For more on this topic, we're having a live webinar on October 16, 2024, which will focus on fostering good relationships with a care team. Details here: davisphinneyfoundation.org/event/building-your-care-team-tips-for-better-care-wherever-you-are/
how often do you contact you neurologists? twice a year? If you have dbs in ontario do you need to be exhibiting symptoms on both sides? ... I'm mostly right side tremor dominate - etc but the levodopa seems to be working less and less ... and need it twice a night also ... or else my tremor will keep me awake
The panelists see their neurologists at different intervals based on their needs and their providers availability. Most are between 2-4 visits per year, but some are more frequently, especially depending on treatment changes that may be necessary. Some panelists also communicate using online patient portals (when available) to correspond with one their provider as needed. DBS can be performed for unilateral or bilateral symptoms, and because Parkinson's is progressive, periodic updates to levodopa dosing are pretty common. You might ask your neurologist if a modification is warranted next time you see them.
While we don't offer individually tailored medication advice, we're happy to help with general information. Levodopa is known to cause nausea and sometimes vomiting, especially when taken without carbidopa or a similar additional medication to work against these impacts. Some people find additional benefit regarding nausea from taking each dose with a full glass of water or some food. Note though that food may decrease absorption and lower the impact of each dose of levodopa; this doesn't impact all people to the same degree, and if it lessens the your decreases stomach upset, it could be a worthwhile tradeoff. Please don't hesitate to reach out to us at blog@dpf.org.
Should always speak with your doc. Personal for me, I try taking it with a light broth or soup. Plus tonnes of water more on an empty stomach hit me more. Try a cracker some food that takes edge off. Find what works
So absolutely true. A doctor & patient relationship is so important !!!!
For more on this topic, we're having a live webinar on October 16, 2024, which will focus on fostering good relationships with a care team. Details here: davisphinneyfoundation.org/event/building-your-care-team-tips-for-better-care-wherever-you-are/
Thanks everyone. 😊
I was diagnosed with Parkinson's in China too and came back about 2 and 1/2 years ago-ish
how often do you contact you neurologists? twice a year? If you have dbs in ontario do you need to be exhibiting symptoms on both sides? ... I'm mostly right side tremor dominate - etc but the levodopa seems to be working less and less ... and need it twice a night also ... or else my tremor will keep me awake
The panelists see their neurologists at different intervals based on their needs and their providers availability. Most are between 2-4 visits per year, but some are more frequently, especially depending on treatment changes that may be necessary. Some panelists also communicate using online patient portals (when available) to correspond with one their provider as needed.
DBS can be performed for unilateral or bilateral symptoms, and because Parkinson's is progressive, periodic updates to levodopa dosing are pretty common. You might ask your neurologist if a modification is warranted next time you see them.
Does anyone know if levodopa makes a difference rather than taking levodopa’s
Causing me to vomit dr says not tolore
While we don't offer individually tailored medication advice, we're happy to help with general information. Levodopa is known to cause nausea and sometimes vomiting, especially when taken without carbidopa or a similar additional medication to work against these impacts. Some people find additional benefit regarding nausea from taking each dose with a full glass of water or some food. Note though that food may decrease absorption and lower the impact of each dose of levodopa; this doesn't impact all people to the same degree, and if it lessens the your decreases stomach upset, it could be a worthwhile tradeoff.
Please don't hesitate to reach out to us at blog@dpf.org.
Should always speak with your doc. Personal for me, I try taking it with a light broth or soup. Plus tonnes of water more on an empty stomach hit me more. Try a cracker some food that takes edge off. Find what works