I’m 6 months post chemo for pancreatic cancer, I could not figure out why my brain has been so foggy, hearing your story helps me to understand and know I’m not going crazy. Good luck with your battle!
@ 3:58 .. that entire second is lovely 3:48.5 - 3:49.5 was nice too, but the I particularly love the dedication on the first one. It's given its own direction, complete on its own path.
Great video! 3rd yr remish and I'm still "dropping" words, thoughts, getting "foggy" etc... thank goodness for my wife. She knows the second it happens and is right there to help. Word association or just repeating my last sentences always puts me back on target. If there is anything i can do to help, please contact me. DLBcL 6 Chemo x 30 rad. Diagnosed Aug 25, 2010
Michael, I found this video and your comment very spot on target. If I could ask, how are you feeling, at this point, in your remission recovey? Are the cognitive effects diminishing and improving over time? Thank you, for any response to my questions.
+Matt Waight Hi Matt, thanks for your response! hope this finds you well. :) Yes, in the bigger picture I am probably 40%-50% better. Mostly happens now when fatigue and/or stress have me worn out. The "bouts" are a bit longer but an overall improvement is noticed. What are you feeling or experiencing now? Are you able to exercise some?
Is there anything good about chemo besides staying alive on this hellish earth for 'a little longer?' I decided today I'm not having it. I have not read anywhere or seen anywhere and no one can convince me that loosing teeth and hair and memory and shrivelling up ...is worth torture. Granted, the tumor was the worst pain I have ever been thru. But now that it was taken out I shouldn't get a tumor back. I'm in my 50s and life has been really hard anyway. My dogs are old and they are the only reason I need to live anyway. Once their gone I don't need to be here. I have no husband to take care of me. Son in prison. Never known my grandson. So there's no reason to fight for life. I just wanted the pain gone. And I really am looking for one person to tell me that chemo is worth it besides just LIFE. Because life isn't worth living if your half dying anyway. And apparently that's all chemo does, is kill you slowly. :(
We are sorry to read of your current situation and can see it is therefore likely to be a difficult time for you. It feels as if the decision you have taken not have chemotherapy treatment has been difficult. If you would find it helpful to talk to someone about how you are feeling and you are not in the UK, you could consider reaching out to the lymphoma coalition. We send you our very best wishes
In a lot of ways I’m like you but I did have aggressive surgery and chemo and radiation. I had very difficult side effects during it all and even now. I finished tx in Dec. I don’t have family just an elderly dog I worry about so was it worth it? I’m not sure
Just be patient with her. I still have that. Not nearly as badly. 9 months after my treatment finished. It will return. Be kind to her. She will be enormously frustrated by it. But it will pass. I promise. X
Hi there, thanks for the video. I am leaning on 5 years in remission and I was wondering if Chemo brain is still relevant 5 years after treatment? I struggle with memory, concentration and fogginess while working and carrying out tasks during work hours and I almost hardly get things done due to these symptoms and need assistance from team members. I follow a healthy eating regime and fitness program as well.
We're sorry to learn that you're struggling with memory, concentration and fogginess, and this is effecting your day to day activities; I imagine this must be very difficult for you. How long chemo brain can affect someone, is very individual. For many people, chemo brain usually gets better over time, though for some people the effects last much longer, and we have heard for some people, this can be many years. I do hope our information will be helpful in managing your symptoms, and please do consider contacting your medical team to see if they can refer you on to a specialist if you feel this would be helpful, (as per the details in our information here: lymphoma-action.org.uk/about-lymphoma-side-effects-treatment/chemo-brain-cancer-related-cognitive-impairment We send our best wishes to you.
my son was diagnosed with hl stage 2b with bulky in 2014, he finished treatment on his 13 birthday, september 24, 2014. he is a junior in high school and wanted to be a doctor after but is worried about the chemo brain and how it is going to effect that. he is an A/B student, so i haven't noticed him struggle. he is struggling and as his mom i am trying to figure out how to help him. i don't want to see him drop his dreams of being a doctor and playing football in college. can you offer any suggestions? thanks for your video, it has helped a little.
Hi Monica, We're sorry to hear your son was diagnosed with Hodgkin lymphoma and can appreciate this has likely been a difficult time, particularly as you are both worried about chemo brain. We have more information on our website about this, and if you would find this helpful, you can read about it here: lymphoma-action.org.uk/index.php/about-lymphoma-side-effects-treatment/chemo-brain-cancer-related-cognitive-impairment We would also encourage you to speak to your sons medical team, with any concerns that you may have. We send our best wishes to you and your son.
