Overcoming Multiple Sclerosis and Disability 7.5 years later [Prospective Research]
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- Опубліковано 1 жов 2024
- Professor George Jelinek and his team at the University of Melbourne have published various cross-sectional studies demonstrating an association between less disability and better quality of life in people with MS who consume more fruits and vegetables, less saturated fat, and less processed food. But does diet now correlate with progression of disability of MS over many years? This prospective study compares diet with MS disability, fatigue, and quality of life 7.5 years later. My conflicts of interest are explained in the video.
Professor George Jelinek Interview: • Professor George Jelin...
Neurologist reviews "Overcoming Multiple Sclerosis" by Dr. George Jelinek: • Neurologist reviews "O...
Neurologist Summarizes Overcoming Multiple Sclerosis: • Neurologist Summarizes...
Overcoming Multiple Sclerosis: The Evidence-Based 7 Step Recovery Program: www.amazon.com...
Overcoming Multiple Sclerosis Handbook: www.amazon.com...
The article I am discussing:
Prospective associations of better quality of the diet with improved quality of life over 7.5 years in people with multiple sclerosis: pubmed.ncbi.nl...
Other References:
Higher-quality diet and non-consumption of meat are associated with less self-determined disability progression in people with multiple sclerosis: A longitudinal cohort study: onlinelibrary....
Comment or ask questions below! I would be happy to answer!
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My book "Resilience in the Face of Multiple Sclerosis" on Amazon: www.amazon.com...
Dr. Brandon Beaber is a board-certified neurologist with subspecialty training in multiple sclerosis and other immunological diseases of the nervous system. He is a partner in the Southern California Permanente Medical Group and practices in Downey, California (South Los Angeles). He has several publications on MS epidemiology and has participated in clinical trials for MS therapeutics. You can follow him on twitter @Brandon_Beaber where he regularly posts about MS news and research.
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Music: INNER GRACE - Copyright 2018 Wilton Vought Source: Really Really Free Music Link: • Video T
he video material by Dr. Brandon Beaber is general educational material on health conditions and is not intended to be used by viewers to diagnose or treat any individual's medical condition. Specifically, this material is not a substitute for individualized diagnostic and treatment advice by a qualified medical/health practitioner, licensed in your jurisdiction, who has access to the relevant information available from diagnostic testing, medical interviews, and a physical examination. To the extent that Dr. Beaber endorses any lifestyle change, behavioral intervention, or supplements, the viewer should consult with a qualified healthcare professional to determine the safety and efficacy of the intervention in light of their individualized information.
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It would be very interesting to see the effect of being married/having a long term life partner versus being single. I just celebrated my 24th wedding anniversary. For myself, I can guarantee that I would be MUCH worse without my wife physically, mentally, and financially. (I'm a 51 year old male).
Hello Andrew
I fully agréé with you. Having a spouse is extremly important. I have almost the same age as you (turning 50 next month) and celebrated 30 years anniversary with my wife this year. Definitly makes lots of différences living together with a partner!
Overall, married men are healthier than single men, though there may be some reverse causation here. I'm not sure I have seen any specific studies in MS, but the support of a partner is invaluable.
Hello Andrew and Patrick, you guys took the words right out of my mouth. I'm sorry to be responding to you guys a month later but I was just looking back on this video and saw your comments. I just lost the love of my life in late January and we were together over 30 years. Thank goodness I still have my son home and family members to help out.
Would that be a different result for a married woman? And wouldn’t that depend on how supportive and caring the partner was? If one was in a stressful relationship, as I was, then symptoms may be exacerbated.
@@taniakokelj1481 I don't know. Anecdotally speaking, I have seen that it's much more common for a man to leave his wife who has MS than for a wife to leave her husband who has MS. We (men) are jerks, lol.
OMSer here. No disability , mostly sensory symptoms. The absence of fatigue is great - have lots of energy to exercise. Definitely following no dairy and no meat. Very occasional processed foods, like I don’t remember anything processed the last 3 months
:)
This is the diet I follow. When I was diagnosed 5 years ago I researched and chose this one. I have no disability now and no disease progression
Awesome. I hope you continue to do well.
