Medication Anxiety with Dermatomyositis | Mycophenolate/ Cellcept

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  • Опубліковано 12 січ 2025

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  • @royhallam
    @royhallam 6 місяців тому +1

    So many things I agree with you.
    Can’t tell you my story it’s to long and it makes me angry.
    I feel myself that my body as not gotten a chance to self heal.
    Looking at homeopathic treatments.
    Just don’t want long term medication that’s not working for me.
    I do wish you health luck and happiness as everyone deserves in this world.

    • @spoonielove3598
      @spoonielove3598  6 місяців тому

      I really hope the alternatives work well for you. I had a very sympathetic GP today who said it was really a lot for someone to be dealing with this amount of illness and medication. I desp want to start weaning of some meds due to the damage but doing so would create havoc. It’s a no win situation. Thanks for reaching out. All the best from me ❤️

  • @katrinp9391
    @katrinp9391 2 роки тому +1

    Thank you for sharing. I haven’t had to take any medication yet other than creams for my DM but I do notice changes in me lately. Take care

  • @Danielle-oi6bq
    @Danielle-oi6bq 2 роки тому

    thank you very much. So much. For your time and sharing your journey and experience

  • @happytrails699
    @happytrails699 2 роки тому

    My son took Tamoxifen and had horrible side effects. Now he is fearful of most meds. He is considering Rituxamab treatment. Why did they stop Ritux? Did you have any pain associated with your condition and did it help with pain?

  • @iconsnicos
    @iconsnicos Рік тому

    How much of it do you take every day?

  • @melody8349
    @melody8349 2 роки тому

    I am going on 750 mg of Mycophenolate starting tonight. I really am worried about the stomach ache and vomiting side effects. Did you get those side effects right away when first taking this drug?

    • @spoonielove3598
      @spoonielove3598  2 роки тому

      Sorry I only noticed this comment! I haven’t had vomiting. I do get an upset stomach and terrible headaches :/