@@LymphomaAction thank you so much, i actually went to your site right after seeing this video. he's starting his fifth year in remission and so far this is the only side effect.
Hello Ruby, 'Chemo-brain' can affect lots of people in different ways, if you head over to our website you can read our information page all about the signs and how your doctor or nurse might asses you for it - www.lymphomas.org.uk/about-lymphoma/treatment/side-effects-lymphoma-treatment/%E2%80%98chemo-brain%E2%80%99-cancer-related-cognitive If you need to talk to someone about how you are feeling our helpline is open 10am-3pm on 0808 808 5555, or you can email us at information@lymphomas.org.uk at any time. Best wishes, Katherine
I’m 12 weeks post chemo and my brain is driving me insane. I forget words. And my memory isn’t great. I would’ve thought I’d be doing much better by now. I’m very frustrated with myself and get upset about how stupid I am.
How are you doing now? I hope that you are faring better and that you continue to have grace for yourself. After all, you are navigating surviving a life-threatening illness, so you deserve all the grace you need.
I could have thought these “tips” myself with all that I’ve chemo brain. These patronising talks are a typical of the NHS people getting paid good wages to state the obvious.
Thank you for sharing, and we can appreciate this is likely a challenging time. If you would find it helpful to read more about ‘chemo brain’, you can find our information here lymphoma-action.org.uk/about-lymphoma-side-effects-treatment/chemo-brain-cancer-related-cognitive-impairment We send our best wishes to you.
I’m 6 months post chemo for pancreatic cancer, I could not figure out why my brain has been so foggy, hearing your story helps me to understand and know I’m not going crazy. Good luck with your battle!
@ 3:58 .. that entire second is lovely
3:48.5 - 3:49.5 was nice too, but the I particularly love the dedication on the first one. It's given its own direction, complete on its own path.
Very proud of you Adam! You have been through so much and seem to take it all in your stride..
Great video! 3rd yr remish and I'm still "dropping" words, thoughts, getting "foggy" etc... thank goodness for my wife. She knows the second it happens and is right there to help. Word association or just repeating my last sentences always puts me back on target. If there is anything i can do to help, please contact me. DLBcL 6 Chemo x 30 rad. Diagnosed Aug 25, 2010
Michael, I found this video and your comment very spot on target. If I could ask, how are you feeling, at this point, in your remission recovey? Are the cognitive effects diminishing and improving over time?
Thank you, for any response to my questions.
+Matt Waight Hi Matt, thanks for your response! hope this finds you well. :)
Yes, in the bigger picture I am probably 40%-50% better. Mostly happens now when fatigue and/or stress have me worn out. The "bouts" are a bit longer but an overall improvement is noticed.
What are you feeling or experiencing now? Are you able to exercise some?
I took chemo like medications for 27 years. I’m trained as an interpreter. These two world are at conflict.
This makes me sad to hear. They need to come up with better treatments for cancer.
Is there anything good about chemo besides staying alive on this hellish earth for 'a little longer?' I decided today I'm not having it. I have not read anywhere or seen anywhere and no one can convince me that loosing teeth and hair and memory and shrivelling up ...is worth torture. Granted, the tumor was the worst pain I have ever been thru. But now that it was taken out I shouldn't get a tumor back. I'm in my 50s and life has been really hard anyway. My dogs are old and they are the only reason I need to live anyway. Once their gone I don't need to be here. I have no husband to take care of me. Son in prison. Never known my grandson. So there's no reason to fight for life. I just wanted the pain gone. And I really am looking for one person to tell me that chemo is worth it besides just LIFE. Because life isn't worth living if your half dying anyway. And apparently that's all chemo does, is kill you slowly. :(
We are sorry to read of your current situation and can see it is therefore likely to be a difficult time for you. It feels as if the decision you have taken not have chemotherapy treatment has been difficult. If you would find it helpful to talk to someone about how you are feeling and you are not in the UK, you could consider reaching out to the lymphoma coalition. We send you our very best wishes
In a lot of ways I’m like you but I did have aggressive surgery and chemo and radiation. I had very difficult side effects during it all and even now. I finished tx in Dec. I don’t have family just an elderly dog I worry about so was it worth it? I’m not sure
My mother is expiriencing gonna Chemo Brain I’ve noticed she has common outbursts as well as trouble performing tasks.
