The Autism Iceberg(s)

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  • Опубліковано 29 жов 2024

КОМЕНТАРІ • 96

  • @Sarahizahhsum
    @Sarahizahhsum Рік тому +17

    I am autistic and so is my boyfriend. We have both been through horrific abuse. It makes us crazy as fuck. We still love each other and with the power of nutritgenomics we will both heal. I refuse to accept such treatment and I refuse to allow others to abuse my sweet loving boyfriend. I have videos on my channel of what we are doing. I hope they help someone. Love you all so much. ❤

  • @freerideziege6047
    @freerideziege6047 2 роки тому +43

    Good to see you back.
    Actually it is a great moment. I start a very nice, new job in 3 days after 8 month of being unemployed. Its the first job i told my boss in advance that I am autistic. I am 40 and I only know that I am autistic since 2 years. I am so nervous to not make the same mistakes I did before when it comes to masking and trying to be the employe they want me to be, just to break down once again and lose my job after a short period of time.
    Thank you for encouraging me to be an advocate for myself. Your video makes me alot more confident to do it right this time, or at least much better then I did before.

  • @autiejedi5857
    @autiejedi5857 2 роки тому +33

    It does take a village, and all voices are needed!
    Love to all who are autistic, who love and support autistics and who make the effort to accommodate and respect autistics.
    Love and many thanks also to you Quinn! 💜

  • @andreahalverson4547
    @andreahalverson4547 2 роки тому +34

    Nice to see you again, Quinn. This was such a hope-filled video; my grandson may, indeed, live in a world that will finally be kind and understanding of differences between autistic and neuro typical people.

  • @rushiaskinnerwallace6175
    @rushiaskinnerwallace6175 2 роки тому +6

    I know you’re saying that it’s other advocacy going on that’s educating people like the NT’s such as your boss, the attorney and the dentist who are increasingly engaging in more informed and inclusive ways with the ND’s. But I think it’s important to realize that videos like yours, and similar ones of other autistic people, are an essential part of that “other” advocacy. These videos provide important nuances , first person perspectives, additional solutions, and more. So, I think YOU’RE a reason it’s getting better. This is where people who are first hearing about autism can come, can be pointed to, to deepen their understanding. I’m thankful for that. It IS advocacy for all autistic people.

  • @melissamiller2696
    @melissamiller2696 Рік тому +5

    This brought me to tears to hear you being cared for like that. Recently understanding I'm autistic at 77, I was wondering if I should let it all hang out. I recently saw a friend for the first time in months and blurted out that the newest thing in my life was discovering I'm autistic. I've been wondering ever since if I should have done that. This video encourages me to be open about it. What I didn't expect was her saying that makes sense to her. She's an intellectual, so assume it's not just stereotypes; but because of my delayed response, couldn't ask her to clarify.
    I think my best friend, after months of sharing with her, may be accepting that I'm autistic. Of course, I'm picking up on nuance. She wouldn't cast doubt out loud, except for the "we all feel that way at times."

  • @linden5165
    @linden5165 2 роки тому +16

    Nice to see you back. I agree entirely - all advocacy, honesty, vulnerability and trust moves us forwards. I've had some very good experiences lately too with self-advocacy. It's almost hard to compute the reality of a good, supportive experience as it's not what I tend to expect, but more and more I see it as possible.

  • @kandm7710
    @kandm7710 2 роки тому +10

    Your explanations have been HUGELY beneficial to this NT lady who was desperately searching for information and explanations of living with autism for myself so I can help my very distressed ND (newly aware) lovely husband. Thankyou, you are a pretty wonderful advocate

    • @Autistamatic
      @Autistamatic  2 роки тому +4

      Thanks for your comment and the message you sent via the website. Feedback like yours warms my heart & confirms that this is worth doing.
      The period following Dx can be a difficult one for many of us, often because it means unpacking a LOT of misconceptions, but also because it presents us with countless unknowns. For all the knowledge & certainty it brings, it also carries passengers of self-doubt, regret and knuckle-chewing embarrassment as we relive our lives with new perspective. Our partners & families will inevitably share in some of this and if the relationship is good, they (like you) will want to help & understand.
      I hope his anxiety reduces soon and you both can start learning together about the new world you find yourselves in. There's plenty of content on the channel to offer insight & comfort and a hugely supportive community online.

