Thank you Dr Boster. I'm currently on copaxone, but I have had an adverse reaction. My neurologist has suggested swapping to cladribine. You have made me feel more reassured.
I finished year 2 in March 2020 and sadly it has not worked for me. 3 new lesions (one large one on my brain stem), my balance has been getting bad over the past year and increasing falls as well as bladder hesitancy pee myself lol. My neuro doesn't think a 3rd year will do anything so I have to consider Ocrevus or Kesimpta
I'm offically in year 5 now!! Glad to share I have had no progression or new lesions. I was diagnosed with highly active RRMS and failed the first DMT with major progression within 6 months. I felt a huge shift within8-12 weeks of year 1. And didnt suffer many side effects while taking it. Stay Strong Warriors x
Ive been using it for two years and it is amazing. It stop my progression with no new lessions For 2 years so far. I had very active MS and no other drugs they have gave me worked. It Amazing
I’m surprised I haven’t heard of this drug. Also surprised that it isn’t given more… I’m on my 2nd DMT and this dosing sounds amazing. Thanks for educating me, again! Love that you do this, it is so insightful. 💗
Perfect timing for this video - I took my last Copaxone today and will start Mavenclad tomorrow. Your video reassured me in that going for Mavenclad was the right choice for me.
I went from Copaxone, to nothing for 10 years, to Mavenclad. Copaxone was horrible for me, Mavenclad was great! I am all done both years, and haven't had progression, plus some symptoms have seemed to improve. Good luck to you!
Good to know! I'm on my final cycle of Mavenclad (2nd year), so learning more about how it works actually makes it better. I was on Rebif, failed then was changed to Mavenclad. I'm actually a bit better physically now than I used to. However, the limitations do still stand and I've accepted that.
Thank you Dr. Boster! I love your videos, your a true hero for everything you do! I was on Rebif for about a year and could not handle the 3 injections per week any longer, completely stopped taking Rebif for 18 months. Seeing my neuro next week and I think Mavenclad is the one for me.
On year 2 of Mavenclad. I felt the shift in my brain the first week. Haven't had brain fogs nor needed my cane. I don't know why they don't offer this to everyone once diagnosed with MS. I had to deal with horrible Copaxone and Tysabri before Mavenclad. The price is up there but they have help and it's worth it. Not sure why you said that young man can get a covid shot when we only have one week a year to get a covid vaccine. Our white count is never high enough to get the shot.
are u sure that it can fix bad symptoms like walking problem? i am using a cane and have tremor on both arms.. i lost hope in medicine, i tried kesimpta and Aubagio both made me very tired and coud not stop my walking, balance and tremor.. only it shrink my lesions in my brain.
The first Pfeizer shot was hard on me because I’ve been dealing with the long COVID. I got moderately ill. The second shot was just like having COVID all over again. I have anti bodies out my wahzoo! But I never fully recovered from the original disease course back in November ‘20.
hi thank you so much for doing more videos, it really helps could you do a video about ocrevus and male fertility as I'm on ocrevus and trying for a baby and worried ocrevus could effect male sperm or the baby Thank you
Thanks for the information Dr Boster I am not sure if it is in Australia I will need to speak to my neurologist about it, as I have never taken anything for MS just TN.
Gonna start using cladribine this week. Previously i tried 3 other medicine: rebif, tecfidera and copaxone. First medicine decreased my white blood cell count drastically. Second two negatively affected my kidney function. I had two registered MS relapses in about two years time. I wasn't taking any medicine before the second relapse cause of my kidney condition. Both relapses were pretty bad and i needed about 1 month to recover. Im male, 27 yo. Thank you for informative video. I hope this one will work fine :)
@@SoShyMeka Hello. About to start my second year of Mavenclad. Had zero relapses and MRI seems to not show any active lessons. Seems to be working very well for me.
Please, advice me Doctor with my inquiry:: can I use MAVENCLAD after Sclera 240, and how many days I have to stop the current medication sclera for safest way to start using Mavenclad. Thank you
Hi Dr. Boster the first question the gal asked about progression during year one of Mavenclad. Can you provide some insight on people who experience progression when they are not completed with the entire two-year course?
Relapsed after a month on year 2. Worst decision of my life having mavenclad. Im all for dmts and fighting it with force, but that drug ruined my life.
I have a question are my current condition going to get better I know that future is better? I'm gonna take my third infusion of ocrevus and I'm gonna be able to see improvements in my current condition
I keep seeing cancer scares when looking up this drug. Is there a risk, or what is the risk of cancer for this? I am currently on Rebif and have been since 2016 but and getting tired of the needle
Is Mavenclad an available treatment for MS patients in their mid 70's or is it like all other treatments for MS.....just not done (except treating symptoms) ?