Wow I was diagnosed this year sounds great my walking is terrible
I appreciate your videos! I am a caregiver for my wife who was diagnosed over 20 yrs ago. I am trying to follow a no dairy/no red meat diet, but it is difficult when everyone is not on board. I hope to have a skin allergen test done (maybe they do this with blood work, like the commercials you see on TV) to test for food allergens. This seems like a pretty useful step in looking for inflammatory triggers. Thoughts? Also, you have stated in an earlier video that roughly 100 or so of your patients have gotten out of the wheelchair. Wouldn’t that be an interesting case study group to look for similarities? Lastly, pesticides have been linked to Parkinson’s (Journal of Neurology), and other conditions. Since they are stored in fat cells, could that be part of the success of intermittent fasting and low fat MS diets? Basically cleansing the body of fat stored pesticides and other toxins? I have many other questions, but I stop there for now. Thank you again for your passion with this very challenging condition.
I wish they'd done saturated fat and unsaturated fat separately
Regarding the comments of others by the way I follow the OMS diet + gluten free (some processed foods + otherwise on point)... I hope others would ratchet down the talk that DMTs do not affect disease progression ... I'm 43 and have lived with the diagnosis for about one year ... My mother died from the disease at 58 most of the people in her MS support group are gone and had a very difficult end of life... I think neurology is relevant today in the 1980s and 70s they really weren't even the best centers... I believe smoldering MS is real but let's not downplay therapies and lifestyle interventions ... great video!
Wholeheartedly agree Jason!
Yes, used to work for National MS, back in 97-98 as a Program Coordinator, so I cared and periodically thought about the disease and causes back then. But guess what: I myself was diagnosed 23 years later. Yikes I said to myself..
Well.., the diagnosis came in 2016. Yes, I felt the slow onset of symptoms. I discovered the Whals Protocol and tried it for a month or so in 2021. I noticed I felt a little better, but I quit.
Here, I was sitting at home, on hard uncomfortable chairs because of my balance problems due a upper molar which went broke and went untreated.
The confluence of both the earlier 2016 diagnosis of MS, combined with the spread of the diseased and broken upper molar, is an almost perfect storm for a problem that affects your lack of desire to walk and exercise.
Later and as you sit for Hundreds of hours, your comfortable chairs wear out faster than normal, especially if you are morbidly obese, like me...
Then, in and by Fall, 2022, I began to feel pain in my spine and later the lower lumbar. The hours of sitting then made things worse. By December, 2022, though I pushed on in the effort to remain productive, I sensed the problem with the Spine, the Lower Lumbar, now the Left Foot numbness, and finally the right foot numbness, Finally came a head in January 2023. I woke one sunny morning in early January, and couldn't tell I was having an involuntary bowel movement. On top of that, I was experiencing Optic Neuritis since mid November. Yikes I thought.. 😮
Well, I take action. I'm hospitalized. I am given Solumedral for Three days, stabilized, I asked for Augmentin for the ear problem, I improved, was cleared to leave, I was discharged, came home, went strictly on the Whals Protocol, and by Late Summer, I was able to travel in the car with my cousins for lunch and a drink at the local casino, lol. Not too bad I thought.
Problem is: I clearly strayed away from the Whals Protocol by Fall, 2023. I thought I had improved just enough to put up with my health issues. I was wrong:
I slowly began straying away from the diet; I started eating chocolate and macadamia nut cookies with diet soda. I started eating canned chili. I even began eating those crunchy deli springs rolls with soy sauce..
Well, I sat last night and took a hard look on my office calendar on Efforts to Outcomes. ..As I essentially noted on the calendar, I noticed a decrease in vision on the first week of November in the Right Eye, since is the 2nd time in 12 Months, I'm now convinced that I need to go on and stay on the Whals Protocol, it's just that simple.
Hope this helps, MDM JD Candidate.
Thanks Dr. Beaber! I did follow the OMS diet (but it is much more than just diet) but have tailored it a bit more. I am 100% whole food plant based now and do not use added oils. I am doing very well! I love that there is ongoing research. When looking at all the “MS diets” I find that they seem to have more in common than different; eat whole foods, lots of fruit and veggies, and avoid processed foods.
This is definitely true Vicky. I find that while people may claim to follow a specific diet in theory, in practice they are just avoiding processed foods (and maybe a few specific food groups such as dairy and wheat). For common medical conditions like obesity, diabetes, and hypertension, I have seen spectacular results with a wide variety of diets including WFPBD, paleo, keto, Mediterranean, etc.