    • @rushiaskinnerwallace6175
      @rushiaskinnerwallace6175 2 роки тому +3

      I ❤ witnessing this interaction

  • @istarigreenman8235
    @istarigreenman8235 2 роки тому +19

    It's good to see you back Quinn, and I hope all is going well in your life. :-)

  • @otakus1216
    @otakus1216 2 роки тому +13

    One of the few places I feel understood

  • @SpencerHunley
    @SpencerHunley 2 роки тому +12

    Really, really needed this, especially now. Bravo, Quinn; well done!

  • @mrsm6727
    @mrsm6727 2 роки тому +15

    Great to see you back Quinn 😊 Brilliant video, as always, thank you!

  • @unapologeticallyautisanal3057
    @unapologeticallyautisanal3057 2 роки тому +9

    Great video Quinn...Good to see you back.

  • @PeteLittle1970
    @PeteLittle1970 2 роки тому +9

    so very well timed video. I've been off work for the last few weeks with a bad case of autistic burnout. I always used to hate trying to explain why I couldn't do what was being asked of me. However this time, I approached my manager and he straight away made all the correct noises and offered support that really helped without me asking. it was so liberating. My needs being met before I had to make a fuss over it. So this video could not be better timed. I was actually in tears of recognition at parts. Once again you've kicked the ball out of the park.
    Oh.. and my name's spelled Pete Little but it's pronounced Throat-Wobbler Mangrove ;) (for those that know their more obscure Monty Python sketches ;) )

  • @alanguest1979
    @alanguest1979 2 роки тому +9

    Brilliant video Quinn, everyone somehow or in some way, can make a difference.

  • @cosmolosys
    @cosmolosys 11 місяців тому +1

    This reminds me of last year, when a police officer asked me how they should communicate because of my autism. I told them to be as honest direct and conrete as possible. That works the best and most efficient for me.

  • @MrAndywills
    @MrAndywills 2 роки тому +7

    Welcome back Quinn, been keeping an eye on your channel for new content.
    There may be a lot of us who are able to self advocate. But there is still a need for the likes of your channel and videos to give the rest us valuable information and a framework for us to explain autistic lived experiences to non autistics/neurotypicals.

  • @HypocrisyLaidBare
    @HypocrisyLaidBare 2 роки тому +3

    Welcome back Quinn, another insightful video well narrated and balanced.
    I too believe that advocacy is not about brow beating neurotypical people but by getting them onside by showing them there is a wealth of benefit not only for the autistic person but also for themselves and their affairs and business around them. That their lives can be easier as a result of making our lives easier and understood.
    Unfortunately, many places claim to be inclusive and open to autistic needs yet fail catastrophically because of lack of "real" understanding and following non-autistic explanations and descriptions of autistic people and needs.
    I am referring to personal experiences with a local authority (Council / Town hall), regarding my son and ex partner who now lives in another town. That Council claimed they "knew" autism, failing to see that they cannot "know" autism, only "know" of it. I tried to explain that each autistic person is a different case, a different set of needs and a handout from a seminar is not "knowing" autism. It is "fact dissemination", statistical data.
    We may be statistical data points but beyond that we have needs and requirements that are not "disseminated" in those seminars.
    Sitting in a classroom looking at an overhead projector, half awake with boredom and longing for the end of the day, does not a good grounding in autism make.
    I was left feeling unheard, misunderstood and failed by the council referred to. Their involvement was critical and restrictive of and towards me. Their simple failures to grasp my needs was monumental in my view. Even now, they are ignorant of my needs, the process to correct those errors is equally flawed and still does not grasp my individual needs and is doomed to failure, simply because people are blissfully unaware of their own ignorance.
    I hope that one day my son will know a world where it is common place to understand autistic people better than it was for the likes of you and I Quinn.
    Here's hoping!

  • @thewise3551
    @thewise3551 Рік тому +2

    Thank you mate. For all your help. I’ve just discovered this channel and it deserves more recognition. As a 44 year old man who has been referred for diagnosis, and is at present finding it very difficult to process this world, your videos are helping me finally understand how my brain works. I wish I could show them to everyone.

  • @maaadkat
    @maaadkat 2 роки тому +5

    I tried being more explicit with my boss once, but apparently using that kind of language in work emails is "unprofessional"

    • @reson8
      @reson8 2 роки тому

      Agreed. We had some issues at work and i expressed my disappointment in an email. My boss said to me that he thought we'd moved past that sort of thing. I chuckled inwardly, but stood by my point that if all else fails, that's what he can expect.

  • @willamthewisp2646
    @willamthewisp2646 2 роки тому +9

    Always appreciate your work.