Which particular b & t cells does mavenclad target? And what are your thoughts on risk of taking Mavenclad with Type 1 Diabetes plus age (mid 50s)? Also, would this med be considered for someone who is continuously, slowly progressive, however has also had very, very few relapses too? Oh, and how is it on the liver?
I’m thrilled I found your channel Dr. Bolster which was by accident. I watched 1 video and I was hooked. If I were able, I’d leave NY to make an appointment to see you. I’ve been on Tecfidera since 2014 and now have to change to generic or another medication. And quite frankly my Neurologist has made no recommendations. I’m 63 years old and also asked her what her take was on Medical Marijuana. She flat out told me it’s all Bull$&@t and it that’s what I wanted she wasn’t the Dr. for me. I didn’t tell her that I am certified in NY and use it for my spasms. I haven’t had to take a Baclofen at night in months! I will be binge watching your videos!
I’m about to start my first treatment today. I’ve been subscribed 4 tablets week one and week 5 another 4 tablets. So 1 tablet a day for 4 days and repeat same thing week 5 Will Mavenclad make me sick. I am very anxious about it making me sick. What are the most common side effects please? Also can I take Mavenclad with steroids as I’m in the middle of a relapse. Thank you kindly in advance Doc!! I’d be so grateful for your advice. Ps. I’m from Melbourne Australia.
Hello, my father suffers from sclerosis and now he is taking mavenclad medicine and he made the left side shiver. Is this normal through medication? It is his first year And now its second week؟؟؟ Thanks
What are your thoughts in regards to discontinuing DMT if you are over 60 and appear to be stable in regards to MS. Had this conversation with MS doctor during my most recent visit. Seems a study has been done by the Cleveland Clinic looking at this. As always thank you for all the information you provide in your videos.
Chris, Dr. Boster don't like that idea AT ALL!! Surely he'll throw you a link to his recent rant on the subject. He wants you to continue treatment for as long as you enjoy living with your vital functions intact!! 🌸 💖 😘
I agree with Jerusalem warrior. A lady in my support group is in her 60s and she stopped treatment because no activity and her neuro thought she would be fine. She's not. She showed activity on her mri. :(
Dr boster , Appreciate your knowledge and your kind way to explain any medicine for multiple sclerosis. Especially for Mavenclad which I am on my 2nd year dose. I just wanted to ask you about the side effects of mavenclad. and what the pill does to your throat specifically. cos I can't find any reviews of this medicine online. the only thing I know is that I have to wash my hands pretty good before and after the tablet. and that the side effects are these: - upper respiratory tract infection, - headache, - low white blood cell count (lymphopenia), - nausea, - back pain, - joint pain, and insomnia. But do you know if there's anything else should I be aware of?
Good afternoon I had lumbar puncture that proved that I have MS doctors keep telling me only white women get MS twice two different doctors even though I had the lumbar puncture. MRIs prove that I have lesions and more than one place in my body.
Thank you Dr Boster. I'm currently on copaxone, but I have had an adverse reaction. My neurologist has suggested swapping to cladribine. You have made me feel more reassured.
#WeHaveMS #StrongerTogether BosterMS.com
How is it, and do you recommend it?
Done 2 years of Mavenclad, now a year out, and feeling great!
I finished year 2 in March 2020 and sadly it has not worked for me. 3 new lesions (one large one on my brain stem), my balance has been getting bad over the past year and increasing falls as well as bladder hesitancy pee myself lol. My neuro doesn't think a 3rd year will do anything so I have to consider Ocrevus or Kesimpta
@@boop82364🙏
I'm offically in year 5 now!! Glad to share I have had no progression or new lesions.
I was diagnosed with highly active RRMS and failed the first DMT with major progression within 6 months. I felt a huge shift within8-12 weeks of year 1. And didnt suffer many side effects while taking it. Stay Strong Warriors x
Can I ask what your first DMT was? I've told to chose between them and mavenclad is an option for me. This will be my first DMT
@@dearbhlar6681discuss it with your neurologist
Ive been using it for two years and it is amazing. It stop my progression with no new lessions For 2 years so far. I had very active MS and no other drugs they have gave me worked. It Amazing
I’m surprised I haven’t heard of this drug. Also surprised that it isn’t given more… I’m on my 2nd DMT and this dosing sounds amazing. Thanks for educating me, again! Love that you do this, it is so insightful. 💗
Perfect timing for this video - I took my last Copaxone today and will start Mavenclad tomorrow. Your video reassured me in that going for Mavenclad was the right choice for me.