It is well with my soul, or something else?
Just curious 🙂
@@grinch4567 not sure I understand the question. Something else besides diet and lifestyle?
@@EvenSoItIsWell
Ah, okay. It reminded me of an old hymn which includes the words, "It is well with my soul" 👍
@@grinch4567 yes! That hymn was is the inspiration for the name of my channel. The writer of the hymn endured many hardships and was still able to say, it is well with my soul.
I'm following the OMS diet and it's pretty good... no different from the Valter Lango Longevity Diet. A small amount of seafood(like two meals a week) and the rest of the time plants.
Thank you for doing this video doctor, I do find when I'm eating well my symptoms are a bit less so there is a relation there. Great video sir thank you again.
Thank you for explaining the science found behind these theories.
#Sharingiscaring 🤘🏻✨ ty Dr Beabs
:)
High fat diet with excercise daily rebuilds myelin, all around diet with low processed shugar and low salt is the way.
This is the diet I follow. When I was diagnosed 3 years ago I researched and chose this one. No disability, mostly sensory symptoms. I have no change disease progression for now... The absence of fatigue is great!!!
Awesome. :)
@@DrBrandonBeaber Thanks for your videos! You are great! Respect 🙏
I am back on OMS again after trying Wahls and wahls Keto. The latter did not go well; fatigue and disability progression, coincidence maybe. The science bets on Keto and there are results to back that up. So how can they both work and what does George think about Keto?
Maybe go to the OMS boards and ask..but think there isn't a mechanism for diet to influence ms or cancer..it's not possible.
Why is RRMS called benign? I personally find it offensive after 30+ years with it at a moderate EDSS and blindness.
This category was RRMS OR "benign" MS. Basically, they did not create a separate category for benign MS.
@@DrBrandonBeaber Thank you!
Terry Wahls just received $2.5 million to test diet in a case study The results can be skewed
1. iThe surveys not the participants answers are the problem
2. Participants are picked by the people doing the study-perhaps further proving their objective
3 Participants can be removed at any time from the study if they appear to be answering surveys deceptively or not following protocol
3 Are not evaluated for who they are as humans ie mentally upbeat physically motivated etc
Those who fund their agenda will find ways to prove it EDSS scale is skewed determined subjectively 👐
Okay, but who else will do this research? I assure you that everyone has some form of bias, myself included.
I assure you that the participants were not 'picked'. We posted a link to the survey on all the major MS websites and anyone was free to join. And participants are not 'removed'. The only way a participant is removed from the study is if they fail to complete the periodic survey, that is, if they remove themselves.... Hope that helps
Is there a way to explain things to eat or avoid on a plant based diet. The avoiding dairy things you can use. Maybe pros and cons, the process is confusing especially if you look at vegan or other diets similar.
I am eating Whole Foods with an emphasis on leafy vegetables and berries, salmon twice a week, nuts, cacao, occasionally have eggs, potato, corn. And supplements that reduce inflammation, free radicals, support gut microbiome, etc. In addition to losing over 30 pounds, I feel like it is helping my fatigue and cog fog. But still not back to “normal”
Yes I follow the OMS diet and do not take any DMDs. I have RRMS. It has had a significantly positive impact on my condition with many minor symptoms disappearing and others greatly improved. I still have several major symptoms that have improved but have not remitted - foot drop, fatigue and heat intolerance. My MRIs show no new lesions, no active lesions.
I'd say the data is interesting, with potential. I'd like to see the full data numbers comparing education and income to prospective outcomes. Maybe general doctor visits too, etc. When the majority of the patients are older, RRMS, with ~18 years having MS (which means taking lower efficacy and potentially no DMT) I'd say the diet is probably not the reason. Could just be good luck, or related to a past video about misdiagnosis.
I'd like to see a study with people under the age of 40 doing the same thing. But interesting data, just hard to get excited about the information and how it was discovered. Great videos as always!
Hello Dr Beaber
I am a great fan if your vidéos.
Thanks for taking the time for this. Much appreciated !
As I live in the south of France I follow what we call here the Crétois diet (coming from the Crête Island closed to Greece)
Basically fresh food cooked with olive oil, sea food, vegetables, red meat not every day, chicken and of course French wine !
