so much
I am so sorry you have to be going through this. Recently I had my medication dose adjusted and I feel much better, hopefully your doctor can find a right dose for you too 🙏🏻
@@AlicjaGriffiths Thank you so much! And thank you for sharing your story. I really feel for you. I will find a doctor that actually treats Hashimoto's and see what can be done :)
Thank you for describing your thyroid Hashimoto’s thyroid so well. My TSH test came back at 36 and I am so frustrated that no one understands how exhausted I am and how difficult it is for me to get out of bed every day. I am not depressed; I can’t understand why so many doctors don’t recognize the symptoms of Hashimoto’s, especially when for over a year I was complaining of energy and memory issues. Lab work needs to be done early and not just for TSH. I hope better care is on the horizon for all who experience this debilitating illness.
You are right, it’s so frustrating that it often gets overlooked by doctors and also people around fail to understand challenges a person with autoimmune condition faces daily .. I hope you will feel better soon 😘thank you for watching
Omy same here! Been to the hospital 3 times within a week! Told me it was my anxiety. Well I finally left after they didn't help me. I went to my dr and said please check my thyroid! Of course it was off.
The hospital snd drs should ask with regulate blood work because we have too many people have trouble 😢
Thank you for being so open about your story and giving such an uplifting message about staying determined and consistent!! It must not have been easy to share such challenging personal times but helps me see that we are all human. I also have ongoing health struggles but even standing one minute in the sun or appreciating the flowers in the park is something I can do to bring a bit of joy because every day is a gift as they say
Thank you for watching and for your positive words, I appreciate it a lot. I also hope your health struggles will pass soon 😘
Oh, my goodness! Thank you, thank you, thank you!
I am in the throws of this very struggle! You poor girl! I have had hypothyroidism for more than 15 years and am only now booked in with an endocrinologist. I relate to all the symptoms. So tired, brain fog. Can't read, can't make a plan. It takes monumental effort to do simple daily tasks! Thank you for making me feel like I'm not the only one!
Thank You for taking the time to create and share this very informative video. You are an excellent speaker!
Thank you 🙏🏻😘
I am around the same age as you and my symptoms are very similar to yours. It can be so frustrating. I am getting treatment but it is so difficult to have patience with myself and to avoid pushing myself. I am the type of person that likes to do so many things. I guess I am learning to accept how I feel and only try to do what I can. I am learning my limits. Stress definitely makes me feel worse. I hope the treatment you will receive is successful. Thank you for sharing your story❤
Hi Sara, thank you for watching. As you said it is really important to know your limits when you suffer with chronic condition. I hope you will find the way to feel better soon ❤️😘
Thank you for sharing.
I pray God gives you the strength and heals you wholesomely 🙏🏾🙏🏾❤️
Thank you so much, I really appreciate it 😘❤️
Thank you for being as transparent as you were, about your condition. I am just blown away by your courage and your determination to stay as happy, healthy, and grateful as you possibly can!! I am in awe of your resilience, and I pray that your health continues to improve. I wish you nothing but peace, healing, and an abundance of joy.
Thank you so much for such a sincere, thoughtful comment. I teared up reading this, I appreciate your support, kind words and wishes. I wish you all the best as well 😘
@@AlicjaGriffiths Thank you.
I got tested because i was having sharp pains in my neck where my thyroid is very sharp stabbing pains. I Went to the ENT it wasnt my esophagus, had a scope down my throat, it wasn't my throat. Drs played me down when i told them about the sharp pains in my neck they all dismissed me and said that the thyroid doesn't cause pain in fact when I suggested the test my doctor said I doubt it's hashimoto's but we'll go ahead and test you and my test was positive my tpo was very high and it was confirmed i have autoimmune thyroid disease. I knew it it's really sad that doctors aren't educated on all the symptoms there is a painful variant of hashimoto's yet I had two different doctors tell me that hashimoto's doesn't cause pain everyone's body is different and mine is causing me pain and it's very real and it's very scary
Thank you for sharing. I had Hashimotos undiagnosised for 16yrs. Now diagnosised, and having it for many yrs. I have Hashimoto, Sjogrens B, Non Alcoholic Fatty Liver. Chronic SIBO. It is really difficult to balance life. I have a faith in Jesus Christ which helps me greatly. You have encourgaged me to be exercise more even when I am exhausted. God bless you.