I went from Copaxone, to nothing for 10 years, to Mavenclad. Copaxone was horrible for me, Mavenclad was great! I am all done both years, and haven't had progression, plus some symptoms have seemed to improve. Good luck to you!
@@dmphax Thanks, and good luck and good health to you too.
@@dmphaxwhat symptoms pkease improved? and what about the mavenclad side effect, the scary cancer, am afraid of this side affect
Good to know! I'm on my final cycle of Mavenclad (2nd year), so learning more about how it works actually makes it better. I was on Rebif, failed then was changed to Mavenclad. I'm actually a bit better physically now than I used to. However, the limitations do still stand and I've accepted that.
How many years do you think we have before they come out with a remylination drug?
I love these videos!! Thank you 😊
Currently investigating injecting stem cells into brain to repair myelin x
Thank you Dr. Boster! I love your videos, your a true hero for everything you do! I was on Rebif for about a year and could not handle the 3 injections per week any longer, completely stopped taking Rebif for 18 months. Seeing my neuro next week and I think Mavenclad is the one for me.
Happy Monday Dr B!
Thank you very much for your answer, man 😊
On year 2 of Mavenclad. I felt the shift in my brain the first week. Haven't had brain fogs nor needed my cane. I don't know why they don't offer this to everyone once diagnosed with MS. I had to deal with horrible Copaxone and Tysabri before Mavenclad. The price is up there but they have help and it's worth it. Not sure why you said that young man can get a covid shot when we only have one week a year to get a covid vaccine. Our white count is never high enough to get the shot.
are u sure that it can fix bad symptoms like walking problem? i am using a cane and have tremor on both arms.. i lost hope in medicine, i tried kesimpta and Aubagio both made me very tired and coud not stop my walking, balance and tremor.. only it shrink my lesions in my brain.
Good Morning Dr. Boster.
Morning!
Dr Boster is one of the best MS Specialists!!!!!
Thank you for your 2 cents IMO your undervaluing :) and Q&A. Also your chickens look super happy, they're in great hands!
Thank you, Dr. Boster! Which do you think is more effective & which is safer - Mavenclad or Kesimpta?
Would love to hear from any Road cyclists on these meds. Thanks doc
Great educational video on Mavenclad.
Sharing is caring
#WehaveMS
Thanks for sharing!
The first Pfeizer shot was hard on me because I’ve been dealing with the long COVID. I got moderately ill. The second shot was just like having COVID all over again. I have anti bodies out my wahzoo! But I never fully recovered from the original disease course back in November ‘20.
Good morning Dr. B
Howdy!
Dr.Boster what about fingolimod and the pfizer vac.? do patients need a 3rd shot or does antibodies not really matter?
hi thank you so much for doing more videos, it really helps
could you do a video about ocrevus and male fertility as I'm on ocrevus and trying for a baby and worried ocrevus could effect male sperm or the baby
Thank you
Thanks for the information Dr Boster I am not sure if it is in Australia I will need to speak to my neurologist about it, as I have never taken anything for MS just TN.
Gonna start using cladribine this week. Previously i tried 3 other medicine: rebif, tecfidera and copaxone. First medicine decreased my white blood cell count drastically. Second two negatively affected my kidney function. I had two registered MS relapses in about two years time. I wasn't taking any medicine before the second relapse cause of my kidney condition. Both relapses were pretty bad and i needed about 1 month to recover. Im male, 27 yo. Thank you for informative video. I hope this one will work fine :)
Hey I wanted to see if you had a update on your experience. I start on 06/27/22
@@SoShyMeka Hello. About to start my second year of Mavenclad. Had zero relapses and MRI seems to not show any active lessons. Seems to be working very well for me.
Do the symptoms improve with mavenclad?
Love the chicken outro. I wanted to let you know also that it looks like Brabio is a UK name for glatiramer acetate - surprise!
Oh MY! My answer is quite different for GA and cladribine as compared at teriflunomide and cladribine! TY for sharing, I may need to redo this answer!
Please, advice me Doctor with my inquiry:: can I use MAVENCLAD after Sclera 240, and how many days I have to stop the current medication sclera for safest way to start using Mavenclad.
Thank you
Hi Dr. Boster the first question the gal asked about progression during year one of Mavenclad. Can you provide some insight on people who experience progression when they are not completed with the entire two-year course?
My neurologist doesn’t think it’s going to be good because I have the JC virus.
Any explanation why?
I haven't taken anything since being diagnosed in 1997
how u doing
FYI I'm taking 10 pills,2 each day for 5 days in the first month and then I will repeat it for the second month....
How long has this treatment been around?
Good morning brother , how long do I have to wait after my infusion do I have to wait until I get my vaccine ?
What infusion are you getting?