Just be patient with her. I still have that. Not nearly as badly. 9 months after my treatment finished. It will return. Be kind to her. She will be enormously frustrated by it. But it will pass. I promise. X
Hi there, thanks for the video. I am leaning on 5 years in remission and I was wondering if Chemo brain is still relevant 5 years after treatment? I struggle with memory, concentration and fogginess while working and carrying out tasks during work hours and I almost hardly get things done due to these symptoms and need assistance from team members.
I follow a healthy eating regime and fitness program as well.
We're sorry to learn that you're struggling with memory, concentration and fogginess, and this is effecting your day to day activities; I imagine this must be very difficult for you. How long chemo brain can affect someone, is very individual. For many people, chemo brain usually gets better over time, though for some people the effects last much longer, and we have heard for some people, this can be many years. I do hope our information will be helpful in managing your symptoms, and please do consider contacting your medical team to see if they can refer you on to a specialist if you feel this would be helpful, (as per the details in our information here: lymphoma-action.org.uk/about-lymphoma-side-effects-treatment/chemo-brain-cancer-related-cognitive-impairment We send our best wishes to you.
@@LymphomaAction thanks for this. I'll definitely have a read and see what I can find to help me.
my son was diagnosed with hl stage 2b with bulky in 2014, he finished treatment on his 13 birthday, september 24, 2014. he is a junior in high school and wanted to be a doctor after but is worried about the chemo brain and how it is going to effect that. he is an A/B student, so i haven't noticed him struggle. he is struggling and as his mom i am trying to figure out how to help him. i don't want to see him drop his dreams of being a doctor and playing football in college. can you offer any suggestions?
thanks for your video, it has helped a little.
Hi Monica, We're sorry to hear your son was diagnosed with Hodgkin lymphoma and can appreciate this has likely been a difficult time, particularly as you are both worried about chemo brain. We have more information on our website about this, and if you would find this helpful, you can read about it here: lymphoma-action.org.uk/index.php/about-lymphoma-side-effects-treatment/chemo-brain-cancer-related-cognitive-impairment We would also encourage you to speak to your sons medical team, with any concerns that you may have. We send our best wishes to you and your son.
@@LymphomaAction thank you so much, i actually went to your site right after seeing this video. he's starting his fifth year in remission and so far this is the only side effect.
Fix his diet !!!!!!!!!! We can heal cancer naturally I’m doing it now !!!! Stage 3 lymphoma chemo is not an option for me
@@rosinastarr4607 how has it been going?
I feel like I have chemo brain but how can I know for sure?
Hello Ruby,
'Chemo-brain' can affect lots of people in different ways, if you head over to our website you can read our information page all about the signs and how your doctor or nurse might asses you for it - www.lymphomas.org.uk/about-lymphoma/treatment/side-effects-lymphoma-treatment/%E2%80%98chemo-brain%E2%80%99-cancer-related-cognitive
If you need to talk to someone about how you are feeling our helpline is open 10am-3pm on 0808 808 5555, or you can email us at information@lymphomas.org.uk at any time.
Best wishes, Katherine
I’m 12 weeks post chemo and my brain is driving me insane. I forget words. And my memory isn’t great.
I would’ve thought I’d be doing much better by now. I’m very frustrated with myself and get upset about how stupid I am.
How are you doing now? I hope that you are faring better and that you continue to have grace for yourself. After all, you are navigating surviving a life-threatening illness, so you deserve all the grace you need.
No you are not stupid! Be aware of your self talk be. Kind and patient with yourself! Fellow stage four cancer survivor here!
@@jillmeader5882 Hang on in there. I was terminal. 2 cancers.
3 years later I’m still here and ‘ free of cancer’.
I could have thought these “tips” myself with all that I’ve chemo brain. These patronising talks are a typical of the NHS people getting paid good wages to state the obvious.
ive been in shape it doesn't help chemo brain. Chemo brain and working an 8 hr job that requires you to be fast which is most jobs don't go together!
Thank you for sharing, and we can appreciate this is likely a challenging time. If you would find it helpful to read more about ‘chemo brain’, you can find our information here lymphoma-action.org.uk/about-lymphoma-side-effects-treatment/chemo-brain-cancer-related-cognitive-impairment We send our best wishes to you.