Thank you for sharing, I always wondered where your UA-cam videos had gone. Sorry to hear you had a stressful upbringing, maybe you could make a video on this if you’re comfortable to get a deeper understanding of the stress that causes this disease. Praying a good fertility journey for you in the near future
Thank you for watching and for your kind words 😘
Dear Alicja, thank you for sharing this ❤️
There is this one quote came to my mind listening to your story 'God gives his toughest battles to his strongest soldiers'
Stay strong 🌹
Thank you for your words of support 🙏🏻😘
That quote contradicts the Bible: James 1:13. God does not cause our problems. He’s much too loving❤
I suspected I had thyroid issues since my late teens, had every symptom I'd read about. Finally diagnosed mid thirties, but didn't really take it seriously. I took my meds, but didn't look into it further. At 42 Hashimoto's is kicking my ass. So thank you so much for sharing this! It's so important for people to know how serious this can be!
It is indeed very serious condition, unfortunately it is not widely understood due to lack of awareness. Left untreated it can completely mess someone’s life.
I am happy my video is helpful and I also hope you get the treatment that will make you feel well again 💕
I'm 70 and Hashimotos thyroiditis really sucks.
A kind and hopeful presentation. And a testament to proper, helpful and loving marriages that God blesses us with.
Thank you for sharing your story 🙏🏼 if you have celiacs make sure you read your medication ingredients because some thyroid meds contain gluten 😔 I just got diagnosed with hashimotos and graves and my endocrinologist didn’t prescribe me anything or give me any diet changes. I feel like crap and he literally said “you don’t look sick to me” Decided to go another route to see a functional medicine doctor, she teaches how to heal with diet changes and does a few other procedures to help the healing process and what I can say is she said the liver, kidney, and gut are connected to thyroid so if they aren’t thriving then thyroid can be affected. In my case I strongly believe it was gut & stress induced. I will start a detox for those organs this week and praying for healing, this desease is so exhausting 😩
thank you for sharing your story, my mom and grandma both have hashimoto's and my grandma had thyroid cancer so this just makes me feel a little happier because my chance of getting this when I'm older is very high.
Thanks for your encouragement. I also have Hashimotos disease and struggling with changing to a gf diet.
Glad I could help 🥰 take care of yourself, I hope things will get better for you soon 😊
Thanks so much for sharing. I've had hoshimito's for almost 30 years. Multiple hospitalizations for thyroid storms including a 114 TSH and complications. Currently stage 4 and gave resorted now to carnivore diet to try to slow down the progression. You speak well for the progression you've had. I have a list a mile long of diagnosis' Including disability caused by a completely unrelated disorder. But am always encouraged by those who are able to articulate there journey such as you have.
Hello😊 my heart goes out to you. I completely understand what you’re going through. I just turned 60 in June and I have been dealing with Hashimoto’s for almost 20 years and boy is it hitting me hard right now! I too had to close down my hair salon business and take a break from uploading to my UA-cam channel. I am trying to get started back this month. Extreme tiredness,digestive issues and joint pain is my biggest struggles. I subscribed to your channel. I will keep watching and hopefully all of us can help each other!
Great video. Please keep up the great work. I find your videos EXTREMELY helpful. Thx
Thank you for watching, I am glad it was helpful, recently I posted an updated video on Hashimoto’s disease, check it out, you might find that one helpful too 😊
I completely relate to you. It seems no matter how much I explain my disease and how I feel everyone seems to overlook that and when I have really bad flare ups and symptoms people at my job and anywhere honestly treat me like I'm on something. My tpo antibodies are over 24,000 my tsh came down to 11 over a month ago yet was at 24 a few weeks prior to that and when I was diagnosed with hypothyroidism 5 years ago was over 40 and has been up and down ever since . it has been a long hard awful road and yes some days you feel better and think you are getting better and then you don't and struggling to make it through the day and work. I truly appreciate you posting this video I'm definitely going to send it to people who dont seem to get why I am and feel the way I feel in hopes that they will understand
Thank you so Much for this Information. I have been Horrified and Dealing with Hypothyroidism for Years, Now I realize I probably have BOTH. I 100% understand the whole yawning thing and Not having the Energy to Do things I can't do. Wow , It being Stress Induced Makes Sense. I probably had it years before I was diagnosed. I am so blessed I found your Channel. I will have a Major discussion with my New Doctor on 6/20/24. You are a Guardian Angel for giving this Information to those who Need it. xo
Thank you. I needed to be reminded to give myself grace. I've been having an awful flare. Thank goodness I have a supportive spouse too.
The support and understanding of close people is one of the crucial factor of recovery from flare ups and for the condition not to get worse in my opinion. I am glad you have support that you need ❤️
I have Hashimoto's disease and I FEEL HORRIBLE!! Everything that you have described I am experiencing. My skin feels itchy or like it's absolutely crawling. I need my doctor to do something 😢
I am sorry to know you feel so bad. To have all the symptoms at the same times is absolutely the worst. I hope you will find the right doctor for you and get the help that you need soon 🙏🏻❤️
Ayodine. ❤❤ for hypo
They took it out of our salt
For cheaper replacement
Just take yode
I have underactive thyroid gland, diagnosed in 2011. Not sure it is the same as Hashimotos. My skin itches like insects crawling especially at night. I thought it was bites, then heat, but now I think it is perimenopause and depleting estrogen. I am on HRT but it started a tear after taking it.
