How I Got Diagnosed with Leukemia : AML (In My 20’s) | The Patient Story
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- Опубліковано 28 чер 2024
- In this segment, Michele describes what her first symptoms were before she was diagnosed with acute myeloid leukemia, or AML. She also shares the pain of dealing with a cancer diagnosis at just 24 years old, and what she had to figure out before her long hospital stays.
This series:
Michele G. shares her acute myeloid leukemia (AML) story. She was diagnosed with the blood cancer when she was just 24 years old. She shares the toughest times and what she’s been able to take away from going through cancer treatment and a stem cell transplant, not once - but twice.
Our entire series segments are set to be published all this week at 9am 9T/12pm ET, so subscribe for the notifications!
9/15: How I Got Diagnosed
9/16: Going Through AML Treatment & Side Effects
9/17: My Relapse & Treatment
9/18: Survivorship: Life After Diagnosis
Navigation → see below for time codes to different subsections
Full story & transcript → Updated Soon at www.ThePatientStory.com
The interview has only been edited for clarity.
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Contents of this video:
00:00 - Intro
1:10 - About Michele
1:54 - First Symptom
4:31 - When I realised how serious this can be
6:48 - How I got through scanxiety
11:10 - How my doctor first broke the news
12:32 - Recalling the moment of diagnosis
14:11 - Breaking the news to friends & family
18:50 - How my doctor described AML
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#Leukemia #AML#ThePatientStory #Cancer #bloodcancer #cancersurvivor
to the people who have bad anxiety and judt worry in general PLEASE DO NOT WORRY. self diagnosing yourself is one of the most draining things. i have the same symptoms as michelle + many more that have to do with leukemia. it drove me nuts honestly. i went to the doctor and they said i need to do pt, and for the scratching its environmental. symptoms are rhe same as so many other stuff. (fyi i got bloodwork and they said i was healthy). i still do encourage u go to the doctor if u see anything off, especially weight loss (not on purpose). PLEASE DONT SELF DIAGNOSE IM BEGGING YOU.
I’ve been having such terrible anxiety because I have almost every symptom. The fatigue, itching all over my body, bruising and the muscle and joint pains. I did bloods a month ago and everything was fine but all this new stuff came up and it’s driving me insane. I keep on googling and I’ve convinced myself that I have leukemia but when I went to my doctor when the bruises came up, he said it was fine and told me to take anti inflammatories…my mom says she believes nothing is wrong with me as well and it’s all in my head so idk.
Same here, it’s sucks and doctor doesn’t want to do another blood work since I had one 7 months ago and everything was normal 😔
Good 4 u Michelle ur parents were there. My daughter khrystelle was admitted at Memorial hospital west at Miami she has AML .Her constant companion s our God coz we r here n d Philippines. Hope somebody could reach out 2 her. God bless ❤❤❤
My nephew was diagnosed with Leukemia AML. They gave him chemotherapy and he died from the side effect, his stomach got inflamed and released bacteria which caused sepsis. We are so upset and feel that is negligence.
Such an informative and organized channel. Thank you for asking in depth specifics like symptoms and also showing metrics like blood counts and graphics.
Also should add, thank you to these brave warriors for sharing their stories.
Thank you so much! So glad it was helpful.
My fiancé also diagnosed of acute lymphoblastic leukemia last Nov.21 2021..
@@neciealcarezofficial9264hope she doing great ...
Lovely Testimony Doll🙏🏾🙏🏾🙏🏾 I'm a testimony as well💕
Amazing to hear! 💕
Thanks for doing videos ladys
Thank you for sharing your life ❤️you are an inspiration🦋Godbless.you💐
Thank you for your kind words to Michele!
Let me explain why we feel tired. This is a symptom of cells not producing enough of energy. This process is disrupted by insufficient delivery of oxygen to the cells. For this to happen, oxygen that we breathe must bind to Iron molecules. Both molecules are wrapped inside hemoglobin (red blood cells) and as a package are moved around our bodies. Now, when we do not have enough Iron, which we should get from the food we eat, cells are lacking oxygen. The best source of Iron is red meat, eggs & fish. Even if we eat these items, we maybe anemic. This happens because absorption of Iron and other nutrients is disrupted in our gut. The main cause is incorrect level of ph of our stomach acid. Stomach acid should be very acidic in order to properly breakdown proteins. You maybe tempted to get Iron from plants. The problem is they do not contain sufficient levels of Iron and iron from plants is not easily available for our bodies to process. So, if you experiencing symptoms like acid reflux, thinning and losing hair, chipping nails, constantly feeling tired, then you have serious problems.
Don't put yourself at risk. Eat healthy, don't smoke, exercise, don't sleep late, have at least 6-8 hours of sleep... Practice drinking black coffee in the morning and green tea at night time. Those are super healthy bevarages known to protect your body against illnesses.
All of those things won’t always prevent someone from getting cancer .
@@gillmiller3702 i guess it's better than nothing at all.
@@gillmiller3702 Just because you drive your car easy doesn't mean you won't ever have to get an oil change. It's about prolonging more than preventing. Preventing disease is impossible for most people. Prolonging health and life is possible for most people. 🤷♂️
Hello 👋 anything different your doing after treatment ?
I'm seeing a lot of very healthy lifestyle people getting cancers these days..
That has always been the case
@@ToRunOutOfLuck really? They tell us constantly it's the smokers, drinkers and junk eaters prone to cancer more..
