Tips for Managing Visual Snow Syndrome Part 2

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  • Опубліковано 9 вер 2024
  • Visual Snow Initiative Website:
    www.visualsnow...
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    #neurodivergent #chronicillness #neurodiversity #shorts #youtubeshorts #fyp #visualsnow #visualsnowsyndrome #vss #health #doctor #LearnOnTikTok #neurodivergent #education #medical #nonprofit #charity #tiktok #explore #video #neurology #anxiety #depression #science #eyes #vision #brain #chronicillness #invisibleillness #viral #instagram #love #common #photography #trending #trend #anxiety #sleep #symptoms #ophthalmology #neurology #migraine #floaters #palinopsia #greenscreen #depersonalization #neurodivergent #neurodiversity #migraine #aura #lightsensitivity #dissociation #anxiety #seeingstatic #nightblindness #floaters #afterimages #tinnitus #halos #NORT #visiontherapy

КОМЕНТАРІ • 18

  • @user-nj6bz6tf9w
    @user-nj6bz6tf9w Місяць тому +4

    Buenos días , desde España.
    Tengo el síndrome de nieve visual hace muchos años.....ahora es más intenso.
    Espero que en pocos años con investigación se obtenga un tratamiento para controlarlo...
    Y curarlo.....

  • @angiedixon8017
    @angiedixon8017 Місяць тому +7

    Don't have a choice about learning to ignore it.
    Had VS for 20 years
    At night, sometimes before a storm, or just at night, it becomes super intense. I call it energy air because it changes brightness, sometimes adds red and much larger fast moving particles. When it's like that, there is also a look of 'hot pavement in the distance waves' surrounding all the busy light. I can almost feel it and hear it.
    It's a pretty lonely thing VS.
    Tell me? Why does it look EXACTLY like many videos that are enlarged while taking on camera phone. Why does the camera screen see what I see, and that's normal, but people can't understand that's how I see with my eyes.
    Ah never mind.
    Thank you for the video.
    If only VF was the most of my physical issues!
    Your video is friendly, that's nice

    • @cfrch4414
      @cfrch4414 Місяць тому +1

      Now imagine having that and hallucinations on top of it -_-
      I see exactly what you mean and when it is that crazy with those patterns, i get hallucinations on top -_-

  • @person-ys9kt
    @person-ys9kt Місяць тому +2

    I got migraine glasses after seeing them on the website, and I got used to everything being tinted pink pretty quickly. It does help, it didn't completely get rid of everything, but the floaters are almost completely gone, and the lights aren't streaky. Also the static itself is slightly less distracting. Plus it helps a lot with harsh backgrounds, like my symptoms are worse with a white background like a book, a whiteboard or a wall but the glasses help tone that down a lot. yea i hope that's helpful for anyone. Also sleeping more, I still don't sleep enough but it helps me a lot when I get more sleep.

    • @IAMFORPEOPLE-dz1hn
      @IAMFORPEOPLE-dz1hn Місяць тому +1

      Does it really work

    • @person-ys9kt
      @person-ys9kt Місяць тому

      It doesn't completely fix everything, but it does make a pretty big difference!

  • @LectioMundi
    @LectioMundi Місяць тому +1

    Mine got much better or just less noticeable after treatment for anxiety with my psychiatrist. I also eat well, run and workout and always sleep 8 hours a day. I drink caffeine because I love it, im brazilian hahah, but since I was religious, im not in the habit of drinking. All I can say for the one starting this journey is its going to get better.

    • @nickd422
      @nickd422 21 день тому

      What kind of symptoms got better if you don't mind me asking?
      I think I developed mine (palinopsia, floaters etc) after taking and stopping adhd meds for a week about a year ago I've been debating getting back on them as I wonder how linked it is to things like adhd/anxiety.

    • @LectioMundi
      @LectioMundi 21 день тому

      @@nickd422 i still have all the symptoms, wich are palinopsia, night blindness and floaters, and I honestly cant say of they got better or if I learned to deal better with it. I just remember having major anxiety and noticing it a lot and once I treated my anxiety there are days i dont even remember I have it. I also have adhd, i dont take stimulants for it, I take atomoxetine. Mine didn’t start after meds, its started when I was 16 and I think it was caused by anxiety.

  • @Marcoshurtadoo
    @Marcoshurtadoo Місяць тому +1

    What’s bss ?

  • @Blackrose-w5p
    @Blackrose-w5p Місяць тому

    Can we consume protein pwder if I have visual snow syndrome and my scans also showa subtle cortical thickening (fcd)

    • @jacobwilson989
      @jacobwilson989 29 днів тому

      It ain't steroids so i doubt it would cause tiny muscles internal to unwantedly hypertrophy.
      Steroids can do that to even skull muscles due to an unnaturally huge testosterone boast.

  • @mrsamurai7508
    @mrsamurai7508 Місяць тому +1

    Does this girl in video has vss ?

    • @Cranzxfactfactsvs
      @Cranzxfactfactsvs 19 днів тому

      No her founder has vss which name is Sierra dombb

  • @Premansh_tak
    @Premansh_tak Місяць тому

    hey why dont you make a perticualr
    sollution we are literally so much suffring cant explane you

    • @jacobwilson989
      @jacobwilson989 29 днів тому +1

      Sadly one doesn't exist right now. Certain tinnitus treatments in development (Susan shore device) may cause things to branch off. Giving a VS treatment with similar methods.

    • @Rishabh-zb9nu
      @Rishabh-zb9nu 17 днів тому

      Hey are u fron india

    • @jacobwilson989
      @jacobwilson989 17 днів тому

      @@Rishabh-zb9nu He probably is