Thank you for sharing your story, I really hope you are feeling better now. I have had hypothyroidism (diagnosed) for over 15 years, after a time of hyperthyroidism and lupus. Because I have had repeated pericarditis in the past I have always been undertreated with levothyroxine. My TSH with treatment has been around 6-7. Constant weight gain (I used to be too skinny, everyone in my family is skinny at all ages and I´ve always had a very healthy lifestyle) that I kind of accepted (gave up with) after some years, extreme fatigue (this is the worst part, but sadly I have been the first one to treat myself as lazy), lots of hairfall and hair breakage, ridged nails etc. For the last year and a half it´s been much worse, I spent a few months hardly going out of my bed. Because of having had difficulty finding good doctors before I didn´t seek help at that point, instead I bought even more books, trying to "fix" the problem myself with special diets/detox/sleep/meditation etc (all very good but not instead of doctor´s consultation). After a few months I felt good enough to force myself to go out for yoga lessons, and to have blood tests and finally see an endocrinologist. My medication dose was increased but very little, and I did not feel much better. The endocrinologist was not interested in my symptoms, only in the TSH and in getting it almost within the range. I did not go back again as I was so disappointed. My extreme fatigue, weight gain etc. continued. Since the beginning of this year it has been worse but I blamed it on having had covid, and being depressed because of grief etc. Finally beginning of April I decided to return to India (I love traveling there, and had planned to go for almost a year but had to cancel due to my health) even though I didn´t feel better, as I thought it might be in my mind so once I´m in a place I want and surrounded by friends etc. I´ll feel better. Well since I´m here in India it´s become more obvious that my health really is bad right now. I can feel that I am not depressed but that does not help me getting out of bed, I definitely sleep more (garmin showing me scores of 80 and above) but still as tired, it´s 45 degrees and I can spend nights without a/c freezing (I checked for fever but it was just my body temperature being below 25), garmin regularly shows me poor breathing rate during night (as low as 8) etc. I went to see a plastic surgeon because I´m so sad about my extremely puffy eyes and didn´t think that was the thyroid, well he said I should consult urgently for myxedema. I went to 3 endochrinologist within a few days, the third one was excellent, best one I have ever seen, she examined everything (reflexes, skin etc.). She said that my symptoms were very severe, but when the blood work came back, almost within range, she did not want to increase my dose more than a tiny bit, also saying that since it´s summer and extremely hot here lower dose is needed. I feel desperate, I just can´t continue with this extreme fatigue (having finally understood I am not lazy and that I cannot not find all the answers in my super, sometimes extreme, healthy diet and lifestyle), and I´m scared now that I finally understand that low thyroid is something to take very seriously as it can kill you.
I was diagnosed with Hashimotos from Mayo Clinic, i was in critical stages, musle spasms every where, large nodules on my temples, extreme dry mouth, I'm 60 now, but i still do not believe I'm where i should be. I'm on 1.50 mcg Levothyroxine.
I was 24 when diagnosed
Thank you for sharing. Alicija all the best for you ❤
Thank you for watching and all the best to you too ❤️
I got diagnosed in 35 (completely by chance during an unrelated check), I'm M, 40, and I've been on medication nonstop and feeling good so far. Strange thing is i barely had any symptoms prior to being diagnosed. Just got tired quite quickly but since i was physically inactive, I didn't think much of it. Started exercising a year ago and doing good so far. I'm never planning to stop my medication after hearing your story. Stay strong!
I am glad my story can be useful, I am sorry that you got diagnosed with that condition as well. Sadly nowadays everyone is so used to being tired, with current paste of life being tired all the time almost become the norm and it’s so easy to overlook it as a symptom of something potentially very serious. I am glad you are doing good now. Wish you all the best
@@AlicjaGriffiths Thank you, Alicja. Likewise!
I was diagnosed with Hashimoto’s when I was on my 30’s but I realized I have been dealing with this since I was younger , unfortunately doctor’s in my country never tested me for that. It’s a struggle and yes unfortunately people are ignorantly and because they see me skinny and fit can’t even imagine with what I have to deal with hashimoto’s. Not very lucky with doctor’s either but doing my own research and advocacy I have been able to be in reemission and not taking medication for almost 3 years . Thank you for talking about this chronic disease.
This video was very helpful because now I know it’s not all in my head and your case seems to be a lot like mine so it was very reassuring that I’m not the only one.
