Well thank you very much and I'm happy to see more comments from you. I checked out some of your haha videos yesterday. You should start uploading more videos. Would love to watch or listen.
This is awesome Vincent! Yes, there are so many of us and I think that I've collected more than 100 or almost 200 on my website, but I keep finding more. LOL!
I will definitely be checking out the website today. Cuz I have a little bit of free time on my hands after I clean my house that will be the first thing I do. I will admit I'm horrible when it comes to Facebook and websites. I usually just avoid them at all costs because of my vision.
Well thank you very much and hope to see more comments from you as well when those videos come up. I can give you a hint, so far it's worth it. Low vision specialist definitely helps. I will check out your channel And subscribe. Thank you hope to chat more soon
One of the biggest struggles I believe is not knowing. Not knowing on any situation drives me crazy! Here's to you finding an answer very soon! Great video showing awareness of the different situations with people with the same condition.
Thank you for the awesome reply in your kind words. I agree it's horrible not knowing. I guess for me it's the fact of knowing if I'm going to lose more Vision dramatically 4 am I going to lose vision slowly or will it just stay stable. It's that sense of mind I feel I need to move forward in my life. But like I said in the video if it takes too long I will just jot it as l h o n. But hopefully I get the answer I want. Is nice to see more comments from you by the way. Always fun chatting.
Finding answers is always a good thing especially when you are trying to figure out what you have. I know it’s likely not going to fix anything but it’s also good to know what you have and to rule everything else out.
Exactly my thought process. There's things I would like to know like, am I going to lose my vision fast or slow, am I going to lose all my vision or will it stay the way it is? Knowing a diagnosis properly will ease my thought processes and worries. Whether it be bad or good I just would like to know. So that I can move on with my life.
I thought it was catchy. It fits us perfectly don't you think? We should all be careful though Matt and Cory might just be starting a cult! LOL Just kidding! I just think that this is awesome how we're all getting together in one big place on UA-cam. If there was ever a time for awareness being spread it is now. We are all doing such a good job.
Yes I am, but I don't go on Facebook all too often. I'm still learning TalkBack and nvda. I get frustrated at times and just stay clear of frustrations like Facebook. I have a hard time navigating the pages. I will get better this is my next challenge as I had problems with Messenger to but now I'm a champ at it. I'm learning each and every day.
hi Vincent. Wow good luck at your appointment in June. I like that you’re going with what your instinct is telling you. I got choked up as well when I watched mats video that he put together. Looking forward to listening to more of your videos.
I checked out your channel as well and I look forward to more videos from you. I've noticed that you are a go happy person and like to be a positive person. So I am looking forward to more videos from you as well. And thank you for your concern. I hope I do get the answers I want. But if not that's okay life still goes on.
Well thank you for watching more episodes on my channel. It will be great to get to know you. Thank you for watching and I hope as well that I get the answers I want.
Wow! Honestly, I never heard of LHON until I heard a podcast by a lady named Maria Johnson. It’s called Girl Gone Blind. I have a medical background, and I knew about the most commonly known conditions like Glaucoma, cataracts, but until recently, I learned about Retinitis Pigmentosa (I know a lot of people with that, including my Love) Leiber’s, a friend of mine sees no colors at all with poor acuity and LHON. I even knew a young lady born without eyes. I’m still in awe of the various conditions that can affect the eyes. I research many to get a better understanding of what someone else might by dealing with and how it may impact them. BTW, your logo is pretty badass. 👍🏽😉
My logo is not half as bad ass as your comments are. LOL you always have so much knowledge intelligent things to say. And you're funny as hell. I didn't realize how many eye conditions there were two lists are going to peer support groups. I learned to something called the trifecta which is someone that has like four or five different eye conditions at once. Pretty crazy.
HEY VINCENT, I AM BLESSED THAT I GOT TO BE A SUB ON YOUR PAGE THROUGH MATT AND CORRY. YOUR A AWESOME GUY AND I HAVE ENJOYED YOUR VIDEOS. I LOVE THAT.. ARMY OF AWARENESS!!! AWESOME !!! TAKE CARE MY FRIEND AND I WILL SAY A PRAYER THAT ALL YOUR ANSWERS WILL BE ANSWERED.. HUGS1!!