  • @sammyjade7359
    @sammyjade7359 2 роки тому +5

    I'm so please I found your channel. I find your voice super relaxing and your content is just what I needed at this particular time, being a newly diagnosed autistic person. Thank you so much for making your videos

  • @MariahBurley
    @MariahBurley 2 роки тому +3

    I learned about the concept of the Autism Iceberg months ago from someone on Twitter when I was preparing to make my Stereotypes about Autism video.

  • @Tilly850
    @Tilly850 Рік тому +1

    At 65, just discovered a month ago I'm autistic, I am on a path of gentle advocacy.

  • @RaunienTheFirst
    @RaunienTheFirst Рік тому +3

    I would like to congratulate your patron "stimpunks" on their fantastic pun

  • @dyctiostelium
    @dyctiostelium Рік тому +1

    It is so heart warming to think we might be a tiny part of this resonance for better, less stressful lives.
    Thanks for all you do and all your clarity.

  • @thesteven2army
    @thesteven2army 5 місяців тому +2

    Autistic peep here! This vid is very informative on certain topics that are not documented enough! :3
    (Sorry if i comment on the wrong vid)

  • @rachelkrislov
    @rachelkrislov 2 роки тому +4

    omfg if ANYONE responded to my neurodivergent anxiety by CALLING ME I would just implode

    • @rottingsun
      @rottingsun Місяць тому

      a VIDEO CALL to boot... would have been a huge nope from me.

  • @anthonypena3322
    @anthonypena3322 11 місяців тому +4

    i was dissappointed that we didnt see the same picture of an iceberg every 5 seconds but good vid nonetheless

  • @chrisash5079
    @chrisash5079 2 роки тому +2

    Good to see you back Quinn,

  • @mike-williams
    @mike-williams Рік тому +2

    I've actually worked in a couple of university medical schools and found that some of the medical academics are the worst (having opinions on autism waaay out of their specialisations) and can be the most dismissive and confronting bosses I've encountered.

  • @Truerealism747
    @Truerealism747 2 роки тому +16

    There's needs more research on autism and fybromyalgia

    • @OldDeadBread
      @OldDeadBread 11 місяців тому +2

      I believe Elher danlos is the connection. You should read about the RCCX gene theory

    • @Truerealism747
      @Truerealism747 11 місяців тому

      @@OldDeadBread yes the subconscious brain did you have SPD as a child thankyou

    • @PeppermintPatties
      @PeppermintPatties 2 місяці тому

      ​​​​@@OldDeadBreadYes, I also believe hypermobility could be too.
      Check out Jessica Eccles at Brighton University. X

  • @Mokrokot
    @Mokrokot 20 днів тому +1

    Wow. It was really cool realisation.
    When I was start athe video I was expected basic iceberg video with levels and other stuff, but just few examples and conclusions give me much more than I expected.
    I watch not much from your videos but I really love them! It nice to see a people sharing experience. I think it might be a way to become best as society

  • @ajn2370
    @ajn2370 2 роки тому +3

    Great to see you back Quinn. Your videos have been a huge help to me.

  • @RatsPicklesandMusic
    @RatsPicklesandMusic 2 роки тому +2

    Thank you Quinn!! This is the main reason I let people know I’m autistic!

  • @BooBooBugalugs
    @BooBooBugalugs 22 дні тому

    This is thanks to people like you, Quinn. You articulate in ways that cross the boundaries. Even more, you give us the words to advocate for ourselves in an nt world.
    Thank you more than i can say!

  • @PeppermintPatties
    @PeppermintPatties 2 місяці тому +1

    Thank you for speaking up for me and us. You're simply wonderful! 🥰

  • @BeingAutistic
    @BeingAutistic 2 роки тому +5

    Great video, thank you!!

  • @michaelvandenheuvel317
    @michaelvandenheuvel317 Рік тому +1

    Thank you so much for the support and encouragement you bring. It lifts my spirit In tuff times.

  • @WilliamAlanPhoto
    @WilliamAlanPhoto 2 роки тому +2

    I kinda wish the example you used was not abstract. I wanna cheer from the mountaintops about how the request was ridiculous and their solution obviously wasn't one! lol

  • @typhoontim2
    @typhoontim2 2 роки тому +2

    Thank you Quinn. This video was much needed.