I am glad I could help. Hang in there and take care of yourself, it is definitely not in your head, it is a real condition that gives real symptoms.
I have hashimotos hypothyroidism. I’m tall and thin. I had a lot of trauma in my first 25 years then a stressful life the past 15 years as a military spouse. For the past 4 years I have had gut issues and we recently discovered in the past year it’s related to my pancreas- chronic pancreatitis. I was told it was celiacs or a gut imbalance. I had to advocate for myself and go to the ER in a terrible stomach pain flare for them to catch my elevated lipase to diagnose me. You are right- after 15 years battling this disease it’s wreaking havoc on my digestive system. I need to be strict dairy and gluten free. But sometimes cream of wheat is all I can eat without pain. I go off and on liquid diets.
Thank you so much for sharing your story. I learned a lot and it was very helpful. God bless you.
I am happy I could help 😘
I was diagnosed with it when I was 31. I'm 62 now and have been taking thyroid -Levithroxin for 7 years.
Thank you for sharing. It is very important and helpful. Hashimoto cases are similar but also different for different people..🙏
This video just made me cry . Who suffer from it know why this video can make someone cry .
Autoimmune conditions make sick people look fine and that why they arent taken seriously . It is painful .
Thanks Alicja for sharing your experience on Hashimoto D. I was diagnosed with hypothyroidism defined under the Graves Disease umbrella in Oct 2023. Learning to asjust to it.
You really have suffered, I hope you are able to find some peace and relaxation now. I agree, stress and insomnia are huge triggers for me. Also diet, I cut out Soy, gluten, alcohol, caffeine, meat and dairy and only eat organic whole foods now. I do a 16/8 fast every day, and take supplements plus Reishi, nettle, slippery elm, aloe, ginger and turmeric. This has helped my IBS and keeps me as close as possible to a state of Hashimoto’s remission. Some days I actually feel almost normal now. I hope you continue to recover ❤️
Thank you for your compassionate comment, I feel like you really understand how I feel. I really appreciate your words❤️
Your recommendations inin regard to diet are aligned with all the research I made recently, you are right, this diet works for Hashimoto’s but is so restrictive 😫😭 I don’t like it.. I will try those eliminations for some time and see how that is going to work for me. Thank you 🙏🏻
Thank you for sharing your story I understand all your symptoms and struggles with the disease, I had hyperthyroidism and then ended up having hypothyroidism I can relate and hope that you stay well
Thank you, Alicja, for this. I am often very bewildered about my thyroid issues. I was under an endocrinologist in my late 30's as my bloods were showing thyroid issues. As I felt fine, he did not medicate me for the first 3 years until symptoms started to show. I don't know if I have just hypothyroidism or it has developed into Hashimotos, as since then I have been discharged from endocrinologist (I'm 53 now) and my general doctor just keeps prescribing me 100mg of levothyroxine. I have bloods checked every 6 months, and they show my TSH levels are "normal".
I have daily body aches and my voice is definitely changing and hoarse. I find it hard to lose weight even though I try to eat well. I get tired, and my energy crashes in the afternoon's around 4pm. Hair has thinned, but not that noticeable. I am also 6 years postmenopausal, so many of these symptoms could be due to that also. I'm in a quandary, as I don't feel great, but I'm managing things. As a condition, it baffles me, as I don't know what is causing what.
Thank you for sharing your story. I went from thyroiditis with the goiter to hyper thyroidism to thyroiditis with Hashimoto’s. 47 years old. And it seems like every year I get a new diagnosis and there’s something wrong with me and now I have high cholesterol after my recent blood test. All I wanted was to be sent to an endocrinologist but Kaiser doesn’t want to go that route AnyWho never really connected all the things that go along with it besides the fatigue and weight gain and brain fog, I was also diagnosed with lymphocytic colitis so fun I had my gallbladder removed. I had 21 day menstrual cycles so I decided to have uterine ablation. Feel like I’m falling apart and I’m not even that old but now I know I’m not crazy. Thank you.
You are not crazy, this is a very serious condition that affects life in many ways. In order to feel good and function properly despite having that condition, constant daily effort is required and it is definitely not easy. Hold on there, I hope you get better soon. Thank you for sharing your story ❤️
After I am done with posting my Japan travel series I will share more about what I do to help myself with that condition.
Hi Alicia! I know how you feel you described my situation and illness I have every symptom you mentioned. I have Hashimottos too.
I've had an extremely hard life as well. I cant wait to hear the rest of this video
I gained a bunch of weight I decided to remove things like dairy and processed food and added kelp, magnesium and because I was constipated I ate cashews throughout the day and fruit berries and apples and pears peaches cut sugar and all processed food.
So i ate only things that were whole food like rice and potatoes instead of pasta and bread.
