I’ve had squamous cell carcinoma twice on my tongue. First time(28 years ago) partial glossectomy and radical neck dissection. Last year it came back so surgery was a bit more invasive, 6-8 hour surgery. Removal of half my tongue replaced with skin graft from left arm and transposition of the ulnar nerve. That was 4 months ago. Skin graft area of my tongue still a little swollen but I eat , drink and talk just fine. I’m a survivor 👍🏻.
That is a remarkable story, Kathy! ♥️ Would you be willing to participate in our awareness campaign for head & neck cancer survivors? It's called 30 Stories in 30 Days. We share survivor's stories to give other patients just starting on their cancer journey some hope and to demystify what lays ahead for them.
@@thancfoundation sure, I’d be happy to tell my story, let me know what I need to do. When I went for this last surgery I had no idea what to expect, how I would be after the surgery, and my what my recovery would be like when I got home. I still have some residual side effects from the surgery (my left vocal chord is paralyzed and I some facial paralysis), but according to my drs with time it should get better.
@@kathyf1964 That's awesome! We'd love to share your story! You can use this form to send it to us. forms.gle/45qZUJDaiD12oS3D8 …if you'd like to remain anonymous, just indicate on the form and we will promise to honor your privacy. Wishing you a FULL recovery soon!! ♥️
My hubby thought he had a bad top tooth it turned out to be stage 4 cancer he had his eye socket cheek bone jaw bone and top pallet of his mouth all removed and replaced with his hip bone ...that was 3 years ago he was back at work 6 months later no chemo or radiotherapy he gets on with life and has been extremely lucky
My fiancé just got diagnosed with this and I am trying to keep it together which I know I will because I have faith that everything will be all right and you sir I just wanna let you know it doesn’t matter if your face changed or your neck changed you’re alive! And only a shallow person would care about what the other person looks like it’s the heart that you should really be looking at when you’re looking at a person anyway and I’m glad you’re OK! And I’m really glad that you have a understanding loving partner next to you!
I was diagnosed with SCC in 2017. Scariest time of my life, my oncologist said to me at the beginning, she’s going to be a long road but we can fix it. Il never forget those words. I never thought once that I was going to die,ever!! Got the chemo and a month of intensive radiation (every day) it was behind my tongue and I had to feed for a year through a tube, but he was right, been clear three years now. Cancer takes you to places you never knew existed but I do believe that you come out the other end stronger and with a totally different outlook on life. All the best from Scotland. I was 51 when diagnosed. P.S. Don’t smoke kids, it’ll fck you up eventually.
A beautiful and emotional video to watch. The caring and hand holding by your partner very special to see. I send my hugs and love to both of you. Bruce the swimmer New Rochelle N.Y.
I had Adenoid Cystic Carcinoma of Submand gland in it was in the nerve..now my tongue is permanently numb..my mouth is crooked.and part of my lip is numb also..now being treated for Metastatic Ca of the lungs..small nodules..made it so far 6 years..but I know the depression of looking at my face and will never be the same..they say the nerve in the tongue cannot be repaired..so I live my life thankful to be here..but I really don't smile anymore..its destroyed my self esteem emensely
I understand how facial abnormalities distroy our self esteam , there's so many aside from cancer as well, those born with a Permanente disorder.we have to be gratfull for the blessing we have,the one thing that annoys me is how blunt and rude peoples comments can be.
You are so brave Bonnie . Never forget that this story might of help just one other person get through there suffering and struggles and know that there is always a way through .. God Bless you and trust and pray you are getting along day by day .. Life is hard and we never no what tomorrow might bring to any of us .. keep staying strong .. 👏😍🙏
Everything you said you're going thru, am currently going thru since I was 23 years. Now I'm 60. I now have nodules and carcinoma of the lungs and lymphoma they say. It has been a rough ride for me. I never though someone could suffer so much in life. I ask why?????