Great video! Mats video was very cool! It’s sad but it took me all morning to figure out how in the world to subscribe to other channels on UA-cam using flick motions. I would usually just make my sister do it LOL but can’t always make her do it! I’ll be going through a few of the channels on mats video subscribing today! Glad you’re figuring out exactly what you have concerning your eyesight. It’s so frustrating to be told one thing by one doctor and told another thing by another. Hope you have a great day
Thank you for the comment, the cool thing is most of us are not going anywhere anytime soon. So just take your time and subscribe. I have been visually impaired now for about a year and still I am learning TalkBack. So I find things to be quite a pain for me at times. Have a happy Easter.
Definitely was cool. And yes I hope that this is the end of my trail on figuring it out. But I won't know until my next appointment and they decide whatever test they want to make me a guinea pig for next. LOL Happy UA-cam video hunting.
Thank you for the comment. There are so many of us each and every day I'm finding more and more. This is awesome. Thanks for commenting hope to see more comments from you. I've subscribed to your channel as well and I will be checking out your videos soon.
I’ve been amazed at how many blind youtubers there are! I’m only the second person in my family to have an eye disease. The other is my second cousin. Our eye diseases are related and probably caused by the same autoimmune disease.
What disease is that if you do not mind me asking? I don't want to be nosy so if you don't want to answer that is okay. Cuz I know l e h o n is a mitochondrial disease and that is the same thing as a autoimmune disease. Some people with LH on get something called Plus. L h o n Plus is when you have multiple sclerosis symptoms including and I condition disease.
Vincent Grasso My Visually Impaired Life I have a type of uveitis and optic neuritis. My cousin has had severe optic neuritis. She’s been diagnosed with Behçhets disease. My rheumatologist thinks I have rheumatoid arthritis or Behçets. I think it’s the latter. Even though it’s not supposed to run in families, a lot of people in my family have it.
@@strawberryseed1886 well I've done a lot of blood work and I've been to Rheumatology as well. I have found that I have no immune diseases to be seen. All my blood work was good. So the l h o n still stands. However, thank you so much for this added information because I had never heard of this condition. I will definitely look into it and mention it to my doctor. Thank you so much.
Vincent Grasso My Visually Impaired Life it’s really hard not knowing for sure. I actually hope you don’t have it or any autoimmune disease. The meds are really harsh. I’ve been through hell and back just because of the meds. I don’t wish that on anyone.
@@strawberryseed1886 thank you so much for your concern and all the info. It truly means a lot to me. So far so good though on the immune diseases. I'm looking healthy and this is just likely a concern. But only time will tell again thank you so much it's people like you that are the reason I do UA-cam and make so many new friends.
Was up! Well I will tell you the sky, the clouds oh, and a whole lot of other planets out there in the solar system. LOL just kidding. What's up well I will tell you the sky the cloud Zone and a whole lot of other planets out there in the solar system well just kidding how are you How are you? ️ ☺️
Yeah, when I started my UA-cam channel me and many others became one big knit family on UA-cam. Most of us blind UA-camrs keep in communication from time to time. But remember Brian, before I started my UA-cam channel I got on the good old UA-cam to learn about my blindness amongst other things that I was going through. I came across videos from people like Sam from the blind life, how Casey sees it etc and you my friend. You guys were all inspiration for me. Starting this UA-cam channel was definitely the most therapeutic thing I did for my blindness. Hopefully I can get the time and willpower to make more videos soon. Thanks for checking out the channel.
Great video. I’ve really enjoyed your Channel.
Well thank you very much and I'm happy to see more comments from you. I checked out some of your haha videos yesterday. You should start uploading more videos. Would love to watch or listen.
This is awesome Vincent! Yes, there are so many of us and I think that I've collected more than 100 or almost 200 on my website, but I keep finding more. LOL!
I will definitely be checking out the website today. Cuz I have a little bit of free time on my hands after I clean my house that will be the first thing I do. I will admit I'm horrible when it comes to Facebook and websites. I usually just avoid them at all costs because of my vision.