I stopped coffee switched to tea with almond milk and honey. ... Just stuff that is whole some.
All that excruciating body wide pain, throwing up acid, HUGE THYROID STICKING OUT OF MY FAT NECK blacking out after meals and being super tired fluctuating sleep on and on ALL WENT AWAY IN LITERALLY WEEKS!
I bever had good days like remission i am beginning to think remission is just eating better for a while.
Im on 88 mcg levothyroxine it only manages my mood and a little of my tiredness.
Anyway i had all tye stmptoms you mentioned and still do since i wrnt back to my poor diet
I'm 56 yrs old. I'm not preaching to you because I began eating bad again, regained all the weight and symptoms.
I am disabled and cannot work over this. However I now know HOW to fix it. I hope this helps you like it did me.
Thank you so very much for sharing.. I'm at a complete loss for answers with my hashimotos and I need to find a new Doctor mine retired..Wishing you much blessings ❤❤Ty again
Thk you, you are a beautiful soul helping others. Thk u
I was diagnosed with hypothyroidism 10 years ago, and about 2 or 3 weeks ago, I was diagnosed with Hashimoto's. Thank you for sharing your story.
I had fertility issues as well but looking back maybe that was for the best. Children require so much time and energy which I lacked.
You are right, it takes one’s maturity to self reflect and recognize that and lots of people unfortunately go into parenthood without that realization.
Same. I’m glad I don’t have anyone that depends on me. But in turn, as I get older, there’s no one there for me.
On my Goodness 😢 I can relate to so much of your journey with Hashimotos. It made me realise that I do need to take good care of myself and I am only now starting thyroid meds after 24 years and terrible 9 years of hyper symptoms and no doctor could tell me what was wrong , it settled in to hypo after radioactive thyroid scan and I functioned . Today I'm still trying to get a good doctor to help me and to get the right Dose of Medication that suits my body. Also Post Menopause which throws another spanner in the works . Thank you So much for Sharing your story with us and for making me realise it's not in my head that it is real and serious. None of my family understand or even care to understand Sadly they just think I'm a moaner .blushing you well .
Thank you. Your story is somewhat . I am have complicated UTI’s. Antibiotic resistant. Family doesn’t think I am sick. Thank you for your encouraging words. God Bless you indeed
I was also exposed to AFF in Navy Boot camp which caused my thyroid issues.
Oh my your childrood was really a challenge
My thyroid is verv frustrating as a grown up . But for you dealing with so much God bless you.
Your story makes me understand myself better. I couldnt understand why i was heavier than my sister my life changed about 13 years old weight gain i was called fat slob by my brother i weighted 140 lbs 4th grade monthy periods were he__ my mom took me to Dr to lose weight. Wanted me to.get off my but and get active. I couldnt lose weight until high school . I was saving my lunch money to buy something and only ate ice cream cone only for lunch . I got down to 120 lbs. But still tired falling asleep during classes in high school and grammer school.. teachers were concerned. I connect somewhat with you. But still cant imagine your hurt and pain. My tsh being 7.296 nothing compared to you.
You were probably shakey all the time from being breathless. Glad to hear your story. Your husband seems like a true hero helping you . True you almost died but you lost out on so much as a young person. I hope the best for you. Pushing yourself to go on. I just turned 75 trying to be more like you. You set a good example.. helpful. Beautiful lady.
Thank you for sharing your experinces & knowledge regarding these two thyroid conditions (I have been diagnosed w/ hypo only but have symptoms of both hypo & hyperthyroidism as well). The T4 meds (including Tirosint which has no fillers) have not helped & cause rapid heart beat. Conventional Dr.'s don't seem to know what to do & Functional are usually more knowledgeable but many (like myself) cannot afford the ongoing cost to visit them.
I hope soon you will be able to figure out how to help yourself and things will get better for you. Take care of yourself 🥰
@@AlicjaGriffiths Thank you! I really appreciate your kind words & support. 🙏💞
Ty, Ty, Ty.. There's no telling how long I may have had Hashimoto's disease but like you, I suspect since childhood. As a young adult, I stopped seeing doctors because it was always the same, depression. I had all of the visible signs of Hashimoto but doctors never put the puzzle together until I demanded THS, T3, reverse T3, T4, and TPO blood work after doing my own research. I always had normal TSH results and every time that's when every doctor stopped looking at the Thyroid. I'm angry at the lack of care and for all of the money I spent trying to find out what was wrong with me just to have diagnosed myself. Also Like you, I have a wonderful husband I married 50 years ago at 17 years old who saved my life. Thank you, GOD..
I agree that doctors are not very helpful when it comes to this condition which is terribly disappointing.