  • @Phoenix-regenerating
    @Phoenix-regenerating Місяць тому

    Wonderful Thank you Quin. It gives me strength to tackle some of my own challenges with self advocacy. Instead of waiting for the earth to swolllow me so I can disappear. I'm not even sure I really know how to begin. Ive got it so wrong in the past. Or if its even to late, ( diagnoised in my 60s).

  • @Ember_Green
    @Ember_Green 2 роки тому

    Good to see you on the TL again, friend! Great video, wonderfully written 😭

  • @etunimenisukunimeni1302
    @etunimenisukunimeni1302 Рік тому

    What a lovely video, although it almost broke me a bit. Reminds me of this TEDx talk My brain isn’t broken by Tashi Baiguerra, which had one of the most powerful messages I've ever heard: "There's nothing wrong with me. I'm just autistic!" relating to the realisation of what was causing all the troubles she had. Trying to fit into a world not fit for her.

  • @Keith_Mikell
    @Keith_Mikell Рік тому

    It's wild that you were diagnosed so long ago and actually grew up as an early autist (early meaning diagnosed in the 80's i think you said). I wish i was diagnosed as a kid. it would have saved me tons of heartaches. It might have even stopped an opioid addiction that i had to kick. Cant look back though. Gotta keep moving forward. I was in a program as a kid bc i had a cleft palate and they gave me complete medical, dental, and everything. In that was speech and communication therapy. I beleive that helped mask my autism. Im also a rare breed meaning I have a different energy. people are either really respectful of me, hate me, love me, or dont care and cant handle my personality.

  • @francescoleman-williams911
    @francescoleman-williams911 2 роки тому +2

    An amazing video. Quinn, you make so much sense and explain these things with such eloquence! Thank you 🙏🏼

  • @Barnesofthenorth
    @Barnesofthenorth Рік тому

    Sadly my work is still not great at this, I've told them I'm autistic and would rather work from home as when I was in before COVID I was having constant shutdowns resulting in sitting for ages before being noticed then manager drilling me for what was wrong, before finally going home.
    Sadly while they have finally agreed to let me continue working from home they keep pushing for me to "try the office, you might like it now" saying they are "worried about not being at home and not socialising with people in work". No matter how much I say its the whole atmosphere and people trying to talk to me unwarranted while I'm working is a huge cause of stress they insist on asking all the time for me to try it.

  • @martinmoxness6712
    @martinmoxness6712 2 роки тому +3

    You have such an importaint voice in the community' thanks for sharing :). You wouldn't happen to have any videos about imposter syndrome or masking?, couldnt find any

  • @towzone
    @towzone Рік тому

    Thanks again, Quinn, for an excellent video!

  • @tomcontini9641
    @tomcontini9641 Рік тому +2

    You're boss may have been scared of a disability lawsuit.

  • @musingfoodie1041
    @musingfoodie1041 Рік тому +1

    I just found your channel and I have been enjoying your videos. I love the visuals, very engaging! Many thanks for the content you share!

  • @camellia8625
    @camellia8625 Рік тому

    It would have been good to know what the issue and solution proposed was.
    What an amazing solicitor service that offered to work to your preferred communication style and needs.
    I love your metaphor:
    Shoots of kindness in a dessert of indifference

  • @gllmusic
    @gllmusic Рік тому

    It's difficult trying to communicate with my partner when I'm overstimulated and what that means, and what my expectations are. Hearing bad music to me is worse than most physical pain, for example. Certain color patterns or bright light can cause a ton of stress and discomfort. Trying to survive in a neurotypical-dominated world is challenging at best, and a living hell at worst.

  • @EBR1
    @EBR1 10 місяців тому +1

    I think it's time that autism be taken out of the DSM just like Homosexuality was back in the 70's. Autism should NOT be considered a "Disorder" or a "Disease" of some kind that needs to be fixed. Like homosexuality, autism needs to be ACCEPTED as a difference or a neurodivergence, rather than something that needs to be fixed or corrected.

  • @ds.laetitia
    @ds.laetitia Рік тому

    This video kind of makes me sad. When you express your concerns, your feelings, your needs, you are ignored. When you do the same and labelling it autistic, you are heard. If only people accepted others as they are, with their differences, their specificities, even without any label, just take others for who they are, all of this wouldn't be so much needed. What about all of those who aren't diagnosed? They will keep on hitting a wall. Definitely, if I get a positive diagnosis, I will contact back the schools I went to and explain why my path to get a degree (that I didn't get) was so weird and difficult.