Could you post the Dr from Israel's study
Relapsed after a month on year 2. Worst decision of my life having mavenclad. Im all for dmts and fighting it with force, but that drug ruined my life.
what was wrong with it ?
Hi Emily, I’m going to take it next week… could you tell me about you experience. I’m so scared!!!!!!
Hi i in Australia did you go ok on Mavenclad, I progressing I scared what do tried different diets got worse especially carnivore. Please let me know
I have a question are my current condition going to get better I know that future is better? I'm gonna take my third infusion of ocrevus and I'm gonna be able to see improvements in my current condition
I keep seeing cancer scares when looking up this drug. Is there a risk, or what is the risk of cancer for this? I am currently on Rebif and have been since 2016 but and getting tired of the needle
Is Mavenclad an available treatment for MS patients in their mid 70's or is it like all other treatments for MS.....just not done (except treating symptoms) ?
SPMS? Thoughts
What if you took your COVID vaccine before starting Mavenclad, is it still effective?
Which particular b & t cells does mavenclad target? And what are your thoughts on risk of taking Mavenclad with Type 1 Diabetes plus age (mid 50s)? Also, would this med be considered for someone who is continuously, slowly progressive, however has also had very, very few relapses too? Oh, and how is it on the liver?
Will you do a video about propionic acid supplementation?
What's that about?!
I’m thrilled I found your channel Dr. Bolster which was by accident. I watched 1 video and I was hooked. If I were able, I’d leave NY to make an appointment to see you. I’ve been on Tecfidera since 2014 and now have to change to generic or another medication. And quite frankly my Neurologist has made no recommendations. I’m 63 years old and also asked her what her take was on Medical Marijuana. She flat out told me it’s all Bull$&@t and it that’s what I wanted she wasn’t the Dr. for me. I didn’t tell her that I am certified in NY and use it for my spasms. I haven’t had to take a Baclofen at night in months! I will be binge watching your videos!
For the people that have taken it what side effects did you experience
Just itching that’s about it I’ve never had a drug work this well I haven’t had any new attacks I just started year two
@@assataaverett428 did you try another DMT before this one?
I’m about to start my first treatment today. I’ve been subscribed 4 tablets week one and week 5 another 4 tablets. So 1 tablet a day for 4 days and repeat same thing week 5
Will Mavenclad make me sick. I am very anxious about it making me sick. What are the most common side effects please?
Also can I take Mavenclad with steroids as I’m in the middle of a relapse.
Thank you kindly in advance Doc!! I’d be so grateful for your advice.
Ps. I’m from Melbourne Australia.
how u doing now?
What are your thoughts on Mavenclad for CIS ?
Should this be my first med to take
Hello, my father suffers from sclerosis and now he is taking mavenclad medicine and he made the left side shiver. Is this normal through medication? It is his first year And now its second week؟؟؟ Thanks
I am suppose to be starting aubagio soon and will be receiving my second dose of pfizer tomorrow. How long should I wait before starting aubagio?
What are your thoughts in regards to discontinuing DMT if you are over 60 and appear to be stable in regards to MS. Had this conversation with MS doctor during my most recent visit. Seems a study has been done by the Cleveland Clinic looking at this. As always thank you for all the information you provide in your videos.
Chris, Dr. Boster don't like that idea AT ALL!! Surely he'll throw you a link to his recent rant on the subject. He wants you to continue treatment for as long as you enjoy living with your vital functions intact!! 🌸 💖 😘
I agree with Jerusalem warrior. A lady in my support group is in her 60s and she stopped treatment because no activity and her neuro thought she would be fine. She's not. She showed activity on her mri. :(
Dr boster , Appreciate your knowledge and your kind way to explain any medicine for multiple sclerosis.
Especially for Mavenclad which I am on my 2nd year dose.
I just wanted to ask you about the side effects of mavenclad. and what the pill does to your throat specifically.
cos I can't find any reviews of this medicine online.
the only thing I know is that I have to wash my hands pretty good before and after the tablet.
and that the side effects are these:
- upper respiratory tract infection,
- headache,
- low white blood cell count (lymphopenia),
- nausea,
- back pain,
- joint pain, and insomnia.
But do you know if there's anything else should I be aware of?
yes they say cancer and PML ... on Navenclad book
Stacking
Always tired. Antisocial,like to alone M R I every year,diagnosised in 2011. Betaseron,
Good afternoon I had lumbar puncture that proved that I have MS doctors keep telling me only white women get MS twice two different doctors even though I had the lumbar puncture. MRIs prove that I have lesions and more than one place in my body.
MS society doctor has let me down. I don't know what kind of vacation she has taken disappeared .
Welcome to the club bro
Overkill with stacking
Heard that and peed It out again...
Thank god some new drugs