Wow you poor thing you’ve gone thru so much this is new journey for me I got long term Covid which attacked my thyroid and for a year or two I ignored my symptoms thinking it was Covid symptoms or I was to busy until I started gaining weight & was so fatigued my numbers were high 52 then within a month to get to a specialist they went to 80 so my thyroid stopped working my meds are tripled and and we will see next week with blood work if there helping so far I do not have hashimoto disease so I pray they can fix my thyroid Thank you for your video
Sounds like my story😢
Can't thank you enough for sharing this.
Thank you for watching 😘 I am glad I could help
As a 16 year old girl who's had hashimoto's my entire life, I am sick of people expecting me to be full of energy and attentive all the time. I can't even stay stood up when doing normal everyday activities because I get super tired. I'm sick of being called lazy, even if it's just a joke because I know that I want to get up and do things but physically and mentally can't do it. I have probably missed over a year or two of school but I had to make different excuses, like saying I'm just not well or threw up, because nobody will understand or care. I also suffered with severe anxiety since around 9-10 years old. I'm now home schooled since year 9 because of that, and I'm currently in year 11 which is my final year of high school. I'm finally getting over it after praying to God. I was recently diagnosed with chronic pain and fatigue so yay for me! I'm currently still under my ENT doctor for another 6-12 months because I am being monitored for thyroid cancer. I don't have cancer, my doctor is just keeping an eye on me because a nodule was found and was slightly bigger than normal. My endocrinologist told me that I shouldn't be feeling my symptoms because I'm on levothyroxine which is just a silly thing to say because that isn't even how it works, clearly. My family would start to tell me that I'm "playing on it", even my mum. Once she got hashimoto's, she never said that again. I most definitely still get all the symptoms. I sometimes can't even remember what I ate for breakfast, or a conversation that I had no more than 5 minutes ago. I'm just sick of barely being able to live my life, none of my friends have the same thing and I have nobody my age to relate to. I get pain constantly in my lymph nodes and I'm, guessing my voice box but I have no clue. It hurts when I talk sometimes that I have to stop talking, and my voice has become increasingly hoarse recently. My ENT did an ultrasound and said my thyroid looks extremely tired. I am constantly in pain, it's never ending. It is so draining. My mum has hashimoto's too, but I got it before her, weirdly. I'm the first person in my family to have Hashimoto's, from what we know. She was recently diagnosed with it this year. My mum only wants competition and to be the one who is more ill, so there's no point in trying to relate to her or complain about it to her. There's been multiple times where I've left the dishes for about a week and my family gave me a hard time about it but they truly do not understand how it feels. I also believe that my hashis could be due to stress, but my mum told me that my symptoms started when I was 2. I also am intolerant to gluten, but I'm not celiac so I still eat it so I don't become allergic to it. I am really scared that I am infertile or less fertile than the average woman because I want kids when I'm older. I also know that miscarriages is something that could happen and that's a big fear of mine. I cannot stand to lose my own child. I am so sorry this happened to you, you're so strong. I completely agree when you say that you grew up with a stressful household, I really get you on that one. I will never be stress free until I move out. My symptoms have never stopped and they won't anytime soon. I have hypothroidism, and I gained weight noticeably when I was 10. I've always felt like the bigger one compared to my friends and was bullied for being fat in primary school (I wasn't fat). This isn't even the half of it. I wouldn't wish hashimoto's on my worst enemy. I really hope you're okay and live an amazing life. God bless you.
It is a very serious condition with lots of side effects. Give yourself grace when needed but don’t let it stand in the way of living your life. You are only 16, so don’t let that condition prevent you from achieving in life. It is still possible to live life to the fullest with enough will and determination. My life would look very different now if I just accepted the fact that I was tired all the time. Despite that, I did masters degree while working very hard in a corporate finance world, had successfull careers across multiple industries and lived in 6 countries, owning properties etc. I keep fit despite the conditions and approaching 40 and eat healthy. All of that is possible cause I push myself and refuse giving up. I hope you will find right doctors that will help you to feel better and that my story will motivate you to achieve a lot in life despite that illness. Support of close ones is tremendously important, I hope your family will learn to support you in the way that you need, cause unfortunately stressful environments only worsen the condition. Take care of yourself and be strong❤️
I too have Hashimoto’s and so exhausted. I had neck pain and was put on a round of steroids for a week and felt better. Was given a second round and symptoms were gone, energy levels normalized and I felt great. Now I’m back to exhaustion, sleeping day and night and aching. Good luck with your new doctor appointment and thank you for sharing your experience. I’m wondering if steroids can be prescribed as treatment. I’m not sure if research has been done but it definitely made a huge impact on my symptoms when I had the steroid medication for the week!
