What it's like to live with EDS | A Week in the Life with Ehlers Danlos Syndrome VLOG
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- Опубліковано 7 сер 2024
- Join me for a week in my life with EDS as I show you what it is like to live in Ehlers Danlos Syndrome.
😊 Happy EDS Awareness month everyone!
👋 Come say hi on my socials!
Instagram: amitygilmou...
Facebook: / amityseventvid
👜 L'amiJoyBoutique (ETSY)
Shop : www.etsy.com/au/shop/LamijoyB...
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🌐 Website
amitygilmour.wixsite.com/amit...
Info of my conditions:
💚 Gastroparesis Australia: www.gastroparesisaustralia.com...
🦓 Ehlers Danlos Syndrome (EDS): www.ehlers-danlos.com/about-us/
💙 Postural Orthostatic Tachycardia Syndrome (POTS): www.dysautonomiainternational....
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LISTEN TO MY MUSIC
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MUSIC IN VIDEO BY:
Music by Naomi - Individualism - thmatc.co/?l=D9A8BBC1
Music by Naomi - By Your Side - thmatc.co/?l=33EF9B1C
😊 Happy EDS Awareness month everyone!
I have many conditions I NEED a calendar 📆😂
Thank you so much for sharing your story. You make me feel less alone! 🦓🌻
I am happy that my videos are able to help in some way ☺️💖
Haha, I also treat myself to a drink of some sort on doctor appointment days! I feel like we deserve to pamper ourselves. Also... coffee is life! I absolutely love your heart sweater by the way. It's so pretty! ❤
Aww thank you, I got it from dotti. Coffee is indeed life ☕
Hi, happy EDS awareness month and lots of spoons
Thank you lovely 💖💖💖 spoons to you too 😊
Happy EDS Awareness Month! 🦓
Happy EDS Awareness month to you too 🖤🤍🖤🤍🖤🤍
So sorry that EDS is causing you all these struggles. May God give you strength to endure these trials. ❤
Thank you lovely 🌹💖
3:06 sorry happy to see your doctor 😅😅😅😅😅😅
Hahaha yeah my new General care doctor is really nice and also loves sewing which is cool
@@AmitysLife I vowed to never see any doctor or go to any hospital after the latest hospital stay it was pretty dramatic my therapist is referring for PTSD specialist because I'm missing so many appointments and all my conditions are chronic and crazy..
I enjoyed your video Amity ❤ I've not out in a long time due to very bad complications in movement and everything is a trigger to s flare up I'm almost bed ridden 😢
I am sorry to hear that 😔 Sending you lots of love 💞
I always end up in hospital during EDS awareness month 😅. This time for bladder surgery! At least it’s a planned admission.
Sometimes it's like that 😅 hope your surgery goes well ❤️🩹 much love 💕
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With your internal organs moving all over, could that be causing some of your gastroparesis and intestinal dysmotility? Perhaps by putting pressure on things? I suppose intestines could move around, too.
9:40 - With that intro, I thought you were going to say Liza. lol
Hahaha Liza annoyed me so much I developed dental crowding from the stress 😂😂😂 jks
heyy my stomach is so upset today 😭 its mothers day today too
Aww I am so sorry to hear that 😔🙏🏼 saying a prayer that God gives you strength ❣️
I hope you remain healthy when it comes to EDS. 😊 U are such a pretty lady. You just might find the husband!!! ❤🎉😊
Thank you lovely 🌺
,"Hi" take care.
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This might be good question for a q& a video but how do your housemates cope when you are in a flare up and having a hard time trying not to throw up? Sorry if this triggers anyone
Hey Rachel that's a good question I will save this comment for a future q&a ☺️💖
Sup lady? 😂 Fun fact, May 23 is World Turtle Day. 🐢 Am I not turtley enough for the turtle club. Turtle, turtle, turtle! Props if you know what movie that’s from. lol
That's a full fact! Turtle 🐢 club
1:59 - Did some dingoes attack you at the bus stop?
My jeans were ripped by drop bears 🐻🐨 😂😂😂
Hi🙋🏻Amity (from Italy 🇮🇹 ) ~ my little grandson blew out his 1st Birthday Candle in Sydney yesterday, it could have happened near u Ha-Ha🎉 Just curious, r ur Followers mostly from Aus or other countries also? I suppose coz of the language it's mainly US or GB? English is my mother-tongue but sometimes I have to concentrate whilst ur speaking coz u Aussies have ur vowels all muddled up lol I'm wondering if I'll understand young Kevin when he starts talking🤔...
Aww that's so cute 😍 my main follower base is in the US but I have followers from all around the world. I have followers in India, the UK, all over Europe, Mexico, Australia and so much more ☺️ hahaha yes we Aussies talk real slurred speech 😂
7:23 i understand... but please your health comes first... watch the Frey life... they adopted...i hope you'll have no complications but please amity.. your health comes first... I'm old enough to preach you a little sorry 😅❤
I will have to check out the Frey life I think I may have watched a video or two, not sure if it was her but definitely will look it up