How Kidney Failure thought me a life lesson. My Story through Kidney failure
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- Опубліковано 6 жов 2024
- In today's video, I want to share with you my personal experience with kidney failure and what not to do to avoid accelerating kidney damage. I've talked a lot about my time on dialysis and my recovery from my kidney transplant, but I haven't really talked about how I got to that point. So, if you're interested in hearing about my journey and learning some important tips for kidney health, be sure to stick around and subscribe to my channel.
Let me take you back to the time when the phrase "ckd" was introduced into my life. It was 2005, and I was 5 months pregnant when I had a high fever and was sent to the hospital. The doctors said my fever was off the charts, and I had to be laid on an ice blanket to bring it down. It was then that I was told I had ckd, and I was at stage 2 almost 3 when I was diagnosed. Despite being put on a high dose of prednisone to regain some function, my diagnosis was FSGS, and it remained a mystery as to what caused the disease.
Fast forward 12 years, and my creatine levels started to increase rapidly. I started to develop symptoms like fatigue, itchiness, nausea, and headaches. Looking back, I now know that the stress I was experiencing in my life at that time was the culprit. I was living in constant stress and never made a conscious effort to manage it. Stress is dangerous, especially when you already have an underlying condition like ckd.
In 2019, I started the evaluation process to get on the transplant list in NC, but the pandemic disrupted everything, and I ended up moving to California in the middle of the process. My creatine was 9.5 and my kidney function was only at 7% when my doctor said my best option was to start dialysis. I was on peritoneal dialysis for 9 months until I finally finished my evaluation and was scheduled for a kidney transplant.
My advice to all of you, whether you're sick or healthy, is to avoid stress as much as possible. Looking back, I wish I had put all of my energy into avoiding or decreasing stress. It's a real problem and can be even more dangerous when you have an underlying condition. So, take care of yourselves and stay positive. Thanks for watching!
2 months on dialysis it’s a journey.. stay strong 💪🏾 day at a time and god first ❤
Your presence, even though a video, is so comforting and warm.
Thank you for sharing your experience. ❣️
Thank you for your kind words, it means a lot. 💚
I have kidney disease. Creatine very bad in labs. Itchy, absolute exhaustion, very high stress levels
Thank you for sharing your story. I am glad that you was able to get a transplant and you are doing good . I am stage 4 Chronic Kidney Disease, I am older and very concerned I have other health issues too. You have encouraged me about getting rid of stress. Thank you for that. Blessings
Thank you 🙏 very much to tell your story.God bless you
Thank you so much dear Wendy. You are brave beautiful and an inspiration!
Thank you so much! Means a lot
Your story is very similar to mine. I am 2 weeks post op with the catheter surgery, also had an emergency start due to my low numbers. Started PD on my 3rd day. I only hope my journey goes as smooth as yours. Thank you for making this video!
Thank God for your recovery! Keep going strong. My body cannot clean the toxins from my body. The biggest issue I have with this problem is that I get so exhausted and yes I have nausea. I'm like you were I have to sleep and rest sometimes. I cannot work 9 to 10 hours a day it's too much for me. I'm glad that you put this video out. Thank you
Thank you so much for sharing. Iam not yet on dialysis.
I am at 11% and awaiting My transplant date. My Sister will be donating her Kidney. However she had to have a hysterectomy a few mths ago. So waiting for her to settle down before we can proceed. Your testimonial is very reassuring. Thank you again from the UK 😊
She need more subscribers.
Thank you for this video. I was stable at 41p. cent function for years - told my kidney would outlive me.
Over the past year, especially, my function has plummeted. I dropped to 31 after having Covid, and now I’m at 24%. It’s terrifying! You mentioned stress as a likely contributing factor for you, and I can say, that the past year has been one of the saddest and most stressful for me. My doctor can’t explain the sudden decrease, but stress might be the answer.
Thank you for this video, Wendy! Do you have any advice or tips for me, as I brace for what is to come ?
I hope you continue to be well!!
I genuinely wish you nothing but the very best, and my deepest hope is that your remaining kidney function perseveres for countless years ahead. Reflecting on the past, I realize I would have approached those difficult times with more tenderness towards myself, making a conscious effort to embrace relaxation and self-compassion. I would have acknowledged my illness with a gentler heart, showering myself with love and kindness despide the challenges that surrounded me.
Stay positive, you got this ♥️
I have ckd too stage 4. 23% non symptomatic I go to gym ...but my expected date of my kidney stage 5 is 2027 I go on dialysis this really scares me but life must continue..my own immunity attacks my kidneys...
Thank you for sharing.
You are very courageous and blessed ❤
Wish you great health
Thank you beautiful 😘 same to you.