Thankyou for doing this. I ha e Hashimoto hypothyroid..no one seems to know what to do especially doctors. It's totally stress related..and for the first time in my life I am non stop gaining weight no energy. I push myself. Only the ultrasound tech told me the truth telling me my gland is nonfunctional and ancient looking
Thank you for sharing your story. Nobody knows how it is until they are experiencing this and it is scary!
I had hyperthyroid 1st and i felt like i was going to have a heart attack and die. And then after months of going through hell it switched to hashimotos been dealing with it for over 15 years now and it has been awful I get alot of those symptoms and it is devastating cause i havent felt normal since I was diagnosed. I know have high anxiety and cant figure out how to control it and now I cant drive due to the high anxiety. I just found a doctor who cares and its getting a little better for me for now.
Stress!!! That's exactly how I feel that this happened to me. You are not alone. It is awful and no one understands.
😘❤️
I have hashis and have been diagnosed with me/cfs and pots... I believe my cfs and pots are related to my hashimotos...im not on thyroid meds yet but my tpo is always between 600-3000. I was in an abusive relationship for 20+ years and one day i crashed and never recovered. The anxiety is off the charts, heart palpitations, chest pain, short of breath, fatigue, intolerant of any stress ( even stressful conversations and jump scares)
Hi, may i know how do you deal with heart palpitations, anxiety and intolerant of any stress, shortness of breath? I have high TPO and TRAB and high ANA, but my doctor diagnosed me with graves disease. The problem is i have both symptoms of hypothyroid and hyperthyroid and my digestive system is totally out of whack. I have severe constipation (no feeling of bowel movement).
@@izreenfarah8689 I take a beta blocker and Ativan. I used to take Prozac as well. I have symptoms of hyper and hypo and fluctuate between the two.
Thank you for sharing your story, I myself have hashimotos but many things you talked about I never heard before.
Thank you for watching, I am sorry you also have hashimoto’s. I am glad I was able to provide more information and insight about this condition, since knowledge about full spectrum of this disease is not that common. Wishing you lots of health 😘
We have a very similar story ! Thank you for sharing ❤
🥰❤️
You are 100 right - hyperthyroid is stress induced - I’m sorry you story was so difficult 🙏💖I also had graves also radiated and live now with the horror effects - I believe killing throws dhould be illegal
It indeed should be illegal, I am sorry you are dealing with the same issues and I really appreciate your supportive and compassionate comments, thank you 🥰
Thank you so much for this video. I get down on myself because of the tiredness and often don’t eat right. Your story and encouragement has really helped me to eat better and give myself grace. God bless you ❤
I too, had a very rough childhood very daily stress as a kid and into adulthood. And still ongoing
I am sorry, I feel for you. Take care of yourself, I hope things will get better for you soon 😘
Just watched Dr Gupta, he has a book on this I've ordered. Now to start tomorrow cutting my absolute fav coffee and milk😢. Thk u ❤❤
Eating well is one piece of the puzzle, but you can still feel unwell if not on the correct thyroid hormone. Carnivore has really reduced a lot of the symptoms that comes with hashimotos, but I’m still trying to find the right hormone.
My nutritionist said she asks her hashimotos patients to take selenium and inositol at night and vitD at lunch might be worth a try!
I have Graves disease and now I have hashimoto's disease trying to figure it all out.
It is very hard. I am sorry, I hope despite that you are holding on and doing well. I am sending you love and strength ❤️
me too
A feel so related to your story. I also have hashimoto and celiac dease. Thank you for sharing.
I am sorry to hear that you suffer with those conditions as well. Stay strong 💪🏻 I have more videos in my channel related to autoimmune conditions, I hope they can help you 😘
I’m battling Hashimoto. It’s attacking other systems in my body. I went into ER twice from hashimotos. I get the heart palpitations almost to the point where I can easily. But my rheumatologist is just pinning that on my my weight gain. the inflammation has gotten out of control that it’s painful at this point. I have to even walk with a cane now for my balance and stability.
That’s so horrible, I feel for you. I know Hashimoto’s can cause a real havoc in the body. In order to start getting better, try introducing and maintain healthy diet to reduce inflammation in the body. Inflammation causes massive flare ups and makes everything worse. Healthy diet and no alcohol is the key to reduce inflammation. Good luck I hope you will get better soon.
Thank you so much for this video!
Stress plays a huge part in all disease and I too have and still struggling with hashimoto's tyroiditsis, but, it lead to my severe inflammation my whole life upper respiratory asthma, breast cancer polyps (nasal) digestion, miscarriages, endometriosis breast cancer, and now post menopause 11 years and still can't get anyone to pay attention to my T3 and t4 I'm a mess at 61.
You had nasal congestion too? Like your nose is always blocked and can’t breathe well?