Works for me but I am Also under Tysabri treatment so that helps!
Greetings
Patrick
Thanks Patrick. I have not heard of the Crétois diet, but it sounds similar to the Mediterranean diet perhaps with the addition of more red meat. French wine is okay, but can it compare to California wine?
@@DrBrandonBeaber Good catch, I indeed meant Mediterranean diet and of course California wine from Monterey vineyards works with the meal. Like it :-)
I might be wrong but I have heard that California grappes were imported from Bordeaux wine region in France and the climate in California could be quite comparable with the Bordeaux region witch makes both wine quite comparable. Enjoy !
Dr. Beaber, do you know of any studies done on the effects of processed sugar on MS? I know the general research of processed sugar but would love to learn about it from an MS-specific perspective.
Omnivore here and thanks again
I've loosely followed the OMS diet and felt better for sure. Unfortunately, sometimes I've caved briefly to temptation... Sugar is my vice. 😔 For me, the unpredictability of this disease makes choosing meds seem like a crapshoot as far as side effects go, but at least nothing is lost with a healthy diet, even if it weren't shown to help MS. Looking forward to the upcoming ongoing nutrition video. Thank you!
Thanks Dr! Am I remembering correctly that this red meat finding contradicts the Wahls’ approach that advocates for quite a lot of red meat?
I am a little interested in those that dropped out of the study, did they drop out because the method wasn't working and symptoms worsened and gave it up as a bad job or found it too hard... or something else? For me the completion rate is not an insignificant part. I'm curious Dr, do you happen to know? as the dataset is skewed should it be that those with worse outcomes may not be included. I also have concerns that those that report good outcomes may well be so invested and place so much faith in the method - the self reported data and QOL parts are in question.
Hello just some future video requests paediatric ms , copaxone . Thank you
I actually eat red meat and dairy and I'm completely fine. But I'm only a bit more than 2 years ill... Most of my lesions actually shrank (in the good way), probably because I'm still young and still can recover some myelin damage... So to recap, no significant proof that the Overcoming MS diet is beneficial for mental health but for physical health yes (meaning, less disability) and the diet suggests:
- More fruits and veg 😌
- More fiber 😌
- Less fat 😌
- Less takeout food 😌
- Less dairy 😡
- Less red meat (not poultry or fish, they're fine) 😌
⭐Y'all make sure to strength train!!
⭐And sleep a lot and rest whenever there's even a bit of tiredness!
⭐And stress out less, slow down, you're not rushing anywhere
⭐And take your meds
We got this, let's see what future brings 🙌
Ate you in a dmt? These diets are overwhelming . Plants forever don't think I cam do it
@@AP-vn7fm yeah I agree, I eat whatever I went now. I am on DMT, on Kesimpta. You?
First, let me say, I love your videos and style!! ❤️ So this is not a criticism just an observation, maybe a mom thing 😆.... Your background is often very messy and that Amazon package has not moved 🤣 🤣🤣
Again, I think you're awesome and appreciate what you do for MS community ❤️❤️❤️ just had to say something!!
:)
May the 4th be with you. All
I feel the force!
:)
Since I don't have an identical twin as a control group subject :) I don't know for sure whether it's beneficial to my symptoms and MS prognosis. That being said, I do feel better about myself knowing that I am trying to take control and actively do something about it. As you said, you cannot go wrong with an overall healthier lifestyle.
Also, I would like to ask if you could make a video of the possible effect of sleep on disability progression or symptoms in general? Thanks!
Thanks for the suggestion. I will look into this, but I'm not sure there is a lot of data on this.
@@DrBrandonBeaber thank you!
I follow the Best Bet Diet. Very similar to OMS but includes skinless chicken breast as well as fish but has no gluten where OMS does. I have only been following it for a short while and have only been diagnosed for a year(but have shown signs of MS for 10+ yrs). So can’t yet speak of my results. I do believe in all the comments of both diets and have a positive outlook for my disease progression.
Not even DMT have been seen to affect progression in the long run..see beabor's smoldering ms. Once saw a post where a man said it took 50 years for his rr to become sp and then it was night/day difference. Most people become spms around 10-20 years..so he was outlier. Think
There is no mechanism whereby food can affect disease processes..at least DMT do cut the number of relapses.