Looking forward to hearing more about the low vision specialist visit
Well thank you very much and hope to see more comments from you as well when those videos come up. I can give you a hint, so far it's worth it. Low vision specialist definitely helps. I will check out your channel And subscribe. Thank you hope to chat more soon
One of the biggest struggles I believe is not knowing. Not knowing on any situation drives me crazy! Here's to you finding an answer very soon! Great video showing awareness of the different situations with people with the same condition.
Thank you for the awesome reply in your kind words. I agree it's horrible not knowing. I guess for me it's the fact of knowing if I'm going to lose more Vision dramatically 4 am I going to lose vision slowly or will it just stay stable. It's that sense of mind I feel I need to move forward in my life.
But like I said in the video if it takes too long I will just jot it as l h o n. But hopefully I get the answer I want. Is nice to see more comments from you by the way. Always fun chatting.
Finding answers is always a good thing especially when you are trying to figure out what you have. I know it’s likely not going to fix anything but it’s also good to know what you have and to rule everything else out.
Exactly my thought process. There's things I would like to know like, am I going to lose my vision fast or slow, am I going to lose all my vision or will it stay the way it is?
Knowing a diagnosis properly will ease my thought processes and worries. Whether it be bad or good I just would like to know. So that I can move on with my life.
An army of awareness! Nice!
I thought it was catchy. It fits us perfectly don't you think?
We should all be careful though Matt and Cory might just be starting a cult! LOL
Just kidding! I just think that this is awesome how we're all getting together in one big place on UA-cam. If there was ever a time for awareness being spread it is now. We are all doing such a good job.
Yes! We have all created a great, tight knit, little community here! Are you on Carries fb group?
Yes I am, but I don't go on Facebook all too often. I'm still learning TalkBack and nvda. I get frustrated at times and just stay clear of frustrations like Facebook. I have a hard time navigating the pages.
I will get better this is my next challenge as I had problems with Messenger to but now I'm a champ at it. I'm learning each and every day.
hi Vincent. Wow good luck at your appointment in June. I like that you’re going with what your instinct is telling you. I got choked up as well when I watched mats video that he put together. Looking forward to listening to more of your videos.
I checked out your channel as well and I look forward to more videos from you. I've noticed that you are a go happy person and like to be a positive person. So I am looking forward to more videos from you as well. And thank you for your concern. I hope I do get the answers I want. But if not that's okay life still goes on.
Hi Vincent I'm new to your channel through Matt and Corey .Great video I hope you get the results you been waiting for .
Well thank you for watching more episodes on my channel. It will be great to get to know you. Thank you for watching and I hope as well that I get the answers I want.
Wow! Honestly, I never heard of LHON until I heard a podcast by a lady named Maria Johnson. It’s called Girl Gone Blind.
I have a medical background, and I knew about the most commonly known conditions like Glaucoma, cataracts, but until recently, I learned about Retinitis Pigmentosa (I know a lot of people with that, including my Love) Leiber’s, a friend of mine sees no colors at all with poor acuity and LHON. I even knew a young lady born without eyes.
I’m still in awe of the various conditions that can affect the eyes. I research many to get a better understanding of what someone else might by dealing with and how it may impact them.
BTW, your logo is pretty badass. 👍🏽😉
My logo is not half as bad ass as your comments are. LOL you always have so much knowledge intelligent things to say. And you're funny as hell.
I didn't realize how many eye conditions there were two lists are going to peer support groups. I learned to something called the trifecta which is someone that has like four or five different eye conditions at once. Pretty crazy.
Thanks for the video. Very interesting and shows how little is known about so many eye problems
Thank you man, it's always crazy when even the best doctors of Boston throw their hands up in the air. Shows how complicated the human eyes are.
HEY VINCENT,
I AM BLESSED THAT I GOT TO BE A SUB ON YOUR PAGE THROUGH MATT AND CORRY. YOUR A AWESOME GUY AND I HAVE ENJOYED YOUR VIDEOS. I LOVE THAT.. ARMY OF AWARENESS!!! AWESOME !!!
TAKE CARE MY FRIEND AND I WILL SAY A PRAYER THAT ALL YOUR ANSWERS WILL BE ANSWERED.. HUGS1!!