@@emptythoughts_8cancer occurs when cells goes through mutilation. It can happen to anyone as cell dies and new cell borns. Bigger the person more chances of the person getting cancer
yeahhh its true,,why african people that they dont have enough food to eat,,some eat a soil cookies,,but they are still alive,,no uncurable disease,,only their stomach,hungry,no food to eat😢😢😢
@@TraceyMariexxThey get it more.
Mother: Smoker--Breast cancer, lung cancer. (My father also smoked like a chimney and probably died of lung cancer. He was too stubborn to get checked.)
Brother: Smoker--Melanoma (also, of course, sun exposure is the main factor).
Cousin: 100+ lbs overweight living on fast food--Colon cancer.
There are some cancers that have nothing to do with dietary or lifestyle choices, though.
I I get what she means about the pitty, I can’t stand it either! If I ever got cancer, the only people to know would be my immediate family
My son was diagnosed with AML in 2019 when he was 19.
What happen to him since
@@ffardoun7544 He's completed treatment in September of 2019, got married last summer, and now they're expecting their first baby in September. His oncologist was quite shocked about the last part!
@@AS-yz2izSo happy for him. God bless him, wife n baby.
@@vijayaletchumy976 Thank you.
Hi, my mom’s diagnostic is T-Lymphoma with Sezary syndrome. She is treated with Poteligeo. Her skin was flaky but after 2 treatments, the skin looks good, no flaky. BUT, the worse thing is the itching all over the body. No creams help her. What should we try to calm the itching on the skin? It doesn't let her sleep. How can we help her?
Such sad.
I am waiting for my son's results,they told me that he has leukemia.13y old boy,n active boy,he always eats well,always cheerful,positive,but...
How is he doing
How is he doing?
How is he? My son had AML in 2019.
How to detect multiple myeloma
I had all those symptoms every one I had cancer in my thyroid but I still have those symptoms I still have nose bleeds I’m beginning to have a low grade fever so
Hi Jovita, we don't give medical advice but please seek medical attention if you don't feel well or think something is not right. It's important to make sure you get all the answers you deserve. Good luck to you. -Stephanie
Also and ER Docter tell me one time when i had a reaction to an antibiotic BAG , Just tell your doctor you had a Jhonny redface reaction when my brother ask what was that he allergic to.????? Johnny redface ??
I had my labs done today and that’s exactly how I was, I was really really itchy on my legs and got nasty bruises
Results? Hopefully good news?
@@swayzy762 my iron levels are 1 and my blood count isn’t off by much but I have more checkups to come
@Cheyenne Davis Ah. Mine is slightly below 1. I have had 3 consecutive days worth of blood tests while hospitalized and no diagnosis, but I'm headed toward one. My PCP reviewed the lab results and is really concerned. Luckily she hasn't mentioned any sort of blood cancer, she's suspecting I may have hemolytic anemia which wouldn't have anything to do with my iron levels. My blood tests and physical symptoms suggest it's a good possibility. A normal billiruben test should show 0.3-1.3mg/dl, someone with Gilbert's Syndrome tends to have between 2-3. Mine the first test was 5.7 and the following day 6.5. She's ordered more tests for me next week and wants to monitor my levels since I had some significant downward trend on things like Hemoglobin and Hematocrit over 3 days in a row. May the odds ever be in our favors! Lol side note: I feel like garbage more every day 🙃
@@swayzy762 me too, more and more tired
@@cheyennedavis9841how are you doing now? The really I read ear he’d was because I just got random bruises. So am paranoid a bit now
Sorry if i bugging people but worried,im just like my dad. He was 56, i 56. But something going on ,oh dad not have rash . Me bad rashes off and on
My Dad had no symptoms,well one night he had a fever 102next night 104 so went to hospital,next morning they ask so yo never been diagnosed with leukemia, talking about hemoglobin platelets and things. Said worst case they seen . Louisville Kentucky. ??????? CAN A oh rash be a first symtom ,i have had many like 1 every year or so most i get a very small cut very small and it turns into a bad rash sometimes. I get cuts that heal ok most of the time, the rash/ sore goes from a oh very small poke to a spreading red scaly,spliting, healing then gets bad agian , but anti boiotics clears it up . ?????
Dad did try they say no risk chemotherapy,I know what that means now, he did go to zero blood count and it was supposed to go to ohh I think 8, but at 3 they let him come home,I know y now.
Some cancers are related to lifestyle issues. Others are immune related or even genetic. Cancer is a general term for a widely varied group of diseases.
Yes, rash can be the first sign of Leukemia.
Oh also doc say my B 12 blood count hi and ask if i took any vitamins b12 i not
He say he test for it but I don't think he did , he think I worry wart. Witch ya a bit. But wonder why I get this rash sore , most time a reason at beginning, doctor say 1 time my athlete foot fuguis get in sore on side of butt. Any body have any ideal
Is leukemia true?
My niece has AML we are soo desperate right now pls help us 😢none of us match for a donor pls help us
How can we help
How can I help
I lost some space that was for important things ..
I also have athletes feet medium.
And severe panic attacks
Which stage was it
For leukemia there are no stages it’s just different types of it
They often look at your WBC count at diagnosis and if there are cancer cells in the spinal fluid. They also look for chromosomal abnormalities and genetic mutations. My son had AML in 2019. They gave him a 50% chance of surviving.
My son AML no cure 1999 relapse an passed he had. It since 1998. He mental challenge no hope he suffered no hospice either put in alot of adults God took him home age 19anhalf miss him dearly wouldn't give him a bone marrow transplant got it from tegortal anti sezure med used for behavioral
@@AS-yz2izhope he is with sound health now
Ppt test
Sweet gal.