@@barbaradascalos4411 I would say there is evidence that DMTs work long run. See this video: ua-cam.com/video/ioF3jXNw-mE/v-deo.html
I suppose with OMS if one is strictly avoiding processed food, not much wheat would be consumed.
Yeah..have seen it..by work I guess I mean getting to a normal .2 brain atrophy rate..there is no DMT that does this..is there..? Unless you get to .2 brain atrophy you will have progression..seems to me..?
Basically another way to say DMT don't affect neurodegeneration..yes people may do well in short term on DMT and delay spms but you are not eliminating spms.
Only way to eliminate neurodegeneration is hsct followed by some anti-EBV therapy for life..ATA 188 maybe.
I am doing everything i can, dmt, diet, exercise, meditation, supplements, cold showers, ect. I feel that if my condition progresses to the point I can’t walk or need assisted care, i want to be able to feel good that i did all I could and not be left wondering what if.
Talk about NMOSD and how it varies from MS.
Here you go: ua-cam.com/video/xBCke5TsDGA/v-deo.html
Thank you for posting this!! I follow the OMS Diet for Remitting MS (diagnosed 3 years ago) and so far, my neurologist who doesn't believe in the OMS diet) says my MRI scans look good.
I really like a future video on implementation of neuroplasticity for MS Cognitive and physical symptoms.
I have an older video where I was interviewed by Yvette Brisco about neuroplasticity: ua-cam.com/video/eat3UfxI0bA/v-deo.html
@@DrBrandonBeaber
Thank you - I'll take a look 😀
Can you tell us more about the trials in Melbourne?
I am early in the process, but I will make a video about it at a later time.
@@DrBrandonBeaber can you give me their website or their address?. I moved to Melbourne, and it would be amazing if I could interact with great MS specialists like you.
@@maherm6707 Here you go: mspgh.unimelb.edu.au/research-groups/centre-for-epidemiology-and-biostatistics-research/neuroepidemiology#:~:text=The%20Neuroepidemiology%20Unit%20(NEU)%20at,its%20head%2C%20Professor%20George%20Jelinek.
@@DrBrandonBeaber thank you ❤️
Benign and rrms are they the same?
No..rrms turns into spms and that's usually when progression begins..there are no statistics for this but every 10 years about 25% turn progressive so by 30 years about 75-90% will be progressive depending who you ask..search "does rrms always become spms" other thing is that DMT only target relapses and not the progression that leads to spms. That's why a 7 year study is meaningless..you'd really have to follow people for 30 years to show efficacy.
"Benign" MS is a somewhat controversial term but refers to people with RRMS who have low disability after many years (there are different definitions such as EDSS
By controversial..you mean benign really doesn't exist..there aren't even studies showing the percentage of rrms who become progressive or spms..the studies would take many decades to perform. A woman posted that she went to Mayo when she turned 50 no symptoms after many years of no relapses and they said ms burns out and ms won't get worse after 50..she is now 58..spms w/symptoms and getting lesions after decades of no lesions..ms dx 35 years.
Seems obvious neuros don't take ms seriously maybe cause they compare it to ALS..ALZ..PsP and Parkinson's..otherwise terms like ms burnout and benign ms would not exist. And they would not be scared of hsct chemo.
Oncologist don't do this cause they see people go into remission for many years and then die of cancer 10-20-30 years later.
Benign ms and benign cancer don't exist because they are lifelong conditions.
some 13 yrs ago i had my CIS. I started out on the Swank diet. After my second inflammation 3 yrs ago ( extreme stressfull live event happend) i upgraded to the LIFESTYLE of OMS
( Which is no smoking, vit D, daily excercise, diet, meditation, sunlight and prevention= sharing the information in the family).
Only the MRI gives away i have MS.
i got a job, 3 childeren, can sport, no fatigue, can walk in the full summer sun.
Never had any meds/DMD's , to the sheer terror of my neurologist.
The diet is about eating a LOT of vegetables, like 2 pounds daily.
Aim to eat only vegetable omega 3 fatty acids.
Drop the (no) meat and dairy focus, its not the core of the diet.
In the long term, the Swank diet allready outdoes most meds. So OMS should do better :-)
@@lindavanzwol2643 that's great. It is all abput hard work. Not just diet. And there are many who healed themselves from it and live 25, 30 years like a healthy person. But some won't believe it at all.