Great video! Mats video was very cool! It’s sad but it took me all morning to figure out how in the world to subscribe to other channels on UA-cam using flick motions. I would usually just make my sister do it LOL but can’t always make her do it! I’ll be going through a few of the channels on mats video subscribing today! Glad you’re figuring out exactly what you have concerning your eyesight. It’s so frustrating to be told one thing by one doctor and told another thing by another. Hope you have a great day
Thank you for the comment, the cool thing is most of us are not going anywhere anytime soon. So just take your time and subscribe.
I have been visually impaired now for about a year and still I am learning TalkBack. So I find things to be quite a pain for me at times. Have a happy Easter.
Great video I'm glad you might have finally found an answer. Matt video was so cool I've subbed to a few already ab about to add more.
Definitely was cool. And yes I hope that this is the end of my trail on figuring it out. But I won't know until my next appointment and they decide whatever test they want to make me a guinea pig for next. LOL
Happy UA-cam video hunting.
So true! I have been amazed as well about how many visually impaired UA-camrs there are! It’s crazy and yes, army of awareness! 🙌🏻
Thank you for the comment. There are so many of us each and every day I'm finding more and more. This is awesome.
Thanks for commenting hope to see more comments from you. I've subscribed to your channel as well and I will be checking out your videos soon.
It's always something, smiley. 😊
True that! I agree with you completely it is always something.
I’ve been amazed at how many blind youtubers there are! I’m only the second person in my family to have an eye disease. The other is my second cousin. Our eye diseases are related and probably caused by the same autoimmune disease.
What disease is that if you do not mind me asking?
I don't want to be nosy so if you don't want to answer that is okay. Cuz I know l e h o n is a mitochondrial disease and that is the same thing as a autoimmune disease. Some people with LH on get something called Plus. L h o n Plus is when you have multiple sclerosis symptoms including and I condition disease.
Vincent Grasso My Visually Impaired Life I have a type of uveitis and optic neuritis. My cousin has had severe optic neuritis. She’s been diagnosed with Behçhets disease. My rheumatologist thinks I have rheumatoid arthritis or Behçets. I think it’s the latter. Even though it’s not supposed to run in families, a lot of people in my family have it.
@@strawberryseed1886 well I've done a lot of blood work and I've been to Rheumatology as well. I have found that I have no immune diseases to be seen. All my blood work was good. So the l h o n still stands. However, thank you so much for this added information because I had never heard of this condition. I will definitely look into it and mention it to my doctor. Thank you so much.
Vincent Grasso My Visually Impaired Life it’s really hard not knowing for sure. I actually hope you don’t have it or any autoimmune disease. The meds are really harsh. I’ve been through hell and back just because of the meds. I don’t wish that on anyone.
@@strawberryseed1886 thank you so much for your concern and all the info. It truly means a lot to me. So far so good though on the immune diseases. I'm looking healthy and this is just likely a concern. But only time will tell again thank you so much it's people like you that are the reason I do UA-cam and make so many new friends.
Was up😊
Was up! Well I will tell you the sky, the clouds oh, and a whole lot of other planets out there in the solar system. LOL just kidding. What's up well I will tell you the sky the cloud Zone and a whole lot of other planets out there in the solar system well just kidding how are you
How are you? ️ ☺️
Vincent Grasso My Visually Impaired Life I'm doing good you goof ball lol never knew a blind person have such good sense of humor LOL 😂😂😂😂😂😭😭😭😭😂
Me2
Is there anyway we could talk in private
Just send me an email to myvisuallyimpairedlife@gmail.com
Daaaamn when I started my channel in 2011 the only LHON vides were Jeremy's world blind golf videos and me how things have grown 👏😃🦯🧑🦯
Yeah, when I started my UA-cam channel me and many others became one big knit family on UA-cam. Most of us blind UA-camrs keep in communication from time to time.
But remember Brian, before I started my UA-cam channel I got on the good old UA-cam to learn about my blindness amongst other things that I was going through. I came across videos from people like Sam from the blind life, how Casey sees it etc and you my friend. You guys were all inspiration for me.
Starting this UA-cam channel was definitely the most therapeutic thing I did for my blindness. Hopefully I can get the time and willpower to make more videos soon. Thanks for checking out the channel.