I was diagnosed back in February of last year squamous cell carcinoma I had issues with my tonsil and they did biopsy turns out it was a large tumor and they removed my tonsil and more a lil bit of my tongue I have a feeding tube I did radiation and chemo all that’s done just ready to see see how and start eating again
@@dr.vijaysinghchauhan3803 Hi, I'm OK I think I'm waiting for results of the biopsy, I've had one cut from my head two years ago, it was malignant. So I won't be surprised if these results are the same. I have a skin condition called Actinic keratosis / solar keratosis, its caused by sun damage. And can and does turn to carcinoma. Thanks for asking
radiation is awful. im hoping immunotheropy will come around for more and more cancers. i know 2 ladies that immuno CURED their lung cancers and one was stage 4, nearly on death’s door.
My friend husband recovered from sqamous cell Cancer mouth 1 year ago . He had surgery and chemotherapy radiation . Just got a news that he has develop cancer in lung . request from all sir or since u all did lot or research Any alternative modalities for him . Kindly share
I’ve had squamous cell carcinoma twice on my tongue. First time(28 years ago) partial glossectomy and radical neck dissection. Last year it came back so surgery was a bit more invasive, 6-8 hour surgery. Removal of half my tongue replaced with skin graft from left arm and transposition of the ulnar nerve. That was 4 months ago. Skin graft area of my tongue still a little swollen but I eat , drink and talk just fine. I’m a survivor 👍🏻.
That is a remarkable story, Kathy! ♥️ Would you be willing to participate in our awareness campaign for head & neck cancer survivors? It's called 30 Stories in 30 Days. We share survivor's stories to give other patients just starting on their cancer journey some hope and to demystify what lays ahead for them.
@@thancfoundation sure, I’d be happy to tell my story, let me know what I need to do. When I went for this last surgery I had no idea what to expect, how I would be after the surgery, and my what my recovery would be like when I got home. I still have some residual side effects from the surgery (my left vocal chord is paralyzed and I some facial paralysis), but according to my drs with time it should get better.
@@kathyf1964 That's awesome! We'd love to share your story! You can use this form to send it to us. forms.gle/45qZUJDaiD12oS3D8 …if you'd like to remain anonymous, just indicate on the form and we will promise to honor your privacy. Wishing you a FULL recovery soon!! ♥️
@@thancfoundation thanks for the link! I’ll get my info to you within the next few days. Feel free to use my name 👍🏻
@@kathyf1964 ♥️♥️
My hubby thought he had a bad top tooth it turned out to be stage 4 cancer he had his eye socket cheek bone jaw bone and top pallet of his mouth all removed and replaced with his hip bone ...that was 3 years ago he was back at work 6 months later no chemo or radiotherapy he gets on with life and has been extremely lucky
God Bless him🙏🏻
I’m so happy for you, my mum has been diagnosed of the same diagnosis, hope to get any advice from you if you see this...
Unga hubby ipo epdi irukanga
Tony is blessed to have a wife that cares for him unconditionally. Family member dealing with it now so I so hope we get through this.
My fiancé just got diagnosed with this and I am trying to keep it together which I know I will because I have faith that everything will be all right and you sir I just wanna let you know it doesn’t matter if your face changed or your neck changed you’re alive! And only a shallow person would care about what the other person looks like it’s the heart that you should really be looking at when you’re looking at a person anyway and I’m glad you’re OK! And I’m really glad that you have a understanding loving partner next to you!
I was diagnosed with SCC in 2017. Scariest time of my life, my oncologist said to me at the beginning, she’s going to be a long road but we can fix it. Il never forget those words. I never thought once that I was going to die,ever!! Got the chemo and a month of intensive radiation (every day) it was behind my tongue and I had to feed for a year through a tube, but he was right, been clear three years now. Cancer takes you to places you never knew existed but I do believe that you come out the other end stronger and with a totally different outlook on life. All the best from Scotland. I was 51 when diagnosed. P.S. Don’t smoke kids, it’ll fck you up eventually.
A beautiful and emotional video to watch. The caring and hand holding by your partner very special to see.
