Thank you for your podcast. As the partner with a person with Parkinson’s helps me so much and it helps me to be more sensitive to my partner’s needs and issues that he might not necessarily share. I like the different topics you discuss. Would you do a podcast on the “mask” face meaning the losing of expression on one’s face. This is a big issue for us at this point.
I’m one year into my diagnosis and your Podcast has helped me the most. Thank you. I would love to see a show about the different subsets of Parkinson’s. Like PD 1 sunset is a mild form
Encourage your PWP to establish a routine especially in the evening. Carry a cell phone or an air tag. It will make it easier for family members to communicate and locate you. I have PD and live alone for now. I am still aware of my situation but creating habits for when symptoms sneak up on me.
I happen to find sundowning in my partner seems to make him a little more agitated. It usually starts late afternoon, around 3, and as the rest of the day/evening goes on, he seems to get frustrated more, it's hard to carry on a conversation with him without him getting more agitated and not wanting to deal with whatever it may be, especially if it's a personal business matter, things like that. I find the best times to talk with him are usually between 11 and before 3. 3:00 m may seem early to most, but it is getting close to the end of the afternoon. It's just what I find that happens in our living situation. It's not easy to deal with, for me, as the Caretaker. I believe this should be visited some more and brought up with more conversation about sundowning. Thank you for addressing this, again, I feel more needs to be discussed about this.
I have PD and I had to stop the medical marijuana because it was causing hallucinations. I also find that a glass of wine at the end of the day helps considerably. I don’t drink to get drunk I just like how it calms my anxiety, loosens my rigidity, and basically slows me down even more , I can deal with that.
When Brian said, "Hey Siri, find me a cure for Parkinson's" my phone answered! Unfortunately Siri didn't find a cure. Thank you so much for your podcasts. Very encouraging.
this is spot on,just last night as the sun was going down i had to stop my wife from going outside to see her halluciation friend across the street. advanced pd is no fun. the problem i see is the black box warning on the meds they want to give out. may cause death in some cases. its a no win situation
Dr. Patel is always an informative guest on your podcast!
Thank you for your podcast. As the partner with a person with Parkinson’s helps me so much and it helps me to be more sensitive to my partner’s needs and issues that he might not necessarily share. I like the different topics you discuss. Would you do a podcast on the “mask” face meaning the losing of expression on one’s face. This is a big issue for us at this point.
I’m one year into my diagnosis and your Podcast has helped me the most. Thank you. I would love to see a show about the different subsets of Parkinson’s. Like PD 1 sunset is a mild form
Encourage your PWP to establish a routine especially in the evening. Carry a cell phone or an air tag. It will make it easier for family members to communicate and locate you. I have PD and live alone for now. I am still aware of my situation but creating habits for when symptoms sneak up on me.
I happen to find sundowning in my partner seems to make him a little more agitated. It usually starts late afternoon, around 3, and as the rest of the day/evening goes on, he seems to get frustrated more, it's hard to carry on a conversation with him without him getting more agitated and not wanting to deal with whatever it may be, especially if it's a personal business matter, things like that. I find the best times to talk with him are usually between 11 and before 3. 3:00 m may seem early to most, but it is getting close to the end of the afternoon. It's just what I find that happens in our living situation. It's not easy to deal with, for me, as the Caretaker.
I believe this should be visited some more and brought up with more conversation about sundowning.
Thank you for addressing this, again, I feel more needs to be discussed about this.
I agree. Will do. Maybe I can bring on a carepartner to talk about it.
I have PD and I had to stop the medical marijuana because it was causing hallucinations. I also find that a glass of wine at the end of the day helps considerably. I don’t drink to get drunk I just like how it calms my anxiety, loosens my rigidity, and basically slows me down even more , I can deal with that.
When Brian said, "Hey Siri, find me a cure for Parkinson's" my phone answered! Unfortunately Siri didn't find a cure. Thank you so much for your podcasts. Very encouraging.
Haha! That's funny about Siri hearing Brian!
this is spot on,just last night as the sun was going down i had to stop my wife from going outside to see her halluciation friend across the street. advanced pd is no fun. the problem i see is the black box warning on the meds they want to give out. may cause death in some cases. its a no win situation