  • @Uatemysoul
    @Uatemysoul 10 місяців тому

    One day I came home and checked the mail box. I had a Jury duty letter. This just automatically set me off. " NOPE." I filed the paperwork to be dismissed. But it was 3 weeks before the date was supposed to be and I didn't know if I would be dismissed. I went from thinking this could be interesting, to this will be hell. I can't be the judge of someone else that's not fair. For 2 weeks my head was occupied by nothing but the looming dread of jury duty. I finally called and just said. " Hello, my name is Blank, I've been selected for jury duty, I'm autistic and I can't do this who do I need to talk to. I finally got in contact with the lady that wrote up the dismissal form telling me that she just sent my response. I was emotional, to say the least. " That's not good enough, I NEED you to tell me I don't have to do this." And only after that did I calm down. It was something neurotypical people would have brushed off as nothing. But for me it was a lingering dread that haunted my thoughts for two weeks until I had a meltdown.

  • @Destiny975_Hollow-Finkelhuben
    @Destiny975_Hollow-Finkelhuben 2 місяці тому

    there is so little autism content in German that I can't show anyone in my life that I'm not making this all up... and I have to wait at least two years for an official diagnosis...
    I'm thinking about asking creators like you if I can translate the videos into German and send them a voiceover so that they can upload their videos in German too, so that I can show my friends and family that I'm not "just weird"...
    (just because they're too lazy to read subtitles....)

  • @paavohirn3728
    @paavohirn3728 Рік тому

    Thank you! As always, you're an inspiration.

  • @silverriver7866
    @silverriver7866 Рік тому

    I would love to hear more about how your wife advocates for you. The example you gave was very helpful.

  • @AutisticBrain
    @AutisticBrain 2 роки тому +2

    Great video❤❤❤

  • @louispuer-ul2gg
    @louispuer-ul2gg 6 місяців тому

    If I do end being bald, that beard will become my only lifegoal.

  • @JoyFay
    @JoyFay 2 роки тому +6

  • @Oddpistachio1
    @Oddpistachio1 Рік тому

    My sound isn't working. I checked on a different video and my sound works fine on that one. Weird.

  • @JoelFelsenstein
    @JoelFelsenstein Рік тому

    Hey Quinn how are you shall we catch up soon?

  • @RE-kk2cq
    @RE-kk2cq Рік тому +1

    comment for the algorithm

  • @thelifester
    @thelifester 10 місяців тому

    I’m curious about why you said they instead of he or she. Do autists prefer that? I’m asking because my younger sister has asked to be called they and i think she’s autistic like me.

    • @shellydrelly
      @shellydrelly 9 місяців тому +1

      Autism and gender dysphoria are highly interlinked. It’s likely that she “identifies” as something between genders, but that’s something that she should be asked directly. Good on you for seeking out these answers

  • @eladhen2
    @eladhen2 Рік тому

    Thank you

  • @MiracleFound
    @MiracleFound 8 місяців тому

    Where do I go to find out if I am autistic?

  • @michaelvandenheuvel317
    @michaelvandenheuvel317 6 місяців тому

    So that people may see.

  • @buttercxpdraws8101
    @buttercxpdraws8101 2 роки тому +6

    ✌️💕👏

  • @gonnfishy2987
    @gonnfishy2987 2 роки тому +2

    😮 yay

  • @RaunienTheFirst
    @RaunienTheFirst Рік тому +2

    10:30 ACAB though

    • @kidokiite
      @kidokiite Місяць тому

      You can't lump a group of people as all bad. That's literally what this video proves.

    • @RaunienTheFirst
      @RaunienTheFirst Місяць тому

      @@kidokiite it's not about whether they are all individually bad people on a personal level, they're probably not. It's about their function in society. About policing as an institution. The primary purpose of the police is to enforce, through violence or the threat of violence, a socio-economic system that keeps a small group of people wealthy and powerful at the cost of the wellbeing (and sometimes even lives) of everyone else. To partake in such an institution, to enforce misery and destitution on your fellow people, often the people most in need of help, is the height of bastardry. Hence:
      All
      Cops
      Are
      Bastards
      It's like saying "all autistic people are neurodivergent". It's not lumping people together, that's just what autism *is*. Similarly, saying ACAB isn't lumping people together. That's just what policing *is*.

  • @Astrogamer52
    @Astrogamer52 2 роки тому

    Where's the iceberg?

  • @kms50138
    @kms50138 Рік тому

    🙌🙌🙌

  • @nicnic1190
    @nicnic1190 2 роки тому

    👌☺🤗🧬