I send my hugs and love to both of you. Bruce the swimmer New Rochelle N.Y.
To be loved makes a huge difference
i know and understand your depression,i`m the same as you,bless you for inforrming others.
So glad you folks are doing better. Be vigilant and stay well. 😊👍
Thank you for this video, I needed to understand it. 🙏🏽💜
Thanks for sharing this
I had Adenoid Cystic Carcinoma of Submand gland in it was in the nerve..now my tongue is permanently numb..my mouth is crooked.and part of my lip is numb also..now being treated for Metastatic Ca of the lungs..small nodules..made it so far 6 years..but I know the depression of looking at my face and will never be the same..they say the nerve in the tongue cannot be repaired..so I live my life thankful to be here..but I really don't smile anymore..its destroyed my self esteem emensely
I understand how facial abnormalities distroy our self esteam , there's so many aside from cancer as well, those born with a Permanente disorder.we have to be gratfull for the blessing we have,the one thing that annoys me is how blunt and rude peoples comments can be.
You are so brave Bonnie . Never forget that this story might of help just one other person get through there suffering and struggles and know that there is always a way through .. God Bless you and trust and pray you are getting along day by day .. Life is hard and we never no what tomorrow might bring to any of us .. keep staying strong .. 👏😍🙏
Everything you said you're going thru, am currently going thru since I was 23 years. Now I'm 60. I now have nodules and carcinoma of the lungs and lymphoma they say. It has been a rough ride for me. I never though someone could suffer so much in life. I ask why?????
You are a precious couple…
He's not alone.
Your wife is very pretty. She will be by your side.❤
Bless u all
I was diagnosed back in February of last year squamous cell carcinoma I had issues with my tonsil and they did biopsy turns out it was a large tumor and they removed my tonsil and more a lil bit of my tongue I have a feeding tube I did radiation and chemo all that’s done just ready to see see how and start eating again
How are you feeling? My fiancee' just got diagnosed of tonsil squamous cell cell carncinoma. He is metting with oncologist next week.
Mam is that hpv related one.@@desiderata333
My mom is suffering from this disease.
She is suffering too much 😔
God Bless him
how are you doing now (6 years later?)
I am a head and neck cancer survivor my right lower jaw bone was removed
I'm having a squamous cell cut from my bottom lip tomorrow.
How are you doing now
@@mycolliesandme268 now how r you dear
@@dr.vijaysinghchauhan3803 Hi, I'm OK I think I'm waiting for results of the biopsy, I've had one cut from my head two years ago, it was malignant. So I won't be surprised if these results are the same. I have a skin condition called Actinic keratosis / solar keratosis, its caused by sun damage. And can and does turn to carcinoma. Thanks for asking
@@mycolliesandme268 thanks..take care yourself..
radiation is awful. im hoping immunotheropy will come around for more and more cancers. i know 2 ladies that immuno CURED their lung cancers and one was stage 4, nearly on death’s door.
I have this nasopharyngex oropharynx and periform sinus they told me there is nothing they can do for me
Don’t give up, Look for more opinions and alternative options . 🙏
God has the power to cure you, faith &hope.🙏😍
Did you hear him !!! RIGHT DOCTOR!!!
My friend husband recovered from sqamous cell
Cancer mouth 1 year ago . He had surgery and chemotherapy radiation . Just got a news that he has develop cancer in lung . request from all sir or since u all did lot or research Any alternative modalities for him . Kindly share
Hemp oil. Search in UA-cam regarding this
How is he doing? He can try immunotherapy.
My mom is suffering with squamous cell carcinoma with stage 4....😭😭😭
Try hemp oil.. search about hemp oil in UA-cam... You get many proven videos curing cancer.... Take few minutes of your time and check once
Ipo epdi irukanga
I try sending tomorrow
Any alternative healing therapy. Nutrition etc
yes ! alkaline diet and immunotherapy
Where's the follow up
there never is on so many of these, its frustrating..
Story sent! Sorry for the delay, hope I’m not too late
Is he still alive??
🙏❤️❤️