I am63 and dont have my husband support, he doesnt want to hear i am died, just that i have to get out of bed and stop being lazy, have trouble sleeping and get sick and itching, cant get enough water and very tired at times have cod kidney diease stage4 and both kidney getting smaller, dont want Dialays, long time since 16 yr old with high blood pressure on medication, had cancer and now afib, hearing aids and trouble with eyes, i am very depressed.
I’ve been through the ringer with kidney stones and in one of about 50 surgeries for kidney stones, they knicked the renal artery and sent me home after the surgery. Almost died from hemorrhaging. Ended up with a kidney only working about 25%. After several years it went below 20% and they removed the damaged and dying kidney. Flash forward to now, I’m 56 and the VA says my GFR is 63 down from 94 with high creatinine and the sent me to a Nephrologist who says I have CKD. I spinning still from this sudden change.
Hi Wendy
Can you please make a video regarding your health update , your latest creatine and heomoglobin levels. Also , please mention if your first trip after transplant affect your transplant in any way. After how long can we travel abroad after transplant and what all precautions must one take ?
It would be of great help
Thanks
I travelled in other countries and make sure to get all of your latest flu shots and vaccines.
wish i had a donor waiting is the hardest part, i used to be a very active person, now i struggle to get out of bed.....
I hope it happens for you very soon 💚
You should do your videos in Spanish also.
It will help more people.
Stay healthy.
Thank you. I have thought about that. I will keep it in mind. 💚
God bless you.
How you manage 13 years with kidney disease it is so much pain full iam also 9months post transplant cadaver transplant creatinine 1.3 now I have you are very great wendy
Hi Obulam! thank you for your kind words and congratulations on your transplant. About how I manage 13 years with kidney disease... I did not experience many symptoms until my creatine started to decrease rapidly, which was during the last years when I went into kidney failure.
Thank you. I want to share this story with my sister that is end stage so that she can remain positive for all outcomes. She is always in pain, swollen and limited on water intake and lots of food restrictions.
How did you deal with the doom and gloom that this disease presented?
Sorry to heard your sister is going trough kidney failure. A difficult time for sure..
When my kidneys stared to fail I was so busy with life. I was a business owner and I didn’t really had the time to focus on myself and that made it difficult. When I sold my business I focused on nothing else but myself. I focused on beauty and being thankful. I focused on my biggest reason for keep pushing, my son. That allowed me to go through that time feeling happy and it gave me the strength to fight. 💚
@@wendycopeland2.0 thank you for the kind words. We have encouraged her to retire and enjoy some time off. But it seems that work is the only thing that distracts real life. Traveling is not an option since she has in center with 3x’s a week schedule. We are praying and staying as positive as possible.
I wanted to ask for how long post transplant does one needs to be in complete isolation?
The first few months post-transplant is when the immune-suppressive medication doses are the highest therefore the immune system will be the lowest. I personally don't think complete isolation is necessary but you do need to learn to take care of yourself. In my opinion, following the safety guidelines the doctors give you is super important. Eventually as the days/months go by you will start learning to live with your transplant and will start recognizing what safety measures are a must and what others don't apply to you as much. When in doubt go with the safety route! Hope this helps.
Kidney problems gives every man lessons who is suffering from ckd
New subs here ❤❤❤❤
My tranplant done mam i am vel now my cret is 1.3
I am good what about you
How you managing your diet
you know ten yrs ago a doctor would go over your test results with you in his office , that dont happen anymore . you need to have a doctors degree to under stand wat your livewell results give you just sayin
Im from phil, 23years old and 5months in dial, can you help me with my transplant😃
How r u now dear?
Did u suffer from dpression after transplant kindly tell bcoz my czn got recntly transplant and he is suffring from depression
Hey there! I am thankful to say I don’t suffer from depression. Neither I did prior transplant. I am sorry your cousin is going through that and I am glad he has people like yourself close to him worrying about him.
This is my instagram @wendy_cplnd it might paint a picture of my current life. I can tell you that i feel pretty good. There are things I have to deal with to this day but I am doing good.
I have a bit, I am post transplant one year. Sometimes I just feel down. It can be for different reasons. Medication can be annoying to sort out. Side effects etc. he needs a goal, something to work towards. Something to keep his mind focussed on other things. Eat well and exercise also will help and seeing friends etc. keep busy.
In this case the circumstantial evidence is called Similar Fact Evidence
Do you ever had protein in the urine?
Yes, since i was diagnosed with CKD
How much it was in terms of quantity?
This is Auntie, I really need to talk with you ‼️
Hey Patty! I will send you a message on messenger 😘
❤
How u fell now
Hi
thnx