Dang so many of these things are happening to me. My heart races. Hard to breathe in having a hard time getting going. I climb out of bed and later go back in bed. I try so hard not to let it affect me. My hands shake. But I’m gaining weight. I ended up in the hospital cuz my heart went crazy but they didn’t find anything wrong. I do have thyroid problems. I think hypothyroidism. I’ve had half my thyroid taken out due to a goiter. 5 years later my other half of thyroid goiter has grown but benign.
Take methylcobalamin b12 to help with the breathless part. I was diagnosed with hoshimotos and b12 is the only thing that keeps the breathlessness away
Please, please, PLEASE look into the Immune+ Protocol by Silver Fern Brand. I have Hashimoto’s, too, and I’ve had almost all the same debilitating issues as you, but this protocol is helping me.
Also please look at taking creatine for Hashimoto’s, as well.
❤
I’ve done the excessive yawning since I was a pre-teen & thought it was just an anxiety thing, but I think I’ve had hashimotos/hypothyroidism for a lot longer than I realize. So frustrating.
I joined the military when I was 17 & that really flared it up. I’ve always carried some extra weight besides a few years when I was very strictly paleo & working out constantly, which led to an ED. In Highschool they tried to put me on meds for gastritis but it didn’t help & the only thing that helped was correcting my diet.
Omg I’m yawning every day at midday since 20 years and don’t know why? But no Hashimoto discovered by me. The hormones in blood are fine and in Saliva to low progesterone and testosterone. How do you get diagnosed? Because I really have the symptoms.
Thank you for this video and explanation of Hashimoto. I have hypothyroidism since early 30s and fibromyalgia, ibs, Diverticulitis. Question, do endincrinologists, check T3, 4, etc with TSH? I hear and know that they don't anymore and I don't understand why. My t4 when checked is literally borderline. Noone checks t3. U need t4 to have t3. Tsh is produced from pituitary gland. T3, t4 produced from thyroid. Nobody has checked antibodies. I have severe hypothyroidism symptoms on .0.75 mcq levothyroxine. Some ppl need t3 and fee better.
I have 2 grandkids grandkids with very rare genetic disease that affects thyroid, and more. I am 69 now.
Yes a endo doc can test all of this.
@@DestinyStillman thank u
Eating well and exercising makes a difference..
I’m sorry this happened to you
Hi Alicjia! Thanks for sharing. Hashimoto's is awful. I'm dealing with it since my 16 yo. I''m 52. Are u on supplements too? If so, what supplemments do you take? Could you please tell us more about your diet and exercise plan? Thanks. My hug from Lisbon, Portugal.
My tsh last time i was tested was 110.41. When i was diagnosed it was 260.70.
My highest TSH level I ever got was 74 as a singlemom ... the doctor was estonished that I was still alive...😢
Oh my God!! I have no idea how did you even get out of bed and function .. that must have been an absolute nightmare.. I feel for you, I hope you are better now 🙏🏻 take care of yourself ❤️
first is gluten sensitivity, then it causes Hashimoto's. For some people milk is also a problem, or fructose etc.
Thank you so much. Can we please have an update? Also can you tell us what you eat and how you do your self care. I feel exactly like you. Please
💜💜💜🙏GOD BLESS YOU AND YOUR HUSBAND.I FEEL YOUR PAIN.😢🌹
I pray one day I get to an endocrinologist before it's too late .
Unfortunately endocrinologists aren’t always helpful. I’d research here on UA-cam, including Dr. Westin. Not against western medicine, but they seem to follow a very narrow path when it comes to the thyroid.
A functional medicine doctor is the best one to see. But they are $$
I have hashimotis and hypothroid i feel like crap!!! Ttc after having children easy and now 2 yrs on im infertile due to this.. im a diff person and strugglin to get it ubder control im so poorly. Thanks for sharing. Hope ur ok xx
I am sorry about that , I hope you will get better soon.
Thank you for sharing your story. Creating awareness is so important when it comes to chronic conditions. I'm really sorry to hear that you've had such a difficult road so far and hope that your health improves and that you stay well. I was diagnosed with Hashimoto's 10 years ago and it has been a journey to say the least. Being kind to yourself and practicing self-care without judgement can be so helpful and I'd say it's crucial for getting better. Our genes load the gun, but environment pulls the trigger as they say. And yes, stress is a huge trigger for most of us. I've mainly managed my condition through holistic means, changing my diet and lifestyle and taking supplements and Dr Izabella Wentz's work has been a massive key for me to unlock a lot of this.
I have hashimoto and I’m just 20 years old😢
Often there is another autoimmune desease.. plus hashimoto✌️ sjögren, lupus, collagenoses… etc… and it is importent to check the balance of estrogenes abs progesterone